🏥 Admitted to the Hospital for a Feeding Tube 👊 (5/30/17)
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- เผยแพร่เมื่อ 30 ก.ย. 2024
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Judd needs an air mattress. With your room originally being a double, it'd fit too. Good luck, Jacquie. I'm praying all goes smoothly for you
Good luck with your feeding tube and I hope it helps you feel better! I want you to know you've inspired me to train services dogs and I recently signed up with my local trainers, who train PTSD dogs for veterans, to start training dogs. I was inspired by Harlow being so amazing and saving your life! I was so surprised that a dog could be trained that way!
Clayre Barkema ok
@@mikehealey7458 Hello sweetie
I just recently found your page. You have been a great help to my 80-year-old mother who just had to have all of her intestines removed, everything. She had a port put in yesterday and does not know anything about it. I played her your video all about your port and she is so much more confident now that she will be able to learn how to take care of it herself. You are providing a great service to those who do not understand some of these medical things that are going on with them. I hope you start feeling better soon.
Kristen Toney how do her body absorbs food? what should I google?
Idellle she's likely on TPN if she no longer has her intestines
She is on TPN and she cannot absorb foods at all. She eats and it sits in her stomach for a little while then goes out her stoma into a bag.
I've been TPN dependent going on 4 years now due to complete digestive tract paralysis caused by EDS and other stuff so I have a Hickman central line if you or her have any questions once so ever feel free to ask me on here or on my Instagram: ohtheplaceswewillroll
Wishing y'all all the best!! 💖💪🏻🌼
@@Idellle Hello
I'm unsure if you've ever seen Christina Doherty on TH-cam but she has EDS as well as POTS , MALS , Gastroparesis and MCAS and she has a permanent GJ tube which she has been loving. If it's something you'd be interested in watching she has her experience with it on her channel. I understand that everyone is different and what works for one can be bad for another but she has had a good experience for her. Hope everything that goes well! I know this isn't what anyone wanted to have to do but I'm happy that you have an option that may help you. Best of luck with everything. Love you guys!
Rachel Carson I think hers is just a G tube due to her difficulties swallowing.
Oh word. Well it should still be helpful anyways lol
Seriously Jaquie, you are SO smart!! I know you're confronted with medical terms almost every day due to your chronic illnesses, but even though you learn new things every day, you seem to pick up on them so quickly. the understanding you have for what's going on medically is amazing!
so glad you will finally be getting release with that feeding tube. i just hope that vomiting cycle will stop when you get your tube, because i can barely imagine how hard that dry heaving must be....
I really hope this new feeding tube works for you and makes you feel better! You truly deserve it :)
love y'all. hope this stay makes you stronger and tougher than ever before!
I just wanted to let you know that I am thinking of you all and please take care and i will be praying for you. Thankyou very much for the video's they are really helping my family to understand what it's like to have chronic illness cause before they just kept saying that I am making it up & I did it yesterday why can't I do it today but your video's have really helped them understand a bit more. Please take care and i will be praying for you. Lot's of love from Kelli xxxxx
Judd is amazing. How does he stay so positive when he sees you sick? I wouldn't be able to.
hope everything goes ok. praying a lot for you, Judd and Harlow.
I hope you would be able to vlog everyday like u usually do. I'll see Judd on Friday morning. I'll pray everything is stable by Friday.
Wakako Tsujita Military dudes have a way of coping. my boyfriend is a disabled combat veteran, nothing evokes a negative reaction out of my guy hahaha.
It's really hard if you are crying and your mom can't do anything it's breaks her down. It's sad. Me and my dad are sick so it's hard for her
I don't know how to judd does it . My friend has Gorlin's syndrome and I often find it hard to stay positive with what she goes through.
because she's sick all the time. he somehow puts up with it. I'm glad it isn't ruining his mood.
@@Mollydollyyyy Hello sweetie
Yay for the TPN. I’m surprised that hasn’t been presented as an option before, but glad you’re getting it now.
This seems like a good hospital with good ideas, good resources, and good protocols. Fingers crossed for you. 🤞🏻
I seriously love how organized your channel and videos are! Hang in there!
