4 things every person with MS should be doing: Are you "4 for 4"?

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  • เผยแพร่เมื่อ 31 มี.ค. 2018
  • 4 things every person with MS should be doing
    Are you "4 for 4" in your fight against Multiple Sclerosis?
    Living your most awesome version of you, despite having MS, requires a team effort. There are things the MS provider must bring to the table. There are also things the person with MS must bring to the table. 4 of them, to be exact.
    In this video I discuss the four things we want all people with MS to strive to achieve, being "4 for 4" in their fight against it! Are you 4 for 4 in your fight?
    Please share your comments and questions below? Are you 4 for 4? What's working for you? Which of these 4 are the hardest to achieve? What tips have you found that help?
    ***********************************************************************
    Learn about MS with me, Aaron Boster MD! I started this channel to help my own MS patients learn between clinic visits. I use easy-to-understand language to provide accurate and approachable Multiple Sclerosis education. So, if you’re impacted by MS and want to up your game, make sure to subscribe to my channel right now!
    ***********************************************************************
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    SHARE this video: • 4 things every person ...
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    These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos.

ความคิดเห็น • 183

  • @ccollins2890
    @ccollins2890 5 ปีที่แล้ว +29

    I'm your patient, so I had no choice. . :P Wait till ya see me. 4 for 4 is the way to go! Thanks for the push, even though I fought ya on following through for PT. Best choice I finally made was to actually follow your advice. P.S. You should all be totally jealous of my luck for getting to be Dr. Boster's patient. ;)

    • @jessrodriguez4245
      @jessrodriguez4245 4 ปีที่แล้ว

      CCollins how can I see him?? Been diagnosed twice, now I’m SPMS ..waiting on Barrows

    • @giftboutiq
      @giftboutiq 3 ปีที่แล้ว

      CCollins you are so Blessed to have him as your doctor. I’m from Jersey so that would be a long ride to get to Ohio 🤣🤣. I’m happy with my neurologist...great bed side manner, talks to me for hours either in person or lately thru virtual appointments he calls me from his personal phone to see how I’m doing. He’s about 72 but you’d swear he was 50. I told him he cannot retire! He said not to worry, he’s gonna work till he’s 90. Mind you, he surfs!!

    • @scottyrosencrance8309
      @scottyrosencrance8309 2 ปีที่แล้ว

      Jess Rodriguez did anyone get you how to get in with The Boster Center for MS?

  • @SayMagnaFeek
    @SayMagnaFeek 4 ปีที่แล้ว +3

    I am the devastated mother of a recently diagnosed MS patient. Thank you, Dr Boster for these educational, enlightening, and very reassuring videos.

  • @elaine45674
    @elaine45674 6 ปีที่แล้ว +11

    MS 30 + years, never given any meds, never met the criteria at the time, infrequent relapses, no residual disability
    Now SPMS, mobility is getting to be a problem, still no meds available for me.
    3 for 4 is the best I can do...

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      We can only do our best, and 3 for 4 is wonderful Elaine. Thank you for watching and thank you for sharing.

    • @severnsaint
      @severnsaint 5 ปีที่แล้ว +2

      Cannabis!

  • @janewatts135
    @janewatts135 5 ปีที่แล้ว +2

    Hello Dr. Boster, only now catching up on your marvelous videos & have forwarded on to another friend both of us suffering MS. I love your positive attitude, & you say it as it is. Thank you so much, I've subscribed so can't miss you. Again heartfelt sincere thank you.
    All the way in Ireland. ☘️

  • @2listening1
    @2listening1 5 ปีที่แล้ว +11

    Thank you for this. Best wishes in all your work.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      YW and thank you for the well wishes 2listening1!

  • @soulvigilante
    @soulvigilante 2 ปีที่แล้ว +1

    Cool! I'm 3 for 4 now and exercise is the simplest to address. This was encouraging for me. Thank you!

  • @pameladubin1138
    @pameladubin1138 3 ปีที่แล้ว +2

    Hello Dr Boster! I been diagnosed since 2000 and have always been on DMTs I have recently seen so many my MS stories and I would like to do my MS story mostly because it’s twenty years into this disease and I like to think I’m an example of what being on medicine truly does for the fight against MS!!!!

  • @alexandriaballerinawarrior
    @alexandriaballerinawarrior 3 ปีที่แล้ว +2

    I’m 4 out of 4! I’m a disabled ballerina 🩰. Ballet is the best thing I could of ever done for my body... especially now living with rrms 🧡🩰🧠

  • @kimn6320
    @kimn6320 6 ปีที่แล้ว +2

    Yes. All of these is so important! I can see it in just the short three years of my MS activity. This is not a sprint it is a marathon so you need to be proactive. Thank you for posting!

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      You're welcome Kim! You're right, it's a marathon, NOT a sprint! #WeHaveMS

  • @kristinlee6599
    @kristinlee6599 4 ปีที่แล้ว +1

    Hi Dr. Boster! Thank you for making these videos. I have MS and live in Pittsburgh, not too far from where your clinic is. I have been on Tysabri for just over 10 years and I am always on lookout for new information. Keep
    Up the great work! I never miss an episode!

