You spoke so poised in this video. About something that people don't actually think a lot about. Just because we look "healthy" on the outside. Doesn't mean we don't all have our own struggles. I suffer from a very complex auto-immune disease. That effects my life every single day. Thank you. Love you xoxo
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
Thank you for opening up and sharing! I have been diagnosed with Celiac now for 8 years, eating a strict gluten free diet, and I am STILL dealing with some symptoms. It is crazy how easily gluten sneaks into foods either labeled "gluten free" or into foods that you would never think to have gluten! I'm sorry that you have Celiac disease. It's nice to know we are not alone in this. :)
Can you help me I literally just found out my blood test results … am I allowed to have Frank’s red hot sauce?? Or regular salt?? I need help with spices/ seasonings etc…
I just stumbled across your video, and am so glad I did. I was diagnosed with Celiac over a year ago after spending close to 20 years with varying symptoms. The doctors I saw during that time told me I had everything from acid reflux, ulcers, anxiety, depression, that I just needed exercise, etc. When I was a kid, I had stomach issues and got headaches really frequently. I also had a lot of pain in my arms and legs that everyone just called growing pains. Things progressively got worse as I got older. It was so bad that people honestly thought I had gone completely crazy. Thankfully, one doctor had the idea to do a blood test and endoscopy just in case I had Celiac. The tests confirmed that was exactly what was wrong. the dietary changes have been hard, but I am at the point where things are changing for the better. I no longer have joint pain, my muscle spasms are gone, I sleep better, my stomach issues are better, my hair and skin are improved, and most importantly my depression, anxiety, and concentration issues have started to improve. My family and friends no longer have to be on the receiving end of things due to my "grain brain". They unfortunately had to deal with the rage and other mental issues along with me, and more than anything I hate that it affected others. Not being able to just eat what I want or use certain products because they contain gluten is a pain, but a worthwhile one. I have slipped up, and can say without a shadow of a doubt that I regret it. Giving up certain foods is more than worth it when the result is feeling better. p.s. I miss ramen too! That is the one food that I haven't been able to find a substitute for!
Hi Amanda! Your experience sounds absolutely awful. It seems like you saw multiple doctors, so it's incredibly frustrating that it took so long to get a diagnosis. I've heard so many stories where people took it into their own hands and did the research, and then demanded their doctors check for celiac. It's crazy that it takes so long to diagnose sometimes!! It's the most prevalent inherited autoimmune disorder!! Anyway, I'm so glad to hear you are doing better. It's the silver lining through all of this. I always say the diagnosis and lifestyle changes suck, but it's so much better to have answers and to not have to live with the symptoms.
My whole life I’ve had really bad olsars in my mouth, TMJ, sickness, and tiredness. When my acne got extremely extremely bad, I felt hopeless and out of control of my body I became increasingly depressed and my anxiety flew through the roof. To fix it I believed I should do a vegetarian diet and eat a lot of carbs. This obviously heightened my problem and had me suicidal, being diagnosed with celiac is a blessing (on awareness day too lol) hoping to see what it does to my skin down the road!
omg I relate so much to your story. I'm 27 and have just been told from a blood test I have tested positive to Celiac Disease and waiting for a biopsy to confirm it. For most of my life I would keep going to DR'S and told them I feel so unwell. tiered. nausea. bad stomach pains. aches in my body. exhausted all of the time. brain fogs. bad infections. asthma. acid reflux. bloating and bad pains. I would get home from work at 3pm and just fall alseep in a major state of fatigue EVERYDAY. Everytime after the Dr I felt awful. they made me feel like it was all in my head and it was normal. I knew something was wrong inside I felt so unwell. I didn't feel normal. I told the Dr I was young but I felt like I was in an 85 year old body. Finally a new Dr I went to tested me for Celiac in a series of blood test. Told be it came back positive. I have been told I have to keep eating gluten until my biopsy could be months. it's pretty hard. I just want to stop eating gluten straight away. Will see how I go. It's going to be so hard for me because I love my food soo much. At least I am not alone.
I'm so glad you found this helpful. I totally understand how you feel, and sadly I think a lot of other people do, too! You know your body better than anyone else and it's great that you continued to push for answers when everyone was blowing you off. I think a lot of people just give up and accept that they will feel terrible forever. I know it seems difficult now to think about how much you will have to give up, but it helps to know you WILL feel better. And at least for me, it feels good to have an answer and a concrete way to fix it rather than being in the dark about your own health, you know? Even if it is difficult. I still struggle after almost 3 years, but every day this disease becomes more and more understood and we move closer to feeling normal. Just looking at how difficult it was when my grandmother was diagnosed 12 years ago vs. how much better it is now gives me a lot of hope for how it will be in the future. You're definitely not alone :) there is a huge community here to support you and help you every step of the way!
Bryn Smith yeah I cried last night....silly I know.. So many people who a gravely worse off than me. I love food so much and can't believe I have to monitor it for the rest of my life. it's going to be a challenge I am sure. But I hope I can feel normal again one day. 😞whatever that is But looking back now from my whole life it all makes sense. it's a relief to know that something was actually wrong with me and how I can fix it. I felt like I was crazy. . All I eat is gluten lollies...biscuit. ..bread cereal toast pastries. ...NO WONDER I felt AWFUL and in complete pain all day everyday. It affected a lot of things for me. being skinny...always thought I had a fast metabolism but maybe it's the celiac. .? I hope I don't have to wait too many months to see the Gastroenterologist. Because I hate having to continue eating the one thing that makes me feel so sick. I had low iron in my teens and have a history of telling the Dr the same symptoms time and time again. " Tiered all the time....aches and pain" irregular menstrual -still. What happened after your diagnosis. ..? Any advice....? How long after eating gluten free did you go until you started to feel different and healthy. ..normal? Thank so much for your support Bryn ☺ much love from Australia 👍
I'm 25 and was diagnosed with Celiac Disease when I was 8. I'm glad to see something like this on TH-cam! Thanks for clearing up a lot of common misconceptions. I always feel bad for those that were diagnosed so much later in life because I'm sure it's such an adjustment when you're used to living a certain way- but at the same time it must be such a relief because you finally feel 10000x better. Did you know gluten is on the adhesive of stamps and envelopes? It's crazy! Have you tried Annie's Mac n Cheese? They make a gluten free version- often times found in the same aisle with the regular ones- soooo good!
