As a fellow stoma roamer can I offer some friendly experience? 1) when your stoma calms down and stabilises to it's final size - cut all your stoma bags to the correct size at once when you get your delivery. It's a ritual that's worth going through however often you get your charter delivery 2) always put your charter order in at least 2 weeks before you need them to make double plus sure you have spares. 3) when you get your delivery sort out your equipment and fill your black disposable bags with one of everything you need to change your stoma. This way you can grab a spare kit no matter how much of a hurry you are in. It also helps give some piece of mind. 4) I changed mine every day for hygiene purposes (and just feeling a bit fresher in the morning). To that end getting up and showering whilst taking off the stoma bag (the heat makes this easy) is a much nicer process for cleaning the stoma. Make sure you do this BEFORE breakfast as it's 1000% less messy. Not to get personal but I don't know how solid your leaving are. Mine are liquid due to missing internals :) 5) don't know if you already are but I recommend joining the nacc (national association of crohns and colitis) 6) there is no 6 7) hope this helps. Happy to talk about it if you'd like the benefit of experience All will be well.
A question for you both. I work in a SNF in the US, and often have to replace bags/wafers for a resident that can't do it herself. How in the world do you cut the wafers in a proper circle? Always concerned that I'll leave some jagged edge or off kilter portion that will pinch or break skin.
Very well said,I get mine from securicare and pre cut so much easier ,l like the bag the wipe I'm away to do that,I use opus absorbgel to make liquid stool more solid but they dont help smell,brava deodorant amazing scoot in back breaks down enzymes and no smell, I'm using paste first week on it and I cant get bag to stop lifting,what am l doing wrong, Where do I get good wallet to keep supplies in,ones at side of bed as I use drawer for bags, I change mine daily yet was only getting 30 bags a month,now 40,I know we get them free but I've even be looking to buying some on Ebay,I used to have good supply and didn't worry but new g,p,practice manager phoned to say I'm using to much,1 bag because they are drainable, its hygiene,l told her as I empty 4 to 5 times and up during night twice,any help from anyone thanks x
This is literally one of the best educational tools to ever see. Not too serious, informative as hell and you alone are showing that it's super manageable to have a stoma, it just takes some getting used to and the right guidance. I honestly just think you're a rockstar 💜
Hannah! I love this so much. As a nurse who works at a gastro-surgical post at the hospital and meet young patients with stoma almost daily this is sososo important. A lot of my patients have a hard time accepting their stomas and struggle with the shame/stigma around it. I love how openly you talk about this. You are such an inspiration and I am just so darn proud of you!
As someone who is obsessed with "what's in my bag" videos/pictures, I found this extremely interesting even though I have no use for anything in this bag. xD
One of the reasons I love Hannah being so open about this is now it's a resource for new patients who don't know how their life is about to change if they're getting a stoma!
Since you’re a doctor, is their intestine literally sticking out of them and into the bag? And if so, how do their bodies not get infected when bacteria has such an easy way in?
Can't Even Yes it sticks out a little bit, but I would suggest googling it, you can find all the info on there. There's an airtight bag over the stoma at all times - you don't have an airtight bag over your bum - so this is just another exit - same use as the booty! I was seriously ill for 10 yrs before they took out my entire colon, and not been sick once since the stoma was made! I have had a stoma for 18 months but it's being reversed on 21st March after 2 more ops I had 6 months ago to create a new colon inside me. 😊
Having that little striped bag to pop into your normal bag is such a good idea. I change babies stoma bags (Neonatal Nurse) and I will be able to pass this little nugget of info over to parents. That way they won't have to take the entire kit and kaboodle out with them, which ontop of a usual changing bag really takes up valuable space! Thanks Hannah!! Xx
Sometimes it's easier just to put the spare bag and adhesive wipe sachet into the nappie bag before they're used, and then only have to carry that, and then you can slip it in a handbag or a side pocket of a bag, instead of bringing the 2 sprays as Hannah does here
Its not really the same but i always have 3 makeup bag things in my bag when i go out. One has plasters, pads, tampons, hand sanitizer, sun cream and tablets etc, the second has chargers, glasses, headphones and other random stuff then the third has pens and pencils. I find this so useful for keeping things organised and easily accessible. it also makes it easy to change bags
Wow, babies get stomas too? I realize know that it's a stupid question it's just that I've been watching Hannah's whole journey with her stoma and not once thought that babies could have it as well. Wow.
As a pharmacy technician who dispenses this stuff quite often but doesn't have a in depth knowledge of the ins and out I found this really interesting. Do you think they'll accept watching your channel as professional development training? :P
Well done for bringing positivity, friendliness and a straight talking attitude to something people often shy away from talking about or listening to. Not affected myself, but I think you're fantastic for being so honest about your experience and speaking openly about it
Wonderful vid, Hannah! Just in case you're ever tempted to not bring your emergency stoma things with you, do! I had a lil accident (the bag wasn't as securely glued to me as I thought it was) years ago and had to do a quick change in a train station loo. I was TERRIFIED and had a small panic attack, but fortunately I had everything I needed with me. So yeah, always bring your poo stuff with you! xx
As someone who does not have a stoma, but has multiple chronic illnesses, I've really enjoyed following your journey. My life has completely changed over the past few years in so many ways, and I find this relatable and very informative!
I saw a little girl at the pool today with a stoma and she was explaining what it was to another little girl who was looking at her odd. It was so sweet to see little people who could easily have chosen to be rude actually listen and understand at such a young age. Anyway. It was sweet and I’m so glad you share your experiences. :)
Thank you Hannah! I'm a medical student and I had to assist a patient in rehabilitation after getting a stoma. This video really helped me in understanding what she was going through. Thank you thank you thank you. What you are doing would help a many people.
As a nursing student videos like this are really interesting and informative since we are always taught the medical perspective and rarely get the patient's side of the procedure and it's after effects. So thank you for sharing :)
I'm an avid photography enthusiast, and as full as my camera bag can get, I feel like you have to carry more stuff then I do. I admire your courage and honesty about such a difficult and personal subject.
Dear Hanna, thank you for being so open and honest with people about your Stoma. I think you are incredibly brave and strong. I’m also very glad that you still Dan to support and love you. You’ve been through so much and you’re facing it head on with integrity and frankness not many people on your situation have. I really like you, and would be so. Proud if you were my daughter. Keep going, keep the faith and know that many people out here are rooting for you. Bless you and may you stay happy, strong, and brave. If Dan gives you any problems, kickem to the curb. I have a feeling that won’t happen. He’s stayed through the toughest part. Having that kind of support is rare but you damn well deserve it. See ya next time.
