First they tell me I have PF it's taken 2 years nothing really has changed lung function test the same now they want me to go through it all over again because now they are not sure . They think I may just have scarring . Got to have another HD scan . Now I am worried again have I got it or not ! Amazed at the lack of help groups there are for this condition.
It’s really heartbreaking when your lung function drops to below 50% and the doctors take you off the antifibrotics. Please could this particular issue be addressed in future, as well as the various stages of IPF. Thanks for an informative session
First they tell me I have PF it's taken 2 years nothing really has changed lung function test the same now they want me to go through it all over again because now they are not sure . They think I may just have scarring . Got to have another HD scan . Now I am worried again have I got it or not ! Amazed at the lack of help groups there are for this condition.
Thank you ❤
It’s really heartbreaking when your lung function drops to below 50% and the doctors take you off the antifibrotics. Please could this particular issue be addressed in future, as well as the various stages of IPF. Thanks for an informative session
I have question. I have always thought it was both lungs for idiopathic pulmonary fibrosis