Just a Quick Q&A
ฝัง
- เผยแพร่เมื่อ 7 ก.ย. 2024
- For all of my new subscribers, I hope this helped you get to know me a bit better! Leave a fact about you in the comments so I can get to know YOU better too!
Instagram 👉 @life.with.stripes and @_michellesorensen
Blog 👉 www.lifewithstripes.blog
Mail 👉 PO Box 46, Waconia MN 55387
CHANNELS MENTIONED IN THE VIDEO!
The Frey Life👇
/ thefreylife
Chronically Jaquie👇
/ @chronicallyjaquie
Collen Ballinger👇
/ psychosoprano
Angela Arcinas👇
/ mebeangela
Fran Gray👇
/ @frangray2446
Sophie's Life👇
/ @sophieslife1119
Helen's Life👇
/ @helenslife588
Paige's Life with MS👇
/ @paigeslifewithms6967
Shontelle Scott👇
/ xtremerythmix1
Christina Doherty👇
/ @christinadoherty3212
Amy's Life👇
/ @amyslife4457
Amy Lee Fisher👇
/ @amyleefisher52
Emma Grace👇
/ @emmagrace
GO CHECK OUT THEIR CHANNELS AND SUBSCRIBE 👍
![Megan Thee Stallion - Neva Play (feat. RM) [Official Video]](http://i.ytimg.com/vi/TpYTyAaTRts/mqdefault.jpg)
When the dude told you to believe in yourself, that you can be able to walk again... you should have stood up, done a few steps and yelled: "A MIRACLE HAS HAPPENED!!!!!" lol
HAHAH OMG
Haha I was just gonna say that but figured someone beat me to the comment.
Jenn Cort ditto
Actually did this once. Totally worth it.
SusiOfficial lmbo
You should have stood up when he said that haha, "Omg it worked!"
Molly Burke is one of my favorites, she's blind and it's super interesting how she navigates the world with only a tiny bit of light perception and her dog Gallop (who only speaks french because hes fancy). She does more set up tag like videos, like blind apartment tour, guessing what colours smelly markers are and also some vlog material. Also Joy Ross, another blind TH-camr who's 100% blind, she carries her phone around with her on record and does more like vlog videos with some tag material like blind make up tag. Joy has two cute dogs too, she has Antonia who just retired and keeps trying to be her guide dog, and Arabella her new dog. I'm rambling, either way you should check them out if you haven't already
I also wanted to say, I really feel you when it comes to having children. I would love to have children and to be pregnant but its so unsafe and I would feel so guilty. I decided this the day I was diagnosed when I was 12.
I have to say, it's nice to have someone else express my exact thoughts about having biological children. I have scoliosis, and due to the corrective surgery I had at 17 getting pregnant is HIGHLY discouraged. With all of the other diagnoses in my family (Crohn's, diabetes, cancer, etc.), it's just not worth it in my mind to take the steps that would be needed to have biological children through a surrogate. I've wanted to adopt since I was eight anyway.
Have u ever considered doing some daily vlogging or weekly vlogs like Christina Doherty? I loved your day in th life video bc I found it so relatable and I would love to see more :)
Hey, can you do a video on the different levels of severity of EDS (hypermobile type)?
omg Mickey, in the beginning, I thought you said, "this is my last one," as in your last video, and I legit freaked for a hot sec!!!! Then I rewatched that part and realized you totally didnt say that hahaa phew!
I’ve always been fascinated in different medical conditions and learning about them.
James Briggs me too, I don’t know why it’s so interesting to me 😂
same
I play Challenger baseball! I live in Canada but I've heard Challenger baseball is even bigger in the United States of America. It's a baseball league for ages 4-18 with special needs or disabilities. Everyone gets a buddy to help them. You can play to the best of your abilities; run the bases or role the bases, the bases squeak when you hit them for kids with visual impairments. You can use a tee to hit the ball and the bats are light weight and easy to grip. It's all about fun no competition. I highly recommend it. I've played with kids on ventilators, blind kids, kids in wheelchairs, nonverbal kids and more!
Your buddy is there to help you. They never do anything without asking first. If you need a push just ask, if you need help catching the ball sure, if you want them to hold the baseball bat with you by all means go ahead. I have such a great time!