Hoping you get the j tube. I'm thinking you might just throw up an NJ. Best of luck :) Judd is awesome!
I agree . I know Mary from The Frey Life threw hers up .
Chronically Vlogging exactly, that's what made me think of it :)
Chronically Vlogging. hello my name os gwen. i also. have gp and cancer.iam on promethizne and. iv diliadid
Chronically Vlogging. i. am in Columbus ohio i have cancer on iam on pain meds pn a daily r u..??😭😪😪😪😪😪😪and i 💘 harlow..please say a prayer for me thank u sweetie as i do for u.god bless u..btw i hope ur dad is ok
Hi Gwen! I hope you're doing well right now. That must be a really tough battle, but I am sure you're strong enough to beat it!
Our family was praying for you yesterday and will continue! Take care and rest up
I hope today is better than yesterday. It looks like you're in good hands. Continued prayers for you.
"Feel like a walking corpse" I actually felt that when you said it. that is a horrible, but very accurate feeling. I get that feeling probably 4-6 days per week, always before and after sleep. my family (daughter 12, son 5, partner) make me feel like It's my fault I feel this way. Full disclosure, though, I've stopped Dr appts. I just stay in the house and suffer, so I guess I get it. Jacqui, I'm pulling for you and am getting inspired to (one more time) see another set of dr's to try to ease my invisible disability (s). thank you!!!
Alexis Molina You need to go see your doctor you fool so he or she will know what to do for you and stop guilt tripping yourself it's not good for anyone.
Sounds like u need to ditch the partner if s/he isn't helpful and makes u feel like your faking it. PPL can only treat you like that if you allow it. Teach the kids about whats wrong with you and ask them how they would feel if they were sick and someone treated them like that. They'll get the point. Oh...and the 5 y/o learns it from watching his sister & your partner. Do u really want your son to grow up not believing in you? To treat the female in his life like your partner treats you? Oh honey...I'll pray for you. No one should have to put up with that.
I'm really impressed that you even wanted to vlog all this and the process of getting a feeding tube. I think you're one of the most dedicated youtubers I watch
RIP Jaquie. You were my inspiration. My happiness. My life.
I just wanna throw all my love and happy energy over to you through the screen. I wish you the best of luck and a quick and easy recovery!
Hello To Everyone
I'm so relieved you are in the hospital and getting the care you need! Good luck for the next few days I know it will be hard without your boys but I'm so happy you are getting good care xx
Her boyfriend is goals
so sad its that tube she wanted so bad to help with her stomach troubles that killed her. Rest in peace Jaq
I've had contrast and it makes me feel like I pee myself too! Good luck with your surgery! 💙💜
I love how needy Harlow gets when Jaquie is in the hospital.
i'm so glad that you are on the right track to getting nutrition! I hope you are feeling a bit better today! I don't want to overstep, but one thing that I would highly recommend is talking with your doctors through all of the pros and cons of J vs GJ. of course you and your doctors know your body best but when i got my GJ placed it was very helpful that the doctor talked with us about the J vs GJ because I would really have regretted not being able to vent the G portion it is so helpful with gastroparesis. I hope you figure out the plan for what is going to work best for your body and start the road to feeling better!
Your channel gives me a sense of comfort, I've had two NG tubes and two NJ tubes put in, all within two months, so knowing that you understand makes me feel so much more normal. The dry heaving and nausea are all things that I dealt with before and it was so severe at the time, so you go girl and know that me and many others are rooting for you!
Any ideas why they *didn't* start you on TPN when your symptoms started? A banana bag is great, but doesn't offer the calories/fuel that your body needs... just curious...
I'm new and I already subscribed also no hate but why do you wear that mask on ur face? Edit: I just saw the bit where she got to the room where she can take her mask of I heard something about a safe environment
I love you
The j tube seems to be working for Mary Frey so fingers crossed 🤞 for you xx
I had TPN I wish they gave it to u sooner
I hope you go check out The Frey Life. Mary has cystic fibrosis and has recently got a J tube! She had the NJ tube but it didn't work for her.
i just got my feeding g tube out I'm 12👊#tubesquad where you at
lucky
My mom suffers from EDS Arthritis And many other things as well it sucks
Girl you look hot even when your sick and in the hospital! Subscribed and lot of love ❤️ your puppy is the cutest! Hope you get better💜
And btw Judd is such a good husband for working long hours so you can be kept care of👏🏼💖😘
Hi Jaquie! :)
Anyone know why she stop posting videos
She died in April. Her intestines wrapped around her feeding tube and it started a chain reaction of dying organs.
