reading all your comments while listening to the discussion made it clear to me that I/we am/are indeed not alone. what i learned from having this disorder is patience and being forgiving to my own body. it differs from one person to another, but I really wish everyone comfort and happiness even while having this disorder.
Having a vestibular problems is life altering. Apart from balance issues there is the anxiety that goes with it ,princely the fear of falling. You can’t rely on your body to function normally as you go about your daily tasks as your attention is split between keeping your balance and the task at hand. I too have a second problem and that is dealing with noise which can act as another distraction and that adds to the anxiety load. I am to have an MRI to rule out more serious conditions. Your video is eye opening for many of us suffering from this and I thank you for presenting the information.
THIS! Every single time I tried to explain to the doctor, they just brush me off. I know I wasn't imagining it. I've had this for a few years now and just because I'm below 30, they tend to take this lightly. I cried profusely yesterday when I went thru this issue because I don't understand what was going on and it gave me a huge anxiety, and yesterday's disorientation was the worst, as I had it for 3 days straight. As I work in the ward now, I managed to get a prioritized medical checkup to be arranged asap. I really really hope they'll listen to me this time instead of brushing it off. (Yes, I went thru this issue during work and I had to be sent home. Usually I could try to brush it off but yesterday was horrible) Thank you for this video. I feel relief now knowing that I'm not alone, and that EVERYTHING IN THIS VIDEO really describes whatever I was feeling. From the symptoms to emotions to the fatigue etc etc. I pray for those working in the medical field to come across this video to extend their knowledge and open their mind instead of being complacent.
Hi Deal Shair, We're so glad the video was helpful for you. Let us know if you need more information or resources by calling us at 800-837-8428 or writing to info@vestibular.org
I really understand your pain as I am going through the same nobody understand and people tell to just don' t think about it. Doctors brush me off and I was like please just listen to me for once I am not crazy. I do physical activities every day yet it is haunting me. I literally felt like stress from this is killing me. I get you lets fight with this together. We are in this together and we can fight it.
My 16 year old is going through it. We went to Dr after dr.i think they're just blowing it off because she's young. I seen the impact this has had on my child and I will not stop till we get answers. I think I could she a Dr and specialize in this are as I have spent hours going over any and everything related to this disease. You're not alone and you have me in your corner. I think they perceive this like a mental illness if you can't physically see it then there's nothing wrong. No they are wrong
I am 33 ,and been suffering with this disorder since 17 and nobody was able to diagnose it I am crying watching this, is such a relief to me as I have been looked down all my life and acused of making it up Is so difficult to express what I am feeling right now for being able to see a response to all this years of suffering Thank you so much for this video,is a life changing🙏
This is unbearable, living with this disorder. 32 days now and I know now and have seen how that is such a small amount of time compared to many people I have now read/heard/watch talk about living with vestibular neuritis for many months, even years. I am completely overwhelmed with this. I'm sorry, I'm really in a bad place with this currently. I appreciate this video and the people taking the time to make it.
I currently have vestibular dysfunction as well. I have had it 2 years and it has only gotten worse. I can barely walk or see straight. I’m only 18 and I have never had a head injury or injury in general. I was walking down a trail and suddenly It felt like someone hit me in the head. My head jerked backwards and ever since that day 2 years ago, it has not gone away. I am currently getting rehabilitation for it in hopes it will completely go away or be more bearable.
@@abcdefghi__lmnopqrstuvwxyz1703 Ive had it for about a year. I’m 25 years old. I had a panic attack one day so bad it threw off my whole vision/ balance. I’m completely convinced it’s Pppd. It also for me has just gotten worse. Did the therapy help any?
@@ashf7573 This is me just a different account. I thankfully just finished therapy for good and I have been doing it about a year now. The therapy definitely took away the major symptoms, but there are still some small lingering symptoms 24/7 that I have to deal with. They are going to send me to a neurologist soon in hopes to find out the cause of the lingering symptoms. I feel more balanced definitely and I think you should definitely do therapy cause that could either take it completely away or most of it away (depends on the person).
@@lesqui I went to vestibular physical therapy and they gave me lots of techniques to do at home which helped a lot. I went to a neurologist but she was not very helpful because all she wanted to do was prescribe me antidepressants for my chronic vestibular migraines. She ordered an MRI and everything came out great, up on which I am grateful. My counselor helped me with coping skills so that I could actually go into a grocery store without freaking out. When I would go into Wally World I would hear the babies crying and the music and the lights and I just wanted to leave, but I would cope with it and my episodes only last for 10 minutes, I just had to hang in there.
I don't know how old you are but I think in some ways it could be worse for an adult. Mine started when I was 18 and it didn't start serioulsy getting to me for 25 or 30 years. It was debilitating but now I am realizing how much it affects me moreso that I am older (59) probably for a variety of reasons. I have so much anxiety and random crying spells of frustation etc. God bless you
@@dinok7098 doing okay. Having a good stretch. Medication has set in and the acupuncture seems to be helping the migraines. How about you? How are things?
@@thecarbonprop just started exercises a week ago for what the doc said is a vestibular dysfunction. it isnt cooperating with my eyes which is whats causing my symptoms I guess. He told me (functional neurologist) to stay off any meds. So ill see how this month goes if not better then ill go on some meds.
Thank you so much, I’ve had vestibular migraine for 4 years. Currently having a bad episode, been constantly dizzy for the past 2 months. It so nice to hear you explain the wide impact vestibular disorders have one peoples life. It really does have a big effect on your emotions. Thank you
Why is this NEUROLOGICAL DAMAGE not well-studied (or, at least, not enough to have it be recognised as a Disability)? Yeah; I am not 'fishing' for some "life of Reilly" free ride; I, literally, cannot function properly if I use too many of my spatial/kinetic stability "spoons" in any given day - with a recovery period lasting, usually, more than a day; my cognitive stamina is radically-different (and altered, in-general) from what it was. My family and friends can easily-detect how altered I am (but it seems impossible to effectively communicate this phenomenon to any medical personnel; they fixate-upon the fact that I'm able to be articulate (I studied Medicine for two years, before a medical crisis precipitated my relinquishing that pursuit. My knowledge of Anatomy and Physiology had always served me well, prior to my vestibular damage; now, it seems like my attempts at diagramming what I'm experiencing are received as.. challenges [?] to a Drs. .. something. Authority? I don't know; but I have about seven hours a day where, if I attend meticulously to all of my physiological needs (small snacks so that my blood sugar NEVER dips; a sound regimen of supplements; stretching and exercise; some cardio, but not too much, or I crash), I can squeeze eight hours of a type of exertion which, by comparison to what I've always been able to produce, is sparse. If there's ANY ambient noise, or "cross-talk", I CANNOT understand or retain any linguistic content. If two people speak at once, I can understand neither of them. I could go on for a long time here, but my primary question remains: WHY is this [globally-recognised] Neurological Damage NOT affirmed as being a life-altering event which, even with knowledge and resolute dedication, cannot be dismissed as 'psychosomatic'? Yeah: Not being able to walk, coordinate one's body/kinetics, etc. IS a bity frustrating, but you play the hand you're dealt; I get that. But invisible disabilities strike many demographics - and all experience common hardships which are denied. Complaining is not my goal here (and it's never been a mode that I employ, as a general rule); but this condition is impossible to ignore.
