ฝัง
- เผยแพร่เมื่อ 9 ก.พ. 2025
- We are on a healing journey. We are in the process of healing our minds and our bodies and our pasts. We didn't get here by accident. I always call this a life illness because I believe everything that has happened in our lives has brought us to this particular place. If I focus on something in my past I bring it up to show me what I need to learn from it and I can't stay in it. I know I have said it before but this illness is a call to change. We have to change because we don't ever want to come back to this particular place again. We are the ones that have to do the work someone can't do it for us. We must stay committed to ourselves and what we need to do. We deserve a better life. We deserve to feel good. We have done so much for others and taken care of so many people. Who are we without all of that programming from the past? What do I want? Who am I really? Who do I want to become for me without all of the outside expectations? These are deep questions and need time to weed through to get to our authentic selves. Aren't we worth it! This is a deep deep healing on so many levels. Let's get through this together one moment at the time.
So much love to everyone. WE are healing and holidays are not for us right now and it's okay......
Hi Petra, it's been about 12 months since my initial crash and transition to advanced stage AF and I'm feeling a lot more physical strength, less body aches, no more shortness of breath, so been having a lot more good days. Some days, I do still feel some heaviness in my body and one thing that I'm really struggling with is a very flat, apathetic mood. I think all of the symptoms just took so much out of me that, I feel like I have symptoms of someone who has gone through trauma. I feel like I forgot my dreams, and what used to make me happy. And my mind did literally forget my old dreams, as I have had strange dreams this entire year.
I'm hoping maybe when I am well enough to work again, I will start to gain some motivation and life-energy back. For the first 10 months I was ready to fight this and recover but as soon as fall/winter hit, even though I continue to heal slowly physically, I've started feeling a lot more unmotivated, lost, and confused about what I want out of my life (I'm only 28). Not sure, maybe it's just the weather. I was wondering if you ever went through a similar phase.
I also just wanted to say that I would've never made it this far or known there was hope of ever healing without your videos. Thank you so much from the bottom of my heart!
Oh Amy thank you so much from the bottom of my heart too for watching my channel because my goal was to help people with this illness. I knew how lonely and frightened I was and never wanted people to feel alone. All of what you have mentioned I felt too. A disconnect from the self. Who am I now? What am I suppose to be like now after all of this. I don't know who I am anymore. I didn't even know how to talk to people any longer because I stopped talking to people. What do I feel. I felt so blank. Yes, there was much trauma involved in this illness. People have no idea. I want to talk about this is greater depth so I am going to do a video on it this week so I thank you for bringing this to my attention. All of your feelings are totally what so many of us feel and are going through and continue to feel. You are evolving and changing into the person you need to be now. Your authentic self and this takes time to adjust to this transition. I don't know where you live but I do know weather affects so many people during the cold shorter days of light. It all has an impact. Please take care okay. You are doing the work that in required to heal and things will get better. One step at the time. Lots of love to you always...... xo Petra
Amy, just know that your words resonate with all of us who have dealt with advanced AFS. I also felt flat in my personality, and I would just look at other people and not be able to relate although I didn’t let on how I was feeling. This is possibly the most challenging psychological Condition that most of us will ever experience. I am also so grateful for Petra providing a way for us to communicate with each other. I’m so thankful for Dr. Lam and my coach Rose but I was very much in need of a support group in between times. Our family and friends many times are supportive and thank God for them, but no one can really understand advanced AFS without experiencing it. And I do not wish for anyone that I know to have to go through this. But Dr. Lam and Petra, and many others are evidence that we can make it out on the other side. Just stay connected here, and we will all support each other through this journey. Much love to you. 🩷
Yes, Petra, that is definitely my experience also and I had to really, really work with my mind! This is definitely a mind, body condition, the mind definitely taking preeminence over everything! Wow, are we on a journey that will bring us, as you have said, Petra, to our authentic selves! I would say that most of us are highly intelligent, but also highly sensitive, not weak, but more aware than most people, and we have got to learn to put a protective shield around ourselves to no longer go down this road! Our sensitivity is a gift, yikes!, But we have to become stellar about choosing wisdom with this gift! Patience is not our favorite word, but it is definitely what we are learning. God bless everyone and I love you all dearly! 💖
Mary l am replying to your comments but not confident that they are getting to you ?? On Petra’s video ‘We are the strong ones’ she has put a comment which includes my email address….🩷
Thanks Petra. I have just listened to this - so relevant for me at the stage of AFS that l feel l am at. It’s after 8 in the evening for me and I am quite tired., will definitely be listening again in the morning. 💕
Thank you Petra, so glad you recovered, you look amazing! Thank you for you love and compassion… going through something not sure if it’s ads
Thank you! What are your symptoms wonder woman ?
