@@hannabookloverI am so incredibly lucky! she has helped me navigate my own disabilities and medical traumas in such a pivotal way. also top is from ross 🙏
@@hannabookloverI am so incredibly lucky!! she has helped me navigate my own disabilities and medical traumas in such a pivotal way. I am eternally grateful🫶 also top from ross🙏
She keeps saying "I was 11" or "I was 13" to stress that this was a situation she couldn't deal with. Girl, i'm a whole a** adult and the situations you were put in would be compleeeeetely unbearable for me. You are an amazing young woman!!
Agreed. Thinking about nurses taking 20 mins to find a vain on me!? i had one bad blood donation experience 8 years ago at 20 years old and I still feel it viscerally when I think about it. She was just a baby, its all too much even for an adult.
As a British man, I find it staggering that common medical issues for women such as period pain, endometriosis and adenomyosis are still very slow to be acknowledged, diagnosed and to be treated. This is changing but far too slowly.
@@tenderstepsPaulthank you for your words!! It feels nice to see any form of understanding. I’m almost 40, and sometimes my period cramps get so bad…for a normal person this would be cause for a doctor’s visit or time off work/school, and knowing it’s “just our period” we’re expected to push through! Same with pregnancy, there is some crazy sh*t that happens and we are still expected to go to work and act normal. It is the worst.
Deadass how hard would it have been for her new doctor to contact the previous hospital and confirm her diagnoses? So much abuse and evil for no reason.
Power trips. Lots of doctors and surgeons have that god complex, as their peers in our job we need to put them in check and report to superiors immediately. Youd be surprised though at how the hospitals will vouch for some of these people especially if they have great insurance and lawyers
it happens ALL of the time. I grew up with a "medical mystery" that got diagnosed after 4 years. if my doctors had actually given a shit about me and done some more research, it could've been figured out so much faster. but I also got the "it's all in your head" response from so many.
Devorah actually asked me this during the podcast! I’m not sure the exact time mark. The hospital that I was originally going to where my care was established is a big chain hospital. So if my doctors did loudly speak out, not only could they be sued, but the hospital too. 2 of my doctors actually wrote into the courts stating that they believe in my original diagnosis of mitochondrial disease ext and they believe my parents were not harming me. by doing this, they put their careers on the line, to this day I am still extremely thankful for that. But unfortunately, that alone was not enough for the hospital to believe me. By the time my doctors put in those notes I was already taken in. The process was too far gone. But, when I was taken, my parents got a geneticist who specialized in mitochondrial disease and he confirmed my diagnosis and stood trial on my behalf. I know without him I probably would have never went home.
@@skyler4569 Guuuurl you are so incredibly strong. I totally get It’s not easy to file a malpractice lawsuit but what you’re doing right now which is so hard to talk about all this but 1) I think it’s gonna be a great healing journey for you to continue telling your story, 2) I know you can get a lot of support if you continue and hopefully you’ll find Lawyers that will do this pro bono & find a geneticist that hears about this story and takes on your case. Because that hospital has to be held accountable. I know that your focus is on your health and stress makes it more difficult for us with chronic health conditions, however you are well spoken Your genuine your kind and you’d be an absolute amazing advocate to help bring this to light & stop this hospital from doing this to others. I know you’re gonna get so many more views & I know so many of us will be here to sign petitions, donate to go fund me, write letters, & whatever many could do to support you. Just know you have a lot of supporters that you’ve never met before & we got you!! I wish you and your family nothing but the best ❤
I'm 38, and I just figured out that I have hEDS and the comorbidities. The medical PTSD is terrible, because I was forced to believe that my mind was creating the pain, even though no psychological technique did anything. Honestly, I still can't let it go yet, and still get angry at myself for "creating imaginary pain" even when I am blue with Sp02 in the 60s😢
same. i was told for years on end that my symptoms were "anxiety" or "depression" yet no mental health drugs were helping whatsoever, for YEARS. finally found out i have a neurological condition that got way worse because i was forced and pushed to be "normal" when i was actually disabled, but because my disability was not visible on the outside to the degree people wanted to see, including doctors, i was told i was making it up. my heart and blood pressure issues, constant fainting, extremely screwed up periods, i was told i was controlling these things to do them for attention. when i finally found out i had a neurological syndrome, my family members i was living with at the time (im low and mostly no contact w them now) threw all my paperwork away and told me i was "possessed by demons" and did forcible exorcisms on me. it was almost 10 years later they finally believed me bc one of them found out they have an autoimmune disorder. however they just changed their beliefs to "these medical problems are caused by demonic curses on the bloodline that can only be broken by devotion to god". almost 20 years of extreme devotion to god and yet they still have an autoimmune disorder. huh. interesting.
I'm chronically ill myself and you actually would not believe how dismissive many medical professionals are to chronically ill patients. Most doctors only know how to treat healthy people who have temporary/minor problems. My issues while complex have thankfully never been as severe as this poor girl's, but I empathise with her frustrations completely. The medical industry is still a business at the end of the day. Patients that aren't able to bounce back and be sent on their way are often seen as problems. My heart aches for all those who are unable to access the care we deserve!
I also had doctors think I had anorexia when I was losing weight due to my health issues. It's because EDs are seen as something common that young women go through, but it's not common for young people to have such complex health problems. Just blatant dismissal of women's health, perpetuating misogynistic narratives such as "young women are known to lie and starve themselves". That's a paraphrase of what my old GP told my mother in regards to my issues.
@@nikfiendluvr666i have a rare disease and when I was 13yrs old, I was put on the highest legal dosage of prednisone. 100mg/day. For 5yrs. This is unheard of as it causes a ton of issues. One of the main ones is weight gain. I was over 300lbs as a teenager from this. I also was anorexic from the relentless bullying of me gaining weight from the medication. What did doctors tell me? “Eat less.” I remember a Nigerian nurse telling me that before leaving my house one day and I tore her apart. I was literally not eating for days at a time, and when I did, it was 400calories/day or less. I was huge from the medications. They need to do better.
My POTS deteriorated for two years because I was somehow both the worst case they’ve seen and a malingerer, now all my muscles are atrophied and I’m finally being treated. Some doctors are so horrifying
I’m a nurse practitioner and watching this in complete horror. I’m so sorry this happened to you. Your resilience is amazing. This is a big reminder for me to listen to patients and never let my ego get in the way of my medical decision-making. Thank you for your vulnerability ♥️
Bless you 🙏🏻 We need more ppl in the medical field that actually care. You are very much appreciated!! Hugs 🫂🤗 from a chronic pain patient with several rare autoimmune conditions (my oldest daughter also has the Isaac's syndrome, but thankfully she's being treated with IvIg treatments every 3wks) Medical PTSD is real... I have a hard time advocating for myself, although with my kids I'm mama bear, no problem. I think I need a personal advocate, lol, but seriously. Can't imagine going through this as a child 💔💔
This is infuriating. “Professionals” on so many levels failed this lovely young woman. I hope they all have learned from this experience so they don’t harm other patients and families. They should all be sued! So happy you found the strength to speak out about this atrocity.