Thank you for this video, Hannah! If I have a relapse before my colectomy surgery on the 19th, it's still possible I'll end up with a stoma, so I am grateful to learn what all is involved ahead of time (just in case)!
Thanks! Luck was with me. The doctor operated Sunday, and I did not have to get the stoma. He just did the colectomy, and I was released to come home today. So glad to be home again!
I never believed I would find this video relevant but just last week my grandad was checked into hospital and it's been found that he could have bowel cancer. If so then he may need a colostomy so it's nice to hear more about it. So I'd like to thank you Hannah x
When I read earlier on twitter that you are going to put this up today I was so scared and confused and I didn't know what to think about it, but now I am happy and kind of relieved :') This was actually interesting, I have never knew what a Stoma were until you told your story on twitter these last few months actually. So thank you for teaching and enlightening us.
You are a wonderful person. Seriously, normalising this and treating the video the same way that you would treat any other 'what's in my bag?' video is such a comfort. I don't have a stoma, but you have made me feel like it's neither a big deal nor in any way negative- it's just an experience that you can learn from, and that's a really inspiring attitude to have towards what life throws at you and can be applied to so many things that it's so easy to fall into the trap of worrying about. You have made my day
I don’t have a stoma yet I’m so thankful you’re doing these videos - it’s such a great way to normalise having one and a great way to give comfort to other people who are going through the same situation. Thank you Hannah for being so positive and informative 💕
I'm in the States, and - as far as I know - we don't have accessibility bathrooms that use radar keys! What a great idea, we should definitely have them out here!
I’m so excited to see your face again and so excited to learn more about Mona the stoma and caring for stomas in general! These videos are great education for everyone. Love you x
I'm a medical student and it is really great for my, that you are so open about it all. Doctors teach us, but they donť have personal experience and people in hospital somethimes are not comfortable talking about it. Thank you soo much
You were looking so much healthier now yay. I also think it’s amazing that you’re just being open about this whole thing a lot of people have conditions like this and nobody talks about it good job go you you’re awesome.
Thank you so much for doing this series. I've been having some gastrointestinal issues lately and even though I know there's like a really small chance of something going Very Wrong, this kind of video is just like a big fuzzy tea-giving hug of "don't be scared". I can't imagine the comfort this would bring to someone who might realistically be facing having an ileostomy in the near future. You're an absolute gem you are.
As a med student, this is so interesting and useful! They don't teach this stuff in medical school, and now I feel like I know so much more about stoma care. Thanks, Hannah! :)
Thank you for this video! I worked as an EMT for two years and worked with so many patients with stomas but this video taught me so much and gave me a lot of appreciation for how you take care of it. Thanks!
My Dad had his colon remove due to his cancer, and we're from the Philippines where the care products are not so readily available, or affordable if they were, and it was so difficult and uncomfortable for him to change his own stoma bag, and my sister and mom and I would need to help him, and he'd rather be lying down through most of his changes. He's already passed and we donated what remained of his supplies after. Apparently some people who really cannot afford it will just use regular old plastic bags. I'm happy you're in a country, in a specific economic bracket, where your condition is better for you to navigate. It's the little things that can really rob people of their comfort and dignity. And I came here after your March favorites video, and of course I didn't even think about ~sexy times~ with a stoma bag having only my Dad's experience to go off of haha. Really glad you are well, happy and healthy. More power, Hannah.
Yes giiirl! As someone with a stoma since the age of 5 (but without the colostomy bag, I have something called an A C E procedure) This is such a good video! So glad to see someone being open about these sorts of nitty gritty things. Its amazing how fast you've adapted, and trust me, it just gets easier and easier with time 😊
As a nurse this was really interesting to see - I love the way you are so positive and open about it☺️ I‘ve seen patients who are so afraid of their stoma even years after getting it so it’s nice to see how comfortable you seem :) Also lovely to see ur getting better - keep up the great work❤️
I got first radar key about 10years ago but much smaller now,I paid for it but you can get it free, If in UK and have colostomy join colostomy association UK,you get magazine and loads good info,holidays for children and help,phoneline,I have ileostomy now but still get magazine,listening to other peoples stories makes living with stoma so much easier
Its just always good to learn about others. Makes you appreciate what some may go through. And to see you upbeat and not whoa is me, really is a good thing.
My mom has had a stoma for like two years now and even though everything you showed lays around our house somewhere, I didn't know what all of it was for and I never really dared to ask her about it, so this video definitely helped! Thanks for being so positive and strong, Hannah!
Hannah - I've had my stoma for 18 months and now know loads of people with one through FB groups- but ... Why do you wipe your bag with kitchen towel, which you then have to put in a scented bag etc? I'm wrecking my brain trying to figure out why you don't use loo roll, put that in the loo and flush!? No scented bags or any bags needed for the emptying?! I sit down, empty into the loo, wipe it with toilet roll, flush - finish! I have been lucky I think but have never had a leak, so never bring anything out with me - not to work or anywhere. Well except if I'm going away overnight! I've had many operations since I had my ileostomy but the final one will be 21st March where the stoma finally gets put back inside! CANNOT WAIT! Good on you for making such positive videos about it and being so upbeat about it! I hate to admit it but since I've had mine I have HATED my body and my confidence has GONE!
This brought back a lot of memories! I used to care for a disabled man who also had a stoma/ostomy bag and since he had no use of his arms or legs I would change it for him twice a week. I was nervous at first but after a while I got used to the steps and found it quite fun in a weird way. He has since passed away so I haven't had to change a bag in a while but have loved hearing your perspective on it!
I love this kind of videos, they are entertaining aswell as educational. Just, love it. Also, yesterday my ten-year-old niece saw a picture of your stoma in Instagram over my shoulder, and was curious, so I had the opportunity to talk with her about stomas and people who need them and why they have them and stuff like that and, OMG, do I wish that somebody had told me all that when I was ten. You are awesome and even through secondary influence, you impact so much people. Love you, Hannah, and I am so glad to see that your are recovering so well. You go, girl!
