I was intubated & medflighted; status epilepticus ICU hospital vlog pt 2
ฝัง
- เผยแพร่เมื่อ 25 พ.ย. 2023
- I went into status epilepticus and had to be intubated and medflighted from Delaware to an ICU in Baltimore during my weekend beach trip with my fiancé, mom, & service dog (vlog part 2). #epilepsyawareness #seizures #hospitalvlog #chronicillness
CW: discussion of seizures & status epilepticus, early stages of cyanosis, full body chills, paramedics/ambulance, intubation, ICU stay, lumbar puncture, hospital si precuations, infection, medflight
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I’m so proud of you!! Advocating for yourself, fighting for your mental health, trying to stay positive, working with your therapist - you are doing a wonderful job handling such a terrifying situation. I hope this never happens to you again and that you and your family can enjoy a less eventful beach vacation in the future ❤️
As a disabled wlw seeing you go through this is so inspiring and gives me so much hope for me and my girlfriend's future. Sending love!
this is really scary to watch! seizures are so frightening on their own, so with the respiratory failure and intubation i'm so glad you had your family there with you ❤ i have seizures myself so i know how exhausting they can be, i hope your body has given you lots of rest the past couple weeks :)
Thank you so much for watching and your words of support, it means the world! ❤️ It was definitely a really scary experience/hard for me to edit too! I gotta say I love your channel & content as well, it’s always nice talking with other creators & ppl w seizures (who get it!), makes something scary, exhausting, & lonely feel a lot less alone! All the love and spoons! 🥄🫶🥹 my dms are always open! 🩷
awe that's so lovely thank you!! i definitely agree with the feeling less lonely when you talk to people - i love this community so much!! 🥹✨i appreciate it a lot
This girl is a 100 percent fighter she's got amazing caring loving fiance and we know you can fight through it sister Lindsay
Hope you are doing better! I was horrified going into my first EEG when I was 14 for a bunch of reasons. But the women who actually performed the test washed all the gunk out of my hair so kindly and gently afterwards...I still remember that tenderness from a stranger lol it is a very touching memory for me.
It's good to hear you're doing better. You've got alot of serious illnesses n like Autumn said you shouldn't have to have all this happen to you. You're a very sweet person. You've shared this awful episode in your life to let anyone else going through this that they're not alone. Take care n get well.❤
Omg 😭🫶🏻 I’m so sorry you went through that, it breaks my heart, I’m glad you’re having a good recovery ♥️
I'm so sorry you had to deal with all this Lindsay and I'm SO SO glad youre ok. I have been in status epilepticus twice and it's terrifying. Thankful for Simon and Autumn for being there for you and being so brave. Love you all and I'm praying for healing and calmness when recoverying from this scary event.
What a warrior and inspiration you are! Shout out to your fiancée and mom for being awesome support. Broke my heart to see you going through that. Love to know why you had to fight to advocate for yourself in hospital. I and many others struggle with this all the time. Hope you’re doing well. Sending so much love and spoons! Never lose that fighting spirit!
As a spoonie these videos are super helpful. Thank you for sharing. I was wondering if you have ever tried ketocal from Nutricia it's a special feeding tube formula for people with medication resistant epilepsy and it can reduce the number of seizures you have. It works really well for me. I hope you are feeling better.
Thank you so much for your kindness and support, makes me so happy! 🥹🫶 I have not been told about this/have never heard of this THANK YOU!! I appreciate it so much, I will definitely mention it to my team as an option! It’s been a lot harder to control them since this episode of SE 💜 all the love and spoons to you! 💜🥄
I like that you explain everything what's happening in a vlog related your health issues. Simon is an angel❤
Absolutely no one should go through shit like that. You're one of the strongest and sweetest at the same time
I have so many disabilities and it is so so hard sometimes. I have POTS, JRA, Chiari malformation, severe anxiety, asthma, depression, and I’m sure so much more they haven’t found. It really really sucks sometimes. I am 13 and half of the time when people want to hang out or do things with me, I can’t. It’s hard being disabled not only the health portion of it but never feeling normal. Always in pain, and never being able to do things normal people can do. I just want one day where I can actually not faint, be in pain, have migraines, and medical burnout. I don’t know why God gave us chronic illness but we’re gonna get through it. I love you Lindsey. Keep fighting! Sending you spoons! 🥄 ❤
I'm so sorry you had to go through that. You are strong sending you all the love and spoons
I don't want to say it was the same or even similar, but I had a relatable thing happen to me also in October. Went into hospital with what we thought was just a really bad POTS flare that my usual remedies weren't helping and a few hours later I was intubated in the ICU. I too apparently had a spinal tap that I have no recollection of (kinda glad about that) etc. Having family who are by your side and support you makes such a huge difference and I'm sorry that you had to go through such an experience, I get all the emotions and feelings that come with it
Sending you lots of spoons and hugs. I hope lots of healing and love heads your way 🥄 ❤️ I also hope you know how much you help those of us who watch your videos ❤️
Lindsay, you have a wonderful family ❤ I was so happy at the end of the video when you show a clip of you being discharged, everyone was so happy❤
I'm so glad you are doing okay now that was so scary even for me to watch I love you sooooo much
I’m so sorry that you went through this! I love your positive attitude and I am so proud of you for advocating. Because I know that I struggle with that a lot. Thank you for sharing and being vulnerable, because that’s not easy either. Please take all the time that you need to help yourself become and maintain some stability! And I agree eeg hair sucks!