Hey, I'm also 21 and have been dealing with super similar symptoms to what you talked about. I have been going from doctor to doctor and am finally getting an endoscopy on Thursday. I have had to deal with the moments of thinking that I'm making all of this up and that I'm overreacting when it comes to my symptoms, but I know that I shouldn't feel dreadful after everything I eat. I have a really strong feeling that it might be celiac and watching your video made me feel less alone in what's been going on, so thank you so much for that!
I hope it worked out for you. I find that can be also a false negative. I did not have one. They went by the rashes I get for it and the symptoms. It has taken me years to recover because I am in my 60's and I had it since a kid. I kept telling docs I was so sick and they ignored me. I had to figure it out when someone asked me if I was celiac. I said no but then eventually I went to look and yes I was. I had to teach my doc about it. In the process I almost got kidney failure and a stroke. BP meds caused it. They pulled the meds kidney's started to work and I never took the meds again. I get sick on almost all meds.
You hit the nail on the head with this video. I pretty much went through the same exact process as you finding out that I have celiac, only I'm in the process of being diagnosed at 39. Your story lines up nearly parallel to mine, but I knew it was celiac nearly days before I finally got the nerve to go see my doctor. I have a daughter who has type one diabetes which is an autoimmune disease and I've heard a lot about how celiac and type one almost always go hand in hand so I was always watching for signs of her having it. I just never thought it would be me being diagnosed, not her. After a few very stressful months in 2019, I became very sick and I believe that is when I had the autoimmune trigger. After that I went through 9 months of being even more sick. After going to the gastroenterologist I've eliminated gluten and I'm still healing, but it's definitely getting better. I'm still waiting on approval for the endoscopy for an actual diagnosis, but he's positive its celiac. It's not as hard as I expected it to be, but like you, the two things I crave and miss the most is RAMEN AND MAC N CHEESE!!! Oh and donuts! But hey, I guess it saves us a ton of carbs, right??? Thank you for doing this video, you're going to help A LOT of people. Love
Thank you thank you thank you from the bottom of my heart for sharing this. My 6 year old daughter was having pain for months and I finally took her to the dr to get a gluten allergy test and celiac test and that came back positive. This is all spot on and EXACTLY how my daughter was explaining her pain. Bless your heart. Thank you for sharing your story ❤️
I am SO happy I came across this video, it made me feel less alone. I'm going through a tough time and I can really relate to your situation. For almost two years I've had stomach ache, nausea, fatigue and I definitely have been struggling with concentration. The doctor always told me it was just stress and that I had gastritis and a bad stomach. Medicines do work for a while but as soon as I stop taking them, I end up being sick again. Now the situation is worse and my anxiety has never been so high (even when there is nothing to be anxious about really). Like you, I refuse to think that a 23 year-old has to feel terribile everytime she eats. Everytime I go out I'm so anxious because I suddenly feel sick and I never know when it's going to happen. I can't even enjoy a dinner with friends anymore. I refuse to think this is "just stress". I've had my blood tests done today and waiting for the results. Maybe it's celiac, maybe it's not, but anyway your video gave me some hope and the courage to speak up and not give up until I know what's going on with my body so thank you so much :)
Omg I’m currently 19 a guy and I’m going through like the same thing you are, I’ve gone too the doctors so many times and my anxiety has caused me to delay going to college and even working, the doctors just think i have anxiety and I’ve gotten sick a couple times when i never do. I want to go again because I’m sure i probably have this, but I’ve gone soo many times and I feel like my doctor isn’t going to take me seriously
Bryn,thank you so much for this video! I found out I cannot eat gluten last year and it has been a long process to find new alternatives (I love bread).I thought I had this problem after eating cake and feeling awful.After I stopped eating gluten all the pain,headache,stomachache ,everything just went away.I love your videos because you sound like a close friend.Love from Brazil.
Just came across your video and I have been bounced around from Dr to Dr and even a hospital that didn't do any approiate testing. Now I have a Dr that is listening to me and I'm awaiting test results to see if I have celiac disease or Lupus or both cause I have a thyroid condition that can lead to this disease which is a automione disease. I have been feeling the same major digestion issues, stomach pains and exchausted all the time. You are a amazing woman and I wish you all the best and your family 💗
I just came across your video and its great to hear. I have had a positive blood test for celiac disease and just waiting for my endoscopy. My symptoms have been so confusing to diagnose as well since most of mine were nerve and neurological problems. Thanks for your video
Anna Lyndal hi! I wanted to ask you some questions! I’ve also been sick pretty much for 3 years with neurological symptoms. Vertigo, dizziness that lasted 24/7. Headaches, then classic digestive symptoms came along etc. Finally after millions of doctor’s appointments I got the celiac blood test and it came back positive. My endoscopy didn’t show significant damage but there was intestinal inflammation so my doctor thinks I’m in the early stage of the disease. I wanted to ask what were your symptoms? And did you end up getting diagnosed after the endoscopy? And finally did going GF help if you did it? Thank you 😁
This video has spoke to me ♡ I find out on Thursday if I have Celiac Disease. I have been through HELL with my stomach these past few months. I have started a gluten free diet a few days ago and i feel 10 times better. I still have some complications, but it's not as bad as it was at all. There were days where I starved myself just so i didn't have symptoms. I'm so happy that I'm getting pointed in the right direction
I have an appt to see a gastro to check for celiac disease after 2 yrs of suffering. I’ve been in and out of doctors office, misdiagnosed several times. I came across this disease after more research and really feel this may be it! Thanks for sharing your story with us and hope you do well with your celiac down the line 😘
I'm feeling just like you right now. I'm 19 and doctors think I'm paranoid. I'm trying to get them to get me tested for celiac. They think I'm so annoying but I also refuse to believe my weight loss, hair loss, muscles aches, bad stomach, anxiety and everything else is normal
I have now been diagnosed with Celiac disease for about 8 years now! I connected with you on a very personal level with this video, as I have been planning to film one for my channel as well! Everything was very well said! You definitely gained a subscriber girl! xo
I do have celiac disease too. My twin sister diagnosed first and one year later i got diagnosed too. But she had all the symptoms and i had none. It is different for everyone. It effects all your decisions. I live in Turkey and it is hard to find spots where they sell real gluten-free foods. I hope it would get better at all regions and countries.
Wow. I am 19 years old and this is EXACTLY what is happening to me. Your story is litterslly identical to mine. I’ve only started to cut out gluten for a few days but I’m really positive this is what it is
It's craazy how much I can relate to this! I've just been nodding throughout the entire video like "yup, yup been there, yup" haha, thanks for sharing ;)
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
I was diagnosed with Celiac disease when I was in grade 1 and I got a blood test but I would always have stomach aches so I didn't have to get the gastroscopy because it was obvious that I had celiac disease. I'm in year 7 now and one time I ate two sour straps and because I hadn't had gluten in ages I was throwing up for about an hour and It was one of the worst things that happened in my life. Soon I will be doing a blood test and if the results come back bad I might have to go on a stricter diet which I am not looking forward to. This video was very relatable.
