I hope you all find this lesson helpful! I want to mention that the median age of onset I mention in this lesson is going to be influenced by the age of onset of Polycythemia Vera. :)
Good grief, I’ve had almost all of these symptoms for eight years! I’m bloody, scabbed and scarred from scratching. I can only see well about half the time. Tinnitus began way back then and never stopped. I have extreme feeling of fullness in my upper abdomen. Breathless, blackouts, and chest pain - all my symptoms have fallen on deaf ears, though I’ve been diagnosed with full body neuropathy. The doctors call this Idiopathic and refuse to try harder to find the cause. I’m unable to function normally and have been nearly bedridden all these years. Right now, I have some energy, but if I get up, I can’t do anything before I have to sit or lie down again to avoid passing outs. When I stretch, which I have the constant need to do- I pass out! Every time. Most of my symptoms fit really well with Sensory and Autonomic Neuropathy, but Polycythemia produces similar symptoms and the blood not getting where it needs to go is an issue. As soon as I stand, I get a warm feeling in my legs, some weakness, then can follow the feeling of a full warm pressure of blood in my head and arms, settling into my chest, then fading over the next thirty seconds when I sit. I can simply not try to describe my many weird sensations and issues to my doctors anymore, but will try to get them to listen and test for Polycythemia. I swear they’ve marked my chart with “difficult patient” or something like that. 🙄
Have you considered donating blood? I have heard that it can help with these issues. Never mind the doctors, they are so narrow minded. We need to be our own doctors and trust in our experiences. Good luck!
I understand. When i was 42 i didnt have an accident, travel on a plane and i walked 1hr every day that year. I had a dvt that caused my leg to be over 100cm round and had multiple pulmonary embolisms in my right lung. i was never given a diagnosis. Round 45yrs had symptoms but never really took notice as they would come and go. Now 2024 this year after my 2nd stroke this year at only 51 they gave me a secondary diagnosis at E.D. for polythycemia. It was primary diagnosis for the stroke that evening. My G.P said lupus on appt G.P, he wont even look at polythycemia on my discharge papers from E.D yet I've had most of the primary symptoms. Many doctors will not even know that polythycemia and lupus can coexist. My test said SLE Normal lupus, so I'm thinking we'll ok that means I don't have lupus? I had never seen the word polytycemia till I saw my discharges with that word in march with my 2nd stroke.. I've had to read up on the MPN's because no one is listening. So honestly I'm just going to let it run its corse as there is no cure and the G.P acts if he could care less. So I just take my 150mg of blood thinner twice a day for rest of my life and that's that.🤷♀️
Thank you for this comprehensive starter. This condition needs more publicity. I suspect that many sufferers die undiagnosed. My very first symptom was cold feet. They did not feel cold to me, my wife mentioned the fact repeatedly. Now I have severe neuropathy in my feet. Took several years to diagnose polycythaemia vera, all it took was a blood test for another problem. My brother has haemochromatosis, his appearance is strongly Scandinavian ( Scots ). The most effective pain relief for me is asprin. Definitely take asprin only under medical supervision. Do not hesitate in seeking a second opinion if you have doubts. Putting up with the problems nearly killed me.
My son diagnosed at 27 Confirmed at 37 as polycythaemia vera due to faulty bone marrow. Treated by venusection for years Developed AML at 53. 4 chemo courses then transplant. Cured AML and the PV but died at 54 due to complications of various infectioñs and eventual rejection of transplant.
Hi, can I contact you through social media? Because, Suddenly I have got excessive rbc count in my blood. So, if I can talk to you about the treatment, will help me a lot.
My hemoglobin is currently at 19 and hematocrit 56.. I am diagnosed w OSA and have a blood oxygen level at 85% while sleeping. Just got my cpap n hoping it changes everything. I can't stand the headaches n other symptoms
im headed to the emerency clinic first thing in the morming, as ive been dizzy, and unable to climb stairs. Ive been on HRT for awhile and have a gut feeling there are too many red cells. in the past my dr treated it with therapeutic blood draws. But its back and now cant use the pre existing hemochronmatosis draw as the answer as this is not pre existing. HRT is guess is not right for me. im depressed now. anyway thanks heading to seek help first thing in the morning.
cardio hydration and blood donation helps i take steroids so my haematocrit is above 50% but bellow 55% blood pressure is normal 110-120 so im not worried
So my question since you have to give blood all the times your vitamin D level will be very low which has it's own issues - Is there away to control both or is simply picking the lesser evils?
