I had positive ANA. Was told in 1994 I had Lupus. In 2017 I got extremely sick. Pain, vomiting, couldn’t eat etc.! In 2018 I was diagnosed with Celiac Disease. My ANA is now negative.
@@CrazyBunniePanda celiac disease is an autoimmune disease. So when I started gluten free diet it changed. Now it is negative. The fact that celiac disease was controlled is in my opinion the reason why. I AM NOT A MEDICAL PROFESSIONAL. This is purely my opinion. Timing is too coincidental.
Diagnosed with Lupus in 2011 after positive ANA in 2008 and 2011. with on-going health problems to date . Now in 2024 my ANA came back negative . Nobody can answer WHY !
It wasn’t scary for me… it was validating. I just hope the rheumatologist, when I get an appointment, doesn’t just say to lose weight and blow me off like I have been for 10 years. Thank you for the video.
I agree my ANA is always positive but, my diagnosis is lupus,fibromyalgia,and all this was diagnosed by my primary doc. I went to see a Rheumatologist and he told me I was overweight and lazy and just needed to exercise and stop being lazy. I went home that day in tears and so depressed I couldn’t bring myself to see another doctor for months and lived in so much pain I finally ended up in the er with my sed rate so high the nurse was alarmed. They gave be a course of steroids and cured my flare for the moment. I hv never been to another Rheumatologist
Hello! I'm excited this has started a conversation! I want to reiterate that deciding if an ANA result is HIGH or LOW, doesn't have anything to do with deciding the ANA result is IMPORTANT. Whether or not the ANA means there is autoimmune disease is completely dependent on 1. your symptoms 2. your other labs (liver, kidney, anemia, etc). Regardless, getting a positive ANA test result can be scary and I applaud you for doing your own research!
@@vegangrepresent4140 I hope mine will become negative. Stays positive for past 4 years. How often do you do blood work for it to go away. Some people say diet helps.
My ANA and other autoantibodies are postive and i have severe fatigue that my doctor keeps telling me is a figment of my imagination. When my ANAs are higher, the fatigue is worse, when they're lower, it's better. I'm sick of this bullshit. I need my doctors to tell me they don't know what's going on instead of making it a psychosomatic condition simply because their knowledge isn't there yet.
I had actually asked my rheumatologist to get another ANA just out of my own curiosity to see if the numbers went up. And she said the same thing you said. It’s not needed. “Once it’s positive it’s positive”
I just tested positive for ANA and began to cry because I googled it (worse mistake) I have a whole life ahead of me and don’t want anything to happen to me. I will be seeing an endocrinologist soon. Thank you for this video :)
@@savinkunwar3665 I'm positive with no symptoms of any autoimmune disorder. Scheduling another blood draw to further investigate why it's positive. As she says, you shouldn't sound the alarm right away.
30 y.o male here. For years, I have been complaining to my doctor about these bizarre symptoms which have now worsen excessively. I have good weeks and horrible ones. Fatigue beyond belief, thinning hair (you can see my scalp and balding does not run in my family). I've been sick 5 times this year and getting random low grade fevers. I have had swollen lymph nodes in my neck and groin. My blood pressure drastically began to spike despite my daily workout routine which I cannot physically do for weeks at a time now. My ANA came back 1:160. My new PCP was concerned because it's less likely in men and said this teiter would be higher in women since they naturally have significantly higher values. Waiting for my rheumatology appt in January. I've distanced myself from Dr. Google so I can stop driving myself nuts. Thanks for your video!
I found out my Ana was positive. I went to the ER this month for pneumonia. This came out of the blue. I went to my primary doctor, and I requested to be tested for RA. In my younger years, I was diagnosed with burtitis in my shoulders. Now that I am in my glorious 50's. My hands would flare up.. I couldn't open up my hands. My hands will stay red in the palms also. I did my own research in order to ask to be a test for RA. I do have a rheumatologist appointment this month as well. I am speaking for myself. I personally want to know if I have an autoimmune disease. I am not scarce of the diagnosis. I have learned to deal with life on life terms. I am a caregiver for my father , who has sarcoidosis since 2017. I advocate for his care at the VA, and I will definitely advocate for my own health. ** Sending positivity and love from Texas to everyone.
Hello my mom used to experienced the same where her hands would flare u. Her palm turns red and becomes hot and fingers can't grip things properly. She has SLE.
@@misisnijimin same here! My palms also swell around the base of my thumbs and I am losing my fine motor skills. I just had positive ANA but negative ENA test for Lupus. I have heard you can still have Lupus with negative anti DS NA (may have the letters wrong). I am waiting on my Myositis panel to come back and other tests. I have had kidney issues, fatigue, major weight loss, vascular issues, numbness, rash (not butterfly rash) but small red spots all over chest and neck after hot showers and in the sun, light sensitivity, I could go on forever. Do you know if your mom had any of these symptoms?
@@nopressurenodiamonds5566 mom has severe hair fall during flare ups. She used to have terrible and prolonged headaches, tiredness, arthritis and so on and so forth. Btw, mom's 2 other siblings have auto immune disease. Her brother had kidney transplant 15 or more yrs ago while her sister started to have severe arthritis. Common symptom they have is arthritis. Just to share I think my mom by far is one of the longest living SLE patients in Philippines, she is now 70 yrs old. She had ITP when she was 10 then progressed to SLE when she was 15. Her kidneys are still thriving even if 50 yrs of her life she was taking steroids. I can go on and on about her medical history. I hope this somehow helps someone.
Maybe it depends on the doctor but the ones I've seen have written me off. My ANA is always very high, speckled & homogeneous pattern along with shoulder joint pain, clavicle pain (swells), chest pain, red knuckles and finger joint pain (so bad even flipping a light switch hurts), extremities turn white from cold, raised rash across nose and cheeks, sores in nose and painless ones in mouth and chronic anemia. But hey, nothing wrong there because some other tests didn't come back positive, so they don't care. They only treat test results, not the patient and their symptoms.
That is terrible of your doctors. You have a lot going on . I’m surprised they aren’t listening to your symptoms. They are very classic ones and many that seem to be associated with Lupus. Hope you get someone to listen to you.
My ANA test a few days ago showed over 1:1000, and I do not have lupus or vasculitis. My thyroid is perfect, vitamin D levels are good. I am worried about the test result, I am looking forward to seeing a doctor and hearing her opinion...
Hi Dr. Ortiz, I received a positive test for "ANA" and "SCL-70" several weeks ago and the earliest I can see a rheumatologist is in 2 months. I definitely went down the internet rabbit hole (even reading random medical studies) because I was given no information from my PCP about what these test results mean. I stumbled upon your channel and it has been really really helpful in providing perspective and sound medical advice for people like me who are left in limbo. Just wanted to say thank you.