Have a great weekend!
Bye 😊
Max Nodwell challenger baseball is a lot of fun. My little sister plays on our local challenger team and she really enjoys it. She is 8 and has a cerebral defect.
This sounds amazing & makes me want to volunteer!
You know, you're growing up!! Your maturing so wonderfully. I'm sure your folks tell you, but it struck me today. You're an amazing person.
I have EDS too. I just found your channel! You are so positive and such a beautiful smile. 😘💕💕💞💞
you should really consider leaving the overlay music off when you do videos like this... it’s really hard for people with sensory processing disorder to enjoy your videos when the music is as loud or a tad louder than your voice.
Bumpy Back Roads agreed
solanab i couldn’t even finish half of it... and it’s not the first time that’s happened unfortunately. which sucks because i love her and the videos she creates! :(
Bumpy Back Roads I turned on captions
Kala Williams it’s not that i can’t hear or understand what she’s saying... it’s that the sound of the music over her is too overwhelming. it causes panic attack symptoms. i start to feel like i can’t catch my breath... i get really irritable and annoyed... i need to run far far away from everything around me. my own body even.
Bumpy Back Roads that’s what I meant like for mean I just cannot focus when she talks it just causes me problems. I couldn’t handle the music.
If you’ve any interest in horses, carriage driving is a really fun sport that requires very little movement but is very exciting and can be really competitive. You can also usually do it in your wheel chair! If you can find somewhere reliable I’d really recommend it! I’m not sure if I’ve mentioned this before but It’s super fun😄 love your videos! Thanks for making them!
Auw.. ..I watch the Frey Life too..discovered your channel recently and m in Love with it...❤❤❤😘😍😘
I’m literally crying I’ve never related to somebody as much as right now
I did not realize your dad & brother had EDS as well! Interesting!
make a video with/about them!!
You are such a joy to watch. And so strong always smiling thank you so much 😍❤💪🙏 God bless you
Yay! Love Christina Doherty been watching her forever. Wish i was more active on social media so I would stop getting so worried about her when she stopped posting videos though.
You are Hope,Inspiration and Joy! I have no idea why your videos ended up in my recommended but Im so glad that they did! Thank you for sharing your story and educating others! My prayers and my families prayers are with you and please never ever lose that fantastic and amazing spirit that you have. You are just a beautiful person inside and out.
Yay Maisy!!! I'm also an Okie! 🐶🐶
Mickey you are definitely bring hope to my life. You are so choose for a tional to me at such a young age. I I maybe one of your older viewers at 46, but you have brought hope to me and my family with my grandson's diagnosis of cancer. Your Channel and seen how you handled your feeding tube, has given me the courage to handle our situation. I really appreciate your spirit. I do include you in my prayers. Hugs from Missouri.
I love the Frey lifeeee!
Omg I love the Frey life!!!!!
you’re so inspiring and you helped me realize to not take things for granted. I just discovered your channel and I love learning about your life and your story! you’re such a beautiful soul and I love you and your personality so much! love you💗
I love your channel! I have EDS also and feel really down about it often, when I do I watch your videos. It’s inspiring!
Oops... I was having eye surgery the day you uploaded this... sorry I’m late lol
I absolutely love your videos! 😀, I know its hard but I wish you were a little more consistent with uploading
I love your videos they are so inspiring you are one of the most brave person that I know and I hope you get well soon and your feeding tube gets better xx
You should try power soccer. I know you don’t need a power chair for regular daily mobility. But power soccer would allow you to play without using your arms too much.
love the channel, and the message u r getting out there,
I would love to do wheelchair sports, but like MY JOINTS. I wouldn't be able to do basketball, rugby, skiing, racing, WCMX, even dance is a little risky.
I feel like wheelchair curling is the only option for me, except I live in GA. so ice sport teams are nearly impossible to find here.
Always sooo happy to see another video from you!
I love watching your videos because they make me feel less alone in my pain every day so thank you ⚓
I’m so emotional I’ve never related to somebody as much as right now
Hiya I just found you thru Instagram and wishing you well right now. Sending love and healing. I have lots of health issues too XX
You are so positive and you eyelashes are GOALS!