I've never heard of a radar key but I love the idea. In the US the handicap accessible toilet stalls are a free for all and people full them up unnecessarily because they like more space. It makes me so grouchy.
Melissa Stephan I know exactly how you feel. My mom is severely disabled and I hate that people use the handicapped stall like all of the other regular ones and she is left waiting and with her disabilities, she doesn’t have much time to wait. That or when restaurants don’t have a handicapped stall at all. It’s a struggle trying to help her do a normal daily task without consideration from companies. We learned very fast that 1. You can’t fit a wheelchair into a regular stall and 2. Some people need to use the stalls that are available to them and not the one that is for someone who is handicapped. Just because you want more space or the others were full isn’t a good excuse to give someone with a disability
Thank you so much for making this video and sharing your journey with IBD and a stoma. I use to work with newly diagnosed IBD patients here in the US and so many people are afraid to discuss their experiences openly, including one of my best friends who has UC. It so great to see this information presented in honest and normalizing manner. I have shared your channel with some patients and families that I still have contact with because I think is so inspiring.
This video helped me so much! I don't have a stoma, but I have diabetes and I have to carry a lot of stuff because of it. It amazes me how you can be so confident with your illness. I still didn't accept mine, and have a really hard time just getting into the mindset of "I have to do this for my whole life now'.
I love how well you've embraced this. I recently got diagnosed with type 1 diabetes and I feel totally the same way. Sick for so long, just happy it's over! 😙❤❤❤
i really like all these stoma vids they're so interesting! before you had the operation etc i didn't have a clue what a stoma bag even was but this is so informative & fun 10/10
Hey, I'm a medical student and watched some of your video's before this all happened, pretty awesome to see you coping with (passed) disease in such a personal way. Thanks for sharing!
Thank you for sharing this part of your life with us. Your attitude alone is inspiring. You've always been candid, informative, and entertaining about everything you've shared on your channel, so it's no surprise to see you speak about this new part of your life so genuinely. You're a role model for so many!
The nappy bags are such a good idea. Idk if it's something lots of people do (my friends always find it weird) but I carry dog poo bags with my sanitary towels/tampons incase I'm anywhere without a sanitary bin. Like a friend's house or I've been to some a stadium that only has bins in a quarter of the toliets. That way you can either put the tide up bag in the bin, or slip it back in your handbag till you find one!
I really enjoyed seeing this. My grandad has a stoma and I've never really understood or felt like I could ask about it. It's so lovely that you are so open and honest about it. It's really opened my eyes to what it all means and does. Thank you for being so happy to share!
I have a colostomy and appreciate your situation. Here is Australia we have a great support network. I have had my stoma for about 9 years now so it's a second way of life. I carry a similar supply of essentials with me daily. Best of luck for the future and hope that you enjoy the way your stoma makes life easy again.
I have a stoma and completely rely on my stoma travel bag!! I can guarantee you you will need it at some point. I would also recommend carrying more than one fresh stoma bag with you. Sometimes, when you have a leak, it's like your stoma is playing up and creates leak upon leak. I always find it handy to have at least 3 changes with me - just in case! It seems like you're so savvy already and I wish you and your stoma all the best xx
The turquoisey-blue colour of your care bag is gorgeous! I'm so glad that nice looking things are available that fit needs for people with medical requirements 😁
I know you said you were kind of testing yourself doing this video and I’m a nurse and I can say you were spot on with everything and very informative too!
Lol I asked my stoma nurse why did you go to working in stoma side,she said ,I was a shit nurse so became one,I laughed way back in 2008 as her humour got me through what could have been bad time,its not the end of the world a stoma but my colostomy was easier than now ileostomy, I dehydrate alot as out put water and burns skin,but bowel away and you can get joined up with ileostomy but dont fancy running to loo altime.bag easier,
Can I just say 1) I really enjoyed this/ was really relieved it was what it was 😂 2) you sound and look so much healthier physically compared to your first post hospital vid and it’s truly lovely to see x
So as a fellow ostomate I can empathize with you a lot. I told you in another video to make sure to measure your stoma every time you put a new bag on for the first 3-4 months post op. After that only measure your stoma every two weeks or if you gain or lose weight. When I first got my stoma I was 1 3/4” in stoma size and now I am just at 1”. It is crazy how small it is compared to when I first got my stoma. I also use medical adhesive spray and those Coloplast strips to get my bag to stick very well. I have been just at 4 weeks leak free knock on wood. I am always trying samples of new bags to see if I like something better then what I have now. Currently I love my Marlen MiniMax Convex Opaque Drainable One Piece Bag. Marlen is a small ostomy company but it is my perfect bag because it is only 7” long verses the standard 12” inches and opaque and convex and drainable and one piece. However I am trying some Hollister bags currently to see if I like those better. I have one small bag I carry around with Eakin Barrier Rings, Scissors, Adhesive Remover Wipes, Medical Adhesive Spray, Skin Barrier Spray, Stoma Powder, a measuring template, 2 pre cut bags, coloplast barrier strips, and small disposable bags. So enough for two bag changes and I keep a spare outfit on hand just in case.
Havent watched one of your videos for a few months so was sorry to see things went bad this way for you, but also very happy to see you accepting and coping so well too Hannah. Hope things continue to go well, your video brought much cheer to me when I needed them earlier - love your smile, it hasnt changed at all!
Hey Hannah, I have been subscribed to your channel for quite a few years an have always enjoyed watching, but I have been really interested in your recent videos about stomas and so on. I had never encountered this "world" before, but I wanted to thank you for sharing because I feel so much more enlightened and aware now, and I love how you manage to make the videos mainly informative/fun rather than pitiful or anything else similar - I am sure many people feel the same and you have spread awareness of the condition very effectively. All the best and I am so pleased you are recovering well xxxx
Your openness about having a stoma bag is incredible. It will inspire and improve the confidence of many young people who also go through life with a stoma bag. Keep up the good work! 💕💜
I've been in a wheelchair since birth and I only got a RADAR key in 2015, when I had a serious op. I was told it was £5 to get one, so I never did !!! LOL
This is why I never ever comment on someone using the disabled loo UNLESS they apologise or say something to indicate they didn’t need it in the first place! My disability is technically an invisible one (although for myself it has many visible things, such as I’m a wheelchair user) & Id hate the stares! It’s not fair, if you have a genuine reason/need to use that toilet you shouldn’t have to deal with judgemental assholes! x
I’ve been watching your videos for about 2 Years now, and they’re always super interesting and informative and this one was no different 😍 I feel so privileged to listen to you tell us about your stoma / anything stoma related. You’re continuing to do so more good by sharing your journey with us, as many of us would be clueless (like me!) otherwise! :) thank you for always being great, whatever the video topic!! X
Elastic tape is an actual life saver for me!! Really enjoyed the video...It's made me realise I have no clue where my water carrier is! Also, never thought to carry water spray in my travel bag so will definitely be looking into that!!! Just to let you know, you can use toilet roll (just fold a bit more) when you're emptying your bag so you don't need to worry about kitchen roll and needing bins!
