Living With an Unruptured Brain Aneurysm - My Story
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- เผยแพร่เมื่อ 13 ต.ค. 2013
- On Oct 2, 2013 I was diagnosed with an unruptured brain aneurysm. After conducting tons of research, I found that while there is plenty of information and videos from doctors, there was NO information from patients as to what to expect, best practices, etc. I am starting this blog in the hopes of gaining awareness and helping others during their journey. For more information on brain aneurysm including early signs and diagnosis, please visit The Joe Niekro Foundation: www.joeniekrofoundation.com.
Hi , Iam a 60 years old man , very active at my work and I do walk everyday 15000 steps .i don’t smoke , no alcohol.
One day a had a dizzy 😵💫 and I was trying to to stand up I could not. I just took it easy and relax but after 2 hours I drove my car to the hospital where after checking ,I diagnosed with a two small brain aneurysms, the left side is 4mm, the right side is 3 mm .
Neurobiologist told me not to worry about it right now just he ask me to watch my blood pressure, no alcohol, no cigarettes,and no oily foods.
Iam continuing my life normally, and everything in God hands.🙏🙏🙏
I was 18 when my aneurysm was found in the base of my brain, it was too risky to remove it, so the doctors left it alone. I was one of 200 with this issue. After the symptoms had eased off, and tired of the countless intrusive tests, I stopped and accepted my fate. It was advised to avoid stimulants (alcohol, caffeine, nicotine and anything physically demanding). At 26, I had another emergency, severe headache. By this age, I was emotionally over it. I'm 55 now, retired freelance artist, solo traveler of 3 continents, ride motorcycle, was an avid scuba diver and snowboarder who still loves espresso and Guinness. I've slowed down because of my back, not brain. Once in a while I'll get headaches/symptons which I use as alarms to slow down. I'm not saying I've got the answer, I was careless at times, but I think how you view and live your life is the most crucial of all. As for managing, this has been my focus and swear by it: MEDITATION, EXERCISE,
HEALTHY FOODS (VEGETARIAN), CREATIVITY,
FREEDOM/ADVENTURE, PETS,
and of course LOVE. Just remember, everything has a price, know it's worth before buying.
❤🙏❤️
Hi Melissa. 22 years ago an aneurysm in my brain ruptured. I don't know how long the aneurysm had been unruptured in my brain. Two years before the rupture I would get horrific headaches and my right arm kept getting severe pins and needles and numbness. I put this down to stress and basically ignored these symptoms. I wish I had got them investigated at the beginning as then my aneurysm would not have ruptured. When the doctors coiled the aneurysm and saw the size of it they were quite amazed as it was only 3mm in diameter and at the time I had low blood pressure so there was no way that this aneurysm was suspected of rupturing. They would just have recommended watch and monitor. I was very lucky as I came out of it alive and now live a normal life. I don't have anything with caffeine in any more (except the odd glass of wine with a meal out) . I drink decaffeinated coffee and tea and hardly any alcohol. I suffered a change of personality which is very common to aneurysm ruptured victims but I like the new me better than the old me. I am a lot quieter and kinder. I basically live a normal life now. The doctor didn't expect me to live when the aneursym ruptured - in fact I was in the national newspaper as 'the miracle lady'. They thought at least I would be severely impaired. I was back at work in 3 months. I am a Christian and I believe wholeheartedly that God saved me and I am very grateful for that. So Melissa, that is my story. It happened 22 years ago - have faith and keep strong. If you ever want to contact me please feel free to do so. - Maggie
Hi Melissa, just diagnosed with brain aneurysm. Waiting for a another CT scan with contrast on Monday. Thank you for your blog post. I hope you are recovering and doing well. You have given me more information than any doctors have to date. Very scared and trying to be brave. God bless you and your family.
After many tests I received the confirmation that I had 4 brain aneurysms, my world was crashing down. 2006 via embolization at UCLA I was intervened (coil) one aneurism. Then i suffered consequences of balance, seizures and I even lost my job. I lived with anxiety, panic and a tremendous insecurity of speaking English which is my third language. The pills did not help me, something I didn't want to be here anymore because you felt lost, alone, depressed etc. But I never stopped looking for answers. I changed my diet, I went to therapy, I found a support group and so I live my life with my other 3 aneurysms that are located behind the right eye, but I'm learning to live a life without fears. I thank God for every new day and for my family. Melissa thank you for your video, we have to help one another because we know the sufferings, frustrations and other symptoms of fear etc etc. Blessings ❤️
Li kozlo How are you? Are your aneurysm still in a wait and watch mode?
I also have one aneurysm and had gamma knife surgery in February . I have had six major seizures, the last two days ago. I can't imagine four aneurysms.
what is your initial symptoms
@@astrofrk3rd
Im on aspirn and blood thinner . I also have this. Not sure how to proceed. Maybe coiling
Wow I just came across this. So I lost my mum when I was 10 to a Brain Aneurysm and watched the whole thing happen. Now I've just gone 19 and as older teen it's been affecting me badly. Today I've had a bad day and wanted to find out more about aneurysms because I do not know much about it and want to learn more. Thank you for sharing your story, you're so strong!
I'm suffering frequent bad headaches and think I might go see a doctor to rule out in case it's hereditary.
Thanks Corey. I would be sure to go and get it checked out as there is a 20-30% hereditary factor with brain aneurysms. Best of luck!
Corey, You definitely need to be checked. MRA or CTA at least.
Hey are you still experiencing this? I am having issues I just wanted to compare
Check if you have one pupil bigger than the other. Check your eyes in a place that is not well lit, or at night. One pupil bigger than the other is supposed to mean an aneurysm is present. Do your own fact check too, very important. A enlarged pupil may indicate something else is going on too, so there's that to consider. Talk to your doctor about other things you've noticed about yourself, and never, ever panic if an aneurysm is found. Just be mindful, and go slowly until treated.
@@luciusavenus8715 I had a brain Anoylesma coiling about 3 years ago and so far soo good and am trusting God for full life span. May God comfort all who are going through the anxiety.
I can't imagine how scary this was for you I'm so glad you are doing well and healthy...being misdiagnosed like that is so scary and disheartening and speaks highly to always getting a second opinion. I wish you the best of luck with everything!
Lisa McCullough Thank you! I actually ended up finding out that I'm a survivor of an extremely rare type of aneurysm :). Are you a survivor yourself?