(No joke) This video, and knowing that you’re safe, are motivating me to shower today.
I’m so thankful that you are doing okay! (And will we ever know what infection/s you had?) Make sure to continue processing and doing self care!
Sending lots of love and any spoons that I can share! -Gracie
Sweetheart ❤ I am so very sorry that you’re going through this. We all love 💕 you so very much and want to see you well. Big hugs 🤗 to you all xxxxxx ❤🥰❤
Lindsay, this video was extremely emotional to watch. To realize, through your very scary journey here, just how precious life is. Watching this did, very surprisingly, bring back a lot of memories of my times in the ICU after major surgeries when I was much younger. I don't know how I got through it all. But, those of us with chronic illnesses have a strength within us that is like no other. Sometimes, we have to dig deep to find it but we always seem to. Thank God you are still here. I hope my comment finds you happy, safe and doing much better.
hearing and seeing y’all’s love for each other brings me to tears
I’m so sorry for everything you’ve gone through, I think it’s awesome that you have shared your experiences with others so that they can learn from and be supported by them. Wishing you and your family all the best in the holiday season and you the best of luck on your recovery and health journey.
I am so, so proud of you! I can relate to so much you´re going through unfortunately, thank you again for sharing everything, we appreciate it so much
Yes, EEGs are a real struggle, I´ve had quite a few as well,it always takes ages to get everything off🫠
I was in the ER three times last month due to gram neg. bacteremia as well, it feels crazy seeing you going through something so similar
I thought it was just my POTS that caused a weird syncope and concussion right before my anesthesia lecture (luckily happened in the hospital, so they just got a stretcher to our lecture hall), 3 days later it turned out it was sepsis, oops🥲 (I´m a med student, fighting to help us spoonies one day at a time)
Lots of love from Germany🦓❣
Also I am so glad you have so much love surrounding you during those difficult times, greetings to Autumn, Simon, and your mom + friends/family ♥ and yes, Batiste is a lifesaver😂
This made me cry god bless u Lindsay 🙏 I wish I could Hug 🫂 u
You are so brave and strong, you are my insparation. i hope you feel better
I totally get it girls. I have a good few conditions and I’ve followed Lindsey from the beginning. You’re too beautiful to have this shit my darling. Xxxxx Merry Christmas 🎄 early xxxxxx 🎄🎄🎄🎄
Hi Lindsey how are you feeling since you got out of hospital. I have a new man in my life now his name is Austin Ellis. He's a sweetheart ❤ I can't imagine my life without him . I saw how worried Simon was . It broken my heart ❤️ I really love him and Lina. Austin asked me me to marry him and I said yes. I've known Austin since he was 16 and he was my bestie for 9 years before we started developing feelings for each other. Austin is my rock . Your channel is my safe place. I always come here. When I need guidance. I'm sending you a lot of 🥄🥄🥄🥄🥄 spoons to help u get better girl. Feel better soon. I love you ❤️💚💚❤️💚❤️💚💚
Love you Lindsay
I hope Lindsey get better soon
Me and my sister both have epilepsy. However we didn’t know she did until she was in another state when they got worse. She kept ending up in icu and medical coma. She’s finally on meds but it was pretty scary
Dululu crazy laughter is good
Lindsay is going to die without bypass. I had Mesenteric Artery Stenosis. I lived her life for 2 1/2 years and lost 85 pounds. The day I had bypass I weighted 100 pounds and I’m 5’9. I had a 17% survival rate but I would have died either way if I did not try. I’m now better and stronger than ever. Life doesn’t have to be this hard. Your body is shutting down. Please get the surgery.🙏🏼🙏🏼
Have u looked into a vagus nerve stimulator/ implant, could also benefit pots/dysautonomia
Hey Lindsay, did the offer you a vitamin C IV the times you got sepsis? I hope this settles down ...and I hope you get to go to your Aunt's and walk in the beach one day without having to worry about this happening! 🌷
You look beautiful 🤩 honey. What a shock for you all. It’s Christmas 🎅 sweetheart. Well I put all my decorations up early as it makes my smile 😃 as I’m home all day heheh 🤭 xx
hey lindsey. its gretchen i was wonding how u are doing since u got out of the hosptail. i was at the hosptail today because i wasnt feeling good, i have a new man in my life his name is Austin ellis , he is a sweetheart and he is the love the of my life . i know austin since he was 16 and we been friends for 9 years before we fell in love. austin is my soulmate. he ask me if i would marry him and i said yes, i cant live without him, i love u . feel better girl.
Just pray about it.
Pray about what?? I’m a Christian myself but pray about what?? The whole thing? Or something else? Some people aren’t religious though and she’s doing what she can and believe in. This is not a hateful reply just responding.
I have been admitted in the ICU 12times and HDU uncountable times because of aggressive epilepsy but i always been positive and all those medication im zjx sandra from KENYA
Life is unfair