TSW + Still Preventable Update (April 2024)
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- เผยแพร่เมื่อ 25 เม.ย. 2024
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Links as promised!
Jennifer Fugo: www.skinterrupt.com/listen/
ITSAN Advocacy: www.itsan.org/advocate/
My website: www.brianabanos.com
Petition 1: petition.parliament.uk/petiti...
Petition 2: petition.parliament.uk/petiti...
Thank you to my largest sponsors:
Jennifer Fugo
Dermeleve
Codex Labs
TSW content for those interested:
Brwren.com: www.brwren.com
My instagram: @preventable_doc
Tea with Bri: • Tea with Bri
Where are they Now?: • Where Are They Now
How Do We Function: • HOW DO WE FUNCTION
Dupixent: • March Dupixent Update
TSW Facts, Part 1: • TSW Frequently Asked Q...
TSW Facts, Part 2: • TSW Frequently Asked Q...
Long Haulers: • Long Haulers in Topica...
One Tip Tuesday: • One Tip Tuesday
Preventable Sneak Peeks: • PREVENTABLE SNEAK PEEKS
Preventable Snippets: • Preventable/Still Prev...
Uplifting TSW content:
Don't Be so Hard on Yourself: • Don't Be So Hard On Yo...
Can't Stop the Feeling: • Can't Stop the Feeling...
Thank you all so much. I have been a part of this community for over nine years. I hope I have served my fellow TSW warriors well, as well as the eczema community (who I truly wish never makes it into this camp).
Mineral cell salts esp silica. God bless you. 47 yrs fighting it and month 114 since debilitated, but I'm still here!
Dope content, as always, fam!! Sending you some California love! 💕🫶🏽✨
Thanks lovely!! Hope you are well!
Excited to hear from you.
and you :) Hope you are well.
oh wow, how good to see you here. I must confess that I stopped following a lot of tsw fighters and survivors after I got better, but every time this issue comes up in conversation, your name and documentary is the first thing I refer people too. in fact I just did, on a random video that popped up on my recommended page hahaaha («What happened to Joana Ceddia?», on Mina Speaks' channel). happy to see you are still fighting strong, and spreading the word on tsw!! wishing you all the best!!
Thank you for still sharing! Spreading awareness helps so much. Glad you are doing better!!
@@BrianaBanosPreventable much better. and I can't thank you and the rest of the community enough for all the support provided 5 or so years ago. 💖
Are you finding your skin is better or worse in Scotland? Im finding the environment plays a massive role in my flares
As I've never lived in a cold climate before, it totally plays a role x
totally. while I was going though my tsw, I had a week of total relieve when I went on a trip to the Azores
Welcome back Brie! Thought we lost you there for second 😋Just wanted to say that although you may not feel like it, you are amazing! If only your skin could be as positive as your personality. Would love to hear more about your uni life and any other film projects you're working on too if you can muster the energy. Quick q about your Dupixent journey if that's ok...how long were you on it before started suffering with the eye pain? I've just crossed the one year mark myself...and getting slightly worried the shit is going to hit the fan soon. All the best and like your Spiderman cuddly in the background - hang in there!
Hi! Such a sweet, and cherished, message. Am super overwhelmed with Uni and editing of the Still Preventable documentary (doing the work of a team as one solo person atm 😅), but will hopefully update soon. If you have insta, I do more smaller update stories there! As for Dupixent, it was exactly 11 months in I had issues start. It's so different for everyone though. I know people who have been on it for years and minimal (if any) issues. If it's working for you, fabbbb!
@@BrianaBanosPreventable Understood, sounds like you've got your hands full! I'm too much of an old man for insta 👴, but I wish you the very best. So sorry it didn't work out for you :( Even if things go down hill for me, i'll always be incredible thankful for the holiday from TSW I've had; Going swimming with my son, being able to have the lights on and look in a mirror, not thinking about what colours can I wear so flakes don't show up...such little things, but it makes a universe of difference to those of us who know. Thanks again for everything you do. You are a hero Briana Banos, never forget it!
@@bahbahbah605 it truly does make a WORLD of difference!
Love you and it was so fun spending time with your mama! I see where you get your beautiful heart 💜
I'm so glad she got to meet everyone. Slightly jealous!!
Sending a big hug!!!
CAP Therapy. Please, please, please look into and research that. Cold Atmospheric Plasma.
Very aware of CAP therapy xx it will be discussed in my next TSW documentary I am currently editing. I am a masters student atm and do not have the money or time tp dedicate to CAP unfortunately.
What is your documentary called? I would love to talk to your privately about your skin journey, I am on Cyclo at the moment and have wishes to travel etc... Would you love to hear from you.
Hi Brionny! My documentary is called Preventable. It's here on the TH-cam channel =) you'll be able to hear all about my skin journey there. I also have many videos on here and highlight reels on my Instagram speaking about my journey xx I do hope you get to travel!!!