@@carlyrn2005 Hi Carly, my appointment went well. It was a long one. Finding a doctor you trust and feel confident in his care has made a big difference. Wishing you the best.
Peaches, were you diagnosed with systemic sclerosis? I’m asking because I have not seen the rheumatologist yet but my ANA and SCL-70 were positive also.
I was tested +ANA on Friday and I had no idea what it was until I did a google search, it frighten me. I found this video and it was the same information they left on voicemail but I do get scared. There has been diseases in the family but that is due to lifestyle choices, which can be changed. Thank you.
My I had 4 ANA tests, 2 positive and 2 negative, and it's extremely frustrating. My DSNA was higher each time. 200 is a normal value, and mine was 280 this time around. This has been going on for over 3 years. Nobody would do anything until I developed skin problems, major eye issues, and vessel weakness. My fingernails now get purple in the cold. Im anemic, and my vitamin D levels were almost non exisistant. I finally went to all these other doctors (eye doctor, vien specialist, etc.) with all their collective data being sent to the rheumatoid doctor. She declated I have Lupus. She repeated all the labs from a year ago, and it's off the charts. I'm confused because I explained how exhausted I was and how my joints hurt. Why not start treatments sooner? I did get a second opinion 6 months ago, and he said it was all in my head, lol. I love to show him my blood work now.
I've been living for the past 26 years (after seeing numerous medicos) with the assumption that I had Fibromyalgia. Then I saw a new GP who told me after a positive ANA titre of 640 that I had Lupus SLE!!! He sent me to yet another rheumatologist who said..no you definately have Fibromyalgia. After much discussion between them the GP said you have Lupus but you mighthave a little bit of FM!! The rheumatologist then said no you definately have FM but you might have a little bit of Lupus!! Seriously????? Just live your life as well as you can and dont dwell on the negatives. To the doctor in this video thankyou for the information you are the first person I have heard say you can have a positive ANA but not have anything wrong...I wish...but at least you show it can be caused by anything.....
I would love to hear a doctor talk about the frequency of someone with an autoimmune disorder having a negative ANA. Some rheumatologist rely completely on the ANA as if it is the end all, beat all test. I had a doctor listen to my patient history, ask 2 questions, perform a 2 minute cursory physical exam, and then tell me that my ANA was negative, so it wasn't a rheumatology issue. He seriously told me I may just have to learn to live with my symptoms without a diagnosis. I was dumbfounded. Even I know that not every person with a rheumatological condition tests positive. Some conditions have a significant percentage of patients who are ANA negative.
It’s a very interesting and somewhat controversial issue! And I’m sorry you had such a dissatisfying experience with your doctor. I probably need to do a whole video on the topic, as there is so much more to it than I can put in a response. The way I look at the specific ANA issue is we (the docs) always want to be as specific & precise as possible when giving someone a diagnosis, and when an ANA is negative, labeling someone as lupus may keep someone from continuing to investigate the problem and this is how misdiagnoses can happen. In my opinion, it is exactly these types of situations, where someone has continued symptoms & issues but yet their ANA (or other labs) are negative, where MORE visits with the doc, more investigating and more symptom diary-ing (is that a word?) are useful. Time and a watchful eye can show us so much about what may be going on. Thank you for bringing this up as I think it’s a great topic to explore and hang in there!
@@ConnectedRheumatology I think the biggest problem is that no one is doing the investigating. At least they aren't investigating the whole problem. The GI doc is looking at the GI symptoms. The gyno is looking at reproductive issues. The hematologist is looking at clotting concerns. Even the PCP is really only looking at the immediate problem. No one is looking at the whole picture. My hope was that the rheumatologist would be someone used to working with systemic problems and actually take a step back and look at me as a whole human. I am working on trying to get to a different rheumatologist that my hematologist recommended. It's just getting insurance approval. That is a whole other conversation.
yes, in my opinion, the doctors do not look at you as a whole. Instead, they are picking you apart, giving you medicine for this and for that when there is actually a medication where one pill could correct the problem. take prednisone for example; I don't have to take 6 Tylenol a day and 12 Ibuprofen to get out of bed. When I was eating the Mediterranean Diet I was getting much better but i stopped because I need to be diagnosed, so I started eating like I used to. I bend too easy, I don't have inflammation, the list goes on. I want to get better but yet I want a diagnosis. So far I have fibromyalgia and trigeminal neuralgia. I believe I have lupus although they are reluctant to diagnosis the problem. Only way that can happen is eat and man it hurts. Can't wait til I can eat right again.
I really like this video, educational and to the point. Reassuring as well. Thank you Doctor!! I’ve read and commented on couple of peoples “worries” ANAs can be so confusing and scary, but it is not set in stone- you can have it negative all across , for years , and still have bunch of medical issues. I would like to remind some of you that many of these symptoms could possibly have something to do with B12 and B9 deficiencies. Although normal range in USA for B12 is 200-1100 pg/ml it is known that about 10% of patients with values between 200 and 400 pg/ml experience neuropsychiatric and hematologic abnormalities, inflammation, itching and skin problems, pain “everywhere” , headache/migraine with light sensitivity, hair loss, bone/joint pain, tired/weak/fatigue, abdominal pains, etc. Please do not assume anything. Have your doctor run B12 or B9 blood test. Do not just start taking B vitamins supplements !! they can be toxic for those who don’t need them. Hope this information helps someone out there before you go too deep into the rabbit hole. Don’t give up! You are the best advocate for your own health. Good luck to you all.
My test said ANA pattern cytosplasmic. Another result, said ANA Titer 1:80 , another said ANA screen IFA Positve, and the last said Estradiol 42H. Now I am very depressed thinking I may have a deadly disease. Especially after a chest xray in the ER that showed Mild perihilar interstitial opacities which could reflect pulmonary edema or infection. I'm about to have my first child after 15 years of trying and today I get this devastating news.
Hi did you find out what it was? I have same exact pattern of cytoplasmic which there is hardly any info on. I have been trying to get answers because I don't see the DR for 2 weeks. The only info I have found is that cytoplasmic pattern can be Lupus, Myositis, or auto immune liver disease. I do believe I read somewhere that the lung symptoms can be related to Myositis an inflammatory muscle disease.
I have same thing ! 1:80 cytoplasmic! Joint pain and feeling very tired all the time ! I was told cytoplasmic usually means it possibly came from a virus 🦠 ! I see the doctor in a few weeks!
@@reginaalear good luck keep me posted. I see my hematologist tues next week for some results and u/s, & booked to see a rheumatologist in june once done & finished with other testing. Do you have symptoms?
Hi - hope you are doing well- what were the results of your speckled ANA? A few months ago I was diagnosed with Sjögren’s with a positive SSA but ANA was negative. But now have a positive ANA with speckled pattern. But my SSA isn’t showing. Not sure what that means. Will find out next month.
