100% this was me! 2 years ago i was diagnosed and its been a debilitating journey ever since. Its only when i started slowing everything down and knowing my symtoms was when things started to become manageable kinda
Thankyou. So few people in Australia treat this condition. That lady in Brisbane must have had private medical cover because the public hospitals have no appointments for even urgent cases. There are no teams of people to treat FND patients. It is almost impossible to get a doctor's appointment, let alone a specialist! When I was diagnosed by a specialist, that only saw me because I spoke to the hospital's legal team, I was given Jon Stone's app and FND Australia website and FNDorg website as sources for my assistance and a letter to my GP. That's it. This very much seems like hopium by the ABC, I'm afraid. Australia has few resources to aid FND patients. Sad but true.
Im in England also my neurologist told me it mimics MS and Parkinson's. I have hand tremors thumb twitching, tripping over my own feet, brain fog list goes on I've had it for 7/8 years now. Only diagnosed in April this year still waiting for my report it's now September
Hi I've had FND for 4years now am wheelchair bound mostly though I can walk a bit it's the muscle weakness that bothers me most wish there was more help available
I've had all the above I've been stabbed abused through trauma and addiction which caused seizures I think it's your body saying no I had five generalised seizures to find out I had a grade 2 aggressive that was removed with a massive craniotomy I've been round and round in circles and most of the hospital staff was saying I was lying I am not being believed tomorrow IAM going to see IRS HOWEVER MY NEUROLOGIST wants me on camberat I know I've self medicated my neouroly shaking etc is a continuam of it all trauma addiction lack of food and connection to others I can't believe IAM still here 1 and half year post operation I've been heart broken I just need answers please help IAM going to mental health tomorrow I think it could be from brain change due to being on methadone for 20 years I can't believe IAM still alive I d been lied to and I believed they don't know xx god bless all thanks for your time x
I am in England, im not getting any help , i didnt walk or eat for nearly 8 months, are there any groups in England im in Clevedon North Somerset, my social worker hasnt helped me , im currently in a nursing home but i have to go home soon, no help in the community, ive been eating and walking now for 14 weeks i have 40 symptoms that have given me a year of pain, Lowe limb weakness vision problems, bladder problems, muscles playing up , seizure like attacks drifting out my body, numbness tingling, burning in my lungs or anywhere in my body, stiffness, sleep problems, hyper activities depression, anxious anxiety, swallowing problems, bowel problems, forgetting things, dizzy, no concentration, panic attacks, face twisted and twitching speech problems, off balance, i was very fit and active before i got unwell 13 months ago, i gave up in the beginning but ive been fighting back this last 14 weeks, i have no family as they all abandoned me , even my social worker has let me down, i have to leave the nursing home ive been staying in very soon, no help with physical exercise, i am desperate because no one's helped me , i cant talk sometimes for hours its terrified me
100% this was me! 2 years ago i was diagnosed and its been a debilitating journey ever since. Its only when i started slowing everything down and knowing my symtoms was when things started to become manageable kinda
Thankyou.
So few people in Australia treat this condition. That lady in Brisbane must have had private medical cover because the public hospitals have no appointments for even urgent cases. There are no teams of people to treat FND patients. It is almost impossible to get a doctor's appointment, let alone a specialist! When I was diagnosed by a specialist, that only saw me because I spoke to the hospital's legal team, I was given Jon Stone's app and FND Australia website and FNDorg website as sources for my assistance and a letter to my GP. That's it. This very much seems like hopium by the ABC, I'm afraid. Australia has few resources to aid FND patients. Sad but true.
This is very helpful, thank you!
Im in England also my neurologist told me it mimics MS and Parkinson's. I have hand tremors thumb twitching, tripping over my own feet, brain fog list goes on I've had it for 7/8 years now. Only diagnosed in April this year still waiting for my report it's now September
Hi I've had FND for 4years now am wheelchair bound mostly though I can walk a bit it's the muscle weakness that bothers me most wish there was more help available
Hi i have fnd symptoms ive been very unwell still fighting this illness
I need advise about this awful illness
I've had all the above I've been stabbed abused through trauma and addiction which caused seizures I think it's your body saying no I had five generalised seizures to find out I had a grade 2 aggressive that was removed with a massive craniotomy I've been round and round in circles and most of the hospital staff was saying I was lying I am not being believed tomorrow IAM going to see IRS HOWEVER MY NEUROLOGIST wants me on camberat I know I've self medicated my neouroly shaking etc is a continuam of it all trauma addiction lack of food and connection to others I can't believe IAM still here 1 and half year post operation I've been heart broken I just need answers please help IAM going to mental health tomorrow I think it could be from brain change due to being on methadone for 20 years I can't believe IAM still alive I d been lied to and I believed they don't know xx god bless all thanks for your time x
I am in England, im not getting any help , i didnt walk or eat for nearly 8 months, are there any groups in England im in Clevedon North Somerset, my social worker hasnt helped me , im currently in a nursing home but i have to go home soon, no help in the community, ive been eating and walking now for 14 weeks i have 40 symptoms that have given me a year of pain, Lowe limb weakness vision problems, bladder problems, muscles playing up , seizure like attacks drifting out my body, numbness tingling, burning in my lungs or anywhere in my body, stiffness, sleep problems, hyper activities depression, anxious anxiety, swallowing problems, bowel problems, forgetting things, dizzy, no concentration, panic attacks, face twisted and twitching speech problems, off balance, i was very fit and active before i got unwell 13 months ago, i gave up in the beginning but ive been fighting back this last 14 weeks, i have no family as they all abandoned me , even my social worker has let me down, i have to leave the nursing home ive been staying in very soon, no help with physical exercise, i am desperate because no one's helped me , i cant talk sometimes for hours its terrified me