Hello, just watched your video with interest. I was diagnosed with a brain aneursym last year. My neuro didn't want to operate as the risks of the procedure outweighed the risks of rupture, so Ive been living with this nightmare ever since. After several months now of flailing eyesight, permanent vertigo, anxiety, chronic fatigue, migraines and feeling like I'm loosing my mind (and a fair few friends/family....intermittent mood swings and my loss of interest doesn't make me a popular person to be around) the neuro team have agreed to do the coiling procedure. I'm petrified but know it has to be done to improve my quality of life. Here in the UK there not a great deal of emphasis on how serious aneurysms are and no support groups as i can find so finding your blog was inspiring. Might do one myself. Hope your well now and good luck with everything
+Lynne Duckworth I'm so sorry that you've had to go through this but happy that my blog helped! I highly recommend that you join our Facebook group as there are quite a few UK survivor's on there :). facebook.com/groups/aneurysmavm/. Best of luck to you!
I am so glad that it was caught early for you! Because I had a burst, it makes me very glad when people are able to find it early and avoid that. Good advice here.
I am, thank you!
Hi Melissa, I’m a 62 year old survivor of a 33mm unruptured aneurysm. It’s been almost 2 years now since diagnosis and emergency coiling. I’m almost fully recovered. Still deal with Neuro Fatigue and some weight gain. God willing I will be able to pass my 1st class medical so I can get back to work. I’m an Airline pilot. Thanks for your channel if there are any questions I can answer to help others let me know.
Wow, that is a huge unruptured aneurysm! So glad to hear you are OK!
So scary, I think am passing through the same,
It is a long waiting game. My annie was found in June 2013, angiogram in july, failed coiling in August and now surgery in November. I wish you all the best and hope things go smoothly!
I was also soo stressed when i learnt i had one which was big beyound the normal size they normally burst ,i was a nursing student by then, i stoped my classes and resummed 4 months after the opperation.. The hardest was to tell my family since i was far in a foreign land and i couldnt hug them.I hadnt seen them for years . It was a medical emergency and i had to make a decission in 2 days. I prayed, informed my family and told them i love them, said goodbye in case i didnt survive. Its now over 3 years since the operation, am fine and working. The hardest part is when i enter some suppermarkets and all the security alarms go off because of the metal coilings in my brain. Ive learnt to live with the embarassment of explaing i have not stolen anything and showing them my metal ID. i learnt to appreciate every day no matter what comes my way. I go for checkups every six months and soo far soo good. I deeply Believe i will live my full life span as God had planned before i was even born. I advice on regulary medical checkups even when you dont feel unwell. With God, all is possible.
It seems there's lots of support in your country than here in England I 've not had anything like this after or since
I had known of my 2 years ago, and I’m scheduled for July for the coiling, I didn’t know about metal interference, thank you for personal story.
Melissa,
I want to thank you SO MUCH for posting this blog. I've just been told I have a cerebral aneurysm and i'm beside myself. As you had said, at 1st I didn't believe it was happening to me and now my mind is racing. I want to break down and cry but feel I also need to be strong. My husband knows but I have not yet told my children. I want to have my visit with the doctors before I approach anyone. I have been reading up on everything I possibly can to make myself aware of what I may be facing. I've also read that this is hereditary in which my mom had an aneurysm that did rupture. She came away from that in a state of infancy having to learn everything all over again. This makes me very scared but am trying to think on the brighter side, if there is one.
I will try to keep watching incase you have any updates because I think it helps tremendously to know there are people out there in the same position.
Again, thank you for being my light at this disturbing time in my life.
Brenda
I'm so happy that it helped you! I taped and posted the videos to do just that and to also help guide other survivors to resources. We have a huge community of fellow survivors and loved ones where you can ask any questions you might have and read others'. I highly recommend that you join our FB group: facebook.com/groups/aneurysmavm/. Best of luck to you and know that you are NOT alone!
Hi mam..I am vimal from India..I have 2 unruptured anaresum last 4 month watching still no symptoms..pls tell me..wat I do now?
@@tnpsc6129 what you did?
My mother's having unruptured-brain-aneurysm
Thanks bunches Loren!!! You're post and help was my inspiration for doing it!!!
I found my aneurysm in 1995 we watched it at 3mm every three years for 24 years it stayed at 3mm until an MRA in June of 2019 when we found it had grown to 8MM with two nipples projecting from it. In July I had it stinted and coiled. Everything went perfect, I tell people and it’s true I have had hair cuts that hurt worse. I had no pain at all other then the IV’s the operation took about 80 minutes and it was super easy. Mine was completed at Cleveland Clinic.
Did they cut into your head, or did there go through a vein?
They went through the artery in my right arm. It was so easy. I had ask the doctor weeks before the surgery how many people do not make it. He said in all the years he had been doing this he had no failures. That conversation made it much easier for me to go through with it. I have had 26 surgeries in my life.
Most for my eyes and skin cancer so I’m somewhat used to it.
@@shopart1488 I have extreme anxiety, I am nervous I have a unruptered anereursym because my head hurts and I feel fatigued, what did u experience?
@@Alex-ve4ik I had no pain at all before or after the surgery. Have you had it checked out by a neurologist?. If so follow what they tell you or get a second opinion. Keep in mind about 4% of all people world wide have some sort of brain aneurysm not all are fatal. A lot depends on family history.
@@Alex-ve4ik Through my right arm artery. Just like an IV. I was put out didn’t feel a thing.....
Good luck on your journey...your experience has helped a lot...a friend just found out about her unruptured aneurysm...
Thank you Melissa for sharing your Story...!
(very educational and informative) Hope you stay well....!
I so glad to have found this video because your story sounds like mine and to know yes, it’s scary and yes, your not alone
I found out 3 days ago that I have a 3mm fusiform aneurysm. i’ve been terrified. your video is the first thing i’ve read in days that has made me feel like i don’t have to be scared. i’ve cried non stop. shaken with anxiety. i’m terrified. but your video has brought me some peace. so thank you.
I'm so sorry to hear that Cadence but glad that my videos are helping you! Best of luck!
Thank you so much for sharing; this was very helpful. You are wonderful and God is using you to help others. Many blessings to you and yours.
