My wife died last November 28, our life as we know it was turned upside down she had lupus and viral encephalitis. Its hard cause my wife died in front of me. She died after 8days in the hospital. Please pray for those people who are going to this ordeal. Words could not describe how painful it is to lose someone. Now i have to raise my daughter age 7 alone.
jun chongko I’m praying for you brother I’m from Puerto Rico and 2 years ago I suffered from encephalitis I was a 14 year old with a 5% life chance thanks to God I survived we are here for you are not alone
I have had auto immune encephalitis since April. I’m still recovering now and hoping that it won’t leave any permanent damage. I still have memory problems but it’s so much better than it was in the beginning. I’m lucky to have lots of support and all this medical knowledge delivered to me for free!
Thank you so much for watching and for sharing some of your story with us, Lotti. I am so sorry to hear of your autoimmune encephalitis diagnosis this April. Please don't hesitate to reach out to us at support@encephalitis.info, or call us on +44(0)1653699599 for some support.We are here for you - you are not alone.
@@noelgarcia4520 Hi Noel, I would suggest you contact our support team - support@encephalitis.info - and give them some more information about your niece and her recovery. They may have some more information about recovery which can help. Best wishes to you and your niece
My son caught encephilites in october 2017 he was almost 4 years old .he caught it from having H1N1A .he was in a coma 4 about a month on a breathing machine .he lost the ability to walk,talk,swallow and do anything on his own.after waking up from the coma thankfully he was able to breath alone and off the oxygen machine.he is now using a feeding tube g-tube ..is able to swollow abit .he is taking physio and occtupational therapy .he is recovering slowly thankfully
Thank you for sharing your experiences with us, Nawal. Our support team are always here if you need us - email support@encephalitis.info, or call +44(0)1653699599.
I got encephalitis this year around June, given the impact covid as understandably had on the NHS and its services I am hugely thankful for the Encephalitis Society both for supporting me and helping me to educate others, thank you so much!!
I thank GOD that i survived this deadly sickness in '98 when i was in LA, Calif. In 1999 after studying, working, and living in the USA for 16yrs., i decided to go bck to my home land- Philippines. Now, i'm 67yrs old and still taking anti seizure meds. What i had gotten is medically termed as ' Viral Herpes Encephalitis' - infection or inflammation of the brain. How i had gotten it is still unclear to me at present.
I had encaphelitis as a 7 year old. (More and more sure as a result of a vaccination!!) Was in hospital for a week and recovered. But now...50 years later... life is becoming more and more a struggle. Dead tired! And so many more health issues! And needing to fight for recognazion by doctors etc. I had to give up my job! Sold my house! Having a relationship is an enormous struggle! Wishing all you the very best! I was lucky to survive... as far as you can call it lucky...
We are so sorry to hear of your encephalitis at 7 years old, Karen. Our support team are here for you - please reach out to support@encephalitis.info for support, information and advice.
Yo soy Superviviente de Encefalitis hace 3 años. Al estar en coma tengo una lesión cerebral que me afecta vista (fotofobia inmensa) , oído y en un futuro la Memoria. Me mantengo positiva y con calidad de vida. Logre seguir conduciendo. Lo que intento no pensar esk soy Esp. de Alzheimer es mi pasión haberlo estudiado y el futuro puede depararme algo insidioso o no. Miro al frente y a vivir el día a día sin dejar de SONREIR como sea. =))
Gracias por mirar y por compartir parte de tu historia con nosotros, Ángeles. Lamentamos mucho tu encefalitis de hace 3 años y los efectos que has vivido desde entonces. Nuestro equipo de apoyo está aquí para ti siempre que tengas una pregunta, puedes llamarnos al +44(0)1653699599, o enviar un correo electrónico a support@encephalitis.info (tenemos un miembro del equipo que habla español). Sigue sonriendo :)
I had Encephalitis back in 2020 - age 21. I got taken by ambulance to the hospital and it wasn't long before I had a Tonic-clonic seizure. That stopped me driving for 1 year. Loosing my licence stopped me from going out of my small town to see friends. Where DVLA would not pick up the phone, It was 20 months later where I got my licence back. I've lost contact with most of my friends now which makes me want to keep going out to meet new people and explore more alone. I had a job age 15 to look after disabled people 4 weeks of the year and by the time I had turned 20 I got myself a job Rolls Royce, Chichester on the rework section. It's now been over 2 years and I have not made it back to Rolls Royce. I'm not sure if I will manage to get the Knowledge back to return. Last month I met up with a teacher from school who also had Encephalitis many years ago and talking about it made us feel so much more stable knowing that we're not the only ones. One day I would love to meet up with more people, who has also had Encephalitis, to have fun and have more events which we will never forget.