I had ulcers in my terminal ileum in my twenties. I'm nearly 40 now. Never been tested for celiac disease. I get wind and bloating, moon fog and really severe exhaustion. Doctors haven't taken any real notice. I get pain too but have just accepted that as normal. I'm already dairy free but I'm going to go gluten free and see what happens. It's weird because I'm always better when I have jacket potatoes.. Which are vegetables and completely gluten free. Thank you xx I also get extreme headaches.. Where it feels like my body is getting rid of a toxin. They don't happen as much now but I have cut out and reduced the amount of bread that I have. I also get muscle twitches. I'm reading all of these symptoms that I've just reeled off.. It's quite a lot lol. The worst part is waiting to feel like I can function properly and feeling unconfortable and so tired and the inability to fully concentrate. Is anyone with me on this?
I was diagnosed a lot quicker than most people. I went to the doctors for my annual checkup when I was 10 and they said I was extremely malnourished. My sister happened to remember that my mommom has it. I got the blood test and went gluten free for 2 weeks and then I ate gluten again for 2 weeks before the endoscopy and they confirmed it. Overall the whole process took about a month. It was very rough for me because i just started middle school and then I was hit with that and had to completely change everything and I was being bullied for it.
I have so many symptoms that match either Celiac or at least a gluten sensitivity. From the usual digestive issues such as nausea, bloating, belching, constipation/diarrhea and stomach gurgling every day to other things such as major fatigue, brain fog, itching skin, headaches and constant muscle twitching all over my body. It's been going on for over 2 years now. The only problem is that these symptoms also match other diseases and illnesses, SIBO being just one of them.
Such a great and informative video. I have had celiac for three years now and it's still a struggle everyday. Social situations and travel are such a challenge. I also really miss fast food burgers! I also feel like it messed up my metabolism because it's very hard for me to lose weight even while eating very clean and working out a lot.
I’m 20 years old and I’ve had the weirdest most stressful process of getting diagnosed with celiac disease.. your story sounds sooo similar to mine! I just started my diet about 2 weeks ago after finally getting my diagnosis. I’m still really struggling to find things to eat. I’m starving allllll the time!! I work a lot of hours and my husband and I don’t cook during the week so I’m living off grapes and chips during the week...
I had a similar problem, I was malnourished due to celiac and had a weak immune system. Celiac becomes much more obvious when your immune system is strong. I take tons of zinc/copper/selenium, now I never get sick (that's not to brag). But now I'm SUPER sensitive to anything with even a single molecule of gluten. I can't even eat corn. And if I accidentally eat something with gluten in it, 24 hours later is a diarrhea marathon, the reaction is insanely strong.
@@MasculineIdeal corn contains zein. It isn't similar to gluten nor is it cross reactive. I can be rough on sore unhealed intestines. It only needs to be avoided until you're healed per my gastroenterologist. Sounds like you've been on Doc Osborne's site. He's a chiropractor, not a gastroenterologist
Great informative video! I got diagnosed almost 3 years ago, so I definitely relate. The number one thing I miss that I can't find an alternative to is wonton wrappers for crab rangoons!
Thanks for your testimony on this just found out I have the same condition by accident had 3 beer and 4 slices of white bread and fish in between for the next 24 hours extreme itchy burning and lower back pain was worse and throbbing headache
Wow! You have a lovely look. I'm pretty sure I have Celiac disease or just a big intolerance to gluten and with how bloated I am (and other stuff ~ahem~) can no longer ignore it. I LOVE wheat but am going to have to cut it out of my diet soon or risk becoming bedridden. EDIT: my birthday celebration is coming up in just over a week so I plan to start after 😅
Thank you for sharing your experiences. I was just diagnosed with celiac disease a few months ago. Eating gluten free is expensive and not very fulfilling. I always feel hungry and weak. Is it normal to feel this way?
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
Years after being diagnosed I call it a blessing, because I am eating so much healthier than I was. It gets easier to find foods every year it seems! Everything is going to be fantastic!
Hi, I stumbled across your video bc I met a girl I like who is diagnosed with celiac and wanted to know a bit more about it. As food scientist/engineer, I am now focusing my research on gluten-free products. With that said, what are food product(s) that you wish to eat, but can’t bc there are no alternative options? Thanks in advance!
Omar Cruz It's great that you have an interest in GF products. I think a big issue is that very often gluten-free products like cakes and cookies are extremely sweet. Besides celiac I also have hypoglycemia and eating such sweet things makes my sugar drop even more. I would love to have more yummy options that are lightly sweetened and healthy. And any celiac will always miss a fluffy elastic bread that doesn't fall into pieces. Luckily here in Europe I found a British brand called Genius with the best bread I ever tried :)
I have it and it has been years for me. I can do painting now where I could not before. It depends on the person and how long you had it. 33% don't heal as much as they should. Make sure you are eating certified gluten free and best is to cook from scratch. Buy all stuff in packages. People have gluten filled hands and touch the veggies in stores.
Me personally the diet helped for me personally my result was fast and the difference was night and day I started growing, my brain fog lessened it’s still there but definitely not as bad. It took me a little bit of like 5ish years to fully heal
I genuinely think I have celiac disease because I have a lot of the same symptoms and I’m also losing weight without explanation. In order to get the nutrients you need are you just taking vitamins or are you eating foods with more of it? I still have yet to go to the doctor because I do not have insurance so until then I’m gonna be taking vitamins and cutting gluten out
I have been feeling awful for months and was just diagnosed with celiac two weeks ago. I was wondering at what time after you went GF did you start to notice a difference in how you felt? I know the process is probably different for everyone, but I would just like an idea for a little hope to hang onto! Lol
I'm 26 and have all those issues and always thought something was wrong with me. I even had really bad hormonal issues and period pain that was so bad. Doctors keep dismissing it. I stopped gluten to see if it would help and in a month I felt a lot better and after 2 I had pain free periods. When I started eating a little gluten it again I started to feel slightly bad. I'm so depressed right now I don't know what to do. Should I just give it all up or hang on until the doctors actually listen to me? I'm too scared to have an endoscopy. I don't want to start eating lots of gluten again and feel really bad just to have a blood test.
