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- เผยแพร่เมื่อ 1 ต.ค. 2024
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MS fatigue is one of the most common symptoms of multiple sclerosis 💤😴 As well as being one of the most common symptoms of MS, fatigue is often one of the most easily missed. Dean tells us how fatigue affects him.
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What's your MS fatigue story? Share your experience in the comments below 👇
I have always discribed M.S fatigue as feeling like you are trying to wade/walk through half set concrete or mud.Your movements so heavy, laboured, just trying to place one foot in front of the other and remain upright. The worst of it is knowing when you finally do get home you are alone. There is no one there and your struggle continues. People and sometimes family think i am lazy when i end up in bed for days at a time. I know it is hard for them to understand just what it is like to have to fight for every step?
ARE U HAVING A LAUGH?
I know it's so and quite often too hard to deal with. I myself have RRMS. I know it's no joking matter and I really wished friends and family could REALLY grasp and understand all that I/we have to experience. I've had to make some radical life changes and am kind of staying afloat. The reality is that we SO want them all to understand it! However I find it too tiring to explain! There are many books, magazine's online blogs etc to read.
We're NOT the same folk we used to be. WE'VE GOTTA HOLD ON TO HOPE as we move forward at OUR own pace. DO NOT LET OTHER FAMILY, FRIENDS OR FOLK dictate to you. At time's like this I remember an old school sayin'! HE WHO FEELS IT KNOWS IT. EVERYONE, EVERYBODY HERE STAY STRONG! I know it's a challenge to find the strength, but WE WILL GET THERE!
I think the guilt is tough. Especially when you've a million and 1 things to be doing. Thanks for the video and insight. Gonna give myself and break and get to the million and 1 things tomorrow!
Thanks for making this video Dean. I'm soon gonna post a music video I just finished about my MS fatigue called "Pathological Tiredness".
Rock on Dean!!👍
Hi I'm new to this channel but I am 36 and have had ms - a.k.a the monster since I was about 20 I can never explained how bad the fatigue is because unless you feel it they will never know I say it's like seeing a large amount of money but not having any energy to pick it up to put in your pocket or to even care it's there in the first place xx
Hi Donna, thank you for sharing this with everyone. Fatigue is definitely really hard and we hope these videos can help you! Take care!
I salute you Dean, great job on this video! You have truly put forth effort...Cheers, Chris / Toronto.
I call the very hard days "heavy gravity." It feels like there's a force pushing down and in on me. One friend replied, "Oh, like you're on Jupiter!" I do struggle with feeling like I'm wasting time on those hardest of all days. Still, I'm grateful for my struggle in a world where there is so much suffering.
I started using Lions Mane daily last year and have stopped having any fatigue. Obviously to this is with the help of following the Overcoming multiple sclerosis program by George Jelinek. I have MS, MS does not have me 😊
Thank you for posting this video😊 I have had MS since 1994. I was diagnoised February 2003 and the fatigue is devastating but like troopers we keep going because we have to. Trying to explain to family and friends is frustrating😢so i love me my Netflix plus more. Am I lazy....no😳Knackered like a cream cracker in the desert is my way to describe it😂
Breaking Bad, best series ever good choice! Sorry to hear about your fatigue. I also get chronic fatigue but because I have had it for so long I now read the signs for when it's coming and I know what to do. REST! Good luck and keep well
I have very bad fatigued right now and so much to do today. I do feel guilty and worthless. But I also feel a little better knowing I'm not alone.
You are not worthless we all feel it. What helps me is weight training and following the oms diet. But i know its hard
I feel asleep while watching this video
😮
Obviously isn't fatigued enough to get to the kitchen