I've loved learning so much about your experience with stoma care. It's so enlightening! I'm not sure what kind of purse carrier you are, but I'm on public transit all the time, so I carry a tiny backpack. I also bring a water and book (and journal) with me everywhere. They also make it much easier to be hands-free, and since they're coming into style, a lot of groovy ones are being made!
This is really great to learn about, because my nan had a stoma bag when she had cancer and I didn’t realise how she had to take care of it. She’s had her bowel reversed now so she can poo normally but it’s nice to actually know what she went through. xx
Im amazed you are so cool about all the stoma thing. I understand for you its a total relief and im glad you are happy with it. My aunt has been doing everything the past 10 years to avoid getting a stoma. Currently she is getting a treatment only another person gets in the country because its so special and its a last resort thing. So for me the way you are cool about it is just new.
This has really opened my eyes and you've made me and probably thousands of others more aware of stoma bags etc. You are honestly so brave and i'm thankful that unlike other youtubers i watch you help make your audience aware of things. Also this was definetly the most interesting "Whats in my bag" video i've seen
I found this so interesting! I have some medical issues (not UC) and find it so interesting to hear about other people and what they have to do for their own medical things. So glad to see you’re still managing to be so positive is so nice and inspiring to see!!
Thank you, thank you, thank you! I'm 29 and have had a stoma since I was a few days old. I've been using the same 1980s technology of appliances since then and haven't spoken to anyone about it ever. I've felt so alone about the stoma, especially when things haven't been going very well. I didn't know about other brands, I didn't even think about the pot of water trick!!!!! I come from a very conservative Irish Catholic household, where I was always pretty much sworn to secrecy. I've finally after 29 years, made an appointment with a stoma nurse and I'm going to finally be able to talk to someone and tackle the few issues I've had with my stoma. I'd like to thank you from the bottom of my hear Hannah. The idea that this is being. Normalised on TH-cam by one of my favourite youtubers and it's ok for me to get some help and advice is just beyond words. Thank you for all that you do. Anna. X
This is fascinating, please keep making videos like this, I've learned so much from these and it's so interesting. Also, your accent is beautiful and I could happily listen to you talk for several hours
Hannah, that was so interesting! Its really great to see how you've adapted to this lifestyle with such a positive attitude, and are able to make it a fun conversation rather than something bad. I'm sure a lot of people with similar issues to you are really enjoying the breath of fresh air around the subject.
Glad your recovery is coming along so well and that you are able to keep a positive attitude. I recently had to pull hospital duty with an inmate who had a stoma (I am a correctional officer.) Lucky me was there when they had to change it. Since my wife was a paramedic and I have listened to quite a few war stories it really didn't bother me and I found it quite interesting albeit pungent. They used a type of wax that was made malleable by hot water to seal the bag to the skin. Keep up the good work with your informative videos and God Bless.
Hey Hannah, Im going to preface this by saying that i hope this isnt patronising in any way and im sorry if it is. But i just wanted to tell you that i think youre doing a reallly good thing in regards to your openess and just how positive and unashamedly youre talking about all your stoma care and experience. I'm a nurse and ive had a couple of patients with stomas, i had one lovely lady recently who had a really similar situation to yours but the onset of her illness was relatively sudden, she was experiencing a lot of depression and anxiety after the surgery in regard to the stoma, I showed her a couple of your videos and your insta and i think its really helped her. Just thought you might want to know that!
One of my best friends has a family history of ulcerative colitis, so this was really awesome to see if she or her parent ever had a stoma. Side note: you are looking so much healthier and I’m so glad you’re recovering well.
Hey Hannah! I have a permeant ileostomy and you are so awesome! Great to see people with bags being open and positive about it. Keep doing you thing girl 💁🏼♀️😘
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Most interesting "What's in my bag" I've ever seen!
"I very much enjoyed organising this stoma bag" - the most Hannah Witton phrase ever spoken!
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As a fellow stoma roamer can I offer some friendly experience?
1) when your stoma calms down and stabilises to it's final size - cut all your stoma bags to the correct size at once when you get your delivery. It's a ritual that's worth going through however often you get your charter delivery
2) always put your charter order in at least 2 weeks before you need them to make double plus sure you have spares.
3) when you get your delivery sort out your equipment and fill your black disposable bags with one of everything you need to change your stoma. This way you can grab a spare kit no matter how much of a hurry you are in. It also helps give some piece of mind.
4) I changed mine every day for hygiene purposes (and just feeling a bit fresher in the morning). To that end getting up and showering whilst taking off the stoma bag (the heat makes this easy) is a much nicer process for cleaning the stoma. Make sure you do this BEFORE breakfast as it's 1000% less messy. Not to get personal but I don't know how solid your leaving are. Mine are liquid due to missing internals :)
5) don't know if you already are but I recommend joining the nacc (national association of crohns and colitis)
6) there is no 6
7) hope this helps. Happy to talk about it if you'd like the benefit of experience
All will be well.
Ryan Blake 5
If you inform Charter on the size of your Stoma. They'll pre cut your bags for you. Saves you doing it.
A question for you both. I work in a SNF in the US, and often have to replace bags/wafers for a resident that can't do it herself. How in the world do you cut the wafers in a proper circle? Always concerned that I'll leave some jagged edge or off kilter portion that will pinch or break skin.