Great Job! Thank you for this information. I have dealt with Meniere's Disease for over 40 years (went bilateral 5 years ago) and know of its impact on hearing (I am a retired professional classical guitarist), But, thanks to VEDA, I am now learning about Meniere's cognitive impact and that is explaining many of my life's frustrations which were here-to-fore a mystery. This insight is VERY therapeutic!
If you havent already, get your jaw checked by a neuromuscular dentist. Sometimes incorrect jaw position can be mistaken for menieres and a lot of patients suffering from this have been cured.
Yes I went through PPPD persistent postural perceptual dizziness. I was diagnosed with chronic vestibular migraines. I went to a counselor that helped me with coping skills and diagnosed me with GAD general anxiety disorder and panic attacks. I had this problem come upon me suddenly and it lasted for nearly 6 months. The suffering was stemming from vertigo that hit me in 2014. It was progressing years after and now in 2022 I had my gallbladder removed because everything happening to me including GERD and acid reflux. I was nauseous 24/7. Now I have improved. I wrote a journal the whole time of everything I went through including all the drugs I was prescribed. Zanax, hydroxyzine, Prilosec, Zofran. My neurologist prescribed Duloxetine but that was a horrible experience. 😫 I also did vestibular physical therapy for a while and tried to glean as much as I could. Many symptoms were I couldn't get out of the car, couldn't get in the doctor's office, the waiting room was torture, very sensitive to light and sound, could not be in a crowded room with lots of noise, humming in ears constantly, couldn't get in the MRI machine, constant burping, chest pain, Waking with headaches coming on and so many other symptoms.
@Blessed Karma my relationship with God was the number one 🙌 priority. He was with me the whole time. It was because of Him I was healed. Through my suffering drew me closer to Him. I give my lord and Savior Jesus Christ the glory . Christ is everything. He is above all and I honor Him!!! He is a difference maker. You must be born again!
OMG i was suffering from this since long time and I am very grateful to watch this video to know there are lot of people suffering from this. It is actually painful when nobody can see what is happening to you and they think you are losing your mind. It can be depressing at times but I never had let my guards down in last 8 months. I don't skip a single activity which I used to do because of this and it is overwhelming at times. I am not taking any medications for anxiety and for most of the time I am successful to keep it at bay with my sports routine and physical activities yet it peaks and sends me down a dark hole some times. This quote says what I feel - this too shall pass. There is one more quote in Sanskrit - " Ahmaasmi yoddhaa" I am thinking of getting a tattoo of this as I see this quote and It fills me up with the motivation I am looking for to fight with this for an eternity.
This is great and very helpful to me. I am suffering from this, but hadn't linked it to all the psychological symptoms, anxiety, fear and limits I've suddenly found occurring in myself. THANK YOU!
Best vestibular video I have ever listened too … made me cry 😢 so much but has been so helpful when trying to explain to people how I feel . I am using this as as a helpful aid re letting more people be aware of how it affects us as vestibular patients !! I have listened to this a few times and now making helpful notes re explaining to people who really don’t understand how us as vestibular patients have to deal with emotions and physical ailments everyday !! So thank you 🙏🏻
Hi, came across your page. I have lots of anxiety with vestibular disorder. I had it for 4 years when for therapy for 6 month did not really help, I not able to socialize I get up and start getting light headed right away my anxiety level goes up the scale, not able to complete my chores. I get very tired. I take over the counter meds for my dizziness they seem to help but for a short while. I to focus on everything before I say yes, meaning focus where I am going. I leave my home with good friends to do shopping most time they have to bring me back home. I feel a lost of my life. Participate in activities very few times. I use to go to the gym 4 times a week, yes its hard to carry out conversations. yes I have to take more time to do things. I wish this would go away.
Thank you for this. From the bottom of my heart. I'm only 10 mins in and it's already so relatable. The difficulty I have is that because people don't really know anything about Vest Dis they don't understand and think it's all in my head. Currently having a flare up so went searching for anything that might help.
In January 2019, I was suddenly hit with severe flu-like symptoms: was vomiting lying down as I was too weak to sit up. The illness passed in 24 hours; but I had vertigo, trouble walking in dark, could not balance properly, could not walk straight. After 1 week I was back at work but had to be driven for the first week, then I was able to drive myself. I saw the ENT and audiologist who diagnosed bppv and vestibular problem on the left side. At this point I felt I was back to 95% of my prior functioning. I was not referred to the vestibular specialist at this practice; I was given the epley exercises which I did for the next few weeks. In the longer term of these last 1 1/2 tears, I observe that I do have more trouble focusing at work; it does take me longer to do activities; and if I come under stress at work (I am in IT) I worry that I can not respond as well as I used to. Decision-making is difficult and I still do not walk completely straight. I notice that when someone walks towards me on the left (problem) side, I feel nervous as to how close they get on that side (like magnets repelling ). I am able to ride my bike, but when I get tired, I lose balance . Also I have become rather clumsy at times; for example, I might see a box on the floor but do not fully avoid the box with my legs when moving past. What is my next step? Is this going to be a problem forever? Will this lead to dementia? Is it reasonable for me to consult a vestibular specialist (and not just ENT/audiologist) for another look ? Would appreciate any suggestions.
I appreciate this clip very much. The idea of a clinical psychologist to help provide coping strategies is something I'd actually never thought of... Nor had any of the medical personnel in the ER, or the physical therapists who treated me, had suggested.
Been diagnosed with pppd. The ironic thing is that it came out of nowhere in my final weeks of my first year of my counselling diploma where I had decided that CBT would be a favourite form of therapy to use on my future clients😪. 3 months of feeling like I am on a boat and being pulled by an invisible magnet 24/7, panic attacks and hot flushes during sleep, tinnitus, isolation, anxiety and depression. I'm running on 3 hours sleep a night eventhough exhausted. I pray for each person struggling with a vestibular disorder that you find a breakthrough.
I get similar symptoms. Been to ENT, and Neurologist and all test normal. I have constant tension in back of head and neck, and now in my upper stomach and near heart area. It triggers my anxiety. I haven't been able to hold a job because of it. I've always had anxiety, but was able to manage it without medication, up until this feeling on a boat like you dicribed, about a year ago when it started out of nowhere as well. I still don't take any medication because of the side effects, but am thinking of trying something soon because this feeling is terrible. Always tired as well. Do you have tension in back of head and neck?