Hi Melissa great video I normally don't reply to any of these but your information I just had to say is very good and your foundation that you recommend has a lot of good information on there I've been diagnosed with three brain aneurysms wish you the best
My dad has an unruptured brain aneurysm in the middle of a Y shape artery. The thing is that his mother died of an aneurysm rupturing at 54, so his 5-year chance of it rupturing goes up around 17-fold. He’s going in for flow diversion surgery next week so hopefully this will resolve the problem
Hello.. how's your father? May i know how big is his aneurysm? Thanks
@@dinogerardoprovido2745 How is your grandfather now?
So am I Mine is like your dad’s. I hope he did well and still is doing well .
Mine started with a sudden double vision called vertical diplopia. Saw 2 eye doctors, did my MRI, Angiogram and seek the opinion of 2 neurosurgeons and 2 other neuroradiologists and decided not to proceed with the recommended non-invasive endovascular procedure inserting a flow diverter. Reason is they all told me differently in their own version and no one expert can actually confirm if it is a brain aneurysm or in fact an infundibulum and they can't assure me doing the endovascular procedure is risk-free or at least low risk. So now living with a supposedly unruptured bulge and keeping myself very healthy and stress free and continue living as normal as possible. Just to share!
Thank you !!! Giving a "real world" perspective ! .....this helps more than you know
It's March 2024 and I'm in Lower Michigan. I was diagnosed about 5 weeks ago with a 7mm basilar tip saccular aneurism with wide neck. After all kinds of scans and tests, it's almost time for neural-intervention (coil procedure.) My surgery is a week from today.
This blog helped me to appreciate the emotional unease that accompanies the diagnosis. I have been waiting over a month for this procedure. I have been very depressed. I feel so unprepared and trusting others is not my strong suit! But the right neurosurgeon is worth the wait, I believe. He was my second opinion. He has done thousands of these exact surgeries, and that matters! Always get a second opinion. The first consult was with a neuro-interventionist who only knew that method and had little to no experience with actual brain surgery. In short, he would have no "plan B" in the operating room. Further, my 'second opinion' neurosurgeon mentioned that the STEM procedure that is only a year old (an FDA approved intervascular procedure very similar to the coil procedure, but quicker and less risky in the OR) is actually starting to show some post-procedural complications not followed in the literature because the procedure is so new. The interventionist was going to proceed with the STEM procedure on me. The second doctor knew, because his Neurology department services the same geographic area as doctor #1, and is the go-to center when lesser nearby centers have operative or post-opeative procedural failures. In short, I dodged a bullet by getting a second opinion. To find the right doctor I reached out to a trusted family practice doctor, who reached out to a neurologist she respected, who provided her the recommendation of the exceptionally qualified neuro-surgeon..who is now MY doctor. Folks, this diagnosis is too serious for just an online search of neurosurgeons. You need to seek GOOD recommendations through reliable channels. A Google search doesn't cut it!!
I wish everyone well with their health, and health care! The answers are out there. Stay the course! Knowledge is the light that chases away fear.
How are you doing now?
Thank you so much for putting this out. I found out about mine yesterday. 😔
Just found this video and it has helped me greatly as I've had no-one to give me the information you have...not even my neurologist.
My unruptured brain aneurysm was diagnosed 6 years ago after having massively painful headaches...I had to argue to get a brain scan.
Previously I had lost my hearing on left side without any medical cause.
I had uncaring medical advisers...even today they are so complacent and arrogant.
I shouldn't have had to be told at hospital without having someone with me.
My neurologist spoke like it was a spot on my face...ridiculous....most frightening news I ever got !
First scan showed a 3.5mm then year later 4.5mm then 6.7mm (2years ago).
My headaches are severe periodically but it seems my GP's are so uncaring...I get no emotional support when headaches come on leaving me wondering if I will survive through it.
Thanks for sharing your thoughts and experiences as they are similar to mine....so I'm not alone ! 🤗👍
Hi Jes, I am sorry to read your experience . Hope your problem solved now xx
Thank you, your post was very helpful.
this is exactly what I am going through right now. The things you have said so far is almost verbatim to what I went through.What I am still going through. I just left the neurosurgeon yesterday. I have to have surgery to clamp the aneurysm. The dizzy and pressure is what sent me to the ER and that is what led to me finding this. It has been 2 weeks since I was diagnosed and I am so scared right now. I was referred to the IU med center I am going to go in for an angiogram soon. They are going to call me to set it up. I am looking forward to watching your next several blogs. This has actually made me feel a little better. It has all been so sudden I was not sure what to ask or what to do. The one thing I have noticed is they don't really give you a lot of information. I to am 38 years old. The surgeon told me that my aneurysm will rupture at some point. He never told me whether it was a berry or sacular or anything. Just that I really needed to have the surgery done and he don't recommend doing coils because it is a little large 8mm and the coils can dislodge and cause a stroke or they may have to be replaced several times. Thank you for posting this blog I am already feeling a little less nervous.
Nichole, I am so happy that it has helped you, which is the very reason why I did these in the first place! Trust me that you are not alone in this! If you have Facebook, we have a very active support group where you can ask questions, read posts, vent, share your story, anything you need to do to help you get through this. Here is a link to the group: facebook.com/groups/aneurysmavm/. I hope you join and keep me posted on how everything goes!
Nichole, I am so glad that this helped you, which is the very reason I did it in the first place! Not sure if you are on Facebook but we have a pretty amazing support group. If you are, I recommend that you join: facebook.com/groups/aneurysmavm/
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@@anitasyrowik7432 I think am experiencing the same, but isn't the surgery costly?
Thanks for the video. You have exceptional verbal skills. Etc. My aneurysm was 4 years after yours. I am male, was 53 at the time. Dizziness sruck first, then the most severe headache, involving the entire head and teeth plus roots and upper jaw occurred. Was alone, incapacitated but after 15-hours it raged and I could only crawl. I thought ischemic attack, found and took aspirin and the pain ended in 6 minutes approx. Managed to get to a scheduled doctors appointment and could barely walk. The doctor said I looked like death and if I had taken the aspirin within 15 minutes, I would have been unharmed. The stroke was definite but the aneurysm was never seen on cat or mri because medicare and my lack of funds stopped diagnosis. And I can walk with crutches. But we have the peace of knowing Salvation. I had no idea what was going on for 15 hours. Severe headache is not on most symptom lists with jaw and teeth pain for stroke but sometimes is now on the symptom list for brain aneurysm. I have permanent tinnitus and weakness. But unlike you, I could not obtain an MRi or CS That's why I have the Peace that you have. After 5 years, I hope you are doing well. I keep aspirin at hand because my probable aneurysm is not likely to burst but will probably clot and a stroke will follow.