Being stuck in a hospital is absolutely miserable already. Being away from your family is miserable. I don't understand how a healthcare worker, someone who willingly chose to help people, can be so mean for no absolute reason to the most vulnerable people, and especially a child. What kind of a monster are these people. You are so incredibly strong for making it through.
This is terrifying and infuriating. Those doctors ignored all reason and let their egos tear a family apart and almost end a child's life. Thank God her family got her back. She is so sweet and articulate.
Its horrific that the system does not require secondary medical opinion (such as a childs previous doctor) before allowing a child to be taken out of the custody of their parents for suspected medical abuse. It's even more horrific that it would be her familys responsibility to sue the hospital if they wanted any justice. This shouldnt be a civili issue, it should be *criminal* to do what these doctors did. The system is so broken
Completely agree. If there is a "cost" to their behaviour people pay far more attention. A criminal issue focuses the mind of those potentially abusive people. Sadly, project "hate" and it is better understood than love.
This reminds me of “Take Care of Maya” but the Mom was a nurse and eventually unalived herself out of frustration and hopelessness 😢😢😢 They went on to win their lawsuit …love and light to Skyler!! And she mentioned The show in the last 30 seconds of this video!!
That documentary had me sobbing, it’s absolutely heartbreaking and freakin infuriating. I can’t imagine the absolute anguish the parents would feel when they’re trying so hard to just get their child care and be accused of making it all up:(
as someone that also has eds, pots, and much more all the while my family was also accused of munchausen by proxy, this harrowing story makes me feel a bit more seen in the world. thank you for telling your story so beautifully and for being so raw with us. it means more than you’ll ever know💛
this hospital needs to be outed to warn other families and SUED. i know how expensive it is to sue, let alone a hospital. but shit, this seems to be a highly common thing these days and most families i’ve read about don’t have the funds to fight back. i’m so glad your parents did everything they could to beat those crazy assholes in court to get you back, and i’m glad you are in better health! thank you for sharing your story. it could help many others.
My aunt had a central line and she told her doctor she thought it was infected because it was painful. He told her she didn't and send her home. She ended up with a blood infection that almost killed her. It was really hard as well because she had to keep seeing this doctor anyways because her condition is rare and there weren't many specialists in our state. It also took months to even get a single appointment with this doctor. These situations are so common and so sad.
This is absolutely terrifying. As a Surgical technologist, my oath is to first do no harm and it is without a doubt these “professionals” if they can even call themselves that, did exactly that to you and your family. Im so sorry there are still flaws in “the system” and that you suffered as consequences of that. You are a very strong, and brave young woman. By telling your story you shed a light to problems that would otherwise be unknown. God bless you.
I’m from the UK and had a similar experience. My mum was falsely accused of Munchausen Syndrome by Proxy and I was trapped in hospital for 17 months. I only got to go home after my health deteriorated so much that I nearly passed away and I was finally diagnosed with an autoimmune condition.
To anyone interested in medical cases ive been listening to petal palmer a little bit under a year now. She goes over medical crimes and cases. I heard a case very close to home because of her.
The recognition of individuals who receive diagnoses, then have them taken back, and then dealing with the repercussions from finally understanding and having that taken away is so validating and important. I LOVE this podcast, and this is why.
I am so sorry you endured this. There’s two huge documentaries that blew up about this. This is my worst fear as a new mom. I remind my husband we need to be careful what we say/do around medical staff at any doctors appointment for our 4MO old son. The state can do anything they want, whenever they want- the insurance billables they get for forcing patients to stay in care are in the millions of dollars!
@@10milestereotake care of maya , her mom committed suicide and she won millions and the other one is The Battle for Justina Pelletier on peacock. I’ve watched both of them and as a parent it scares me.
I cannot imagine being in her shoes, I’m 40 minutes in & I’m angry. My own medical journey started when I was 13, and it was & sometimes still is a nightmare, I’m so sorry this happened.
this story was absolutely insane, i can’t believe she had to go through all this she’s so resilient. This episode brings awareness to so many rare disorders and issues within the medical system, just amazing episode.
Same thing happened to Justine Pelletier. She has a mitochondrial disorder and Boston Children’s hospital accused parents of abuse because they didn’t want her treated there. As someone who has a mitochondrial disorder, I know how the medical community treats anyone that can’t be diagnosed easily. Especially girls and women. The lack of empathy and consideration for patients is astounding. As if anyone chooses to be unwell. More people need to know what goes on.
It's so sad because just yesterday I was listening to Emma Kenny story about a woman who murdered her daughter in a munchousin by proxy case in Colorado. And to think when medical professionals SHOULD have been involved they weren't and in Skylers case they overreached so heinously. Very sad and I'm so sorry for her parents too.
This is crazyyy! I’m in the first 15 minutes & she’s discribing everything that my son has gone through. He’s 8 months now but he has his central line getting his TPN. hopefully not for too long. He also has an NG tube through his nose at 3 weeks old when he was diagnosed with failure to thrive. I also remember when they tested my son at 2 months with that chalky milk stuff. They ended up finding that he had a malrotation in his small intestines. Thankfully everything’s looking well :)).
