I can see your sheer joy and excitement from the simple "I'm intrigued". That's amazing. Hopefully this doctor continues to be the Grey's Anatomy doctor you need
I too am the embodiment of humour as a defence/coping mechanism. It’s fabulous and it’s fabulous to see someone else not afraid to joke about some of the really shitty things that have happened to them!
The dark moment you had because of your pain is how I feel pretty much every time I get a migraine. And I'm sure you've experienced it more than once yourself. I hope this new neurologist is good for you. ❤️
😭😭😭this is my Cinderella story. I too have a boatload of seemingly unrelated issues and have been searching for this dream doctor to look at it all together. I’m so happy for you!!!!!
when u talked about the dark thoughts it reminded me of my legs which are almost constantly now in pain and/or paralysed. So yeah, the idea that if the pain would go away is a horrible but common thought
I leapt for joy at your Grey's Anatomy moment. I'm still on the hunt for that mystical doctor that treats you like a person and looks at your whole medical history.
Isn't it amazing to find a doctor like that?! I finally found a doctor who actually wants to help and when he doesn't know something, he doesn't say I'm making it up or try to pretend like he knows. He says "oh, that is out of my range of knowledge, I will research it but in the meantime let's get you a specialist on the side for 'xyz'". It's pretty freaking amazing!
That cake was so adorable! :D you're adorable too. I just absolutely love you and I'm so happy that you're doctor it's helping you! I hope you feel better soon!!!!
I’m having a bad fatigue day and watching your videos really helps me when I’m having a bad day to not feel like I’m going crazy or alone. I relate to so much of what you say. I have had so many bad experiences with doctors just discharging me cause I’m not of interest or implying I’m lying about my symptoms. I’m just waiting on the day someone actually tells me what’s wrong with my body. I’m just very worried about the future and what my health will do. Sorry kinda downbeat but you know how it gets on bad days :/ Thanks for making me feel less alone 💜
Not gonna lie, I teared up a bit at this one cause of how relatable it is. I am so glad that you have finally found what sounds like a fantastic doctor. I hope things continue to improve for you, that back injury sounded awful.
Yeah, we need an update on that coffee with the doctor when he has an amazing revelation and finds out some incredible thing about how her body works and why by looking at all the things in combination
I'm not going to lie... my mom made a couple of cakes in the microwave and they were absolutely terrible. Make sure not to make a microwave cake immediately after heating up spaghetti.
Synthetic Teapot, Oh, wow. I'd never thought about that aspect of baking in the microwave, but yeah, that makes total sense. Thanks for saving me from making an awful mistake someday!
I gave in and tried microwave baking when I spent a year living in a flat with just a hotplate and a microwave as a 'kitchen' - even then I'd rather not have cake
I too seem to have found a good doctor this week for my endometriosis who is actually concerned about my wellbeing and was baffled as to why no one had checked on me in 3 years... here's to hoping we get relief and answers!
Good luck to you! My best friend finally found a good doctor last year who actually listened to her concerns and so far has actually helped her. I'm still looking for a doctor who takes my hip joint pain serious, there is still some hope I will be able to find one in my city.
I’m so glad for you Chloe! I have endometriosis too and know how big of a difference there can be.. even amongst doctors that call themselves specialist on the topic.
I study neuroscience and would kill to be able to read through Jessica's medical files out of sheer academic love of a good puzzle but like.....one should never forget to treat the human, not just the disease. Unfortunately for doctors who have very niche specialisations and a great deal of arrogance, patients start looking like a box to tick rather than a whole ass person, and people with complex diagnoses like Jessica get shunted endlessly through the system.
In the US I have had literally dozens of neurologists. I can only say positive things about three of them. Overall, I have seen hundreds of doctors (we used to move around a lot with hubby’s job) and what I have found is that internal medicine and family practice doctors are SO much better, for me. In fact, one janitor was even better than a couple of neurologists that I had the displeasure of being treated by 😉. It sounds as though the NHS is set up a bit differently, and you must only be treated by the specialist that best correlates with ones diagnosed issue. Whatever the case may be, follow doctors orders and that goes for your wife too.
I managed to have my neurologist office... forget? I have a Rare Disease. Year and a half ago my Autistic self went in and I got a ton of migraine questions and my migraines are under control (see “why am I vegan?”) so then being ushered out was frustrating. They then transferred me to a Nurse Practitioner. I went in and, having scripted how to redirect to the reason I cannot walk unaided, have trouble urinating and a ton of stuff below the waist (and weird reflexes everywhere) and started “my migraines are not a problem” and she thought “cool, appointment over” and I tell her my motor neuron disease is causing a lot of issues and she is flat footed. I knew from experience and the knowledge of the Hereditary Spastic Paraplegia Facebook group that a physical therapist would need to evaluate what to do but being sent there because the professional asked where I was diagnosed with this new thing and I said “by your partner, months after your other partner diagnosed my mother” was... not in my predicted scripts. For a while my state had made all poor people go to one hospital for treatment (an hour and a half from my home) and I could count on extra doctors coming in to consult when the condition has no more treatment than was offered to my grandfather in the 1980s. Luckily the physical therapist helped me strengthen what I still control, stretch some of what I can’t, and I now have ankle braces and a method for taping my weak side so I can still wear nice shoes. That is not the way you want to find a neuro not admiring your disease 🤦🏻♀️
"You have to be looking your best or else they'll think you're not trying hard enough" - or you pull yourself together immensely to make a good impression and they dismiss you for not looking like you're sick. Also don't look weak or like your physical pain has any impact on your emotions because then you'll be discharged with a slip for the psych ward. I've had my share of medical horror stories and I just ended up avoiding doctors as much as possible. Hats off, Jessica.
It's so straining! I once cried because the bus was late, then a person held up the nurse for 15 minutes to book an appointment and once it's my turn I'm told "15 min late, you can't get in", and I had waited 6 weeks for the appointment - cause I needed a referral for the crippling pain I was constantly in! And my doc is kind enough to let me in regardless, but *then*, rather than handle my ignored medical issue which is the reason I'm in tears, she *asks if I want to see their therapist*. AAHH. \óAó/ And it gets another type of infuriating with psychiatrists, where it's like "so you're wearing makeup, so you're fine" "so you're wearing dark makeup so you're bad" "so you stopped wearing makeup and so your self-esteem is better and you are better in general" and I'm just like... Can you please just ASK ME?!