My hematocrit is 55 and idk what can be causing it. I’m taking jardiance which makes me pee out extra sugar. My test is low 200s and afraid of getting trt because of high hematocrit. RBC is normal though
I have secondary and still have not found the root cause yet. I wish you would do an update on this video explaining the difference between primary or polycythemia vera versus secondary and when you discuss secondary, can you list the majority of the underlying causes? And what a patient needs to do in order to determine whether their primary or secondary, etc., I’ve already joined Cheryl polycythemia support groups and have gotten a wealth of information but I think the average person that just got diagnosed would be very scared and need to know lot of things so that they can pursue an appropriate diagnosis so that they could get an appropriate treatment.
Bone biopsy tests can confirm that sec or primary.. Primary can be cancer in the future Secondary , the red cells are increasing because of another issue
Also I get blood tests every three months and adjust supplements as needed. Organic iron, D3K2, Potassium are typical. Some can be added to monthly IV, others in pill form. I have been experimenting with Methilyne Blue in IV form to see what happens.
@@jaxonbaker2512 I understand. When I was diagnosed 14 years ago the median life expectancy with treatment was 10 years and 18 months without treatment. At 7 years I was dying and underwent experimental stem cell treatments. While it didn’t cure it did reverse and stabilize it to the 4 year mark. It has held at that point and not advanced since then.
@@ThisLaoGuyit's out of normal range, considered a high level range. Other tests have to be done and depends on their results.. like your hemoglobin and hematocrit and uric acid levels.. you would need a comprehensive Metabolic panel and a CBC with Differential panel..
hay my old 20s i taake iron supplement unfortunly i get high level of rbc after taking iron pills i checked in lab test and thanks you fo this amaazing video❤have nce day
My husband has this! Diagnosed nearly 3 years ago! Its blood cancer! He is treated in a cancer hospital and has injections of chemo weekly. Its a genetic mutation. The itching i done some research and taking a tea spoon of alnaline 30mins before a bath/shower helps and stops the itching.
My mother has this disease and she is suffering from so much itching. Can you please write what helped your husband? I couldn’t find what you previously wrote in your comment. Thank you
@@Yvettep777 platelets are the main indicator! They will be alot higher than the average! Medication to lower platlets are important other wise a person could end up with a blood clot due to sticky blood and at risk of a stroke/heart attack.
Look up doctor Berg’s videos on D3 and K2. He has many videos that link to other videos that cover how D3 and K2 can help with not having issues with polycythemia. I hope you find some answers.
My haemoglobin changes from 17.5 to 19 sometimes and reb blood cells is 5.65 ,l dont have itching ,only l have left kenuckle pain no headache nor other signs .what is advice?
Is the root cause of this condition indicative of Celiac Disease, Gluten intolerance, Gluten sensitivity or Gluten allergy or MTHFR? What is the root cause?
I had a Jak2 and some other blood test it said no PV but I have a lot of the symptoms are there other conditions that can be something else? Should I retest get a 2nd opinion? Thank you for a great video.
You can have high white blood cells from anything like allergies, chronic inflammation, autoimmune disease, an infection, to cancer. The doctor looks at your other blood tests to see other areas that are too high or low that would possibly signal there's an issue with something like thyroiditis for one example.. or your liver and kidney function.. but a general practitioner can order lab panels to see if something pops up that needs some attention.. and low grade inflammation that is ongoing can also cause that kind of response.. and if so, you'll probably have to figure it out yourself with making diet and lifestyle changes and trial and error.. I know that part from personal experience.. unfortunately.
How about the transition from femal to male? It appears?i jave sister in law.,she denied that she didn't take the hormones for transition.but the symptoms appears.