I am confused. Live in the UK. back in 2000 i went blind temporarily, and for six years i had so many weird things happen. Finally i was told i had a nerurolgogical disorder so went private in 2007 to a nuerologist. He actually listened about my family history. grandfather had R.A. and parkinsons, grand mother R.A., my father had Lupus etc. so one of the first tests he did was ANA. Now this came back POSITIVE FOR LUPUS. I was kind of relieved actually as it explained a lot. I still have the letter with this diagnosis. I was then told i had to REPEAT THE TEST in SIX WEEKS, and yes you guessed it came back NEGATIVE. So back to scatching the head. OH also i found out i have photosensitivy and can not expose my legs to the sun as they turn a purple colour. my nuerologist stuck with me i had a ton of tests for MS, and finally in 2016 i was diagnosed with Primary Progressive MS. BUT HE DID SAY, one of the tests a lumbur puncture muddied the waters as something showed up which wasnt for MS or something i cant remember now, and thinks I did have Lupus or similar. Over the time I have had really weird things that dont match MS. I get terrible dry eyes, nose and mouth, occasionally i feel like i am flaring with a flu, my temp will raise from 36.4 to 37.4. Then suddenly go back to normal. I get pain in my feet so bad i could cry. over those years i have have had raised blood tests but no one takes any notice. My daughter has recently been diagnosed with Sorgrens. I am 71 now and been told through blood tests, i have ANEMIA THROUGH Cronchic disease (as folates etc are good), i have an issue with liver enzemys so being investigated, oh yes and in March i went into hospital with heart issues. I recently had a half body scan and they found granulomas in my lung. but told me it was nothing to worry about. So well i just have to get on with it. xx thank you for a good uncomplicated video.
Lok up dysautonomia, nerve system disorder which can affect your whole system but isn't an autoimmune disease. It's not familiar to most doctors though.
I have Sjogren's, fibromyalgia, osteoarthritis, and gout. My rheumatologist in AZ says I also have rheumatoid arthritis, the one in MN says I don't. It's frustrating..
😮 wish my rheumatologist spent more than 5 minutes with me or explain like this. I have MCTD, sjdrogrens, sle lupus, had endometriosis, had hysterectomy, has hashimoto had a thyroidectomy. That's at the top of my head. We retired near the beach and it takes months to 18 months for specialists..covid was bad in NYC and moved to the Jersey shore. Not enough Dr's. Sad many don't except patients. Thank you 😊 ❤
I had a call from my doctor this week to tell me my ana was positive, along with other signs my hair is thinning and I have constant uti,s.she's referring me, not sure how long that takes here in the uk ,glad I've found your videos so I can find out more. Thank you.
Nuclear speckled Ana here. My hair was falling out like a horror movie. I have been having over 25 symptoms that come and go over the past years. Ib have the worst nerve pain and I have my skin breaking. I just found out my never has MS. I have seen all my mri the were looking for herniated buldging disc. They don't tell me what the white matter is all over my brain the big clump in my chest the polyps in my nose the extreme nerve pain memory loss I can't even think straight. I am told I have a mixed connective tissue. I'm scared it's cancer. I am thinking about all the things I've been going through. It's ruining my whole life. I just want to know what's wrong with me. 🥺
I've have fibromyalgia, CFS, depression, anxiety, ibs-c, chronic neck/back pain, migraine/headaches, tremors, insomnia, etc. Oh and my hair is starting to shed a lot again. Was dx in 2018. Current rx are Prozac, Linzess, omeprazole, & tramadol as needed. Last wk I had lab work done-ordered by psychtraist & neurologist-- the past few weeks my pain and fatigue has been really kicking my butt. Yesterday my lab ANA ifa is positive and speckled 1:80. I emailed my psychtraist-also a PCP-- about these labs haven't got reply yet. Given my documented symptoms, would my results mean I need to follow-up with more testing with my rheuma Dr? I don't think it's lupus cause I've never had a butterfly rash.
You certainly have a lot on your plate and I can understand why your doctors were searching for a possible unifying diagnosis that may explain all the symptoms you have. An ANA of 1:80 is considered very low and the decision to move forward with more testing will really rely on the discussion you have with your doctors and/or a rheumatologist. Even without a butterfly rash, this may be an opportunity to get a fresh perspective on your symptoms from a rheumatology stand point. I can't tell you you should or shouldn't get a rheumatology consult, but in my experience, many doctors will prefer a rheumatologist weighs in on results such as yours, which I believe is reasonable. Good luck!
@@ConnectedRheumatology thank you. Yea, I was thinking I need to just follow up with my rheumatologist. My neuro dr was the one that ordered the tests. I haven't heard back from him yet, called ystrdy to see if he got my labs. But, those labs got mixed up with other labs my psychtraist ordered. So waiting for neuro to get a copy.
My ANA is negative but I have everything else pointing towards Lupus. Even the steroid treatment they tried has improved my joint pain. I have been able to walk this week normally. Bone scan is clear. Feeling a bit flustered.
I had a negative test a year ago and it recently came back positive. I only got a partial result, waiting another week for the rest, but i got tested again when My eczema suddenly got worse
So say I was in a bad car accident and I have a lot of pain and inflammation I also have costochondritis and I end up having an ANA positive test do I really have an autoimmune disease or is this positive test picking up my inflammation from my car accident??
please get to a trauma therapist so you do not ed up getting what you dm't want. I am not a hypo....would never want to be limited with these. Please work on the anxiety, possibly past abuse. Doctors should not be fueling this making you worse
I recently came back positive for ANA ( my labs read positive) it read 1:40 homogeneous. The rheumatologist told me I was negative because I wasn’t positive “enough” this doesn’t make sense to me. I always thought there is positive and negative. I realize that the minimum for lupus is 1:80 ( rheumatologist told me) but I felt when she told me this, she was basically dismissing me.I do have symptoms and many of them for many years and when I say symptoms i mean symptoms of any autoimmune disease. It’s frustrating. No lymes and no RA years ago. I have spent years hearing it’s in my head.
I have a positive ANA test 1/1280 granular type, but no symptoms (except for a bit a eyelid eczema) … I have seen a rheumatologist who says it could be a false positive or may have been caused by the COVID-19 vaccines. We will do more tests in 3 months and see what they reveal. In the meantime I normally would get another COVID-19 shot before Christmas….. should I or not? If I do have an autoimmune disease, it would be best to get One, but if my ANA is positive because of the vaccines I would think I should not….. both my family doctor and my rheumatologist are away from work and won’t be back until january. Your advise would be much appreciated
I had a positive ANA and when my NP tried to get me in to a rheumatologist, they were told the number from the ANA wasn’t high enough 😩 No appointment! I’m living with it but I understood what you meant in the other video when you mentioned isolation. I have life changing fatigue and … skin rash raynauds and GA. Burning and discomfort in my knees. I’m living with it because they all basing on labs rather than my symptoms too…😔 Would it help to get in with an internal medicine doctor?