I caught it in september last year and still going through it now it's a horrendous illness were people look ar you and think your normal But on the inside your weighted down so heavy and can hardly walk plus your memory is shot 😮😢 It's a horrible crippling disease that can infect or inflame your brain 😢😢 And can take months to get better if your lucky ?? Which I am I'm still here So I truely feel for anyone who gets this to stay strong and positive even though it's hard
Hi Tina, have you reached out to our support team? They can supply you with info if you need it and we can also put you in touch with others who are recovering from encephalitis. Email support@encephalitis.info if that is something you may be interested in! ♥
I have had this auto immune encephalitis since January 2021. I’m still recovering now and working on my short term memory. It started out with some crazy headaches. Luckily I went to a hospital who had a doctor who knew about it so I could be diagnosed quickly and get treatment. I’m in Canada and I’m grateful for the help I received. #canada #kerrywallen
Ik kan geen Engels schrijven maar ik woon in Rotterdam Nederland ik ben 48 jaar maar, ik heb ook al van mijn 1 jaar encefalitis mijn linkerkant de fijne motoriek is weg en heb moeite met concentreren. Ik heb van mijn 1 jaar tot 18 jaar therapie gehad de meeste mensen om me heen van instantie 's denken gelijk dat je ook verstandelijk beperkt ben omdat je een hersenziekte heb gehad en houden je dom ik vind dat zo onterecht weten sommige mensen en instantie's wel wat de ziekte inhoud ook omdat het heel weinig er van horen. Je hoort wel veel over hersenontsteking maar hersenontsteking hoor je bijna nooit dat wou ik even kwijt groetjes Annemarie Heus uit Rotterdam Feyenoord Tuindorp Vreewijk Holland
Dank je voor het kijken, en voor je reactie waarin je wat van je ervaringen deelt, Annemarie. Je bent niet alleen - we zijn er voor je. Als je ooit geïnteresseerd bent om in contact te komen met andere mensen met ervaringen van encefalitis, ben je misschien geïnteresseerd in ons verbindingsschema: www.encephalitis.info/connection-scheme
@@encephalitisinternationalBedankt voor mijn dochter van 12 ligt Sophia Kinderziekenhuis. Na 1 week zijn alle uitslagen nog niet binnen. We waren vakantie in Kenia ziek geworden en voor alle symptomen ben ik echter overtuigd dat zij leidt van encephatilis
Measles encephalitis almost killed me at age 6 going on 7. Paralysis and coma. When I awoke from the coma, I could talk but not walk. I taught myself how to walk again even though I was told I would not ever walk again. In those days, there was no vaccine and no rehab. 1958.
Thank you for sharing some of your story with us Barbara, we are so sorry to hear of your measles encephalitis in 1958. We are here for you, if ever you have a question or need any support please don't hesitate to reach out to support@encephalitis.info
My 7-year-old daughter was diagnosed with ANTI-NMDA Receptor encephalitis 45 days ago. My daughter was treated with ivig and plasmapheresis. She was given 4 doses of rituxsimub, but she still hasn't recovered, why is she recovering so slowly.
Hi Mustafa, thanks for your comment. Would you like to contact our support team at support@encephalitis.info or +44(0)1653 699599 and we will see what information we can share with you. Best wishes, the Encephalitis Society
We are so sorry to hear of your rare encephalitis in the 6th grade, Jayme. We are here for you - if ever you need any support please don't hesitate to reach out to us at support@encephalitis.info, or call us on +44(0)1653699599. You are not alone.