My huge dvt and multiple pulmonary embolisms were at 42yrs. From my experience with it and my reading it's a slow creeper this polythycemia. I've had symptoms since 45yrs at different times and some presenting at same time. Now though at 51yrs this year since mid 2023 till now May 2024 I've had two undocumented strokes and two documented at E.D. Also it was a secondary diagnosis at E.D at time of 2nd stroke. My G.P has not even looked at the word polythycemia and he seems unbothered and dismissive. Now I'm just on blood thinners for rest of this life and that's all. 🤷♀️
@@Victoria49357 There's a test they do called jak 2.That can check to see. Polycythemia use to only occur in like middle aged people. Since the last ten years it's up in younger ppl by over 30% or more.
I just left a medical website talking about PV being given as an unintentional misdiagnosis. It was a lot of medical jargon, but it gave examples with how to proceed for the next level of testing based upon the results of the first batch of tests and patient's symptoms. There's another condition that is very similar but patient has to do more extensive testing to determine if truly PV or not. Then there are other conditions that need to be addressed first before assuming it's PV based upon medical guidelines that apparently need to be updated and revised. From the gist of it, seems like a sizable percentage of PV diagnoses aren't correct.. whether it's a complete misdiagnosis, or that all the protocol standards of testing and treating, following up, reevaluation, etc. aren't being handled thoroughly enough to recognize any secondary conditions that can arise and need a new course of action, or how the PV wasn't determined if it was Primary or Secondary to begin with.. and so on..
@@Victoria49357I found this that I think may be helpful for you.. it's basically addressed to doctors concerning their patients with PV or symptoms like PV.. and how to properly assess and treat the patient.. along with how not to give a misdiagnosis, even if unintentionally, and how that very issue is more common than it should be.. and how they can fix that, with helping the patient foremost.. it provides detailed instructions that maybe you could present to your own doctor, OR let you see that you may need a new doctor altogether and how to get your condition properly taken care of so that your quality of life goes up and you're not dismissed and end up suffering the consequences for that down the road.
@@Yvettep777 i am not a doctor... i am looking at videos just like yourself to gather information about my health also... you should visit your doctor to get better information... your health is your first priority so see your doctor if you are having any issues...
Could possibly be from higher uric acid levels or a hormone that is excreted in PV and some other similar conditions that can be causing the pruitis itching.. of course, it could also be an indirect symptom that came about as a result.. like with how some nutrient deficiencies can happen and cause itching as a symptom.. or how stress can aggravate PV symptoms and cause it.. cortisol rises with stress, physical and mental stress- an illness or even a separate issue like dealing with perimenopause can trigger cortisol and that trigger the PV.. increasing symptoms like itching. If so, then it seems logical that if we made some lifestyle changes like decreasing our physical and mental stressors then that would decrease the severity of the PV symptoms 🤔
My father has done the gene test for this that came out negative, but he has high red blood cells and pain in the back of head, any suggestions would be appreciated
@@CapricornStories Depends on the cause. I have idiopathic polycythemia (unknown cause). Currently, my RBC count is elevated and not dropping back to normal.
No, they can use your blood, i donated last week and my blood clotted in the tube am on aspirin but i think its not strong enough, get thar shoosh in ears a lot, arms get itchy red, diabetes, high iron, weak, tired, joint pain, muscle pain, struggle to sleep , dont know what to do, i am 56 yrs old woman, burning feet, rigt leg goes numb pain a lot
@@renepretorius5353did you or do you smoke? Cigarettes or other things? I smoked for 30+ years. I should have quit 15 years ago. But I did quit 2 years ago so there is that. Unfortunately it didn't do anything to help my symptoms. I'm also 56 and I'm struggling to sleep. Mine is all related to stress and smoking.
Yep, called phlebotomy. It directly removes red blood cells, then during the following days your body will replace it with fluid giving you a lower % of RBCs in the blood.
I hope you all find this lesson helpful! I want to mention that the median age of onset I mention in this lesson is going to be influenced by the age of onset of Polycythemia Vera. :)
These are awsome and really help us plz keep up the good work
What can be done to stop the dizziness? Is blood letting the only help for dizziness?
@Monamonaa304 Yes. Why are you asking, please?
I'm 43 on Cosentyx and was diagnosed with polycythemia Vera but now my red/white count is back to kinda normal..what gives?
Is this consider PV?
