Im on it permanently 😢 its a horrible life! Been on it since 2002 and im only 43.. its caused a nightmare circle of medical problems and finally put me on disability in 2018.
I’m sorry but I’m glad I found someone who can relate to my story with Prednisone bc I started taking it in 2001 for Lupus Nephritis and in 2011 developed AVN in my left hip. It’s absolutely one hell of a ride and no one understands.
This sounds like a very interesting topic.. love your channel. I’ve been on prednisolone for just over three years. Long story short I’m at the stage whereby I feel this drug is damaging my eyes. Just recently I’ve had a large onset of eye floaters, as well as blurred vision (optician says eye are ok).. I realise the drug is doing good by reducing inflammation in my spinal cord, but no longer can I cope with the visual side effects which, I know it’s renowned for. Slowly, and against my consultants advice, I’m weening myself off the drug. Unfortunately, my mobility and pain are worsening as a result .. but I feel I have to choose, mobility/pain or eye sight. I’m looking forward to watching your video. Always a 👍from me to help your channel. All the best - Neil (uk).
@@PrednisonePharmacist ….. 6 months -- Try almost 30 years ! They (doctors) buggered my health and made out as though there was nothing wrong. It’s not possible to fix the damage they cause with STEROIDS . IT’S AN ENDLESS NIGHTMARE.
Male who was at 61 diagnosed with RA. For last 3 years. daily doses of 5 to 7.5mg, with as much as 20 mg on flare ups, no side effects I'm aware of. So, Pred allows me to live an almost normal athletic active life. Haven't found anything else that works. Though I'm sure I have an elevated risk for the listed long term side effects related to heart, bone, and eyes.
So my journey started 17 yrs ago with a foot surgery that resulted in needing a shot in my foot and a week of steroids. Later that year I ended up needing neck surgery and fusion. 2 yrs later after getting so fatigued I couldn't function I was DXd w adrenal fatigue and put on hydrocortisone...I've been on it for all these years and have tried several times to wean off. I have not been successful. I also cannot regulate my electrolytes and fear I have full blown Addison's now. Has anyone ever gotten off steroids after being on them this long? I wish I could go off just don't know if it's wise. I have a had several crisis. Terrifying.
And yet many doctors seem to prescribe steroids without any understanding of, or regard for, the risks to the patient for developing adrenal insufficiency - and not everybody can recover to a state of normal functioning of their HPA axis and adrenal gland once they stop taking steroids, a significant number of people end up needing to take steroids every day for the rest of their lives - and believe me, adrenal insufficiency is an absolutely horrible medical condition to have to live with and most people find it has a significant negative impact on their quality of life, and it is very challenging to manage on a day to day basis or to find doctors who understand it and how to treat it.
Rare video.. Good job. What about serum cortisol test to check your cortisol levels though? Noticed you telling theres no way to measure the cortisol status.
I am guessing you do NOT have the same “Addison’s disease” I have. The 1 in 100,000, the rare disease we remain undiagnosed with for over ten years normally.
I am guessing you do NOT have the same “Addison’s disease” I have. The 1 in 100,000, the rare disease we remain undiagnosed with for over ten years normally.
Thoughts on oral Budesonide? I was told by an Endocrinologist that I couldn’t have AI because Budesonide is not absorbed systematically. I had inadvertently stopped Budesonide during a severe illness and then developed all the symptoms of AI after I recovered from strep throat. Months later, after feeling better, my ACTH stim test showed a result of 18.8 at 60 minutes. Any thoughts?
Hey Doc - I’ve been on it for a little over 3 years. I recently tapered too fast, from 10mg to 5mg, and after about 2 weeks I have had a low-grade fever for 3 days straight with swollen lymph nodes on day 3. Are these symptoms normal with prednisone withdrawal? I’m going to hop back on to 10mg and work with my doctor to help me taper off properly. This shit is no fun
I am going through the high fever right now. I was wondering if it was due to Prednisone withdrawal? I never had that symptom before. Of course when I go to the hospital today. They will say it has nothing to do with Prednisone. Maybe doctors should start listening to their patients? 😢
I found your channel recently, Dr. Megan. Brilliant videos, congrats. I don't know if I can post my questions here (if there's another channel for questions, please lmk). I experience a lot of daytime sleepiness and my morning cortisol ranges from 8 ug/dl to 12 ug/dl, which are values that are still considered normal, although they are close to the lower limit. I wonder if there is any level of morning cortisol that is considered ideal.
I have taken prednisone 20mg for 5 days, and stopped abruptly, it s been 3 months and I m still struggling with sleep ... Went from 9-10 hrs to 6 if I m lucky enough! Wthell ...
The sheer number of milligrams you are exposed to does make a difference in recovery, but it’s not an exact link. Several side effects are lessened based on the dose you take, like heart disease. So that’s in your favor.
