Hi sir, For real you know what you’re talking about. I’m in us army , I’m dealing with this headache now and alll doctors I’m seeing are talking about migraine, I got injections twice but no releave. I’m suffering, I really need help. Didn’t get diagnosed yet. Thanks for your information on this subject.
Near constant nauseous burning in this occipital region for about 30 years. I've seen three migraine neurologist/specialists, have been told I have occipital neuralgia. Its worse when I look up or lie down to sleep. Cannot find a position that doesn't aggravate it. Even when pillows are placed just right, if I move in my sleep to a position that triggers it, I wake with horrific migraines. I have the diagnosis, but no treatment has been offered. I note the neck triggers my migraines, along with bright lights, certain smells, looking up/down, left/right too long. What to do? This is ruining my life. I take Imitrex vasoconstriction meds for the migraines, but they aren't good for kidneys, liver.
@@MigraineMeanderings I didn't mention I've been recently diagnosed with idiopathic small fiber peripheral polyneuropathy. Is that a contributing factor?
Omg. I'm bawling 😢😢.. I am suicidal because of pain.. I have occipital neuralgia,,, chiari malformation type 1 and now I think I have Trigeminal neuralgia... My doctor here in Ireland says it is just new daily migraines which I'm on emaglity pen injection for the last 13 months and is not working.. Botox definitely works but he wants me to do this trial injection. Im so sad.. So much pain... Do you think my chiari could be causing all this pain.. Wd so appreciate your advice please please please also are Trigeminal and occipital neuralgia related or can you have both? Nerve blocks into my greater nerve 100% work. But now I have face pain jaw pain eye pain on one side,, can't touch my face. Open my jaw 😢 Please reply because you seem to know what ur talking about xx
@lisamaire7509 I am so sorry that you are experiencing this pain. I have had ON since 2010 and have had trigeminal neuralgia triggered by a dentist. I am looking at nerve decompression surgery because my ON keeps getting worse. I don't know anything about Chiari, but I have all the same symptoms as you, though mine are on both sides. I wish you luck in your search for relief.
@@ly2961 hey,, I'm sorry u are suffering as well,, isn't it a nightmare to deal with? And what the dentist triggered that omg that's horrible? I had the pulse radio frequency done twice, don't think it worked,, where abt in the world are you from if you don't mind me asking? I've had this since 2011 too.. It's comforting to talk to someone who knows what it is like
@@lisamaire7509 I was having a crown put on a tooth. That pain was worse than ON - I was bawling for hours. I live in the US. And my name is also Lisa.
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Hi sir,
For real you know what you’re talking about.
I’m in us army , I’m dealing with this headache now and alll doctors I’m seeing are talking about migraine, I got injections twice but no releave.
I’m suffering, I really need help.
Didn’t get diagnosed yet.
Thanks for your information on this subject.
I have all these symptoms after a terrible fall
But i hear a thumping while lying down
Near constant nauseous burning in this occipital region for about 30 years. I've seen three migraine neurologist/specialists, have been told I have occipital neuralgia. Its worse when I look up or lie down to sleep. Cannot find a position that doesn't aggravate it. Even when pillows are placed just right, if I move in my sleep to a position that triggers it, I wake with horrific migraines.
I have the diagnosis, but no treatment has been offered. I note the neck triggers my migraines, along with bright lights, certain smells, looking up/down, left/right too long.
What to do? This is ruining my life.
I take Imitrex vasoconstriction meds for the migraines, but they aren't good for kidneys, liver.
So sorry to hear this. Have you checked out the resources on our website? migrainemeanderings.com/migraine-toolbox
@@MigraineMeanderings I didn't mention I've been recently diagnosed with idiopathic small fiber peripheral polyneuropathy. Is that a contributing factor?
Omg. I'm bawling 😢😢.. I am suicidal because of pain.. I have occipital neuralgia,,, chiari malformation type 1 and now I think I have Trigeminal neuralgia...
My doctor here in Ireland says it is just new daily migraines which I'm on emaglity pen injection for the last 13 months and is not working.. Botox definitely works but he wants me to do this trial injection.
Im so sad.. So much pain...
Do you think my chiari could be causing all this pain..
Wd so appreciate your advice please please please also are Trigeminal and occipital neuralgia related or can you have both?
Nerve blocks into my greater nerve 100% work.
But now I have face pain jaw pain eye pain on one side,, can't touch my face. Open my jaw 😢
Please reply because you seem to know what ur talking about xx
Yeh.. Thx for not replying 🙄
@lisamaire7509 I am so sorry that you are experiencing this pain. I have had ON since 2010 and have had trigeminal neuralgia triggered by a dentist. I am looking at nerve decompression surgery because my ON keeps getting worse. I don't know anything about Chiari, but I have all the same symptoms as you, though mine are on both sides. I wish you luck in your search for relief.
@@ly2961 hey,, I'm sorry u are suffering as well,, isn't it a nightmare to deal with? And what the dentist triggered that omg that's horrible? I had the pulse radio frequency done twice, don't think it worked,, where abt in the world are you from if you don't mind me asking? I've had this since 2011 too.. It's comforting to talk to someone who knows what it is like
@@lisamaire7509 I was having a crown put on a tooth. That pain was worse than ON - I was bawling for hours. I live in the US. And my name is also Lisa.
@@ly2961 nice to meet you Lisa.. Obviously I'm Irish 🤣. Did you get a nerve block done.? . It works 100 % for me for 3 months..