WBC /L = 7.2
RCB /L = 5.09
Hgb g/dl = 169
Hct % = 49%
PLATELETS /L = 266
MCU (FL) = 96.3
MCH (pg) = 33.2
MCHc (%)= 34.5
PLEASE HELP TO ENLIGHTEN ME.
THANKS AND GODBLESS
❤❤❤
29yrs old male
It's very appreciated that you define other medical terms that you reference in your lecture. Thx
Good grief, I’ve had almost all of these symptoms for eight years! I’m bloody, scabbed and scarred from scratching. I can only see well about half the time. Tinnitus began way back then and never stopped. I have extreme feeling of fullness in my upper abdomen. Breathless, blackouts, and chest pain - all my symptoms have fallen on deaf ears, though I’ve been diagnosed with full body neuropathy. The doctors call this Idiopathic and refuse to try harder to find the cause.
I’m unable to function normally and have been nearly bedridden all these years. Right now, I have some energy, but if I get up, I can’t do anything before I have to sit or lie down again to avoid passing outs. When I stretch, which I have the constant need to do- I pass out! Every time.
Most of my symptoms fit really well with Sensory and Autonomic Neuropathy, but Polycythemia produces similar symptoms and the blood not getting where it needs to go is an issue. As soon as I stand, I get a warm feeling in my legs, some weakness, then can follow the feeling of a full warm pressure of blood in my head and arms, settling into my chest, then fading over the next thirty seconds when I sit. I can simply not try to describe my many weird sensations and issues to my doctors anymore, but will try to get them to listen and test for Polycythemia. I swear they’ve marked my chart with “difficult patient” or something like that. 🙄
Have you considered donating blood? I have heard that it can help with these issues. Never mind the doctors, they are so narrow minded. We need to be our own doctors and trust in our experiences. Good luck!
I understand. When i was 42 i didnt have an accident, travel on a plane and i walked 1hr every day that year. I had a dvt that caused my leg to be over 100cm round and had multiple pulmonary embolisms in my right lung. i was never given a diagnosis. Round 45yrs had symptoms but never really took notice as they would come and go. Now 2024 this year after my 2nd stroke this year at only 51 they gave me a secondary diagnosis at E.D. for polythycemia. It was primary diagnosis for the stroke that evening. My G.P said lupus on appt G.P, he wont even look at polythycemia on my discharge papers from E.D yet I've had most of the primary symptoms. Many doctors will not even know that polythycemia and lupus can coexist. My test said SLE Normal lupus, so I'm thinking we'll ok that means I don't have lupus? I had never seen the word polytycemia till I saw my discharges with that word in march with my 2nd stroke.. I've had to read up on the MPN's because no one is listening. So honestly I'm just going to let it run its corse as there is no cure and the G.P acts if he could care less. So I just take my 150mg of blood thinner twice a day for rest of my life and that's that.🤷♀️
You.would think.they.checked your cbc complete.blood count
You can't donate with polycythemia @@minniemouse625
Thank you for this comprehensive starter. This condition needs more publicity. I suspect that many sufferers die undiagnosed.
My very first symptom was cold feet. They did not feel cold to me, my wife mentioned the fact repeatedly. Now I have severe neuropathy in my feet. Took several years to diagnose polycythaemia vera, all it took was a blood test for another problem.
My brother has haemochromatosis, his appearance is strongly Scandinavian ( Scots ).
The most effective pain relief for me is asprin. Definitely take asprin only under medical supervision. Do not hesitate in seeking a second opinion if you have doubts. Putting up with the problems nearly killed me.
Blood draw regularly helps as well.
This helped me understand my sister's problem. Thick blood, recurring Lyme disease, syncope ( attorney in judge's chambers). Thanks.
No mention of fatigue?? Is that one of the symptoms?? Also what are the treatments??
So very informative! Thank you for all your effort. It is much appreciated and very timely in this instance.
My son diagnosed at 27 Confirmed at 37 as polycythaemia vera due to faulty bone marrow. Treated by venusection for years Developed AML at 53. 4 chemo courses then transplant. Cured AML and the PV but died at 54 due to complications of various infectioñs and eventual rejection of transplant.