Oh my god. I relate so much to this. I was diagnosed with gastroparesis in 2021. It came out out of nowhere. At the same time, I found out I had slipped rib and snapping hip syndrome which was all associated with EDS. By the end of 2023 I was 5’10 and 94lbs. I sent myself to the hospital and found out I was dying from failure to thrive because I could not eat. I was put on TPN in January after over a week at the hospital and now 9 months later I’m 140lbs. I too take motility meds and 4 different laxatives to combat my severe constipation (would go weeks without a BM). The side effects are UNREAL. To top it off I recently had an picc line infection scare and when I went to the hospital the doctor ripped off the dressing and touched my line with NO GLOVES OR MASK I cried for days. It’s terrifying. This episode hit me so hard. I now have a diagnosis of MALS which can be related to EDS and have surgery coming up to hopefully fix the compression. Girl, I want to be friends 😂❤
If you already had the surgery, how did it go? ❤ Hope you're doing well overall that's terrible... No gloves or mask on a medical professional for anything?? That's terrible 😮
@ funny you ask, I just had it yesterday and I just came home today! I’m feeling pretty okay just in pain and trying to stay away from the heavy pills. And yeah they were so unprofessional. My picc line is my baby and I don’t let many people touch it 😭
OMG this is medical abuse. I'm so sorry you and your family went through this Styler. I hope you you sue the shit out of that hospital. I"m a Nurse in Australia and the patients have rights
@@KM-ld9ln unfortunately I did too. especially hearing about her childhood experiences being sick and constantly in pain. It’s a miracle kids are so resilient, the medical trauma lasts a lifetime though. :(
Wow amazing episode! I’m also *SO* glad she mentioned the documentary ‘Take Care of Maya!* That story is absolutely heartbreaking and so incredibly frustrating knowing that these things happen way more often than we realize. I highly recommend that documentary. ❤
Her parents are everything! ❤ So proud of her for sharing her story and even more proud to see two parents who genuinely love and care about their child. Horrible yet beautiful story of a family that does not give up. Thanks for sharing. ❤
As a disabled person who dealt with a lot of this dismissiveness when I was a younger kid, this was my absolute worst fear. I’m so sorry that you had to deal with this. ❤
They thought they were doing the right thing and helping an abused child. Had they done nothing and it was abuse, she’d be here talking about how the doctors did nothing to help her escape abuse. The problem is with the system itself, not the individual doctors who were just doing their best and trying to help.
@@erinerinerinOOO I don't know why you're standing to defend the doctors and professionals that yelled at her, gaslit her, hit her, wouldn't take no for an answer, and put her through this hell. I agree that there's a large systemic failure happening here but you have no idea who those doctors are or what their intent may be. There are horrible people in every field but guess what, psychopathic, sadistic and evil people are drawn to the medical field not only for the money and prestige, but because they have power, and a LOT of power, over vulnerable individuals.
@@erinerinerinOOOdoctors don't give a shit about the patients lol they are only there for the paycheck and so they can say they are a doctor. they literally get paid more to misdiagnose people and push drugs they don't need.
This infuriates me to no end! I am SO sorry you had to endure this disgusting negligence and mistreatment from “professionals” who were supposed to help you, especially when you were so young and feeling physically awful. I have very similar health issues and went through a similar situation. Mine did not end in foster care thank God, but it was TERRIFYING the entire time and I have blocked out most of the memories bc it’s traumatic. Prayers that you continue to heal physically and mentally, you’re amazing for sharing this incredibly difficult experience!
Thank you for sharing such an important story to raise awareness. The risks of improper sanitation with Picc lines both in hospital and out-patient are minimized by US practicing physicians to this day. Kaiser did that to my room mate this month. The OBGYN and Infectious disease doctors confidential told the patient picc lines do Not go all the way up a vein near or inside the heart. I had to get them to bring the picc line nurse in to educate them.
I had the same thing happen with CPS when I was in the hospital for a port infection. The hospital was Wolfson's children's hospital. They are horrible. They said I was faking a port infection and tried to rip me away from my family (I also have POTS, EDS and muscle issues and had a feeding tube and port at the time.)
That would be nuts to have a couple both diagnosed with fictitious/MBP. How ridiculous! My aunt was diagnosed (and sent to prison) only after a second child in her care became mysteriously ill.
I’m only 10 mins in and this poor girl. So many careless “professionals” testing and treating her, making such mistakes. What a strong young lady. -17 mins in. She’s so well sooken. I’m sure she matured well before she needed to as a child. -30 mins in, infuriating! Hospitals are the worst! Omg. This poor family and the trauma! -45 mins in and they need to sue this hospital. This is horrifying!
I think this is an excellent way to show why access to geneticists is critical. I was diagnosed with EDS at 16 because I was very fortunate to have a parent who knew exactly what was wrong with me, because of family history. Geneticists are very important especially for younger children who are susceptible to chronic pain.
So many doctors have given me trauma as well. What I experience is NOTHING compared to what happened to you, but no trauma at all should be given to people who are coming to you for help just LIVING. Way too many medical professionals abuse their position. What happened to “I will do no harm” ???
I'm so sorry Skyler ❤❤ peace and blessings to you 🙏🏾🫶🏾 thank you for sharing your story. As a previous healthcare worker I am sickened when I hear about the misconduct and unprofessional that was used around you and your family.😢
OMG this is actually an horrific and traumatic experience for a child to go through, she was failed by the medical health system and the care system if I was her and her parents I would take this further, I'm so sorry you had to go through this 😢sending prayers 🙏❤❤❤
On the dysautonomia support groups a lot of folks post about their sick children being taken away. Unless it's MS, Dysautonomia is still barely touched on in med school. For POTS, it still takes an average of 9 years to receive an accurate diagnosis.
Skyler thank you for coming on Devorah’s podcast and sharing your story. You are a very strong beautiful young lady and I wish you the best future from this point on❤️👌👍🙏🏻
Thank you for giving me the platform to share my story🤍 I am so glad I could raise awareness and hopefully help someone in the same situation that I was in.
Gosh this was so infuriating to listen to, all of the negligent medical professionals and police officers. You were so young. ☹️Proud of you for being fierce.
My struggles are so similar (vEDS) and I've been treated so badly by hospitals that just don't know anything about the disorder. It upsets me so much that so many people are going through these things.
This is absolutely horrifying. I’m so sorry you went through this, Skyler. I wish you nothing but the best, much love to you from a fellow chronic illness girlie. ❤
As someone who struggles with a chronic illness of the pancreas and stomach.. who was on IV nutrition for a few times, I only have strong support for you. I dealt with the medical establishment as an adult and it was often challenging. I’ve found good doctors and an empathetic and caring hospital for me to go to when I have flare ups. I know how difficult it can be when you go to one who doesn’t know you. They can sadly inflict all sorts of damage. Kudos to you and your family for everything you have had to go through. I wish I could give you a hug. 🤗
I’m a caregiver for a disabled family member who has some serious medical trauma and it really is a special kind of hell to work through. Sending nothing but love and healing!❤❤
I was just diagnosed with hEDS with POTS and I’m 40. Been dealing with so many health problems since I was her age too. I heard so often how “lazy” I was because they could never figure out what was wrong. I have had to seriously push to get a diagnosis because my daughter was beginning to go through all the same issues. I got seriously annoyed with people and family members that thought I was making all of this up for attention, even after the diagnosis.