Hi Sarah! So sorry to hear you're going through this. If you've cut out gluten and you know you are feeling better doing it, then I say just go ahead keep it out of your diet. I'm no doctor, so maybe others have a different opinion, but if you know you feel sick when you eat it then there's nothing an "official" diagnosis is going to change. You may have celiac, or you may have a strong sensitivity, but the after effects are the same. Unless of course, you choose to eat it occasionally, in which case that will be much more damaging if you have celiac. If you're concerned, I would look for a doctor or nutritionist in your area who either has celiac or is familiar with it - they will be able to help you the most. And if you decide to get an official diagnosis, I promise an endoscopy isn't too bad :)
The left side of your brain just smacked the right of my brain so hard.. ..that then, I and then, and now, again , I have nothing.. ..left to say.. ..but to quote that my left hemisphere wishes it could place up on its right hemisphere, ; "the same".
I'm afraid that i have this thing .my stomach was very upset yesterday ive been drinking oat drink .no one in my family has celiac . Have to go to the doctor i have lactose intolerance too .i dont want this celiac thing too .and my stomach is very sensitive .it sucks .
I would like this video a million times if i could. Dealing with making doctors believe me and help me get it under control right now.... figure out what vitamins im lacking, how much damage is caused... it feels quite hopeless 😩
I love being a celiac I’m so happy and proud to be a celiac I love it and it is so important to me and I want to spread awareness to my wonderful disease. I love being a celiac. It has given me friend,opportunities and experiences that I wouldn’t have if I didn’t have it so I’m thankful for being who i am❤️❤️
@@timfisher1376 i get HORRIBLE bloating which I'm having right now and the cramps that i get makes me feel as if I'm going to pass out...i also get nauseous and fatigued no vertigo though
Anyone has yellow stools? I believe I have celiac disease I've stopped eatinf gluten and my stomach pain on the left side and acne is gone but I have low vitamins and my stool is yellow. I'm super worried I thought cutting gluten would make everything back to normal but ita been a year and my health is still affected (especially the yellow stools) Maybe I'm intolerant to dairy too. eh :(
I get bad post nasal drip vomit cough is that a symptom I feel shit every morning. I can't eat chocolate I feel sick. I'm getting tested. I'm coughing up clear phlegm every morning and no one is helping me cause it's clear.
How Flexible are you Bryn? The reason I ask you is there are a lot of People with Celiac Disease who go undiagnosed with Ehlers-Danlose Syndrome have you been checked also for this to rule it in/out hugs blesses Aidan x x You should be Modeling u r gorgeous Ha!
Hey! I saw your video in my suggested feed! I also have celiac and have a series over on my channel :) I would love to get to know you and possibly collab on this topic!
Hi, Great video really enjoyed it, I am a coeliac as well, I was diagnosed about 1 year ago so its all fairly new to me !, I make videos every Tuesday about my life with coeliac disease and I would love it if you could maybe check them out. I love your videos and I subscribe, You also seem like such a nice person! :)
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You spoke so poised in this video. About something that people don't actually think a lot about. Just because we look "healthy" on the outside. Doesn't mean we don't all have our own struggles. I suffer from a very complex auto-immune disease. That effects my life every single day. Thank you. Love you xoxo
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
Thank you for opening up and sharing! I have been diagnosed with Celiac now for 8 years, eating a strict gluten free diet, and I am STILL dealing with some symptoms. It is crazy how easily gluten sneaks into foods either labeled "gluten free" or into foods that you would never think to have gluten! I'm sorry that you have Celiac disease. It's nice to know we are not alone in this. :)
Can you help me I literally just found out my blood test results … am I allowed to have Frank’s red hot sauce?? Or regular salt?? I need help with spices/ seasonings etc…
Have you been checked for fructose intolerance? It can cause many people with Celiac to continue to feel unwell even after stopping gluten
Soy sauce
I just stumbled across your video, and am so glad I did. I was diagnosed with Celiac over a year ago after spending close to 20 years with varying symptoms. The doctors I saw during that time told me I had everything from acid reflux, ulcers, anxiety, depression, that I just needed exercise, etc. When I was a kid, I had stomach issues and got headaches really frequently. I also had a lot of pain in my arms and legs that everyone just called growing pains. Things progressively got worse as I got older. It was so bad that people honestly thought I had gone completely crazy. Thankfully, one doctor had the idea to do a blood test and endoscopy just in case I had Celiac. The tests confirmed that was exactly what was wrong. the dietary changes have been hard, but I am at the point where things are changing for the better. I no longer have joint pain, my muscle spasms are gone, I sleep better, my stomach issues are better, my hair and skin are improved, and most importantly my depression, anxiety, and concentration issues have started to improve. My family and friends no longer have to be on the receiving end of things due to my "grain brain". They unfortunately had to deal with the rage and other mental issues along with me, and more than anything I hate that it affected others. Not being able to just eat what I want or use certain products because they contain gluten is a pain, but a worthwhile one. I have slipped up, and can say without a shadow of a doubt that I regret it. Giving up certain foods is more than worth it when the result is feeling better.
p.s. I miss ramen too! That is the one food that I haven't been able to find a substitute for!
Hi Amanda! Your experience sounds absolutely awful. It seems like you saw multiple doctors, so it's incredibly frustrating that it took so long to get a diagnosis. I've heard so many stories where people took it into their own hands and did the research, and then demanded their doctors check for celiac. It's crazy that it takes so long to diagnose sometimes!! It's the most prevalent inherited autoimmune disorder!! Anyway, I'm so glad to hear you are doing better. It's the silver lining through all of this. I always say the diagnosis and lifestyle changes suck, but it's so much better to have answers and to not have to live with the symptoms.
I have celiac and I eat lotus foods rice ramen. It is flawless! Welcome back to ramen noodles!
+3740blackie me too. It's sad cause I was recently 😢
+3740blackie and I can't eat the food I love
My whole life I’ve had really bad olsars in my mouth, TMJ, sickness, and tiredness. When my acne got extremely extremely bad, I felt hopeless and out of control of my body I became increasingly depressed and my anxiety flew through the roof. To fix it I believed I should do a vegetarian diet and eat a lot of carbs. This obviously heightened my problem and had me suicidal, being diagnosed with celiac is a blessing (on awareness day too lol) hoping to see what it does to my skin down the road!
omg I relate so much to your story. I'm 27 and have just been told from a blood test I have tested positive to Celiac Disease and waiting for a biopsy to confirm it. For most of my life I would keep going to DR'S and told them I feel so unwell. tiered. nausea. bad stomach pains. aches in my body. exhausted all of the time. brain fogs. bad infections. asthma. acid reflux. bloating and bad pains.
