I totally understand, I’ve had MS for 6 years now. I didn’t feel my feet, legs and private parts for 3 1/2 years and the feeling came back for the last couple years. This weekend some of the same numbness came back and I’m terrified. I also have had numbness in my hands for years. I’m so tired of this disease. I’m so sad today and wish it would go away.
I just watched your video. As the mother of a 25 year old daughter, I have to say your levels of emotional intelligence, maturity, and grace in a difficult situation are pretty astounding. I’m sure your family is so proud of the person you are, who happens to have MS. While it must have been very scary to see people 20 years older than you who are more severely affected by their MS, and think it is quite possibly your future, remember that the state of treatments are now so much further ahead than when those people were diagnosed, that by the time people being diagnosed now have had MS for 20 years, they will likely be in a much better place than those who have had it for 20 years now. I’m happy to see you be able to say that it sucks. Sometimes people hate to acknowledge their sadness for issues they have because they feel guilty as there is always someone worse off than you. So while that is sometimes helpful to put your situation in perspective, it’s totally okay to be mad, sad that what you are dealing with sucks. Good luck going forward, I’m sure with your drive and determination, you’ll do great things!
You are so strong! I’ve been sick 18 months and I’m waiting on funding for a wheelchair so I can get out more. Just know that all you got through is incredible and I really appreciate you sharing. Off to check out more of your channel x
It’s hard to be positive when you see others who have suffered from their symptoms. Is this my future? My brother felt the same when he went to his support group. Not every person who has MS will end up this way. He turned to increased volunteering with the MS society for a more positive approach. This included entering a drug trial that was very positive.
I was officially diagnosed yesterday and am going to be beginning treatment as soon as all the referrals and scripts and bloodwork gets sent out and done. Thank you so much for posting and documenting your journey. I like the realness with which you discuss these things in your videos. I'm struggling a lot with memory issues, fatigue and anxiety. It is so scary to think that my memory may not improve but listening to what happened with your hand gives me hope that treatment could change things despite the doctor saying its likely permanent at this point. The grief I feel now is immeasurable, but there is hope where there otherwise may not have been because of hearing stories like yours. Thank you, Sarah! Also, for the record your crying face looks better than mine haha so points for you on that end too XD
Thank u for this. I have Ms and I'm only 23 years old. I struggle to walk as I have lost my balance and I'm always dizzy all the time especially when turning around and my left hand has no co - ordination . Although I'm happy that I can walk myself around the house to do things without assistance I can't ignore the fact that my life has changed completely I no longer go out by myself. I need to have someone with me. That time I have zero support, it's just me and this thing. My mother is too busy with her own life, plus she doesn't take this disease seriously and my friends have distance themselves from me. I can't even get a job to sustain myself. Couldn't do my fitness test for the job I had applied for before falling sick and it broke my heart because it was a really well paying job. I'm from South Africa btw(African female). I just wish that I could recover completely and go back to my normal life like it was before 😢
Thank you for being so open and honest with your feelings. I play guitar and have lost sensation and feelings in my left arm/hand and right hand. I’m pretty sure it’s permanent and I will never play like I use to. There are many times when I am very sad. It comforts me to know I’m not alone. Thank you! 🔥
Thank you for sharing 😢proud of you, I can empathise with the fear and I can say what can only be frustrating; i to have MS I’m 35 and was 19 when I was diagnosed
Ugh. I understand the “wrapping”. I have wrapping around my neck. Tingling and numbness on left arm and left leg. I understand and feel EVERYTHING u have shared. 🥺 hugs 💞
Thanks for sharing ur story my daughter who is also 25 has ms she was diagnosed about month ago watch all ur videos its been really helpful thanks again
I haven't got the guts to watch this now. I feel it's gonna be raw and deep, and I am absolutely not capable of handling it at the moment. My worst fear is losing my hands. I've spent some weeks not having control of my right hand due to a relapse. Even now, every tingle, every twitch, sends me spiraling. I'll come back as soon as I'll feel stronger. Thank you for sharing.
