Rachel's love story: Living with ALS

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  • เผยแพร่เมื่อ 30 มิ.ย. 2024
  • Rachel's story of living with ALS.

ความคิดเห็น • 98

  • @sherylduncan9568
    @sherylduncan9568 9 วันที่ผ่านมา +1

    What a sweet guy. That’s real love!! My husband would walk away so fast!!

  • @catman8670
    @catman8670 3 ปีที่แล้ว +16

    God bless Rachel, her husband and family

  • @wesleyreeder4749
    @wesleyreeder4749 9 หลายเดือนก่อน +5

    My wife was diagnosed with A.L.S. in 2013. She fought. She fought hard. In 2020 - the day after Thanksgiving She went to heaven. As for me. I still fight. I pray for a cure. This beautiful lady has a wonderful smile and a warm hart. Much love to you both.

  • @sylviahatfield4451
    @sylviahatfield4451 5 ปีที่แล้ว +14

    God bless Rachel & Evan :) such a horrible disease! My prayers to you both

  • @bettyh3747
    @bettyh3747 6 ปีที่แล้ว +37

    My daughter was 25 ... Died 6 months after diagnosis. Her symptoms could be traced back to the dear age of 13. God bless this couple.

    • @racheldoboga329
      @racheldoboga329 6 ปีที่แล้ว +4

      Thank you for your blessing Beth, and I am so sorry to hear about your daughter. This is a horrific disease.

    • @KellieR1986
      @KellieR1986 6 ปีที่แล้ว +1

      I'm so sorry for your lost.

    • @soualemwafa4938
      @soualemwafa4938 6 ปีที่แล้ว

      Rachel Doboga my sister 28 years have SLA before 4 months ago is very hard 😭😭😭😭

    • @janheard3826
      @janheard3826 5 ปีที่แล้ว +1

      grizzly bear stupid halfwit

    • @He805
      @He805 5 ปีที่แล้ว +1

      @@KellieR1986 My deepest condolenses!

  • @purplelilac1387
    @purplelilac1387 4 ปีที่แล้ว +19

    Couples can live 100 years and not share the love that you both have, Im so sorry

  • @pmcpmc8005
    @pmcpmc8005 3 หลายเดือนก่อน +1

    ALS knows no age. My sister was diagnosed at 24 and passed away at 30. RIP Sis

  • @nikkiboo3184
    @nikkiboo3184 6 ปีที่แล้ว +3

    I’m gonna cry . God bless

  • @sandragraham9781
    @sandragraham9781 6 ปีที่แล้ว +7

    Very inspirational couple!!

  • @eviandaj
    @eviandaj 4 ปีที่แล้ว +8

    praying for her and her family

  • @_DrDrakeRamoray
    @_DrDrakeRamoray 5 ปีที่แล้ว +46

    Man you have to give the husband props for sticking with her. He could have walked away from that.

    • @bigbrycm6
      @bigbrycm6 5 ปีที่แล้ว +1

      Dr. Drake Ramoray you mean like Kati Connors did to her husband that had ALS?

    • @feeltheillinois
      @feeltheillinois 5 ปีที่แล้ว +18

      people should never get married unless they are prepared to go through things like this without abandoning their partner

    • @myfatcatelliott8840
      @myfatcatelliott8840 5 ปีที่แล้ว +11

      Dr. Drake Ramoray it’s called love.....not something you give “props” for!

    • @Squidlark
      @Squidlark 4 ปีที่แล้ว +2

      I wouldn't blame him if he walked. I've read testimonies from spouses turned caregivers for their disabled loved ones and it's a difficult and thankless life.

    • @officetechtyping
      @officetechtyping 4 ปีที่แล้ว +3

      @@myfatcatelliott8840 it is something to give props to. Taking care of a dying person is taxing and ruthless; not everyone can or is willing to do so.