I would get home from work at 3pm and just fall alseep in a major state of fatigue EVERYDAY.
Everytime after the Dr I felt awful. they made me feel like it was all in my head and it was normal. I knew something was wrong inside I felt so unwell. I didn't feel normal. I told the Dr I was young but I felt like I was in an 85 year old body.
Finally a new Dr I went to tested me for Celiac in a series of blood test. Told be it came back positive. I have been told I have to keep eating gluten until my biopsy could be months. it's pretty hard. I just want to stop eating gluten straight away. Will see how I go. It's going to be so hard for me because I love my food soo much.
At least I am not alone.
I'm so glad you found this helpful. I totally understand how you feel, and sadly I think a lot of other people do, too! You know your body better than anyone else and it's great that you continued to push for answers when everyone was blowing you off. I think a lot of people just give up and accept that they will feel terrible forever.
I know it seems difficult now to think about how much you will have to give up, but it helps to know you WILL feel better. And at least for me, it feels good to have an answer and a concrete way to fix it rather than being in the dark about your own health, you know? Even if it is difficult. I still struggle after almost 3 years, but every day this disease becomes more and more understood and we move closer to feeling normal. Just looking at how difficult it was when my grandmother was diagnosed 12 years ago vs. how much better it is now gives me a lot of hope for how it will be in the future.
You're definitely not alone :) there is a huge community here to support you and help you every step of the way!
Bryn Smith yeah I cried last night....silly I know.. So many people who a gravely worse off than me.
I love food so much and can't believe I have to monitor it for the rest of my life. it's going to be a challenge I am sure. But I hope I can feel normal again one day. 😞whatever that is
But looking back now from my whole life it all makes sense. it's a relief to know that something was actually wrong with me and how I can fix it. I felt like I was crazy.
. All I eat is gluten lollies...biscuit. ..bread cereal toast pastries. ...NO WONDER I felt AWFUL and in complete pain all day everyday. It affected a lot of things for me.
being skinny...always thought I had a fast metabolism but maybe it's the celiac. .?
I hope I don't have to wait too many months to see the Gastroenterologist. Because I hate having to continue eating the one thing that makes me feel so sick.
I had low iron in my teens and have a history of telling the Dr the same symptoms time and time again. " Tiered all the time....aches and pain" irregular menstrual -still.
What happened after your diagnosis. ..? Any advice....?
How long after eating gluten free did you go until you started to feel different and healthy. ..normal?
Thank so much for your support Bryn ☺
much love from Australia 👍
Me Shell I took out all grains three weeks ago, because even gluten free bread was making me sick. I can tell a difference.
I'm 25 and was diagnosed with Celiac Disease when I was 8. I'm glad to see something like this on TH-cam! Thanks for clearing up a lot of common misconceptions.
I always feel bad for those that were diagnosed so much later in life because I'm sure it's such an adjustment when you're used to living a certain way- but at the same time it must be such a relief because you finally feel 10000x better.
Did you know gluten is on the adhesive of stamps and envelopes? It's crazy!
Have you tried Annie's Mac n Cheese? They make a gluten free version- often times found in the same aisle with the regular ones- soooo good!
Ohhh I live the Annie’s Mac and cheese, personally I like it to taste a tiny bit saltier and garlicky so I like to put some garlic salt on that👌
I am 18 and just got diagnosed with celiac and have been watching a lot of videos and it is very helpful! So thank you for sharing your story!
Hey, I'm also 21 and have been dealing with super similar symptoms to what you talked about. I have been going from doctor to doctor and am finally getting an endoscopy on Thursday. I have had to deal with the moments of thinking that I'm making all of this up and that I'm overreacting when it comes to my symptoms, but I know that I shouldn't feel dreadful after everything I eat. I have a really strong feeling that it might be celiac and watching your video made me feel less alone in what's been going on, so thank you so much for that!
I hope it worked out for you. I find that can be also a false negative. I did not have one. They went by the rashes I get for it and the symptoms. It has taken me years to recover because I am in my 60's and I had it since a kid. I kept telling docs I was so sick and they ignored me. I had to figure it out when someone asked me if I was celiac. I said no but then eventually I went to look and yes I was. I had to teach my doc about it. In the process I almost got kidney failure and a stroke. BP meds caused it. They pulled the meds kidney's started to work and I never took the meds again. I get sick on almost all meds.
You hit the nail on the head with this video. I pretty much went through the same exact process as you finding out that I have celiac, only I'm in the process of being diagnosed at 39. Your story lines up nearly parallel to mine, but I knew it was celiac nearly days before I finally got the nerve to go see my doctor. I have a daughter who has type one diabetes which is an autoimmune disease and I've heard a lot about how celiac and type one almost always go hand in hand so I was always watching for signs of her having it. I just never thought it would be me being diagnosed, not her. After a few very stressful months in 2019, I became very sick and I believe that is when I had the autoimmune trigger. After that I went through 9 months of being even more sick. After going to the gastroenterologist I've eliminated gluten and I'm still healing, but it's definitely getting better. I'm still waiting on approval for the endoscopy for an actual diagnosis, but he's positive its celiac. It's not as hard as I expected it to be, but like you, the two things I crave and miss the most is RAMEN AND MAC N CHEESE!!! Oh and donuts! But hey, I guess it saves us a ton of carbs, right??? Thank you for doing this video, you're going to help A LOT of people. Love
Thank you thank you thank you from the bottom of my heart for sharing this. My 6 year old daughter was having pain for months and I finally took her to the dr to get a gluten allergy test and celiac test and that came back positive. This is all spot on and EXACTLY how my daughter was explaining her pain. Bless your heart. Thank you for sharing your story ❤️
I am SO happy I came across this video, it made me feel less alone. I'm going through a tough time and I can really relate to your situation. For almost two years I've had stomach ache, nausea, fatigue and I definitely have been struggling with concentration. The doctor always told me it was just stress and that I had gastritis and a bad stomach. Medicines do work for a while but as soon as I stop taking them, I end up being sick again. Now the situation is worse and my anxiety has never been so high (even when there is nothing to be anxious about really). Like you, I refuse to think that a 23 year-old has to feel terribile everytime she eats. Everytime I go out I'm so anxious because I suddenly feel sick and I never know when it's going to happen. I can't even enjoy a dinner with friends anymore. I refuse to think this is "just stress". I've had my blood tests done today and waiting for the results. Maybe it's celiac, maybe it's not, but anyway your video gave me some hope and the courage to speak up and not give up until I know what's going on with my body so thank you so much :)
Have you tried joining a support group on Facebook?
