Thank you Dr. Roseann for your work with this life changing condition. Our three children have PANDAS and it has been one of the most challenging and heartbreaking experiences my wife and I have faced in our lifetime. To watch the children you love and adore go through this is indescribable. It is also very difficult for everyone involved. We are so blessed to have friends and family that are very supportive and understanding of this extremely difficult lifestyle PANS/PANDAS creates. I am so grateful for the tenacity of my wife and the wonderful support we have from Dr. Amy Derksen at Holistic Healing Arts. It’s been a long and crazy ten year journey. After watching your video, (that my wife found😁) I am really excited to pursue the mental health healing for our children. I also want to encourage all of you that are discovering this about your children. It is a long journey, but please stay strong and remember to take time to heal and take care of yourself. You will need every ounce of strength and energy you have to navigate this adventure. I have had to deal with so many of my own issues and imbalances to survive this. If I can do it and you’re reading this, you can too.
Bryan - thank you for sharing your story and powerful reminder to remember that healing has its own timeline. Staying the course isn't easy but it is part of the journey. Best to you and your family!
Omg thank you for this. My 2 year old had gotten very sick for 2 weeks so try high fever and severe runny nose. after that, everything changed. He regressed in speech, eye contact, facial expressions…. He was then diagnosed as autistic, but I’m just not convinced because of how sudden the onset was. It’s as if all of a sudden my son was someone else. I have tried mentioning this to our pediatrician and get dismissed, but as a mom I just have this gut feeling. Thank you for this post and any advice I am glad to receive. Much appreciated
I havesuccess with what I believe was a Panda condition of my 10 yearold daughter. We had covid in Nov 2022. In March 2023 I started to notice my daughter’s sudden behavioral changes and gradually her tic symptoms appeared. I was so worried to death that I went to a Naturapath to get her checked. I believed her symptoms were associated with some viral infections that lingered after she got covid. Weeks prior to her Naturapath’s appointment, she was diagnosed with strep throat and her tic symptoms got worse. A few days after an antibiotic, the tic symptoms got better. Hence I was convinced they are related. Our Naturapathic doctor gave her immunity tincture drops, probiotic, Vit D with K2, Zinc with Vic C. i also added in the mix colloidal silver as i was hoping to get rid the remnants of the virus/bacteria thats in her system. To date, my daughter is now symptoms free.
Thank you for your channel. On May 7th my 9 year old started to have extreme OCD symptoms they came out if now where. I made her a drs appointment she was seen on May 10th. I asked about Pans and Pandas. The Dr looked he over order blood works and checker her out. May 11th and May 12th she got blister on her hand feet and mouth. We went back to the Dr in May 13 and she was diagnosed with HFM. I told them in think it’s linked to Pans or Pandas. They gave her prednisone for 5 days and Azithromycin do 5 days. She woke up and had a bed wetting accident. I took her back to the Drs May 15th. They tried to get a urine sample to rule out UTI my daughter had extreme anxiety, shaking and rapid heart beat. They ordered more labs for pans and pandas. She is in a OCD loop thinking she is wet after she goes to the bathroom even though she is dry. She likes to tucks her thumbs in her hands, her eye pupils get so big when the anxiety and OCD kicks in. As a parent it’s heartbreaking to see your child go through all this. Happened all of a sudden. Thank you for the information on Pans and Pandas.
I am starting to think that my 7 year old son has Tourette's syndrome or even PANS/PANDAS... When he turned 5 he started getting ticks associated with is neck. This was right after we went to a bad covid sickness. He recovered after a week and a half, like his sister. His tics started out very slowly though and we didn't quite notice it at the beginning. Sometimes he has them pretty strong, other times they are fairly unnoticeable. Stress, crowded activities and tiredness tends to trigger them. Current his tics are moving his neck and shoulders, sniffing and rolling his eyes. No vocal items, except for the sniffing where he sounds like a piggy. I don't want this to get worse for him but I haven't been able to find a CAUSE to help him manage them or cure them. Every pediatrician we go to says "oh he will grow out of it"... well he's now 7 and it's been two full years now... and they're still with him! Are there any genetic traits that cause this where I could get him a genetics test to test for it and then focus on turning off the affects of those possible mutations like i have with my mthfr mutations?? I have him on magnesium, L Theanine, Vit A, D3, B6, B12, and K2. We've recently cut out gluten so he's no eating anymore bread or pastas but I feel like as soon as we did that they got worse, so maybe that's been a stresser for him?? I really want to help him out and no one can give me any serious answers. We eat organic and I keep dyes out of our foods and I cook 90% of the time from home. We don't have health insurance so everything is out of pocket as far as expenses goes. Thank you for this video. It's given me some direction to go in studying if he has PANS/PANDAS...