Thanks all of these fit and explains so much. I have most of these from a total bilateral vestibular loss from a gentamicin ototoxicity. Have had many times I was just thinking I was going crazy. Have been forced into early retirement and disability. One of my hardest loss has been the fact I can no longer drive. I pray for some kind of study to help with this.
Hi Pia, We can point you to some support services such as online support groups where you can share your story with other patients within the vestibular community at our website at vestibular.org or email us at info@vestibular.org
Very informative....have a lot of symptoms here,did not realise they could all be associated with the vistibular dysfunction...makes sense (and makes me feel better,that something else isn't damaged as well)...thanks for sharing
Nine years with this. Finally told many years ago, first told it was MS, then from eye doctor it was 6th nerve palsy from diabetes, then from neurologist migraine. Recently, the new eye doc ordered prisms for double vision.😕
Thank you so much for this. Everything I've been dealing with has been covered in this webinar. Especially the being misunderstood part... It's been really frustrating to have experienced doctors saying what I'm experiencing is nothing but just dizziness and not to anticipate getting dizzy...like I can control it!? I have been confined numerous times the past 3 years due to extreme vertigo and it's really frustrating to have come across doctors that don't understand what I'm feeling. Thankfully, I came across the vestibular disorder therapy exercises and it helped me a lot in my vertigo spells.
I've gotten a bit of vestibular nerve damage from volleyball and my vertigo was rlly bad at a point (physical therapy got it like 75% there and then it just improved ultra effing slow from there) I recently spent six weeks on a tall ship, which was like doing parkour from morning till night to actually be mobile-ish, and I knew what those balance issues were from, but despite using every single line to move every day plus hauling and striking sails, my memory for that was the worst out of everybody's, I barely knew which lines were which and just thought I was really dumb it also rlly bothered me that my memory for gybing was rlly horrible I should have known that but I just couldn't remembered or focus I guess since I spent so much energy actually focusing on not faceplanting, my brain didn't have any energy left over to process other shit
Really grateful for this education❣️ I know something were different in my body, mind and even my soul connected to Vertigo! Yet I don’t look different to my circle so I get these blank stares of what’s wrong with you and is it in your head, 🤔
@@VestibularVeDA what struck me the most was how similar the symptoms were to my ADHD. Even though I only got diagnosed and treated as an adult, I soon found I was getting severe issues that made me believe my medication was the problem. In Oct I had that vertigo spinning event that was talked about causing severe and have had these vestibular issues since (diagnosed VM and Pppd now). Is there a connection between ADHD and VM? Did one cause the other? Or is it the same neurotransmitters?
@@aynahennessy2333 Here is a study that shows a connection between ADHD and vestibular migraine: bmcneurol.biomedcentral.com/articles/10.1186/s12883-018-1149-6. Great question!
I’m from Australia and was wondering if having a vestibular disorder on top of physical disability such as hearing and vision loss is common amongst patients who have these disabilities. I found your seminar very informative whilst I’ve not formally been diagnosed with vestibular disorder. Over the past nine months I’ve been living with many of this symptoms on a daily basis. Which I’m at the point where I feel like I’m in a dark tunnel where there feels like very little light at the end of my tunnel. This time last year I was doing loads of walking an activity I love, to only doing it now with assistance due to the risk of a fall, very debilitating for me. Driving is something I’ve not done for around four months due to the amount of concentration and movement required to get from one place to the next. Also, I’ve recently noticed that I’ve been experiencing more motion sickness. I’ve been trying to find find a support group in my state in Queensland, Australia that helps those with multiple conditions that impacts their daily lives. I’d love to hear your thoughts on how I can find the right people to help support me in my vestibular disorder and give the mental and emotional support I need going into 2023, as I can’t deal with another 2022. LWMD (Living with multiple disabilities)
Hi Joanne, it is very common for people to have a vestibular disorder as well as a hearing and vision loss. When you have both one issue builds on the other, and can lower ones function as the brain relies on vision and hearing to help with balance. In regards to support groups, I welcome you to visit our support groups page (vestibular.org/article/coping-support/support-groups/), were you will find we have online as well as in-person support groups. Currently the only in-person support group listed for Australia is the Sydney Meniere’s Support Group; perhaps you may contact them and they may have leads on additional support groups and resources within your area.
i suffer from some sort of vestibular disorder ...2 1/2 years ago i got a bad ear an nasal infection an ever since then i been dizzy 24/7 all the doctors ive been to don't have no clue why im dizzy weak bad anxiety chronic stress that comes with this :(
Thank you so much for the video. You have described exactly what I am going through. Does Clonazepam help or it may make it worse in future. I am 59 years old. No one believed what I was going through and at work I am an outsider. My symptoms have progressed over the years. I know I had milder symptoms years back but I am in a tough situation. Still need job for insurance and it's getting rough.
Hello, It depends on the vestibular disorder whether or not a prescription of Clonazepam would be appropriate. Please email us at info@vestibular.org or call us at 800-837-8428 for educational information, provider referrals and support resources.
Struggled with this for 10 years...feel like I have died and now I'm just going through the motions of life. Would love the Lord to take me home! I'm ready.
Hopefully there are groups chat of people here in philippines who have a vestibular disorder , so that we can share about our feelings , it can minimized our emotional feelings , Hopefully their is a Dr. who help us and make a Group chat 🙏🙏
31 years and counting with all of this. Started with an overdose of Synthroid. Left ear affected. Vestibular migraine and Meniere's. Nary a day without it from mild to moderate or severe. A couple of profound events as well.
Why do the sunglasses work? Are you light sensitive with this condition? I have significant hearing loss while at the same time some sounds are extra loud to me and cause me anxiety. I don’t know what would work for me. I’m glad you found something that helped.
@@jimmcconnell7328 Hey, i think it is light sensitivity in that bright or flashing lights make me dizzy because my eyes take up the role of my balance to a large extent. Its called visual vertigo. Im sorry about the anxiety your experiencing, I find trying to focus on something specific helps a lot, Do you think your problem is sensory overload?
@@emmatheresa6948 I think it’s because sounds in one ear are muffled and in the other sounds are amplified. I’m told I need to see a specialist so hopefully they can find the problem. I also have ataxia which could be linked to the vestibular issues. Maybe if they can fix one problem the other can be resolved. Thanks for your reply.
I have this disorder from vancamyacyn(?)and gentamycin ototxicity. For 6 yrs. From MRSA Staph after a BRKA. Wearing me out. But everybody has to keep scrappin' and try to move forward!