With all the amazing organ transplants they do, can they give you a new stomach?
When I had some imaging done with contrast, they warned me beforehand that it might feel like I peed myself, which I found entertaining that that was included in the 'are you allergic to shellfish and/or latex?' spiel. Sending good vibes and best wishes from Orlando!
Kristine Lawrence I had the same thing happen, but the contrast was horribly painful, I was barely coherent, had two asthma attacks, 9/10 pain, and I could barely see.
Sounds like you were allergic to the contrast, that is 100% not a normal reaction
And to boot, I hadn't eaten anything in 24 hours, and they wanted oral contrast too. So I had to drink 38 ounces of water, with no food, in a little under an hour. So when I got in there, I laughed when they told me it would feel like I had peed myself. I was 90% sure I that if I was in there for more than 15 minutes, I wouldn't need the contrast for that feeling. All in all, pretty miserable day, I was admitted because of concern of appendicitis, due to stomach pain, and a high white blood cell count. After hours of hell, it turned out, I had a mild flu, and needed to take a mild laxative because the illness messed with my ibs and gerd. I'm covered in bruises because they wouldn't listen to me when I told them where to place the IV ( I have unfortunately too much experience with needles. grr) And I also have nerve pain, because the needle was too big and placed improperly. At least now I have a reason to turn down the contrast besides " I don't want another needle in me today", lol. Sorry, this is long. I needed to rant.
I had both. Mine was an ng though. Surgery was quick. Had my dad there and he went to get breakfast and by time he got back I was already in recovery. He didn't even know I was gone
How do you pay everything? Insurance?
And I thought I was the only one that says frog legs
Fun fact: other then your asthma there's a really good chance they always take chest x rays because they want to check the placement of your port! Whenever I'm admitted I always get a chest x ray to check the placement of my line especially when it's not the hospital that placed it
So if you need to have the mask on and youre high risk for contamination then why doesn't Judd wear a mask or need to be protected? And in this video did you have a feeding tube at all? BTW I LOVE your video and you two and Harlow💖💖💖💖💖 you're also such an inspiration to me because I have a lot of pain in my feet that is shooting pain or just a lot of pain when I stand and other pain associated with my feet that will wake me up in the night or get so bad where I'm admitted to the hospital for like a week on high powered pain meds and I go to hospitals all over the us and no one has seemed to be able to help me and I can't even imagine how much pain you must be in most of the time or having to deal with a feeding tube or changing your port needle every so often and I just can't believe how positive you are and you stay strong and Judd is an amazing partner to stay and help with everything and I'm so happy for you two!!!❤️❤️❤️❤️
The moment I wake up, before I put on my make up... I say a little prayer for youuuuuuuuuuuuuuuuuu
I feel so bad that it's a constant fight for you #FighForLife #FeelBetterSoon
What will they do to stop your dry heaving? That would be so painful after surgery!
why doesn't judd just sleep next to you
Keeping you in my prayers! I have my bone marrow biopsy tomorrow. I'm not looking forward to this... Stay strong #sickgirlsclub
Total parenteral nutrition!
I thought most tpn is light sensitive?
I think you would vomit up an nj. Hope you get a perm one that helps you.
HACKNEY EAST LONDON 19TH FEBRUARY FRANCIQUE
Just out of curiosity ... where are your parents during all of this ??
sunny lango She's an adult, she doesn't live with her parents. Neither live in the area.
went back and watched a video from the beginning of the year. you can really see that you've lost weight and energy since then. i am so excited for you to get a solution and start feeling better again!
Good luck my friend I hope this is better for you and Harlow is such a cutie girl I'm praying for you fingers crossed 🙏🙏🙏🙏🙏
i miss her so much
RIP, Jaquie.