our son also started to have ticks out of the blue. In a week time had 22 ticks and very heavy ones. He was just 6 years old. Today 11 years. Some weeks/months are less intensive. Othes are to much. Before he got ticks he suddendly started to change his talking. he mixed up the sentences and copied what we where saying. So weird because he is a super smart kid that could talk very early on and even read the alphabet when he was 1 year old. Do you feel like all the vitamines help your son?
@@paulinebrus7580 I do! I believe they've gone way down. We've also been taking him to a fantastic chiropractor in Bowling Green KY...it's been a game changer. Those neck jerks mess with the spine and adjustments help keep them way down and they are almost not there now. It's only been a couple of weeks too. I've been quite impressed! I'm very sorry to hear about your son and I hope you find him some relief friend.
@@blessedtoquest thanks for your reaction and tips! I hope so. We try to understand why he sometimes has 'atacks' and why other periodes of time he is more calm. never free of it though. Thankfully it still doesn't fysicaly hurt him. I am going to look in to vitamines. Also saw a video about medicinal hemp oil. Maybe an option.
@@jimlimroocroft uhm.. well.. the terrible 2of 4 are no brain disease ;) just change in behavior because of growing up. I am actualy surprised you ask this question. Did you not see the video? It explains very well what happens in the brain with flares and everything.
My 12 year old son had strep A throat inection i would say 2 weeks after and literally overnight was like a different child not loving anymore verbally abusive doesn't want to leave his bedroom OCD on another level does this sound like pans
what about "just" ocd? no other symptoms like tics or behavioral issues. i started with ocd in childhood and i'm now 25. my ocd themes have waxed and waned over the years but the actual ocd itself is consistent, though i've never correlated it to anything other than stress/trauma. for example i'm not at a 10 everyday (unless triggered) so if it "went away" for a week i probably wouldn't notice per se. i've asked my parents if my ocd seemed abrupt and they didn't seem to think so. is this still concerning? i just recently started seeing an ERP specialist but i have been obsessing over whether or not i now should be looking into this. i had lyme in 2020, but i was treated promptly and for a pretty long time to avoid future complications and i did well. my ocd never really changed during that time. at the same time, i was tested for mycoplasma and my titers were high for over a year... not sure why and i didn't have any typical mycoplasma symptoms or really any symptoms for that matter, so i'm not sure if it was a coincidence or not. i actually just got those levels rechecked today so i don't have the results yet. hopefully they finally went down/away! i also have a history of type 1 diabetes and hashimoto's.
PANS or PANDAS can lead to OCD. Find a good PANS/PANDAS specialist that can help. Stick with ERP therapy... it works! Wishing the very best! drroseann.com/the-ocd-pans-pandas-connection/
Hello, I am almost certain that my child has this, sudden onset of intense behavioural issues over night and have been battling this for 3 years now. Unfortunately a lot of doctors where I live don’t believe in PANS :( there is hardly any help available. My child’s condition is so bad I have had to stop working.
Last year my son went through a great regression and started exhibiting ocd that consumed his ability to complete basic daily self care. I think it happened after covid.
Recently heard about this and the information you provided was very helpful. I have 12 year old and he is on the Autism spectrum and goes to special education. I see some similar symptoms you described. Do you think autism is also one of the symptoms of PANS/PANDAS/AE?