  • @iornmassey7810
    @iornmassey7810 6 ปีที่แล้ว +3

    Thank you so much for all your information!! I'm newly diagnosed and your channel is a God send.

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      Iorn,
      Thank you or watching my videos and thank you for the comment! I make these videos for people impacted by MS, especially people living with the disease, particularly newly diagnosed folks. Your comment makes my day and spurs me on to continue to make educational videos!

  • @michelefilip296
    @michelefilip296 5 ปีที่แล้ว +6

    This might be silly, and I know you’re busy enough, but I think you should create a 4For4 app where people can track their vitamin D and bloodwork, meds and side effects/symptoms/mood, exercise days/type/intensity, and smoking cessation if needed. I’d use it. Just a thought.

  • @sosram
    @sosram 4 ปีที่แล้ว +2

    Howdy Aaron thank you for your post 4/4 a must for all with MS keep posting and thanks again for your support till next time from Derby England take care.

  • @amym.5960
    @amym.5960 2 ปีที่แล้ว +2

    Yay, I'm 4 for 4! New to your videos and glad to have found them. I have an eerie resemblance to the "healthy version" in your exercise section. Unfortunately I'm not recovering quickly from the attack of left leg weakness 7 months ago but I've had some other setbacks and complications in the mix. (I do have a range; I've been able to walk up to a mile at a time but also have days/times and settings where I need a wheelchair.) I'm still in PT and OT and even though progress has been tough, I do think it helped that I was a regular exerciser and at a healthy body weight before all this started.

    • @amym.5960
      @amym.5960 2 ปีที่แล้ว

      First MS attack was 20 years ago (I was 24) and 8 years ago I started running. I was a runner and hiker (with a little body weight strength training in the mix) up until the attack. I also managed to reverse my prediabetes about 9 years ago.

  • @doctorken2k
    @doctorken2k 4 ปีที่แล้ว

    You are the man Aaron!

  • @DavisonVideo
    @DavisonVideo 3 ปีที่แล้ว

    I just wanted to tell you that I think you are awesome, Dr. B. I have FND following a viral brain infection and CSF leak, but I still find your material super entertaining and relevant.

  • @misshannah-mai4318
    @misshannah-mai4318 5 ปีที่แล้ว

    Very happy I stumbled on your channel. I'm 4/4 and doing my best. Thanks for sharing

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      Howdy Miss Hannah-Mai! I appreciate your watching and I'm delighted that you are "4 for 4" in your fight against MS! #WeHaveMS

  • @ragub6
    @ragub6 5 ปีที่แล้ว +4

    Thanks Dr, 3/4, Doing exercise seems to be popular problem for many MSers
    My case - Was Obese, after Steroids, became morbidly obese and Insulin dependent, Dr used to write special instructions, "avoid weight gain", do exercise, even gave tablets for losing weight, then in 2016, he prescribed Gastric Bypass Surgery and gave a long recommendation as a medical requirement for Insurance (Normally, Insurer consider the surgery as 'Cosmetic' and do not cover)
    I dropped 63Kgs in 16 months, Discontinued Insulin (Just pills), was able to do exercise, Get up from floor, Nice supplement (Mix of Protein, Biotin etc)
    FWIW

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      That sounds like a gastric bypass was catalyst of sorts! Congrats on a LOT of hard work Raguraman

  • @normabates9044
    @normabates9044 ปีที่แล้ว

    Thank you for this positive video... It gives me something to focus on in this new year 2023... MS is very depressing to have, and rakes the nervous system over the coals...

  • @bevonciu9881
    @bevonciu9881 6 ปีที่แล้ว

    THANKS FOR THE FOUR FOR FOUR..I HAVE BEEN DOING ALL ...AND VERY GRATEFUL ON ALL THE UP-DATES REGARDING MS.:)

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      It's my pleasure Bev! Congrats on being 4 for 4 and keep up the awesome work!

  • @melissaadams3559
    @melissaadams3559 5 ปีที่แล้ว +1

    new subscriber here! I'm trying to figure why the muscles on the right side of my face are contracting and twitching. It's one of the things that happened when I was first diagnosed.

  • @bevonciu9881
    @bevonciu9881 6 ปีที่แล้ว

    LOVE YOUR PROGRAM..THANKS SO MUCH FOR EVERYTHING:)

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      My pleasure! Thank you for watching!