Love your videos
Hi Jaquie. I will be praying for you, asking God to help you stay calm and have faith in Him. To give you the strength to get through this sickness and to help you face everything, knowing that He is with you always. And also to make you feel very close, and loved by Him.GOD BLESSYOU, DEARLY LOVED DAUGHTER OF GOD!
i have ibs and it gets really really bad with gluten-- i get horrible stomach cramping and nausea, similar to how you are feeling in this video :( my GI doctor perscribed me .125 mg (i think) of hyocyamine, which is an anti spasm drug, and it really helps me. it takes awhile to work since it's a by-mouth thing (which i now realize you can't have-- but maybe through the feeding tube? idk how this stuff really works haha) but yeah once it starts wroking it honestly is like a miracle. i highly suggest asking your doctor about it if you haven't found a good solution. (also i know you uploaded this video awhile ago but im relatively new to your channel so yeah. stay strong!! its super hard sometimes but i believe in you
praying you'll feel way better on that TPN and you won't feel like the walking dead. hugs from another chronically ill friend.💛👭🐶🙇
You poor lady, prayers to lift you up darling.
good luck on your nutrients!!
i hope youll feel better soon!!
you deserve so much better than what youre getting.
Idk anything about her difficulties but I enjoy watching her vids and they give me strength. My only question is will she be able to have children?
What is her mask for? I'm new to her channel and I would just like to know 💓
Holly Gibbs Amunodeficenty (not sure if I spelled that correct)
She has immunodeficiency (her immune system is weakened) and most of her allergens are from the environment (trees, pollen etc) so the mask filters her allergens out for her :)
What state does she live in? I'm just wondering because I've heard her talk about being in the Mayo Clinic which is in Minnesota
Praying for you. I have a separate g and j tube and gastroparesis and EDS and I have a central line in my jugular vein for tpn. Just wanted to say I really appreciate your blogs thank you 🙏🏼
Much love and GBU Jac !!!! Hope all goes well and may the good Lord bless you, Judd and Hippo during this hard times. Praying for everything to go well and for God to charge his holy spirits and angels over y'all :)
So glad your doctors are being pro-active!! The TPN will help sooo much!! It's a good short term option until you can get your feeding tube. Praying for you!! :)
I'm a new subscriber here, honestly give all my respect to you to be able to be so positive in everything you do despite being sick and in pain all the time. I'm curious does vlogging makes you feel exhausted? Like holding the camera and stuff. I do not know a lot about chronic illnesses but watching your videos lets me understand more!
I have pots and Eds and I have G.I. problems and I kind a know how you're feeling 💙💙
I know how you feel about dry heaving. I was really sick and kept dry heaving. I also had it when I was overheating recently.
I really hope they make the right decision regarding the tube & what will fit best for you. Praying it offers you some relief & makes you feel a whole lot better 🙏🏼
I hope that the feeding tube will go well . Never actually heard of TPN, but that's interesting to know that they can do that .
I just recently started watching your videos and I must say, I'm astounded at how well you cope with your chronic illnesses. You're such warrior! I wish to become as mentally strong as you and your bf someday.
I'm allergic to Zofran and you posted this on the day of my birthday May 30th
Good luck with everything! Glad you seemed a little perkier by the end of the video! Hope you feel better soon! 💕💕💕
Bless you!!!😭😭🙏🙏 I hope you recover well from these recent struggles. #PrayForJaquie
I had a feeding tube and let's just say I did not like it I do not have it now I hot it out when I was five now I am 12 good luck with it :D
I'm just curious, what if a patient at the hospital is highly allergic to dogs, do they just move them somewhere else? Or do they as patients first?
Since your room is technically a double, you could see if they have an extra bed Judd could use
They put me on tpn for 12 weeks at one point for crohns disease flare and then went to the feeding tube. It was amazing as far as how much energy it gave me. Best of luck and feel better.
So pleased that your starting to feel a bit better on the TPN. I was surprised the door to your room was kept open with your immuneo deficiency though, or does the whole ward have the same protocols? It's a shame Judd couldn't stay, but like you said he needs his rest too between shifts, I used to do 4 on 4 off rotating 12 hour shifts and it was exhausting doing 2 days immediately followed by 2 nights, I was always thankful for my rest days.
