Be Persistent and Insistent is great advice, but often times they start thinking patients are just Hypochondriac's if their tests that they run keep showing up Negative all the time, rather the keep looking further they prescribe Anti Anxiety or Anti Depressant medications based on Assumptions rather then admit they need to look at the most " Not so obvious " causes , Gas Lighting Patients is costing them their lives , Doctor's!!!
My husband's tumor weighed 8kg when removed... liposarcoma not diagnosed in time so it grew and grew. Still fighting against this disease today, scared to death and really frustrated that doctors couldn't diagnosed him before.
For me it took 11 (!) months from my first visit to my doctor because of pain in my hip until I eventually was diagnosed - then I had a 14 (!) cm liposarcoma tumor visually seen on my stomach. When it was removed a few months later it was 19 (!) cm. The knowledge about (soft tissue) sarcomas is far too small and sadly it is not used enought money on research - I guess because it is not enough profits for the pharmalogical companies. We need more public fundings and state initiated knowledge and reseach!
My father passed on June 22nd, 2024 due to leiomyosarcoma of spermatic cord origin that spread to his lungs and killed him. It took a year and half for this quick recurrence to spread into his lymphatic system and into his lungs causing his life. I pray one day this illness gets a cure before it takes away more precious lives. ❤✨️ ❤
@No-qwewe I'm so sorry to hear that about your sister. I pray for her to have comfort, love, and feel little to no pain. It was heart-rending to watch my father become 100% dependent on oxygen. You and your family are in my thoughts and prayers 🙏 ❤️ ✨️ 💛.
For me it took 15 years to find my abdomen tumor from when I first went in for foot and leg pain. Thank you so much for raising awareness. I just shared my story on my channel yesterday.
15 years???? Wait... but did it metastasized or not? I feel really angry when I hear stories about people either not being diagnosed properly or not at all. I know doctors are only human but I wish they stop blaming everything on anxiety and just do something.
I pray that you are healed from the crown of your head to the sole of your feet in the mighty and matchless name of Jesus Christ of NAZARETH. The name above ALL names. AMEN.
I was lucky. My sarcoma (myxoid /round cell liposarcoma,) was diagnosed as sarcoma with just an initial ct scan for a large lump in my right hip. Biopsy diagnosed the type. It's a sneaky sob. Proper diagnosis is crucial!!!
Hy J, I have myxoidsarcoma in my right hip to, I just discovered January 2024, is 70mm , I have to do 25 sessions of radiotherapy and then surgery to removed … I’m 35 years old, I just need some one to tell me I will go through this 😢!!! All the best to you
I had an atypical lipotomous tumour in my thigh. I’d had it for about seventeen years before it was discovered and excised. Fortunately, these ALS do not metastasise.
Yes they show up on funny places and are ''the forgotten cancer'' because nobody pays them attention. The odds of sarcomas appear is 0,1%. They are the leg cancer as well. Sarcomas happen in arms and legs.
CLOROX go get it checked out!! Ask your doctor to rule out sarcoma. My husband was recently diagnosed with synovial sarcoma on his foot and the treatment of choice is surgery. They will amputate all of my husband's toes on his left foot and part of his foot. This particular disease likes to come back about 5 years after surgery.
@@cynthiaguzman1593 I'm so sorry but how did it it start? Can you tell me ? I have weird or random pains i don't know if is my rheumatoid arthritis or something else hopefully is only the arthritis I want to get informed so I don't make it something worse than it is. I hope I don't mean to be a bother. P.S If that horrible experience with your husband already passed and I am only reminding you of it it's fine i just want to know. If you can't answer right now it can wait.
@@gladysolvera6566 My husband developed a painless lump on his left foot and it began to grow. He ignored it for a couple of years sadly. In 2018 his left foot was amputated. It took almost a year for the wound to heal. It's been a painful Journey but I'm grateful that God spared his life and he's still here.
I have a good size lump on or near mid left rib cage. It's covid though and Dr's won't look at you. I've been waiting months for a throat xray due to my dysphagia, because of covid-19 everything is on back ordered, waot list, ect. If I tell my Dr about this, I'll be waiting months and months for a scan.
I was told by GP to wait once covid-19 had gone he will examine me but they are multiplying.. now on both ribcages, worried but if he won't help with one lump then multiple has no chance. I wish you well.
@@BPb123 You are most welcome. Thanks so much for your advice, I will call them today and ask for 2nd GP. I am happy to read you finally getting your scan. Heartfelt best wishes.
I have a painful one in what sounds like same area as yours and I csnsee it’s Nigerian now. Sometimes like now there’s also a purple bruise on out as ide of it. Is this normal?
