realistic week in my life w chronic illness 2024; dr appts, seizures, dressing change, & more!
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- เผยแพร่เมื่อ 23 ก.พ. 2024
- Realistic week in my life vlog with #chronicillness and invisible disabilities! From doctors appointments, to seizures, therapy, dressing changes, iv meds, physical therapy, and so much more! Hangout with me like we are on FT while we talk, do health stuff, and show what my day to day really looks like with (Ehlers Danlos, Gastroparesis, POTS, epilepsy); the good, the bad, the ugly. I hope you enjoy this video! Sending all the love and spoons! #disabilityawareness #spoonie
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Disclaimer: This video is not sponsored. All opinions and actions are my own. Some links and discount codes are affiliate links. This video is for educational purposes to raise awareness for chronic illness/epilepsy/pots/gastroparesis/ehlers danlos/picc line/g-tube/service dog life. Please consult with a doctor or nurse for any medical advice.
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Music: Provided by TH-cam and iMovie Library
FAQ:
How old am I: 24
Where did I go to college: Towson University Alumni 2021
What I used to film- Nikon D5500 / Vlog- Sony a5000 / iPhone 13
What I used to edit- iMovie
Voiceovers- Ice Blue Snowball Microphone - ภาพยนตร์และแอนิเมชัน
Chronically Fabulous!
that "eww" from autumn's dad killed me 😂😂
Chronically Fabulous❤️
Love this format of videos😍
YESS!! So glad you enjoyed! Was a longer one so that makes me so happy! All the love and spoons! 🥄🩷✨
amazing viode i enjoy hope you are feeling better now ❤rock this stand behind you all time
Simon is as attached to you as my cat is to me!!😂 My cat is a Russian Blue/Tuxedo/Brown Tabby mix that is laying on my knee at this very moment. Him and Luna look a LOT alike actually, he just is shorter!!😂
In the best way yes!! Haha I love my fur babies they are double trouble for sure 😂🩷
Just watched your live, hope you are feeling better now ❤
Doing much better now thank you!! 🫶🤍🥄🥄🧠💜
Praying for u! Your mom is so sweet my mom is just like that shes so supportive and loving im glad to see u have people to take good care of u! Im praying everything goes good for u in the future new sub ie here
I was having so many technical difficulties towards the end of watching this (problem on my end!) ♡ but I got there eventually!
Been in a flare and a half this past week and was feeling especially gross at the time but being able to watch your videos, while lying in bed with my earphones in is the vibe. :)
All my love & spoons 🤲🏻❤🥄🥄❤🤲🏻
i have gone to work wearing my shirt inside out and backwards and had NO clue! on days like that- i just say- Hey, I made it here!!!
It was a crazy appointment week for me too! I'm so happy i have the next week off for reading week.
Yess!! Down time is definitely essential after a busy appointment week!
chronically fabulous
YESSSS hehe 👏🏼🩷✨🫶🥄🥄
I’m off to Amazon to get some fingerless gloves now. Great idea! My hands are always freezing but I want to be able to use my fingers!
I hope your game is helpful!
chronically fabulous.
What kind of dog is Simon? His face looks like a great Dane but he doesn't seem as big as a Great Dane.
We think he is a lab dane mix! The program said he was a “charcoal lab” but he’s definitely got dane in him, especially with his personality! I’m obsessed w him 🩷
I wear gloves almost all year round, honestly a life saver, They help w joint pain while writing and using your hands as well, plus that thing you said abt being too good at putting stuff back is so real(i have a permanently dislocated shoulder that is fallen out of its socket and its so satisfying to crack it back in but it js falls back out 😂)
More importantly, I love the more informative nature of the text you describe put info and details abt ur conditions, it def helps w awareness and love hearing abt similar and different spoonie symptoms and stories:)
also Im started on a few new meds, feeling super low on spoons but feeling hopeful!
(writing this while hiccuping haha)
Sending you sm love and spoons ❤️❤️🥄🥄
It really be like that haha! I’m really glad you are enjoying it! I’ve been editing differently so I’m glad that making it more informative and providing context is helpful (I forget how my days are not a typical day to day- can come with a bunch of questions) 🫶 I hope starting your new meds go well, thank you so much for the love!! Sending you all the love and spoons! 🥄🥄🥄🤍✨🩷
What a week for a chronically fabulous girl! 🥰 Do you have someone that does the cleaning at home ? Im debating whether or not to hire someone but It’s expensive 🤷♀️ Im going to have 2 MRI on monday 😬 I hate those! Last time, they made me do 4 back to back, it literally took 3 hours 🙈 Sending spoons to you and Automn and plenty of cuddles to Simon the good doogie ❤
I have Dystonia as well. I feel your pain.
Chronically fabulous
Heck yes ily!! 🫶🩷✨🥄
Today has been a low spoons day so thank you for uploading this and giving me something to do
I love you I hope you're doing better from your intensive care admission
hi Lindsey my name is jennifer i like your videos and your cat Launa an simon
genuine question, what would be the point of running feeds through your G-Tube since you have Gastroparesis and SMAS? i have Gastroparesis and suspected SMAS and MALS and i have a J-Tube because of it, so maybe that's where my confusion comes from? i just cant imagine running feeds into your stomach being any different than oral intake
I gotchu! I was on Tpn for about 2 and a half years but then became Tpn intolerant. since I already had the g tube for venting and draining we figured I would try g tube feeds since I already had the tube, to see how I tolerated it (I did not at all bc of the gastroparesis and SMAS) so I finally have my g-j tube now! Its so much better but we wanted to see if I could tolerate the feeds and since I didn’t I got switched to the g-j, supposed to meet w a surgeon soon about a gastric stimulator/pacemaker. Hope that helps to explain :)
How long do u have a camera on u before catching seizures and stuff. Never can catch mine lol luckily I don’t have hiccups very often but was wondering why they were so fucking painful
With absence seizures I usually find them while editing (usually 2-4 mins clip/timelapsing while I’m doing something). the seizures I know are gonna be bad are usually 10 minutes minimum. Depends how long the aura, episode, postictal period lasts, it definitely varies! 💜 And yes!! Hiccups sucked and I never knew why! I learned about it too! 🫶🦓🥄✨🤍
I just had a EGG done
chronically fabulous✨🥄
I love watching your videos and I like this format too! It feels like I’m hanging out with a close friend💚
Hi lindsay my name is jennifer really interested in your video
When the next haircut?