  • @henp99
    @henp99 ปีที่แล้ว

    Love some of your older videos Dr boster

  • @Enkiaswad
    @Enkiaswad 5 ปีที่แล้ว +2

    4/4!
    I love the pre-habilitation concept! :D
    I work for a neurorehab company as an engineer, I even develop gamified activities for rehabilitation after a stroke or ms relapse. I am on all fronts to fight and all for prevention!
    Fingers crossed for now neurologists give me an EDSS 0 or 1 (some say 1 because the only thing they may notice are brisk reflexes, but they say it can also be because I am always super nervous and shaky when I go for my check ups... They do scare me but for now I am fine)

  • @fayeaustin3623
    @fayeaustin3623 3 ปีที่แล้ว

    Lovin these little snippets of very useful information. I also am only 3/4 , I live in England but I don’t see a doctor regularly so no one has offered the medication. I was diagnosed with rrms about 10yrs ago. Luckily I don’t seem to have many symptoms but I do worry that it’ll change and I wasn’t given the chance to take anything to help prevent / slow it down

    • @amybaker5890
      @amybaker5890 2 ปีที่แล้ว

      I’ve had MS since 2003 but wasn’t diagnosed till 2014. I never felt like I needed meds bc I was very healthy and doing well. That dramatically changed in 2021 and now I wish I had started a DMT sooner.

  • @mikedeegan9342
    @mikedeegan9342 2 ปีที่แล้ว

    Dr. B thanks for your info. I watch you daily. I'm 3 for 4. I haven't made the decision to take DMT's yet. I am not sold on the risk / benefit and the side affects look disturbing.

  • @suecooper2975
    @suecooper2975 5 ปีที่แล้ว +1

    Whoa, only 3 for 4. Gotta get into exercise more. Thanks for explaining the reasons why it is so important. Also, I love the chooks in your posts, they look like very healthy, happy girls. Cheers from Aus.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Howdy Sue! You're 3 for 4 and you got this last one- YOU CAN DO IT!

  • @al73r
    @al73r 2 ปีที่แล้ว +1

    1. walking and weights 2. vitamin d supplement every morning 3. Only smoke meats! 4. Orchevus every 6 months! - Still feeling small after effects since my diagnosis / flare but things are improving even with only my first infusion of orchevus. I'm hoping we caught it early enough and things continue to get a bit more predictable. Still working on getting my diet to a more healthy choice with more fiber so i don't have to take psyllium fiber every day.

  • @smymtb
    @smymtb 5 ปีที่แล้ว +2

    Would you recommend taking DMDs if there are lesions that were found in a brain scan and spinal fluid didn't come back clear but there are no symptoms of MS? My wife tried Plegridy and Copaxone and had bad side effects. We don't know if it's worth even taking DMDs since there are and never have been any symptoms of MS. Dr diagnosed her with radiologically isolated syndrome and gave us the option if we wanted to start with DMDs

  • @ANIYAHBOO1
    @ANIYAHBOO1 6 ปีที่แล้ว

    Thanks I was nervous to watch thought I wasn’t doing any of the four but waow to my surprise I faithfully do my 4for4 everyday 😉

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +1

      woohoo! 🙌 "4 for 4" Good job Aniyahboo1

  • @arr2820
    @arr2820 2 ปีที่แล้ว

    Hello, doctor. What do you think about Coimbra Protocol?

  • @rlrbates
    @rlrbates 3 ปีที่แล้ว

    Thank you! Could you recommend a type and brand of vitamin D?

  • @simonthe.dealer7877
    @simonthe.dealer7877 3 ปีที่แล้ว +1

    Thanks

  • @j.svensson7652
    @j.svensson7652 4 ปีที่แล้ว

    3 for 4. No DMT (yet) BUT I'm getting set up with a neurologist to try once again for diagnosis. Keep your fingers crossed Dr B. Maybe I can be 4 for 4.

  • @veroblabla
    @veroblabla 5 ปีที่แล้ว +1

    Thank You very much for your very interesting video. Véronique from France

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      You are very welcome Klementia! I was an exchange student in Nantes years ago. I loved my time there. If I may ask, from which part of France do you hail?

    • @veroblabla
      @veroblabla 5 ปีที่แล้ว

      Aaron Boster MD My name is Véronique and not Klementia( which was my grandma's name. 😀)
      I live in Cherbourg.

  • @Etiahealth
    @Etiahealth 6 ปีที่แล้ว

    Hello Dr. Boster, thanks so much for all your amazing videos! They are really helping me coping with this illness, I just got diagnosed in January with rrms. Because my doctor suspects some other auto immune problem in my muscles I'm not able to exercise at the moment, they recently took a muscle biopsy and I have to let it heal for a while, I hope to exercising again soon. I'm already supplementing vitamin D, following the overcoming MS diet and I just got started on Ocrevus. I want to do whatever it takes to slow down disease progression, I've had 4 attacks in 3 months time so far, effecting my vision, balance and sensation in the left side of my body.
    Do you have any suggestion for specific kinds of exercise? My doctor suggested swimming for example. Thank you so much! Greetings from Belgium!