I also have total bilateral vestibular loss from gentamicin ,and have now not able to work or drive for two years now. Was forced into early retirement and had to have my Daughter and family move in with us. I have had to go on depression and anxiety meds just to cope my whole life has turned upside down, and at least I’m not feeling alone like no one else understands. Most people don’t understand
@@debbies9424 hi! I absolutely feel your struggle! Even though in my case its unilateral i have loss in right ear 30 %... But it feels very bad i am dizzy all the time i have a bad vertigo☹️ gentamicin turned my life into hell...
Thank you for this video....I have vistibular disorder after a car accident I have most of these symptoms will I ever cure from this as I feel otherwise cause it seems to be getting worst with time.
Per the poll: ALL THE ABOVE. It's hard to imagine others did not say that, but mine started in 1982 and it is 2023 now... It's only gotten worse in some ways (and better in others - I feel less movement)
Please help my dr can't figure this out my 2nd ent again has no answers sending me to 3rd neurologist . Where can I get diagnosed and medications ti get better I've lost 4 years of my life
I developed this strange and horrific condition after going on a road trip. I haven’t been the same since and it was almost a year ago. It has been a journey I’ll say that much. My symptoms were absolutely debilitating. I understand how you feel. My worst symptom is the derealization but I have a long list. I started celery juicing last October and that helped me out of the darkest times of VM. I’m healing drug free/chemical free. No pharmaceuticals. A clean/low fat detox diet will help you tremendously. I recommend looking into Anthony William (medical medium) protocols and looking at the list of foods to avoid. What you fuel your body with means everything with a condition like this. If you have any questions feel free to ask
Hi Riana, You can contact us at info@vestibular.org and take a look at our support groups where you can share your story here: vestibular.org/article/coping-support/support-groups/
I have had scans on my brain ive been to ent my doctor said there all clear I have bad pains down one side of my head and out my ear specialist said probly nerve then I was dissmised I most of the symtoms you spoke of one ballence and memory loss scare me ive had many falls im at a loss wath to do my doctor have no interest
Conventional medicine labels these issues "functional" and because it can't help it loses interest quickly. Vestibular rehabilitation and neuro-rehabilitation are good areas to search.
Hi, our Psychological Impacts of Vestibular Disorders video is not actually transcribed. In the past some of webinar videos have been transcribed by an auto service, we have found this service does not work as well. To broaden our inclusivity we are having live transcriptionist, starting with our Life Rebalanced Live - VeDA’s Annual Virtual Conference (vestibular.org/lrl/). I do welcome you to turn on the closed captioning.
@@VestibularVeDA What I would like is to offer my assistance by translating this seminar to Arabic. That is why I needed some form of transcript. If it's not possible, I'll just find some workaround. Many thanks.
You can also access articles about the psychological impacts of vestibular disorders on our website: vestibular.org/article/coping-support/psychology/.
Hi Unknow N, It is common for individuals with concussions to have vestibular involvement. Please check out our website at vestibular.org for more information.
I would talk to your doctor about a referral to a psychiatrist to discuss medications. Counseling is important, and there are other coping strategies (see the last part of the presentation).
Love the information and the knowledge the two individuals is offering to the vestibular community. But I have to say and sorry for being negative. But speaker who is use the word ( Hmmmm) after about every work she speak is making the information a little hard the follow.
I take Betahistine 16mg up to 3 times daily. It does help with the ‘dizzy’ sensation. But doesn’t completely get rid of the symptoms. I can feel it release pressure from the inner ear (I get popping noises) which helps ease the vertigo. Definitely would advice giving it a try but be consistent with it.
Lorriane, I'm sorry you're going through such a difficult time. Please feel free to contact our patient support coordinator at 800-837-8428 or info@vestibular.org if we can assist you.
I am suffering that kind of problem I feel fear of falling all the time while I am walking or sitting & when I try to drive I feel the whecle is tilting on left side in curves and inclined roads it become more worse.
As an acute vestibular disorder patient, I can personally relate to everything they’re describing but because these two speakers cannot do so without lip smacking & a TREMENDOUS usage of “uhms” between words, i find this impossible to get through. For someone with this disorder, listening to another speak this way makes it very confusing; it’s like I have to reconstruct each sentence, leaving out each “uhm” as a word within the sentence so I can understand what was just said. I just cannot do it.
reading all your comments while listening to the discussion made it clear to me that I/we am/are indeed not alone. what i learned from having this disorder is patience and being forgiving to my own body. it differs from one person to another, but I really wish everyone comfort and happiness even while having this disorder.
Thank you 😊
Having a vestibular problems is life altering. Apart from balance issues there is the anxiety that goes with it ,princely the fear of falling. You can’t rely on your body to function normally as you go about your daily tasks as your attention is split between keeping your balance and the task at hand. I too have a second problem and that is dealing with noise which can act as another distraction and that adds to the anxiety load. I am to have an MRI to rule out more serious conditions. Your video is eye opening for many of us suffering from this and I thank you for presenting the information.
Hi, did you have hiperacusis?
How are you felling now?
THIS! Every single time I tried to explain to the doctor, they just brush me off. I know I wasn't imagining it. I've had this for a few years now and just because I'm below 30, they tend to take this lightly.
I cried profusely yesterday when I went thru this issue because I don't understand what was going on and it gave me a huge anxiety, and yesterday's disorientation was the worst, as I had it for 3 days straight.
As I work in the ward now, I managed to get a prioritized medical checkup to be arranged asap. I really really hope they'll listen to me this time instead of brushing it off. (Yes, I went thru this issue during work and I had to be sent home. Usually I could try to brush it off but yesterday was horrible)
Thank you for this video. I feel relief now knowing that I'm not alone, and that EVERYTHING IN THIS VIDEO really describes whatever I was feeling. From the symptoms to emotions to the fatigue etc etc.
I pray for those working in the medical field to come across this video to extend their knowledge and open their mind instead of being complacent.
Hi Deal Shair, We're so glad the video was helpful for you. Let us know if you need more information or resources by calling us at 800-837-8428 or writing to info@vestibular.org
@@VestibularVeDA thank you so much. Will do!! Have a blessfull day ahead ❤
I really understand your pain as I am going through the same nobody understand and people tell to just don' t think about it. Doctors brush me off and I was like please just listen to me for once I am not crazy. I do physical activities every day yet it is haunting me. I literally felt like stress from this is killing me. I get you lets fight with this together. We are in this together and we can fight it.
My 16 year old is going through it. We went to Dr after dr.i think they're just blowing it off because she's young. I seen the impact this has had on my child and I will not stop till we get answers. I think I could she a Dr and specialize in this are as I have spent hours going over any and everything related to this disease. You're not alone and you have me in your corner. I think they perceive this like a mental illness if you can't physically see it then there's nothing wrong. No they are wrong
Hi did you hace symtomps in the ears, ringins, tinitus or hiperacusis?