Lord Jesus bless all the children all over the world , bless them with good health peace love and joy. Thank you for loving caring kind compassionate parents. Lead , guide and direct them with wisdom from above as they grow and guide their children in your ways. Cover the parents, guardians, all who cares for children with peace,patience, love and strength and ability to have a genuine caring kind compassionate heart towards the child in their care. Watch over and protect each and every child Lord, keep them in the palm of your hands. Amen 🙌🏼💕🤗🌈
My child flipped a switch one day and turned into a different child and it’s gotten so bad now I’m having anxiety attacks where I have to go lock myself in the bathroom to cry! She’s been diagnosised with adhd but her councilor mentioned her needing to be tested for pandas because she was sick a lot when she was younger with strep & constant ear infections There’s too much to get into on here but I would love to talk to you and get your opinion and advice do you have an email I can contact you through?
What time period is considered acute, or sudden onset? If ocd like behavior appeared in a minor way suddenly (head nodding) and gradually got worse over the next 1-2 weeks (regular nodding, door tapping, touching, checking) is that sudden and acute?
Great question. Many have "soft signs" before the full onset. There must be a acute increase in symptoms in order for it to be PANS or PANDAS. AE can be more of a waxing and waning. drroseann.com/the-ocd-pans-pandas-connection/
Hi, your opinion will really help this mom🙏. My son was the sweetest kids ever, but around the age of 12-13 his behavior drastically changed to were his always rude, hardly communicates with parents, he would always answer no to dcs visit when asked if felt depressed. Now that his 18 his went to dc visit alone and asked for depression and anxiety meds. Could he have pandas and could he still get tested and treated if positive? Thank you advance.
Sorry this is happening! Whenever you have a sudden onset of a mental health issues, PAANSPANDAS should always be ruled out. Here is some good info for you: drroseann.com/how-to-diagnose-pans-and-pandas/
Thank you for your video. I really need your help to provide information about PANS for my 9 year old son's Paediatrician. 18 months ago my son suddenly changed overnight, we have seen specialists and he has been diagnosed with Anxiety, psychogenic polydypsia, had his ASD level increased from level 2 to level 3 because of violent behaviours and high behavioural needs. He tries to kill himself. Please is there any help you can give us we are desperate.
Hi Dr Ro, thank you for this video. Our now 7yo changed overnight also, after a strep infection. She developed extreme sensory processing challenges, where at her worst she will not be able to handle the ground under her feet so will jump in the air for relief. She’ll do this while screaming for a long long time. She’ll become so stressed that she’ll almost vomit and spit. She’ll spin on the spot and if we try to touch her she runs away and screams even more. Once she is calmed down (from pure exhaustion), she’ll collapse into our arms and allow us to cuddle her. She has trouble with shoes and socks and hair brushing etc. But aside from that and some anxiety, there are no other symptoms. Do I feel this could fit the PANDAS mold? Thanks so much.
A sudden behavioral change overnight without a pscho-social stressor isn't normal. PANDAS must bre ruled out for sure. Here is a resource for you: drroseann.com/how-to-diagnose-pans-and-pandas/ Sending you my best!
@@DrRoseann Thank you so much for your reply! I've taken a look at your resources and really appreciate it. I'm piecing some puzzle pieces together and now see that her older sisters mental and physical health went rapidly downhill in the same year as the younger sister I spoke with you about. Her symptoms are bigger and seem to match PANDAS. The big sister is currently already getting neuro locally here (Australia), but the provider won't do it for children Rose's age. I can't understand how you can offer it virtually, because of the wires needed. Can you please comment? Additionally, I've seen another doctor say they use antibiotics then IVGV (injection of blood cell antibodies from a donor) to treat PANDAS. Do you also do the same? Thanks so much for your time. From a desperate parent. xx
Sad to hear its not easy when children go through a hard time I have a household with children with grandchildren, If I can suggest Panda's lymes as well as hormonal profile should be checked out As well, try a good neurologist with an interest in paediatrics mental health just to include/ exclude neurological issues, not Panda's related. I wish you the best You can always try posphetidylecholin
If I had lymes disease before and during my pregnancy that was not diagnosed for almost 3 years later can this be a source of my child suffering from these symptoms of pans ? I have her in therapy and OT and SP as well as dealing with rage , controlling and OCD, tics symptoms randomly occurring. She also gets sick a lot since she was a baby . thought this was the case . To then find my daughter Masks all day at school and the mask drops as soon as she sees mom or is safe at home with family . I thought she was on the spectrum but was shot down until I came across the PDA profile . I assume a 2nd grader can’t mask PANS or pandas or AE ?