@@PrednisonePharmacist thank you so much for responding. I'm finally tapering off and going half mg every few weeks. My concern is adrenal issues. I'm hoping since it's a low dose, I won't have to worry about that but just in case, I'm taking it very slow. I know I will have to take it again but I want to be a quick taper than a lifelong servant to it.
@@Brooklynlife1000 5mg a day, for 8 years, 3.5 years was the longest time someone has been on then tempered off prednisone. I had a real asshole for a doctor that prevented me from gettign offf prednisone before this period expired. A lot of doctors realy havne't a clue what they are talking about.
@@richardsackler7627 very true in that one. My drs in the past twenty years have been toxic precribers and didn't care about the long term possible issues. Though we are responsible to learn ourselves but it's overwhelming to read it all and when desperate, we just fall into the medicine regimen. It's great for a short term taper but ongoing is often dangerous. I hope you are doing well and was able to avoid the horrid things this medical can do to us.
A cortisol test should tell you if you are on the path to recovery. Do a blood/urine test and check if your cortisol levels are good. Visit an endocrinologist if needed.
Hi! You can check out this article about "Recovering from Prednisone: When Will Your Adrenal System Return?" View the full article here: prednisonepharmacist.com/education/recovering-from-prednisone-adrenal-system/ For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.
Im on it permanently 😢 its a horrible life!
Been on it since 2002 and im only 43.. its caused a nightmare circle of medical problems and finally put me on disability in 2018.
I’m sorry but I’m glad I found someone who can relate to my story with Prednisone bc I started taking it in 2001 for Lupus Nephritis and in 2011 developed AVN in my left hip. It’s absolutely one hell of a ride and no one understands.
@MLife1000 no they sure dont. And the med causes such complex problems and trying to explain to people is a challenge.
Doctors don’t know or care.
❤😢
This sounds like a very interesting topic.. love your channel. I’ve been on prednisolone for just over three years. Long story short I’m at the stage whereby I feel this drug is damaging my eyes. Just recently I’ve had a large onset of eye floaters, as well as blurred vision (optician says eye are ok).. I realise the drug is doing good by reducing inflammation in my spinal cord, but no longer can I cope with the visual side effects which, I know it’s renowned for. Slowly, and against my consultants advice, I’m weening myself off the drug. Unfortunately, my mobility and pain are worsening as a result .. but I feel I have to choose, mobility/pain or eye sight.
I’m looking forward to watching your video.
Always a 👍from me to help your channel.
All the best - Neil (uk).
Aw, thanks, Neil!
It’s sure tricky deciding which is more important, side effects or good effects, isn’t it?
@@PrednisonePharmacist ….. 6 months -- Try almost 30 years ! They (doctors) buggered my health and made out as though there was nothing wrong. It’s not possible to fix the damage they cause with STEROIDS . IT’S AN ENDLESS NIGHTMARE.
After taking nsaids, I experienced eye pain. But i think it's getting better now after 2 months off from the pill. But i still feel mild eye fatigue.
If we don't learn to advocate for ourselves then we are doomed
Male who was at 61 diagnosed with RA. For last 3 years. daily doses of 5 to 7.5mg, with as much as 20 mg on flare ups, no side effects I'm aware of. So, Pred allows me to live an almost normal athletic active life. Haven't found anything else that works. Though I'm sure I have an elevated risk for the listed long term side effects related to heart, bone, and eyes.
So my journey started 17 yrs ago with a foot surgery that resulted in needing a shot in my foot and a week of steroids. Later that year I ended up needing neck surgery and fusion. 2 yrs later after getting so fatigued I couldn't function I was DXd w adrenal fatigue and put on hydrocortisone...I've been on it for all these years and have tried several times to wean off. I have not been successful. I also cannot regulate my electrolytes and fear I have full blown Addison's now. Has anyone ever gotten off steroids after being on them this long? I wish I could go off just don't know if it's wise. I have a had several crisis. Terrifying.
It will take atleast 3-4 months to recover fully. If people are heavily treated with steroids then it will take 6-7 months or even years.
Yes, it can take a very long time.
@@PrednisonePharmacist do muscle relaxant work for reducing steroid induced myopathy like muscle tightness.??
And yet many doctors seem to prescribe steroids without any understanding of, or regard for, the risks to the patient for developing adrenal insufficiency - and not everybody can recover to a state of normal functioning of their HPA axis and adrenal gland once they stop taking steroids, a significant number of people end up needing to take steroids every day for the rest of their lives - and believe me, adrenal insufficiency is an absolutely horrible medical condition to have to live with and most people find it has a significant negative impact on their quality of life, and it is very challenging to manage on a day to day basis or to find doctors who understand it and how to treat it.
Can you elaborate more? I need to hear more about this!
Rare video.. Good job. What about serum cortisol test to check your cortisol levels though? Noticed you telling theres no way to measure the cortisol status.
I believe there’s a rare blood test of the hpa axis but they test your blood then again 30min later
does anyone know if theirs an australian version of Nutronize? or similar medicines
We do ship to Australia. You can place an order with this link: nutranize.com/sp/stripe/
Do a cortisol test, people. Don't keep guessing. Get your blood test done for cortisol levels. Visit an endocrinologist if needed.
