Clearing the air about pulmonary fibrosis cough webinar and Q&A on managing cough symptoms
ฝัง
- เผยแพร่เมื่อ 30 ก.ย. 2021
- Professor Surinder Birring, Liz Robertson and Steve Jones discuss cough severity in pulmonary fibrosis, mechanisms of cough, possible treatments and future trials.
www.actionpf.org
- Find out more about managing your cough: www.actionpf.org/information-...
- Find support: www.actionpf.org/information-...
Care giver
My husband disgnosed in March. Had issues for a few years. He brushed it off as getting older. Trip to er in Oct 21 found something in his scan. Took 6 months. Found out in march. Hugs to all searching for answers. Thank you for this video
Tell him to never give up hope and never stop fighting.
Im 7 years since being diagnosed with IPF. Looking back I realize that I had symptoms many years be that.
Im down to under 40% lung capacity. Im working with a major University Lung Transplant Program in my area and finally made it to the transplant list.
I originally was was working with a small private group of Pulmonary Drs and for years wasn't seeing any positive results. I changed to a University program and it was the difference of night and day.
They did more tests, they obtained grants for me to be able to afford new and more powerful meds.
They now have me on the transplant list.
The key to the future is about today. We need to stay in shape as best we can. We need to be "Well enough to be Sick"
Transplant is a long process and the better condition we stay in, the better the post surgery will go.
Get him MULLEIN- it helps the cough
@HeavyHaul51 I really hope you got your transplant and everything went splendidly, with you going out for long hikes and boisterous laughter, without losing your breath.... ❤
@@HeavyHaul51 good luck to you thats amazing. Transplant was not option for my husband also couldn’t take the ofev his kidneys and liver took a hit. So glad you hanging in there. Hope you update us. On Facebook there are amazing stories on a private group there.
Many thanks great video.
Hi. I'm in the US. My cough tears my big hernia worse but I put out tons of thick mucous. I have to spit in the little garbage can next to me. I only just now found out I have pf because it was on my discharge papers from getting an upper endoscopy. Nobody told me anything. I don't know when they made the diagnosis either.
Thank you. i have RA-ILD and my cough is debilitating.
This is probably one of the most relatable channels I have come across recently. So much information was given out. Anyways, I also suggest that viewers should search Molemen Herbs on TH-cam.. if there is anyone looking for natural holistic curative remedies to reverse and cure pulmonary fibrosis & Diabetes permanently. I had an amazing healing encounter after using their products.
I don't see the Q & A.
At this point i'm still very shocked with the negative result I got after suffering from pulmonary fibrosis for so long. Thanks once again Dr. Ogudugu on TH-cam for your medication.
Go away SCAMMER!
PERVERT! There is no cure!
Sister
If you can’t afford the medication how can you get help I have an insurance but it won’t pay for it I have Lung fibrosis
Try to switch insurance and make sure they cover prediagnosed ailments... if it's employer provided, look for a new job and ask in the interview process (some companies have the info on their website so you know nkt to apply there) what company they use. Then you can research their policies on that specific diagnosis, what treatments it covers and doesn't. I wish you the best, insurance companies job is to avoid having to pay... sadly.