@@jsmitala89 I’m sorry. It is a rough road to travel. I joined some chronic pain support groups and tried to build up a support network of friends that are understanding of my chronic health issues. I have been going to therapy and have been building my self confidence and self esteem. It has been helping, but it’s definitely slow work.
Thank you for bringing awareness to medical kidnapping!! There are so many parallels in this young lady's story to my son's story!! He was medically kidnapped 2 years ago at 9 years old. It was the worst experience of our lives!!
As someone who has chronic illnesses the medical field is absolutely exhausting. I have so much ptsd from it. I can't imagine the amount of trauma being medically kidnapped has caused.
I can’t believe that happened to you and others out there! I’m so sorry you went through all of that stress and pain. I hope that hospital gets what they deserve! They need to get sued, I know it’s so expensive and takes an emotional toll but there has to be a way to sue this place! I hope this story gets more traction and it enlightens people in healthcare to actually understand !!
As a mother, this is one of my greatest fears 💔 this poor young woman, and her poor mother. Many people do not realize the state power wielded by the medical system until they’re faced with it, and it is completely terrifying.
Yet another vivid example proving that human rights must be put above any other considerations; every person must always be allowed to decide their own fate; in case of very little children their parents can be allowed to make part of such decisions, but never any kind of _"services"_ shall be allowed to override a person's decision about their own fate
0:36 almost everyone is born with the hole in their heart and it does heal on its own for most. My sister had to have hers closed at age 31 when she got her lung removed and her anatomical shifting uncovered the hole in her heart, causing blood-oxygen issues.
i am chronically ill at 33 & disabled my whole life (not acknowledged), have not had my own dcfs case, and this still resonates. i have my parents in appointments because i was misdiagnosed so many times
Some doctors are good but some are bad. I have had some bad doctors in the past but now I have a very good palliative care doctor. If I have any problems with some doctors not understanding my condition or they don't believe that I can have all the problems that I have, then my parents tell them to call my palliative doctor and he explains it all to them
Pushing 70. One awesome doctor from age 12 until my 50s when he retired. Countless bad doctors (Soon as I found out they were no good I dumped them), finally found another good doctor in my 60s. He was almost 90 and passed after 3 years. Found another decent doctor through an acquaintance. And NONE of the good doctors take the insurance provided by the government. After they explained why I agreed with them. "Doctor" is no longer a calling. I have been lied to, gaslighted, talked down to by these so-called fake doctors. They absolutely do not expect a patient to be intelligent, educated, or question them. Catch them telling lies and call them on it? Oh no! You can't do that. They all seem to have a God complex. How dare you question me!? How dare you disagree with me!? How dare you not just shut up and take the drugs I say you should take!? There are an awful lot of people who should not have medical licenses.
THIS IS MY BEST FRIEND AND I AM SO PROUD OF HER. SKYLER I LOVE YOU SO MUCH
🫶🏻🫶🏻🫶🏻🫶🏻Bless her beautiful heart❤
Skyler is very strong and pretty! Y'all lucky to have one another ❤
Also, please ask her where she got that top from its so cute 👀
Your girl is absolutely brilliant!
@@hannabookloverI am so incredibly lucky! she has helped me navigate my own disabilities and medical traumas in such a pivotal way.
also top is from ross 🙏
@@hannabookloverI am so incredibly lucky!! she has helped me navigate my own disabilities and medical traumas in such a pivotal way. I am eternally grateful🫶
also top from ross🙏
She keeps saying "I was 11" or "I was 13" to stress that this was a situation she couldn't deal with. Girl, i'm a whole a** adult and the situations you were put in would be compleeeeetely unbearable for me. You are an amazing young woman!!
Seriously couldn't have said it better myself
I KNOW! Horrifying!
Exactly - institutional/medical abuse can happen to anyone. Most of my institutional abuse took place when I was over 18.
Agreed. Thinking about nurses taking 20 mins to find a vain on me!? i had one bad blood donation experience 8 years ago at 20 years old and I still feel it viscerally when I think about it. She was just a baby, its all too much even for an adult.
@@sadeinsummer12😊😊y yo😅yes 😢 m😢😢😢😢😢😢😢😢😊 B Uhhhh😊😊 I’m 😮happy 😅
Just another example of the medical field completely dismissing women and girls' problems. She's so strong for getting through all of that.
It's not just women and girls, there is a lack of empathy in the medical field.
As a British man, I find it staggering that common medical issues for women such as period pain, endometriosis and adenomyosis are still very slow to be acknowledged, diagnosed and to be treated. This is changing but far too slowly.
@@tenderstepsPaulthank you for your words!! It feels nice to see any form of understanding.
I’m almost 40, and sometimes my period cramps get so bad…for a normal person this would be cause for a doctor’s visit or time off work/school, and knowing it’s “just our period” we’re expected to push through! Same with pregnancy, there is some crazy sh*t that happens and we are still expected to go to work and act normal. It is the worst.
Deadass how hard would it have been for her new doctor to contact the previous hospital and confirm her diagnoses? So much abuse and evil for no reason.
Power trips. Lots of doctors and surgeons have that god complex, as their peers in our job we need to put them in check and report to superiors immediately. Youd be surprised though at how the hospitals will vouch for some of these people especially if they have great insurance and lawyers
@@gigismalls3683yes! I work at a dr office and I can’t believe how some of them thing they’re Gods and so much better than the peons below them!
it happens ALL of the time. I grew up with a "medical mystery" that got diagnosed after 4 years. if my doctors had actually given a shit about me and done some more research, it could've been figured out so much faster. but I also got the "it's all in your head" response from so many.
Devorah actually asked me this during the podcast! I’m not sure the exact time mark.
The hospital that I was originally going to where my care was established is a big chain hospital. So if my doctors did loudly speak out, not only could they be sued, but the hospital too. 2 of my doctors actually wrote into the courts stating that they believe in my original diagnosis of mitochondrial disease ext and they believe my parents were not harming me. by doing this, they put their careers on the line, to this day I am still extremely thankful for that. But unfortunately, that alone was not enough for the hospital to believe me. By the time my doctors put in those notes I was already taken in. The process was too far gone. But, when I was taken, my parents got a geneticist who specialized in mitochondrial disease and he confirmed my diagnosis and stood trial on my behalf. I know without him I probably would have never went home.