Glad testing helped you get a diagnosis and hopefully the right treatment but there is NO SINGLE test the can diagnose PANS or PANDAS because it is a clinical diagnosis. Good luck on your journey!!!
@@DrRoseann funny you say that because that’s exactly what the Cunningham panel does …..My doctor works with the doctors at Stanford they have a pans clinic and that’s how they diagnose…. They don’t try to sell me a book like you …. The Cunningham panel blood test does diagnose pans
@@noyes3810 - Everyone is on a different journey. You are paying your doctors for their advice and if you are offended that I have created free and low cost resources for parents, that is your issue. We wish you the best.
Thank you for this information. Is it possible to diagnose a child that is 2 yrs old? I've recently been diagnosed with Lyme and chronic EBV and don't know if I passed it to my children. My son has speech delay, sensory issues, tantrums, unable to stay in one spot etc. I don't know if there is any correlation to PANS or he just simply has these delays and will grow out of it. Thank you
Yes it is. Find a PANS professional who can help you. If you see a delay, address it. Don't wait. Help him regulate and catch up. Sending you HUGS Christina
If my 7 year old suddenly started having panic attacks and excessive intrusive thoughts that started 2 months ago and her recent bloodwork showed low levels of my mycoplasma pneumonia, which the doctor treated her for with a five day course of anabiotic. Her pediatrician tells me it is not pans or pandas. But my daughter is struggling with so much of her nervous system this regulation I am wondering what your thoughts are on this
what do i do? we do not have health insurance at the moment. we need it. i feel like my son could have pans and i need to get him help. we started play therapy also
@@DrRoseann thanks so do you think that a) The autistics have a predisposition about their immune system towards developing PANS/PANDAS, b) that the individuals behavioural phenotype is misconstrued as autism when it is really a similar phenotype but cause by immune system issue of PANS/Pandas or a combination?
I am so sorry to hear this! It is NEVER too late! Read Brain Under Attack and It's Gonna Be OK!. They are guides to help with PANS/PANDAS and other clinical conditions. Sending you virtual hugs!
Thank you Dr. Roseann for your work with this life changing condition. Our three children have PANDAS and it has been one of the most challenging and heartbreaking experiences my wife and I have faced in our lifetime. To watch the children you love and adore go through this is indescribable. It is also very difficult for everyone involved. We are so blessed to have friends and family that are very supportive and understanding of this extremely difficult lifestyle PANS/PANDAS creates. I am so grateful for the tenacity of my wife and the wonderful support we have from Dr. Amy Derksen at Holistic Healing Arts. It’s been a long and crazy ten year journey. After watching your video, (that my wife found😁) I am really excited to pursue the mental health healing for our children. I also want to encourage all of you that are discovering this about your children. It is a long journey, but please stay strong and remember to take time to heal and take care of yourself. You will need every ounce of strength and energy you have to navigate this adventure. I have had to deal with so many of my own issues and imbalances to survive this. If I can do it and you’re reading this, you can too.
Bryan - thank you for sharing your story and powerful reminder to remember that healing has its own timeline. Staying the course isn't easy but it is part of the journey. Best to you and your family!
Omg thank you for this. My 2 year old had gotten very sick for 2 weeks so try high fever and severe runny nose. after that, everything changed. He regressed in speech, eye contact, facial expressions…. He was then diagnosed as autistic, but I’m just not convinced because of how sudden the onset was. It’s as if all of a sudden my son was someone else. I have tried mentioning this to our pediatrician and get dismissed, but as a mom I just have this gut feeling. Thank you for this post and any advice I am glad to receive. Much appreciated
Hope your child is on the mend! Here are our PANS blogs: drroseann.com/category/panspandaslyme-ticks/
Can you get pans from black mold
I havesuccess with what I believe was a Panda condition of my 10 yearold daughter. We had covid in Nov 2022. In March 2023 I started to notice my daughter’s sudden behavioral changes and gradually her tic symptoms appeared. I was so worried to death that I went to a Naturapath to get her checked. I believed her symptoms were associated with some viral infections that lingered after she got covid. Weeks prior to her Naturapath’s appointment, she was diagnosed with strep throat and her tic symptoms got worse. A few days after an antibiotic, the tic symptoms got better. Hence I was convinced they are related. Our Naturapathic doctor gave her immunity tincture drops, probiotic, Vit D with K2, Zinc with Vic C. i also added in the mix colloidal silver as i was hoping to get rid the remnants of the virus/bacteria thats in her system. To date, my daughter is now symptoms free.