I am 33 ,and been suffering with this disorder since 17 and nobody was able to diagnose it
I am crying watching this, is such a relief to me as I have been looked down all my life and acused of making it up
Is so difficult to express what I am feeling right now for being able to see a response to all this years of suffering
Thank you so much for this video,is a life changing🙏
This is unbearable, living with this disorder. 32 days now and I know now and have seen how that is such a small amount of time compared to many people I have now read/heard/watch talk about living with vestibular neuritis for many months, even years. I am completely overwhelmed with this. I'm sorry, I'm really in a bad place with this currently. I appreciate this video and the people taking the time to make it.
I currently have vestibular dysfunction as well. I have had it 2 years and it has only gotten worse. I can barely walk or see straight. I’m only 18 and I have never had a head injury or injury in general. I was walking down a trail and suddenly It felt like someone hit me in the head. My head jerked backwards and ever since that day 2 years ago, it has not gone away. I am currently getting rehabilitation for it in hopes it will completely go away or be more bearable.
@@abcdefghi__lmnopqrstuvwxyz1703 Ive had it for about a year. I’m 25 years old. I had a panic attack one day so bad it threw off my whole vision/ balance. I’m completely convinced it’s Pppd. It also for me has just gotten worse. Did the therapy help any?
@@ashf7573 This is me just a different account. I thankfully just finished therapy for good and I have been doing it about a year now. The therapy definitely took away the major symptoms, but there are still some small lingering symptoms 24/7 that I have to deal with. They are going to send me to a neurologist soon in hopes to find out the cause of the lingering symptoms. I feel more balanced definitely and I think you should definitely do therapy cause that could either take it completely away or most of it away (depends on the person).
@@lesqui I went to vestibular physical therapy and they gave me lots of techniques to do at home which helped a lot. I went to a neurologist but she was not very helpful because all she wanted to do was prescribe me antidepressants for my chronic vestibular migraines. She ordered an MRI and everything came out great, up on which I am grateful. My counselor helped me with coping skills so that I could actually go into a grocery store without freaking out. When I would go into Wally World I would hear the babies crying and the music and the lights and I just wanted to leave, but I would cope with it and my episodes only last for 10 minutes, I just had to hang in there.
I don't know how old you are but I think in some ways it could be worse for an adult. Mine started when I was 18 and it didn't start serioulsy getting to me for 25 or 30 years. It was debilitating but now I am realizing how much it affects me moreso that I am older (59) probably for a variety of reasons. I have so much anxiety and random crying spells of frustation etc. God bless you
My god! This is the most accurate description of my last year. Now I have something to share with people who are trying to comprehend. Thank you!
How are you doing now?
@@dinok7098 doing okay. Having a good stretch. Medication has set in and the acupuncture seems to be helping the migraines. How about you? How are things?
@@thecarbonprop just started exercises a week ago for what the doc said is a vestibular dysfunction. it isnt cooperating with my eyes which is whats causing my symptoms I guess. He told me (functional neurologist) to stay off any meds. So ill see how this month goes if not better then ill go on some meds.
@@dinok7098 good luck with getting some relief. It's an awful thing to live with.
@@thecarbonprop he’s saying I should get back to normal. I hoe he is right ):
Thank you so much, I’ve had vestibular migraine for 4 years. Currently having a bad episode, been constantly dizzy for the past 2 months. It so nice to hear you explain the wide impact vestibular disorders have one peoples life. It really does have a big effect on your emotions. Thank you
Why is this NEUROLOGICAL DAMAGE not well-studied (or, at least, not enough to have it be recognised as a Disability)? Yeah; I am not 'fishing' for some "life of Reilly" free ride; I, literally, cannot function properly if I use too many of my spatial/kinetic stability "spoons" in any given day - with a recovery period lasting, usually, more than a day; my cognitive stamina is radically-different (and altered, in-general) from what it was. My family and friends can easily-detect how altered I am (but it seems impossible to effectively communicate this phenomenon to any medical personnel; they fixate-upon the fact that I'm able to be articulate (I studied Medicine for two years, before a medical crisis precipitated my relinquishing that pursuit. My knowledge of Anatomy and Physiology had always served me well, prior to my vestibular damage; now, it seems like my attempts at diagramming what I'm experiencing are received as.. challenges [?] to a Drs. .. something. Authority? I don't know; but I have about seven hours a day where, if I attend meticulously to all of my physiological needs (small snacks so that my blood sugar NEVER dips; a sound regimen of supplements; stretching and exercise; some cardio, but not too much, or I crash), I can squeeze eight hours of a type of exertion which, by comparison to what I've always been able to produce, is sparse. If there's ANY ambient noise, or "cross-talk", I CANNOT understand or retain any linguistic content. If two people speak at once, I can understand neither of them. I could go on for a long time here, but my primary question remains: WHY is this [globally-recognised] Neurological Damage NOT affirmed as being a life-altering event which, even with knowledge and resolute dedication, cannot be dismissed as 'psychosomatic'? Yeah: Not being able to walk, coordinate one's body/kinetics, etc. IS a bity frustrating, but you play the hand you're dealt; I get that. But invisible disabilities strike many demographics - and all experience common hardships which are denied. Complaining is not my goal here (and it's never been a mode that I employ, as a general rule); but this condition is impossible to ignore.
Great Job! Thank you for this information. I have dealt with Meniere's Disease for over 40 years (went bilateral 5 years ago) and know of its impact on hearing (I am a retired professional classical guitarist), But, thanks to VEDA, I am now learning about Meniere's cognitive impact and that is explaining many of my life's frustrations which were here-to-fore a mystery. This insight is VERY therapeutic!
If you havent already, get your jaw checked by a neuromuscular dentist. Sometimes incorrect jaw position can be mistaken for menieres and a lot of patients suffering from this have been cured.
Yes I went through PPPD persistent postural perceptual dizziness. I was diagnosed with chronic vestibular migraines. I went to a counselor that helped me with coping skills and diagnosed me with GAD general anxiety disorder and panic attacks. I had this problem come upon me suddenly and it lasted for nearly 6 months. The suffering was stemming from vertigo that hit me in 2014. It was progressing years after and now in 2022 I had my gallbladder removed because everything happening to me including GERD and acid reflux. I was nauseous 24/7. Now I have improved. I wrote a journal the whole time of everything I went through including all the drugs I was prescribed. Zanax, hydroxyzine, Prilosec, Zofran. My neurologist prescribed Duloxetine but that was a horrible experience. 😫
I also did vestibular physical therapy for a while and tried to glean as much as I could. Many symptoms were I couldn't get out of the car, couldn't get in the doctor's office, the waiting room was torture, very sensitive to light and sound, could not be in a crowded room with lots of noise, humming in ears constantly, couldn't get in the MRI machine, constant burping, chest pain, Waking with headaches coming on and so many other symptoms.