Hi, can I contact you through social media? Because, Suddenly I have got excessive rbc count in my blood. So, if I can talk to you about the treatment, will help me a lot.
So sorry you lost him.
I have it for 2 decades and im worried about it and sorry for your loss madam
My hemoglobin is currently at 19 and hematocrit 56.. I am diagnosed w OSA and have a blood oxygen level at 85% while sleeping. Just got my cpap n hoping it changes everything. I can't stand the headaches n other symptoms
im headed to the emerency clinic first thing in the morming, as ive been dizzy, and unable to climb stairs. Ive been on HRT for awhile and have a gut feeling there are too many red cells.
in the past my dr treated it with therapeutic blood draws. But its back and now cant use the pre existing hemochronmatosis draw as the answer as this is not pre existing. HRT is guess is not right for me. im depressed now.
anyway thanks heading to seek help first thing in the morning.
Hi bro
Thank you for this informative video. I’ve learned more here than I have from my hematologist and cardiologist.
Awesome Information!
Thank you !
cardio hydration and blood donation helps i take steroids so my haematocrit is above 50% but bellow 55% blood pressure is normal 110-120 so im not worried
Thanks for explaining. Was diagnosed with this last year.
How have you been doing since
Wow a timely video for me, I'm going for my first phlebotomy next week to get rid of some excess RBCs
@Pat Luxor I don't know if you were kidding or not, but I cannot donate because my blood will clot in the bag and probably other reasons as well.
@@paulcooper8818hi bro
5.66 was i just dehydrated or should i follow up?
I didnt any water before my iv
Hello Dr JJ could you pls talk about microscopic colitis I've been diagnosed with it recently.
My husband was diagnosed with this. Drinking Kefir daily has really worked for him. He doesn’t have to take any medication.
I have a blood pool disorder and POTS MTHFR homozygus gene. Seems a lot of similar symptoms 🤔
I have Pots as well. Now my blood numbers are rising.
Thank you, I learn so much. So do you deal with this like you do for heamachromatosis? By regularly donating blood?
Yep
Watch your ferritin and iron stores though.
So my question since you have to give blood all the times your vitamin D level will be very low which has it's own issues - Is there away to control both or is simply picking the lesser evils?
It is not that terrible donating blood a few times per year among other things there are people who have issues similar or worsese😊
My hematocrit is 55 and idk what can be causing it. I’m taking jardiance which makes me pee out extra sugar. My test is low 200s and afraid of getting trt because of high hematocrit. RBC is normal though
I have secondary and still have not found the root cause yet. I wish you would do an update on this video explaining the difference between primary or polycythemia vera versus secondary and when you discuss secondary, can you list the majority of the underlying causes? And what a patient needs to do in order to determine whether their primary or secondary, etc., I’ve already joined Cheryl polycythemia support groups and have gotten a wealth of information but I think the average person that just got diagnosed would be very scared and need to know lot of things so that they can pursue an appropriate diagnosis so that they could get an appropriate treatment.
Hey which tests are you done
Bone biopsy tests can confirm that sec or primary..
Primary can be cancer in the future
Secondary , the red cells are increasing because of another issue
What is your hemoglobin level ? And what you have done ?
You could check for hemochromatosis, a gene test.
My personal protocol - Donate blood once a month, massage once a month, IV with electrolytes, vitamins, glutathione and extra B vitamins once a month.
Also I get blood tests every three months and adjust supplements as needed. Organic iron, D3K2, Potassium are typical. Some can be added to monthly IV, others in pill form. I have been experimenting with Methilyne Blue in IV form to see what happens.
@@stevesouth7409have you been prescribed hydroxyuria?
Way to much work. If it’s my time it’s my time
@@jaxonbaker2512 I understand. When I was diagnosed 14 years ago the median life expectancy with treatment was 10 years and 18 months without treatment. At 7 years I was dying and underwent experimental stem cell treatments. While it didn’t cure it did reverse and stabilize it to the 4 year mark. It has held at that point and not advanced since then.
@@stevesouth7409Hi... Can I contact with you through social media?? Because, suddenly I have got excessive rbc count in my blood.
very knowledgeable thank you good excellent explanation
I really appreciate the sharing of this information!
