My Brain Surgery Story | Pituitary Tumor Removal
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- เผยแพร่เมื่อ 25 ธ.ค. 2023
- Hi friends! In this video, I share my experience getting surgery to remove my pituitary tumor! I am so thankful for this journey and so thankful for all of you! If you are on this journey, or any difficult journey, I hope you know you aren't alone and that "this too shall pass"! Here for you and hope you all had a Merry Christmas!
GabbiXx
follow me on IG: / gabbacado
follow me on TikTok: www.tiktok.com/gabbacado
I just came across your video the day before I visit my neurologist after my unexpected surgery to remove my tumor. I had no idea I had a tumor until my sight was affected. Your story gives me a sense of calm about my next steps. Thank you for sharing.
Thank you so much for sharing, I'm so thankful that my story brought you some calm
So great to hear how God helped you through surgery and all the grace He's pouring out in your life! Keep proclaiming His goodness! 🎉❤
Hey Gabbi, my name is Dave and my wife, whose thirty six, was recently diagnosed with a prolactinoma over one centimeter. She is currently on Cabergoline and we are hoping and praying for a good outcome. I just wanted to say thank you for sharing your journey and I'm so glad you're doing well.
Hi Dave! I am so thankful that you found my videos! My hope and prayer is that they can give you some peace and hope. It can be such an overwhelming journey. Here for you and praying for your wife!
Hey Dave. Cabergoline works really well! Hope your wife is feeling good.
Thank you for sharing your experience. A lot of fear comes from the unknown... I'm still scared but a step closer to feeling more confident.
Here for you, friend! It's such a hard journey and all of your emotions and feelings are so valid! One step at a time, it's all going to be oaky. You're not alone!
I feel like I most likely have the tumor. I’m learning now it’s pretty common. I’m only 25 but I look completely different than what I’ve looked like even 4 years ago. It’s scary and confidence is non existent. Thank you for sharing your story
Here for you, friend! You're not alone
Im going through this right now and my surgery is coming up fast so I got all the feels. I’ve been looking for some comfort can’t seem to find it. Thank you for sharing your journey it has helped put some ease.
I totally understand everything that you're going through, friend! I'm so thankful you found this video and that it gave you some ease
Iam so glad that you are doing well
Only the best for you gabbi ❤!❤!❤!❤!❤!❤!❤
Stay awesome gabby!
What lead them to removing it I still have mine had it for two years so many problems w it too and still no talk of surgery even though I meet w a neuro surgeon
So glad to see how far you have come! I love your openness and willingness to share this. How has this affected the eating disorder if at all.
thank you so much, friend! I'm so thankful for you! Thankfully, this has had no effect on my previous eating disorder! In fact, I've been so so thankful the whole time that it hasn't been present in this season because it would have made everything SO much more miserable. So thankful for freedom!
@gabbacado that is so great to hear. I am so inspired that you have overcome so much and continue to thrive!
Just got the news that there is something on my pituitary gland, and I am at the very first starting point. (Don't know what the future tests will show, but this helps me prepare for surgery, if that is needed).
So..I am looking forward to watching this video to see how everything went for you.
(this video is a real gift & you are very easy to listen to, and really explain the things well from a patient's view).
Thank you for taking the time to do this video, and share what you learned.
Wishing you all the best & I really like your little hair growth nubbies.(where they shaved your head for the CT)..Those are the things, that if you see them as cute/interesting..then it makes the journey a little more fun:)
I'm so sorry you're going through this, I know it's so hard at the beginning stages with all the uncertainty. One step at a time, everything will be okay! Here for you, friend! You're not alone!
