Topamax - A complete breakdown (Topiramate)
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- เผยแพร่เมื่อ 7 ก.ย. 2024
- Topiramate is a medicine used to treat epilepsy. It can also be taken to prevent migraine and has recently been trending to help with weight loss.
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💊💊 Do you take this medication? Did you experience any side effects? 💊💊
My doc prescribed it to me I’m on seroquel and am 100lb overweight. I’ve been exercising consistently and the lowest I can stay is 269lb. It’s day 7 at first had brain cod seems gone now less appetite. Also had unexplainable seizures with different anti psychotic meds
Tingling & loss of balance but only thing that does the trick!!
I took my first one last night and woke up with diarrhea and vomiting 😢 would this be from this medication or more of a gastro? I really wanted to take this for my migraines but scared to continue
@@PinkBlushGlamour I'm sorry that happened. Did you ever give it another try? I was thinking of giving it another try for not that well controlled migraines on botox, as I can't remember why I stopped it quite a while ago. It's going to be either that or give Nortryptaline (a tricyclic antidepressant) another try. My problem with both of these meds was not feeling like myself and not being able to tolerate it anymore.
@@catherinewylie6959 aww it’s so hard isn’t it. Yes I tried again and got good results but then I found it wasn’t really working anymore. So they have increased my dose. Will see how we go. I hope you start to find a solution too
I didn't see anything about a side effect mentioning it's fantastic ability to mess up your ability to speak. I had no issues talking until I took it and wound up having to walk around with post it notes to convey messages every day. I couldn't string together a 3 word sentence, ended up repeating the words four or five times before being able to get to the next and needed to think of synonyms for words because I didn't have the ability to say others out loud. Some drugs may not be for everybody but this one has some jacked up side effects and not even half of them are included in that "long list". Not trying to be a jerk, but a second slide mentioning the other effects would seem appropriate. If people plan on taking meds they should be alerted to all the issues not just a brief overview of what someone deems the worst in their opinion. And yes, I know people can do their own research to find out the possible issues before taking it.
Wow, thank you for sharing that @BFrancis03. I'm sorry to hear about all of those side-effects. I took the side-effects listed from research I did from resources such as peer reviewed articles from NCBI, ScienceDirect, CDC and more. I gathered all side effects and choose the most common according to those sources. It's comments like yours that help spread the word about other side effects. However, I'll take into consideration of being more thorough. Thanks again and I do hope you are managing your seizures!
Are you doing better now?
@@beckymc5235 After stopping the meds, my speech got better than it was while on it and I don't look like a sickly person on the verge of death. My speech and ability to convey words are now just a problem I have to continue to deal with. I carry a dry erase board around at all times, but I definitely don't use it as much and people around me can help make leaps to what I am trying to say to make it less aggravating when communicating.
@@BFrancis03 what dose were you on? I’m starting on 50 mg this scares me
@@erikasolorioo7313 I was on 25mg a day. It should be noted that I was also on 4000mg Keppra and 40 mg Clobozam daily. I also take Lorazepam as a rescue med and have a VNS. Hopefully your experience will be more positive, but if it's anything like mine I don't envy you in the least. As always, you should try and stick it out for a bit to have your body adjust to the change, but don't be afraid to contact your neurologist if you start experiencing extreme side effects.
That was wildly more information that I was expecting or looking for, but it was still fascinating and greatly informative.
Awesome, thank you!
My Dr put me on this for weightloss. It has messed me up really bad, I've lost cognitive motor function, my mood is a rollercoaster of suicidal thoughts, it is a nightmare. I'm also experiencing extreme drowsiness and confusion as well as losing balance and staying dizzy.
Thank you for sharing, Christina. I'm terribly sorry to hear this. I hope your experience improves with time. I know there are many people who will read your comment and either be informed or relate.
Me too!!!! I am so sad I even did this… I’m telling myself sorry everyday.
What dose were you on??! Like holy crap every comment I read is negative 😮
@@sexygabby30 what dose were you on?