Hi Margherita, I think it’s really important to know your limits each day to not push yourself and I’m proud of you for that. It is a very raw video, but in one of the last clips after a year of being numb, some of my numbness improved in my hand. There are some very sad moments in this video but I wanted to let you know that it is not all terrible. You never have to be ready, but if you ever need someone to talk to you I will be here 💕
Hey Beautiful, I'm happy to see you! I am also very proud that you posted videos of yourself crying. All of us have been through tough times in our lives, nothing compared to you though, and have cried. Too many times folks act as though all is right with the world in spite of their challenges. Thank you for showing a balanced view of your journey thus far. I love you Sarah! I'll be checking in with you more often. Love Aunt Marty or just Marty whatever you prefer.
I know how scary it is. I feel the exact same way as you did. Sometimes it feels so isolating and lonely. It's hard. Watching this made me ugly cry, and I can't say my journey has reached the same ending as you. Sending you lots of love. ♥ Hope you are still doing well.
Hi Sarah. I’m so happy that TH-cam suggested this video to me. I was diagnosed this year, just 4 days before my 25th birthday. I am 25. It’s been 6 months, and every feeling you’ve had really resonated with me. It’s been hard. Very hard. I’m currently looking for a therapist, have been for a while now, and you opened my eyes to joining a local support group! Thank you for sharing! Be blessed 🧡
Thank you for sharing your truth, the highs and lows, its real. My son is awaiting his final outcome, so far its MS. Just knowing one is not alone. Bless you and prayers for feeling stronger each an every day
thank you so much for sharing your experiences in such a vulnerable way. hearing your story in this format has really helped me. i first went numb in feb, dx'ed in april... so i am still very much in grief mode, but trying to stay positive! sending you love and a big ol hug!
May I suggest blair upper cervical chiropractic? They focus on the top part of the cervical right where the brainstem They don't pop crack or twist you its super gentle and they just help keep the brainstem and central nervous system clear so your body can function better
you're really beautiful... I also lost feeling in my left hand. it felt like I was wearing a heavy invisible glove. horrible, especially as a guitarist.
You are a beautiful person. Just wanted to tell you I’m a dentist too. I hope you are feeling a bit better. You are allowed to feel whatever you need to feel! So proud of you. You beautiful person
@@sarahkate717 your story made me tear up also. Life can be so cruel and we all have our own battles. Some bigger battles than for others but some are stronger ppl than others. So always remember how strong you are! I wish you only the best
Hi Sarah, this video was very helpful, I’m still not diagnosed with MS but it’s very probably that I will, my legs went numb after a lumbar puncture last week and I could really relate about imagining being in a bus accident and recovering, that’s exactly what I’ve been doing, I’m so glad you are doing better, please don’t stop posting about your journey you are not alone in this.
@@meenakshijat2855 Sadly I was diagnosed shortly after with a disease called NMO and apparently it wasn’t the lumbar puncture what caused it, but the numbness went away with steroids.
@@Frank1e.b0i how you diagnosed with NMO,i have optic neuritis then doctor do lumber puncher but that report normal and how i have numbeness in my leg please suggest what test i should do to confirm that it is NMO
i unfortunately I am 25 too and lost my vision completely initially and still haven’t gained it back enough for me to drive anymore :( it’s been a year and a half and I’m 25 and stuck with a likely permanent disability from MS
Hi Miranda, I am so sorry. It is some thing that is always in the back of our minds, even if we get used to the day to day, to wonder what will happen next. I am hoping for your healing, I am hoping that with less sight you can sometimes focus on another sensation and find enhanced beauty that the average person may not be able to feel. Regardless, I feel your sadness, and I am so sorry.