Thanks so much for making this video! I have something called Alpha gal-it's a tick borne disease that cause you to be allergic to all red meat and pork (all mammalian meat). I had blood work done by my dermatologist because my hair is thinning. My ANA came back positive. Not sure if there's any research on whether or not people with this allergy (it's actually a fairly new disease but allergists are thinking it's an autoimmune disease too) and having a positive ANA.
Should you have a Yellow Fever vaccination when you have a positive ANA and all the symptoms of RA and Sjögren’s syndrome? I’m scared and need to know what a doctor has to say about this.
Hello just curious after losing a few eyebrows hair and then tested positive for ANA, is there any connection to a positive ANA and recurrent yeast infections I've had for years? Some reason I think they are related.
I know it can be very frightening to find out about an ANA. Just remember, it's just a test and first step to finding out how to get you feeling better. Hang in there!
Omgggg dr🙏🙏🙏🙏 I barely saw your other video and commented hoping getting a point of view my primary doctor scares me to dead cause she told me how my life will change till I went to the rheumatologist and exactly what you just tell on your video that's what the rheumatologist said you said it not because you have an anna positive means you have lupus plus rheumatologist did a blood work and came negative I went for a follow up with my primary doctor for the rheumatologist test and she said mmm nope this are not the test they had to run for lupus all I remember it was with c3 c4 and something else everything negative and she ended it up telling me to go to another reumatologysist because once I have positive anna means I have lupus she said it like this once you positive on anna is positive 😭😭😭 so I'm sad I have my second opinion next comming week
Hello. I was just told by my neurologist that my ANA antibodies are positive with Homeogeneous Pattern 1:320. A lot of my protein levels are flagged as high with C3 serum flagged as high also. I have a lot of the symptoms like hair thinning/ loss, joint pain, muscle weakness in arms and legs, itching with no rash, electric shock down my neck when I move my neck, cog fog, cramps and spasms all over my body with tingling and twitching, tremors after I lift something, fatigue, body aches, burning sensations in my joints like they feel warm too the touch sometimes, and last month I had some difficulty walking and with balance issues. I told my neurologist that I believed my symptoms where related to Multiple Sclerosis but after my blood results she referred me to a Rheumatologist. I have an appointment with them on July 11 and I'm nervous because there is lupus in my family ( my aunt and my cousin on my mom's side have lupus). I don't know about my dad's side. I just can't wait for my appointment but thank you for making this video 😌
@@ED-he7ts Hello! So my Rheumatologist basically suspects I have Fibromyalgia. I've been tested for everything else all normal/ negative. But I recently tested very high with my inflammation markers (CRP and ESR) but I don't see her until November for my follow-up. Idk what the inflammation is from or if it means I most likey have Fibromyalgia. I'll ask her when I see her in November. She prescribed be a med too I'm taking but isn't helping so I stopped taking it. At least I have a name to a condition to work with now. Thanks for asking 😌
I have so many lupus symptoms and I was convinced I my ANA would be positive & it actually came back negative. I’m confused and quiet frustrated that I’m now at square 1 trying to figure out what is wrong.
What if your ANA is homogenous, rash on face and elevated liver function extreme fatigue? And you mentioned rheumatoid arthritis, but what if you were told you have psoriatic arthritis 6 year before?
I have a speckled pattern of 1:80 and c3 of 168. I went in because I have a myriad of symptoms that come and go and are extremely severe when they come. When I was tested, I told the doctor I was currently feeling really good, yet my doctor, nay, one of his nurses called and pretty much told me there is nothing wrong. My body is SCREAMING at me, yet noone will listen even when there are markers and a strong family history of autoimmune diseases, such as lupus, RA, and more. The markers may be low, but they are still there. I have other autoimmune issues (vitiligo, granuloma annulare, and hashimotos), but my hypothyroidism is under control, yet symptoms persists in a flare form. I am so upset and feel like just giving up. I feel like my body is telling me something is up, and I don't care about treatment or anything like that, I just want to know what is going on so I can do best by my body. At this point, 30 years old, 2 little ones and hoping for more, I now know I will likely never find someone to listen and I will just have to take care of my self and realize it is what it is when I flare. I will always long to know what is happening to me, but I need to let go and give up on trying. I do appreciate your videos though! Thanks for sharing your knowledge.
Exact same position. 180 Ana speckled, 30 years old and feeling like an old woman! Did u ever get a diagnosis?? I feel also very frustrated. Extreme fatigue, terrible psoriasis, stiff sore joints (now affecting my toes leaving me u able to walk), swollen painful lymph nodes for 6 years, cystic acne, dizziness. The list goes on. I’ve found I’ve really connected with likeminded people through YT, so I apologise if I’ve spilled too much, it’s just nice to relate and hear the stories of others which sometimes gives me hope.
@@homegirl4155 oh, no worries at all! I can totally relate to this and am so sorry you are experiencing these symptoms! I cloth diaper and just came back down from spraying out diapers and every time I do it I am in excruciating pain, but I am determined to not let whatever this is stop me from doing things I enjoy, or things I believe benefit my children. It has effected every single part of my body- head to toe. From thin hair to headaches, every single joint and bone ache, my stomach, right down to the toe pain, and I also get pain throughout that seems to correlate with lymphnode areas as well (which I didn't realize until my husband pointed it out one day). I don't talk about things to do with my health to others often at all, but just want you to understand you definitely aren't alone. At 30 and 31, we definitely should not be feeling this way. I still have no answers and seem to be losing feeling in my hands and experiencing joint pain more and more frequently. I have give up on figuring it all out sadly, but I just can't find anyone that will listen or hear me out. Often when I am trying to explain my symptoms, I just get cut off anyway.... hopefully you are able to find some answers someday! I know what a frustrating journey this is, but just keep hope and don't give up on the things you love despite the pain! I have definitely made it my mission to move past the pain (at a slower pace than previously of course) to make sure I am still doing those things that bring me joy. For me it is art/crafting and playing outside with my boys/hiking. Don't give up- you got this! Remember to find your joy and peace and realize that this make really suck, but it doesn't define you and you are more than your illness/pains!
@@justjahneah2462 hey Jahneah- thanks so much for your encouraging words and empathy. I’m so happy to hear you are trying not to let it get in the way of your life, whilst I understand it is physical and can be so damn difficult and depressing. It isn’t normal, and like you, my concerns are falling on deaf ears. From the snooks you described it sounds very generalised and concerning. Have they ran a myriad of blood tests? Also, not to be nosey, are you from the UK? I’ve noticed British doctors are very reluctant to do referrals of any kind these days. At my most recent meeting with my dr I was very calm and outlined that I’m concerned that my lymph nodes especially have been swollen for a number of years. Causing great pain. My MRI confirmed reactive nodes, yet I. His notes he said I was erratic and has recommended psychiatric support for me. I’m not one to beat the gender drum, but I couldn’t help but feel because I was a woman he was quick to dismiss it and put it down to psychosis for me. Would u agree this is the case for you? I’ve also taken to paying privately for blood tests though they are so damn expensive! Again, thank u for your kind words. Some days are harder than others and I’ve been reading so many comments on YT about people suffering general symptoms without any conclusive answers. Mentally it’s so hard and the idea of the rest of my life being mired in pain... absolutely bleak. Thanks again!