I had encephalitis at 14 an it is really hard an I had the bad bit of it an we didn't not even now about it before an I have bran damage that cantals my anger. It really not nice
Thank you for sharing some of your story with us, and I am so sorry to hear of your encephalitis at 14 and after-effects since. We are here for you, Sara P. Please don't hesitate to reach out to us at support@encephalitis.info, or call us on +(0)441653699599 any time you need some support.
My son is 1 years old,, he has enchephalitis from ICU,, please give my information and knowledge,, how my son be fully recover from that disease. I am from Bangladesh..
We are so sorry to hear of your son's encephalitis, Tushar. You are not alone - we are here for you. Please reach out to our support team with any questions you have at support@encephalitis.info. They will be happy to help however they can.
This is the British pronunciation of encephalitis, Dave. The word encephalitis comes from the Greek "enkephalos" meaning "brain" and "itis" meaning inflammation. Here in the UK we pronounce the word according to it's Greek origin. You can listen to the difference between the UK and US pronunciations here: dictionary.cambridge.org/pronunciation/english/encephalitis
![[UNCUT] The Loyal Pin ปิ่นภักดิ์ EP.4 (4/4)](http://i.ytimg.com/vi/d3l5rxl5CVo/mqdefault.jpg)
My wife died last November 28, our life as we know it was turned upside down she had lupus and viral encephalitis. Its hard cause my wife died in front of me. She died after 8days in the hospital. Please pray for those people who are going to this ordeal. Words could not describe how painful it is to lose someone. Now i have to raise my daughter age 7 alone.
We are so sorry for your loss. We are here if you need us.
@@encephalitisinternational thank you.
jun chongko I’m praying for you brother I’m from Puerto Rico and 2 years ago I suffered from encephalitis I was a 14 year old with a 5% life chance thanks to God I survived we are here for you are not alone
Thank you so much for sharing
I really do feel sorry for you and I send you my condolences.
I have had auto immune encephalitis since April. I’m still recovering now and hoping that it won’t leave any permanent damage. I still have memory problems but it’s so much better than it was in the beginning. I’m lucky to have lots of support and all this medical knowledge delivered to me for free!
Thank you so much for watching and for sharing some of your story with us, Lotti. I am so sorry to hear of your autoimmune encephalitis diagnosis this April. Please don't hesitate to reach out to us at support@encephalitis.info, or call us on +44(0)1653699599 for some support.We are here for you - you are not alone.
I pray your recovery continues he’s in a powerful and smooth way.
@@encephalitisinternational -i ask...what do you think my niece is in the normal after 2-3 years,thanks for answering from manila-philippines🇵🇭
@@noelgarcia4520 Hi Noel, I would suggest you contact our support team - support@encephalitis.info - and give them some more information about your niece and her recovery. They may have some more information about recovery which can help. Best wishes to you and your niece
@@encephalitisinternational -how i do...?
I am a survivor too. I survived autoimmune encephalitis.
Thanks so much for your comment - if you need any support please do get in touch with our team on support@encephalitis.info.
@@encephalitisinternational You know me already. Thanks !
That's remarkable Toya. Hope you are getting all the right help you need! 🙂
I am as well
My son caught encephilites in october 2017 he was almost 4 years old .he caught it from having H1N1A .he was in a coma 4 about a month on a breathing machine .he lost the ability to walk,talk,swallow and do anything on his own.after waking up from the coma thankfully he was able to breath alone and off the oxygen machine.he is now using a feeding tube g-tube ..is able to swollow abit .he is taking physio and occtupational therapy .he is recovering slowly thankfully
Thank you for sharing your experiences with us, Nawal. Our support team are always here if you need us - email support@encephalitis.info, or call +44(0)1653699599.
I am sending prayers your way for a powerful and speedy recovery.
I got encephalitis this year around June, given the impact covid as understandably had on the NHS and its services I am hugely thankful for the Encephalitis Society both for supporting me and helping me to educate others, thank you so much!!
Wow In November 17 I’ll be 7 years I survived encephalitis I’m truely blessed 🙏🏽💪🏽
I thank GOD that i survived this deadly sickness in '98 when i was in LA, Calif.
In 1999 after studying, working, and living in the USA for 16yrs., i decided to go bck to my home land- Philippines.