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +3

      Hello Cara! I LOVE Belgium and spent two weeks in Leuven and a week in Brussels many many years ago. What amazingly kind people, what amazing delicious beer!
      Water is a great place to work out in. If you're overheated, the water pulls heat off your body by convection. If you're off balance and fall to the right, the water pushes back to the left. If you have a weak leg that can't hold your weight on land, well you weight less in the water and can walk with that leg! So...I recommend swimming, water aerobics, water Zumba, water-whatever you enjoy! You might also love yoga or pilates.
      That said, I think the MOST important type of exercise is the kind you don't hate. If you can't stand to swim...then don't. If you love cycling then do that. The goal is that exercise becomes part of your lifestyle, not a punishment ;)

  • @janetmcdaniel1112
    @janetmcdaniel1112 5 ปีที่แล้ว

    I'm new to ur channel and I'm learning about MS bcuz my brother has the disease. I'm his sister and his caretaker and trying to learn as much as I can about the illness. Thanks for the knowledge and the information. Looking forward to watching more videos and sharing ur videos with my brother.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      That's fantastic Janet! You're bro is lucky to have such an invested "village member!" #WeHaveMS

    • @janetmcdaniel1112
      @janetmcdaniel1112 5 ปีที่แล้ว

      @@AaronBosterMD thanks

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      YW! #WeHaveMS

  • @bigabiga4107
    @bigabiga4107 5 ปีที่แล้ว +3

    Have you ever had the case where someone’s been diagnosed with MS, and then doctors take the diagnosis back after a while due to a mistake? Please reply

  • @fayeracine4712
    @fayeracine4712 4 ปีที่แล้ว +1

    Is there anyone with ms that shouldn’t take dmt? I am very curious to know as my ms was diagnosed about 13 yrs ago I’ve had the same neurologist and gp also.I’ve never taken dmt

  • @katiedofredo508
    @katiedofredo508 5 ปีที่แล้ว +1

    Hi Dr. Boster! Well I came up as being 2 out of 4, something I'm definitely going to we're gone. I was always very physically active and very healthy until I started helping these horrific Falls I couldn't understand starting five years ago and literally breaking bones, shattering my kneecap, turn my ligament, truly damaging me in ways that I'll never fully recover and that's when my activity became lessened greatly. I can see now how it has made my MS symptoms that much worse. I was thinking about doing some yoga for people with physical limitations which in the class offered find my local library of all things. :-). Not sure we thought of that. As far as the vitamin D, I constantly take my vitamin D and very high doses in fact. For some reason every blood test I take it shows I'm low. I'm not sure why other than ever since I've moved to Washington State 16 years ago from California, I've been sick and lacking vitamin D constantly and often that dangerous levels. My naturopath is wonderful and great and monitoring these things and we can't figure out what the deal is I've heard that Washington state has the highest number people with Ms in the country? I'm not sure if that's exactly true or not but I can't help but wonder if lack of vitamin D could be a huge factor in why certain people MS? Wondering if you had any thoughts on that theory?

  • @Sara-oy5cs
    @Sara-oy5cs 3 ปีที่แล้ว +2

    Are there any symptom trackers you recommend?

  • @slonchka
    @slonchka 5 ปีที่แล้ว +3

    Im working on 4 for 4 with including exercise. Its hard for me to live the gray area. Whats a good start with exercise without over doing or feeling like im not doing enough? So far i have been trying to do at least 20 to 30 min of walking 3 to 4 days a week. Doesn't seem like enough to me. Thank you so much for making these videos Dr. B.!

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +4

      I think that is superb! If you can consistently walk 30 minutes 4 days a week that is really impressive. I would use how you feel the NEXT DAY after working out as your measure for if you can do even more next time.

  • @sissiepickett5315
    @sissiepickett5315 5 ปีที่แล้ว

    Dr Aaron Bostor, is tobacco that is in form of chews and dips adviced in place of smoking tobacco?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Howdy Sissie! The data about smoking and MS is almost entirely smoking tobacco cigarettes. It might be "better" in some ways "not breathing in smoke" but this may or may not change it's impact on MS- it might still drive the disease faster, the way smoking cigs do. As such, we don't recommend any form of tobacco for folks with MS.

  • @kennyphilbeck9114
    @kennyphilbeck9114 3 ปีที่แล้ว +1

    Hey Dr what do you do if your poor and have ms and no normal dr to talk to

  • @claredix7597
    @claredix7597 5 ปีที่แล้ว +1

    RRMS diagnosis 10 months ago I'm 3 for 4 must up my exercise I work full time and find I'm to tired after work but I'm going to join a yoga class after work and go swimming on my day off xx

  • @kaylahall1219
    @kaylahall1219 2 ปีที่แล้ว

    2/4- Dx September 2020

  • @gurleenthiara8892
    @gurleenthiara8892 3 ปีที่แล้ว

    I am 24, suffering from MS since 2013. Now doctors want me to choose between MITOXANTRONE and TYSABRI. Which one will be better option for me? Considering the side effects.

  • @serenechen1371
    @serenechen1371 2 ปีที่แล้ว

    How many IU do you suggest for D3 ?

  • @hlm1972
    @hlm1972 6 ปีที่แล้ว

    4 for 4. Weekly meetups with my therapist really helps!

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      That is fantastic Heather! NICE WORK!