I agree lets get rid of gastroparesis!!
I love the Frey Life!!!!!
You are a great inspiration for all. You are hero in the real life. You are a real successful person. The way you are living your life is amazing.To be happy in difficult times requires a great courage.
Be happy.....
i went for a gastric emptying study on tuesday but i puked the oatmeal they gave me :/ so i have to wait and see what my endoscopy says to see if i still need the gastric emptying scan
I love your positivity, Mickey! I saw that you had forearm crutches in the background and I’m looking for some for myself. What would you recommend? Do you think the ones you have would be suitable for a long distance of walking without a break in your wheelchair (pain-wise and dislocation-wise)?
Can you please do an evening routine? It would be so nice to watch♡
Love your channel so much love learning about you
Mickey the music is way too loud!
Love you sm and your so pretty 💓💞💕💝💝💝💓💓💓😍💝💞
I and my brother both have the same condition that you have. I was taken out of public school because I broke my hip at school in 2015
You should check out Chronically Jaquie!
Where in Oklahoma??? That's where I live!
God doesn’t give us anything we can’t handle.Remember there’s always someone out there who has it worse than you.
Love uuu💕
Loved this
The joint that is worst to put back in place is my shoulders
Loved the video! I was waiting for another 🤗
just a tip for you but the music in this video was kind of loud compared to you talking so just for future reference!
Hey just started watching your videos, their great! Weird question but what bra’s do you wear they look comfy and less restrictive xx
You look like Brooklyn and Bailey
I asked on your wheel chair description video but I am not sure if you will get this so I am asking on your most current video. What is the cost of the smart drive and do you know if it’s available in Canada?
Thefreylife. Me to. There awesome.
I love you
YAY!
What will happen if u eat before a gastric emptying scan what will it show?
Hey what camera do you use for vlogging and what software do you use to edit??
Why is your youtube name "life with stripes" ? I'm so curious as to what stripes is
Girl, I can’t hear you with the music. I’ve had people pray over me too. Once I stood up for dramatic effect.
how old is she?
First
Is there a link between eds and gastroparesis? I know of a few people who have both
yes, there is a link! I have eds and gastroparesis as well. It's not as strong of a co-morbidity as something like POTS is, but EDS can definitely cause gastroparesis, and many medical professionals are aware of that connection.
Yes, since there's connective tissue in your GI tract, it can cause motility and functional issues
EDS is linked to so many other things bc collagen is in every part of the body -- including the brain. So, if you have faulty collagen in your joints, you also have faulty collagen elsewhere. That can affect the stomach and entire GI system. But it can also affect the nerves and nerve fibers, which can lead to the "paralysis" of the stomach.
You’re so beautiful ❤️
I live in Oklahoma ( not that it matters)
I’m from Oklahoma!!
What level were you at figure skating, i am a figure skater myself⛸
The music is too loud :(
Check out the raw life and chronically Jackie
U could play sled hockey
Anyone in bed in pain
I would do anything to give you a huge ((hug)) thanking you for your faith, strength and selflessness! But I would be afraid that I would hurt you, so a fist bump will do!👊
♥️♥️
❤️🦓
My doctor told me and my parents if I have a bioglical daughter it will be a 100% possible chance for her to be born with it. If I have baby boy it is 50% he will be born with it.
how many medical conditions do you have? i’m terribly confused. or like maybe all the things like wrong with you? (not meant to be mean)
guys i just looked on instagram and mickey might need a new gj tube placed that was the worst experience for her please pray
Thank you so much for the prayers
How do you deal with ignorant people ?
💗💗💜💜💜😍😍😍😍😍😍
chess doesn't take a lot of arm movement :-) oh, chess isn't a sport...
My fun fact is I have jhs 💓
The music over rides you r voice, and it's
annoying. I enjoy watching your videos besides that
I’m so mad. I’ve been hurting like crazy. We call the doctors I’ve been to the hospital THREE times. The doctors keep insisting I’m fine and it’s just my lymph nodes. I KNOW something else is going on. It’s been a month. It’s SO frustrating! I feel like they just want to push me out without really taking time to see how I feel. Any tips?
I’m literally crying I’ve never related to somebody as much as right now