Love to hear that you have overcome this! Here are more resources for you and others on PANS/PANDAS: drroseann.com/subject/pans-pandas/
Thank you for your channel. On May 7th my 9 year old started to have extreme OCD symptoms they came out if now where. I made her a drs appointment she was seen on May 10th. I asked about Pans and Pandas. The Dr looked he over order blood works and checker her out. May 11th and May 12th she got blister on her hand feet and mouth. We went back to the Dr in May 13 and she was diagnosed with HFM. I told them in think it’s linked to Pans or Pandas. They gave her prednisone for 5 days and Azithromycin do 5 days. She woke up and had a bed wetting accident. I took her back to the Drs May 15th. They tried to get a urine sample to rule out UTI my daughter had extreme anxiety, shaking and rapid heart beat. They ordered more labs for pans and pandas. She is in a OCD loop thinking she is wet after she goes to the bathroom even though she is dry. She likes to tucks her thumbs in her hands, her eye pupils get so big when the anxiety and OCD kicks in. As a parent it’s heartbreaking to see your child go through all this. Happened all of a sudden. Thank you for the information on Pans and Pandas.
I am so glad this led you to right path quickly! Sending you healing....
I am starting to think that my 7 year old son has Tourette's syndrome or even PANS/PANDAS... When he turned 5 he started getting ticks associated with is neck. This was right after we went to a bad covid sickness. He recovered after a week and a half, like his sister. His tics started out very slowly though and we didn't quite notice it at the beginning. Sometimes he has them pretty strong, other times they are fairly unnoticeable. Stress, crowded activities and tiredness tends to trigger them. Current his tics are moving his neck and shoulders, sniffing and rolling his eyes. No vocal items, except for the sniffing where he sounds like a piggy. I don't want this to get worse for him but I haven't been able to find a CAUSE to help him manage them or cure them. Every pediatrician we go to says "oh he will grow out of it"... well he's now 7 and it's been two full years now... and they're still with him! Are there any genetic traits that cause this where I could get him a genetics test to test for it and then focus on turning off the affects of those possible mutations like i have with my mthfr mutations?? I have him on magnesium, L Theanine, Vit A, D3, B6, B12, and K2. We've recently cut out gluten so he's no eating anymore bread or pastas but I feel like as soon as we did that they got worse, so maybe that's been a stresser for him?? I really want to help him out and no one can give me any serious answers. We eat organic and I keep dyes out of our foods and I cook 90% of the time from home. We don't have health insurance so everything is out of pocket as far as expenses goes. Thank you for this video. It's given me some direction to go in studying if he has PANS/PANDAS...
our son also started to have ticks out of the blue. In a week time had 22 ticks and very heavy ones. He was just 6 years old. Today 11 years. Some weeks/months are less intensive. Othes are to much. Before he got ticks he suddendly started to change his talking. he mixed up the sentences and copied what we where saying. So weird because he is a super smart kid that could talk very early on and even read the alphabet when he was 1 year old. Do you feel like all the vitamines help your son?
@@paulinebrus7580 I do! I believe they've gone way down. We've also been taking him to a fantastic chiropractor in Bowling Green KY...it's been a game changer. Those neck jerks mess with the spine and adjustments help keep them way down and they are almost not there now. It's only been a couple of weeks too. I've been quite impressed! I'm very sorry to hear about your son and I hope you find him some relief friend.
WhaTs the differences between pandas /pans to just terrrible 2 or terrible 4 ?