AbiDanz you can get scissors that are curved that make cutting a circle very simple, you won’t get any jagged edges
Very well said,I get mine from securicare and pre cut so much easier ,l like the bag the wipe I'm away to do that,I use opus absorbgel to make liquid stool more solid but they dont help smell,brava deodorant amazing scoot in back breaks down enzymes and no smell,
I'm using paste first week on it and I cant get bag to stop lifting,what am l doing wrong,
Where do I get good wallet to keep supplies in,ones at side of bed as I use drawer for bags,
I change mine daily yet was only getting 30 bags a month,now 40,I know we get them free but I've even be looking to buying some on Ebay,I used to have good supply and didn't worry but new g,p,practice manager phoned to say I'm using to much,1 bag because they are drainable, its hygiene,l told her as I empty 4 to 5 times and up during night twice,any help from anyone thanks x
This is literally one of the best educational tools to ever see. Not too serious, informative as hell and you alone are showing that it's super manageable to have a stoma, it just takes some getting used to and the right guidance. I honestly just think you're a rockstar 💜
You seem to be making the best of a shitty situation.
Hannah! I love this so much. As a nurse who works at a gastro-surgical post at the hospital and meet young patients with stoma almost daily this is sososo important. A lot of my patients have a hard time accepting their stomas and struggle with the shame/stigma around it. I love how openly you talk about this. You are such an inspiration and I am just so darn proud of you!
As someone who is obsessed with "what's in my bag" videos/pictures, I found this extremely interesting even though I have no use for anything in this bag. xD
I'm a doctor and I really enjoyed watching this video!
One of the reasons I love Hannah being so open about this is now it's a resource for new patients who don't know how their life is about to change if they're getting a stoma!
Me too!
Since you’re a doctor, is their intestine literally sticking out of them and into the bag? And if so, how do their bodies not get infected when bacteria has such an easy way in?
Can't Even Yes it sticks out a little bit, but I would suggest googling it, you can find all the info on there. There's an airtight bag over the stoma at all times - you don't have an airtight bag over your bum - so this is just another exit - same use as the booty!
I was seriously ill for 10 yrs before they took out my entire colon, and not been sick once since the stoma was made!
I have had a stoma for 18 months but it's being reversed on 21st March after 2 more ops I had 6 months ago to create a new colon inside me. 😊
Stine Egeberg wow that’s so cool! I hope the new colon works well for you!
This is so interesting and I love how you've taken a joke and made a super informative, great and interesting video.
so rowan you think having a stoma is a joke?
Rewatch the beginning of the video and pay attention before commenting... Hannah made a joke in a previous video. This video is based on that joke...
My dad was so chuffed with his radar key after his urostomy. He kept calling it his key to the city 😂
Lupielappy that’s hilarious
love it
Cute!! I hated mine despite being v grateful for it, until I added a pretty keyring to it from the blue badge company :)
Having that little striped bag to pop into your normal bag is such a good idea. I change babies stoma bags (Neonatal Nurse) and I will be able to pass this little nugget of info over to parents. That way they won't have to take the entire kit and kaboodle out with them, which ontop of a usual changing bag really takes up valuable space! Thanks Hannah!! Xx
Sometimes it's easier just to put the spare bag and adhesive wipe sachet into the nappie bag before they're used, and then only have to carry that, and then you can slip it in a handbag or a side pocket of a bag, instead of bringing the 2 sprays as Hannah does here
Its not really the same but i always have 3 makeup bag things in my bag when i go out. One has plasters, pads, tampons, hand sanitizer, sun cream and tablets etc, the second has chargers, glasses, headphones and other random stuff then the third has pens and pencils. I find this so useful for keeping things organised and easily accessible. it also makes it easy to change bags
Wow, babies get stomas too? I realize know that it's a stupid question it's just that I've been watching Hannah's whole journey with her stoma and not once thought that babies could have it as well. Wow.
As a pharmacy technician who dispenses this stuff quite often but doesn't have a in depth knowledge of the ins and out I found this really interesting. Do you think they'll accept watching your channel as professional development training? :P
I'm thinking if you do a quick reflection on it then sure :p
Well done for bringing positivity, friendliness and a straight talking attitude to something people often shy away from talking about or listening to. Not affected myself, but I think you're fantastic for being so honest about your experience and speaking openly about it
Definitely think Crohn's and Colitis UK should share this!
Wonderful vid, Hannah! Just in case you're ever tempted to not bring your emergency stoma things with you, do! I had a lil accident (the bag wasn't as securely glued to me as I thought it was) years ago and had to do a quick change in a train station loo. I was TERRIFIED and had a small panic attack, but fortunately I had everything I needed with me. So yeah, always bring your poo stuff with you! xx
If you use shoulder bags try and get one with zip pocket,I keep bag in but beware as if you dont use them they unstick if left in long time,x
As someone who does not have a stoma, but has multiple chronic illnesses, I've really enjoyed following your journey. My life has completely changed over the past few years in so many ways, and I find this relatable and very informative!
I saw a little girl at the pool today with a stoma and she was explaining what it was to another little girl who was looking at her odd. It was so sweet to see little people who could easily have chosen to be rude actually listen and understand at such a young age. Anyway. It was sweet and I’m so glad you share your experiences. :)
I feel like Hannahs motto on this chanel is going to be " Hannah Witton - Sex, Stoma & Rock 'n' Roll"
It's silly, really, but when you showed the mirror I fully expected my reflection to be on it.
Aura Dyer I did exactly the same thing. Oops glad it's not just me
same
I love how positive you are about this. It makes it all seem so normal and less scary
Thank you Hannah! I'm a medical student and I had to assist a patient in rehabilitation after getting a stoma. This video really helped me in understanding what she was going through. Thank you thank you thank you. What you are doing would help a many people.
As a nursing student videos like this are really interesting and informative since we are always taught the medical perspective and rarely get the patient's side of the procedure and it's after effects. So thank you for sharing :)
I'm an avid photography enthusiast, and as full as my camera bag can get, I feel like you have to carry more stuff then I do.
I admire your courage and honesty about such a difficult and personal subject.
Dear Hanna, thank you for being so open and honest with people about your Stoma. I think you are incredibly brave and strong. I’m also very glad that you still Dan to support and love you. You’ve been through so much and you’re facing it head on with integrity and frankness not many people on your situation have. I really like you, and would be so. Proud if you were my daughter. Keep going, keep the faith and know that many people out here are rooting for you. Bless you and may you stay happy, strong, and brave. If Dan gives you any problems, kickem to the curb. I have a feeling that won’t happen. He’s stayed through the toughest part. Having that kind of support is rare but you damn well deserve it. See ya next time.
