Birt-Hogg-Dubé (BHD) Explainer Video

Birt-Hogg-Dubé (BHD) is an inherited condition. The BHD Foundation was set-up by the Myrovyltis Trust to advance and promote research into medical and molecular genetics in order to better understand, diagnose, prevent, cure and relieve Birt-Hogg-Dubé syndrome and freely disseminate the results of such research to the public. The foundation also aims to advance education of the public in medical and molecular genetic. We hope this video provides people with the background knowledge of BHD, and to better aid them in where to find help to manage this disease on a day-to-day basis

[@bec215h.7]

I’ve just been diagnosed. I’m at least the third generation in my family - no one knew that my grandmother’s collapsed lungs and cysts and her sisters collapsed lungs and my mom’s head cysts and my neck cysts and face cysts and possibly now my mom’s COPD are all BHD.

[@permagnushaig5937]

Thank you

[@interestingvideos9717]

I have been diagnosed by BHD syndrome

[@glam_jam]

Is it the same folliculin of thé menstruel cycle in women ?

[@gabriele590]

There is no cure yet. Waiting for it for a long long time.

[@UncleDavey]

I know the feeling!

[@Sylveon0978]

i have a 50% in having this thank god im not alone.

[@ibrahimyildiz7154]

Türkçe tercümesi yokmudur

[@satomiimazawa5092]

予防も治療法もないまま普通に生活していますが心配です。
子供たちにも遺伝しているのですがどうしてあげることもできません。

[@shafwanmohammed528]

Anyone from south india??

[@calamity883]

I have this, it’s hard. I get picked on for my skin. My whole family has it

[@bec215h.7]

I’m so sorry that happens to you. Fwiw, microdermabrasion works very well on the skin. I have hundreds of them - dermatologists misdiagnosed me for years. Said I shouldn’t get microdermabrasion, but even just occasional treatments do help. A new derm biopsied one and based on that I got a genetic test covered by insurance. It’s not a solution, but you can reduce the texture of your skin at least. Good luck ❤