@@sarahkate717 thank you 🙏 . your videos have helped me, especially this one. it is so real, and i’ve had so many of the lows. being this young and losing the things you worked so hard for has been deeply painful and really hard. i am so terrified for what my future looks like
Hi Sarah, I've just found and started following your jorney with MS. I have just been diagnosed with MS. Thank you for being brave and sharing your story. It's been a year since you posted this video and I wondered how you are going now? Amber x
So sorry for what you are going through. Have you heard of helminth therapy? My son just started if for his autoimmune conditions. Read the book "An Epidemic of Absence"
Please don't accept that their condition and lives will be your life! If you believe that, that's what your body will do. As a person thinks in his heart that is what they will have. Not my words. It's from God. It's in the Bible.
I totally understand, I’ve had MS for 6 years now. I didn’t feel my feet, legs and private parts for 3 1/2 years and the feeling came back for the last couple years. This weekend some of the same numbness came back and I’m terrified. I also have had numbness in my hands for years. I’m so tired of this disease. I’m so sad today and wish it would go away.
How are you doing today?
I’m doing ok thank you. Some days are better than others. Hope you are doing well!
@@sarahkate717how are you today?
I just watched your video. As the mother of a 25 year old daughter, I have to say your levels of emotional intelligence, maturity, and grace in a difficult situation are pretty astounding. I’m sure your family is so proud of the person you are, who happens to have MS. While it must have been very scary to see people 20 years older than you who are more severely affected by their MS, and think it is quite possibly your future, remember that the state of treatments are now so much further ahead than when those people were diagnosed, that by the time people being diagnosed now have had MS for 20 years, they will likely be in a much better place than those who have had it for 20 years now. I’m happy to see you be able to say that it sucks. Sometimes people hate to acknowledge their sadness for issues they have because they feel guilty as there is always someone worse off than you. So while that is sometimes helpful to put your situation in perspective, it’s totally okay to be mad, sad that what you are dealing with sucks. Good luck going forward, I’m sure with your drive and determination, you’ll do great things!
This was a beautiful comment, thank you so much
You are so strong! I’ve been sick 18 months and I’m waiting on funding for a wheelchair so I can get out more. Just know that all you got through is incredible and I really appreciate you sharing. Off to check out more of your channel x
Your explanation of 20 minuted before your second support group visit was so beautifully worded. Such selflessness
It’s hard to be positive when you see others who have suffered from their symptoms. Is this my future? My brother felt the same when he went to his support group. Not every person who has MS will end up this way. He turned to increased volunteering with the MS society for a more positive approach. This included entering a drug trial that was very positive.
Proud of you for sharing your story!!
I was officially diagnosed yesterday and am going to be beginning treatment as soon as all the referrals and scripts and bloodwork gets sent out and done. Thank you so much for posting and documenting your journey. I like the realness with which you discuss these things in your videos. I'm struggling a lot with memory issues, fatigue and anxiety. It is so scary to think that my memory may not improve but listening to what happened with your hand gives me hope that treatment could change things despite the doctor saying its likely permanent at this point. The grief I feel now is immeasurable, but there is hope where there otherwise may not have been because of hearing stories like yours. Thank you, Sarah! Also, for the record your crying face looks better than mine haha so points for you on that end too XD
Thank u for this. I have Ms and I'm only 23 years old. I struggle to walk as I have lost my balance and I'm always dizzy all the time especially when turning around and my left hand has no co - ordination . Although I'm happy that I can walk myself around the house to do things without assistance I can't ignore the fact that my life has changed completely I no longer go out by myself. I need to have someone with me. That time I have zero support, it's just me and this thing. My mother is too busy with her own life, plus she doesn't take this disease seriously and my friends have distance themselves from me. I can't even get a job to sustain myself. Couldn't do my fitness test for the job I had applied for before falling sick and it broke my heart because it was a really well paying job. I'm from South Africa btw(African female). I just wish that I could recover completely and go back to my normal life like it was before 😢
Thank you for being so open and honest with your feelings. I play guitar and have lost sensation and feelings in my left arm/hand and right hand. I’m pretty sure it’s permanent and I will never play like I use to. There are many times when I am very sad. It comforts me to know I’m not alone.