Thank you for this video, Hannah! If I have a relapse before my colectomy surgery on the 19th, it's still possible I'll end up with a stoma, so I am grateful to learn what all is involved ahead of time (just in case)!
xzonia1 good luck
Thanks! Luck was with me. The doctor operated Sunday, and I did not have to get the stoma. He just did the colectomy, and I was released to come home today. So glad to be home again!
Thanks!
I never believed I would find this video relevant but just last week my grandad was checked into hospital and it's been found that he could have bowel cancer. If so then he may need a colostomy so it's nice to hear more about it.
So I'd like to thank you Hannah x
Nathan James h
When I read earlier on twitter that you are going to put this up today I was so scared and confused and I didn't know what to think about it, but now I am happy and kind of relieved :')
This was actually interesting, I have never knew what a Stoma were until you told your story on twitter these last few months actually. So thank you for teaching and enlightening us.
You are a wonderful person. Seriously, normalising this and treating the video the same way that you would treat any other 'what's in my bag?' video is such a comfort. I don't have a stoma, but you have made me feel like it's neither a big deal nor in any way negative- it's just an experience that you can learn from, and that's a really inspiring attitude to have towards what life throws at you and can be applied to so many things that it's so easy to fall into the trap of worrying about. You have made my day
I don’t have a stoma yet I’m so thankful you’re doing these videos - it’s such a great way to normalise having one and a great way to give comfort to other people who are going through the same situation. Thank you Hannah for being so positive and informative 💕
I'm in the States, and - as far as I know - we don't have accessibility bathrooms that use radar keys! What a great idea, we should definitely have them out here!
I’m so excited to see your face again and so excited to learn more about Mona the stoma and caring for stomas in general! These videos are great education for everyone. Love you x
I'm a medical student and it is really great for my, that you are so open about it all. Doctors teach us, but they donť have personal experience and people in hospital somethimes are not comfortable talking about it. Thank you soo much
You were looking so much healthier now yay. I also think it’s amazing that you’re just being open about this whole thing a lot of people have conditions like this and nobody talks about it good job go you you’re awesome.
Thank you so much for doing this series. I've been having some gastrointestinal issues lately and even though I know there's like a really small chance of something going Very Wrong, this kind of video is just like a big fuzzy tea-giving hug of "don't be scared". I can't imagine the comfort this would bring to someone who might realistically be facing having an ileostomy in the near future. You're an absolute gem you are.
As a med student, this is so interesting and useful! They don't teach this stuff in medical school, and now I feel like I know so much more about stoma care. Thanks, Hannah! :)
Thank you for this video! I worked as an EMT for two years and worked with so many patients with stomas but this video taught me so much and gave me a lot of appreciation for how you take care of it. Thanks!
My Dad had his colon remove due to his cancer, and we're from the Philippines where the care products are not so readily available, or affordable if they were, and it was so difficult and uncomfortable for him to change his own stoma bag, and my sister and mom and I would need to help him, and he'd rather be lying down through most of his changes. He's already passed and we donated what remained of his supplies after. Apparently some people who really cannot afford it will just use regular old plastic bags. I'm happy you're in a country, in a specific economic bracket, where your condition is better for you to navigate. It's the little things that can really rob people of their comfort and dignity. And I came here after your March favorites video, and of course I didn't even think about ~sexy times~ with a stoma bag having only my Dad's experience to go off of haha. Really glad you are well, happy and healthy. More power, Hannah.
Yes giiirl! As someone with a stoma since the age of 5 (but without the colostomy bag, I have something called an A C E procedure) This is such a good video! So glad to see someone being open about these sorts of nitty gritty things. Its amazing how fast you've adapted, and trust me, it just gets easier and easier with time 😊
As a nurse this was really interesting to see - I love the way you are so positive and open about it☺️ I‘ve seen patients who are so afraid of their stoma even years after getting it so it’s nice to see how comfortable you seem :)
Also lovely to see ur getting better - keep up the great work❤️
Loved this! It’s so great that you’re raising awareness of stoma related things, I was basically clueless before watching your vids
I did not know radar keys exist... that is smartest thing ever!
Imogen Weatherhead yeah theyre brill. Alot of public disabled toilets are locked so you normally get radar keys if you need it
I got first radar key about 10years ago but much smaller now,I paid for it but you can get it free,
If in UK and have colostomy join colostomy association UK,you get magazine and loads good info,holidays for children and help,phoneline,I have ileostomy now but still get magazine,listening to other peoples stories makes living with stoma so much easier
Its just always good to learn about others. Makes you appreciate what some may go through. And to see you upbeat and not whoa is me, really is a good thing.
This was so interesting❤️❤️❤️
My mom has had a stoma for like two years now and even though everything you showed lays around our house somewhere, I didn't know what all of it was for and I never really dared to ask her about it, so this video definitely helped! Thanks for being so positive and strong, Hannah!
Wow, you were right, you’re getting so ginger! This was absolutely fascinating though, thanks as always for sharing :)
Hannah - I've had my stoma for 18 months and now know loads of people with one through FB groups- but ... Why do you wipe your bag with kitchen towel, which you then have to put in a scented bag etc?
I'm wrecking my brain trying to figure out why you don't use loo roll, put that in the loo and flush!? No scented bags or any bags needed for the emptying?!
I sit down, empty into the loo, wipe it with toilet roll, flush - finish!
I have been lucky I think but have never had a leak, so never bring anything out with me - not to work or anywhere. Well except if I'm going away overnight!
I've had many operations since I had my ileostomy but the final one will be 21st March where the stoma finally gets put back inside! CANNOT WAIT!
Good on you for making such positive videos about it and being so upbeat about it! I hate to admit it but since I've had mine I have HATED my body and my confidence has GONE!
This brought back a lot of memories! I used to care for a disabled man who also had a stoma/ostomy bag and since he had no use of his arms or legs I would change it for him twice a week. I was nervous at first but after a while I got used to the steps and found it quite fun in a weird way. He has since passed away so I haven't had to change a bag in a while but have loved hearing your perspective on it!
I love this kind of videos, they are entertaining aswell as educational. Just, love it. Also, yesterday my ten-year-old niece saw a picture of your stoma in Instagram over my shoulder, and was curious, so I had the opportunity to talk with her about stomas and people who need them and why they have them and stuff like that and, OMG, do I wish that somebody had told me all that when I was ten. You are awesome and even through secondary influence, you impact so much people. Love you, Hannah, and I am so glad to see that your are recovering so well. You go, girl!