So sorry this is messing people up😔. I was prescribed this stuff just a couple days ago but wanted to know real life experiences before taking it. I will, without a doubt be tossing it out today!! No weight loss is worth the consequences of this kind of med. Sure hope you find healing🙏💕
This drug work EXCELLENT FOR Pseudopapiledema as this can cause massive migraines also. The tingling, dopy feeling & many of the side effects listed will go away eventually. This medication cause weight lost also which is needed for this condition. I would say just work closely with your doctors. It's totally safe.
Thank you for the perspective!
I was just prescribed the pill but after reading the side effects I am not going to take it.
Same here. I was prescribed this for weight loss. It’s not worth the risk for me. I’ll keep searching. I can’t afford Ozempic or Wegovy, and my insurance will not pay for it.
For the side effects i can relate to the Tingling sensation cause when ever i pee i get a tingling sensation in the bottom quarter of my stomach. it felt pleasant but not at the same time.
Thanks for sharing!
The potential side effects are scary...permanent blindness! My 9 year old has been struggling with severe depression and anxiety for years. Level 5 if that means anything to you. Psychiatrist tried many things when it was decided that therapy alone was not enough and tried many different things. The magic combination is 7.5mg a day of Abilify and 50mg a day of Topamax. It doesn't solve all his problems...but it is a life saver. Literally. Few things are more horrifying than your 8 year old son cutting himself, wanting to commit suicide, and freaking out in any kind of social situation. I was his only friend for a long time. Now he has a best friend and a girlfriend! He is still uncomfortable when there is more than 5 or 6 people but he can manage it. It just sucks it took 6 months to get him help in the first place without committing him...which we almost did. I had to quit my job to be his full time care taker. Well...and take care of my father who was dying from dementia. I should probably start focusing on my own mental health now.
Thank you for sharing. Wow, you have been through a lot. It seems every punch you've taken you and your son have bounced back. Figuring it out. I applaud you both! Keep going!
Si, el cuidador tiene serios problemas que son postergados. Como en un avion, debes ponerte la mascarilla antes que tu hijo si quieres seguir cuidandolo. Disculpa la crudeza pero es asi.
I was prescribed this today to fight food cravings and weight gain from taking Seroquel.
Is it helping? Are you experiencing any side effects?
I'm the same haha I'm on quetiapine 200mg at night,got these because weight and migraines lol
Started last night,I went on the toilet first thing this morning omg haha
@@paulyoung4781now u must train yourself to stop eating after 8 so u dont poop first thing in morning. U will lose weight. This will help u so start changing ur diet to assist.
I just on day to and I’m experiencing nausea, and seems like my words are getting slurred. and it’s weird that I’m getting headaches because it’s also used to get rid of migraines butI’ve been put on it for weight loss.
I took this medication and had to stop if you have any kind of nerve damage or fibromyalgia or thoracic outlet syndrome or neuropathy it will make it worse. I have neurogenic thoracic outlet syndrome and it made my nerves in my neck and arm burn and tingle and cause horrible pain.
Thanks for sharing! On a scale of 1 to 10, how bad is the pain?
I'm about to start taking it and to be honest I'm really nervous after reading about all the horrible side effects 🥺
how has it been?
Yes, I'd also like to hear about your journey, Becky. Are you experiencing any significant side effecxts?
@@qLeila it was horrible ! I only took it for 4 days and I had to stop ,I had nightmares,Tingle in my feet and hand,headaches ,sour taste, stomachache, hot flash, nauseous 😫 and much more.
I honestly think is not worth it!!
@@beckymc5235 hey what dose did you start on? My dr prescribed it to me and I’m a bit nervous
No no no
Don't take it
This drug literally almost killed me i stopped breathing and fell on the floor
😳 OMG! I'm so sorry! Are you ok?? My "therapist" put me on this about a month ago for anxiety 🙄😤 and I've had issues with breathing ever since. Thought it was just allergies.