Thank you! 🔥
You are absolutely not alone. It is very difficult when it can make some thing you love harder to do. I’m hoping for your healing 💕
Thank you for sharing 😢proud of you, I can empathise with the fear and I can say what can only be frustrating; i to have MS I’m 35 and was 19 when I was diagnosed
Ugh. I understand the “wrapping”. I have wrapping around my neck. Tingling and numbness on left arm and left leg. I understand and feel EVERYTHING u have shared. 🥺 hugs 💞
Thanks for sharing ur story my daughter who is also 25 has ms she was diagnosed about month ago watch all ur videos its been really helpful thanks again
Aww...seeing you cry is so heartbreaking. 🥺😔 I wish I could hug you. I'm at sort of the beginning of my MS journey
You are so brave! 💪😊 I was recently diagnosed and waiting for meds. Thx so much for the perspective. It’s much appreciated.
Love from CO
Best of luck to you, Colleen! 💕
how old are you and what were your symptoms? do you mind sharing please let me know
That intro was so incredibly edited, like a high budget documentary
I haven't got the guts to watch this now. I feel it's gonna be raw and deep, and I am absolutely not capable of handling it at the moment.
My worst fear is losing my hands. I've spent some weeks not having control of my right hand due to a relapse. Even now, every tingle, every twitch, sends me spiraling.
I'll come back as soon as I'll feel stronger.
Thank you for sharing.
Hi Margherita, I think it’s really important to know your limits each day to not push yourself and I’m proud of you for that. It is a very raw video, but in one of the last clips after a year of being numb, some of my numbness improved in my hand. There are some very sad moments in this video but I wanted to let you know that it is not all terrible. You never have to be ready, but if you ever need someone to talk to you I will be here 💕
Thank you for this video.❤
Thank you so much for making these videos - you are so lovely and you emit so much light.
Thank you! Hearing your thoughts helps me feel normal ❤
So encouraged by and proud of you- with how you are living life where it is at.
I love you Sarah! I'm so happy your good hand is feeling better!
Thanks for sharing your story .your an amazing young woman it will get easier x
I am so beyond proud of you. The world is so lucky to have you here 💕 love you long time lady!!
Hey Beautiful, I'm happy to see you! I am also very proud that you posted videos of yourself crying. All of us have been through tough times in our lives, nothing compared to you though, and have cried. Too many times folks act as though all is right with the world in spite of their challenges. Thank you for showing a balanced view of your journey thus far. I love you Sarah! I'll be checking in with you more often. Love Aunt Marty or just Marty whatever you prefer.
I know how scary it is. I feel the exact same way as you did. Sometimes it feels so isolating and lonely. It's hard. Watching this made me ugly cry, and I can't say my journey has reached the same ending as you. Sending you lots of love. ♥ Hope you are still doing well.
Thank you for your kind words
Hi sarah
I was really looking for ur new vid since many days...
Do Keep posting ...
You got it! Thanks for coming back :)
Praying for you…we know how important your hands are for you- and in general, any of these setbacks…. May everything be regenerated…
Thank you
Also praying for you ❤ @sarahkate717
Hi Sarah. I’m so happy that TH-cam suggested this video to me. I was diagnosed this year, just 4 days before my 25th birthday. I am 25. It’s been 6 months, and every feeling you’ve had really resonated with me. It’s been hard. Very hard. I’m currently looking for a therapist, have been for a while now, and you opened my eyes to joining a local support group! Thank you for sharing! Be blessed 🧡
Hi. Can I ask what were your first symptoms
Thank you for sharing your truth, the highs and lows, its real. My son is awaiting his final outcome, so far its MS. Just knowing one is not alone. Bless you and prayers for feeling stronger each an every day
I wish the best for you and your son! Thank you for your kind words.
Sending prayers to you! Thank you for sharing ❤
thank you so much for sharing your experiences in such a vulnerable way. hearing your story in this format has really helped me. i first went numb in feb, dx'ed in april... so i am still very much in grief mode, but trying to stay positive! sending you love and a big ol hug!