I've never heard of a radar key but I love the idea. In the US the handicap accessible toilet stalls are a free for all and people full them up unnecessarily because they like more space. It makes me so grouchy.
Melissa Stephan I know exactly how you feel. My mom is severely disabled and I hate that people use the handicapped stall like all of the other regular ones and she is left waiting and with her disabilities, she doesn’t have much time to wait. That or when restaurants don’t have a handicapped stall at all. It’s a struggle trying to help her do a normal daily task without consideration from companies. We learned very fast that 1. You can’t fit a wheelchair into a regular stall and 2. Some people need to use the stalls that are available to them and not the one that is for someone who is handicapped. Just because you want more space or the others were full isn’t a good excuse to give someone with a disability
Thank you so much for making this video and sharing your journey with IBD and a stoma. I use to work with newly diagnosed IBD patients here in the US and so many people are afraid to discuss their experiences openly, including one of my best friends who has UC. It so great to see this information presented in honest and normalizing manner. I have shared your channel with some patients and families that I still have contact with because I think is so inspiring.
This video helped me so much! I don't have a stoma, but I have diabetes and I have to carry a lot of stuff because of it. It amazes me how you can be so confident with your illness. I still didn't accept mine, and have a really hard time just getting into the mindset of "I have to do this for my whole life now'.
I love how well you've embraced this. I recently got diagnosed with type 1 diabetes and I feel totally the same way. Sick for so long, just happy it's over! 😙❤❤❤
i really like all these stoma vids they're so interesting! before you had the operation etc i didn't have a clue what a stoma bag even was but this is so informative & fun 10/10
Hey, I'm a medical student and watched some of your video's before this all happened, pretty awesome to see you coping with (passed) disease in such a personal way. Thanks for sharing!
50 seconds in I'm like both relieved, disappointed and curious.
Thank you for sharing this part of your life with us. Your attitude alone is inspiring. You've always been candid, informative, and entertaining about everything you've shared on your channel, so it's no surprise to see you speak about this new part of your life so genuinely. You're a role model for so many!
Hannah, you are so positive! I wish more of us could face life with such a great attitude.
The nappy bags are such a good idea. Idk if it's something lots of people do (my friends always find it weird) but I carry dog poo bags with my sanitary towels/tampons incase I'm anywhere without a sanitary bin. Like a friend's house or I've been to some a stadium that only has bins in a quarter of the toliets. That way you can either put the tide up bag in the bin, or slip it back in your handbag till you find one!
I really enjoyed seeing this. My grandad has a stoma and I've never really understood or felt like I could ask about it. It's so lovely that you are so open and honest about it. It's really opened my eyes to what it all means and does. Thank you for being so happy to share!
I have a colostomy and appreciate your situation. Here is Australia we have a great support network. I have had my stoma for about 9 years now so it's a second way of life. I carry a similar supply of essentials with me daily. Best of luck for the future and hope that you enjoy the way your stoma makes life easy again.
I have a stoma and completely rely on my stoma travel bag!! I can guarantee you you will need it at some point. I would also recommend carrying more than one fresh stoma bag with you. Sometimes, when you have a leak, it's like your stoma is playing up and creates leak upon leak. I always find it handy to have at least 3 changes with me - just in case! It seems like you're so savvy already and I wish you and your stoma all the best xx
you're looking really well hannah, glad you're on the mend and feel comfortable talking about this. rooting for you. take care
You are seriously inspirational! I love how blunt and honest you are about this stuff!
The turquoisey-blue colour of your care bag is gorgeous! I'm so glad that nice looking things are available that fit needs for people with medical requirements 😁
I ADORE THIS TITLE
I know you said you were kind of testing yourself doing this video and I’m a nurse and I can say you were spot on with everything and very informative too!
I first read that as ‘what’s in my stoma?’ And my first though was, ‘shit she really is taking the joke this far’ Haha
Lol I asked my stoma nurse why did you go to working in stoma side,she said ,I was a shit nurse so became one,I laughed way back in 2008 as her humour got me through what could have been bad time,its not the end of the world a stoma but my colostomy was easier than now ileostomy,
I dehydrate alot as out put water and burns skin,but bowel away and you can get joined up with ileostomy but dont fancy running to loo altime.bag easier,
Well done on making this video
Can I just say 1) I really enjoyed this/ was really relieved it was what it was 😂 2) you sound and look so much healthier physically compared to your first post hospital vid and it’s truly lovely to see x
Hannah I’m so proud of how you have adapted to your new lifestyle and how open you are x
I’m a doctor and Ive seen these but I never thought that stoma requires so much intensive care..!! Loved the video
So as a fellow ostomate I can empathize with you a lot. I told you in another video to make sure to measure your stoma every time you put a new bag on for the first 3-4 months post op. After that only measure your stoma every two weeks or if you gain or lose weight. When I first got my stoma I was 1 3/4” in stoma size and now I am just at 1”. It is crazy how small it is compared to when I first got my stoma. I also use medical adhesive spray and those Coloplast strips to get my bag to stick very well. I have been just at 4 weeks leak free knock on wood. I am always trying samples of new bags to see if I like something better then what I have now. Currently I love my Marlen MiniMax Convex Opaque Drainable One Piece Bag. Marlen is a small ostomy company but it is my perfect bag because it is only 7” long verses the standard 12” inches and opaque and convex and drainable and one piece. However I am trying some Hollister bags currently to see if I like those better. I have one small bag I carry around with Eakin Barrier Rings, Scissors, Adhesive Remover Wipes, Medical Adhesive Spray, Skin Barrier Spray, Stoma Powder, a measuring template, 2 pre cut bags, coloplast barrier strips, and small disposable bags. So enough for two bag changes and I keep a spare outfit on hand just in case.
Havent watched one of your videos for a few months so was sorry to see things went bad this way for you, but also very happy to see you accepting and coping so well too Hannah. Hope things continue to go well, your video brought much cheer to me when I needed them earlier - love your smile, it hasnt changed at all!
Hey Hannah, I have been subscribed to your channel for quite a few years an have always enjoyed watching, but I have been really interested in your recent videos about stomas and so on. I had never encountered this "world" before, but I wanted to thank you for sharing because I feel so much more enlightened and aware now, and I love how you manage to make the videos mainly informative/fun rather than pitiful or anything else similar - I am sure many people feel the same and you have spread awareness of the condition very effectively. All the best and I am so pleased you are recovering well xxxx
Your openness about having a stoma bag is incredible. It will inspire and improve the confidence of many young people who also go through life with a stoma bag. Keep up the good work! 💕💜
Radar keys are so useful there's never a waiting line either!