@@freespirit_17 no! I think I'll give it a try, thanks :)
Omg I’m currently 19 a guy and I’m going through like the same thing you are, I’ve gone too the doctors so many times and my anxiety has caused me to delay going to college and even working, the doctors just think i have anxiety and I’ve gotten sick a couple times when i never do. I want to go again because I’m sure i probably have this, but I’ve gone soo many times and I feel like my doctor isn’t going to take me seriously
I had severe panic disorder from gluten.
Look up dr Osborne he’s on here and has a book.
You have to go grain free completely to heal the gut.
Bryn,thank you so much for this video! I found out I cannot eat gluten last year and it has been a long process to find new alternatives (I love bread).I thought I had this problem after eating cake and feeling awful.After I stopped eating gluten all the pain,headache,stomachache ,everything just went away.I love your videos because you sound like a close friend.Love from Brazil.
So glad to hear you're feeling better! Thanks so much
Just came across your video and I have been bounced around from Dr to Dr and even a hospital that didn't do any approiate testing. Now I have a Dr that is listening to me and I'm awaiting test results to see if I have celiac disease or Lupus or both cause I have a thyroid condition that can lead to this disease which is a automione disease. I have been feeling the same major digestion issues, stomach pains and exchausted all the time. You are a amazing woman and I wish you all the best and your family 💗
I just came across your video and its great to hear. I have had a positive blood test for celiac disease and just waiting for my endoscopy. My symptoms have been so confusing to diagnose as well since most of mine were nerve and neurological problems. Thanks for your video
Anna Lyndal hi! I wanted to ask you some questions! I’ve also been sick pretty much for 3 years with neurological symptoms. Vertigo, dizziness that lasted 24/7. Headaches, then classic digestive symptoms came along etc. Finally after millions of doctor’s appointments I got the celiac blood test and it came back positive. My endoscopy didn’t show significant damage but there was intestinal inflammation so my doctor thinks I’m in the early stage of the disease. I wanted to ask what were your symptoms? And did you end up getting diagnosed after the endoscopy? And finally did going GF help if you did it? Thank you 😁
This video has spoke to me ♡ I find out on Thursday if I have Celiac Disease. I have been through HELL with my stomach these past few months. I have started a gluten free diet a few days ago and i feel 10 times better. I still have some complications, but it's not as bad as it was at all. There were days where I starved myself just so i didn't have symptoms. I'm so happy that I'm getting pointed in the right direction
I have an appt to see a gastro to check for celiac disease after 2 yrs of suffering. I’ve been in and out of doctors office, misdiagnosed several times. I came across this disease after more research and really feel this may be it! Thanks for sharing your story with us and hope you do well with your celiac down the line 😘
I'm feeling just like you right now. I'm 19 and doctors think I'm paranoid. I'm trying to get them to get me tested for celiac. They think I'm so annoying but I also refuse to believe my weight loss, hair loss, muscles aches, bad stomach, anxiety and everything else is normal
Eva R did you get to the bottom of what’s wrong ?
Im 13 and i have had Celiac desiase for 5 years now and it was hard to know what i can eat in the start but now I know better what i can eat :))
I have now been diagnosed with Celiac disease for about 8 years now! I connected with you on a very personal level with this video, as I have been planning to film one for my channel as well! Everything was very well said! You definitely gained a subscriber girl! xo
I also have celiacs disease and was diagnosed in 2011. I appreciate you sharing you sharing your story. Thank you.
I got something to ask you can you explain something to me?
Tissue Transglutaminase IgAYour Value 1 U/mL Standard Range
Is that good or bad?
I do have celiac disease too. My twin sister diagnosed first and one year later i got diagnosed too. But she had all the symptoms and i had none. It is different for everyone. It effects all your decisions. I live in Turkey and it is hard to find spots where they sell real gluten-free foods. I hope it would get better at all regions and countries.
Wow. I am 19 years old and this is EXACTLY what is happening to me. Your story is litterslly identical to mine. I’ve only started to cut out gluten for a few days but I’m really positive this is what it is
It's craazy how much I can relate to this! I've just been nodding throughout the entire video like "yup, yup been there, yup" haha, thanks for sharing ;)
Noomi92 Make am appt with your general practitioner to get a referral to a GI doctor also ask for a blood test for celiac.
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
I was diagnosed with Celiac disease when I was in grade 1 and I got a blood test but I would always have stomach aches so I didn't have to get the gastroscopy because it was obvious that I had celiac disease. I'm in year 7 now and one time I ate two sour straps and because I hadn't had gluten in ages I was throwing up for about an hour and It was one of the worst things that happened in my life. Soon I will be doing a blood test and if the results come back bad I might have to go on a stricter diet which I am not looking forward to. This video was very relatable.
I had ulcers in my terminal ileum in my twenties. I'm nearly 40 now. Never been tested for celiac disease. I get wind and bloating, moon fog and really severe exhaustion. Doctors haven't taken any real notice. I get pain too but have just accepted that as normal. I'm already dairy free but I'm going to go gluten free and see what happens. It's weird because I'm always better when I have jacket potatoes.. Which are vegetables and completely gluten free. Thank you xx
I also get extreme headaches.. Where it feels like my body is getting rid of a toxin. They don't happen as much now but I have cut out and reduced the amount of bread that I have. I also get muscle twitches. I'm reading all of these symptoms that I've just reeled off.. It's quite a lot lol. The worst part is waiting to feel like I can function properly and feeling unconfortable and so tired and the inability to fully concentrate. Is anyone with me on this?
Ruth a girl, yes yeah me even had seizures and bloodsugar issues I have celiac disease
I was diagnosed a lot quicker than most people. I went to the doctors for my annual checkup when I was 10 and they said I was extremely malnourished. My sister happened to remember that my mommom has it. I got the blood test and went gluten free for 2 weeks and then I ate gluten again for 2 weeks before the endoscopy and they confirmed it. Overall the whole process took about a month. It was very rough for me because i just started middle school and then I was hit with that and had to completely change everything and I was being bullied for it.
Your story is my story RN. Please pray for me. Thank you for this ive literally been starving to death i was also diagnoses with cancer. Im 30.
im in pain tooo.for over a year now due to the vaccine... trigger autoimmune
My mom has this disease so I'm really glad you took the time and talked about it!
Thank you so much!
I am 19 and just got diagnosed yesterday! I'm so confused on how to eat and what to do! Your video helped me not stress as much!