The hair loss has me so sad because I was trying to grow my hair out again n every time I try I have a flare up and my hair falls out so I’m going to get some help
Positive ana, joint pain such as painful DIP joints (feels like OA), painful tendons throughout the body, knees, had multiple trigger fingers, a bit of morning stiffness, every other test negative (examples: anti ccp, crp, rf etc). I am 18 yrs old, docs have no idea. Not able to do MRI. Nsaids help a bit, but paracetamol does too. Every joint has an insane amount of crepitus. Hyperextension in some joints. I did overtrain a year ago and thats when it started. What do you think this sounds like? PsA? RA? Something else?
Hey, sorry you didn't get an answer. I was recently diagnosed with rheumatoid arthritis, then my diagnosis got changed to fibromyalgia as rheumatoid arthritis doesn't have the soft tissue and widespread body pain im experiencing associated with it. Thats what the rheumatologist told me....and also, i dont have joint swelling even though ive seen that not all RA sufferers have swelling.. Anyhow, I also told the rheumatologist that I also have a tremendous amount of crunching going on, which is technically crepitus as you so correctly mentioned, especially in my upper body, and I moved my shoulders and my chest around so she could hear it, and she told me it was nothing to worry about, that it's normal.. I didn't press her on this issue because we were short on time by that point, but this noise is a new manifestation for me and it has only been going on since my first symptoms of this rheumatoid arthritis or fibromyalgia, (whatever the heck it really is), started which was about five months ago and was most likely triggered by my second covid exposure. I'm only telling you this because I was told it's normal, but I don't feel that it is, so if someone tells you that it's normal, especially if it manifested all of a sudden on you like it did me, you might want to press the doctor a little bit further, unlike me.. I am going to bring it up at my next appointment with her which is in 2 months unfortunately, because I am taking expensive joint supplements for the situation that I don't want to have to pay for any more if they're not doing any good so I need to ask about that also, about whether these supplements are really helping my joints or not. Good luck to you and I hope you get the answers that you need and that you are well!
I have had a positive ana for years and have severe fatigued, aches different issues migraines- and have a positive dsdna but low level ? 12 I’m just frustrated because it’s flagged as positive even if low - there’s a reason of charts.I have Issues going on and been told fibromyalgia. Thoughts ?
Could you please answer my question? Can ANA test (IFA, 1/80, IgG) show a response of the body to a metal implant (titanium screws on the jaw)? Is an autoimmune/autoinflammatory response can be induced by metal adjuvants and may they cause a positive ANA test result? Or, could we say a negative ANA test means there is no response of the body to the metal (titanium) implants?
@@jodybogdanovich4333 It seems there is a correlation between titanium dental implants (allergy or metal toxicity) and autoimmune disease start and aggravation. Titanium alloys toxins are closely associated with the neuroendocrine and lymphatic system, or itching or urticaria problems. There are so many high-ranking academic articles on this topic. When have your titanium implants been implemented? are they new? I hope you are getting well.
@@ank6043 Thank you. I had jaw surgery in 1995 to correct an overbite due to a congenital jaw deformity. I have a total of 8 permanent screws. So not the same as dental implants per se.
@@jodybogdanovich4333 Thanks for your reply, the point is metal adjuvants (the location or source is not important, they may be implants or clips or screws), and the body may see them as antibodies to react. Please search "Diagnosis and Management of a Hypersensitivity Reaction to Titanium-Containing Surgical Clips: A Case Report". I hope you are getting well.
@@ank6043 I will look that up. Thx. My autoimmune psoriatic arthritis was diagnosed 3 years ago, after 3 frustrating years of failing health. Cosentyx is helping pain and stiffness but fatigue, low-grade fevers, and other symptoms are worse. I had one positive ANA IFA with speckled pattern recently so my rheumy is retesting but sending it to a medical school lab (University of Washington) because of higher sensitivity. I also am having a repeat lung scan in May to follow up on a nodule. Always something, it seems. I do have a great team of doctors, though. Hope all is well for you.
I had flares initially i thought it ws just eczema. Defaulted my derm appointment because they just cant solve my prob. Currently had so bad flares and actually had bunch of connecting dots of autoimmune disease symptom specifically SLE. But i just dont know how to tell the dr. To refer me to rheumatologist. :(
Hi I'm p anca positive mpo negative have copd emphysema & heat disease I have a hole in my nose septum was in hospital for a week with blood in my lung & nose bleed for 3 day I exhausted all the time my whole body hurts 1 doctor said I have GPA now..... Now I don't have it not seen enyone about it please help
Today I was told that I am positive for Anti-Ro/SSA but don’t really understand it and can’t find much information. Is it part of ANA? As when I am searching for it ANA is coming up like your video? Would appreciate answer. I am not sure what specialist would be the best to talk to
Hey Doctor. Got a question.. But first of all Ty for the info Video. I'm from Germany after years of different symptoms.. Like face rush, psoriasis, joint pains, bad fatigue, high phototoxic reactions and more.. SO, my doctor ordered an ANA-TEST and it came back POSITIVE. Titer 1:400, humogen. The labor recommended to do the ELISA. And ENA was negative..!? Years later I still have symptoms and working on finding out what's wrong with my body. But is it common that ANA is positive by 1:400 and ENA negative?
Hopefully you can answer this question. If you were on mycophenolate (Myfortic, immunosuppressive med) for over 5 years for an unrelated reason can can mycophenolate affect your ANA postive speckled 1:160 Reflex test?
Hi doc, i got ana test recently which is 1:160 speckled dfs70, my issue started with right elbow, since that time my pcp thought it’s golfer elbow as it lasted over 2 months, but then I developed a symptoms in both arms, felt join pain in my knees. Now the pain is really moderate but whole my body is crunching and feels kinda weird, overall feeling okay! Waiting for rheumatologist appointment but it can take months in my area;( I’m kinda scared of lupus or arthritis! Praying for healing!
The wait to get an evaluation by a rheumatologist can be maddening, hang in there! As I'm sure you researched, the DFS70 pattern on ANA testing has NOT been associated with lupus and in considered a way of telling if the ANA means anything or not. While you are waiting to see the rheumatologist, try to see if your joint pain is associated with any daily habits, sleep, diet, certain exercises. Also, be mindful if the pain is more IN the joint or AROUND the joint, as the presence of tendonitis can clue in the rheumatologist to other conditions. The wait to see the rheumatologist can be frustrating, but it does give you time to hone in on what your symptoms are, what triggers them, what helps them, etc. All this information will help the rheum get to a diagnosis faster. Hope this helps!