I have an Abnormal left T4 Rib, had urgent CT scan, and they said mine wasnt cancer, however have now been referred to the Urgent Sarcoma Cancer Unit under the 2 WW, so worried i have this cancer now, cos it is so rare! Although the CT shows nothing, clearly they dont belive the CT report othertwsie my referral would have been rejected! Hope you got yours sorted!!
Sou do Brasil , tudo começou porque apareceu um nódulo na minha mama birrads 3 , então comecei a passar em uma mastologista , mas demorei um ano pra ser encaminhada a está mastologista , e eu já tinha sentido uma bolinha abaixo da minha axila , essa bolinha cresceu , indolor , não tinha vermelhidão ,mas eu sinto dores horríveis neste braço e somente neste braço , então a mastologista pediu um ultrassom , nesta ultrassom foi dito que era uma linfonodomegalia axilar , então quando já estava com 2,6 cm ela resolveu tirar , mas tive uma surpresa na cirurgia quando ela abriu disse que não tinha linfonodomegalia e sim uma massa esquisita aderida ao meu músculo, agora suspeita de sarcoma , vou pega o resultado da patologia só dia 05/04/22 , e tem mais uma coisa eu acabei me confirmando com a dor indo ai PS tomar Tramal ,porque recebi o diagnóstico de fibromialgia!
My wife just died April 14th 2023 of Epithelioid Sarcoma. Her birthday is today and I missing her so much. Sarcoma is no joke. God bless you all.
So sorry ❤
God bless you where ever you are in this planet ❤
So sad. May God comfort you.
So sorry for your loss😢
Be Persistent and Insistent is great advice, but often times they start thinking patients are just Hypochondriac's if their tests that they run keep showing up Negative all the time, rather the keep looking further they prescribe Anti Anxiety or Anti Depressant medications based on Assumptions rather then admit they need to look at the most " Not so obvious " causes , Gas Lighting Patients is costing them their lives , Doctor's!!!
Oh by the 6th Doctor. That is sad it takes our Doctors this long. But all too common it seems.
Thank you, have my appointment this week to check lump on inner thigh
My husband's tumor weighed 8kg when removed... liposarcoma not diagnosed in time so it grew and grew. Still fighting against this disease today, scared to death and really frustrated that doctors couldn't diagnosed him before.
How are now
For me it took 11 (!) months from my first visit to my doctor because of pain in my hip until I eventually was diagnosed - then I had a 14 (!) cm liposarcoma tumor visually seen on my stomach. When it was removed a few months later it was 19 (!) cm. The knowledge about (soft tissue) sarcomas is far too small and sadly it is not used enought money on research - I guess because it is not enough profits for the pharmalogical companies. We need more public fundings and state initiated knowledge and reseach!
Can some one explain uterine carcinosarcoma what is this.and for treatments and how long can patients survive.thanks
My father passed on June 22nd, 2024 due to leiomyosarcoma of spermatic cord origin that spread to his lungs and killed him. It took a year and half for this quick recurrence to spread into his lymphatic system and into his lungs causing his life. I pray one day this illness gets a cure before it takes away more precious lives. ❤✨️ ❤
My sister is 7 years old it saperade to her lungs im saad very very sad
@No-qwewe I'm so sorry to hear that about your sister. I pray for her to have comfort, love, and feel little to no pain. It was heart-rending to watch my father become 100% dependent on oxygen. You and your family are in my thoughts and prayers 🙏 ❤️ ✨️ 💛.
For me it took 15 years to find my abdomen tumor from when I first went in for foot and leg pain. Thank you so much for raising awareness. I just shared my story on my channel yesterday.
15 years???? Wait... but did it metastasized or not? I feel really angry when I hear stories about people either not being diagnosed properly or not at all. I know doctors are only human but I wish they stop blaming everything on anxiety and just do something.
I pray that you are healed from the crown of your head to the sole of your feet in the mighty and matchless name of Jesus Christ of NAZARETH. The name above ALL names. AMEN.
I was lucky. My sarcoma (myxoid /round cell liposarcoma,) was diagnosed as sarcoma with just an initial ct scan for a large lump in my right hip. Biopsy diagnosed the type. It's a sneaky sob. Proper diagnosis is crucial!!!
How are you
Hy J, I have myxoidsarcoma in my right hip to, I just discovered January 2024, is 70mm , I have to do 25 sessions of radiotherapy and then surgery to removed … I’m 35 years old, I just need some one to tell me I will go through this 😢!!! All the best to you
@@dragosmaxim8050 Hope you are doing well battling Sarcoma!!