Hey I got to ask you something can you explain something to me please
Tissue Transglutaminase IgAYour Value1 U/mLStandard Range
Is it good or bad
Daiya makes dairy and gluten free mac and cheese that I love!!
I have so many symptoms that match either Celiac or at least a gluten sensitivity. From the usual digestive issues such as nausea, bloating, belching, constipation/diarrhea and stomach gurgling every day to other things such as major fatigue, brain fog, itching skin, headaches and constant muscle twitching all over my body. It's been going on for over 2 years now. The only problem is that these symptoms also match other diseases and illnesses, SIBO being just one of them.
Such a great and informative video. I have had celiac for three years now and it's still a struggle everyday. Social situations and travel are such a challenge. I also really miss fast food burgers! I also feel like it messed up my metabolism because it's very hard for me to lose weight even while eating very clean and working out a lot.
Im going through this right now. Still no answers but im skeptical I have celiac so I'm hoping to get tested and get answers soon
I’m 20 years old and I’ve had the weirdest most stressful process of getting diagnosed with celiac disease.. your story sounds sooo similar to mine! I just started my diet about 2 weeks ago after finally getting my diagnosis. I’m still really struggling to find things to eat. I’m starving allllll the time!! I work a lot of hours and my husband and I don’t cook during the week so I’m living off grapes and chips during the week...
Marissa Case can you make some plain chicken to have on hand? Are you able to eat eggs? What about vegetables and fruit?
Thank you for the video! Would love to know how you're feeling now, but I don't believe you mentioned that in your video.
I had a similar problem, I was malnourished due to celiac and had a weak immune system. Celiac becomes much more obvious when your immune system is strong. I take tons of zinc/copper/selenium, now I never get sick (that's not to brag). But now I'm SUPER sensitive to anything with even a single molecule of gluten. I can't even eat corn. And if I accidentally eat something with gluten in it, 24 hours later is a diarrhea marathon, the reaction is insanely strong.
Fuzzy Camel I can’t eat corn either. I stopped all grains three weeks ago. I feel much better.
but why you have been avoiding corn?
@@saquibhafez Corn has a similar protein to gluten and it's known to be cross reactive.
@@MasculineIdeal corn contains zein. It isn't similar to gluten nor is it cross reactive. I can be rough on sore unhealed intestines. It only needs to be avoided until you're healed per my gastroenterologist. Sounds like you've been on Doc Osborne's site. He's a chiropractor, not a gastroenterologist
@@TheGalwayfan I'm not sure who Doctor Osborne is. Corn is known to be cross reactive. If you disagree that's ok too.
Great informative video! I got diagnosed almost 3 years ago, so I definitely relate. The number one thing I miss that I can't find an alternative to is wonton wrappers for crab rangoons!
Going through this right now at 20, completely understand how you felt! Sent away bloods today, waiting for results - hope I can get answers like you!
Thanks for your testimony on this just found out I have the same condition by accident had 3 beer and 4 slices of white bread and fish in between for the next 24 hours extreme itchy burning and lower back pain was worse and throbbing headache
this video was super interesting and I can't wait for more
Thank you!
Wow! You have a lovely look. I'm pretty sure I have Celiac disease or just a big intolerance to gluten and with how bloated I am (and other stuff ~ahem~) can no longer ignore it. I LOVE wheat but am going to have to cut it out of my diet soon or risk becoming bedridden.
EDIT: my birthday celebration is coming up in just over a week so I plan to start after 😅
Thank you for sharing your experiences. I was just diagnosed with celiac disease a few months ago. Eating gluten free is expensive and not very fulfilling. I always feel hungry and weak. Is it normal to feel this way?
Try cooking potato wedges. They’re super filling With lots of carbs and they’re gluten free
Thank you so much for making this video
Ive been having some issues for a few months and seeing my doctor tomorrow. My Dad was diagnosed 2 years ago...hopefully i get some answers!
I need to tell the truth about celiac disease. There no such things as diseases just ignorance. I use the cause and effect rules to find the cause of diseases and I found that immune system is low if the body is cool because body tissue may get infected with inflammation and pain results. Exposure of our body to low temperatures is the cause of diseases because immune system cannot cure infections and nerves are numb. Diseases are an infection or nerves numbness . The area of our body infected gives different names to that infection. skin infection is called cancer or psoriasis, digestive system infection is called celiac and Crohn disease, brain infection is called meningitis and so on. For all diseases are just two solution to cure that infection: to keep our body at 97F temperature, which is not good because the air temperature is too high for breathing, or to insulate our body very well to allow it to increase the temperature enough to cure infections. This idea is practical because the air temperature is low and good for breathing. I invented special clothes capable to increase the body temperature to cure infection. If interested write to me on davidmuresan@live.com I will give all what I found for free.
Years after being diagnosed I call it a blessing, because I am eating so much healthier than I was. It gets easier to find foods every year it seems! Everything is going to be fantastic!
When you had stomach pain was it in certain spot on your stomach or was it just all over?
Hi, I stumbled across your video bc I met a girl I like who is diagnosed with celiac and wanted to know a bit more about it.
As food scientist/engineer, I am now focusing my research on gluten-free products. With that said, what are food product(s) that you wish to eat, but can’t bc there are no alternative options?
Thanks in advance!
Omar Cruz It's great that you have an interest in GF products. I think a big issue is that very often gluten-free products like cakes and cookies are extremely sweet. Besides celiac I also have hypoglycemia and eating such sweet things makes my sugar drop even more. I would love to have more yummy options that are lightly sweetened and healthy. And any celiac will always miss a fluffy elastic bread that doesn't fall into pieces. Luckily here in Europe I found a British brand called Genius with the best bread I ever tried :)
Thank you so much for charing your story ❤you've got a subscriber
Hey Bryn,chow do you get on with Soya?
I've been on the gluten free diet due to having Celiac Disease. How long into your diet did you start feeling better?
I have it and it has been years for me. I can do painting now where I could not before. It depends on the person and how long you had it. 33% don't heal as much as they should. Make sure you are eating certified gluten free and best is to cook from scratch. Buy all stuff in packages. People have gluten filled hands and touch the veggies in stores.
Me personally the diet helped for me personally my result was fast and the difference was night and day I started growing, my brain fog lessened it’s still there but definitely not as bad. It took me a little bit of like 5ish years to fully heal
Thank you for sharing your story!
I was diagnosed with Celiacs Disease in August 2018, so almost a year now.
