Does What Triggered Your ME/CFS Matter? (with Dan Neuffer)

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  • เผยแพร่เมื่อ 8 ก.ย. 2024

ความคิดเห็น • 51

  • @KWilliams22
    @KWilliams22 2 ปีที่แล้ว +15

    Another amazing chat from you both....thank you. I completely agree about viruses not necessarily being the actual cause....that there was likely already a dysfunction there and the virus was the final straw. I think a lot of people believe that they were really healthy before they got sick but as we go through the recovery journey we realise this really wasn't the case 😕

    • @CFSUnravelled1
      @CFSUnravelled1 2 ปีที่แล้ว +1

      Yeah, sometimes there is a period of 'mystery illness' years or even decades earlier.

    • @alexandraalbertz1442
      @alexandraalbertz1442 ปีที่แล้ว

      Keren, how are you doing? Miss you

  • @ljon008
    @ljon008 2 ปีที่แล้ว +7

    I agree that when it comes to initial triggers it is really under one umbrella which is Stress and under three categories which are 1physical stress, 2mental stress and 3various viruses. And the stressors accumulate overtime until it fills up our stress threshold and then the ANS flips because we passed our resiliency limit and in a simple way to say it is that’s how we get CFS.And all the other names we call it like ME and so on. We just need the medical industry to understand this illness so diagnosis comes quicker and take care of our amazing people until full recovery. 🙏🏼

  • @pattyg.4872
    @pattyg.4872 2 ปีที่แล้ว +9

    13 months out from 2 Pfizer jabs I’m still dealing with adverse effects and symptoms that mimic CFS and have found your tips and tricks to be helping me deal with my days. Interesting to learn of the different triggers… our bodies are crazy amazing!

    • @jackiegroden416
      @jackiegroden416 2 ปีที่แล้ว +1

      I’m in the same boat

    • @chrissikadas8269
      @chrissikadas8269 2 ปีที่แล้ว +1

      Same here!

    • @jackiegroden416
      @jackiegroden416 2 ปีที่แล้ว +2

      @@chrissikadas8269 they poisoned us

    • @pattyg.4872
      @pattyg.4872 2 ปีที่แล้ว +2

      I’m sorry to hear that you both are struggling too. I hope you have some support. I’ve been seeing a Functional Med PA and getting some help, still a long ways to go though….

    • @jackiegroden416
      @jackiegroden416 2 ปีที่แล้ว +5

      @@pattyg.4872 I’ve spent a fortune on functional medicine, health coaches etc… no help… I’m finding the best help and know my path to healing is healing the ANS and Limbic system with rewiring my brain and dealing with unresolved trauma…

  • @seffie4363
    @seffie4363 2 ปีที่แล้ว +6

    very reassuring video and perfect length! Thanks Dan and Raelan xx

  • @kathystoner5239
    @kathystoner5239 2 ปีที่แล้ว +6

    Great interview! I love your interviews with Dan!

  • @alyciahall1111
    @alyciahall1111 ปีที่แล้ว +1

    Childhood abuse and hpa axis dysfunction go hand in hand. Sometimes the cause is from a long long time ago that continues to haunt

  • @kimwarburton8490
    @kimwarburton8490 2 ปีที่แล้ว +12

    I hope you keep collaborating together, i gain so much more from both of you when you bounce off of each other :D

    • @RaelanAgle
      @RaelanAgle  2 ปีที่แล้ว +1

      Thank you, Kim! 💓

  • @TheEarthsEyes
    @TheEarthsEyes 2 หลายเดือนก่อน

    I mostly agree, except if part of how you got to this point blocks recovery, you have to remove the blockage as part of the process. For example, if you have heavy metals blocking your metabolic pathways, you actually have to chelate these out of your body for your ANS and mitochondria to be able to heal.