Jessica talking about the things in your comment actually had me tear up. I'm lying here in pretty severe pain as I have several autoimmune conditions which have wrecked my spine, bladder, hips, neck, I could go on and on. I feel at this moment my whole undercarriage is on fire and I've been kicked up the bum repeatedly. Can I do anything about it? No. I'll just be told to take pain killers and deal with it. Chronic pain is just such fun.
@@Reicha I hate how much psychiatrists will just assume about you without asking, and also expect you to fully understand what you're feeling. Sometimes I feel like I'm just making it all up
Okay that cake looks surprisingly good for a microwave cake. I may need to make it. Also, I'm happy for you that the neurologist was so wonderful and is willing to take you on as a patient.
I'm only ten minutes in but oh I'm so happy to hear you're getting a good understanding neurologist! Talking to someone who knows what they're doing and who connects the dots is just mind blowing!
Apparently I'm in Love with a doctor now..that's new! Also male....that's VERY new! I just cracked up at that part and couldn't stop laughing. Is it weird that I am beyond happy for you, that you've found a great Grey's anatomy doctor! At the same time it's so wrong that not every doctor is like the ones from GA, but I hope there will be more in the future! Sending positivity and love to you, and I hope your back will get better!
"Can you be my doctor forever? So, yeah, apparently I'm in love with a doctor now. That's new. Also, male. That's VERY new." Anyone else just bust out laughing?
I have recently revised the 1-10 pain scale to something I could relate to, rather than numbers or smiling/frowning faces. 1 and 2, no big deal. 3-5 are increasing versions of "I can live through this but not well." 6 = "I'm not getting much of anything done." 7 = "I cannot concentrate enough to read." 8 = quietly repeating, "Make it stop" over and over. 9 = shouting repeatedly "MAKE IT STOP" over and over. 10 = "Time to jump off a building." This scale is way easier for me to communicate to doctors. I encourage everyone to make their own personalized pain scale to convey your experiences to your physicians. The more they understand us, the more they can help.
This makes so much more sense than the pain scale that exists. I once told a doctor I was at a 10 on a 1-10 scale and got told to “shut up lady, if you were at a 10 you’d be dead.” If I’d had any fight in me left at that point I’d ask why the scale didn’t stop at 9 then. This was while I was having a dislocated shoulder, dislocated hip and facial trauma being evaluated... fast forward to me finding a patient and understanding neurologist and things are much better. Next time I’ll tell a doctor “I don’t want to read, or do things I enjoy....food and water don’t matter...the pain is all that matters.”
Ok so this is sort of random, but I’m rewatching Dragon Prince on Netflix and there’s a Deaf lesbian who’s a general in the army and it’s honestly an amazing show at representation and just in general
This story brings me hope: as the daughter of a man with a bizarre and rare neurological condition that no-one understands, who also had a bit of an event recently but we are none the wiser. Love you Jessie!!
Always double the weight of the amount of the eggs, as a single egg is usually approx 2oz. My mum taught me that lol, and it works for the oz measurements, 4,4,4,2 4oz butter, 4oz sugar, 4oz sr flour and 2 eggs
The wave of emotion I just felt when you said "was it about to be a Grey's Anatomy moment? IT WAS!" - that's all I've wanted for 15 years ha, I've come somewhat close and then he went into temporary retirement and I hardly ever have contact with him because he has 100's of complex patients. I'm so happy for you! A doctor that looks at the full picture is SO important for us medically complex folk!
I've had good luck with doctors of internal medicine--not just MDs but DOs (Doctors of Osteopathic Medicine). It seems like there's something about their training that makes them interested in the most complicated things and more interested in treating the whole person, serving as the central hub for all specialists, and wanting to comfort where comfort is needed. I highly suggest trying out some DOs to see if you get a "Grey's Anatomy moment" with one.
Same. That's what just happened to me: I had a one week admission to the neurology ward for an episode of hypostenia of the left arm and got out with no diagnosis, no hypotheses on what happened, no therapy. All their exams were negative (thank God of course), so therefore I had nothing and shouldn't be expecting anything from them. I've been in pain and been having all kinds of paresthesias in both arms, shoulders, neck from the day after this happened, it's been 2 months and I've been left to myself and the GP. Well, according to an orthopedic, my rheumathologist and my GP I probably had a subluxation that compressed the brachial plexus, not NOTHING. Next, please... LOL
I love your dress!! It is really really beautiful! Also your cake is adorable and the doctor you saw sounds absolutely wonderful! I wish you all the best in your recovery ❤
As a medical student, your channel inspires me on how I can look after patients better and be more kind and compassionate. Thank you so much for sharing your story!
Finally! You found a real doctor, as in someone who loves what they do and likes to problem-solve. I think that's even more impressive and beautiful than that very impressive and lovely cake. : )
OMG, I can relate so much to your story!!! I wish I could find one single doctor that would look at ALL of my weird, random things together rather than just saying "Hmmm, that sounds concerning, but it isn't my specialty, let me refer you to.....".
Wow! I knew this day would come! I knew that after years and years of bad doctors experiences you would finally find a doctor that genuinely cared about your condition! Thank you for spreading your joy and positivity
Jessica hearing about your positive experience with this neurologist actually made me tear up. I’m so happy for you and wish everyone (including me) could have this kind of experience.
I also like to say that I am “ahead of my time” when doctors say things like “most people with that are over 80” [stroke at 51] or “you couldn’t possibly have that” [rare tumor]. We live outside the box. We pave the way. We prepare our friends for what their future will look like. CHANGING TOPICS. I bought and installed SurfShark. Then, since I so enjoyed this video, I clicked on the link in the description to buy you a drink. I got blocked for security reasons. Had to laugh. Sorry, no drink for you today.
Finding a doctor like this is so rare and so mind-blowing! I feel the doctor struggle on a visceral level. I've left more than one specialist office weeping in the elevator. When you started talking about how amazing he was, I literally got emotional. So happy for you! I hope this back injury continues to improve!
