Living with a chronic sleeping disorder: What is Narcolepsy?

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  • เผยแพร่เมื่อ 21 พ.ย. 2024

ความคิดเห็น • 34

  • @mazbradshaw2369
    @mazbradshaw2369 11 หลายเดือนก่อน +6

    Wow poor man. 😢 I struggle to sleep for more than 1 hour at a time. He is so positive, is obviously trying to make the most of his condition and looks so much fun to be around! Go you fella. ❤❤

  • @LithaMoonSong
    @LithaMoonSong 11 หลายเดือนก่อน +3

    What a lovely man.

  • @tinas7909
    @tinas7909 11 หลายเดือนก่อน +7

    I developed Narcolepsy from a Traumatic Brain Injury! It is a totally different world. So glad my neurologist started me on meds for it. They have me on completely different medication than him though.

    • @keastymatthew2407
      @keastymatthew2407 11 หลายเดือนก่อน +1

      wow your still gorgeous tina

  • @elin_
    @elin_ 11 หลายเดือนก่อน +13

    My goodness.. poor man 😢
    Even if he was a drunken addict, that doesn't give anybody the right to abuse him!! The ignorance and prejudices people have towards invisible illness and addictions is truly damaging.

    • @LozzaTx
      @LozzaTx 11 หลายเดือนก่อน +4

      Yes, it’s a cruel world unfortunately 😢

    • @NathalieCwiekSwiercz
      @NathalieCwiekSwiercz 11 หลายเดือนก่อน +1

      Aw, You dont even realize how much your comment means to so many, including me, please NEVER loose your kind heart ❤ bc of people like you, kind people who belived in me when I just couldn't myself, I'm now sober and clean soon 7 years!
      It is and was MY responsibility to get help, but what I mean is that you just.. loose your feeling of being a fellow human (many of us grew up with HORRIFIC abuse so you never felt worthy to begin with haha), you just get consumed by feeling you are absolutely worthless and even worse, knowing that you acually are too soo many or your fellow humans, it just makes you loose all hope of love and/or redemption.
      I also have autism and many other diseases/disorders and such, wich really made life so much harder to navigate, especially coming from the hell of a childhood I did.. I'm not blaming it on that, it's just important to realize that people aren't born broken... people can be so cruel, just please try not to judge addicts ( or other broken people) just bc they are addicts, many addicts also have disabilities that make them much more susceptible to getting abused and just... lost
      It's not about not holding people, in my case myself, accountable for my life, the bad choices I made and getting help for my disease, it's about just being kind and try to not judge, and instead try to help people who wants help and give them the tools to grow instead...
      this world would be so much better if we tried to fix what's broken and try to make use of what's there instead of just ... trowing it away

    • @elin_
      @elin_ 11 หลายเดือนก่อน +1

      @@NathalieCwiekSwiercz Wow, well done.. 7 years! 🥳🎉 Keep it going.

    • @NathalieCwiekSwiercz
      @NathalieCwiekSwiercz 11 หลายเดือนก่อน

      @@elin_ thank you so much! It feel amazing 😄☺ excuse me if my English is bad, I'm swedish 😂

    • @elin_
      @elin_ 11 หลายเดือนก่อน +1

      @@NathalieCwiekSwiercz Jaha, ja då kan vi prata svenska .

  • @Tis_I_SirJames
    @Tis_I_SirJames 11 หลายเดือนก่อน +6

    I'm surprised he's still alive.
    Kinda remind me of those goats that seize up and drop when they're startled.

  • @M500VYN
    @M500VYN 11 หลายเดือนก่อน +12

    I’ll stick with my insomnia

    • @257rani
      @257rani 11 หลายเดือนก่อน

      I have insomnia, related to the LBD side effects, Hope it does not turn into Narcolepsy 😢

    • @MPPG663
      @MPPG663 10 หลายเดือนก่อน

      Right?! ...i'm so good, lol.

  • @Sourpusscandy
    @Sourpusscandy 11 หลายเดือนก่อน +2

    My grampah has narcolepsy, but not like this there’s very little tubling, he has cataplexy. He keeps up with buckets of dexedrine. He nodded once or twice while driving, for a microsecond. We went to a restaurant and the din and chatter puts him right out. He’s more likely to sleep whenever he sits down.

  • @MrsGump
    @MrsGump 10 หลายเดือนก่อน

    What an amazing guy! Such a happy guy enjoying what he can, bloody good for him ❤

  • @andreagorham-ray1553
    @andreagorham-ray1553 11 หลายเดือนก่อน +3

    The Valedictorian of my LPN class had narcolepsy said she could hear the lectures when she fell asleep during lecture.

  • @CatsandJP
    @CatsandJP 11 หลายเดือนก่อน +1

    Jink Monsoon (Jerick Hoffer) is an American drag queen who suffers from narcolepsy and has made it part of the act when it happens…it just shows how some people with the condition can live with and adapt to it and still lead a relatively normal life.🇦🇺🇦🇺

  • @257rani
    @257rani 11 หลายเดือนก่อน

    Hopefully soon research will help, I am on antidepressants. 😢

  • @Tboe905
    @Tboe905 11 หลายเดือนก่อน

    Wow !

  • @gemmi1
    @gemmi1 2 หลายเดือนก่อน

    This is like that (fake) video of the guy falling asleep on the rollercoaster

  • @janetsin1994
    @janetsin1994 5 หลายเดือนก่อน

    nighty night

  • @01jbeals
    @01jbeals 9 หลายเดือนก่อน

    The doctors should prescribe him some Modifinil

  • @CaptainKedah
    @CaptainKedah หลายเดือนก่อน

    i think he needs a custom mobile scooter , customized for him

  • @DivinesDoor222
    @DivinesDoor222 11 หลายเดือนก่อน +1

    This doesn’t look like narcolepsy and when he’s out he needs a wheel chair or drinking something

    • @elin_
      @elin_ 11 หลายเดือนก่อน +3

      Are you a doctor?

    • @DivinesDoor222
      @DivinesDoor222 11 หลายเดือนก่อน +1

      @@elin_ I didn’t know I had to be a doctor to know the difference or to even advocate ..there are doctors with degrees and are misdiagnosing people everyday and I don’t need to have a degree of a doctor to say that this is not narcolepsy !🤔

    • @Zhana808
      @Zhana808 11 หลายเดือนก่อน +2

      That’s a pretty bold assumption considering it’s a 10.5 minute video. What studies have you done or experiences have you had with epilepsy, and exactly what is it supposed to look like?

    • @DivinesDoor222
      @DivinesDoor222 11 หลายเดือนก่อน

      @@Zhana808 go and troll somewhere else ok bye now

    • @Zhana808
      @Zhana808 11 หลายเดือนก่อน +3

      @@DivinesDoor222 typical response from someone who makes bold assumptions but lacks knowledge and credibility 🤣 btw trolling isn’t someone who questions your claims 😂