@@skyler4569 Guuuurl you are so incredibly strong. I totally get It’s not easy to file a malpractice lawsuit but what you’re doing right now which is so hard to talk about all this but 1) I think it’s gonna be a great healing journey for you to continue telling your story, 2) I know you can get a lot of support if you continue and hopefully you’ll find Lawyers that will do this pro bono & find a geneticist that hears about this story and takes on your case. Because that hospital has to be held accountable. I know that your focus is on your health and stress makes it more difficult for us with chronic health conditions, however you are well spoken Your genuine your kind and you’d be an absolute amazing advocate to help bring this to light & stop this hospital from doing this to others. I know you’re gonna get so many more views & I know so many of us will be here to sign petitions, donate to go fund me, write letters, & whatever many could do to support you. Just know you have a lot of supporters that you’ve never met before & we got you!! I wish you and your family nothing but the best ❤
Nothing makes me more FRUSTRATED when people write off symptoms PROVEN BY SCIENCE as a “mental health concern”. What a nightmare
I'm 38, and I just figured out that I have hEDS and the comorbidities. The medical PTSD is terrible, because I was forced to believe that my mind was creating the pain, even though no psychological technique did anything. Honestly, I still can't let it go yet, and still get angry at myself for "creating imaginary pain" even when I am blue with Sp02 in the 60s😢
same. i was told for years on end that my symptoms were "anxiety" or "depression" yet no mental health drugs were helping whatsoever, for YEARS. finally found out i have a neurological condition that got way worse because i was forced and pushed to be "normal" when i was actually disabled, but because my disability was not visible on the outside to the degree people wanted to see, including doctors, i was told i was making it up. my heart and blood pressure issues, constant fainting, extremely screwed up periods, i was told i was controlling these things to do them for attention. when i finally found out i had a neurological syndrome, my family members i was living with at the time (im low and mostly no contact w them now) threw all my paperwork away and told me i was "possessed by demons" and did forcible exorcisms on me. it was almost 10 years later they finally believed me bc one of them found out they have an autoimmune disorder. however they just changed their beliefs to "these medical problems are caused by demonic curses on the bloodline that can only be broken by devotion to god". almost 20 years of extreme devotion to god and yet they still have an autoimmune disorder. huh. interesting.
I'm chronically ill myself and you actually would not believe how dismissive many medical professionals are to chronically ill patients. Most doctors only know how to treat healthy people who have temporary/minor problems. My issues while complex have thankfully never been as severe as this poor girl's, but I empathise with her frustrations completely. The medical industry is still a business at the end of the day. Patients that aren't able to bounce back and be sent on their way are often seen as problems. My heart aches for all those who are unable to access the care we deserve!
I also had doctors think I had anorexia when I was losing weight due to my health issues. It's because EDs are seen as something common that young women go through, but it's not common for young people to have such complex health problems. Just blatant dismissal of women's health, perpetuating misogynistic narratives such as "young women are known to lie and starve themselves". That's a paraphrase of what my old GP told my mother in regards to my issues.
@@nikfiendluvr666i have a rare disease and when I was 13yrs old, I was put on the highest legal dosage of prednisone. 100mg/day. For 5yrs. This is unheard of as it causes a ton of issues. One of the main ones is weight gain. I was over 300lbs as a teenager from this. I also was anorexic from the relentless bullying of me gaining weight from the medication. What did doctors tell me? “Eat less.” I remember a Nigerian nurse telling me that before leaving my house one day and I tore her apart. I was literally not eating for days at a time, and when I did, it was 400calories/day or less. I was huge from the medications. They need to do better.
I'm also chronically ill and have an eerily similar story to this girl. it's so sickening how common this is. none of us deserve this.
Yup, I have EDS too & was told multiple times im drug seeking. Doctors don't believe women.
My POTS deteriorated for two years because I was somehow both the worst case they’ve seen and a malingerer, now all my muscles are atrophied and I’m finally being treated. Some doctors are so horrifying
All the random cats coming to say hi is my favorite part of each episode 😂
When they miau😂
seems medical kidnapping is the high peak of medical gaslighting due to absolute incompetence. i am so sorry for everyone who had to go through that
Incompetence from the doctors’ part of the patient’s?
Thank you. Our son was medically kidnapped 2 years ago. It was an absolute nightmare. He was only 9 at the time.
@@flamingomingo9810the doctors... Obviously
I’m a nurse practitioner and watching this in complete horror. I’m so sorry this happened to you. Your resilience is amazing. This is a big reminder for me to listen to patients and never let my ego get in the way of my medical decision-making. Thank you for your vulnerability ♥️
Thank you for helping people ❤
Bless you 🙏🏻
We need more ppl in the medical field that actually care. You are very much appreciated!!
Hugs 🫂🤗 from a chronic pain patient with several rare autoimmune conditions (my oldest daughter also has the Isaac's syndrome, but thankfully she's being treated with IvIg treatments every 3wks)
Medical PTSD is real... I have a hard time advocating for myself, although with my kids I'm mama bear, no problem. I think I need a personal advocate, lol, but seriously.
Can't imagine going through this as a child 💔💔
The best care I’ve had is by nurse practitioners. Bless you for what you do 💟
This is infuriating. “Professionals” on so many levels failed this lovely young woman. I hope they all have learned from this experience so they don’t harm other patients and families. They should all be sued! So happy you found the strength to speak out about this atrocity.
They got fucking paid for all this 😂😂😂
Being stuck in a hospital is absolutely miserable already. Being away from your family is miserable. I don't understand how a healthcare worker, someone who willingly chose to help people, can be so mean for no absolute reason to the most vulnerable people, and especially a child. What kind of a monster are these people. You are so incredibly strong for making it through.
Bravo to her awesome geneticist, lawyer and parents for never giving up. 👏🏾👏🏾👏🏾
This is terrifying and infuriating. Those doctors ignored all reason and let their egos tear a family apart and almost end a child's life. Thank God her family got her back. She is so sweet and articulate.
Its horrific that the system does not require secondary medical opinion (such as a childs previous doctor) before allowing a child to be taken out of the custody of their parents for suspected medical abuse. It's even more horrific that it would be her familys responsibility to sue the hospital if they wanted any justice. This shouldnt be a civili issue, it should be *criminal* to do what these doctors did. The system is so broken
Exactly
I know. I had family member starved at an AZ hospital.
They r too busy with criminalizing petty crimes an drug addicts lol
Completely agree. If there is a "cost" to their behaviour people pay far more attention. A criminal issue focuses the mind of those potentially abusive people. Sadly, project "hate" and it is better understood than love.
What’s crazy is that one of the doctors said there was no reason to suspect munchausens and they could leave, and his professional opinion was ignored
This reminds me of “Take Care of Maya” but the Mom was a nurse and eventually unalived herself out of frustration and hopelessness 😢😢😢 They went on to win their lawsuit …love and light to Skyler!! And she mentioned The show in the last 30 seconds of this video!!
she didn't delete herself she was mentally and emotionally murdered by this horrible system
@@dlwlrma7082exactly so she self exited….