I've had the weirdest day today, I had a lot of pain (for me) yesterday and today, and also stress which reduces my spoons I think (anyone else have that?). So, I was really happy to hear you have a better doctor now! A doctor who looks at all of your conditions is so helpful. I've had two like that who are amazing at it and it's been so great. Well, one seemed a bit overwhelmed and not sure where to start with me but we're getting there! Also, very glad you're not at the hospital any more, that was awful to hear you were there and in pain. :)
"I think I'm in love with a doctor. That's new." I laughed so hard at this, because I can absolutely relate. I recently had a few appointments with a really excellent doctor (he's substituting for my primary care doctor, who is temporarily working in the hospital because they needed more doctors for dealing with COVID). The new doctor is surprisingly good at dealing with my many chronic illnesses. After the third appointment with him, my fiancé joked that I'm in love with the doctor, and yeah, kinda. To have a doctor who treats you as a whole person, and not just a body system or set of symptoms is too often rare and difficult to find, and when you do find one, it's definitely a butterflies in your stomach, wait did that really just happen, sort of feeling. Jessica, I'm so glad you found an amazing doctor, and I hope he's able to continue to help you!
Had a tiny little cry watching this because I'm so happy you finally found your Greys doctor!! Sometimes all it takes is a doctor to find things fascinating, tell you they don't know but will help you find out, and validate you. I'm so happy for you and I hope they can help 💕💕
Jessica. I was watching this and at the end my 4-year-old said “oooooo, rainbow cake!” And then my one-year-old put down his toy and started clapping. So. A+ job from this family!
This is painfully relatable. Literally, I had a pop in my back and it hurts so bad and I keep losing sensation in my arms and legs and have been having trouble emptying my bladder and I'm scared to go to the hospital for the tests my dr ordered because I'm in Florida and have an autoimmune disorder. I did start a round of steroids so maybe I'll feel enough better that the only hump I'll have to get over is the fear of catching a potentially lethal virus so that's fun. Your cake and dress are beautiful!
I am so incredibly happy that you've found such a caring, kind physician. Gives me hope here in the states I wish you minimal pain and maximum fabulousness 👑
Oh my gosh! That's amazing! See, y'all, there is hope! I know its hard to go from doctor to doctor, hospital to hospital, treatment to treatment, but you will find the one that works for you! Just hang im there and know we're all here for you. Also Happy Pride! 🏳️🌈
I'm in love with your neurologist, too. And weirdly enough, my left lower back went out for reasons unknown on Saturday/Sunday, but it does that, so despite not being able to see (talk to) my doctor until late July, I was able to convince the pharmacist to dispense some useful painkillers today, so I can stop crying for a while. Plus, I'm a bit loopy.
Am I the only one who grinned like a loon, fist pumped, and said “yes!” at being so fricken happy that the “Grey’s Anatomy” moment with the neurologist? I do love it when doctors and other medical professionals believe you. (You as in a general term) - also Jessica, I was entirely distracted by your beautiful dress the whole time too. 😂
Also, what a HUMAN BEING of a doctor. That empathic, kind touch makes all the difference, doesn't it? Hope that severe, life draining pain is gone. Have considered ### due to pain. [As a child]. [Not for long].
Me: Listen to Jessica, brain. She goes through similar things to us. And look, she's making a pride cake! We like pride cakes, don't we? My brain: Boobies.
4 things I look for in a doctor!! 1. “I don’t know.” So many doctors don’t admit when they’re unsure, and it always leads me to ineffective and expensive treatments/tests that aren’t necessary. Just tell me you don’t know so we can figure it out or I can go somewhere else. 2. “I was looking into...” You’re taking your time to look at my medical history and learning new things?!?! He’ll yeah!!!! 3. “X is associated/related to Y.” Especially if this is cross-system or less common info. It means you’re thinking past your immediate job and trying to put the puzzle together. 4. Terms unrelated to their practice. For example, a therapist saw that I was visually impaired and asked “are you legally blind? What’s your acuity like?” And I started sobbing for real cause it was the first time my sight was a curiosity and not used to write off my anxiety!!
It’s so interesting. I’d find if docs would say I’m “fascinating,” I’d be severely offended. It’s happened to me before in my worst medical point. “I’m glad you’re fascinated by my painful experience but I’m fucking struggling here. By all means ignore that and keep making me feel like a specimen.” But at the same time anything that gets a doc to fully commit to you is fantastic. I don’t know how I’d respond to this but I’m glad you’re at this point in your experience.
I mean, with the rare combination of all the uncommon diagnoses, she probably already feels like a specimen, and would rather somebody took her seriously than just say that what she has is impossible to have or whatever.
Amber Gardener I get that. I had a skilled experience for a long time and always felt much more comfortable when docs left the science out of talking about their patient. Talking about symptoms and diagnosis, absolutely necessary, but when they’re talking about us as a whole, there’s an art to keeping the human in it.
Okay so you will probably really enjoy watching the TH-cam channel Stump Kitchen! Gay woman (also a new mum!) with a limb difference who cooks gluten free and vegan and has the most delightful personality and energy!
Jessica, I'm going in for another round of hospital things on Tuesday, and I'm expecting the 'It's in your head' thing. I needed this video so much, you don't even know. xD Thank you!
I'm so happy you've found a doctor who cares and wants to help you!! I almost started crying because I can't imagine how much of a relief it was. I'm excited to see this relationship develop and hope it ends up being even better than Greys
I am so happy for you Jessica! I couldn’t believe you hadn’t found a doctor like this before now, as I was a biology major for several years and find your condition infinitely interesting! But more than that, I find you as a person interesting, and I hope you remain cheerful as much as you can throughout all this! It’s so rare to get a doctor that’s interested in your issues but also kind, I’m having that problem with my myriad of mental disorders right now. They either want to write a paper on you and make lots of money, or they’re apologetic but have no clue what’s going on and no intention of finding out. This guy sounds like the kind of doctor I’d let write a paper on me lol ;)
This doctor is the reason why I sometimes want to be a doctor. There's not enough Drs out there that care enough about their patients wellbeing and it's almost like they don't realise it's a person in front of them not a textbook. I'm currently a biochemistry student and I really want to help understand rarer conditions like yours so everyone can have better lives.