If only it was that simple!
I am guessing you do NOT have the same “Addison’s disease” I have.
The 1 in 100,000, the rare disease we remain undiagnosed with for over ten years normally.
I am guessing you do NOT have the same “Addison’s disease” I have.
The 1 in 100,000, the rare disease we remain undiagnosed with for over ten years normally.
Thank you for this video, very informative. 👍
So how does adrenal insufficiency occur? Is it just from medication? Or are there other factors that effect people’s response?
The steroid hijacks the adrenal gland.
Thoughts on oral Budesonide? I was told by an Endocrinologist that I couldn’t have AI because Budesonide is not absorbed systematically. I had inadvertently stopped Budesonide during a severe illness and then developed all the symptoms of AI after I recovered from strep throat. Months later, after feeling better, my ACTH stim test showed a result of 18.8 at 60 minutes. Any thoughts?
Hey Doc - I’ve been on it for a little over 3 years. I recently tapered too fast, from 10mg to 5mg, and after about 2 weeks I have had a low-grade fever for 3 days straight with swollen lymph nodes on day 3. Are these symptoms normal with prednisone withdrawal? I’m going to hop back on to 10mg and work with my doctor to help me taper off properly. This shit is no fun
I'm not a doctor but it seems reasonable you could just try tapering slower
I am going through the high fever right now. I was wondering if it was due to Prednisone withdrawal? I never had that symptom before.
Of course when I go to the hospital today. They will say it has nothing to do with Prednisone. Maybe doctors should start listening to their patients? 😢
@@karrievanengen3019hello. How are you now?..
What if you were diagnosed with Addison’s disease and you’re not on any medication? Will this help this prednisone?
I found your channel recently, Dr. Megan. Brilliant videos, congrats.
I don't know if I can post my questions here (if there's another channel for questions, please lmk). I experience a lot of daytime sleepiness and my morning cortisol ranges from 8 ug/dl to 12 ug/dl, which are values that are still considered normal, although they are close to the lower limit. I wonder if there is any level of morning cortisol that is considered ideal.
I forgot to mention. The reason for this question is because I read that Prednisone is used to treat Chronic Fatigue Syndrome.
Good question. I'm not an endocrinologist and that's outside of my expertise.
I have taken prednisone 20mg for 5 days, and stopped abruptly, it s been 3 months and I m still struggling with sleep ... Went from 9-10 hrs to 6 if I m lucky enough! Wthell ...
hey, did it improve? I'm going through the same
@@ajajpk This lack of sleep got me into burnout depression, which I am treating right now. I suggest you see a doctor, without self-diagnose
Can you still feel out of balance after stopping Pred and your cortisol blood test was in range?
Madam i have used betamethasone for just 3 days, and I feel adrenal gland problem. What should I do?
Talk to your doctor and slowly taper off.
Is the danger less if I was in only 5 mg for many years?
The sheer number of milligrams you are exposed to does make a difference in recovery, but it’s not an exact link. Several side effects are lessened based on the dose you take, like heart disease. So that’s in your favor.
@@PrednisonePharmacist thank you so much for responding. I'm finally tapering off and going half mg every few weeks. My concern is adrenal issues. I'm hoping since it's a low dose, I won't have to worry about that but just in case, I'm taking it very slow. I know I will have to take it again but I want to be a quick taper than a lifelong servant to it.
@@Brooklynlife1000 5mg a day, for 8 years, 3.5 years was the longest time someone has been on then tempered off prednisone. I had a real asshole for a doctor that prevented me from gettign offf prednisone before this period expired. A lot of doctors realy havne't a clue what they are talking about.
@@richardsackler7627 very true in that one. My drs in the past twenty years have been toxic precribers and didn't care about the long term possible issues. Though we are responsible to learn ourselves but it's overwhelming to read it all and when desperate, we just fall into the medicine regimen. It's great for a short term taper but ongoing is often dangerous. I hope you are doing well and was able to avoid the horrid things this medical can do to us.
Upon tapering off, I became sick with the RSV and muscle weakness. Im 3 months from taking prednisone. Is this a withdrawal side effect?
A cortisol test should tell you if you are on the path to recovery. Do a blood/urine test and check if your cortisol levels are good. Visit an endocrinologist if needed.
@@YtubeUserr yes my endo have me doing a blood test, I'll ask her for the urine test as well. Thank you for replying to me.
thank. you for this video. this is where I am.
VERY HELPFUL
Never??
Hi! You can check out this article about "Recovering from Prednisone: When Will Your Adrenal System Return?"
View the full article here:
prednisonepharmacist.com/education/recovering-from-prednisone-adrenal-system/
For more information about prednisone, we have a bunch of content and articles that might be of help in your condition. You can browse our website at Prednisonepharmacist.com and discover ways to manage and counteract the side effects of prednisone.