Thank you Petra. I thank you for your reminders to stay on track. It is so easy to lose focus especially if we feel a little better. Then we try to do too much thinking that we are OK but find out later that we should’ve gone slower. I’m seeing more and more how this is absolutely essential that we stay very aware and err on the side of caution and safety. Somehow I am having an electrolyte imbalance. I don’t know how this happened, but I am reading Dr. Lam‘s information to try to correct it. Very tricky this road that we are on. Just want to get well, and never repeat this again! I know everyone with AFS feels the same, especially in the advanced stages.
Well, Merry Christmas to you and happy holidays. Hi Christine, and the same to you. 🩷
Reading that you have an electrolyte imbalance. - do you have symptons? I think l remember reading that you are working with Rose - l wonder if she would have any help for this? Cynthia 💕
Hi Mary, It is so nice to hear from you! It is incredible all of the symptoms that you can have with this. It's great that you mentioned the electrolyte balance because many of us have had this or are experiencing this. I see that Cynthia has mentioned what are the symptoms, coould you elaborate a little about how you figured out with Rose that it was an electrolyte imbalance. This could help someone else. Dr. Lam does have some great videos and information on his site for those who have never seen the site or videos. You can look at them. "Very tricky this road we are on." You said it! "Never want to repeat this again!" Please know that we are thinking of you and let's keep going. Let's stick together and help each other navigate through this health journey and these holidays. We are all here together . We will get through this! Lot's of love to all of you and thank you Mary...xo
Hi Petra and Cynthia, I will try to keep this brief, but I can’t promise! Electrolyte imbalance - My symptoms: more noticeable heart irregular rhythm, more than before, headache, like pressure in the front of my forehead that could not be relieved - quite profound, muscle cramps in feet and legs, noticeable dry mouth, muscle weakness, more trips to the bathroom, especially at night, which concerned me because more loss of electrolytes, insomnia, dizziness, excess fatigue, back aches, although I’ve had that for a while, I think due to sitting so much. I was nervous about taking my supplements and about what I was eating because of potassium levels, and possibly making the imbalance worse. Overnight last Saturday/early Sunday morning. I left a message with Dr. Lam’s office but knew I would not hear from them until Tuesday which is today so I feel confident they will respond. I did not have the opportunity to talk to Rose but last week Dr. Lam posted a short video about electrolyte imbalance, and it was the first thing that made sense to me about my symptoms. I looked online and read more of his information, and he said this is more common in advanced AFS and it can be very serious. I also read, maybe from Dr. Eric Berg that electrolytes mixed in water will even power a light bulb so they are the source that gives charge to our cells and our muscles and our brain, organs. The first part of the word electrolyte is electro! Makes sense. I did what I know to do, and I carefully added salt again to my food, and I put salt in my drinking water, and I began to hydrate better even though I was nervous about losing electrolytes or causing a worse imbalance. I hope to find out from Dr. Lam’s office how this possibly could’ve been triggered and I will definitely not go down that road again! I love all of you guys because have you ever found people who are so in need of understanding? It makes me cry. Petra like you said we are very strong and I believe that. One more thing, I am starting to believe that all of us have dealt with electrolyte imbalance, but possibly more mild. It would make sense that our electrolytes would be challenged. I think it’s part of the whole system. I will comment more after I talk to someone from Dr. Lam’s‘s office today. I am starting to calm down more because I have been showing such improvement and this was not welcome. But I am seeing it as a very temporary setback, and I feel confident that I will return to the level of progress that I was experiencing. 🩷😊