Now, i'm 67yrs old and still taking anti seizure meds.
What i had gotten is medically termed as ' Viral Herpes Encephalitis' - infection or inflammation of the brain.
How i had gotten it is still unclear to me at present.
I had encaphelitis as a 7 year old. (More and more sure as a result of a vaccination!!) Was in hospital for a week and recovered. But now...50 years later... life is becoming more and more a struggle. Dead tired! And so many more health issues! And needing to fight for recognazion by doctors etc. I had to give up my job! Sold my house! Having a relationship is an enormous struggle!
Wishing all you the very best! I was lucky to survive... as far as you can call it lucky...
We are so sorry to hear of your encephalitis at 7 years old, Karen. Our support team are here for you - please reach out to support@encephalitis.info for support, information and advice.
im a survivor
God bless you 🙏🙏🙏
Here if you need us.
@@encephalitisinternational I think I may have encephalitis but don't want too sound crazy, what do I do?
@@horselover7216 Hi, we would recommend speaking to your family doctor/GP initially and talking to them about your concerns.
@@encephalitisinternational my mum is today
Yo soy Superviviente de Encefalitis hace 3 años. Al estar en coma tengo una lesión cerebral que me afecta vista (fotofobia inmensa) , oído y en un futuro la Memoria. Me mantengo positiva y con calidad de vida. Logre seguir conduciendo. Lo que intento no pensar esk soy Esp. de Alzheimer es mi pasión haberlo estudiado y el futuro puede depararme algo insidioso o no. Miro al frente y a vivir el día a día sin dejar de SONREIR como sea. =))
Hola disculpa ke le pregunte cuales fueron sus síntomas?
Gracias por mirar y por compartir parte de tu historia con nosotros, Ángeles. Lamentamos mucho tu encefalitis de hace 3 años y los efectos que has vivido desde entonces. Nuestro equipo de apoyo está aquí para ti siempre que tengas una pregunta, puedes llamarnos al +44(0)1653699599, o enviar un correo electrónico a support@encephalitis.info (tenemos un miembro del equipo que habla español). Sigue sonriendo :)
I was diagnosed when I was two years old and I’m still living with it every day!
People don’t recover from this fully?
I send you my condolences .
Thank you Paula.
@@encephalitisinternational you are welcome. I really do sympathise with you.
I had Encephalitis back in 2020 - age 21. I got taken by ambulance to the hospital and it wasn't long before I had a Tonic-clonic seizure. That stopped me driving for 1 year. Loosing my licence stopped me from going out of my small town to see friends. Where DVLA would not pick up the phone, It was 20 months later where I got my licence back. I've lost contact with most of my friends now which makes me want to keep going out to meet new people and explore more alone.
I had a job age 15 to look after disabled people 4 weeks of the year and by the time I had turned 20 I got myself a job Rolls Royce, Chichester on the rework section. It's now been over 2 years and I have not made it back to Rolls Royce. I'm not sure if I will manage to get the Knowledge back to return.
Last month I met up with a teacher from school who also had Encephalitis many years ago and talking about it made us feel so much more stable knowing that we're not the only ones. One day I would love to meet up with more people, who has also had Encephalitis, to have fun and have more events which we will never forget.
I caught it in september last year and still going through it now it's a horrendous illness were people look ar you and think your normal
But on the inside your weighted down so heavy and can hardly walk plus your memory is shot 😮😢
It's a horrible crippling disease that can infect or inflame your brain 😢😢
And can take months to get better if your lucky ??