All the Best
Dawn and Boris
xxx
Boris and Eko's Daft Adventures I had this exact same thought about the open door, but Jaq is very knowledgeable so I’m assuming the whole floor must be on immuno protocol or she would have the door closed. Not sure, looking forward to an answer in future blogs.
Good luck with your surgery! I hope everything goes well and that you start feeling better soon!
Sarahgriego Hai How are you today TH-cam Happy New Year naik Aidiladha latihan rotan ya Kirim ke You're everything hasil TH-cam Krrish Malay saya salah taip Romeo novel aku Translate marahkan saya Amerika fesyen Nice to meet you you are here kunci gitar semua kek love baca mesej tbm sayur asam urat kbm jurumakeup Sunday Jangan cakap nyanyilah sudah naik warna yang tertera di audition Saya mahu women's yang ada tekanan darah telefon ya tusan Arizona birthday assistant Assistant you have over Kirana house sekarang mana malam raya gambar Ella lalat masuk rumah
Every time Judd comes on to say that J has gone down for X-ray, imaging etc...I semi expect for Judd to cut away and vlog some sort of crazy antics he and Harlow start doing while "mom's away". Oh wait, that's what my hubby does with our kids whenever I "go down" with illness or injury haha.
Has any doctor discussed doing anything to relieve the constriction caused my your median arcuate ligament? It's probably a risk, but surgical division of the fibers is an option for some people who have GI constriction caused by the MAL. It's not the only surgical option, but any GI doctor should be discussing ways to relieve the problem with it cutting off bloodflow.
Does anyone know why she has to wear that beautiful mask in public? NO HATE INTENED
I know you have said ur insurance will no longer pay for I've zofran? But have u tried zofran ODT it is a tiny tab that dissolves in ur mouth and soaks through the mucas membrane in ur mouth you do not need water or anything. I have chronic vomiting from gastrprisis but not as bad as yours and zofran oDT has been a miracle for me!!!
lol, for some reason they decided to use the ultra sound machine for me once when i was dehydrated (although my veins were probably pretty small from that) and it was so weird. Though, they didn't get it in the first time. She had to go fishing for my vein and i almost passed out ;~:
I'm on tpn due to gastroparesis and small bowel Dysmotility but it can take time to work and it can make u feel rubbish before it gets better depending what bags they give you (it's the lipid bags that are the worst) hope ur tube placement goes okay X
i want to become a patron but i can't because the card i have won't work for it and parents won't get a new one because i live in the EU none work for the ones patreon use i just wanna help out and see you laugh more but i can't :( so i hope this will make you happy? ( i subbed ) good luck with your disease and i hope i'll once be able to donate!
i'm praying for you, love you soo much hope you get better
I've had that same feeling when I had to get it done for my chrons
Watching this while eating McDonald's lol
I had to have a feeding tube while I was at the hospital to find out what was wrong with me cause we had to do a procedure and if I couldn't drink the 16 bags of something in 1 hour and 30 min then I need a tube and while they were doing it I was throwing up because the thing was going to fast but I hated it and my throut hurt so much
put up somthing level total level to help with Norcia stair at it to level yourself up its and old sailor trick when you got nocia on a ship you lock at the horizont of the water and sky and it it wil help sometimes it has to true level or it would not help
Good luck with the procedure ❤❤
I had a CT back in maybe February and I hate the fluid you are given right before you go in. Hate it.
Peritoneal is pronounced: {pear I toe kneel - with a short I}. Even though u got nauseated/sick in hospital, you still look 80% better & almost human. I do so hope this tube is the answer to your prayers. I have Fibromyalgia and most days it's all I can do to get from the bed to the couch. forget fixing meals or even eating (if hubby picks something up)...it's just too much effort & no energy to do it. and then on days I do feel good, I over do it and spend the next week feeling like crap. It's a never ending circle. so..I feel for ya. Having no energy is awful. Hey...where did u get your puke bag? That is so handy.
SuzyQue yes, except the word is parenteral, not peritoneal!