Did you ever go? What was the issue? I feel like I have the same thing. I have a positive Ana nuclear dense fine speckled. Should I even see a rheumatologist?
Hello so they think I have lupus both grandparents on both sides have it . I have hashimotos and celiac and Anemia along with many more and I had positive ANAs before when diagnosing my other disorders but now they are looking for lupus it’s saying negative but my doctor is positive I have it too he said it might be because I’m not having a flare right now .. I’ve also had pneumonia for 9 months and severe asthma so I’m on a shot called fasenera for e asthma and he said that shot can be messing with my test results?!
My dfs70 was 78 u/mL, my ana titre IIF 640, everything else was negative. Not sure what to do with this? Does it mean I have dermatomyositis? I have redness on cheeks which the derm said i have rosacea this was 4 yesrs ago. I did my ana tests a few days ago.
I had a positive ANA and SCL70. I have some GI issues but none of the other systemic sclerosis symptoms. What are the chances of the highly specific SCL70 not giving me a systemic sclerosis diagnosis?
i have been having bad anxiety, brain fog and lightheadedness for a year. I recently did a very comprehensive blood test the only things that came back not optimal was my cholesterol and i tested positive for autoimmine my Titir was 1:320 and pattern was nuclear dense fine speckled- i read that pattern means i do not have a autoimmune but just have some type of inflammation going on.. i am so confused on whats causing these symptoms. My family says its my anxiety causing this but if anyone can help let me know
Hello Dr. Ortiz, I have a high positive ANA titer 1:1280 Speckled and Negative DsDNA. the reason for that test was because of the severe sun allergy started out of the blue from last year on my hands and neck. So my Doctor decided to do these screening tests. My other markers for everything were good and I don't have any other symptoms except the sun rashes which at the moment doesn't happen because here in Australia is winter and during winter no rashes happening. After that I saw two dermatologists and one rheumatologist and none of them couldn't figure out what is the real issue or why my ANA was so high. Would you please help me to understand the possibilities. I can provide my test results if you need them. Thanks Ali
That sounds like Lupus! It can cause a butterfly rash on the face or bumps and people who have lupus are more sensitive to the sun! That’s one of the more common symptoms
Hi Samantha, thank you for your reply. I don’t have any butterfly rashes or any other typical lupus rashes so, what are the other possibilities? Thanks Ali
My recent Ana test from my rheumatologist came back as 13.1 value.However i was referred to a rheumatologist by my primary care doctor because i had a positive Ana test with my Pcp.
I had my first reumatologist brush it off with the homegnous pattern. Then I lost my right foot, wasn't feeling well and my primary care Dr said there is something autoimmune going on. Now I still have the homegnous pattern and centromere pattern (which is the new one) I was told I have sjogrens Gi Dr said it's the reason I struggle with food??
My Ana was positive, the only other thing that was wrong in my bloods was tsh of 16...my Dr just said in the future I might develop an autoimmune issue... I'm 48 and disappointed that's all he said... Can the Ana be because of the tsh or should I push for more tests for other things
Hello doctor! My dads doctor accidentally checked ANA blood test on his routine blood test and surprisingly he had a positive ANA. But he says he feels absolutely fine. And they also tested him “FANA Staining Patterns-Speckled Pattern” his results were 1:80. What does that mean can you please give us more information ? Thank you
An ANA test of 1:80 is considered very low and given that he feels fine, I would agree with your dad’s doctor that it’s most likely OK. The likelihood of having a “false positive” ANA test as we get older goes up, so finding a +ANA in an older individual without any symptoms is more common than you would think. I would recommend he keep his follow-up appointments with his doctor and let him know if he starts developing any different or new symptoms.
@@ConnectedRheumatology is there only like specific numbers for titer? 1:40 , 1:80 etc ? I mean can a “ANA negative” person have a titer 1:80?? Does everyone have a specific titer in them? Or it’s just people with ANA POSITIVE ? I hope you know what I mean? Thank you again
The ANA is usually only reported as titers or numbers but a result less than 1:40 is considered "negative." Usually a lab will only report results of 1:40 or higher. If a result is 1:80, technically it is considered "positive" as it is higher than 1:40 but whethr or not is is important is still up for interpretation by the doctor based on other labs and how the patient is doing. Hope this helps!
@@ConnectedRheumatology I’m sorry last question. Since my dad does not have any symptoms can it be a “false positive” ? If he tests for ANA after some time, if everything is normal with him , do u think it might come back negative again? By the way he has high TSH levels could that cause ANA positive? And he has low Vitamin D level, & high cholesterol. Thank you so much for answering
Can you please let me know if Anti cardiolupin is negative, Anti nuclear antibody is negative, can a person still have lupus anticoagulant as positive??
Hi Dr my ANA is positive pattern-NUCLEOLAR & CYTOPLASMIC SPECKLED is 1:320 & RA & ESR is negative & i have pain in elbow, knee, back, ankle,swollen fingers in morning & my mom is having arthritis but still i didn’t got proper answer from dr as do i have arthritis or not ? Can you please help me out with this ?
My RA is concerned cuz in a month my inflammation sky rocket do you know the reason also i get a lot of bruises my RA says it's not lupus relax but i think it is i also have sjogrengs and fibromyalgia
My ANA was positive for lupus buy I don’t have any symptoms of lupus and my Dr is going to do the ANA test again I don’t know I’m so confused thank you Dr for the explanation!❤️
I had positive ANA. Was told in 1994 I had Lupus. In 2017 I got extremely sick. Pain, vomiting, couldn’t eat etc.! In 2018 I was diagnosed with Celiac Disease. My ANA is now negative.
What made it turn negative?
@@CrazyBunniePanda celiac disease is an autoimmune disease. So when I started gluten free diet it changed. Now it is negative. The fact that celiac disease was controlled is in my opinion the reason why. I AM NOT A MEDICAL PROFESSIONAL. This is purely my opinion. Timing is too coincidental.
Diagnosed with Lupus in 2011 after positive ANA in 2008 and 2011. with on-going health problems to date . Now in 2024 my ANA came back negative . Nobody can answer WHY !
I wish all providers were as kind, informative and caring as you are!
I’ve been panicking about my ANA results over the past year and I’m glad I found your video which helped calm me down. Thanks 🙏🏽
I
found out i got rhuematoid arthritis... and it s hit my
hands.... wrists...this stinks....Im 64 tho...ur lucky so far
It wasn’t scary for me… it was validating. I just hope the rheumatologist, when I get an appointment, doesn’t just say to lose weight and blow me off like I have been for 10 years. Thank you for the video.