@@blessedtoquest thanks for your reaction and tips! I hope so. We try to understand why he sometimes has 'atacks' and why other periodes of time he is more calm. never free of it though. Thankfully it still doesn't fysicaly hurt him. I am going to look in to vitamines. Also saw a video about medicinal hemp oil. Maybe an option.
@@jimlimroocroft uhm.. well.. the terrible 2of 4 are no brain disease ;) just change in behavior because of growing up. I am actualy surprised you ask this question. Did you not see the video? It explains very well what happens in the brain with flares and everything.
My 12 year old son had strep A throat inection i would say 2 weeks after and literally overnight was like a different child not loving anymore verbally abusive doesn't want to leave his bedroom OCD on another level does this sound like pans
I am so sorry. You defintely want to rule out PANS/PANDAS! Here is a resource for you: th-cam.com/video/xrjY1iofln0/w-d-xo.html
@@DrRoseann Thank you Dr I will look at this resource it's turning my life upside down
what about "just" ocd? no other symptoms like tics or behavioral issues. i started with ocd in childhood and i'm now 25. my ocd themes have waxed and waned over the years but the actual ocd itself is consistent, though i've never correlated it to anything other than stress/trauma. for example i'm not at a 10 everyday (unless triggered) so if it "went away" for a week i probably wouldn't notice per se. i've asked my parents if my ocd seemed abrupt and they didn't seem to think so. is this still concerning? i just recently started seeing an ERP specialist but i have been obsessing over whether or not i now should be looking into this.
i had lyme in 2020, but i was treated promptly and for a pretty long time to avoid future complications and i did well. my ocd never really changed during that time. at the same time, i was tested for mycoplasma and my titers were high for over a year... not sure why and i didn't have any typical mycoplasma symptoms or really any symptoms for that matter, so i'm not sure if it was a coincidence or not. i actually just got those levels rechecked today so i don't have the results yet. hopefully they finally went down/away!
i also have a history of type 1 diabetes and hashimoto's.
PANS or PANDAS can lead to OCD. Find a good PANS/PANDAS specialist that can help. Stick with ERP therapy... it works! Wishing the very best! drroseann.com/the-ocd-pans-pandas-connection/
Hello, I am almost certain that my child has this, sudden onset of intense behavioural issues over night and have been battling this for 3 years now. Unfortunately a lot of doctors where I live don’t believe in PANS :( there is hardly any help available. My child’s condition is so bad I have had to stop working.
We work with people all over the world. You can get the right solution here: www.drroseann.com/help
Last year my son went through a great regression and started exhibiting ocd that consumed his ability to complete basic daily self care. I think it happened after covid.
I am so sorry to hear that. Definitely explore PANS because there are treatments that can help.
On my mission now to help my little girl
You got this!💜
This is so crazy I think I have this I need to get diagnosed asap
Here is a resource for you: drroseann.com/what-is-pans-disease-mothers-speak-about-experience/
Recently heard about this and the information you provided was very helpful. I have 12 year old and he is on the Autism spectrum and goes to special education. I see some similar symptoms you described. Do you think autism is also one of the symptoms of PANS/PANDAS/AE?
You should get a Cunningham panel blood test done….
About 35% of children with autism have PANS. Here is a resource for you: drroseann.com/does-my-child-have-pans-pandas/
Lord Jesus bless all the children all over the world , bless them with good health peace love and joy. Thank you for loving caring kind compassionate parents. Lead , guide and direct them with wisdom from above as they grow and guide their children in your ways. Cover the parents, guardians, all who cares for children with peace,patience, love and strength and ability to have a genuine caring kind compassionate heart towards the child in their care. Watch over and protect each and every child Lord, keep them in the palm of your hands. Amen 🙌🏼💕🤗🌈
God bless you too!
@@DrRoseann amen thank you 🙌🏼🌈
My child flipped a switch one day and turned into a different child and it’s gotten so bad now I’m having anxiety attacks where I have to go lock myself in the bathroom to cry! She’s been diagnosised with adhd but her councilor mentioned her needing to be tested for pandas because she was sick a lot when she was younger with strep & constant ear infections There’s too much to get into on here but I would love to talk to you and get your opinion and advice do you have an email I can contact you through?