I’m so glad you got a doctor experience like this! When I was diagnosed with ehlers danlos I had a similar thing, I went in because I thought I had arthritis in my hands, but after looking over my medical files (and also the way I was sitting lol I just can not sit normally), the rheumatologist immediately put together that I had eds. It was amazing, every health problem I’d ever had was explained in that one visit
7:14 I've had moments like that. I call them: Death, Take Me Now Moments. If Death were to come by and be like, "Hey, you wanna kick the bucket now?" And I'd be like, "Yeah, why not." Those moments are terrible to say the least.... I'm so glad you've found a doctor who sounds amazing!
I'm so glad you seem to have found a doctor that's willing and enthusiastic about taking a holistic approach to your health! I hope you keep feeling better and stay sane during the house renovation and... you know, 2020. Your presence alone was able to make my day. You are such a sunshine. (also hi Claud! Hi pups!)
Wow so glad that you found a doctor that cares! I had a similar experience with a doctor saying how surprised she was with all my different conditions and that she was gonna try to look into my case and finally treat some of my symptoms.....long story short, she never scheduled the follow up visit, I called, they told me I had to wait for her to be the one to schedule.... that never happened........hurray for the public health system
Your story reminds me why I want to be a doctor, to be like your new neurologist. I want to be the doctor that listens to patients and tries to help them. Thank you for being such a lovely person.
Jessica is so pretty,, it's actually and genuinely concerning 😔💋 Id legitimately die if she'd ever kiss my cheek and leave a red lip print. THAT'S ALL I WANT IN LIFE 🥺❤️
I'm so happy you found a good Doctor - honestly shed a few tears. Having a caring, compassionate & knowledgable Doctor that ACTUALLY WANTS TO HELP is so rare and makes a real difference. I am so glad for you!!
I love how you essentially got diagnosed "old person" 😂 that's happened to me so many times... Doctors being like well this is pretty normal... For a 70 year old... I'm 25.
So happy for you for getting a good doctor finally! I tried for years to find out why I get my migraines and still don’t know and I think I gave up a few years ago on it. I also am always boiling when I really shouldn’t be and I still don’t know why but one time during a doctors appointment about that they heard a heart murmur and then looked into it and found out I have a heart condition. I also have a blood disorder so yeah. Another one of those people with a lot wrong with them and a lot of things they have no clue why. I’m also on the verge of anemia. Fun. Wish doctors wouldn’t always dismiss things like extra testing because I thought the heat thing could be a thyroid problem but they said people my age don’t have them... I went off topic, but I am so happy for you finding a good doctor who listens and is looking at everything together!!!
As a nursing student I cried hearing what that amazing doctor said to you. He really embodies our program’s motto of taking care of the whole person and empathizing with all of their needs. More doctors should really learn to put that mindset into practice.
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WE NEED MORE DOCTORS LIKE THIS!!!!!!!!
Absolutely. This needs to be how all doctors are trained in med school and in field training, residency etc.
It's almost a zero percent chance that this will happen in the US.
@@jwb52z9 My dad had a doctor like this, but he died of AIDS when I was a kid. I haven't found another like him.
Yes!
300000 times yes!
I can see your sheer joy and excitement from the simple "I'm intrigued". That's amazing. Hopefully this doctor continues to be the Grey's Anatomy doctor you need
I too am the embodiment of humour as a defence/coping mechanism. It’s fabulous and it’s fabulous to see someone else not afraid to joke about some of the really shitty things that have happened to them!
The dark moment you had because of your pain is how I feel pretty much every time I get a migraine. And I'm sure you've experienced it more than once yourself. I hope this new neurologist is good for you. ❤️
Congratulations on finding a Dr, who actually wants to help you. That cake looks so pretty.
😭😭😭this is my Cinderella story. I too have a boatload of seemingly unrelated issues and have been searching for this dream doctor to look at it all together. I’m so happy for you!!!!!
I want ur doctor! No more being ignored although I am literally in so much pain
when u talked about the dark thoughts it reminded me of my legs which are almost constantly now in pain and/or paralysed. So yeah, the idea that if the pain would go away is a horrible but common thought
I leapt for joy at your Grey's Anatomy moment. I'm still on the hunt for that mystical doctor that treats you like a person and looks at your whole medical history.
A doctor that listens? Thats my dream! I actually cried at that part
So glad you found a doctor that is listening to you and is empathetic! I hope you start feeling better soon !
Isn't it amazing to find a doctor like that?! I finally found a doctor who actually wants to help and when he doesn't know something, he doesn't say I'm making it up or try to pretend like he knows. He says "oh, that is out of my range of knowledge, I will research it but in the meantime let's get you a specialist on the side for 'xyz'". It's pretty freaking amazing!
I'm so glad you seem to have found a doctor who will really care for you, that sounds fantastic! Lots of love
That cake was so adorable! :D you're adorable too. I just absolutely love you and I'm so happy that you're doctor it's helping you! I hope you feel better soon!!!!
Ahhhh I teared up watching this because I know the feeling, so happy for you!
im so happy you found a good doctor. you deserve it!
I’m having a bad fatigue day and watching your videos really helps me when I’m having a bad day to not feel like I’m going crazy or alone.
I relate to so much of what you say. I have had so many bad experiences with doctors just discharging me cause I’m not of interest or implying I’m lying about my symptoms. I’m just waiting on the day someone actually tells me what’s wrong with my body. I’m just very worried about the future and what my health will do. Sorry kinda downbeat but you know how it gets on bad days :/
Thanks for making me feel less alone 💜
Glad to hear that you found a great doctor! Gives me hope (I train future doctors and sometimes hope just leaves the room...)
I’ve had similar situations where doctors look at my records and freak out because there’s so much stuff.
Ah, I'm finally getting over that pain feeling. Also, I yelled what a queen with the matching mask and dress.
That's the doctor equivalent of the lottery isn't it??
Not gonna lie, I teared up a bit at this one cause of how relatable it is. I am so glad that you have finally found what sounds like a fantastic doctor. I hope things continue to improve for you, that back injury sounded awful.