I've had pppd for 3 months. It's awesome to read you have recovered it gives me hope x
@Blessed Karma my relationship with God was the number one 🙌 priority.
He was with me the whole time. It was because of Him I was healed. Through my suffering drew me closer to Him. I give my lord and Savior Jesus Christ the glory . Christ is everything. He is above all and I honor Him!!!
He is a difference maker.
You must be born again!
@@peggykitting6036hi, did you have hiperacusis?
@@BlessedKarma10how are ypu doing? I hope you are ok .
OMG i was suffering from this since long time and I am very grateful to watch this video to know there are lot of people suffering from this. It is actually painful when nobody can see what is happening to you and they think you are losing your mind. It can be depressing at times but I never had let my guards down in last 8 months. I don't skip a single activity which I used to do because of this and it is overwhelming at times. I am not taking any medications for anxiety and for most of the time I am successful to keep it at bay with my sports routine and physical activities yet it peaks and sends me down a dark hole some times. This quote says what I feel - this too shall pass. There is one more quote in Sanskrit - " Ahmaasmi yoddhaa" I am thinking of getting a tattoo of this as I see this quote and It fills me up with the motivation I am looking for to fight with this for an eternity.
i cried listening to this. thank you for speaking about my life.
same here i’m currently crying listening to this, this is the hardest thing i’ve ever dealt with
This is great and very helpful to me. I am suffering from this, but hadn't linked it to all the psychological symptoms, anxiety, fear and limits I've suddenly found occurring in myself. THANK YOU!
I am 4 weeks in with vestibular neuritis, one of the hardest months of my life
Thank you for this very informative webinar ... it has helped me
The last 2 years have been hell on earth. I wouldn’t wish this on anyone.
We're so sorry to hear this, if we can provide any resources or support please contact us at info@vestibular.org or call us at 800-837-8428.
Best vestibular video I have ever listened too … made me cry 😢 so much but has been so helpful when trying to explain to people how I feel . I am using this as as a helpful aid re letting more people be aware of how it affects us as vestibular patients !! I have listened to this a few times and now making helpful notes re explaining to people who really don’t understand how us as vestibular patients have to deal with emotions and physical ailments everyday !! So thank you 🙏🏻
Thank you for this. Listening to this video made me realize I'm not alone.
you are not alone
This describes all that l have been going though for the second time in my life nobody understands how debilitating this illness is.... thank you.
@@maviscoils9672 I don’t know if this what I got but I have all the symptoms it’s horrible
Hi, came across your page. I have lots of anxiety with vestibular disorder. I had it for 4 years when for therapy for 6 month did not really help, I not able to socialize I get up and start getting light headed right away my anxiety level goes up the scale, not able to complete my chores. I get very tired. I take over the counter meds for my dizziness they seem to help but for a short while. I to focus on everything before I say yes, meaning focus where I am going. I leave my home with good friends to do shopping most time they have to bring me back home. I feel a lost of my life. Participate in activities very few times. I use to go to the gym 4 times a week, yes its hard to carry out conversations. yes I have to take more time to do things. I wish this would go away.
HI Judith, We're sorry to hear about your experience. Contact us for support resources at info@vestibular.org or at 800-837-8428.
Thank you for sharing
I just been diagnosed with a vestibular disorder
Horrible experience
Thank you for posting this, this has caused me a lot of anxiety. Mine started after vertigo but I'm really hopeful that physical therapy will help
Thank you for this. From the bottom of my heart. I'm only 10 mins in and it's already so relatable. The difficulty I have is that because people don't really know anything about Vest Dis they don't understand and think it's all in my head. Currently having a flare up so went searching for anything that might help.
In January 2019, I was suddenly hit with severe flu-like symptoms: was vomiting lying down as I was too weak to sit up. The illness passed in 24 hours; but I had vertigo, trouble walking in dark, could not balance properly, could not walk straight. After 1 week I was back at work but had to be driven for the first week, then I was able to drive myself. I saw the ENT and audiologist who diagnosed bppv and vestibular problem on the left side. At this point I felt I was back to 95% of my prior functioning.
I was not referred to the vestibular specialist at this practice; I was given the epley exercises which I did for the next few weeks.
In the longer term of these last 1 1/2 tears, I observe that I do have more trouble focusing at work; it does take me longer to do activities; and if I come under stress at work (I am in IT) I worry that I can not respond as well as I used to. Decision-making is difficult and I still do not walk completely straight. I notice that when someone walks towards me on the left (problem) side, I feel nervous as to how close they get on that side (like magnets repelling ). I am able to ride my bike, but when I get tired, I lose balance . Also I have become rather clumsy at times; for example, I might see a box on the floor but do not fully avoid the box with my legs when moving past.
What is my next step? Is this going to be a problem forever? Will this lead to dementia?
Is it reasonable for me to consult a vestibular specialist (and not just ENT/audiologist) for another look ?
Would appreciate any suggestions.
I appreciate this clip very much. The idea of a clinical psychologist to help provide coping strategies is something I'd actually never thought of... Nor had any of the medical personnel in the ER, or the physical therapists who treated me, had suggested.
Been diagnosed with pppd. The ironic thing is that it came out of nowhere in my final weeks of my first year of my counselling diploma where I had decided that CBT would be a favourite form of therapy to use on my future clients😪. 3 months of feeling like I am on a boat and being pulled by an invisible magnet 24/7, panic attacks and hot flushes during sleep, tinnitus, isolation, anxiety and depression. I'm running on 3 hours sleep a night eventhough exhausted.
I pray for each person struggling with a vestibular disorder that you find a breakthrough.
I get similar symptoms. Been to ENT, and Neurologist and all test normal. I have constant tension in back of head and neck, and now in my upper stomach and near heart area. It triggers my anxiety. I haven't been able to hold a job because of it. I've always had anxiety, but was able to manage it without medication, up until this feeling on a boat like you dicribed, about a year ago when it started out of nowhere as well. I still don't take any medication because of the side effects, but am thinking of trying something soon because this feeling is terrible. Always tired as well. Do you have tension in back of head and neck?
Thanks all of these fit and explains so much. I have most of these from a total bilateral vestibular loss from a gentamicin ototoxicity. Have had many times I was just thinking I was going crazy. Have been forced into early retirement and disability. One of my hardest loss has been the fact I can no longer drive. I pray for some kind of study to help with this.
Praying to Jesus helps me. In fact it brought me here.
amen
I pray the same thing for me and you..
Me too AMEN!
Praying for me too 😪
I had no idea there were more people who felt like this. This was very helpful, thank you!
Hi Pia, We can point you to some support services such as online support groups where you can share your story with other patients within the vestibular community at our website at vestibular.org or email us at info@vestibular.org
Very informative....have a lot of symptoms here,did not realise they could all be associated with the vistibular dysfunction...makes sense (and makes me feel better,that something else isn't damaged as well)...thanks for sharing
This was incredible. Great work.