@@heathergross2238 oh I'm fine now i didn't care when it happened i was severely manic during the time so it never actually bothered me much everything just went black
@@HurlingMongroach That is so scary. I have bipolar and migraines and they suggested I try this again. I quit it once before and won't try it again. Can't remember what happened, but I have a lot of sensitivities to medications.
@@catherinewylie6959 i have only gone manic from there medicine i have never been treated more poorly than by the medical field. Part of me used to believe in them but I’m not gonna lie nothing really improved. They have killed at least a few in my family or messed them up worse. My stomach was quite swollen and they didn't take me seriously. Street drugs r less harsh than the stuff they've given me. They all told me the pain was in my head cuz i look fine on the outside. They evil at this point, they basically laughed in my face for a long time. I have fibromayalgia autsim and adhd and gaseoparesis which is partially paralyzed stomach, honestly cant trust them no more they r the reason for some of my trauma. There was a antipsychotic that made me forget 3 weeks i don't remember anything apparently i went kayaking
I been taking these pills and I can’t eat I feel so nauseous sick to my stomach with the urge of vomiting. I had a sore throat for two months. My doctor kept saying it was normal it wasn’t I had nonsymptomatic or acid reflex never have I had that problem started when I started taking this medicine. I can’t eat I can’t sleep. I think I rather have a migraine then keep taking these meds
I’m starting to take this medicine, but I’m so scared of the side effects 😢
Me too , I was prescribed this last week and now I’m scared 😢
Really interested in the weight loss part.
😂😂😂😂😂
@@raghdanajem8667 I lost weight on it for six months; that was ten years ago. I'm still on it, but I gained the weight right back. Go carnivore, that's what I ended up doing. It does work.
Gained weight on it.
@@SwedishBs Find out if you're thyroid is slow.
I LOVE THE EXPLANATION OF SIDE EFFECTS , WHICH THERE WERE NONE.
What extra information are you looking for?
Side effects at 1:15
Hi I just started brand-name (Topiramate -50mg) 2-days ago and have been taking (Ozempic -.25mg) once a week injections for 4-weeks now for weight loss. Now with my doctors approval I just started taking the next stage of (Ozempic-.5mg) once a week injections along with (Topiramate-50mg) . My Side effects so far is I’m dropping water weight 3 pounds or more in one day👉 is this normal, and I’m relieving(Urinating) more than I’m drinking 👈👀
I was prescribed (Topiramate) for my (migraines) and was told due to some of the side effects it could cause or assist in weight loss
Trusting gullible sheep.
Thank you for sharing, Rebi. I'm curious, are you experiencing any mood changes?
I'm currently on topiramate for migraine disorder (50mg/daily - I take it in the evening before bed) I've been on it for 4 weeks total and lost 11lbs (no exercise). Lack of appetite, slightly nauseous 24/7. I've had an onset of migraine 3x but it went away after a couple hours. This medication immediately made me feel depressed so I know that's a side effect of the medication. Also have tingling in my face every day for a few hours on and off, same with jitters. (I started off 25mg a day for the first 2 weeks - experienced headaches but this went away completely)
Can we take Tylenol
@@ashajeremiahqw8775 yes
I'm getting ready to start the same regimen for migraine. A little nervous. How is your depression? Just an everyday blah, or an "I don't want to get out of bed" feeling? I just got off zoloft, and I really don't want to go back on it.
Excellent explanation and content was so interesting. Great job on making education easy to learn.
Thanks Beto!!!
There's a lot of important and damaging info he left out fyi
I do not have epilepsy except one event 2015 and very severe migraines. This drug altered my sense of taste and smell drastically. No sugars biscuits or crisps the taste blows my head off so sweet (hideous) as do smells some days are miserable I've to avoid smells as I smell like a bloodhound now the sugar free drinks even water don't work its all sweet so unpleasant. I did before now it's worse should have lose but gained weight underactive thyroid Id depression from life also . I had a neuro event in 2015 so will not take certain drugs. Its a good drug. Just eat bland food..