I teared up when she talked about her Grey's Anatomy moment. What a dream come true.
Yeah, we need an update on that coffee with the doctor when he has an amazing revelation and finds out some incredible thing about how her body works and why by looking at all the things in combination
God me too! Fucking hate my nerologist. Sorely tempted to move to Brighton for magic Nerology man.
wait a second... JOY??? OMG! Small world! Hi internet mom!
Jessica: “..And by FUN I mean...”
Me: Excruciating pain?
Jessica: “..EXCRUCIATING pain!” **smiles**
🙌
finding a doctor that actually cares about everything all together is such an amazing feeling 😭❤️ i’m so happy for you!!
I straight-up teared up when Jessica's got to that point. Congratulations on finding a better doctor!
I have not found one yet!
@@glittery_cucumber me neither, this video gives me hope that some are out there though
+
I'm not going to lie... my mom made a couple of cakes in the microwave and they were absolutely terrible. Make sure not to make a microwave cake immediately after heating up spaghetti.
The only reason I put cakes in the microwave is because mine is also an oven.
S8 put a smile in the microwave
Synthetic Teapot,
Oh, wow. I'd never thought about that aspect of baking in the microwave, but yeah, that makes total sense. Thanks for saving me from making an awful mistake someday!
@Patti Morris I have a microwave cookbook. ^_^ And it has modified cake recipes in it.
I gave in and tried microwave baking when I spent a year living in a flat with just a hotplate and a microwave as a 'kitchen' - even then I'd rather not have cake
I too seem to have found a good doctor this week for my endometriosis who is actually concerned about my wellbeing and was baffled as to why no one had checked on me in 3 years... here's to hoping we get relief and answers!
Chloe good luck! I still haven’t found a good doctor for my endometriosis
Good luck to you! My best friend finally found a good doctor last year who actually listened to her concerns and so far has actually helped her.
I'm still looking for a doctor who takes my hip joint pain serious, there is still some hope I will be able to find one in my city.
Good luck Chloe!
I’m so glad for you Chloe! I have endometriosis too and know how big of a difference there can be.. even amongst doctors that call themselves specialist on the topic.
I heard a Neurologist once say 'Neurologists don't treat diseases, they admire them.' So glad you found the exception!
At least to know what is wrong and why is better than being ignored and forgotten.
H T wwwwawwwww w
W
I study neuroscience and would kill to be able to read through Jessica's medical files out of sheer academic love of a good puzzle but like.....one should never forget to treat the human, not just the disease. Unfortunately for doctors who have very niche specialisations and a great deal of arrogance, patients start looking like a box to tick rather than a whole ass person, and people with complex diagnoses like Jessica get shunted endlessly through the system.
In the US I have had literally dozens of neurologists. I can only say positive things about three of them.
Overall, I have seen hundreds of doctors (we used to move around a lot with hubby’s job) and what I have found is that internal medicine and family practice doctors are SO much better, for me. In fact, one janitor was even better than a couple of neurologists that I had the displeasure of being treated by 😉. It sounds as though the NHS is set up a bit differently, and you must only be treated by the specialist that best correlates with ones diagnosed issue.
Whatever the case may be, follow doctors orders and that goes for your wife too.
I managed to have my neurologist office... forget? I have a Rare Disease. Year and a half ago my Autistic self went in and I got a ton of migraine questions and my migraines are under control (see “why am I vegan?”) so then being ushered out was frustrating. They then transferred me to a Nurse Practitioner. I went in and, having scripted how to redirect to the reason I cannot walk unaided, have trouble urinating and a ton of stuff below the waist (and weird reflexes everywhere) and started “my migraines are not a problem” and she thought “cool, appointment over” and I tell her my motor neuron disease is causing a lot of issues and she is flat footed. I knew from experience and the knowledge of the Hereditary Spastic Paraplegia Facebook group that a physical therapist would need to evaluate what to do but being sent there because the professional asked where I was diagnosed with this new thing and I said “by your partner, months after your other partner diagnosed my mother” was... not in my predicted scripts. For a while my state had made all poor people go to one hospital for treatment (an hour and a half from my home) and I could count on extra doctors coming in to consult when the condition has no more treatment than was offered to my grandfather in the 1980s. Luckily the physical therapist helped me strengthen what I still control, stretch some of what I can’t, and I now have ankle braces and a method for taping my weak side so I can still wear nice shoes. That is not the way you want to find a neuro not admiring your disease 🤦🏻♀️
**CAPTIONS ARE SYNCING**
Thank you so much for watching! What type of cake would YOUR medical mishaps be?
a carrot cake. because i hate carrot cake. and yet i keep being given slices.
None, during and after most of my medical mishaps I can’t eat sugar
Hamster Art 😱😱carrot cake’s the best *faints* 🤣🤣🤣
Did you time travel? How has this been commented an hour ago? Omg, quarantine has messed with my head!
@@Hamster7678 Noooo! Carrot cake is the best!
"You have to be looking your best or else they'll think you're not trying hard enough" - or you pull yourself together immensely to make a good impression and they dismiss you for not looking like you're sick. Also don't look weak or like your physical pain has any impact on your emotions because then you'll be discharged with a slip for the psych ward. I've had my share of medical horror stories and I just ended up avoiding doctors as much as possible. Hats off, Jessica.
urgh, I'm so sorry, damned if you do and damned if you don't as they say...
I hope you find a doctor that really cares and is able help. I did and it’s life changing.
It's so straining! I once cried because the bus was late, then a person held up the nurse for 15 minutes to book an appointment and once it's my turn I'm told "15 min late, you can't get in", and I had waited 6 weeks for the appointment - cause I needed a referral for the crippling pain I was constantly in!
And my doc is kind enough to let me in regardless, but *then*, rather than handle my ignored medical issue which is the reason I'm in tears, she *asks if I want to see their therapist*. AAHH. \óAó/
And it gets another type of infuriating with psychiatrists, where it's like "so you're wearing makeup, so you're fine" "so you're wearing dark makeup so you're bad" "so you stopped wearing makeup and so your self-esteem is better and you are better in general" and I'm just like... Can you please just ASK ME?!