  • @patriciarivas5369
    @patriciarivas5369 5 ปีที่แล้ว +2

    I am 4 for 4. I have a job that keeps me running around and I was shocked at the mileage!

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      NICE WORK Patricia!! #WeHaveMS

  • @Synthetic-cs9ez
    @Synthetic-cs9ez 4 ปีที่แล้ว +1

    Hey doc, what about vaping?

  • @robertalenski8689
    @robertalenski8689 2 ปีที่แล้ว

    What does MS disease modifying therapy encompass?

  • @alexperaltabermudez2866
    @alexperaltabermudez2866 5 ปีที่แล้ว

    Also, I did the paleo diet for a year before 2015. I lost a lot of fat with that diet. I read that the myelin sheath is like 70% fat. But the downside was that my skin was losing color. It was looking pale. My left eye was losing vision. It was like looking thougj black smoke. I was short-tempered. I would get mad easily. I could barely run. My heart hurt all the time. It still hurts. A diabetic told me to eat normally again. I had some hot links with pita bread, Pepsi cola, and rainbow sherbet ice cream. I'm still recovering from that diet I think. I'm eating food frm the bottom portion of the food pyramid.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Sounds like paleo didn't agree with you Alex ;( Here is a video I did on diet in MS. Please let me know what you think: th-cam.com/video/3M5pSb9SRJU/w-d-xo.html

  • @michaelbrown586
    @michaelbrown586 6 ปีที่แล้ว

    Are researchers working on identifying the specific B cells that attack myelin? Mass blocking seems dangerously broad. Thanks

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +3

      adult B cells (not stem cells that will grow up to replace them, and not plasma B cells that make antibodies) are selectively marked for death. They grow back in 6 months, hence the every 6 month dosing schedule. The theory is not mass blocking. Killing B cells doesn't allow them to co-stimulate naught autoreactive T cells. The result is the T cells can't get "fired up" to attack myelin. It's a fascinating mechanism of action. Thanks for asking the question Michael!

  • @kristinahuffman4724
    @kristinahuffman4724 4 ปีที่แล้ว +1

    I am so happy that I found you. I call you Dr B

  • @nadiamajed4004
    @nadiamajed4004 3 ปีที่แล้ว +1

    What about second hand smoke ?

  • @MissAmarintia
    @MissAmarintia 2 ปีที่แล้ว

    Exercise. What does it mean really? I tend to imagine going to the gym or playing a sport. But does just being active count as much? I like to go on long walks and on trips that involve long walks. Going to the park, going to the beach… for me this is being active but I wonder if this is what drs mean or I should be doing more.

  • @finnajane
    @finnajane ปีที่แล้ว

    I'm 5 for 4 🌞- I totally agree with all 4 but for me, there is one more that is imperative - good nutrition. NO fad diets, or extreme eating styles...but common sense all-around healthy food. I go with the 90% rule. 90% healthy food make sure to include fruits and vegetables. And to top it off with a probiotic supplement or fat-free greek yogurt.... keeping your gut flora healthy!!!! Of course, there are some slip-ups... gotta have an oreo or some chips once in a while but I keep that to a minimum.

  • @serenechen1371
    @serenechen1371 2 ปีที่แล้ว

    D3 intake suggestion?

  • @gaggle57
    @gaggle57 5 ปีที่แล้ว +1

    After 17 years with supposedly progressive MS I think I've finally figured out my own solution - because I played guitar for many years prior to diagnosis, I was unable to play do to hemiparesis my son gave me a bass guitar thinking that it may be fun to try although it did her to hold just like a regular guitar.
    it wasn't until I got an amplifier and turned it on that I felt something click upstairs. Because there was so much stored information in my brain about guitar playing I played for many many many years started out when I was very young just playing for a few minutes I knewI was on the road to recovery and I have been my lot of the wheelchair I'm playing again in better than before interesting ly as you can continue to mature as a musician, even if you're not physically playing.
    you don't play with your hand you play with your brain anybody ever heard of Django Reinhardt ?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      hang in there Tom! Love that you're playing again

  • @wordseamstress1
    @wordseamstress1 5 ปีที่แล้ว +10

    I understanding exercise is important with MS, however after exercising the days following I am in so much pain that I can't move. My muscles feel extra tighten. Stretching hurts. 🤷‍♀️

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      I'd super recommend talking to your MS provider. Ask them if they think Neuro PT might be a good thing to consider? Talk to your MS team Wordseamstress1

    • @HeavyMetalKittenx
      @HeavyMetalKittenx 5 ปีที่แล้ว +1

      Same thing for me

    • @okdawn
      @okdawn 5 ปีที่แล้ว

      @@AaronBosterMD Can you explain Neuro PT?

    • @roberture5903
      @roberture5903 5 ปีที่แล้ว +1

      Yes, I too have found out that MS it's not something you're going to Peddle or bench press your way out of. My neurologist gave me a referral for a physical therapist in addition to what I'm doing at the gym already. I'm crossing my fingers that this helps. My prayers are with you.

