Diagnosed with ALS - Now what?

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  • เผยแพร่เมื่อ 18 ก.ย. 2024
  • Diagnosed with ALS - Now what? This is the first question that families are faced with moments after receiving a terminal diagnosis. The feelings of overwhelming fear and frustration rise to the top of the list.
    This video was shot approximately four weeks after my diagnosis in 2012. It was really the inspiration behind the start of A Life Story Foundation.
    I hated the , what now, uncertainty. I wanted to make a change. I wanted to disrupt the ALS community. We want this channel to be the go-to resource for ALS patients.
    Stay in touch!
    Website - www.alifestory...
    Facebook - / kevinswannls
    Instagram - / a_life_story_foundation

ความคิดเห็น • 25

  • @_DrDrakeRamoray
    @_DrDrakeRamoray 3 ปีที่แล้ว +18

    This dude is still alive after 9 years. Can't move but he's alive.

  • @julieswan1928
    @julieswan1928 4 ปีที่แล้ว +18

    He had such a great voice ..still has a great message! Share and subscribe, stop ALS from taking so much away!

  • @MrSwany1227
    @MrSwany1227 4 ปีที่แล้ว +5

    Finally found that lucky lady you were looking for!

  • @heatherr1141
    @heatherr1141 3 ปีที่แล้ว +6

    This is awesome and you are so brave! Thanks for sharing your story and journey

  • @RaMM0nE
    @RaMM0nE 2 ปีที่แล้ว +2

    Thank you for all the work you do! Love watching your videos and I hare them with my family affected with ALS. God bless you amigo!!!

  • @kristenvarga910
    @kristenvarga910 4 ปีที่แล้ว +6

    What a lovely lady you did find!!

    • @ALifeStoryFoundation
      @ALifeStoryFoundation  4 ปีที่แล้ว +2

      Ain't that the truth! That's the first thing I thought when I watched it!

  • @danyalmarie14
    @danyalmarie14 4 ปีที่แล้ว +5

    You and Shaina inspire me daily!

    • @ALifeStoryFoundation
      @ALifeStoryFoundation  4 ปีที่แล้ว +1

      We are so grateful that you are in our flock!

    • @heatherr1141
      @heatherr1141 3 ปีที่แล้ว +1

      @@ALifeStoryFoundation I’m in your flock now too! I’m new and would like to help get you some views! So I’m commenting hopefully that will help!

  • @prettypumpkin6891
    @prettypumpkin6891 3 ปีที่แล้ว +2

    I hope you are doing okay. My this are with you my stranger.

  • @shainaswan4796
    @shainaswan4796 4 ปีที่แล้ว +2

    This is helpful. It is super strange to watch you speak...but such a great message!

  • @sarah2.017
    @sarah2.017 2 หลายเดือนก่อน

    Does anyone know if Kevin is still alive, and if so, how he's doing now? I can't find ANY information on him after 2021.

  • @lisawelch6948
    @lisawelch6948 2 ปีที่แล้ว

    How to use a Phillips cough assist machine

  • @geeyaboo1017
    @geeyaboo1017 3 ปีที่แล้ว

    When you were first diagnosed did you try any medications that help stop the progression if you dont mind me asking

    • @elvinashourn4673
      @elvinashourn4673 3 ปีที่แล้ว

      Al's (motor neuron disease) is a deadly disease after been diagnosed for years, but all thanks to Dr Ehimare on TH-cam that reverse my ALS disease with the herbal medication treatment. God bless you xx doctor Ehimare on TH-cam channel...

  • @ghirardellichocolate201
    @ghirardellichocolate201 3 ปีที่แล้ว

    I think the answer is Freshwater Australia Mint soap, as little as few applications. Hope this helps. #Open Veins#$