Jessica talking about the things in your comment actually had me tear up. I'm lying here in pretty severe pain as I have several autoimmune conditions which have wrecked my spine, bladder, hips, neck, I could go on and on. I feel at this moment my whole undercarriage is on fire and I've been kicked up the bum repeatedly. Can I do anything about it? No. I'll just be told to take pain killers and deal with it. Chronic pain is just such fun.
@@Reicha I hate how much psychiatrists will just assume about you without asking, and also expect you to fully understand what you're feeling. Sometimes I feel like I'm just making it all up
'Tastes like a rat died in my mouth' is going to be my new go to for food that tastes nasty☺️
aw now I can only think of the gorgeous scent of lady fancy rats - very much alive though ;)
I've always said it tastes like "I'm eating food that makes flies vomit"
Okay that cake looks surprisingly good for a microwave cake. I may need to make it. Also, I'm happy for you that the neurologist was so wonderful and is willing to take you on as a patient.
I'm only ten minutes in but oh I'm so happy to hear you're getting a good understanding neurologist!
Talking to someone who knows what they're doing and who connects the dots is just mind blowing!
Apparently I'm in Love with a doctor now..that's new! Also male....that's VERY new!
I just cracked up at that part and couldn't stop laughing. Is it weird that I am beyond happy for you, that you've found a great Grey's anatomy doctor! At the same time it's so wrong that not every doctor is like the ones from GA, but I hope there will be more in the future! Sending positivity and love to you, and I hope your back will get better!
15:11
Jessica: "OK! Let's decorate this cake!"
"...... and by decorate I mean stack and pray that they stay" ʕ •ᴥ•ʔ
"Can you be my doctor forever? So, yeah, apparently I'm in love with a doctor now. That's new. Also, male. That's VERY new."
Anyone else just bust out laughing?
I have recently revised the 1-10 pain scale to something I could relate to, rather than numbers or smiling/frowning faces.
1 and 2, no big deal.
3-5 are increasing versions of "I can live through this but not well."
6 = "I'm not getting much of anything done."
7 = "I cannot concentrate enough to read."
8 = quietly repeating, "Make it stop" over and over.
9 = shouting repeatedly "MAKE IT STOP" over and over.
10 = "Time to jump off a building."
This scale is way easier for me to communicate to doctors. I encourage everyone to make their own personalized pain scale to convey your experiences to your physicians. The more they understand us, the more they can help.
I’m a little worried about you because of “Time to Jump of a Building”. Please don’t.
@@whyme6307 Only had that pain once. Hospital, seizures, IV.
This makes so much more sense than the pain scale that exists. I once told a doctor I was at a 10 on a 1-10 scale and got told to “shut up lady, if you were at a 10 you’d be dead.” If I’d had any fight in me left at that point I’d ask why the scale didn’t stop at 9 then. This was while I was having a dislocated shoulder, dislocated hip and facial trauma being evaluated... fast forward to me finding a patient and understanding neurologist and things are much better. Next time I’ll tell a doctor “I don’t want to read, or do things I enjoy....food and water don’t matter...the pain is all that matters.”
Thank you! This makes pain so much easier to interpret for myself and communicate. I've been struggling with this for a while.
br.pinterest.com/pin/Aa5HGAS8C12PQqIDny_hrrIgl3K79P0wi8crEycBRIBEmKu0840HBi0/ idk if this will work but this is a pain scale that seems very useful
Love how you make everything positive, you brighten up my days when my anxiety is really bad, thank you so much Jessica,
SO glad you found a doctor who's willing to take the time to actually READ everything!!
Ok so this is sort of random, but I’m rewatching Dragon Prince on Netflix and there’s a Deaf lesbian who’s a general in the army and it’s honestly an amazing show at representation and just in general
YEEESSSSS WE STAN AMAYA
I love that show
Amaya is so badass
I apparently need to watch this show!
@@TiffMarche Do it, it's really good!!
I did not know of this show. I must watch!
This story brings me hope: as the daughter of a man with a bizarre and rare neurological condition that no-one understands, who also had a bit of an event recently but we are none the wiser. Love you Jessie!!
Measuring your ingredients based on the weight of the eggs is so clever!!
Always double the weight of the amount of the eggs, as a single egg is usually approx 2oz. My mum taught me that lol, and it works for the oz measurements, 4,4,4,2
4oz butter, 4oz sugar, 4oz sr flour and 2 eggs
The wave of emotion I just felt when you said "was it about to be a Grey's Anatomy moment? IT WAS!" - that's all I've wanted for 15 years ha, I've come somewhat close and then he went into temporary retirement and I hardly ever have contact with him because he has 100's of complex patients. I'm so happy for you! A doctor that looks at the full picture is SO important for us medically complex folk!
I've had good luck with doctors of internal medicine--not just MDs but DOs (Doctors of Osteopathic Medicine). It seems like there's something about their training that makes them interested in the most complicated things and more interested in treating the whole person, serving as the central hub for all specialists, and wanting to comfort where comfort is needed. I highly suggest trying out some DOs to see if you get a "Grey's Anatomy moment" with one.
YAY NEW DOCTOR WITH AN INTEREST IN YOU AND YOUR ENTIRE MEDICAL HISTORY!!! 🥳👏🏾
'I had nothing and therefore just had to go home and deal with it'. I've seen two neurologists and this is very much my experience.
Same. That's what just happened to me: I had a one week admission to the neurology ward for an episode of hypostenia of the left arm and got out with no diagnosis, no hypotheses on what happened, no therapy. All their exams were negative (thank God of course), so therefore I had nothing and shouldn't be expecting anything from them. I've been in pain and been having all kinds of paresthesias in both arms, shoulders, neck from the day after this happened, it's been 2 months and I've been left to myself and the GP. Well, according to an orthopedic, my rheumathologist and my GP I probably had a subluxation that compressed the brachial plexus, not NOTHING. Next, please... LOL
Finding a doctor who actually cares is one of the BEST feelings in the world.
I love your dress!! It is really really beautiful! Also your cake is adorable and the doctor you saw sounds absolutely wonderful! I wish you all the best in your recovery ❤
As a medical student, your channel inspires me on how I can look after patients better and be more kind and compassionate.