  • @splog100
    @splog100 2 ปีที่แล้ว +1

    Uh oh, I'm unfortunately *more* anxious after watching this, which I know is not what you intended! It's a great video (thank you so much for this and all the other excellent videos) but I am a bit perturbed to hear that concussion is what seems to most stand out to Dan as a possible difficulty in recovering. I have Post Concussion Syndrome and I had no idea that it might be a more difficult "trigger" to tackle than any other. Can Dan recommend anywhere I could find out more info about tackling the concussion part of a CFS situation? I have never found anyone else to discuss it with, or any online forum discussion, etc, yet. Seeing a neurologist has not yielded any real help yet either.

  • @mrsi82
    @mrsi82 2 ปีที่แล้ว

    This is really interesting. I hear you when say "it needs to be resolved" -absolutely seeing my lung health/bpa post-co vid as have to be considered as part of fatigue recovery. But doesn't mean haven't moved further forward using a mix of recovery practices.

  • @a.s.7232
    @a.s.7232 2 ปีที่แล้ว +1

    Thanks so much for this Interview 🌷
    Amazing like all the time and gives me a lot of hope!
    I was triggered by the moderna vaccine. So actually i am fixing that trigger with homeopathy. I dont know if this is also common in the Us. I think its a good start for the healing journey!
    Sending a lot of love, Anika from Berlin 🥰

  • @Star5dg
    @Star5dg 2 ปีที่แล้ว +2

    Dan must be exhausted with all these interviews lol

    • @grahamkeil2253
      @grahamkeil2253 2 ปีที่แล้ว +1

      A man who is learned and genuinely cares!!

  • @f.f.2316
    @f.f.2316 หลายเดือนก่อน

    @dan: did you ever come across someone with unilateral issues with their nervous system?
    I'm having a paresis of the left oculomotorius and nobody can tell me why. No lyme, no tumor, no diabetics or thyroiditis. Also I'm having much more severe fatigue in the left leg and pain in the left leg and my left ear is extremely sensitive to loud noise. It hurts my ear when someone talks too loud or something drops on the floor or anything like that.

  • @martinajavorska1824
    @martinajavorska1824 2 ปีที่แล้ว +1

    im wondering if cfs tricks to recocery can be also applied on co-vid similar issues.. im so tired (14months) and have something like PEM after every small activity like walking for 20minutes...still so scared that im not long hauler but it turned into CFS

  • @synnevashaustveit9825
    @synnevashaustveit9825 2 ปีที่แล้ว +2

    You did not mention age as a factor… and how is menopausing contribute for us who have to go through this? Thank you for keeping up moral 😁🙋🏼‍♀️

    • @CFSUnravelled1
      @CFSUnravelled1 2 ปีที่แล้ว +3

      I agree that menopause can be a contributing factor, and stabilising symptoms from this is certainly helpful during recovery. I can say that I have come across people from all ages and lengths of illness that have recovered.

  • @grahamkeil2253
    @grahamkeil2253 2 ปีที่แล้ว +1

    Thanks so much. If I could kiss you I would!love the care that Raelan shows. She palpably shrinks and is genuinely saddened when ref to wishing all people would recover.. on a deep level all we want is for someone to care!
    Thanks for Successfully caring!!

    • @RaelanAgle
      @RaelanAgle  2 ปีที่แล้ว

      Thank you, as always, Graham! 💓

  • @sushilaananda3365
    @sushilaananda3365 2 ปีที่แล้ว +2

    Great discussion. Here is my question for Dan (I am working with ANS Rewire): I have atrial fibrillation which my electrophysiologist believes was caused by dysautonomia. The antiarrythmic medication that I have taken for years recently caused a severe cardiac crisis; I am now trialing another antiarrythmic. I find that antiarrythmic increase fatigue for me, yet electrophysiologists feel that once atrial fibrillation has been established (even though medically controlled) it cannot be cured. Have you ever come across a person with Afib caused by autonomic dysfunction whose Afib resolved when their ANS was restored to balanced functioning?