Wish they would have mentioned what it felt like
th-cam.com/video/tkjn-EF2CV0/w-d-xo.html
It can feel like nothing or be painful in different ways that's why they can't say but did say it can have pain or no pain.
I had an atypical lipotomous tumour in my thigh. I’d had it for about seventeen years before it was discovered and excised. Fortunately, these ALS do not metastasise.
Yes they show up on funny places and are ''the forgotten cancer'' because nobody pays them attention. The odds of sarcomas appear is 0,1%. They are the leg cancer as well. Sarcomas happen in arms and legs.
What are the best initial tests to get done to determine what the rib lumps are?
I have a lump in my wrist but I’ve been told it’s gragarion cyst but now I have a lump on my hip… so. I’m freaking out.
Did you go check it out?
Thought I had it turns out I have two muscles that look like a lump next to my knee on the bottom. But they are on both legs so its fine
My dr says my lump is a fat deposit. My fear is he is wrong
What is early? I have a tumor awaiting biopsy results
Sounds to me that none of the 20+ doctors each of these patients had to see “caught it early”…
Thank you .you are all amazing
well shite not sure what it is a lump appeared 2 3 days after pain in my inner thigh
CLOROX go get it checked out!! Ask your doctor to rule out sarcoma. My husband was recently diagnosed with synovial sarcoma on his foot and the treatment of choice is surgery. They will amputate all of my husband's toes on his left foot and part of his foot. This particular disease likes to come back about 5 years after surgery.
@@cynthiaguzman1593 I'm so sorry but how did it it start? Can you tell me ? I have weird or random pains i don't know if is my rheumatoid arthritis or something else hopefully is only the arthritis I want to get informed so I don't make it something worse than it is. I hope I don't mean to be a bother.
P.S If that horrible experience with your husband already passed and I am only reminding you of it it's fine i just want to know. If you can't answer right now it can wait.
@@gladysolvera6566
My husband developed a painless lump on his left foot and it began to grow. He ignored it for a couple of years sadly.
In 2018 his left foot was amputated. It took almost a year for the wound to heal. It's been a painful Journey but I'm grateful that God spared his life and he's still here.
I have a good size lump on or near mid left rib cage. It's covid though and Dr's won't look at you. I've been waiting months for a throat xray due to my dysphagia, because of covid-19 everything is on back ordered, waot list, ect. If I tell my Dr about this, I'll be waiting months and months for a scan.
I was told by GP to wait once covid-19 had gone he will examine me but they are multiplying.. now on both ribcages, worried but if he won't help with one lump then multiple has no chance. I wish you well.
@@pammipayne3334 get another dr, keep trying. Im ok, im finally getting an ultrasound next month. I hope you're ok as well, thank you
@@BPb123 You are most welcome. Thanks so much for your advice, I will call them today and ask for 2nd GP. I am happy to read you finally getting your scan. Heartfelt best wishes.
I have a painful one in what sounds like same area as yours and I csnsee it’s Nigerian now. Sometimes like now there’s also a purple bruise on out as ide of it. Is this normal?
I have an Abnormal left T4 Rib, had urgent CT scan, and they said mine wasnt cancer, however have now been referred to the Urgent Sarcoma Cancer Unit under the 2 WW, so worried i have this cancer now, cos it is so rare! Although the CT shows nothing, clearly they dont belive the CT report othertwsie my referral would have been rejected! Hope you got yours sorted!!
The important information is at the end of the video! 🙄
Sou do Brasil , tudo começou porque apareceu um nódulo na minha mama birrads 3 , então comecei a passar em uma mastologista , mas demorei um ano pra ser encaminhada a está mastologista , e eu já tinha sentido uma bolinha abaixo da minha axila , essa bolinha cresceu , indolor , não tinha vermelhidão ,mas eu sinto dores horríveis neste braço e somente neste braço , então a mastologista pediu um ultrassom , nesta ultrassom foi dito que era uma linfonodomegalia axilar , então quando já estava com 2,6 cm ela resolveu tirar , mas tive uma surpresa na cirurgia quando ela abriu disse que não tinha linfonodomegalia e sim uma massa esquisita aderida ao meu músculo, agora suspeita de sarcoma , vou pega o resultado da patologia só dia 05/04/22 , e tem mais uma coisa eu acabei me confirmando com a dor indo ai PS tomar Tramal ,porque recebi o diagnóstico de fibromialgia!
Espero que vc esteja bem
Don’t write on a chalkboard!!!
Omg I was gonna switch it off listening to that part