    • @StephDespiteMS
      @StephDespiteMS 4 ปีที่แล้ว +2

      Can you guys just exercise a little lighter? There’s this thing in the health and fitness world and called “DOMS” which stands for delayed onset muscle soreness. Its basically about how you are sore x amount of time after exceeding and how long it can go on for. If you exercise extremely hard and haven’t worked way into it, you can be sore for several days! Exercise is extremely beneficial for MS (or anyone) so you don’t have to “kill” yourself. Do what you can :) Slowly but surely, you’ll start challenging yourself more anyways.

  • @thechadder
    @thechadder 4 ปีที่แล้ว

    What do you know about RSD

  • @marymelanson2099
    @marymelanson2099 ปีที่แล้ว

    I have read that it is possible that a person with MS not have lesions, is that accurate?

  • @nadiamajed4004
    @nadiamajed4004 3 ปีที่แล้ว +1

    Does second hand smoke count as well ?

  • @jobonney7987
    @jobonney7987 3 ปีที่แล้ว +1

    What do you think about cannabis ?

  • @kristinahuffman4724
    @kristinahuffman4724 4 ปีที่แล้ว +1

    I've tried to quit smoking, I've tried Chantx. But I can't take it cause of seisures. Do you have an idea on how I can quit

    • @AaronBosterMD
      @AaronBosterMD  4 ปีที่แล้ว

      Here you go: th-cam.com/video/jcUKtAMKSnc/w-d-xo.html

  • @dimitrabardemi210
    @dimitrabardemi210 4 ปีที่แล้ว +1

    Sorry about my English .
    I have ms about 17years .I started with old school doctor or lets just say maybe back then there weren't many options...Now I have problems with urinary ,I can't walk for long time I feel week and tired .Problems of stability not so grave but still these came up gradually.I used all time along Avonex .The benefits of avonex I think are now minimum for myself .I am about to change medicine.I have g6pd but also afraid of side effects.

    • @AaronBosterMD
      @AaronBosterMD  4 ปีที่แล้ว

      Your english is MUCH MUCH better than my Greek!

    • @dimitrabardemi210
      @dimitrabardemi210 4 ปีที่แล้ว

      @@AaronBosterMD I like your sense of humor.Keep the great work on this channel!

  • @gillianwotton6195
    @gillianwotton6195 5 ปีที่แล้ว +2

    Rebif 44iU 4 17 years. I take it regularly.
    I kind of exercise, but I smoke.

    • @soumagoswami
      @soumagoswami 5 ปีที่แล้ว

      Hey Gillian...how many times do you take your Rebif 44iU in a week? I take it once a week as suggested by my neurologist....i am not entirely sure once a week is the optimum dose.

  • @courtoverton1995
    @courtoverton1995 5 ปีที่แล้ว +2

    Exercise hurts and makes me so tired. I don’t even think I can’t make my legs move fast enough to run anymore

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      Maybe start with something low impact like walking laps in a shallow pool or yoga? #WeHaveMS

  • @cassieski8005
    @cassieski8005 6 ปีที่แล้ว

    How frequently do you test your patients Vit D levels? Yearly? Only in the winter? Etc.

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      That depends on the individual patient and provider, with a goal of keeping it in that 50-100 range. Most probably get checked every 6-12 months once stable.

  • @cherylraney9334
    @cherylraney9334 6 ปีที่แล้ว

    Dr. Boster, As a neurologist, how often do you have your patients on Ocrevus do MRI's?

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +1

      For almost any DMT we typically do the following: Brain MRI 6 months after starting new DMT to provide the "re-baseline" then annually thereafter. We get C spine less frequently, typically ever few years. If we need increased vigilance for whatever reason we may re-image every 6 months for a bit, then revert back to every year once comfortable again.

    • @cherylraney9334
      @cherylraney9334 6 ปีที่แล้ว +1

      Aaron Boster MD Thanks

    • @cherylraney9334
      @cherylraney9334 6 ปีที่แล้ว

      Aaron Boster MD What are your thoughts on LDN and 4AP with people with MS? Do you subscribe it for your patients?

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      My pleasure Cheryl! 🙌

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      4AP (brand name Ampyra in US) is helpful in buttressing against heat sensitivity in about ~1/3 of people with MS who try it. When a heat-sensitive person with MS responds- it's cool! Here is a video I did explaining the pathology that leads to heat sensitivity and how 4AP works to correct it: th-cam.com/video/AD3b48MU7X8/w-d-xo.html
      LDN has scant data to support benefits in MS. I do not recommend it to people with MS. However, it doesn't "violate" any of my 3 "rules" when considering complementary medicine. Here's a video on those 3 rule: th-cam.com/video/JEgRGUqaSZw/w-d-xo.html

  • @MuSicdotOrg
    @MuSicdotOrg 2 ปีที่แล้ว

    Great thanks doctor! Love your videos, your TH-cam channel ! Please can I get in touch with you for some personal issues?
    Many thanks and carryon !
    Olga Bobrovnikova pianist teacher author

  • @newlynatural5374
    @newlynatural5374 6 ปีที่แล้ว

    Didn't know exercise slows brain shrinkage. THANKS 🤗😁

  • @marioventer7893
    @marioventer7893 5 ปีที่แล้ว

    MS HUS is bad like a tide band around my chest (Tanks for the videos i learned alot) I'm from Bloemfontein South Africa

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Howdy Mario! Thank you for watching and thank you for sharing your experience/description of "MS Hug." What do you think about my wanting folks to be "4 for 4" in their fight against MS?