Wow! You are a miracle too! I'm doing well. Still just watch it and have it checked every 5 years. I hope you are doing well also.
very informative. proud of u for this xo
Thank you for sharing yr story,hopeyou stay healthy.
The longest study was done in Helsinki on lifetime aneurysm ruptures. 1/3 of all brain aneurysms will rupture in a person’s lifetime- regardless of size.
Thank you, Melissa...
This is pretty terrifying. I'm sorry you have to go through the ordeal of having this lifestyle change. A previously unknown aneurysm in my right hemisphere ruptured when I was 17, and I almost died. I suppose my advice to anyone with an aneurysm would be to get it coiled or fixed with open surgery, radio surgery or gamma knife surgery if possible. Hemorrhagic strokes are the worst.
Well thankfully you survived and are hopefully OK! Yes, it's definitely scary whether you have a rupture or are diagnosed with an unruptured aneurysm. My case ended up working out so I am very thankful. If you ever want a community to share your stories with, we are here for you: facebook.com/groups/aneurysmavm/!
Thank you for sharing your experience. It's been helpful. Bless you.
That's exactly why I did it. Hope you are well!
Thanks for sharing. I live in the DFW metroplex as well. It must have been hard going through this without family. I am not from the area so I get it. Hope all is well. Oh... I am a teacher just like your husband.
9:56 pm This video was so enlightening. I was diagnosed with a brain aneurysm on March 21, 2024 just a few weeks ago. I went from shock, the fear to all day nervousness. I had to draw from my faith in God to help me deal with my diagnosis. I went to the neurosurgeon and he told me that mines was outside of the brain and its 4mm. I asked if it was okay if i exercise and he said intense exercise was fine. From what i had read on the internet i thought peoplevwith aneurysms need to take it easy. He told me, " you will be fine, we will monitor it and see you again in one year." A year seems like a very long time to not know if an aneurysm is get larger or moving.
Thank you for sharing your story.
Thank you for sharing this video, I've been doing research like crazy. Just found out my 4 year old daughter has an unrupturned brain aneurysm. It's been harder for me because she dosnt understand what's going on. I'm gonna checking out the rest of your videos to see what may come in the future. She has an appointment with the neuro surgeon this thursday.
Hi Renae, I'm so sorry that you both are going through this but I'm thankful you found my videos! I can't even imagine how hard it must be for you. Know though that you are NOT alone in this! We have two pretty incredible support groups on Facebook that would be really helpful for you. You can ask questions or simply see what others are posting. Here is one for parents of survivors: facebook.com/groups/ParentsBAAVM/. Our main page is here: facebook.com/groups/aneurysmavm/. Know that even though my case is very unique, science has come a long way and now there are so many ways to treat BA's. Best wishes to you and your daughter!
I have Aneurysm I just have my angiogram last Friday , unfurtunally I'am not have a lot of support , I will love id you keep me inform on you progress , you will be in my prayers and I hope i will be in yours 🙏 my name is Anita, thank you for shering you experience.
I had an aneurysm 8 years ago at the age of 46. Prior to the event, I was experiencing pressure in my head and was unusually tired. I didn't think much of it at the time, I was new to living in Texas, it was in August (really hot- something I don't handle well) and I was doing a lot of yard work/heavy lifting. When the aneurysm burst, it felt like someone shot me in the head. The worst headache you can imagine. I felt very sick, went to the bathroom to throw up and looked at myself in the mirror. I looked like I was dead - absolutely no color in my face. I spent 2 weeks at Zale Lipsey/UT Southwestern being monitored. They performed several MRIs during my stay but never found the source of the bleed, just a lot of blood in my brain. Once I was released, I returned 3 months later for another MRI but found nothing. They told me at that time that the chances of me having another one would be the same as someone who has never had one. So I didn't give it much thought. No restrictions. Just recently I decided as part of my yearly check up I would have another MRI/MRA with contrast done just to be sure that the pressure and occasional discomfort was not anything. The MRI came out fine but the MRA showed an aneurysm that is 1.9 mm on the left side of my brain. I am now seeing a neursurgeon who has ordered a CT scan. He said that MRA's sometimes show false positives. If the aneurysm is confirmed, the location of it is not good. He said that it is where two main arteries meet and if it were to burst it would be life threatening. He told me he highly doubts (1% chance) that it is anything to worry about since he rarely (1%) sees aneurysms in this location. This is not making me very comfortable. I definitely feel like I have pressure in my head. If it is indeed an aneurysm, he said it will need to operated on. I am feeling uneasy since he said it is rare. I don't want to be a guinea pig knowing that 1% of the people have it in this location. Makes me wonder how many surgeries he has done on this particular type. Melissa would love to know who you are seeing since I live in the Dallas area as well. Thank you for this blog. Have been doing my research and was glad to see that there are others I can talk to about their experiences and tips.
@maria michalski Your story looks like mine. , I started vomiting, having the worst headache etc , Then I was taking immediately to the hospital. I had a brain aneurysm surgery (clipping) on my left side... of course I had a CT scan dye injection (contrast) doctors were able to see the aneurysm... I'm trying to go back to my normal life but it will take time. Be careful if you are going to carry heavy things that might affect your aneurysm and have a ruptured
Be strong!
Thank you so much for this video. Recently diagnosed small brain anyeurism. I'm in the terrible waiting game until meet neurosurgeon or get info. I hope you're doing well now?
