I have pudendal neuralgia I live in the state of Indiana it's incredibly difficult to find a doctor that can help, I am currently in physical therapy and it has helped some. I have been in debilitating pain for a year and I have no idea where to go to from here
Me too. Try and find a doctor that does nerve abalsions. I have found one but have not been able to schedule yet due to another dr ablating the wrong nerve. It's the most excruciating pain I have ever been in and doctors just don't understand.
I went without a diagnosis for 6 years. Finally diagnosed in 2017. I was belittles by many doctors because it’s not a commonly known diagnosis. So it has to be in me head. It wasn’t. We finally got ONE specialist/surgeon from Brazil, as Canada had no one before 2017. If you read his reviews, which I wish I had, you will see he is a horrific doctor, a bully and the surgery he did goes through the stomach. He made it so much worse and I ended up as in patient rehab to learn to work again. I tried everything. I now have it on both sides and further nerve damage. The pain is so bad I have given up, I’m leaving my 24, 12, 19 year old children through MAID. In Canada it has been made possible to have medical assistance in dying. I have tried everything except other doctors because I can’t afford to have treatment outside of Canada. 45 years old and my life is over because of PNE
I have pudendal neuralgia I live in the state of Indiana it's incredibly difficult to find a doctor that can help, I am currently in physical therapy and it has helped some. I have been in debilitating pain for a year and I have no idea where to go to from here
Me too. Try and find a doctor that does nerve abalsions. I have found one but have not been able to schedule yet due to another dr ablating the wrong nerve. It's the most excruciating pain I have ever been in and doctors just don't understand.
I am looking for someone to help treat my pudendal nerve pain in England. Preferably near Oxford. If anyone knows of one please let me know.
I have had surgery done by Dr. Hibner. I highly recommend seeing him for Pudendal Nerve pain!!
did u had pudendal nerve entrapment?
how r u now?
is there any chance that the nerve could get re entrapped?
I went without a diagnosis for 6 years. Finally diagnosed in 2017. I was belittles by many doctors because it’s not a commonly known diagnosis. So it has to be in me head.
It wasn’t. We finally got ONE specialist/surgeon from Brazil, as Canada had no one before 2017. If you read his reviews, which I wish I had, you will see he is a horrific doctor, a bully and the surgery he did goes through the stomach. He made it so much worse and I ended up as in patient rehab to learn to work again. I tried everything. I now have it on both sides and further nerve damage.
The pain is so bad I have given up, I’m leaving my 24, 12, 19 year old children through MAID. In Canada it has been made possible to have medical assistance in dying.
I have tried everything except other doctors because I can’t afford to have treatment outside of Canada. 45 years old and my life is over because of PNE
Have you reached out to Dr. Tim Tollestrup? He may be able to help you.
Omg😢 did you saw Dr Hibner?
Wish Hibner took insurance!!!