😮😮😮omg shalom hope your ok yes same 😢😢😢
I was just prescribed Topiramate today for seizures. I'm a little confused about how it's supposed to stop the electric current, because my understanding was that a seizure occurs when the electric current stops or gets interrupted.
I was on Dilatin and Gabapentin, but Doc says this is a better medication for me. I really hope this works, cause everyday is horrifying thinking that I can have a seizure at any given moment.
Thank you for your channel. Best regards...
Hello! Thanks for the question. An epileptic seizures is burst of uncontrolled electrical activity. Medications are used to help control the electrical activity. I truly hope you get the right medication you need!
I was prescribed this for migraines following a concussion. The side effects are horrible. I would never recommend this for anyone. It can really mess up the Brocas area of your brain. I started with a worsening of vertigo, forgetting or substituting similar words, I got lost driving in my neighborhood, loss of appetite, nausea. Horrible drug. Off of it for 3 months and still have issues with memory.
Yeah I just started it yesterday it was horrible why do doctors even recommend this bruh I should’ve just trusted the people online 😰😓
I'm sorry you're going through that! Has it gotten any better?
Sorry to hear, is it getting better?
Keep them coming!!
Absolutely will do, Pat!
What about doses for epilepsy and migraine?
Patients who had serious sideeffects from Topamax should do water diffusion MRI.
Thanks for the comment! Can you elaborate more for those who want to know why?
@@GilSolanoREEGT I assume that water diffusion MRI can detect if there is any damage on brain because of Topamax
I’m hearing ppl are having hair thinning is this true
Hair loss has been reported as a side effect.
You weren't very outgoing when it comes to the memory loss. It clogs up your brain.
I took this keppra med seems not get anything from side effect maybe l had experience side before
That's a slick synapse animation, did you make that?
Thank you, Jason! I actually used fair use from a channel called "Drugs in Motion" If you'd like to see more, I have them credited in the description.
Isn’t it bad not having the electrical signal passing through? I’ve been on topamax for 7 days. First few days was bad, cloudy foggy minded somewhat dissipated. Felt somewhat less appetite.
How is it going with this med?
@@citlalie9791 I stopped taking it, did not like my side effects. Not saying that it won't work for you.
On this for duel usage I'm.bipolar and suffer migraines and cluster headaches and suicide headaches and chiari malformation headaches.
I was taken off valporic acid and started on topomax/topiramate and I've noticed it's keeping me awake at night but my gp swear it suposed to make me tired!?
Bonus though my mood has improved with the depression with the bipolar has balanced but I jist can't sleep well but most ppl say it makes thrm tired and lethargic
My pain doctor gives it to me to help with the pain and so far I don't feel like it is doing anything. When I first started taking it I was taking 25mg twice a day. I began to feel dizzy and I fell several times which did not help my pain issues. I reduced it myself to once a day but I recently stopped taking it because I have lots of brain fog and still dizzy along with jimmy legs and trouble with my vision. I have been taking this drug for over a year. Should I go back on it? Do any other pain clinics us it to reduce pain signals to the brain?
I have a question is it OK For someone to take TOPIRAMATE if they haven't had any More Seizures for a very long time. Why should they still be taking this medication for losing weight or should they just not be taking it or just get off of it completely.
Thanks for the question @karendurborow5016 ! It's best to consult with your doctor, however, I can give you my take (not medical advice). If you're taking Topiramate and you're not having any seizures that's good! That might mean it's working. Your doctor may ask you to do an EMU stay (epilepsy monitoring unit) to safely monitor you while you wean off medication. This would be my suggestion as well.
Biggest side effect if miss a dose can trigger a seizure
I wouldn't say that is a side effect more than just an unfortunate consequence of not taking them.
@@GilSolanoREEGT true but us to forget and sezuier medication cause suicidal thoughts why hated taking it but on keppra now.