I agree my ANA is always positive but, my diagnosis is lupus,fibromyalgia,and all this was diagnosed by my primary doc. I went to see a Rheumatologist and he told me I was overweight and lazy and just needed to exercise and stop being lazy. I went home that day in tears and so depressed I couldn’t bring myself to see another doctor for months and lived in so much pain I finally ended up in the er with my sed rate so high the nurse was alarmed. They gave be a course of steroids and cured my flare for the moment. I hv never been to another Rheumatologist
Girl same!
Hello! I'm excited this has started a conversation! I want to reiterate that deciding if an ANA result is HIGH or LOW, doesn't have anything to do with deciding the ANA result is IMPORTANT. Whether or not the ANA means there is autoimmune disease is completely dependent on 1. your symptoms 2. your other labs (liver, kidney, anemia, etc).
Regardless, getting a positive ANA test result can be scary and I applaud you for doing your own research!
🙏 thank u for ur explanation. My dad got this test s done. And he doesn’t even take time to explain too me his findings.
What about getting positive ANA then negative then positive etc. Mine changes
I have Antiphospolipid syndrome and my ANA TEST came back positive.
@@vegangrepresent4140 I hope mine will become negative. Stays positive for past 4 years. How often do you do blood work for it to go away. Some people say diet helps.
@@vegangrepresent4140 I believe she addressed that starting at 5:17
My ANA and other autoantibodies are postive and i have severe fatigue that my doctor keeps telling me is a figment of my imagination. When my ANAs are higher, the fatigue is worse, when they're lower, it's better.
I'm sick of this bullshit. I need my doctors to tell me they don't know what's going on instead of making it a psychosomatic condition simply because their knowledge isn't there yet.
I had actually asked my rheumatologist to get another ANA just out of my own curiosity to see if the numbers went up. And she said the same thing you said. It’s not needed. “Once it’s positive it’s positive”
I just tested positive for ANA and began to cry because I googled it (worse mistake) I have a whole life ahead of me and don’t want anything to happen to me. I will be seeing an endocrinologist soon. Thank you for this video :)
Oh no! I know it can be so scary! I’d recommend taking it one step at a time and have your questions ready for the doctor. Good luck!
@@lizortiz7249 Thank you so much!
How are you now same here positive with no symptoms did you get next test?
@@savinkunwar3665 I'm positive with no symptoms of any autoimmune disorder. Scheduling another blood draw to further investigate why it's positive. As she says, you shouldn't sound the alarm right away.
@@cwoza5 does your mono positive if you have mono positive your will show false positive thats what my doc told me
30 y.o male here. For years, I have been complaining to my doctor about these bizarre symptoms which have now worsen excessively. I have good weeks and horrible ones. Fatigue beyond belief, thinning hair (you can see my scalp and balding does not run in my family). I've been sick 5 times this year and getting random low grade fevers. I have had swollen lymph nodes in my neck and groin. My blood pressure drastically began to spike despite my daily workout routine which I cannot physically do for weeks at a time now. My ANA came back 1:160. My new PCP was concerned because it's less likely in men and said this teiter would be higher in women since they naturally have significantly higher values. Waiting for my rheumatology appt in January. I've distanced myself from Dr. Google so I can stop driving myself nuts.
Thanks for your video!
Just something you might want to have checked out is your Vit D levels. It can cause a ton of havoc on your body.
How did you go? My son has similar symptoms. High speckled ANA
I found out my Ana was positive. I went to the ER this month for pneumonia. This came out of the blue. I went to my primary doctor, and I requested to be tested for RA. In my younger years, I was diagnosed with burtitis in my shoulders. Now that I am in my glorious 50's. My hands would flare up.. I couldn't open up my hands. My hands will stay red in the palms also. I did my own research in order to ask to be a test for RA. I do have a rheumatologist appointment this month as well. I am speaking for myself. I personally want to know if I have an autoimmune disease. I am not scarce of the diagnosis. I have learned to deal with life on life terms. I am a caregiver for my father , who has sarcoidosis since 2017. I advocate for his care at the VA, and I will definitely advocate for my own health. ** Sending positivity and love from Texas to everyone.
Hello my mom used to experienced the same where her hands would flare u. Her palm turns red and becomes hot and fingers can't grip things properly. She has SLE.
I also got my ana positive... Now I'm going for ENA.
I have severe Hair fall, all-time headaches, tiredness And my colour turns pale. And short-term memory loss
@@misisnijimin same here! My palms also swell around the base of my thumbs and I am losing my fine motor skills. I just had positive ANA but negative ENA test for Lupus. I have heard you can still have Lupus with negative anti DS NA (may have the letters wrong). I am waiting on my Myositis panel to come back and other tests. I have had kidney issues, fatigue, major weight loss, vascular issues, numbness, rash (not butterfly rash) but small red spots all over chest and neck after hot showers and in the sun, light sensitivity, I could go on forever. Do you know if your mom had any of these symptoms?
@@nopressurenodiamonds5566 mom has severe hair fall during flare ups. She used to have terrible and prolonged headaches, tiredness, arthritis and so on and so forth. Btw, mom's 2 other siblings have auto immune disease. Her brother had kidney transplant 15 or more yrs ago while her sister started to have severe arthritis. Common symptom they have is arthritis. Just to share I think my mom by far is one of the longest living SLE patients in Philippines, she is now 70 yrs old. She had ITP when she was 10 then progressed to SLE when she was 15. Her kidneys are still thriving even if 50 yrs of her life she was taking steroids. I can go on and on about her medical history. I hope this somehow helps someone.
Maybe it depends on the doctor but the ones I've seen have written me off. My ANA is always very high, speckled & homogeneous pattern along with shoulder joint pain, clavicle pain (swells), chest pain, red knuckles and finger joint pain (so bad even flipping a light switch hurts), extremities turn white from cold, raised rash across nose and cheeks, sores in nose and painless ones in mouth and chronic anemia. But hey, nothing wrong there because some other tests didn't come back positive, so they don't care. They only treat test results, not the patient and their symptoms.
That is terrible of your doctors. You have a lot going on . I’m surprised they aren’t listening to your symptoms. They are very classic ones and many that seem to be associated with Lupus. Hope you get someone to listen to you.
Maybe you should see an integrative doctor Andy. I know in Australia our GPs are pretty useless these days. Sadly.
B1 deficiency and oxalate overload
Diagnosed with Sjogren Syndrome in 2010, Rheumatoid Arthritis, Fibromyalgia, etc. etc.
My ANA test a few days ago showed over 1:1000, and I do not have lupus or vasculitis. My thyroid is perfect, vitamin D levels are good. I am worried about the test result, I am looking forward to seeing a doctor and hearing her opinion...
I have 1:1000 too so can you give me an update?
thyroid meaning the cascade, right? Not just the TSH.....