I am so sorry you are struggling so much. Please consider PANS/PANDAS! Please read: drroseann.com/does-my-child-have-pans-pandas/
What time period is considered acute, or sudden onset? If ocd like behavior appeared in a minor way suddenly (head nodding) and gradually got worse over the next 1-2 weeks (regular nodding, door tapping, touching, checking) is that sudden and acute?
Great question. Many have "soft signs" before the full onset. There must be a acute increase in symptoms in order for it to be PANS or PANDAS. AE can be more of a waxing and waning. drroseann.com/the-ocd-pans-pandas-connection/
Hi, your opinion will really help this mom🙏. My son was the sweetest kids ever, but around the age of 12-13 his behavior drastically changed to were his always rude, hardly communicates with parents, he would always answer no to dcs visit when asked if felt depressed. Now that his 18 his went to dc visit alone and asked for depression and anxiety meds. Could he have pandas and could he still get tested and treated if positive? Thank you advance.
Sorry this is happening! Whenever you have a sudden onset of a mental health issues, PAANSPANDAS should always be ruled out. Here is some good info for you: drroseann.com/how-to-diagnose-pans-and-pandas/
Thank you so much for this video!!
You welcome!
Thank you for your video. I really need your help to provide information about PANS for my 9 year old son's Paediatrician. 18 months ago my son suddenly changed overnight, we have seen specialists and he has been diagnosed with Anxiety, psychogenic polydypsia, had his ASD level increased from level 2 to level 3 because of violent behaviours and high behavioural needs. He tries to kill himself. Please is there any help you can give us we are desperate.
Thank you for sharing your story. Please make sure you are seeing a licensed professional in your state or country and get parent support as well.
I found this because my 5 year old stopped swallowing his saliva 3 weeks ago… and it has gotten so bad we didn’t even take him to school today.
I am so sorry! Please make sure you are getting medical care.
@@DrRoseann Today, I called his pediatrician’s office requesting a consult and got him on a waitlist for an assessment by a pediatric therapy team.
Today is a holiday so that’s about all I can do.
@@pfmedic Sounds like you are getting help!
Hi Dr Ro, thank you for this video. Our now 7yo changed overnight also, after a strep infection. She developed extreme sensory processing challenges, where at her worst she will not be able to handle the ground under her feet so will jump in the air for relief. She’ll do this while screaming for a long long time. She’ll become so stressed that she’ll almost vomit and spit. She’ll spin on the spot and if we try to touch her she runs away and screams even more.
Once she is calmed down (from pure exhaustion), she’ll collapse into our arms and allow us to cuddle her.
She has trouble with shoes and socks and hair brushing etc.
But aside from that and some anxiety, there are no other symptoms.
Do I feel this could fit the PANDAS mold?
Thanks so much.
A sudden behavioral change overnight without a pscho-social stressor isn't normal. PANDAS must bre ruled out for sure. Here is a resource for you: drroseann.com/how-to-diagnose-pans-and-pandas/ Sending you my best!
@@DrRoseann Thank you so much for your reply! I've taken a look at your resources and really appreciate it. I'm piecing some puzzle pieces together and now see that her older sisters mental and physical health went rapidly downhill in the same year as the younger sister I spoke with you about. Her symptoms are bigger and seem to match PANDAS. The big sister is currently already getting neuro locally here (Australia), but the provider won't do it for children Rose's age. I can't understand how you can offer it virtually, because of the wires needed. Can you please comment? Additionally, I've seen another doctor say they use antibiotics then IVGV (injection of blood cell antibodies from a donor) to treat PANDAS. Do you also do the same? Thanks so much for your time. From a desperate parent. xx
The best way to get your questions answered is to apply to work with us: www.drroseann.com/apply Best!
Sad to hear its not easy when children go through a hard time
I have a household with children with grandchildren,
If I can suggest
Panda's lymes as well as hormonal profile should be checked out
As well, try a good neurologist with an interest in paediatrics mental health just to include/ exclude neurological issues, not Panda's related. I wish you the best
You can always try posphetidylecholin
My daughter is experiencing the same thing, how’s your daughter doing? Any update?