I was prescribed this today because I keep having eye/muscle tremors and a rapid heartbeat when I sleep sometimes even though I'm calm- there are no reasons why my doc and I can conclude how I'm having this except that I have bipolar disorder. So anyway, I jsut took my first dose right now. I'm a little worried about the weight loss thing with this medicine as I'm only 93lbs and I can't afford to lose any more weight, but we'll see. I also read that it causes acute myopia. I already am myopic. Does this medicine resume normal eye vision again if you stop taking it, or is it permanent damage?
Thank you for sharing, Retro! I'd sorry I'm just replying to this. How is it going so far? We'd love to know!!
please keep us informed on how it works for you.
Thanks!
Always my pleasure, Chris! I hope you're having a great day.
I got chest pain
Guys can you stop this medication after one day?
Please ask your doctor for medical advice.
I'm taking 200mg twice daily 400mg I've been taking this for a while at first the side effects is horrendous but it goes away once you get use
to it. The only thing I have now with the high dose is tremors. I'm sure it will pass also like all the others did if you can get past all the crappy side effects it's good
Hoping for the best, Marisa!
@@GilSolanoREEGT I am using this drug at 25 mg then bumped up to 50mg. My ENT want me to use 75 mg which I divided over breakfast lunch and dinner. No serious side effects. Then came the trouble when I took everything all at once! I've experienced the worse headaches and dizziness since then. The ENT still feels as if I might have some sort of food allergy that triggers the migraines which in turn affect my sinuses that triggers my vertigo. Question: Can these pills be taken like that all at once? Or whatever your recommended dosage cut in half?
I take 150mg 2x daily for migraines. It helps so much for the pain but the side effect of "lost words" and sadness is hard. I chose side effects over the pain for the past 2 years though. ♡
I can't take any directions with this medication 😅
Can you explain?
Blessings in an abundance of the faith. I salute you. 😘🙏🤍🤍🤍🤍🤍🤍🤍🤍 Grace and peace be unto you and to this place. Thank you Father God for your healing powers. Thank you for healing seizure disorders. Thank you for healing us from medications and dietary disorders in Jesus name amen. Thank you for healing hearts in Jesus name amen 🙏 Will you believe and receive Jesus Christ as your LORD and personal saviour??? I do. 😊
Thank you Father God for healing ❤️🩹 us. Past, present and future in Jesus name. Your word shall come to pass. You will keep your promise that all sicknesses and diseases shall be healed in the mighty name of Jesus. ❤❤❤🤍🤍🤍🙏
Best of luck to you, Rebecca
I lost my menstrual cycle.
FOR REAL?!?!
Wow thanks for sharing. I'm so sorry you're experiencing that. It's been 6 months, has it gotten any better?
I have take 1 morning. 1 at night for seizures
Are you experiencing any side effects?
No when I used take vimpat was messing me up with more seizure falling down they put me on Keppra on Keppra 5 years now Keppra better
@@adrianamunoz546 oh, so that’s Levetiracetam. That’s different than Topiramate. We actually have a video on that. I’ll link it.
@@adrianamunoz546 th-cam.com/video/rKyuwNNsh6c/w-d-xo.html
When momma got sick I got sick seizure now she not here with not longer with us anymore I haven't have seizure December she passway
And what does all that mean? 😂
I’m able to help clarify! Is there anything in particular you’re needing more explanation?
I take these for bipolar type 2, I have gotten a few side effects but it’s not worth mentioning with my doctor cause they’ll immediately tell me to try new medication. So far we have memory loss, tics, fatigue and some other minor things. All of those things were present before but they’re worse now.. 😅
Look up how much the makers of this poison,were sued for birth defects etc,please check Dr Bergs videos on Bipolar 2 my daughter is now back to her old self on lithium orotate (Lindens brand) 1 tablet a day,and Vitamin B1,brewers yeast,Nac tablets (N acetyl cysteine) ✨🕊