Thank you so much for sharing your story!
I think you discovered the rare "patient-centered" doctor! So glad you found the unicorn in health care you needed. Have a good weekend 🦄
I’m so happy that you actually found a doctor who is listening to you and looks at the whole picture. I hope something good comes from it 🤞🤞
Finally! You found a real doctor, as in someone who loves what they do and likes to problem-solve. I think that's even more impressive and beautiful than that very impressive and lovely cake. : )
What a beautiful cake! Also I cackled at "and a man! That's VERY new"
OMG, I can relate so much to your story!!! I wish I could find one single doctor that would look at ALL of my weird, random things together rather than just saying "Hmmm, that sounds concerning, but it isn't my specialty, let me refer you to.....".
Wow! I knew this day would come! I knew that after years and years of bad doctors experiences you would finally find a doctor that genuinely cared about your condition! Thank you for spreading your joy and positivity
Rainbow cake for the last day of pride month
Got to love a cake...not such a fan of hospitals though.....eurgh! And I am disabled 😹
"and by fun I mean excruciating pain!" So relatable 😅😅
I’m so happy you’ve found a doctor who wants to treat your whole self! That’s such a rare thing. Hope the remainder of your healing is swift.
Jessica hearing about your positive experience with this neurologist actually made me tear up. I’m so happy for you and wish everyone (including me) could have this kind of experience.
I also like to say that I am “ahead of my time” when doctors say things like “most people with that are over 80” [stroke at 51] or “you couldn’t possibly have that” [rare tumor]. We live outside the box. We pave the way. We prepare our friends for what their future will look like. CHANGING TOPICS. I bought and installed SurfShark. Then, since I so enjoyed this video, I clicked on the link in the description to buy you a drink. I got blocked for security reasons. Had to laugh. Sorry, no drink for you today.
😂😂 gotta love the irony!
Finding a doctor like this is so rare and so mind-blowing! I feel the doctor struggle on a visceral level. I've left more than one specialist office weeping in the elevator. When you started talking about how amazing he was, I literally got emotional. So happy for you! I hope this back injury continues to improve!
I've had the weirdest day today, I had a lot of pain (for me) yesterday and today, and also stress which reduces my spoons I think (anyone else have that?). So, I was really happy to hear you have a better doctor now! A doctor who looks at all of your conditions is so helpful. I've had two like that who are amazing at it and it's been so great. Well, one seemed a bit overwhelmed and not sure where to start with me but we're getting there! Also, very glad you're not at the hospital any more, that was awful to hear you were there and in pain. :)
"I think I'm in love with a doctor. That's new." I laughed so hard at this, because I can absolutely relate. I recently had a few appointments with a really excellent doctor (he's substituting for my primary care doctor, who is temporarily working in the hospital because they needed more doctors for dealing with COVID).
The new doctor is surprisingly good at dealing with my many chronic illnesses. After the third appointment with him, my fiancé joked that I'm in love with the doctor, and yeah, kinda. To have a doctor who treats you as a whole person, and not just a body system or set of symptoms is too often rare and difficult to find, and when you do find one, it's definitely a butterflies in your stomach, wait did that really just happen, sort of feeling.
Jessica, I'm so glad you found an amazing doctor, and I hope he's able to continue to help you!
Had a tiny little cry watching this because I'm so happy you finally found your Greys doctor!! Sometimes all it takes is a doctor to find things fascinating, tell you they don't know but will help you find out, and validate you. I'm so happy for you and I hope they can help 💕💕
The paragraph at around 8 mins about greys anatomy and doctors hit so harddddd. Where my invisible warriors at?
Right? Sigh!
I really admire you. Hugs from Argentina 🇦🇷🇦🇷🇦🇷🇦🇷
"Dr. McDreamy" lives.... and Jessica is his most fascinating patient...ever. Bet he's got great hair just like our beloved Jessica. 😍
Jessica. I was watching this and at the end my 4-year-old said “oooooo, rainbow cake!” And then my one-year-old put down his toy and started clapping. So. A+ job from this family!
This is painfully relatable. Literally, I had a pop in my back and it hurts so bad and I keep losing sensation in my arms and legs and have been having trouble emptying my bladder and I'm scared to go to the hospital for the tests my dr ordered because I'm in Florida and have an autoimmune disorder. I did start a round of steroids so maybe I'll feel enough better that the only hump I'll have to get over is the fear of catching a potentially lethal virus so that's fun. Your cake and dress are beautiful!
When I was in college, I once pulled a back muscle shaving my leg. After pain killers and three months of therapy I was better.
I am so incredibly happy that you've found such a caring, kind physician. Gives me hope here in the states
I wish you minimal pain and maximum fabulousness 👑
Oh my gosh! That's amazing! See, y'all, there is hope! I know its hard to go from doctor to doctor, hospital to hospital, treatment to treatment, but you will find the one that works for you! Just hang im there and know we're all here for you. Also Happy Pride! 🏳️🌈
The ultimate lgbtq+ cake:
Doing what you can with what you've got, and having it turn out fabulous. 🏳️🌈💖
I'm in love with your neurologist, too. And weirdly enough, my left lower back went out for reasons unknown on Saturday/Sunday, but it does that, so despite not being able to see (talk to) my doctor until late July, I was able to convince the pharmacist to dispense some useful painkillers today, so I can stop crying for a while. Plus, I'm a bit loopy.
Am I the only one who grinned like a loon, fist pumped, and said “yes!” at being so fricken happy that the “Grey’s Anatomy” moment with the neurologist? I do love it when doctors and other medical professionals believe you. (You as in a general term) - also Jessica, I was entirely distracted by your beautiful dress the whole time too. 😂
Also, what a HUMAN BEING of a doctor. That empathic, kind touch makes all the difference, doesn't it? Hope that severe, life draining pain is gone. Have considered ### due to pain. [As a child]. [Not for long].
Me: Listen to Jessica, brain. She goes through similar things to us. And look, she's making a pride cake! We like pride cakes, don't we?
My brain: Boobies.
relatable XD
4 things I look for in a doctor!!