That’s the one I was thinking of too! Her dad her brother are now struggling she won the lawsuit but that doesn’t bring her mom back
That documentary had me sobbing, it’s absolutely heartbreaking and freakin infuriating. I can’t imagine the absolute anguish the parents would feel when they’re trying so hard to just get their child care and be accused of making it all up:(
Deleted?
As a dietitian working with tube feedings and TPN, this was super enlightening as far as what patients go through. Thank you for sharing your story!
as someone that also has eds, pots, and much more all the while my family was also accused of munchausen by proxy, this harrowing story makes me feel a bit more seen in the world. thank you for telling your story so beautifully and for being so raw with us. it means more than you’ll ever know💛
I love how she talks. Her storytelling abilities are really good
this hospital needs to be outed to warn other families and SUED. i know how expensive it is to sue, let alone a hospital. but shit, this seems to be a highly common thing these days and most families i’ve read about don’t have the funds to fight back. i’m so glad your parents did everything they could to beat those crazy assholes in court to get you back, and i’m glad you are in better health! thank you for sharing your story. it could help many others.
My aunt had a central line and she told her doctor she thought it was infected because it was painful. He told her she didn't and send her home. She ended up with a blood infection that almost killed her. It was really hard as well because she had to keep seeing this doctor anyways because her condition is rare and there weren't many specialists in our state. It also took months to even get a single appointment with this doctor. These situations are so common and so sad.
This is absolutely terrifying. As a Surgical technologist, my oath is to first do no harm and it is without a doubt these “professionals” if they can even call themselves that, did exactly that to you and your family. Im so sorry there are still flaws in “the system” and that you suffered as consequences of that. You are a very strong, and brave young woman. By telling your story you shed a light to problems that would otherwise be unknown. God bless you.
I’m from the UK and had a similar experience. My mum was falsely accused of Munchausen Syndrome by Proxy and I was trapped in hospital for 17 months. I only got to go home after my health deteriorated so much that I nearly passed away and I was finally diagnosed with an autoimmune condition.
So tragic, I’m so sorry this happened to you. Sending love 🩷
This is insane. What happened to "do no harm", for real?
BIG congrats to you for surviving that nightmare, recovering by pursuing treatment despite the trauma, AND sharing your story. Medical trauma is REAL.
To anyone interested in medical cases ive been listening to petal palmer a little bit under a year now. She goes over medical crimes and cases. I heard a case very close to home because of her.
I’m going to look her up
I love Petal Palmer! Her videos are so interesting and informative
OMG Petal is amazing! I love her!
The recognition of individuals who receive diagnoses, then have them taken back, and then dealing with the repercussions from finally understanding and having that taken away is so validating and important. I LOVE this podcast, and this is why.
slightly off topic but i love how every episode the cats end up on the guests lap lol
I am so sorry you endured this. There’s two huge documentaries that blew up about this. This is my worst fear as a new mom. I remind my husband we need to be careful what we say/do around medical staff at any doctors appointment for our 4MO old son. The state can do anything they want, whenever they want- the insurance billables they get for forcing patients to stay in care are in the millions of dollars!
what are the documentaries?
@@10milestereotake care of maya , her mom committed suicide and she won millions and the other one is The Battle for Justina Pelletier on peacock. I’ve watched both of them and as a parent it scares me.
It makes no sense that the hospital was accusing both her of faking her sickness but also blaming the parents?
This is so scary. How terrible for a young child to go through this and then have to do it alone without her parents. 😢
Watch take care of Maya if you haven’t, this happens way too much!
Medical "professionals" not listening to women is one of the most outrageous thing I've ever dealt with
I wonder is she able to name the doctors and horpital without being sued or getting in trouble . People need to stay away from them
She’s so knowledgeable and well spoken. I’m sorry you went through this. Thank you for sharing, this is something you don’t even think of!
I cannot imagine being in her shoes, I’m 40 minutes in & I’m angry. My own medical journey started when I was 13, and it was & sometimes still is a nightmare, I’m so sorry this happened.
Same. At minute 40 I had to take a break and vent to my GF about this girls story. Literately blood boiling actions by these POS'
this story was absolutely insane, i can’t believe she had to go through all this she’s so resilient. This episode brings awareness to so many rare disorders and issues within the medical system, just amazing episode.
Brava on her understanding of everything that has happened medically/pharmacologically and her ability to explain and teach others. Best wishes
This is so messed up. What the doctors did to this poor girl and her family is disgusting.
Same thing happened to Justine Pelletier. She has a mitochondrial disorder and Boston Children’s hospital accused parents of abuse because they didn’t want her treated there. As someone who has a mitochondrial disorder, I know how the medical community treats anyone that can’t be diagnosed easily. Especially girls and women. The lack of empathy and consideration for patients is astounding. As if anyone chooses to be unwell. More people need to know what goes on.
I saw Justina’s story on Dr Phil recently, and listening to Skyler’s story felt identical in so many ways
I can appreciate being in microbiology, right now, so I could better understand this situation. How horrific this family was treated.
It's so sad because just yesterday I was listening to Emma Kenny story about a woman who murdered her daughter in a munchousin by proxy case in Colorado. And to think when medical professionals SHOULD have been involved they weren't and in Skylers case they overreached so heinously.
Very sad and I'm so sorry for her parents too.
This is crazyyy! I’m in the first 15 minutes & she’s discribing everything that my son has gone through. He’s 8 months now but he has his central line getting his TPN. hopefully not for too long. He also has an NG tube through his nose at 3 weeks old when he was diagnosed with failure to thrive. I also remember when they tested my son at 2 months with that chalky milk stuff. They ended up finding that he had a malrotation in his small intestines. Thankfully everything’s looking well :)).