Sarah! You’re story is so beautiful. Please update -I’ve been wondering about you. 💕💕💕💕💕
I just posted an update! :)
May I suggest blair upper cervical chiropractic? They focus on the top part of the cervical right where the brainstem They don't pop crack or twist you its super gentle and they just help keep the brainstem and central nervous system clear so your body can function better
Thank you so much for sharing! ❤️
This is a great video! Very informative, thanks for sharing your story and being so vulnerable.
you're really beautiful... I also lost feeling in my left hand. it felt like I was wearing a heavy invisible glove. horrible, especially as a guitarist.
I'm so sorry to hear that, I hope you have felt better and wish you the best.
You are a beautiful person. Just wanted to tell you I’m a dentist too. I hope you are feeling a bit better.
You are allowed to feel whatever you need to feel! So proud of you. You beautiful person
Thank you for telling me that you are a dentist. That means a lot to me. Your comment made me tear up, thank you. 💕
@@sarahkate717 your story made me tear up also. Life can be so cruel and we all have our own battles. Some bigger battles than for others but some are stronger ppl than others. So always remember how strong you are! I wish you only the best
@@sarahkate717 I'm a third year dental student leaving for autoimmune reasons. Thank you for sharing, it really does help me feel less alone 💖
Hi Sarah, this video was very helpful, I’m still not diagnosed with MS but it’s very probably that I will, my legs went numb after a lumbar puncture last week and I could really relate about imagining being in a bus accident and recovering, that’s exactly what I’ve been doing, I’m so glad you are doing better, please don’t stop posting about your journey you are not alone in this.
Your numbeness goes or not
My legs also not working after lumber puncher
@@meenakshijat2855 Sadly I was diagnosed shortly after with a disease called NMO and apparently it wasn’t the lumbar puncture what caused it, but the numbness went away with steroids.
@@Frank1e.b0i same thing happened to me, I'm also sure that this was not due to lumber puncher
@@Frank1e.b0i how you diagnosed with NMO,i have optic neuritis then doctor do lumber puncher but that report normal and how i have numbeness in my leg please suggest what test i should do to confirm that it is NMO
I feel this deeply. Been a year for me too. 🧡🧡🧡
i unfortunately I am 25 too and lost my vision completely initially and still haven’t gained it back enough for me to drive anymore :( it’s been a year and a half and I’m 25 and stuck with a likely permanent disability from MS
Hi Miranda, I am so sorry. It is some thing that is always in the back of our minds, even if we get used to the day to day, to wonder what will happen next. I am hoping for your healing, I am hoping that with less sight you can sometimes focus on another sensation and find enhanced beauty that the average person may not be able to feel. Regardless, I feel your sadness, and I am so sorry.
@@sarahkate717 thank you 🙏 . your videos have helped me, especially this one. it is so real, and i’ve had so many of the lows. being this young and losing the things you worked so hard for has been deeply painful and really hard. i am so terrified for what my future looks like
How are you doing lately? Hope you are doing better
How are you now?@@mirandazapanda
Hi Sarah, I've just found and started following your jorney with MS. I have just been diagnosed with MS.
Thank you for being brave and sharing your story. It's been a year since you posted this video and I wondered how you are going now?
Amber x
Hi Amber, I am doing much better now! How are you?
I hate seeing you cry!!! You’re going to conquer sweetie!
Do the doctors still tickle your feet when you have to get check ups?😅
So sorry for what you are going through. Have you heard of helminth therapy? My son just started if for his autoimmune conditions. Read the book "An Epidemic of Absence"
You have to realize that the medications are getting better and better and other peoples fate is not indicative of your future
How can I contact you?
My email is sklach21@gmail.com!
Have you tho about getting of the meds. Sometimes the cure is worse than the disease.
😥😥😥😥😥😥
Hi five!
Please don't accept that their condition and lives will be your life! If you believe that, that's what your body will do. As a person thinks in his heart that is what they will have. Not my words. It's from God. It's in the Bible.