    • @CFSUnravelled1
      @CFSUnravelled1 2 ปีที่แล้ว +1

      Many of these conditions cannot be 'cured' - CFS cannot be 'cured' - CRPS cannot be 'cured' - and yet, we see people recover and get well again. I have been told by people that they had atrial fibrillation and then they recovered, but I cannot verify how accurate this was as atrial fibrillation and standard palpitations sometimes get confused. I myself had palpitations that fit the description of atrial fibrillation as they were erratic, but this was not medically diagnosed, so I can't say for certain. Palpitations are quite common in the CFS Fibro community, but I am not sure how many of them are atrial fibrillation or not.

    • @sushilaananda3365
      @sushilaananda3365 2 ปีที่แล้ว

      @@CFSUnravelled1 Thanks, Dan. Yes, palpitations are very common and can look and feel like Afib but for most ME/CFS patients, it is not Afib which can only be diagnosed by an ECG. More usually it is premature atrial or ventricular contractions which are distressing but not harmful. So this seems to be a question without any real answer at the moment.

  • @anthrax565
    @anthrax565 2 ปีที่แล้ว

    Dan are the intro lessons available on TH-cam? Annie

  • @slowlivingmom
    @slowlivingmom 2 ปีที่แล้ว +1

    Hi guys! Just one question i got from listening. Do you think lime should be treated with antibiotics or is it better to not take antibiotics ?

    • @TheEarthsEyes
      @TheEarthsEyes 2 หลายเดือนก่อน

      Imho what worked for me was 6 weeks of antibiotics WITH lactoferrin (you can get it at eg. Whole foods, disrupts biofilm so the antibiotics can penetrate the dormant/cystic state of Lyme). Also helped my gut as much as possible - took probiotics and ate really clean to reseed the microbiome well.

  • @BelovedShift
    @BelovedShift 2 ปีที่แล้ว +1

    Omg!!! I love your doggie or cat?

  • @melissapowell5592
    @melissapowell5592 2 ปีที่แล้ว +2

    I watched Dan's 4 intro videos years ago when I first became ill. However, I used other strategies to get "better" only to crash again and again. I purchased DNRS and have tried it, but I have a difficult time accessing good memories at this time. I get really frustrated and end up quitting the rounds because of it. No, I should not give up, but that's another story. Dan, may I ask how your program is similar or different to DNRS? You mentioned using other techniques to address the brain also. Are those things like polyvagal exercises or somatic exercises? I am set on doing a brain retraining program but am unsure if I should try another one or just suck it up and get good at DNRS. Thanks so much for your time and response.

    • @Marykguise
      @Marykguise 2 ปีที่แล้ว

      Great question Melissa! I’d love to know the answer to this too!!

    • @sheridanbeverley9173
      @sheridanbeverley9173 2 ปีที่แล้ว

      I did ANS Rewire 5 years ago and the main rewire technique did not involve visualisation. Dan's rewire technique is much quicker in duration compared to DNRS. Once you have it down pat you can do it really quickly.

    • @kempoutzzz
      @kempoutzzz 2 ปีที่แล้ว

      @@sheridanbeverley9173 wow awesome! thanks for sharing Sheridan. Did you recover using ANS rewire?

    • @sheridanbeverley9173
      @sheridanbeverley9173 2 ปีที่แล้ว

      @@kempoutzzz I didn't but it did help a bit 🙂

  • @johnny_kim441
    @johnny_kim441 2 ปีที่แล้ว

    i recently seen the video raelan interview who recovered by using curable app . but icant find it now anyone have seen?

    • @RaelanAgle
      @RaelanAgle  2 ปีที่แล้ว

      Should be this one th-cam.com/video/as7I55hY29k/w-d-xo.html

  • @sjoerdvermeijden
    @sjoerdvermeijden 2 ปีที่แล้ว

    Are cognitive behavioral therapy and brain retraining similar?

    • @CFSUnravelled1
      @CFSUnravelled1 2 ปีที่แล้ว +2

      Brain retraining can take many forms and can be defined differently. I suppose CBT could be brain-training if applied in a certain way.

  • @Jane-pg8jv
    @Jane-pg8jv 2 ปีที่แล้ว +1

    ❤️🙏❤️