@@gabbacado THANK YOU:)
I had my surgery April 1st 2024. My worst was what I went through with pulling out the sinus packing. I had headaches, swelling and it took three visits since it got crusty, bloody and more swelling. What kind of packing did they do for you since we do have drainage and the area needs protected? I had to learn and use NeilMed to continually keep it cleaned out and have to do it for the three months even though the 24th, they pulled the rest of it out . They pulled the packing out in increments so-as not to swell it up in there to much so it would not cause scaring or worse yet effect the area of the surgery which could cause blindness and even death. They said to get to emergency immediately if I taste metal or fluid coming out continuously as well as blood. It could be infection or swelling which can somehow cause spinal fluid to leak. That was terrifying.They said I could possibly lose my smelling permanently too which I was not told. I slightly lost taste but my smell is about a third back. I use Tea Tree oil under my nose to make sure no infection starts. As of three weeks in I am barely smelling it. I didn’t take the oxycodone but like you - Tylenol. No nausea thankfully or throat pain. It surely was not easy but being at an University hospital in Cleveland, OH, I can say the young students there kept my mind off of much of it. They were a delight. I had to stay 4 days. (Have an incurable blood clotting issue) Still staying with my family for another day or two because of overall weakness from the recent packing pull. I’m older too, so recoup a little slower but so glad it’s over. Hardest part? The after surgery recoup and although you have to be careful a few restrictions, it’s doable. The surgery was a breeze and they kept me in ICU the whole time. I felt spoiled rotten and their menu rocked. I could eat with no restrictions thankfully. You literally get your life back and back to a balance. I too, am almost there. Congratulations on your own recent recovery. 😊
I just had surgery April 8th ,came home on the 12th it was pretty scary I'm recovering Thank you for sharing 😊
Going thru this battle thanks for sharing 😢 I see surgeon next week
here for you and praying for you, friend! you're not alone
merry christmas 😭😭 thanks for the heart on my comment❣😭
Hey Gabbi
I’m going in for the surgery next week 15th pre and then surgery on the 16th. I’m feeling very emotional and extremely lonely. I’m so scared that I won’t come back from this. I have a lot of forgiveness and healing still to come and I’m afraid that I won’t be able to accomplish it if the surgery does not go well.
Eating and listening to you has made me process the up coming operation more and I’m feeling slightly better.
I want to try to stay calm and relaxed for me and my family. Any tips on things that I can do before my surgery in order for me to relax.
Thank you
Libby ( London, England)
Hi sweet friend! I am so so sorry that I am just seeing this and getting back to you. I am praying that your surgery went well and that you are feeling peace on the other side! All of these feelings and emotions that you are experiencing are completely normal. It's so overwhelming to anticipate this surgery! YOU AREN'T ALONE! Here for you and praying for you! Please update me whenever you can
I remember so well the day before surgery when i was directed to a MRT Scan at the evening, they rolled me in a wheelchair and a woman too had a MRT scan and we both were driven to the room with the scan machine , we spoke only very little and i was rly in a tense state, a feeling weird to explain... + i could actually sleep for 2-3 hours, more likely about 2 hours + in the morning i washed myself intentendly with a cold shower to make myself as fit as possible before the intervention + i rly had to change my planned surgery date to this one i am describing right now - i was already waiting for my surgery for one night in the Hospital but in the morning they decided not to operate because one of my blood "values" was not as it should be and it was critical for this kind of Operation, later on it turned out to be a genetical thing that is super rare in General 1:350.000 or so but in a way that it is absolutely healthy, literally, it was just that rare (in medical terms that numbers are not so high at all ...but still - also my kind of cyst has a rarity of 1 in 500.000 😂😂 literally only about 20 people in my country who have the same kind - still a cyst in the area i got it is much more common 1-1000 or 10000 (i still have the cyst but its produced liquid is now drained out pretty much all of it i assume/pressume...) i live in austria - lower austria and the surgery was in the main Hospital in Vienna (AKH neurology Departement) i am 22 when i had it , in February is my birthday, now i am 23 ((((((((((((((:
(The 🚿 cold shower i also had that morning for my initially planned surgery date - but in that occasion it did not get warmer, i was already mmmjhh well..naked in that shower room and it only was at cold temperature = horror 😳xd on the top i had the impression it only got colder when the shower head was turned on after a short time, so i rly turned it off and on again, several times to get myself washed looll, shall i leave my shampoo and "shower gel" still quite noticable on my body?! well.... ah yes, it was also all the time in the feet washing mode, the water rushed out in quite a hurry, well a quite pressurised steam 😖😆🤪 and it seemed like there was no way to change it to a more humiliate mode😅..the handle also felt like it could only be turned in one direction where it was just stronger🎉...........yes well it cant get better right haha😅😊)
Thank you for sharing your story! I would like to know, if you don’t mind sharing, how big was your tumor, how long did you go before they determined they would operate on it, and where do you have your treatment/surgery done? This is inspiring for many of us that are in limbo with our tumor diagnosis as we wait for the next step to happen. Also, what were some of your signs, health changes prior to treatment and the discovery of the tumor?