Thank you so much for this. It explains so well what we deal with every day. I will be sharing this with some co-workers and friends.
Nine years with this. Finally told many years ago, first told it was MS, then from eye doctor it was 6th nerve palsy from diabetes, then from neurologist migraine. Recently, the new eye doc ordered prisms for double vision.😕
Let us know if we can help by writing us for support resources, information and referrals at info@vestibular.org
WOW!!! SO informative! This explains so much. Thank you!
SO glad you found it helpful! Check out our website at www.vestibular.org
Thank you so much for this. Everything I've been dealing with has been covered in this webinar. Especially the being misunderstood part... It's been really frustrating to have experienced doctors saying what I'm experiencing is nothing but just dizziness and not to anticipate getting dizzy...like I can control it!? I have been confined numerous times the past 3 years due to extreme vertigo and it's really frustrating to have come across doctors that don't understand what I'm feeling.
Thankfully, I came across the vestibular disorder therapy exercises and it helped me a lot in my vertigo spells.
otche80 We're so glad it was helpful! If we can help you further please email us at info@vestibular.org or look at the website at vestibular.org
Spot ON! Thank you so much!
I've gotten a bit of vestibular nerve damage from volleyball and my vertigo was rlly bad at a point (physical therapy got it like 75% there and then it just improved ultra effing slow from there)
I recently spent six weeks on a tall ship, which was like doing parkour from morning till night to actually be mobile-ish, and I knew what those balance issues were from, but despite using every single line to move every day plus hauling and striking sails, my memory for that was the worst out of everybody's, I barely knew which lines were which and just thought I was really dumb
it also rlly bothered me that my memory for gybing was rlly horrible
I should have known that but I just couldn't remembered or focus
I guess since I spent so much energy actually focusing on not faceplanting, my brain didn't have any energy left over to process other shit
What symptoms did you have and what type of things helped ? I play Vball and believe I have a lot of stuff caused from it as well
Thank you ❤
Thank you for posting this!
Really grateful for this education❣️ I know something were different in my body, mind and even my soul connected to Vertigo! Yet I don’t look different to my circle so I get these blank stares of what’s wrong with you and is it in your head, 🤔
Im always possitive and live for years with this and cope by myself.
I’m writing my thesis on the psychological impacts of vestibular disorders.
That's wonderful, Shona! We would love to hear more about your work. Please feel free to email us at info@vestibular.org if we can help in any way.
@@VestibularVeDA what struck me the most was how similar the symptoms were to my ADHD. Even though I only got diagnosed and treated as an adult, I soon found I was getting severe issues that made me believe my medication was the problem. In Oct I had that vertigo spinning event that was talked about causing severe and have had these vestibular issues since (diagnosed VM and Pppd now).
Is there a connection between ADHD and VM? Did one cause the other? Or is it the same neurotransmitters?
@@aynahennessy2333 Here is a study that shows a connection between ADHD and vestibular migraine: bmcneurol.biomedcentral.com/articles/10.1186/s12883-018-1149-6. Great question!
@@aynahennessy2333 check works of Harold Levinson.
Thank You
I’m from Australia and was wondering if having a vestibular disorder on top of physical disability such as hearing and vision loss is common amongst patients who have these disabilities. I found your seminar very informative whilst I’ve not formally been diagnosed with vestibular disorder. Over the past nine months I’ve been living with many of this symptoms on a daily basis. Which I’m at the point where I feel like I’m in a dark tunnel where there feels like very little light at the end of my tunnel.
This time last year I was doing loads of walking an activity I love, to only doing it now with assistance due to the risk of a fall, very debilitating for me. Driving is something I’ve not done for around four months due to the amount of concentration and movement required to get from one place to the next. Also, I’ve recently noticed that I’ve been experiencing more motion sickness.
I’ve been trying to find find a support group in my state in Queensland, Australia that helps those with multiple conditions that impacts their daily lives.
I’d love to hear your thoughts on how I can find the right people to help support me in my vestibular disorder and give the mental and emotional support I need going into 2023, as I can’t deal with another 2022.
LWMD (Living with multiple disabilities)
Hi Joanne, it is very common for people to have a vestibular disorder as well as a hearing and vision loss. When you have both one issue builds on the other, and can lower ones function as the brain relies on vision and hearing to help with balance.
In regards to support groups, I welcome you to visit our support groups page (vestibular.org/article/coping-support/support-groups/), were you will find we have online as well as in-person support groups. Currently the only in-person support group listed for Australia is the Sydney Meniere’s Support Group; perhaps you may contact them and they may have leads on additional support groups and resources within your area.
i suffer from some sort of vestibular disorder ...2 1/2 years ago i got a bad ear an nasal infection an ever since then i been dizzy 24/7 all the doctors ive been to don't have no clue why im dizzy weak bad anxiety chronic stress that comes with this :(
anxiety
Thank-you very much for this. It is very helpful
Thank you so much for the video. You have described exactly what I am going through. Does Clonazepam help or it may make it worse in future. I am 59 years old. No one believed what I was going through and at work I am an outsider. My symptoms have progressed over the years. I know I had milder symptoms years back but I am in a tough situation. Still need job for insurance and it's getting rough.
Hello, It depends on the vestibular disorder whether or not a prescription of Clonazepam would be appropriate. Please email us at info@vestibular.org or call us at 800-837-8428 for educational information, provider referrals and support resources.
@@VestibularVeDA sorry just saw your message.
Keep these going. Listening is so helpful have trouble with print.
Thank you, been feeling unbalanced since I had a bout of vertigo. I can drive now but I feel as though I am in lala land a d don't know what to do now
Struggled with this for 10 years...feel like I have died and now I'm just going through the motions of life. Would love the Lord to take me home! I'm ready.
At one time I felt just the same as you but I'm fighting to get through this. Good Luck!
Hopefully there are groups chat of people here in philippines who have a vestibular disorder , so that we can share about our feelings , it can minimized our emotional feelings ,
Hopefully their is a Dr. who help us and make a Group chat 🙏🙏
Thank you...
31 years and counting with all of this. Started with an overdose of Synthroid. Left ear affected. Vestibular migraine and Meniere's. Nary a day without it from mild to moderate or severe. A couple of profound events as well.
HI Kathy, I'm sorry to hear about your experience. Write us at info@vestibular.org or call at 800-837-8428 for support resources.
Anyone having trouble in supermarkets and generally in public settings should try sunglasses, made a big difference to me
Why do the sunglasses work? Are you light sensitive with this condition? I have significant hearing loss while at the same time some sounds are extra loud to me and cause me anxiety. I don’t know what would work for me. I’m glad you found something that helped.
@@jimmcconnell7328 Hey, i think it is light sensitivity in that bright or flashing lights make me dizzy because my eyes take up the role of my balance to a large extent. Its called visual vertigo.