Which I am I'm still here
So I truely feel for anyone who gets this to stay strong and positive even though it's hard
Hi Tina, have you reached out to our support team? They can supply you with info if you need it and we can also put you in touch with others who are recovering from encephalitis. Email support@encephalitis.info if that is something you may be interested in! ♥
I have had this auto immune encephalitis since January 2021. I’m still recovering now and working on my short term memory. It started out with some crazy headaches. Luckily I went to a hospital who had a doctor who knew about it so I could be diagnosed quickly and get treatment. I’m in Canada and I’m grateful for the help I received. #canada #kerrywallen
I had encephalitis as a kid.. it effects you the rest of your life. I have scaring on my brain and it developed into epilepsy
Ik kan geen Engels schrijven maar ik woon in Rotterdam Nederland ik ben 48 jaar maar, ik heb ook al van mijn 1 jaar encefalitis mijn linkerkant de fijne motoriek is weg en heb moeite met concentreren. Ik heb van mijn 1 jaar tot 18 jaar therapie gehad de meeste mensen om me heen van instantie 's denken gelijk dat je ook verstandelijk beperkt ben omdat je een hersenziekte heb gehad en houden je dom ik vind dat zo onterecht weten sommige mensen en instantie's wel wat de ziekte inhoud ook omdat het heel weinig er van horen. Je hoort wel veel over hersenontsteking maar hersenontsteking hoor je bijna nooit dat wou ik even kwijt groetjes Annemarie Heus uit Rotterdam Feyenoord Tuindorp Vreewijk Holland
Dank je voor het kijken, en voor je reactie waarin je wat van je ervaringen deelt, Annemarie. Je bent niet alleen - we zijn er voor je. Als je ooit geïnteresseerd bent om in contact te komen met andere mensen met ervaringen van encefalitis, ben je misschien geïnteresseerd in ons verbindingsschema: www.encephalitis.info/connection-scheme
@@encephalitisinternationalBedankt voor mijn dochter van 12 ligt Sophia Kinderziekenhuis. Na 1 week zijn alle uitslagen nog niet binnen. We waren vakantie in Kenia ziek geworden en voor alle symptomen ben ik echter overtuigd dat zij leidt van encephatilis
Measles encephalitis almost killed me at age 6 going on 7. Paralysis and coma. When I awoke from the coma, I could talk but not walk. I taught myself how to walk again even though I was told I would not ever walk again. In those days, there was no vaccine and no rehab. 1958.
Thank you for sharing some of your story with us Barbara, we are so sorry to hear of your measles encephalitis in 1958. We are here for you, if ever you have a question or need any support please don't hesitate to reach out to support@encephalitis.info
@@encephalitisinternational Thank you! I found you all online and have joined. You provide an excellent support service.I’m so grateful.
My 7-year-old daughter was diagnosed with ANTI-NMDA Receptor encephalitis 45 days ago. My daughter was treated with ivig and plasmapheresis. She was given 4 doses of rituxsimub, but she still hasn't recovered, why is she recovering so slowly.
Hi Mustafa, thanks for your comment. Would you like to contact our support team at support@encephalitis.info or +44(0)1653 699599 and we will see what information we can share with you. Best wishes, the Encephalitis Society
in 6 th grade I had a very rare type of encephalitis I was in the hospital for 7 weeks not knowing if I was going to make it
We are so sorry to hear of your rare encephalitis in the 6th grade, Jayme. We are here for you - if ever you need any support please don't hesitate to reach out to us at support@encephalitis.info, or call us on +44(0)1653699599. You are not alone.
hello guys,my niece is survivor for viral encephalitis in 1year & 9months😭😭😭
I had encephalitis at 14 an it is really hard an I had the bad bit of it an we didn't not even now about it before an I have bran damage that cantals my anger. It really not nice
Thank you for sharing some of your story with us, and I am so sorry to hear of your encephalitis at 14 and after-effects since. We are here for you, Sara P. Please don't hesitate to reach out to us at support@encephalitis.info, or call us on +(0)441653699599 any time you need some support.
My son is 1 years old,, he has enchephalitis from ICU,, please give my information and knowledge,, how my son be fully recover from that disease. I am from Bangladesh..
We are so sorry to hear of your son's encephalitis, Tushar. You are not alone - we are here for you. Please reach out to our support team with any questions you have at support@encephalitis.info. They will be happy to help however they can.
Thought that was Jason Kidd on the thumbnail
Mine came from a flu
Hi, please do get in touch if you would like to access any support.
why are they pronouncing it weird with a 'K' sound?
This is the British pronunciation of encephalitis, Dave. The word encephalitis comes from the Greek "enkephalos" meaning "brain" and "itis" meaning inflammation. Here in the UK we pronounce the word according to it's Greek origin. You can listen to the difference between the UK and US pronunciations here: dictionary.cambridge.org/pronunciation/english/encephalitis