As an adult with a feeding tube I have not been able to find any support for my situation. Most sites or support services are specifically designed for children or the caregivers of infants. I feel like an outcast and it’s hard to find any good resources. The resources you provide are very outdated and underused I am a 33 year old male who was diagnosed with drug resistant right temporal lobe epilepsy. Then recently I was diagnosed with a rare seizure genetic disorder called VPS13A. I have struggled with uncontrollable weight loss. I have been using a g tube for over 6 months and have been struggling to gain or maintain my weight . i am currently on a very vigorous diet and I’m not sure if I can continue to do it without results. I have a follow up with my doctor to discuss my options and I don’t know how to explain that I am exhausted..
As an adult with a feeding tube I have not been able to find any support for my situation. Most sites or support services are specifically designed for children or the caregivers of infants. I feel like an outcast and it’s hard to find any good resources. The resources you provide are very outdated and underused
I am a 33 year old male who was diagnosed with drug resistant right temporal lobe epilepsy. Then recently I was diagnosed with a rare seizure genetic disorder called VPS13A. I have struggled with uncontrollable weight loss. I have been using a g tube for over 6 months and have been struggling to gain or maintain my weight .
i am currently on a very vigorous diet and I’m not sure if I can continue to do it without results. I have a follow up with my doctor to discuss my options and I don’t know how to explain that I am exhausted..
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