It’s complete fear you don’t ever get a break from being afraid
Hi Melissa, my name is Lisa and I'd like to thank you for sharing your experiences that you're going through and I am sorry that you're going through this. Unfortunately I am dealing with the same thing. I went to the doctor because of my back hurting and she sent me for x-rays. The x-rays showed that I had an aneurysm in my torso area. After having a CT scan with contrast performed, I had three aneurysms in the torso area and one that needed to have surgery ASAP. I had surgery on the one which was a stent in my renal artery-and the other two we will monitor for any growth. My vascular surgeon sent to me for an MRA to be performed to rule out any brain aneurysms. After an MRA with no contrast, results say I have two brain aneurysms size of 4 mm. One on each side of my brain and unfortunately if I do have surgery they can't do both at the same time from what I've been told. They do one side and then after you're all healed up from that they do the other side. My vascular surgeon referred me to his colleague which is a neurosurgeon. And he wanted to do surgery. I have since gotten a second opinion and he says with them being 4 mm, they normally wait until they're 7 mm until they do surgery as long as there's no bleeds or issues. My question for you, is have you had your angiogram done yet? This new surgeon that I have now has suggested I have an angiogram done and that also scares me to death because the risks that you read online or so scary . One of the comments that you had from a lady, said she had a stroke from the angiogram . Ugh .. So hard to decide what to do ! After having my renal artery aneurysm done which was only suppose to be a 2 hour surgery ended up being a 4 hr surgery and then having to lay still for two hours after that, I still have a lump in the right groin area where they went in with catheter and it has been two months . They have done an ultrasound on it and says it could be a hematoma under the skin or scar tissue . One of my fears is when they have to go in through groin area again , could that break up some of that and cause a blodclot or stroke . It's one of those decisions as to should I or shouldn't I have this procedure done .. Best Wishes and Thoughts and prayers for you ! Lisa
Hi Lisa, sorry for the delay, your comment got marked as spam. I don't know if you ended up having the angiogram but I have had two and I think my nerves were worse than the actual procedure. I filmed both of them and they are available to watch on my vlog: th-cam.com/channels/6ZhoYejNXtQH6zxnAqOtAA.html. Best of luck to you and I would say go get a second opinion if you haven't already because waiting till they get to 7mm is not common practice.
Hi I know your video is 8 years old, but I had an aneurysm burst back in March 22 I nearly died if I'm honest it just came out of the blue anyway after spending 7 weeks in hospital I'm back out now almost back to normal so you can make a full recovery. I hope you have been fixed since making your video but if you haven't it's not the end of the world with the right help you will be OK wish you well from Ireland
Thank you so much for sharing your story! Mine is actually still untreated because it is a rare fusiform aneurysm. I'm so happy to hear that you survived and made a full recovery! :)
This is my life a couple of hours ago: “2.4 mm
aneurysm arising from the ophthalmic segment of the left internal carotid artery.”
Really out here edging your aneurysm.
Me diagnosticaron dos simetricos en cada hemisferio y la neuróloga acertó en que era muy probable estadisticamente encontrar otro en la arteria renal. Sin duda hay mucha ansiedad con todo esto y te deseo que te recuperes muy pronto.
Un abrazo desde Andorra
I had ear pain and eye pain I just got diagnosed with 5mm aneurysm 3 days ago it’s the scariest thing and like a ticking bomb always get checked
Thank you so much this has been so helpfull I am in Ireland
Thanks for sharing Melissa! I too have an unruptured 3.2 mm superior cerebellar annie. This is a berry annie in the posterior circulation. I have had an angiogram (piece of cake) and also a failed coiling,(not so easy) I am currently scheduled for a clipping by another surgeon on 11-4-13. I understand completely how you feel! I could take the watch it approach but the anxiety of it being so close to the brain stem is making me crazy! I hope all goes well for you! Kathy Reinbolt
I have an AVM grade 5, god bless yall in christ jesus amen
I have an un-ruptured aneurysm too. After 13 years of no changes I'm no longer afraid of mine. I do remember the fear in the beginning. I had a stroke while getting my angiogram to evaluate it. I was also diagnosed with a rare form of vasculitis called Takayasu's Arteritis with the same angiogram. I should be on a blood thinner but instead am on aspirin. Mine is being re-evaluated but I don't think I will have it fixed. Unless they give me a better risk vs benefit ratio than in the past.
Wow, I can't imagine watching one for 13 years! I'm glad that you are OK with just watching and not treating. If you are ever interested, I am part of a pretty incredible survivor community on Facebook. You can join here: facebook.com/groups/aneurysmavm/. Take care!
I already belong to the group. 2 of my doctors are wanting me to get it looked at again. So in the near future I'll be having it re evaluated. I look at it like this: Most people don't find them until it ruptures and some people die with them never realizing they have one. As long as it doesn't change it doesn't really bother me much anymore.
Clueless mine was beyond the bursting point had to be oppereted only 2 days after discovery. Three years down the line after the OP am fine. Went back and finished my nursing course was among the best five and ive been working for the last 2 years however i watch my diet.
Caro Wanjiku .
Mine also same unruptured anaresum sir..still no symptoms shown..wat i do sir??
Love you Cuz! *Hugs*
On August 23, 2007 I had a crainiotomy for 3 ruptured brain aneurysms. What sent me for my first test was a syncope spell I had while at the dentist office. My doctor had to list I was having headaches for first brain scan. I never had a headache. Before I was home from testing my doctor called stating I have 7mm aneurysm and go to ER. While at ER they tried transporting me to Hopkings, but i got bumped. I ended up at another local hospital that stated I was young (37) they would not do any testing til Monday. So, I went home and on Monday received call from Hopkins asking if I had an angiogram done yet. Off I went to Hopkins for angiogram where it was detected that I have 3 brain aneurysms. I was referred to neurosurgeon for surgery. I had my aneurysm clipping at Hopkins, but 10 years later I am still having syncope spells. I am very frustrated that neurosurgeon stated that syncope has nothing to do with my aneurysms. I urge anyone going thru this diagnosis to please keep pushing for answers
I completely agree Dawn and I hope that you were able to get it all figured out and your 3 aneurysms treated! I highly encourage you to join the private, online closed support group room where there are thousands of other survivors who you can connect with: facebook.com/groups/aneurysmavm/. Best of luck!
Dawn Hastgs
Thank you for sharing! I am experiencing all of the feelings and emotions that you described. Do you have any updates?
I just want to say that the new procedures are so quick safe I have to be on a blood thinner for 6months I am inspired and will have my procedure done on next Wednesday.
I have it too, I also have heart disease so i have to take aspirin 81mg together with 4 other bp meds and it's unruptured, so the headaches are unbelievable and unbearable. Picture this, my mom lives with me and she has Alzheimer's so that's a double whammy. God bless, be strong. Oh the drs stopped me from working and driving, so there goes my life. 😎
Hi Melissa. My name is Jennifer. First off, I am so glad you did this blog. It was very informative and specific, but I was wondering did you have any weird sensations in your head and numbness in the face area along with a headache?? I have a CT scan scheduled for Monday by my doctor to make sure an aneurysm isn't the cause of my symptoms. I am still nervous but you gave me a little boost of confidence. You seem like such a strong woman.