I dont live in USA but need your advice how do o contact u
We work with people all over the world, you can apply, www.drroseann.com/apply
Here is a resource: drroseann.com/the-ocd-pans-pandas-connection/
If I had lymes disease before and during my pregnancy that was not diagnosed for almost 3 years later can this be a source of my child suffering from these symptoms of pans ? I have her in therapy and OT and SP as well as dealing with rage , controlling and OCD, tics symptoms randomly occurring. She also gets sick a lot since she was a baby .
thought this was the case . To then find my daughter Masks all day at school and the mask drops as soon as she sees mom or is safe at home with family .
I thought she was on the spectrum but was shot down until I came across the PDA profile . I assume a 2nd grader can’t mask PANS or pandas or AE ?
Hello. Congenital Lyme Disease is documented in the literature. It can pass from mother to baby. Find a PANS or Lyme specialist that can help you.
The Cunningham panel test diagnosed my daughter at the Children’s Hospital with pandas ….
Glad testing helped you get a diagnosis and hopefully the right treatment but there is NO SINGLE test the can diagnose PANS or PANDAS because it is a clinical diagnosis. Good luck on your journey!!!
@@DrRoseann funny you say that because that’s exactly what the Cunningham panel does …..My doctor works with the doctors at Stanford they have a pans clinic and that’s how they diagnose…. They don’t try to sell me a book like you …. The Cunningham panel blood test does diagnose pans
@@noyes3810 - Everyone is on a different journey. You are paying your doctors for their advice and if you are offended that I have created free and low cost resources for parents, that is your issue. We wish you the best.
What treatment was given to you child may I know
Thank you for this information. Is it possible to diagnose a child that is 2 yrs old? I've recently been diagnosed with Lyme and chronic EBV and don't know if I passed it to my children. My son has speech delay, sensory issues, tantrums, unable to stay in one spot etc. I don't know if there is any correlation to PANS or he just simply has these delays and will grow out of it. Thank you
Yes it is. Find a PANS professional who can help you. If you see a delay, address it. Don't wait. Help him regulate and catch up. Sending you HUGS Christina
I think my baby has it! He’s 22 months old! Does this heal ?
@@noyes3810 to what type of professional si should i go?
defintely get the right lab work drroseann.com/how-to-diagnose-pans-and-pandas/
If my 7 year old suddenly started having panic attacks and excessive intrusive thoughts that started 2 months ago and her recent bloodwork showed low levels of my mycoplasma pneumonia, which the doctor treated her for with a five day course of anabiotic. Her pediatrician tells me it is not pans or pandas. But my daughter is struggling with so much of her nervous system this regulation I am wondering what your thoughts are on this
Thank you for sharing your story. These things are tough to navigate! That is why I created this resource for parents: drroseann.com/panskit
what do i do? we do not have health insurance at the moment. we need it. i feel like my son could have pans and i need to get him help. we started play therapy also
Dive into what you can do... diet, calming the brain, sleep.. I outline it in books and blogs. Sending you healing.
My child had a sudden onset of violent behaviour in grade 2. He is now 21. What can I do now?
This may be helpful: th-cam.com/video/xrjY1iofln0/w-d-xo.html
How many kids diagnosed with Autism actually have PANS/PANDAS Dr Ro? Chance of misdiagnosis?
They estimate that about 1/3 of kids with ASD also have PANS. Misdiagnosis is very common! Hope that helps :)
@@DrRoseann thanks so do you think that a) The autistics have a predisposition about their immune system towards developing PANS/PANDAS, b) that the individuals behavioural phenotype is misconstrued as autism when it is really a similar phenotype but cause by immune system issue of PANS/Pandas or a combination?
Do you offer virtual visits?
Yes, we do. Check out my website www.drroseann.com
Is a 239 result of ASO test for a 11 year old child a positive?
There isn't a single test that an you a positive PANS or PANDAS result. You need to look at the symptoms. Find a provider that can help.
Could MRSA cause PANDAS or PANS?
Absolutely. I have had several cases.
Too late for our grown daughter. Our family is all but destroyed.
I am so sorry to hear this! It is NEVER too late! Read Brain Under Attack and It's Gonna Be OK!. They are guides to help with PANS/PANDAS and other clinical conditions. Sending you virtual hugs!