I am a MLT student
I've studied This type of blood disease in my College but not detailed as much as these info
@@Yvettep777
How can i advice you?
and about what?
@@Yvettep777
yap..
ic_u1
@@Yvettep777
type it again ..
Thank you!
I just found out that my red blood cell count is 5.21. So I am doing research about it.
What are the parameters. Is your count just slighly elevated?
my red blood cell count is 6.98, is that dangerous?
Thank you very informative. Information presented in Laymans terms, which I really appreciate.😊
@@ThisLaoGuyit's out of normal range, considered a high level range. Other tests have to be done and depends on their results.. like your hemoglobin and hematocrit and uric acid levels.. you would need a comprehensive Metabolic panel and a CBC with Differential panel..
Mines is 5.21 as well. Could it just be Dehydration? How are you doing?
hay my old 20s i taake iron supplement unfortunly i get high level of rbc after taking iron pills i checked in lab test and thanks you fo this amaazing video❤have nce day
Thank you! For your future videos can you consider to add the laboratories values also in mg/dl? In my country we don't use mmol. Thanks!
Tha nk you please what is the treatement
Fantastic video. So just a standard blood test will tell us if we have this ?
They may also take a marrow biopsy
simple blood donation screening too, theyll even tell you your blood type
My husband has this! Diagnosed nearly 3 years ago! Its blood cancer! He is treated in a cancer hospital and has injections of chemo weekly. Its a genetic mutation. The itching i done some research and taking a tea spoon of alnaline 30mins before a bath/shower helps and stops the itching.
Sorry to hear about your husband. Thank you for the tip to help with itching.
My mother has this disease and she is suffering from so much itching. Can you please write what helped your husband? I couldn’t find what you previously wrote in your comment. Thank you
@@hamdagarbo5839 beta alaline
@@Yvettep777 platelets are the main indicator! They will be alot higher than the average! Medication to lower platlets are important other wise a person could end up with a blood clot due to sticky blood and at risk of a stroke/heart attack.
@@Yvettep777 i would say 425 is a good level? My husband can only get that through treatment? If he dosnt have treatment he is in the 1000s+
Can it cause tremors???
Yes I want to know this information? Tell me how your cbc levels
How do you check your spleen?
Also for very hot weather? a feature of MS?
You did not mention drenching night sweats as a sign/symptom of polycythemia... Is it not really a sign/symptom?
I have diagnosed polycythaemia and I sweat night or day on and off. Very disturbing.
I have terrible night sweats
How do you reverse it? Or how do you deal with it don't tell me medications is there a natural way of doing it
You don't you just manage it
Donate blood
Alcohol
Look up doctor Berg’s videos on D3 and K2. He has many videos that link to other videos that cover how D3 and K2 can help with not having issues with polycythemia. I hope you find some answers.
I have thalasemia ,and my red blood cell count it high I is 6.52
Does polycythemia cause joint pain/inflammation even if the Uric acid is comtrolled?
There are some really good support groups on Facebook that give information
@@JPJPJPJP could you share the link here pls of this group that you are talking about.
I'm also facing this issue how are you now
@@CapricornStories have you had any major flare up of joints?
@@chetanrs I feel joint very discomfortable and pain how are you now do you done any tests how are you now
Is hyperthyroidism can cause secondary polycythemia?
I have hypothyroidism
i have alot of these symtoms did jack 2 mutation testbin 2020 and it came back negative, now i am just struggling with symptoms
So this answers alot of my questions.
Dr. McCoy had “Zeno Polycythemia” in “ For The World Is Hollow And I Have Touched The Sky”
My haemoglobin changes from 17.5 to 19 sometimes and reb blood cells is 5.65 ,l dont have itching ,only l have left kenuckle pain no headache nor other signs .what is advice?
Have you found why ?
@@khalafalshammari7553 do you have high HB
@@khalafalshammari7553so what now ?
Is the root cause of this condition indicative of Celiac Disease, Gluten intolerance, Gluten sensitivity or Gluten allergy or MTHFR? What is the root cause?
It is a genetic mutation in which the cause is unknown at this time.
🎉Excelent Presentstion🎉
I had a Jak2 and some other blood test it said no PV but I have a lot of the symptoms are there other conditions that can be something else? Should I retest get a 2nd opinion? Thank you for a great video.