Lucy May when there rarely is, everyone’s super friendly to each other too (usually) x
I've been in a wheelchair since birth and I only got a RADAR key in 2015, when I had a serious op. I was told it was £5 to get one, so I never did !!! LOL
Rob Murray I was thinking that !! I was born with a progressive condition (I am wheelchair bound) and I only bought one last year 😂 xx
The only downfall is the judgemental staring 😥
This is why I never ever comment on someone using the disabled loo UNLESS they apologise or say something to indicate they didn’t need it in the first place! My disability is technically an invisible one (although for myself it has many visible things, such as I’m a wheelchair user) & Id hate the stares! It’s not fair, if you have a genuine reason/need to use that toilet you shouldn’t have to deal with judgemental assholes! x
I’ve been watching your videos for about 2 Years now, and they’re always super interesting and informative and this one was no different 😍 I feel so privileged to listen to you tell us about your stoma / anything stoma related. You’re continuing to do so more good by sharing your journey with us, as many of us would be clueless (like me!) otherwise! :) thank you for always being great, whatever the video topic!! X
Elastic tape is an actual life saver for me!! Really enjoyed the video...It's made me realise I have no clue where my water carrier is! Also, never thought to carry water spray in my travel bag so will definitely be looking into that!!! Just to let you know, you can use toilet roll (just fold a bit more) when you're emptying your bag so you don't need to worry about kitchen roll and needing bins!
I've loved learning so much about your experience with stoma care. It's so enlightening!
I'm not sure what kind of purse carrier you are, but I'm on public transit all the time, so I carry a tiny backpack. I also bring a water and book (and journal) with me everywhere. They also make it much easier to be hands-free, and since they're coming into style, a lot of groovy ones are being made!
Just seen you on TV and what a delight that you talk so openly. I have had my stoma for 41 years with no real problems.
Dear Hannah,
I will have to rewatch this after some research.
Thank you again for being so open about this subject.
This is really great to learn about, because my nan had a stoma bag when she had cancer and I didn’t realise how she had to take care of it. She’s had her bowel reversed now so she can poo normally but it’s nice to actually know what she went through. xx
It’s a credit to your personality how you’re handling all this so gracefully :)) sending positive vibes xxxx
Im amazed you are so cool about all the stoma thing.
I understand for you its a total relief and im glad you are happy with it.
My aunt has been doing everything the past 10 years to avoid getting a stoma. Currently she is getting a treatment only another person gets in the country because its so special and its a last resort thing.
So for me the way you are cool about it is just new.
I’m currently in hospital day 3 post total colectomy, this was so helpful and uplifting. Xxxx
This has really opened my eyes and you've made me and probably thousands of others more aware of stoma bags etc. You are honestly so brave and i'm thankful that unlike other youtubers i watch you help make your audience aware of things. Also this was definetly the most interesting "Whats in my bag" video i've seen
You're looking so much stronger I'm so glad! And thank you for using this to still help educate people.
I found this so interesting! I have some medical issues (not UC) and find it so interesting to hear about other people and what they have to do for their own medical things. So glad to see you’re still managing to be so positive is so nice and inspiring to see!!
Thank you, thank you, thank you!
I'm 29 and have had a stoma since I was a few days old. I've been using the same 1980s technology of appliances since then and haven't spoken to anyone about it ever. I've felt so alone about the stoma, especially when things haven't been going very well. I didn't know about other brands, I didn't even think about the pot of water trick!!!!!
I come from a very conservative Irish Catholic household, where I was always pretty much sworn to secrecy. I've finally after 29 years, made an appointment with a stoma nurse and I'm going to finally be able to talk to someone and tackle the few issues I've had with my stoma.
I'd like to thank you from the bottom of my hear Hannah. The idea that this is being. Normalised on TH-cam by one of my favourite youtubers and it's ok for me to get some help and advice is just beyond words. Thank you for all that you do.
Anna. X
This is fascinating, please keep making videos like this, I've learned so much from these and it's so interesting. Also, your accent is beautiful and I could happily listen to you talk for several hours
I love how openly and full of confidence you talk about your stoma, you're so inspirational! ✨
Hannah, that was so interesting! Its really great to see how you've adapted to this lifestyle with such a positive attitude, and are able to make it a fun conversation rather than something bad. I'm sure a lot of people with similar issues to you are really enjoying the breath of fresh air around the subject.
I found this so interesting to watch! It's always a joy to watch you, Hannah, your attitude and outlook on life is so refreshing.
This is so so interesting!! Thank you for taking a joke and making a great video out of it :D
oh hey sonia!
Glad your recovery is coming along so well and that you are able to keep a positive attitude. I recently had to pull hospital duty with an inmate who had a stoma (I am a correctional officer.) Lucky me was there when they had to change it. Since my wife was a paramedic and I have listened to quite a few war stories it really didn't bother me and I found it quite interesting albeit pungent. They used a type of wax that was made malleable by hot water to seal the bag to the skin. Keep up the good work with your informative videos and God Bless.
My mom just had to get an emergency stoma and I think thanks to watching you and being informed about what it is I did not freak out so much!
Hey Hannah,
Im going to preface this by saying that i hope this isnt patronising in any way and im sorry if it is. But i just wanted to tell you that i think youre doing a reallly good thing in regards to your openess and just how positive and unashamedly youre talking about all your stoma care and experience. I'm a nurse and ive had a couple of patients with stomas, i had one lovely lady recently who had a really similar situation to yours but the onset of her illness was relatively sudden, she was experiencing a lot of depression and anxiety after the surgery in regard to the stoma, I showed her a couple of your videos and your insta and i think its really helped her. Just thought you might want to know that!
One of my best friends has a family history of ulcerative colitis, so this was really awesome to see if she or her parent ever had a stoma.
Side note: you are looking so much healthier and I’m so glad you’re recovering well.
I am a student nurse so it’s really interesting to see how people care for their stomas
Hey Hannah! I have a permeant ileostomy and you are so awesome! Great to see people with bags being open and positive about it. Keep doing you thing girl 💁🏼♀️😘