Hi Jennifer, thank you for the compliment! I didn't have any numbness in the face at all and to be honest, most unruptured aneurysms don't present any types of signs unless they are pressing against a nerve or other types of issues. As far as determining whether or not you have one, I would recommend having a CTA or a MRA rather then the standard CT Scan done. I wish you the very best and hope that you have positive results!
Melissa Chalmers thank you! Now I'm having an MRI instead of CT this afternoon. I'm ready to find out what's going on in there.
Jennifer R Oh good! Please keep me posted! You can find me on Facebook too :)
Hi Melissa.. First of all I'm glad that you are living healthy with this unrupture anuersym. hope you will perfectly fine till long.
recently my dad had diagnosed with two unrupture anuersym. so we all took him to do the clipping procedure. but what had happen n turn out is my dad went to coma stage for almost 28 days... this is because during the operation the doctors said that he developed a new brain stroke due to vasospam of brain vessel.. then slowly he recover back. yet now his still in hospital .. recovering from stroke. . this is the complication of doing the opp. now just thinking of how to make the brain cells to regenerate back n recover from stroke soon.
I had 2 ,I had major surgery on one and watching the second one.
Nurses were baffled by an enlarged pupil in one of my eyes. Later, online at home, The County Mayo Clinic in Ireland states on their aneurysm page that an enlarged pupil is a symptom of a whole, intact aneurysm in the brain. I didn't really try to find many corroborating links. If it's a good indicator, it may be a great tool to detect a rather sneaky medical condition before rupture.
My mother passed away a few months ago from a brain aneurysm. And it is very hard to deal with the fact someone can be taken away from you in a few seconds. I have come across an amazing product that could've potentially saved her life. Wish I could've gotten her on it.. when someone says eat plant based, do it, because it prevents things like clogged arteries, high cholesterol, high blood pressure, stress... all things linked to neurological complications.
I'm so sorry for your loss Alani. We have an online support group for those that have lost a loved one: facebook.com/groups/HonoringTheTaken/. Best of luck to you and if you are able, I would recommend that you get scanned as there is a hereditary component to brain aneurysms.
Melissa Chalmers thanks dear
Alani Roberts Sorry for your loss, dear. I fear I might have an unruptured brain aneurysm myself. Do you mind informing us about some of these products?
what is the product?
Seeking Truth stop ✋ you cannot believe people in the internet! Aneurysm is something serious. That person is talking out of her ass, she shouldn’t be giving advice like that.
Best wishes
Thank you for sharing your story.I have a angiogram tomorrow:( im so scared
Hi Sarah, how did your angio go? Did you get answers? I know I was a nervous wreck before my first angio (I actually filmed it too). You know that we have a support group on Facebook that can help: facebook.com/groups/aneurysmavm/. You can also friend request me as well!
Everything is fine the questionable spot is just the way my brain formed! I just saw this mesg.. how r u?
Oh thank goodness!!! I am well as well, thanks for asking!
My mother pass away one month ago after coiling of M1 segment aneurym she have bleed after operation and bename disable with right side weakness.i am.confused everyday coiling is done properly or if she have a surgery of this segment but i dont know about it
3 years ago wife found me dead on the garage floor of a ruptured aneurysm. Please do something about it don't put your loved ones through finding you dead and hope for the best. I hid it from my wife for 30 years
I'm 18 years old and still have the same brain hemorrhage that I was born with. I struggle with high blood pressure. As I grow, it grows also. I go to see a neurologist in a couple weeks. I'm very nervous about everything going on.
Hi I had a brain aneurysm surgery (clipping) my neurologist recommended me dash diet to be able to control the high blood pressure, also I take medicines for it as well other wise blood pressure can lead to have another aneurysm... I hope my info helps you
Hi may name is Carlos I’m glad I found this information. I also have a ringing sound and have had two strong like staves in my head, also pressure; I went to the doctor and he sent me to get an MRA SCAN. Got it back today from the front entry of the hospital, they just gave me the Disc with the results that pointed out the there was no aneurysm. But I feel the same symptoms that many have expressed on this page. Is there Anything else I should do? Please let me know.
How are you now? Hope you're feeling better.
I hope you are well now
I have two brain aneurysms that I just found I have and tell you what they can cause a headache worse than a migraine
I had my avm rupture in February of this year, received gamma knife radiation in July, then a few weeks later, had another rupture on an aneurysm that grew immediately after radiation, this week I went to get my follow up angiogram and my neurologist found another aneurysm that has not ruptured
You, Ma'am, are a Warrior❤
I had 3 unruptured. But I had 2 clipped in 2009 while clipping one of my broke and I stroked. I struggle and still have one your not alone. I can't write well I am sorry.
Joanna, wow, that is horrible that it happened to you but so happy you are a survivor! Are you on Facebook? If so, I highly recommend joining our support group: facebook.com/groups/aneurysmavm/. You can also see other survivors' stories on our new TH-cam channel: th-cam.com/users/RUChickenJNF
Hi Joanna, sorry for the delay in writing. That really sucks that one of them broke while trying to clip but that's great that you are still here! Not sure if you are on Facebook but we have a really amazing support group for survivors: facebook.com/groups/aneurysmavm/
Doctor AMENDMENT s TOO Healings for all people now and Forever Starting Today on November 10th 2023 Hopefully Hoping for MIRACLE S
@yunutt: how odd, it is my left ear that is bothering me the most. I don't have ringing in the ear but more like a constant pressure. Interesting that your ENT thinks it's due to nerve damage from allergies that was basically what I was told before I went in to get the CT Scan when they found the aneurysm.
@Molly, I definitely do not want to wait but I will have to wait until I have more information on what type it is and how large it is post Angiogram.
Hey I have just been diagnosed and will see a neurosugeon next week. I work out several times a week and could not imagine having to stop doing so. At the ER I was told not to over exert myself like no heavy lifting that I can only do one or two reps with. What is the reason for not being able to workout that your doctor gave? I would assume that a healthy lifesytle would help not hurt. Thanks and hope things are going well for you!