Hey a bone marrow biopsy
@tony80ization had one 2007 very painful & creepy rather not do it ever again.
Which doctor should I see if my body is getting high white blood cells?
You can have high white blood cells from anything like allergies, chronic inflammation, autoimmune disease, an infection, to cancer. The doctor looks at your other blood tests to see other areas that are too high or low that would possibly signal there's an issue with something like thyroiditis for one example.. or your liver and kidney function.. but a general practitioner can order lab panels to see if something pops up that needs some attention.. and low grade inflammation that is ongoing can also cause that kind of response.. and if so, you'll probably have to figure it out yourself with making diet and lifestyle changes and trial and error.. I know that part from personal experience.. unfortunately.
I guess cupping therapy(hijamah) can help if you can't donate blood for some reasons
I ca t give my blood because whenever i do so they told me that my level blood is not ok and l have these smptoms
Awesome video
My son has this now and he is 15 😢 but not sure why his red blood cells are high yet.
Pls get him evaluated with a Hematologist first. Your doctor will be able to tell you what to do next.
Leukemia is nothing to play with keep up on blood work
@@phootphetishphilip5551isn’t leukemia LOW red blood cells ?
@@adrianarivera4194 could be iron issues or early signs of cancer
@@adrianarivera4194 that's later on in think in the beginning it's high
Is k2 a co factor ?
Not all of us can donate blood
How about the transition from femal to male? It appears?i jave sister in law.,she denied that she didn't take the hormones for transition.but the symptoms appears.
I'm 43 on Cosentyx and was diagnosed with polycythemia Vera but now my red/white count is back to kinda normal..what gives?
My huge dvt and multiple pulmonary embolisms were at 42yrs. From my experience with it and my reading it's a slow creeper this polythycemia. I've had symptoms since 45yrs at different times and some presenting at same time. Now though at 51yrs this year since mid 2023 till now May 2024 I've had two undocumented strokes and two documented at E.D. Also it was a secondary diagnosis at E.D at time of 2nd stroke. My G.P has not even looked at the word polythycemia and he seems unbothered and dismissive. Now I'm just on blood thinners for rest of this life and that's all. 🤷♀️
@@Victoria49357 There's a test they do called jak 2.That can check to see. Polycythemia use to only occur in like middle aged people. Since the last ten years it's up in younger ppl by over 30% or more.
and thanks for the reply hope you feel well. Take care!
I just left a medical website talking about PV being given as an unintentional misdiagnosis. It was a lot of medical jargon, but it gave examples with how to proceed for the next level of testing based upon the results of the first batch of tests and patient's symptoms. There's another condition that is very similar but patient has to do more extensive testing to determine if truly PV or not. Then there are other conditions that need to be addressed first before assuming it's PV based upon medical guidelines that apparently need to be updated and revised. From the gist of it, seems like a sizable percentage of PV diagnoses aren't correct.. whether it's a complete misdiagnosis, or that all the protocol standards of testing and treating, following up, reevaluation, etc. aren't being handled thoroughly enough to recognize any secondary conditions that can arise and need a new course of action, or how the PV wasn't determined if it was Primary or Secondary to begin with.. and so on..
@@Victoria49357I found this that I think may be helpful for you.. it's basically addressed to doctors concerning their patients with PV or symptoms like PV.. and how to properly assess and treat the patient.. along with how not to give a misdiagnosis, even if unintentionally, and how that very issue is more common than it should be.. and how they can fix that, with helping the patient foremost.. it provides detailed instructions that maybe you could present to your own doctor, OR let you see that you may need a new doctor altogether and how to get your condition properly taken care of so that your quality of life goes up and you're not dismissed and end up suffering the consequences for that down the road.
My Polycythemia was attributed to moderate Sleep Apnea.
What's your hemoglobin level?
@@Yvettep777 blood test
@@Yvettep777 14 is good
@@Yvettep777 visit your doctor they will advise you if you want to check your levels but 14 is within the normal range
@@Yvettep777 i am not a doctor... i am looking at videos just like yourself to gather information about my health also... you should visit your doctor to get better information... your health is your first priority so see your doctor if you are having any issues...