1. “I don’t know.” So many doctors don’t admit when they’re unsure, and it always leads me to ineffective and expensive treatments/tests that aren’t necessary. Just tell me you don’t know so we can figure it out or I can go somewhere else.
2. “I was looking into...” You’re taking your time to look at my medical history and learning new things?!?! He’ll yeah!!!!
3. “X is associated/related to Y.” Especially if this is cross-system or less common info. It means you’re thinking past your immediate job and trying to put the puzzle together.
4. Terms unrelated to their practice. For example, a therapist saw that I was visually impaired and asked “are you legally blind? What’s your acuity like?” And I started sobbing for real cause it was the first time my sight was a curiosity and not used to write off my anxiety!!
It’s so interesting. I’d find if docs would say I’m “fascinating,” I’d be severely offended. It’s happened to me before in my worst medical point. “I’m glad you’re fascinated by my painful experience but I’m fucking struggling here. By all means ignore that and keep making me feel like a specimen.” But at the same time anything that gets a doc to fully commit to you is fantastic. I don’t know how I’d respond to this but I’m glad you’re at this point in your experience.
I mean, with the rare combination of all the uncommon diagnoses, she probably already feels like a specimen, and would rather somebody took her seriously than just say that what she has is impossible to have or whatever.
Amber Gardener I get that. I had a skilled experience for a long time and always felt much more comfortable when docs left the science out of talking about their patient. Talking about symptoms and diagnosis, absolutely necessary, but when they’re talking about us as a whole, there’s an art to keeping the human in it.
Okay so you will probably really enjoy watching the TH-cam channel Stump Kitchen! Gay woman (also a new mum!) with a limb difference who cooks gluten free and vegan and has the most delightful personality and energy!
Jessica, I'm going in for another round of hospital things on Tuesday, and I'm expecting the 'It's in your head' thing. I needed this video so much, you don't even know. xD Thank you!
I'm so happy you've found a doctor who cares and wants to help you!! I almost started crying because I can't imagine how much of a relief it was. I'm excited to see this relationship develop and hope it ends up being even better than Greys
I am so happy for you Jessica! I couldn’t believe you hadn’t found a doctor like this before now, as I was a biology major for several years and find your condition infinitely interesting! But more than that, I find you as a person interesting, and I hope you remain cheerful as much as you can throughout all this! It’s so rare to get a doctor that’s interested in your issues but also kind, I’m having that problem with my myriad of mental disorders right now. They either want to write a paper on you and make lots of money, or they’re apologetic but have no clue what’s going on and no intention of finding out. This guy sounds like the kind of doctor I’d let write a paper on me lol ;)
As a person with weird health issues, I had an excited audible squeak when I heard you found an interested doctor. That is wonderful ♥️♥️
This doctor is the reason why I sometimes want to be a doctor. There's not enough Drs out there that care enough about their patients wellbeing and it's almost like they don't realise it's a person in front of them not a textbook. I'm currently a biochemistry student and I really want to help understand rarer conditions like yours so everyone can have better lives.
I always watch ads all the way for my favourite youtubers, but TH-cam is really making fun of me with a 4-minute ad 😑
I’m so glad you got a doctor experience like this! When I was diagnosed with ehlers danlos I had a similar thing, I went in because I thought I had arthritis in my hands, but after looking over my medical files (and also the way I was sitting lol I just can not sit normally), the rheumatologist immediately put together that I had eds. It was amazing, every health problem I’d ever had was explained in that one visit
7:14
I've had moments like that. I call them: Death, Take Me Now Moments. If Death were to come by and be like, "Hey, you wanna kick the bucket now?" And I'd be like, "Yeah, why not." Those moments are terrible to say the least....
I'm so glad you've found a doctor who sounds amazing!
Me- gets upset because I can’t understand what she’s saying
Me- remembers this is CC
That cake looks absolutely great. Well done Jessica! ❤️
I'm so glad you seem to have found a doctor that's willing and enthusiastic about taking a holistic approach to your health! I hope you keep feeling better and stay sane during the house renovation and... you know, 2020.
Your presence alone was able to make my day. You are such a sunshine. (also hi Claud! Hi pups!)
Wow so glad that you found a doctor that cares! I had a similar experience with a doctor saying how surprised she was with all my different conditions and that she was gonna try to look into my case and finally treat some of my symptoms.....long story short, she never scheduled the follow up visit, I called, they told me I had to wait for her to be the one to schedule.... that never happened........hurray for the public health system
And reader, I married him.
Only kidding - I hope your new neurologist is able to help.
A very uplifting video! Thank you Jessica, so pleased you found a better doctor
Your story reminds me why I want to be a doctor, to be like your new neurologist. I want to be the doctor that listens to patients and tries to help them. Thank you for being such a lovely person.
Jessica is so pretty,, it's actually and genuinely concerning 😔💋 Id legitimately die if she'd ever kiss my cheek and leave a red lip print. THAT'S ALL I WANT IN LIFE 🥺❤️
I'm so happy you found a good Doctor - honestly shed a few tears. Having a caring, compassionate & knowledgable Doctor that ACTUALLY WANTS TO HELP is so rare and makes a real difference. I am so glad for you!!
I love how you essentially got diagnosed "old person" 😂 that's happened to me so many times... Doctors being like well this is pretty normal... For a 70 year old... I'm 25.
I got chills when you said that there was a plot twist and the doctor was amazing. Bravo!!
So happy for you for getting a good doctor finally! I tried for years to find out why I get my migraines and still don’t know and I think I gave up a few years ago on it. I also am always boiling when I really shouldn’t be and I still don’t know why but one time during a doctors appointment about that they heard a heart murmur and then looked into it and found out I have a heart condition. I also have a blood disorder so yeah. Another one of those people with a lot wrong with them and a lot of things they have no clue why. I’m also on the verge of anemia. Fun.
Wish doctors wouldn’t always dismiss things like extra testing because I thought the heat thing could be a thyroid problem but they said people my age don’t have them...
I went off topic, but I am so happy for you finding a good doctor who listens and is looking at everything together!!!
As a nursing student I cried hearing what that amazing doctor said to you. He really embodies our program’s motto of taking care of the whole person and empathizing with all of their needs. More doctors should really learn to put that mindset into practice.