Hello i also have Celiac disease, and I can totally relate
I just discovered that i have celiac aswell we got it alot in our family , my mother , aunt and grandfather have it . It sucks :/
hummus shotgun it’s the worst
Same girl! People look at me like I’m a lunatic when I say I miss Ramen the most. Haha
I genuinely think I have celiac disease because I have a lot of the same symptoms and I’m also losing weight without explanation. In order to get the nutrients you need are you just taking vitamins or are you eating foods with more of it? I still have yet to go to the doctor because I do not have insurance so until then I’m gonna be taking vitamins and cutting gluten out
Did your celiac cause you to loose weight? Were you able to gain the weight back after going gluten free?
Hi! Joe long did It take yo feel better? Once you stopped eating gluten?
Super cute and very helpful
I have been feeling awful for months and was just diagnosed with celiac two weeks ago. I was wondering at what time after you went GF did you start to notice a difference in how you felt? I know the process is probably different for everyone, but I would just like an idea for a little hope to hang onto! Lol
Hi, i do hav e also celiac disease, thx for sharing!
I'm 26 and have all those issues and always thought something was wrong with me. I even had really bad hormonal issues and period pain that was so bad. Doctors keep dismissing it. I stopped gluten to see if it would help and in a month I felt a lot better and after 2 I had pain free periods. When I started eating a little gluten it again I started to feel slightly bad. I'm so depressed right now I don't know what to do. Should I just give it all up or hang on until the doctors actually listen to me? I'm too scared to have an endoscopy. I don't want to start eating lots of gluten again and feel really bad just to have a blood test.
Hi Sarah! So sorry to hear you're going through this. If you've cut out gluten and you know you are feeling better doing it, then I say just go ahead keep it out of your diet. I'm no doctor, so maybe others have a different opinion, but if you know you feel sick when you eat it then there's nothing an "official" diagnosis is going to change. You may have celiac, or you may have a strong sensitivity, but the after effects are the same. Unless of course, you choose to eat it occasionally, in which case that will be much more damaging if you have celiac. If you're concerned, I would look for a doctor or nutritionist in your area who either has celiac or is familiar with it - they will be able to help you the most. And if you decide to get an official diagnosis, I promise an endoscopy isn't too bad :)
Bryn Smith thank you so much for your advise. It's very helpful. 🙂
hey can i just ask.. if you remember how long did you have to wait for the biopsy (endoscopy) after your appointment with your gastro? thank you! x
The left side of your brain just smacked the right of my brain so hard.. ..that then, I and then, and now, again , I have nothing.. ..left to say.. ..but to quote that my left hemisphere wishes it could place up on its right hemisphere, ; "the same".
I miss cup of noodles so I went to Whole Foods to find ramen and when I tried it i didn’t like it. My craving went away lol
Whole foods Ramen is nasty. you could get it with fresh vegetable noodles from an actual Japanese Ramen restaurant.
Me to glad I'm not the only one always feel left out
I can I ask you something can you explain something?
Tissue Transglutaminase IgAYour Value1 U/mLStandard Range
Is that good or bad?
I just got diagnosed a little less then a week ago. It’s not fun.
I'm afraid that i have this thing .my stomach was very upset yesterday ive been drinking oat drink .no one in my family has celiac . Have to go to the doctor i have lactose intolerance too .i dont want this celiac thing too .and my stomach is very sensitive .it sucks .
I have celiac disease, I found out about 2 years ago my mom has it, I got headache, acid reflux from gluten I felt foggy too
ty for this
I would like this video a million times if i could. Dealing with making doctors believe me and help me get it under control right now.... figure out what vitamins im lacking, how much damage is caused... it feels quite hopeless 😩
I really hope you get things figured out and start feeling better soon 💕
Thank you
Same fam same.
girl SAME
I found out I had it after the Holy Spirit told me I had it so I asked the doctor to check me for it and it confirmed what I was told.
I have coeliac desease as well I can’t eat gluten, wheat, rye, flour.
The stomach pains when eating gluten is unreal.
I’ve just fount out I just got this , I don’t no what I can eat and can’t can you help?
I’m almost 12 and I’ve had it for around 7 years. You are so pretty and I have a question ??
Do u like being coeliac like me ?
Freya Vinnicombe hummm so tell me what are the pros!
I love being a celiac I’m so happy and proud to be a celiac I love it and it is so important to me and I want to spread awareness to my wonderful disease. I love being a celiac. It has given me friend,opportunities and experiences that I wouldn’t have if I didn’t have it so I’m thankful for being who i am❤️❤️
i think i have it too...
i am suppose to get my blood tested on thursday..
i am in so much pain everyday
give me a reason to live please
Do you get horrible like stomach bloating and cramps? Extreme fatigue, vertigo,dizziness and just feel like your dieing???
@@timfisher1376 i get HORRIBLE bloating which I'm having right now and the cramps that i get makes me feel as if I'm going to pass out...i also get nauseous and fatigued no vertigo though
I was diagnosed at age 5 with celiac disease
But there is gluten free pasta on the market to make cheese macaroni!
We found out the same year
I have celiac too
Anyone has yellow stools? I believe I have celiac disease I've stopped eatinf gluten and my stomach pain on the left side and acne is gone but I have low vitamins and my stool is yellow. I'm super worried I thought cutting gluten would make everything back to normal but ita been a year and my health is still affected (especially the yellow stools) Maybe I'm intolerant to dairy too. eh :(
Probably yes. Cut dairy and see what happens
I have the same thing
Can not wait til i wont feel sick every single day of my life...
😊
it's so sad wen this days don't have clue .
Me to i have celiac dsi i t so hard to live wth
I get bad post nasal drip vomit cough is that a symptom I feel shit every morning. I can't eat chocolate I feel sick. I'm getting tested. I'm coughing up clear phlegm every morning and no one is helping me cause it's clear.
That happens to me, I have celiac
How Flexible are you Bryn? The reason I ask you is there are a lot of People with Celiac Disease who go undiagnosed with Ehlers-Danlose Syndrome have you been checked also for this to rule it in/out hugs blesses Aidan x x You should be Modeling u r gorgeous Ha!
Hey! I saw your video in my suggested feed! I also have celiac and have a series over on my channel :) I would love to get to know you and possibly collab on this topic!
Hi, Great video really enjoyed it, I am a coeliac as well, I was diagnosed about 1 year ago so its all fairly new to me !, I make videos every Tuesday about my life with coeliac disease and I would love it if you could maybe check them out. I love your videos and I subscribe, You also seem like such a nice person! :)
Thank you!
I’m starting to think that this isn’t a disease but a genetic trait.
why