  • @msenit4lifepattylong76
    @msenit4lifepattylong76 6 ปีที่แล้ว

    I’m only 3 for 4. Been smoking since I was 17. (53 now) Trying to quit. I have definitely reduced the habit, but not entirely gotten rid of it! I try to keep busy, but that just hasn’t been enough. Any suggestions?? I want to be 4 for 4 too. 😎❤️

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +1

      Quitting smoking is HARD! Here' s tip I learned that I like to pass on to folks: th-cam.com/video/x-c7LjHsZ1s/w-d-xo.html

    • @msenit4lifepattylong76
      @msenit4lifepattylong76 6 ปีที่แล้ว

      Done!! 4 for 4!!

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว

      AWESOME JOB PATTY!!

  • @stuartbremner9680
    @stuartbremner9680 6 ปีที่แล้ว +1

    Quick question if I may. No3, I don’t smoke anymore, haven’t done in 4 years but I do vape. Does the nicotine in the fluid effect my MS? Regards Stu

    • @AaronBosterMD
      @AaronBosterMD  6 ปีที่แล้ว +4

      The jury is still out. Common sense would suggest it's better than smoking an analog cigarette, but we don't really know. I'd recommend buying lower nicotine fluid each time you buy a refill. Over time you'll get down to NO nicotine. Worth a try? what do you think Stuart?

  • @maletero9888
    @maletero9888 2 ปีที่แล้ว +1

    2 4 4
    No diagnosis, no therapy, NO treatment is being suggested or offered. I'm dead on my ass, No exercise.Maybe if my doctor understood what fatigue means :( My Vitamin d is low and i live in Central Texas. I like the gummies and I Don't Smoke.

  • @loisunderwood4871
    @loisunderwood4871 5 ปีที่แล้ว +2

    I prefer not to take any DMD ... me and drugs do not get along.. so what should my number 4 be?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      I have strong opinions about this Lois.

    • @loisunderwood4871
      @loisunderwood4871 4 ปีที่แล้ว

      And what would that opinion be?

  • @Py16777216
    @Py16777216 5 ปีที่แล้ว

    It's very fascinating. It's hard for me to want to take DMDs. I'm too unwilling and indecisive with drugs that target groups of cells without great specificity or fully understood mechanisms. My disease state is extremely mild probably due to age despite occasional lesions... 3/4 is as far as I'm willing to go for now, though the infusion medications are really getting more and more impressive. See, I want them to developed another novel therapy. Take some of my blood culture it and expose a cereal dilution to cultured genetically cloned Mylin slabs. Then through isolate like 20 or 30 b cells within the problemed group. Then develop antibodies to attach to those cells so my immune system attacks and kills problemed cells. Hahaha, use artificial autoimmunity against the immune mediated disease! It would probably work but occasionally lead to serious additional auto immunity.... I often wonder if extended water fasting or even just intermittent fasting would encourage radical cells to just die by promoting primordial renewing Gene's and stem cells from the lack of glucose.... ugh maybe in 1 or 3 to 5 years something intresting and complicated will motivate me further. 😁.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Best of luck Py, I hope that works for you!

    • @arr2820
      @arr2820 2 ปีที่แล้ว

      Well maybe not in 1 year, it usually takes longer. I am also a mild ms'er, no dmt's, sleeping well. Looking for smething better to come.

  • @latinhorse75
    @latinhorse75 5 ปีที่แล้ว +1

    How much D3 should we be taking please?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      ask your MS provider to check your level then you can discuss with them the right amount for YOU

    • @Gondor149
      @Gondor149 5 ปีที่แล้ว +1

      The clinic I go to suggests 2000 IU/day. This was after they had me taking 50,000 IU a week for three months though. Check with your neurologist.

  • @Steveshappylittletrees
    @Steveshappylittletrees 5 ปีที่แล้ว +1

    I'm an RH negative blood type, and cannot be cloned. Cheers!

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Clones clones clones...

    • @Steveshappylittletrees
      @Steveshappylittletrees 5 ปีที่แล้ว +1

      @@AaronBosterMD - My twisted dream was always to be able to have a Clone to do most of my dirty work whilst I goof off! But alas, being RH negative denies me that luxury. Probably for the best though, # 2 would probably rebel and off #1. lol. Best regards from Detroit.

  • @EZGlutenFree
    @EZGlutenFree 5 ปีที่แล้ว +1

    What's the typical dosage of D3?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +2

      ~4000iu daily is what most folks use as maintenance.