I’m sorry he’s gone through so much at such a young age. Wishing the best for your son ❤
How was what that hospital did even legal so horrible ! As if she wasn’t going through enough
Oh my god. I relate so much to this. I was diagnosed with gastroparesis in 2021. It came out out of nowhere. At the same time, I found out I had slipped rib and snapping hip syndrome which was all associated with EDS. By the end of 2023 I was 5’10 and 94lbs. I sent myself to the hospital and found out I was dying from failure to thrive because I could not eat. I was put on TPN in January after over a week at the hospital and now 9 months later I’m 140lbs. I too take motility meds and 4 different laxatives to combat my severe constipation (would go weeks without a BM). The side effects are UNREAL. To top it off I recently had an picc line infection scare and when I went to the hospital the doctor ripped off the dressing and touched my line with NO GLOVES OR MASK I cried for days. It’s terrifying. This episode hit me so hard. I now have a diagnosis of MALS which can be related to EDS and have surgery coming up to hopefully fix the compression. Girl, I want to be friends 😂❤
If you already had the surgery, how did it go? ❤ Hope you're doing well overall that's terrible... No gloves or mask on a medical professional for anything?? That's terrible 😮
@ funny you ask, I just had it yesterday and I just came home today! I’m feeling pretty okay just in pain and trying to stay away from the heavy pills. And yeah they were so unprofessional. My picc line is my baby and I don’t let many people touch it 😭
@@decaitadodge7597 yaaay 🎉 glad it went well. And yeah I'd be protective of that too 😂
OMG this is medical abuse. I'm so sorry you and your family went through this Styler. I hope you you sue the shit out of that hospital. I"m a Nurse in Australia and the patients have rights
her voice is so nice to listen to ❤
as another who grew up with ehlers danlos, I am just astronomically proud of you and your parents
As another with ehlers danlos, I had an inkling clicking on this video
@@KM-ld9ln unfortunately I did too. especially hearing about her childhood experiences being sick and constantly in pain. It’s a miracle kids are so resilient, the medical trauma lasts a lifetime though. :(
Wow amazing episode! I’m also *SO* glad she mentioned the documentary ‘Take Care of Maya!* That story is absolutely heartbreaking and so incredibly frustrating knowing that these things happen way more often than we realize. I highly recommend that documentary. ❤
Her parents are everything! ❤ So proud of her for sharing her story and even more proud to see two parents who genuinely love and care about their child. Horrible yet beautiful story of a family that does not give up. Thanks for sharing. ❤
But oh my god the doctors. I don’t trust doctors at all already for almost causing my death after my twins birth. But wow. How horrifying.
As a disabled person who dealt with a lot of this dismissiveness when I was a younger kid, this was my absolute worst fear. I’m so sorry that you had to deal with this. ❤
These doctors should’ve been sued, charged, and fired
They thought they were doing the right thing and helping an abused child. Had they done nothing and it was abuse, she’d be here talking about how the doctors did nothing to help her escape abuse. The problem is with the system itself, not the individual doctors who were just doing their best and trying to help.
@@erinerinerinOOOthey went way overboard the way they treated her as the pt. Disgusting ppl!
@@erinerinerinOOO I don't know why you're standing to defend the doctors and professionals that yelled at her, gaslit her, hit her, wouldn't take no for an answer, and put her through this hell. I agree that there's a large systemic failure happening here but you have no idea who those doctors are or what their intent may be. There are horrible people in every field but guess what, psychopathic, sadistic and evil people are drawn to the medical field not only for the money and prestige, but because they have power, and a LOT of power, over vulnerable individuals.
@@erinerinerinOOOdoctors don't give a shit about the patients lol they are only there for the paycheck and so they can say they are a doctor. they literally get paid more to misdiagnose people and push drugs they don't need.
This infuriates me to no end! I am SO sorry you had to endure this disgusting negligence and mistreatment from “professionals” who were supposed to help you, especially when you were so young and feeling physically awful. I have very similar health issues and went through a similar situation. Mine did not end in foster care thank God, but it was TERRIFYING the entire time and I have blocked out most of the memories bc it’s traumatic. Prayers that you continue to heal physically and mentally, you’re amazing for sharing this incredibly difficult experience!
Thank you for sharing such an important story to raise awareness. The risks of improper sanitation with Picc lines both in hospital and out-patient are minimized by US practicing physicians to this day. Kaiser did that to my room mate this month. The OBGYN and Infectious disease doctors confidential told the patient picc lines do Not go all the way up a vein near or inside the heart. I had to get them to bring the picc line nurse in to educate them.
I had the same thing happen with CPS when I was in the hospital for a port infection. The hospital was Wolfson's children's hospital. They are horrible. They said I was faking a port infection and tried to rip me away from my family (I also have POTS, EDS and muscle issues and had a feeding tube and port at the time.)
Please tell me you're not talking about the wolfson's in Jacksonville FL 😭
Didn’t these fools notice you never got better in foster care??????
That would be nuts to have a couple both diagnosed with fictitious/MBP. How ridiculous! My aunt was diagnosed (and sent to prison) only after a second child in her care became mysteriously ill.
I’m so sorry this happened to you. This is so sad
Long time no see, I was your rideshare driver a couple years ago, glad to see your channel is still doing well
the fact you remember that is wild
We love Skyler!!!!!! I hope you are living your best life these days, girl!
I’m only 10 mins in and this poor girl. So many careless “professionals” testing and treating her, making such mistakes. What a strong young lady.
-17 mins in. She’s so well sooken. I’m sure she matured well before she needed to as a child.
-30 mins in, infuriating! Hospitals are the worst! Omg. This poor family and the trauma!
-45 mins in and they need to sue this hospital. This is horrifying!
This is SO much more common than anybody knows.
I think this is an excellent way to show why access to geneticists is critical. I was diagnosed with EDS at 16 because I was very fortunate to have a parent who knew exactly what was wrong with me, because of family history. Geneticists are very important especially for younger children who are susceptible to chronic pain.
I cannot believe she had to go through all this while at the same time having to fight for her illness. as if that wasn't enough on it's own
So many doctors have given me trauma as well. What I experience is NOTHING compared to what happened to you, but no trauma at all should be given to people who are coming to you for help just LIVING. Way too many medical professionals abuse their position. What happened to “I will do no harm” ???
Thank you for sharing this story ! I have a friend going through the Ehlers- Danlos diagnosis process and it was interesting to hear more about it !
I'm so sorry Skyler ❤❤ peace and blessings to you 🙏🏾🫶🏾 thank you for sharing your story. As a previous healthcare worker I am sickened when I hear about the misconduct and unprofessional that was used around you and your family.😢
I’m obsessed and so proud of this young woman!!!!!
OMG this is actually an horrific and traumatic experience for a child to go through, she was failed by the medical health system and the care system if I was her and her parents I would take this further, I'm so sorry you had to go through this 😢sending prayers 🙏❤❤❤
On the dysautonomia support groups a lot of folks post about their sick children being taken away.
Unless it's MS, Dysautonomia is still barely touched on in med school.
For POTS, it still takes an average of 9 years to receive an accurate diagnosis.