And also, did the pituitary gland remain intact or was it removed/damaged during surgery?
Of course! So thankful to be here for you!
My tumor was about 8mm by the time they removed it in October 2023.
I was diagnosed in early September 2022 and my tumor was only 4mm then. I started Cabergoline in October 2022. I had a lot of side effects that I couldn’t live with, so I had to go down to a really low dose. I got my 1 year follow up MRI at the end of August 2023 and saw the tumor had grown. Got an appointment and met with my surgeon on September 8. Scheduled my surgery that day and had surgery on October 17! My pituitary gland was left fully intact and functioning and the tumor is completely gone! I don’t have to be on any meds and have no complications 🤍 I saw Dr. Baskin at Houston Methodist and couldn’t recommend him enough!
I also have had the same experience with my taste.
Waiting to receive phone call to schedule my MRI for potential Pituitary Gland Tumor. Endo feels there's a high chance of one based on symptoms and continued growth over the years. I'm just ready to find out , then get it removed asap.
sending you so much love and prayers! Here for you !
@@gabbacado Follow up- Confirmed tumor. I had a consultation with neurosurgeon this past Tuesday. She wants to schedule surgery in a month. This seems so fast. I'm a little nervous considering A. I have never had surgery before (on anything). and B. It being in such a vulnerable spot (THE BRAIN!). Any words of wisdom or does and don't s would be greatly appreciated.
Hi Gabbi!!! Glory to God in the Highest!!! You are headed!!! I am going for surgery too. Would i be able to talk to you?❤
Hi Gabbi, You are so brave. Can you tell us who your surgeon was? TY, God Bless and Good Luck
Thank you, friend! I saw Dr. Baskin with Houston Methodist. He and his whole team were so incredible!
@@gabbacado Currently I have a tumor on my left adrenal, but I am also having difficulty with brain fog, severe headaches and double vision. In fact today I almost got in an accident because I miss judged to location of a parked car. I do not have a TikTok acc. Can you tell me what your symptoms were in the beginning? I can't thank you enough for sharing your story
I just got the news I have hyperprolactinemia 😢
I'm sure I have a tumor. They're going to confirm on Tuesday
here for you and praying for you, friend! you're not alone and everything is going to be okay
I had brain surgery this january this year (almost year over (: ), last year i felt under constant pressure, it was a cyst and the fluid within needed to be drained out ☀✝ (--> christ symbol)☀🌞
Wow! I am so thankful you are okay now! So thankful to have connected! Sending you so much love and prayers
thank you so much gabbi! stay awesome
just a quick thing, it was not the pressure from the cyst, it was the psychological & mainly mentality pressure basically the whole year before [2022] , because in winter 2021 they detected it bla bla bla :D
Hi if you don’t mind sharing, what made them send you to get an mri? I have basically every symptoms and the blood test they did for my prolactin was 27.6 so they want me to get an mri done. I’m nervous about it because I don’t want another health issue 🥲🥲
What lead them to removing it I still have mine had it for two years so many problems w it too and still no talk of surgery even though I meet w a neuro surgeon
Hi friend! I'm so sorry you're going through this. I tried medication for a year and had awful side effects and my tumor was still growing. This is what ultimately led to the decision of surgery! I would definitely recommend seeking out more opinions if you don't feel peace about where you're at! Here for you!