    • @EZGlutenFree
      @EZGlutenFree 5 ปีที่แล้ว +1

      @@AaronBosterMD Thanks so much.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      You're very welcome EZGlutenFree!

  • @51colibri
    @51colibri 2 ปีที่แล้ว

    Your videos are great, to bad is no captions, or translation n Spanish.

  • @anacastro8912
    @anacastro8912 4 ปีที่แล้ว

    Interferon is not a DMT, right?

    • @AaronBosterMD
      @AaronBosterMD  4 ปีที่แล้ว

      interferon beta products (rebif, betaseron, avonex, extaia, plegirdy) are DMTs. They are mildly effective self injections.

    • @anacastro8912
      @anacastro8912 4 ปีที่แล้ว

      Aaron Boster MD but it shouldn’t be the first medication, right?

  • @arr2820
    @arr2820 2 ปีที่แล้ว

    Number 5: Get good sleep. Number 6: Avoid Stress)

  • @gregdunbar8997
    @gregdunbar8997 6 ปีที่แล้ว

    I,m 4-for-4!!!!!

  • @aimeesmith6829
    @aimeesmith6829 5 ปีที่แล้ว +1

    Not sure if I heard you correctly. Did you say vit D levels should be at 50?

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      The data looks like levels above 50 correlate with slower disease activity/better outcomes. Talk to YOUR provider about YOUR levels Aimee!

  • @Rania-vh7wg
    @Rania-vh7wg 3 ปีที่แล้ว

    Step 1 - i should start exercising more but idk where to start...does dancing count
    Step 2 - done
    Step 3 - done i never smoked lol
    Step 4 - will be starting tysabri soon

  • @usama8508
    @usama8508 11 หลายเดือนก่อน

    i hv ms and tremors in left limb and left arm

    • @usama8508
      @usama8508 11 หลายเดือนก่อน

      dr kindly help

  • @gabbyfranks78
    @gabbyfranks78 4 ปีที่แล้ว +1

    I do I do....can't I slack once in a while. Lol

  • @rebecaapf754
    @rebecaapf754 3 ปีที่แล้ว +1

    D3 over 150 is best

  • @HeavyMetalKittenx
    @HeavyMetalKittenx 5 ปีที่แล้ว +2

    I have to take 70,000 vitamin D. My level was 9. I am trying to quit smoking I’m only 2/4 but I’m trying

    • @byhisgrace2brown109
      @byhisgrace2brown109 4 ปีที่แล้ว

      Heavy Metal Kitten My level was 5. How often are you taking 70,000 iu of vit D?

    • @arr2820
      @arr2820 2 ปีที่แล้ว

      If you take that much I hope you are on calcium free diet, also take magnesium with it.

  • @monay84
    @monay84 5 ปีที่แล้ว

    Recently diagnosed April 2018 .. Exercise is difficult walking is difficult standing longer than 60-100 seconds is difficult i don't go anywhere publicly unless i HAVE to and or have wheelchair access or electric cart so in other words i go NO where i recently started cannabis as needed never smoked b4 until now 😒 BUT it helps i can take a shower

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      Thank you for watching monay. Keep fighting! Some folks find home PT to be a great way to get back into fitness. Might be worth exploring with your MS provider!

    • @monay84
      @monay84 5 ปีที่แล้ว

      Aaron Boster MD YES I was given paper instructions on diff home pt .. It's just remembering i have it and to do it .. This BEAST is REAL LIFE but i WON'T let it take me down

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      YOU. CAN. DO. IT!

  • @3ZubUA
    @3ZubUA 4 ปีที่แล้ว

    #4 does not work for me !

  • @sonsofanarchy5316
    @sonsofanarchy5316 4 ปีที่แล้ว

    Howdy, Dr Boster, I did injection now, And is paintfull, I stay in my room, I, m enjoy because i walk,, not have atack, my eyes is problem, no see, I have optic neuritis,, i don, t smoke, Don, t drink alcool, I, m good girl, I listen rock, 🤣 thanks for great video, I make exercises every morning, at metal music, industrial rock, Corina Pirlog, Bucharest

  • @Indiana_James
    @Indiana_James 4 ปีที่แล้ว +1

    I wonder how he feels about marijuana?

    • @AaronBosterMD
      @AaronBosterMD  4 ปีที่แล้ว

      here's what I think: th-cam.com/video/ejjuzClV6_o/w-d-xo.html

  • @ktw102085
    @ktw102085 5 ปีที่แล้ว +1

    Please caption your videos! Deaf and Hard of Hearing can not follow!

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      Howdy Kevin! Important question: are you able to turn on the CC options on the viewer? And if so, is it good/accurate?

    • @ktw102085
      @ktw102085 5 ปีที่แล้ว

      They “work” but aren’t always accurate. The generated caption usually aren’t 100% accurate. If possible it is best for the content maker to caption their videos for 100% accuracy and equal access. Thanks again :-)