Skyler thank you for coming on Devorah’s podcast and sharing your story. You are a very strong beautiful young lady and I wish you the best future from this point on❤️👌👍🙏🏻
13:16 POTs is actually postural orthostatic tachycardia syndrome !!
and ARFID is avoidant restrictive food intake disorder
Thank you for giving me the platform to share my story🤍 I am so glad I could raise awareness and hopefully help someone in the same situation that I was in.
Gosh this was so infuriating to listen to, all of the negligent medical professionals and police officers. You were so young. ☹️Proud of you for being fierce.
I'm so sorry for all you went through. You are so so incredibly strong!!❤❤❤❤❤
i love you
Thank YOU!!❤😊❤
Thank you so much for sharing your story! You are so well-spoken.
My struggles are so similar (vEDS) and I've been treated so badly by hospitals that just don't know anything about the disorder. It upsets me so much that so many people are going through these things.
This is absolutely horrifying. I’m so sorry you went through this, Skyler. I wish you nothing but the best, much love to you from a fellow chronic illness girlie. ❤
As someone who struggles with a chronic illness of the pancreas and stomach.. who was on IV nutrition for a few times, I only have strong support for you. I dealt with the medical establishment as an adult and it was often challenging. I’ve found good doctors and an empathetic and caring hospital for me to go to when I have flare ups. I know how difficult it can be when you go to one who doesn’t know you. They can sadly inflict all sorts of damage. Kudos to you and your family for everything you have had to go through. I wish I could give you a hug. 🤗
I’m a caregiver for a disabled family member who has some serious medical trauma and it really is a special kind of hell to work through. Sending nothing but love and healing!❤❤
I was just diagnosed with hEDS with POTS and I’m 40. Been dealing with so many health problems since I was her age too. I heard so often how “lazy” I was because they could never figure out what was wrong. I have had to seriously push to get a diagnosis because my daughter was beginning to go through all the same issues. I got seriously annoyed with people and family members that thought I was making all of this up for attention, even after the diagnosis.
Me too. Iv had it for over 10 years. It’s been tough
@@jsmitala89 I’m sorry. It is a rough road to travel. I joined some chronic pain support groups and tried to build up a support network of friends that are understanding of my chronic health issues. I have been going to therapy and have been building my self confidence and self esteem. It has been helping, but it’s definitely slow work.
Thank you for bringing awareness to medical kidnapping!! There are so many parallels in this young lady's story to my son's story!! He was medically kidnapped 2 years ago at 9 years old. It was the worst experience of our lives!!
As someone who has chronic illnesses the medical field is absolutely exhausting. I have so much ptsd from it. I can't imagine the amount of trauma being medically kidnapped has caused.
Me with EDS perking up: oh I have the hyper mobility kind!!
But ugh as a fellow sufferer it’s really rough so sorry you have to go through that ❤❤❤
I can’t believe that happened to you and others out there! I’m so sorry you went through all of that stress and pain. I hope that hospital gets what they deserve! They need to get sued, I know it’s so expensive and takes an emotional toll but there has to be a way to sue this place! I hope this story gets more traction and it enlightens people in healthcare to actually understand !!
As a mother, this is one of my greatest fears 💔 this poor young woman, and her poor mother. Many people do not realize the state power wielded by the medical system until they’re faced with it, and it is completely terrifying.
What a trip. She is SO STRONG!
arent they liable for medical negligence
Yet another vivid example proving that human rights must be put above any other considerations; every person must always be allowed to decide their own fate; in case of very little children their parents can be allowed to make part of such decisions, but never any kind of _"services"_ shall be allowed to override a person's decision about their own fate
I would compare the second hospital to vultures but that would be a major insult to vultures
Wow how insane, I’m sorry you had to experience medical malpractice and torture ! It’s crazy how much power the hospital can have
This reminds me so much of Take Care of Maya. So sad. Glad you and your family made it out to the other side of that nightmare.
0:36 almost everyone is born with the hole in their heart and it does heal on its own for most. My sister had to have hers closed at age 31 when she got her lung removed and her anatomical shifting uncovered the hole in her heart, causing blood-oxygen issues.
she has such an ethereal beauty ahhh 🩵🪽
she needs to write a book!! 🤍
i am chronically ill at 33 & disabled my whole life (not acknowledged), have not had my own dcfs case, and this still resonates. i have my parents in appointments because i was misdiagnosed so many times
So glad I learned that you can't trust doctors by age 5. I'm 60 now and I have had 1 good doctor in my entire life.
I'm 33, and I've had 3. One was actually a PA. I never thought of that as being lucky, but here we are 😢.
Some doctors are good but some are bad. I have had some bad doctors in the past but now I have a very good palliative care doctor. If I have any problems with some doctors not understanding my condition or they don't believe that I can have all the problems that I have, then my parents tell them to call my palliative doctor and he explains it all to them
Pushing 70. One awesome doctor from age 12 until my 50s when he retired. Countless bad doctors (Soon as I found out they were no good I dumped them), finally found another good doctor in my 60s. He was almost 90 and passed after 3 years. Found another decent doctor through an acquaintance.
And NONE of the good doctors take the insurance provided by the government. After they explained why I agreed with them.
"Doctor" is no longer a calling.
I have been lied to, gaslighted, talked down to by these so-called fake doctors. They absolutely do not expect a patient to be intelligent, educated, or question them. Catch them telling lies and call them on it? Oh no! You can't do that. They all seem to have a God complex. How dare you question me!? How dare you disagree with me!? How dare you not just shut up and take the drugs I say you should take!?
There are an awful lot of people who should not have medical licenses.
side note i love how the cats are just circling around them chilling 🩷🩷🩷
I hate the medical profession when they can be so dismissive...
You are so strong and smart and tough. Wow.
I have some of the same disorders! Thank you so much for sharing your journey.
Definitely agree sometimes the vomiting is worth it.
I watched the Netflix documentary and it’s so insane to me that ppl can tear apart families and put them thru that emotional abuse
What's the Netflix doco please?
@@AuroraMaeI think they mean Take Care of Maya but that isn’t about Skyler, it’s just a similar case
How do dcs litteraly do all this and then fail people/kids who really need help. Its disgusting really!
I have keds and I relate to her story so much! The medical field is such a source of trauma for many of us with rare diseases its so unfortunate
Gastroparesis is the hardest thing i deal with in my life. ❤
My son has mitochondrial disease and this is my biggest fear
Prayers to you and your son. I am so sorry that you guys have to go through such an awful disease
The cat almost falling over at 45 minutes is taking me out 😂😂😂😂😂😂