  • @joyceweber4299
    @joyceweber4299 10 หลายเดือนก่อน

    SUCH A BEAUTIFUL STORY WITH A HORRIBLE DISEASE.GOD BLESS YOU BOTH.

  • @debibarrington8348
    @debibarrington8348 5 ปีที่แล้ว +14

    God bless you beautiful lady and what a wonderful husband you have!! God bless him also

  • @esthernyanchama3522
    @esthernyanchama3522 5 ปีที่แล้ว +6

    Love you Rachel.

  • @olivedog1880
    @olivedog1880 2 ปีที่แล้ว +5

    When he adjusted her glasses. Was so simple, and so small, but so sweet. I don’t think the majority of any man or woman would stick by their partner. I just don’t. It takes a really special person.

    • @rickydalebradford3384
      @rickydalebradford3384 2 ปีที่แล้ว +1

      My husband is going to the ALS clinic soon. Two doctors have said it is ALS. Trust that I will be there every step. I took my vows seriously. This is Darlene

    • @susancross5192
      @susancross5192 11 หลายเดือนก่อน

      Most women would

    • @207humanity
      @207humanity 7 หลายเดือนก่อน

      ​@@susancross5192Most men wouldn't. It's been reported that men are more likely to leave their spouse if they get ill.

    • @LSUWarlan
      @LSUWarlan 3 หลายเดือนก่อน

      Majority of women won't stay thats for sure

    • @LSUWarlan
      @LSUWarlan 3 หลายเดือนก่อน

      ​@207humanity yeah right women are responsible for 80% of divorce in non als cases what do you think they will do when they can leave and find someone who can take care of them 😂

  • @annettehenry2083
    @annettehenry2083 ปีที่แล้ว

    Evan and Rachel, what an amazing couple, a true love story.

  • @RikWCrlsn
    @RikWCrlsn 5 ปีที่แล้ว +12

    Way too young... I'm 53 which is in the ave age group of diagnoses.. I can still do mostly anything but use my arms..
    Symptoms started over 2 years ago.
    So sad to see this

  • @dupasraja9885
    @dupasraja9885 6 ปีที่แล้ว +16

    This should be full documentary

    • @eddiew2325
      @eddiew2325 6 ปีที่แล้ว

      Dupas Raja hey girl whatcha gone do baby I can give a clue left right pop it to the left to the right

  • @pantyflash
    @pantyflash 3 ปีที่แล้ว +4

    Like, even though your motor neurons are hosed, you still have some fight left. You go, girl!

  • @davidfleck9635
    @davidfleck9635 2 ปีที่แล้ว +1

    it is so sad there's no cure my husband diagnosed in 2019 passed away day for his birthday in 2022 he was 73 I miss him everyday I took care of him at home I quit my job going to have done it any different

  • @rayrocher6887
    @rayrocher6887 3 ปีที่แล้ว

    i pray for her. and husband who had courage. persistence , there will be a cure , someday. and preventive treatment. i still believe in Heaven and in Good People. there will be better ways. keep the faith. thanks Dr. Kimberly. research.

  • @user-hj8gf3gu3f
    @user-hj8gf3gu3f ปีที่แล้ว +1

    It’s a horrible disease. My mother just passed away from ALS.

  • @atheistmommy3710
    @atheistmommy3710 5 ปีที่แล้ว +14

    I noticed ALS attacks mostly physically fit and active people, and in good shape and health.

    • @atheistmommy3710
      @atheistmommy3710 5 ปีที่แล้ว +1

      Julia F I hope you don't have it, I do understand how scared you must be, because last year I had cancer scare, it turned out to be nothing but in a mean time I was going crazy, I was absolutely horrified. I really wish you the best, and hope everything turns out to be ok.

    • @4dchessplayer516
      @4dchessplayer516 5 ปีที่แล้ว +2

      You hear about this more, it does not attack, physically fit people specifically over someone else. They just notice it more, because they use your muscles more intense everyday and know what they are capable of, so it gets more attention than lets say a 60 year old man who is retired with no physical activity.