I am so glad that you brought this up Mary. Mary my system was so fragile yes even minerals and supplements were very slowly introduced into my system. I mean slowly. The electrolyte issue you can see is a complex one when the body is in this state. Talking to someone that can best understand the complex nature of AFS and offer guidance through this piece of it is so helpful. There is such a wide variety of symptoms with this illness as the entire system is in high alert mode. This is why the strategies are so important to help our bodies to calm down and start to feel that they are not under threat. Get our bodies out of the stuck fight and flight mode. I hear every word that you are saying Mary. Let's just keep going. There will be things that come up that are out of our control and put us in a fearful state with what is this now but this is how this illness is. We will persevere. We will get through this. It's one step at the time and I realized it is sometimes 2 steps back and 1 step forward. I would say this all the time. A setback doesn't mean we won't have a comeback. We are learning and growing now about our bodies and our minds. Must constantly work with the mind. xoxo Petra
Sorry, Cynthia Smith, my greeting was to you also! 😊
Thanks Mary… best seasons wishes to you. 🌹
Also, I know Petra has tried to send you my email address on comments on her video…
Tell me, what do you do when you can’t pick up your arms when you can’t even lift a blanket off your shoulders do I stress those? Do I do a pain medication? Do I just sit there and cry? What do I do when you can’t move?
I am checking in on you and can you let me know if anything has changed.? I'm very sorry that sometimes my phone doesn't link up for some reason to my computer so it isn't responding to your question. What are you doing while you are trying to heal. Are you listening to anything soothing ?
@ thank you so much for your care and concern. I am doing OK minute by minute. I’ve come to the acceptance of that. Do what I can when I can. I went to a new endocrinologist waited four months to go. She knew nothing about adrenal insufficiency at the end of our meetings, I asked did we achieve anything and she said yes refills and my 9 o’clock here thank you see you in May. So I’ve just come to the realization only my wife, a complete stranger such as you knows what I’m going through. Would love to talk to face-to-face FaceTime zoom. I don’t do Instagram or Facebook. Thank you for your concern. How are you doing? I micros-stress dose it helps. But none of these endocrinologist understand stressing at all.
What about night sweats?
Hi Petra. I've been wondering what you noticed when you were first coming into your healing and that made you aware that you were infact getting better ? Was it your sleep that became consistent or something else maybe ? ... thanks.
Can people contact you on an email or is it best for you if it's here ? I understand if it's just here otherwise you may get a lot of messages. I'm not sure if you're in the All clear from the condition or if you have to be careful still ? ...
I like this background on your videos more than the present one... I find the other gives me no place to avert my eyes to relax. I hope you didn't mind me saying that...
Also I wonder how you came into recognizing mindfulness as a way to help you with this condition as part of your journey. ?
Best wishes David.
David so nice to hear from you xoxo. How are you feeling ??I started to type an answer to you but it became long. I want to do a video to answer you- I will do a video this week. I can’t be vague with my response. 💖💖
@@petra3049 Hi Petra, that would be good.. a video. yes ! I didn't want to suggest that as it's your channel, and it may have sounded cheeky of me haha. I had a noticeable change when I practiced mindfulness last week.. And I know it's a place I need to go to more.. But I think maybe you have to be in the right place in yourself to do it... maybe mindfulness sessions are intermittent ? ... I can't seem to get into it each day. I'll wait for any video you make in your own time. thanks Petra. David.
Did you take steroids at any point? If not, why not did the blood tests show that you didn’t have adrenal insuffiency. What’s the difference between adrenal fatigue and adrenal insufficiency
@@chriskontos5824 adrenal insufficiency is recognized by the medical model (Addisons disease) can do bloodwork that will show you have this. With
Adrenal fatigue bloodwork will quite often be okay. Did not use steroids.