Im sorry about the anxiety your experiencing, I find trying to focus on something specific helps a lot, Do you think your problem is sensory overload?
@@emmatheresa6948 I think it’s because sounds in one ear are muffled and in the other sounds are amplified. I’m told I need to see a specialist so hopefully they can find the problem. I also have ataxia which could be linked to the vestibular issues. Maybe if they can fix one problem the other can be resolved. Thanks for your reply.
I have this disorder from vancamyacyn(?)and gentamycin ototxicity. For 6 yrs. From MRSA Staph after a BRKA. Wearing me out. But everybody has to keep scrappin' and try to move forward!
Hi! I have the same problem from gentamicin ototoxicity 🙁how do you live with this disorder? I have it for 3 months now but its horrible! 🙁🙁🙁
I also have total bilateral vestibular loss from gentamicin ,and have now not able to work or drive for two years now. Was forced into early retirement and had to have my Daughter and family move in with us. I have had to go on depression and anxiety meds just to cope my whole life has turned upside down, and at least I’m not feeling alone like no one else understands. Most people don’t understand
@@debbies9424 hi! I absolutely feel your struggle! Even though in my case its unilateral i have loss in right ear 30 %... But it feels very bad i am dizzy all the time i have a bad vertigo☹️ gentamicin turned my life into hell...
has any one ever recovered from this after few years?
Thank you for this video....I have vistibular disorder after a car accident I have most of these symptoms will I ever cure from this as I feel otherwise cause it seems to be getting worst with time.
Do anyone experience fear and anxiety driving. Or have anyone had a weird sensation while driving that cause panics.
Per the poll: ALL THE ABOVE.
It's hard to imagine others did not say that, but mine started in 1982 and it is 2023 now... It's only gotten worse in some ways (and better in others - I feel less movement)
Is there a transcript of this webinar available? I would pay a few dollars for it, if possible.
What is the treatment
Try acceptance. It works. Feel the immediate relief.
I am 6 months in and am just now realizing I haven’t done this. Thank you ❤️
I couldn't do the poll
Please help my dr can't figure this out my 2nd ent again has no answers sending me to 3rd neurologist . Where can I get diagnosed and medications ti get better I've lost 4 years of my life
Does anyone suffer from extreme nausea with their vestibular disorder? I can’t even move around without feeling sick. Just awful.
I have the extreme nausea, for me is the worst part. I have to stay laying on my side for about 24 hours
Can I talk to someone about my experiences? I'm very depressed and need to talk about this. 😢
There is a support group on FB.. Really helped me :)
Any meds
@@marioavila9021 nope
@@timosness3667 how are u coping and you explain what do u feel
I developed this strange and horrific condition after going on a road trip. I haven’t been the same since and it was almost a year ago. It has been a journey I’ll say that much. My symptoms were absolutely debilitating. I understand how you feel. My worst symptom is the derealization but I have a long list. I started celery juicing last October and that helped me out of the darkest times of VM. I’m healing drug free/chemical free. No pharmaceuticals. A clean/low fat detox diet will help you tremendously. I recommend looking into Anthony William (medical medium) protocols and looking at the list of foods to avoid. What you fuel your body with means everything with a condition like this. If you have any questions feel free to ask
Wish i can talk to someone and tolld my experience and how it starr.
Hi Riana, You can contact us at info@vestibular.org and take a look at our support groups where you can share your story here: vestibular.org/article/coping-support/support-groups/
my main problem is unstable waking. I am unable to walk with out my cane and touching something else
How did it start
I have had scans on my brain ive been to ent my doctor said there all clear I have bad pains down one side of my head and out my ear specialist said probly nerve then I was dissmised I most of the symtoms you spoke of one ballence and memory loss scare me ive had many falls im at a loss wath to do my doctor have no interest
Conventional medicine labels these issues "functional" and because it can't help it loses interest quickly. Vestibular rehabilitation and neuro-rehabilitation are good areas to search.
Can I find this in text?
Hi, our Psychological Impacts of Vestibular Disorders video is not actually transcribed. In the past some of webinar videos have been transcribed by an auto service, we have found this service does not work as well. To broaden our inclusivity we are having live transcriptionist, starting with our Life Rebalanced Live - VeDA’s Annual Virtual Conference (vestibular.org/lrl/). I do welcome you to turn on the closed captioning.
@@VestibularVeDA What I would like is to offer my assistance by translating this seminar to Arabic. That is why I needed some form of transcript. If it's not possible, I'll just find some workaround. Many thanks.
You can also access articles about the psychological impacts of vestibular disorders on our website: vestibular.org/article/coping-support/psychology/.
@@BungeeRooster Thank you for your offer. Please contact us at info@vestibular.org.
severe anxiety
anyone got this stuff post concussion?
Hi Unknow N, It is common for individuals with concussions to have vestibular involvement. Please check out our website at vestibular.org for more information.
Im my own therspist
My daughter has this problem
Is there medicine for this
I would talk to your doctor about a referral to a psychiatrist to discuss medications. Counseling is important, and there are other coping strategies (see the last part of the presentation).
Taking meds
Antihistamines work and help with dizzy and off balances. Centrizine 10mg
Love the information and the knowledge the two individuals is offering to the vestibular community. But I have to say and sorry for being negative. But speaker who is use the word ( Hmmmm) after about every work she speak is making the information a little hard the follow.
Stay alive, everyone. We can figure this out.
All my joy is gone...
Anyone taking meds
I take Betahistine 16mg up to 3 times daily. It does help with the ‘dizzy’ sensation. But doesn’t completely get rid of the symptoms. I can feel it release pressure from the inner ear (I get popping noises) which helps ease the vertigo. Definitely would advice giving it a try but be consistent with it.
@@elliebabe155 what were you diagnosed with?
@@elliebabe155Is betahistine prescription or over the counter medication?
A-UM....A-UM.....A-um.....A_UM.....please stop..!!!!!
Lorriane, I'm sorry you're going through such a difficult time. Please feel free to contact our patient support coordinator at 800-837-8428 or info@vestibular.org if we can assist you.
I noticed the same thing. Very distracting when a speaker says um and uh so often.
Agree
I am suffering that kind of problem I feel fear of falling all the time while I am walking or sitting & when I try to drive I feel the whecle is tilting on left side in curves and inclined roads it become more worse.
As an acute vestibular disorder patient, I can personally relate to everything they’re describing but because these two speakers cannot do so without lip smacking & a TREMENDOUS usage of “uhms” between words, i find this impossible to get through. For someone with this disorder, listening to another speak this way makes it very confusing; it’s like I have to reconstruct each sentence, leaving out each “uhm” as a word within the sentence so I can understand what was just said. I just cannot do it.
Talks too fast dumping all kinds of info hard to follow.