    • @Chinookman
      @Chinookman 5 ปีที่แล้ว

      Having played a varsity sport is a risk factor making someone 2x more likely to present with ALS, per Dr. Bedlack. Not sure the research source.

    • @RikWCrlsn
      @RikWCrlsn 5 ปีที่แล้ว

      I was a runner.. and physical hard job..
      It sucks

    • @applejellypucci
      @applejellypucci 5 ปีที่แล้ว +1

      @@Chinookman this is the same with Multiple Sclerosis.

  • @user-yn1rc8bc3s
    @user-yn1rc8bc3s ปีที่แล้ว +2

    I stopped most of my ALS medications due to severe side effects and I started on herbal treatments from Natural Herbs Centre ( natural herbs centre ), the treatment has made a very huge difference for me. My symptoms including body weakness and Swallowing difficulties disappeared after few months on the treatment. I am getting active again since starting this treatment. I no longer use a feeding tube

  • @jayesimond9301
    @jayesimond9301 5 ปีที่แล้ว +3

    Sad to listen to this husband and wife only reminiscing bout what she used to do and who she used to be. As if she was already died. All these treatments and therapies, none of which stop ALS but only extend the progression of its physical devastation.

  • @natureclips5849
    @natureclips5849 3 ปีที่แล้ว +3

    She has gained weight which is probably why she is still alive

  • @sharonreyes5570
    @sharonreyes5570 3 ปีที่แล้ว

    This is very sad i wish for a cure or something to help ppl with als

  • @officetechtyping
    @officetechtyping 4 ปีที่แล้ว +2

    How is she now?

    • @applejellypucci
      @applejellypucci 4 ปีที่แล้ว +2

      Her blog says she's going on a ventilator.

  • @ginajoseph8776
    @ginajoseph8776 4 ปีที่แล้ว

    I have no idea why I picked this up, but I have the strangest feeling that her parents do not like Evan. Weird, I know!

    • @aljackson6802
      @aljackson6802 3 ปีที่แล้ว

      So very wrong. Both Bill and Renee love, and are very grateful for, their son-in-law Evan. They trust and put a lot of faith in him for overseeing Rachel's care. Rachel's parents live quite a distance away in Virginia, and are lucky to have such a quality person in Evan.

  • @kidneytransplantwarrior21
    @kidneytransplantwarrior21 4 ปีที่แล้ว +5

    I'm going to make a cure for ALS.

  • @arthurmunoz1715
    @arthurmunoz1715 5 ปีที่แล้ว +7

    Its awsome that you folks have each other, SWEETHEART MIRICLES occure exclusively by the hand and at the will of GOD ALMIGHTY the creator of heaven and earth and all that is in them, seek prayer both far and wide from everyperson that you can possibly reach, people who's hearts are filled with the love and knowledge based on the teachings of GOD ALMIGHTYS and JESUS CHRIST from the HOLY BIBLE, that will provide you with the best chances of seeing the miricle that you seek in your life. May the Peace of JESUS CHRIST be with you and your loved ones always.

  • @irish2979
    @irish2979 2 ปีที่แล้ว

    I personally feel u only have one life why should Evan be left caring for her with no physical intimacy even he is putting himself in the same disease just to take care of her......she should let him go have a life as selfish as it may sound why should his life be taken over

    • @rickydalebradford3384
      @rickydalebradford3384 2 ปีที่แล้ว +1

      I guess because unlike you he is not a selfish person. He loves her and took his marriage vows seriously. My husband has this disease and I will be there till he takes his last breath. (Darlene)

    • @susangreen3002
      @susangreen3002 3 หลายเดือนก่อน

      Wow what a selfish way of thinking. What if it were you with ALS would you want your spouse to walk out. ALS doesn't affect the mind and he obviously loves her and took his vows serious when they said for sickness and in health. It's scary to know that there are heartless people who think just abandon someone because of a illness