Hello sir can I take protein supplements like whey and casein if RBC and hemoglobin level is high my hemoglobin level is 18.9 and RBC count is 6.36 ??
Any problem like itching????
@@rock_star8422yeah back itching but I got skin problems also like psoriasis on head scalp
@@rock_star8422I have itching problem My M.C.V and M.C.H are low but my R.B.C is high and I have shortness of breath
I think proteins can worsen the condition
Hey how are you guys now does it go back to normal range
Good information. But what is the solution, kindly eleborate,?
give blood
Don't be on TRT - Steroids for guys
The treatment is to have excess blood removed
@@Kenny-bj2zqhowever chronically low testosterone comes with it’s own set of issues.
I always have high white blood cells idk why . I’m on bc. I have tinnitus on one side
What about itching without hot shower??
Could possibly be from higher uric acid levels or a hormone that is excreted in PV and some other similar conditions that can be causing the pruitis itching.. of course, it could also be an indirect symptom that came about as a result.. like with how some nutrient deficiencies can happen and cause itching as a symptom.. or how stress can aggravate PV symptoms and cause it.. cortisol rises with stress, physical and mental stress- an illness or even a separate issue like dealing with perimenopause can trigger cortisol and that trigger the PV.. increasing symptoms like itching. If so, then it seems logical that if we made some lifestyle changes like decreasing our physical and mental stressors then that would decrease the severity of the PV symptoms 🤔
Went in to donate blood and got rejected for a 61.28% HCT. Now what
Does high RBC cause hair loss
Yes I am facing the issue 😢😢
My father has done the gene test for this that came out negative, but he has high red blood cells and pain in the back of head, any suggestions would be appreciated
May be it is Secondary Polycythemia. If not, may be Polycythemia of unknown cause (Idiopathic).
@@Nicchu490 is it like polycythemia Vera does it go back to normal range?
@@CapricornStories Depends on the cause. I have idiopathic polycythemia (unknown cause). Currently, my RBC count is elevated and not dropping back to normal.
@@Nicchu490 can you please tell your instaaa idd I'm facing this issue
How long do you facing this issue does HB RBC PCV improving without phlebotomy duration decrease of phlebotomy like 3 to 6 months
Allah pa barsoo rakho bs
Hernandez Paul Rodriguez Lisa Moore George
Can this be caused by the Covid shot?
Smoking can cause secondary
Nicotine ?
@@javr9193 carbon monoxide, hemoglobin is higher in smokers
Is this consider PV?
WBC /L = 7.2
RCB /L = 5.09
Hgb g/dl = 169
Hct % = 49%
PLATELETS /L = 266
MCU (FL) = 96.3
MCH (pg) = 33.2
MCHc (%)= 34.5
PLEASE HELP TO ENLIGHTEN ME.
THANKS AND GODBLESS
❤❤❤
Im not smoker
Male 29 yrs old
no. if HCT goes to 52 -55 yes.
@@johnf6267 thanks @john6267
Hmm. Time to go donate a pint of blood at the Red Cross then, right?
Or plasma
@@Mcfluffymittens , I could be mistaken, but I believe when you donate plasma, they put the red cells back in you.
No, they can use your blood, i donated last week and my blood clotted in the tube am on aspirin but i think its not strong enough, get thar shoosh in ears a lot, arms get itchy red, diabetes, high iron, weak, tired, joint pain, muscle pain, struggle to sleep , dont know what to do, i am 56 yrs old woman, burning feet, rigt leg goes numb pain a lot
@@renepretorius5353did you or do you smoke? Cigarettes or other things? I smoked for
30+ years. I should have quit 15 years ago. But I did quit 2 years ago so there is that. Unfortunately it didn't do anything to help my symptoms. I'm also 56 and I'm struggling to sleep. Mine is all related to stress and smoking.
Walker Donald Brown Michael Taylor Shirley
Add ocular migraines...
Paucek Bypass
👍👍🙏
Is blood letting good for this?
Yep, called phlebotomy. It directly removes red blood cells, then during the following days your body will replace it with fluid giving you a lower % of RBCs in the blood.
It is one of the most common form of treatment for this condition
Great informative video!!! Thank you