Hi Sweet London! Sorry for the delay in responding, I didn't see your comment until now! The reason they told me not to work out is because until they could diagnose how large it truly was, the location, and the likelihood of it rupturing, they wanted me to stay sedentary. We have a pretty amazing support group on Facebook where you can ask any question. It's comprised of survivors, caretakers, and loved ones. I'm more than happy to answer any additional questions as well :). Here is the link: facebook.com/groups/aneurysmavm/.
I just received results of MRA noting 4 small aneurysms, largest is 2.5mm. I a history of chiari malformation and many symptoms relating to vision changes and pressure around the eyes and head. This time I have clogged head left side behind eye and felt in ear. I am seeing Neuro and ENT to sort thru all this. I was convinced I had a CSF leak but thia newest result of aneurysms has me terrified. My family is downplaying it becauae they are so small but i cannot stop researching. I dont see Neuro until the 14th.
Patty Weeks Hello how are you? What is really the exact size of your aneurysm? Thanks
That's hell! I had mine RUPTURE 10 years ago. My sister died on my birthday from aneurysm.
I SURVIVED BY EXPERIMENTAL SCIENCE USING MRI AND BAROMETRIC TUBE IN CHARLOTTE NEUROLOGY! No surgery entire OCCIPITAL NERVE BLEW! Short term memory loss, BALANCE issues...
My mom had a ruptured anyuerysm, she never got tested for it even though it runs in our family on her side. My ears also give me alot of pressure and I have sinus issues. I've gotten an MRI before and it ruled out the anyuerysm for me but after recent stress related issues and continuous ear pressure id like to get tested again and I'm only 24.
I was diagnosed with an aneurysm about 4 years ago and I recently had a physical because I was going to have surgery done on my eye and in the physical I told the doctor that I had a brain aneurysm and prior to my physical three weeks earlier I had a CAT scan done and it showed that the aneurysm was there and it was at a 4 cm I am kind of scared I am a smoker and a doctor did tell me to stop smoking I'm afraid that if I do stop smoking that's when things will get worse so I went and had my eye surgery but the doctor who gave me the physical the month before called me and wants to set up an appointment to go see a neurologist so I'm now going to go see a neurosurgeon or neurologist because the doctor that did the physical said this is something that I have to keep up with and hearing your story makes me scared even though it hasn't changed and the past 3 years I'm still scared that if I fall and bump my head and whatnot I pray and hope that yours does not grow anymore and thank you for posting this video I really needed to hear this video
You absolutely need to go get it checked out!!! Rest assured though that the chances of it rupturing are very, very small but each case is different. Please ask to have an angiogram done which give you the clearest picture on what you are dealing with. Smoking has been proven to be a cause of brain aneurysms so I would definitely consider at least cutting back. What area do you live in? Depending on where you are, I might be able to recommend a good doctor. I also highly recommend that you join our online support group where there are others that live with brain aneurysms like us: facebook.com/groups/aneurysmavm/. .
why did you get eye surgery.
Hi Melissa, how are you doing now? This week I found out that I have 5*3mm I don't know what does 5 times 3 mean for aneurysm, I am so scared. Do you know anything about this.
I was just told I have a unruptured brain aneurysm on 10/5/2015, and I am scared to death. I am waiting for a appointment now... UGH
+Julie Crawforth I'm so sorry that you are going through this. It is definitely terrifying, especially when you first find out. If you are anything like me, the scariest part was not knowing anything about aneurysms at all (outside of worrying about dying at any moment!). The good news is that you are not alone. Brain aneurysms are actually very common it's just that no one really knows about them. Treatment has come a long way and there are some pretty incredible professionals in neurology today. Where do you live? We have a fantastic online support group on Facebook and are growing local support groups across the nation. I advise joining our online room and let me know what area you live in so I can see if we have a local group as well. Here is a link to the FB page: facebook.com/groups/aneurysmavm/.
Hi. Did that area of your head feel like something was pinching and tightening? Did you ever have sensations like popcorn popping at times? (Ive been having that) thx
CedriclovesAaron There are no actual symptoms of an unruptured brain aneurysm unless they are very large and/or pushing on a nerve. If you are in pain, I recommend going to the doctor and getting checked out.
Melissa Chalmers thx. I'm not in any pain. Is pain a symptom like a big headache? I get these flair ups from time to time and it just gets me out of sorts and confused and a little light headed lasts a day or so. I don't get any headaches. Just weird sensations like I asked if you had.
Hi, Melissa. I haven't yet had a thorough workup to find out my problem. I have all the worse symptoms of an aneurysm, i.e., can't do the slightest critical thinking, work, excitement, no coffee, can't stress, etc. Also, when I'm doing a small minimal task, it will make my head and ear pressure increase to the point I have to lay on the floor immediately and put ice pack on my head. The ice and this anti-anxiety med ( Lorazapam/Ativan) helps tremendously subside the increasing pressure at the moment, then when the medicine wears off the pressure resumes with vengeance This is a constant pressure in the back part of my skull (inside) in the center and base of the skull. My right eye usually feels like popping out when its aggravated by this feeling. I'm usually out of commission for 3 to 4 days in the bed. I'm normally an athletic and busy person. Cannot drive because I start experiencing the above as well as nausea, extreme vertigo. Its also bothersome to ride in a vehicle with the bumps in the road, it agitates this pain that is excruciating. There is much more to my story, bout don't want to get into explaining everything at the moment. To say the least, is that I'm living drastically different from my normal life before this occurred. So far I've gotten absolutely nowhere in getting helped by doctors. A few doctors including a neurosurgeon spend less than 5 minutes with me in a office room. I've documented all this and still beg and plea with these doctors to no avail. Been to the ER several times...nothing but neglect or a referral for headache clinics. I've had several CT's one with contrast, read negative, MRA /contrast (Gladium) and an the 1st MRI was attempted 3 times and it made pressure worse from the vibrations ...it was unbearable to finish. All images were reported negative. I have found a neurosurgeon who believed that it was serious and needed a full workup (a team approach) and a possible CTA. Went to those appts. to no avail. Not taken any other test. I also have had offensive doctors an as well. I'm changed my diet drastically since eating certain foods and any greasy fired foods will increase the pressure.
I'm here to seek some advice, information, or help from you based on your diagnosis journey. Maybe the doctor that diagnosed you last whom seems he or she was very helpful in helping you, that is something I'm not receiving here in Louisiana. It seems you had a crappy experience like I'm having in just trying to find the correct diagnosis as well. My hope is that from reaching out to you that it could possibly lead me to a concerned neurologist/neurosurgeon to get correctly diagnosed.
