A Beginner's Guide to Managing Disability & Economizing Energy [CC]

(this is not medical advice, more like... what I wish I could've told my younger self)
Sources & Resources (further autism resources below!):
"I'm Not A Warrior" - • I'm not a warrior [CC]
Chris McCarrell's TikTok - www.tiktok.com...
Request a video idea - forms.gle/TW5H...
Request a media review - forms.gle/rji1...
------------------
Follow me on...
Instagram - / disabled.autistic.lesbian
Tiktok - / disabledautisticlesbian
The Web - www.disabledau...
Facebook - / sydney-zarlengo-110498...
Spotify - open.spotify.c...
Bandcamp - sydneyzarlengo...
If you want to support me financially - www.paypal.com...
Check out my work! - www.disabledau...
------------------
Autism Resources:
Ultimate resource guide - www.disabledau...
How to support an autistic person - www.disabledau...
Help! I think I’m autistic - www.disabledau...
Unmasking/How to Start Over - www.disabledau...
------------------
My Music:
Fearlessly Different (Single) - ditto.fm/fearl...
Bold (EP) - • Bold full
Rewrite History (Album) - ditto.fm/rewri...
Alive (Single) - li.sten.to/alive
Start Over (Album) - li.sten.to/sta...
The Confused Linguist (Album) - li.sten.to/the...
Check out my #ActuallyAutistic playlist made of entirely autistic artists!
open.spotify.c...
------------------
Wow! You scrolled to the bottom! Thanks for reading this far & also for being here! Glad to have ya :)

[@maiaruby8768]

Hearing people talk about Disability I'n this Context is so necessary.
Thank you for all that you do.
I found your channel today and have been watching multiple videos and really enjoying them.

[@yeasr7781]

Thank you so much. Your video showed up on my feed at a time when I really needed it - being physically ill, burnt out, and needing to get a lot of stuff done, with overdue assignments and life responsibilities. And I was in a place of despair asking for some kind of guidance in how I could organise and live my life because things as they are is not sustainable.
So thank you so much for this, and frankly all your videos that I had been binging for the last 6 months. I learned a lot about myself and my disabilities and how to live with them.
I can't recommend your channel enough

[@utuelias]

About that motivation thing:
[cw: dissociation stuff (but in a positive sense)]
It honestly feels like an ultimate brain hack that after realising my dissociation goes so deep my identity's fragmented, 'I' have started to get much better at caring and doing nice things for 'me' because actually it's not just a singular me but _us_ that I (whatever 'I' means at a given time) take care of.
There's also been a wildly new level of gratitude coming along with that.
Lesson of the story: As much as you possibly can, work _with_ yourself.

[@barditheweird]

I am bawling. Thank you so much 😭😭😭😭😭😭😭😭😭
This past few weeks my mindset has been slowly shifting from "what is life anymore" to hopeful resilience. This video couldn't have been made at a better time
I will probably be rewatching it a lot

[@deirenne]

Okay, does every disabled person use Alarmy?
You're at least forth disabled TH-camr I've heard recommending Alarmy, I use it myself [having to scan bar codes on my meds bottles really makes you take them daily on time, because otherwise your phone is unusable and annoying and if you already grabbed them to scan them, taking meds is just automatic] and I recommend it to every chronically ill person I know. Taking meds on time, actually getting out of the bed in the morning*, eaching regularl and many more, is just easier when you can't procrastinate it nor forget about it. And it also has a mood tracer in which you record how well you slept and then you can look back and analyse what makes your sleep worse and what improves it, very helpful.
*protip: set a bar code of something in your bathroom that you alway have, like shampoo or a toothpaste, or even just a printed code you stick on the walls, so each morning you'll have to get to the bathroom to turn the alarm off, which means no more lying in bed for hours

[@integer_main]

00:32 - Simply a disabled human being
00:58 - Only do it cause have to survive. If I can change - anybody can change.
01:25 - List of life difficulty settings: Auti ADHD PTSD+memory_loss POTS
01:47 - Don't feel (now) that disabilities impact daily life due to careful organizing
02:20 - Step 1: Managing disability by accepting It
03:04 - acceptance is a process of reflection and unpacking your condition
03:21 - fact that disabled mind/body will gonna do whatever they're going to do
03:42 - if I don't (try to) take care of myself - I'm not going to be able to do joyful things or find new things that will bring joy
04:14 - starting to notice condition flare-ups (sensory/cognitive overload)
05:08 - journaling helps to clear the brain, grounding cooking instead of yelling
06:00 - not the answer for everyone (interoception introspection are difficult)
06:13 - try to find some peace between yourself and (your) disabilities
06:39 - it's hard, "I'm not a warrior": th-cam.com/video/PmEZDPQiUAA/w-d-xo.html
07:08 - lifesaving moment of stopping the search of a cure that didn't exist and starting changing the way of life to lose the need to worry about any cure
07:44 - It didn't work this way, but I bet there are other ways that don't involve bruteforce to reach the destination
08:19 - Economizing energy (+routine)
08:35 - it's about using the same amount of energy more wisely
08:54 - doing everything in one go "If not you - who? If not now - when?"
12:37 - waking up and going to bed at the exact same time
15:38 - Organization: journaling (information/mood/health/spendings)
17:24 - to-do-listing (week scale)
19:28 - dealing with daily slugs
20:24 - accessibility in traveling (less anxiety = faster)
21:16 - creating new habits is hard and exhausting but worth it
23:39 - Motivation:
23:47 - Chris McCarrell's TikTok: www.tiktok.com/@chrismzcarrell/video/7148556697466834218
24:16 - pressure, novelty, passion/interest, competition
24:35 - Sydney's way to do things (by helping others)
26:36 - putting harmful joyful things away
27:20 - it is OK to set boundaries (to open new possibilities)
28:13 - realizing what genuinely matters to current "you"
29:23 - feel the grieve for what you can't do can't be anymore

[@silenus3381]

My way of avoiding burn-out is not getting out of my bed until my skull starts to make bone-shifting noises out of hunger and thirst

[@yeasr7781]

Amen 😂

[@jwhardwick]

Great video! Thanks ~

[@sovyonokpasha]

thank you so much! ❤

[@edjo487]

One word-inspirational

[@TimpanistMoth_AyKayEll]

This is exactly the video I needed right now. Thank you.

[@তুহিন_জানা]

29:15 is too relatable 😅

[@Val-ud9fn]

While I like the content of this video, I hate the politics of it. Fousing on what individual disabled people can do to survive rather than focusing on the broader socioeconomic structures and how they affect the disabled experience. The life of a disabled person living under a welfare state/social democracy is not the same as the life of a disabled person who lives in a place where the healthcare system could be summarized as "e*****cs in practice". As a person who belongs in the latter group, I am a lot more interested in discussing the role of ableism within capitalism and the state than I am about "tips and tricks to survive disability". And even though sharing knowledge and skills that are helpful is a good and necessary thing, doing it while divorcing it from the inherently political nature of our existence ultimately serves to erase the role of larger structures in favor of an individualistic and meritocratic view of reality; "how YOU can be successful despite being disabled", rather than "what WE as a society can do to make disabled people's lives better".
TL;DR: Neoliberalism is bad

[@TofuNotForU]

I found this video very helpful. Clearly the title is "a guide to managing disability" not "what others need to change". I want to know what I can do NOW to help myself. Its not helpful to rant about society and how they need to change etc. YES, maybe they do need to be more accommodating. But helping oneself is the beginning of living with more ease in this world as a disabled person. I'm really grateful to have someone to listen to to help better myself and understand myself.