Hi Bobby, I would definitely get it checked out! I would request to have a MRI/MRA done ASAP to make sure you didn't have a rupture or are bleeding!!!
Sorry for the long comment, but I'm desperate to get immediate help! It may sound crazy, but I can't seem to get one neurologist to take my concerns serious. I have document proof of myself being discharges from one after the other appointments with neurologists as well as early discharging from ER's. I need Help finding a doctor who will seriously do what it takes to find out what I have. I sent you a reply. Thank you Melissa. - Bobby
Bobby Barbetta, I can completely understand your frustration! I've asked my contact at The Joe Niekro Foundation and she recommended that you send your films into the Barrow Institute. Note that because they receive over 300 films a week so it can take up to 2 months for them to view them. Here is their link: www.thebarrow.org/Neurological_Services/2nd_Opinion_Program/index.htm.
Melissa Chalmers
I've just checked the Barrow Institute. It states, "PLEASE NOTE: Diagnostic images and a corresponding radiologist's report are required for you to be eligible for the Barrow Neurosurgical Second Opinion Program. We will only respond to inquiries that contain a brief medical history and MRI or CT images showing the disease or pathology in question."
How will that work since I have a negative MRI/MRA with no disease or pathology in question? I'm still going to call and see if they will still look at all my videos as well to see how serious this really is. I'm also trying to get another neurologist appt here with someone new, but they said it will take 3 weeks and I can't send them my videos to prove my affliction, just have to hope and pray that the Doctor will listen and watch my videos of my veins unnaturally protruding.
Best of luck! Hopefully it isn't an aneurysm!
Surgey in a few weeks. I have an immune system cancer as well...all this year. Now lost use of left foot and numbness in foot to knee with foot drop...all in 1 week. Now testing for herniated disk. 🤦♀️ I'll be lucky to survive this year. Stressful!!
I'm so sorry to hear that, best wishes for everything to work out!
@@melissachalmersJNF tyvvvm!! 🙏❤
@@melissachalmersJNF short update: now have multiple vaccine injuries, so now too high risk for surgery and medical system isn't helping vax injured. I have MCA bi-lobed- saccular(1 aneurysm that's split into 2) Told if it ruptures, I'll die.) Yet, here I am almost a yr later. Terrifying.
I was told I have a brain aneurysm 1 month ago and couldn’t get a appointment for a month. Just waiting and worrying.
I as well am. Living with 3 un ruptured brain anyurisums
Hey I have a question: Do you still exercise? Or is it better to avoid doing strenuous activity?
I do still exercise, yes, but not as vigorously as I used to. Instead of hard runs I now do long walks,
you can buy passion flower tea its help calm you down and keeps blood pressure in check and helps remove nervousness and anxety.
I love Passion flower and take it every day, thank you!
@@melissachalmersJNF yw :)
Hey How are you? I have a few questions. I’ve been having weird headaches for the past 3 months now. I’ve had 2 CT scans without contrast and a MRI without contrast. I was wondering if a regular MRI without contrast will show a brain aneurysm?
Hello, the only way they will know for sure is to have a MRA done, especially if it's small. I would ask to have one done if only to rule it out. Good luck!
CTA
I know this is old but just seeing it i am a 2 time brain anarusum surviver I had my first 1 burst open and my second 1 coiled life is totally different
Hi Jon, yes, it's older, but I keep it up to help others that are going through this same life changing experience. I hope you are doing well.
@@melissachalmersJNF yes I agree with u and im doing ok its a big life charger for sure and to make be alive after 2 of them its hard but im glad to be here
I am a person that has been recovering from a ruptured brain aneurysm then lead to a stroke still can’t properly out of my left eye I could say more but won’t
Michelle Rizzo
i undergo before surgical brain anuerysm last 2010. and that then i stoppef work. til now i have no work. i loss my memory about my work. and til now i have headache..
Hi Karin, that is unfortunate and sadly, a common occurence for individuals who survive a ruptured aneurysm. If you haven't already, I encourage you to join our online support group room for survivors where you can at least interact with others who have gone through the same thing: facebook.com/groups/aneurysmavm/.
I just on August 27 I found out I have one in my brain
Your video was very helpful:). However, in a couple of weeks I am having a MRA and a MRV to be tested for an Aneurysm. I am in my 40s and I have 2 relatives that died from a ruptured Aneurysm or stroke. I have been having trouble with my right ear, lightheartedness, and headaches. My ENT wants me to be tested because of my symptoms and family history. I unfortunately have Interstitial Cystitis and other health problems that cause chronic physical pain and therefore I have to take pain medicine or I am in agony. I am unable to be a vegetarian, like yourself because I have had anemia so bad that I needed I.V. Iron. My question to you is If God forbid, an Aneurysm is found, is the needle that goes from your groin to your brain painful? Is there any pain with the surgery? God Bless you for making this video. It is important for others to realize that young people get health problems too. No one is invincible and it seems like invincibility is expected of younger people. I hope and pray that you are personally doing much better now. I too strongly believe in God and my Boyfriend as well as myself are keeping the faith. My Boyfriend has been good support with love for me. Again, thank you so much for making this video for us all!
That's great that you are getting checked and so important, especially if two of your family members have had them. There is a 20-30% hereditary factor with brain aneurysms; however, that is generally related to first degree aka immediate family. Being a vegetarian doesn't really help with brain aneurysms but it's a good general life practice if you are able to. For the procedure, if you are having an angiogram done to verify a brain aneurysm, you are awake. If you are having the procedure done to treat one through the groin, you are generally put out. I was more nervous that I needed to be having the angiogram performed and actually filmed it: th-cam.com/video/DakEsXBBMd4/w-d-xo.html. Best of luck to you and I hope you receive good news! If you do end up having one, at least you found it prior to rupturing. We have a large online support group and tons of information to help: www.joeniekrofoundation.com.
Current time 1:55 pm my dr says I can take Ibp and have no restrictions . I’m confused my aneurysm is 3.2 mm
Hi I have weird pain on the back right part and front of my head, my ears are also really sensitive, do you think this is an aneurism?
Probably not. Unruptured aneurysms don't usually have any symptoms, though I would defer to your doctor.
You may eat more eggs! Eggs have been shown to reduce risk of brain hemorrhage. They do not increase the risk for ischemia unless you are a diabetic.