Hi Dr. Ortiz, I received a positive test for "ANA" and "SCL-70" several weeks ago and the earliest I can see a rheumatologist is in 2 months. I definitely went down the internet rabbit hole (even reading random medical studies) because I was given no information from my PCP about what these test results mean. I stumbled upon your channel and it has been really really helpful in providing perspective and sound medical advice for people like me who are left in limbo. Just wanted to say thank you.
How do your appointment go? I also tested positive for the ANA and SCL-70.
@@carlyrn2005 Hi Carly, my appointment went well. It was a long one. Finding a doctor you trust and feel confident in his care has made a big difference. Wishing you the best.
Peaches, were you diagnosed with systemic sclerosis? I’m asking because I have not seen the rheumatologist yet but my ANA and SCL-70 were positive also.
PCPs are insuramce reps. Get outside the mainstream....go natural doctors...they know SOOOO much more, care more, use their brains more.
I have fibromyalgia but recent new symptoms are giving me the idea to get new blood work. Your channel helps ease my worries.
check for EBV panel, mold illness, lyme Panel - not mainstream. Fibro is a symptom, not a disease.
My Ana was 1:40 positive . I have so many symptoms but no answers
I was tested +ANA on Friday and I had no idea what it was until I did a google search, it frighten me. I found this video and it was the same information they left on voicemail but I do get scared. There has been diseases in the family but that is due to lifestyle choices, which can be changed. Thank you.
And what was the reason?
My I had 4 ANA tests, 2 positive and 2 negative, and it's extremely frustrating. My DSNA was higher each time. 200 is a normal value, and mine was 280 this time around. This has been going on for over 3 years. Nobody would do anything until I developed skin problems, major eye issues, and vessel weakness. My fingernails now get purple in the cold. Im anemic, and my vitamin D levels were almost non exisistant. I finally went to all these other doctors (eye doctor, vien specialist, etc.) with all their collective data being sent to the rheumatoid doctor. She declated I have Lupus. She repeated all the labs from a year ago, and it's off the charts. I'm confused because I explained how exhausted I was and how my joints hurt. Why not start treatments sooner? I did get a second opinion 6 months ago, and he said it was all in my head, lol. I love to show him my blood work now.
cvd shots?
@jac1161 I'm not aware what a CVD shot is. I tried to look it up, but only CBD came up. May I ask you for more information? Thanks!😊
Thank you SO MUCH! For this info. 😊❤️👍🏽
I've been living for the past 26 years (after seeing numerous medicos) with the assumption that I had Fibromyalgia. Then I saw a new GP who told me after a positive ANA titre of 640 that I had Lupus SLE!!! He sent me to yet another rheumatologist who said..no you definately have Fibromyalgia. After much discussion between them the GP said you have Lupus but you mighthave a little bit of FM!! The rheumatologist then said no you definately have FM but you might have a little bit of Lupus!! Seriously????? Just live your life as well as you can and dont dwell on the negatives. To the doctor in this video thankyou for the information you are the first person I have heard say you can have a positive ANA but not have anything wrong...I wish...but at least you show it can be caused by anything.....
I would love to hear a doctor talk about the frequency of someone with an autoimmune disorder having a negative ANA. Some rheumatologist rely completely on the ANA as if it is the end all, beat all test. I had a doctor listen to my patient history, ask 2 questions, perform a 2 minute cursory physical exam, and then tell me that my ANA was negative, so it wasn't a rheumatology issue. He seriously told me I may just have to learn to live with my symptoms without a diagnosis. I was dumbfounded. Even I know that not every person with a rheumatological condition tests positive. Some conditions have a significant percentage of patients who are ANA negative.
It’s a very interesting and somewhat controversial issue! And I’m sorry you had such a dissatisfying experience with your doctor. I probably need to do a whole video on the topic, as there is so much more to it than I can put in a response. The way I look at the specific ANA issue is we (the docs) always want to be as specific & precise as possible when giving someone a diagnosis, and when an ANA is negative, labeling someone as lupus may keep someone from continuing to investigate the problem and this is how misdiagnoses can happen. In my opinion, it is exactly these types of situations, where someone has continued symptoms & issues but yet their ANA (or other labs) are negative, where MORE visits with the doc, more investigating and more symptom diary-ing (is that a word?) are useful. Time and a watchful eye can show us so much about what may be going on. Thank you for bringing this up as I think it’s a great topic to explore and hang in there!
@@ConnectedRheumatology I think the biggest problem is that no one is doing the investigating. At least they aren't investigating the whole problem. The GI doc is looking at the GI symptoms. The gyno is looking at reproductive issues. The hematologist is looking at clotting concerns. Even the PCP is really only looking at the immediate problem. No one is looking at the whole picture. My hope was that the rheumatologist would be someone used to working with systemic problems and actually take a step back and look at me as a whole human. I am working on trying to get to a different rheumatologist that my hematologist recommended. It's just getting insurance approval. That is a whole other conversation.
yes, in my opinion, the doctors do not look at you as a whole. Instead, they are picking you apart, giving you medicine for this and for that when there is actually a medication where one pill could correct the problem. take prednisone for example; I don't have to take 6 Tylenol a day and 12 Ibuprofen to get out of bed. When I was eating the Mediterranean Diet I was getting much better but i stopped because I need to be diagnosed, so I started eating like I used to. I bend too easy, I don't have inflammation, the list goes on. I want to get better but yet I want a diagnosis. So far I have fibromyalgia and trigeminal neuralgia. I believe I have lupus although they are reluctant to diagnosis the problem. Only way that can happen is eat and man it hurts. Can't wait til I can eat right again.
@@keishamurray2711 That is EXACTLY the main issue! No one is connecting the dots!!!!!
I really like this video, educational and to the point. Reassuring as well. Thank you Doctor!! I’ve read and commented on couple of peoples “worries” ANAs can be so confusing and scary, but it is not set in stone- you can have it negative all across , for years , and still have bunch of medical issues. I would like to remind some of you that many of these symptoms could possibly have something to do with B12 and B9 deficiencies. Although normal range in USA for B12 is 200-1100 pg/ml it is known that about 10% of patients with values between 200 and 400 pg/ml experience neuropsychiatric and hematologic abnormalities, inflammation, itching and skin problems, pain “everywhere” , headache/migraine with light sensitivity, hair loss, bone/joint pain, tired/weak/fatigue, abdominal pains, etc. Please do not assume anything. Have your doctor run B12 or B9 blood test. Do not just start taking B vitamins supplements !! they can be toxic for those who don’t need them. Hope this information helps someone out there before you go too deep into the rabbit hole. Don’t give up! You are the best advocate for your own health. Good luck to you all.
THANK YOU 😊
My test said ANA pattern cytosplasmic. Another result, said ANA Titer 1:80 , another said ANA screen IFA Positve, and the last said Estradiol 42H. Now I am very depressed thinking I may have a deadly disease. Especially after a chest xray in the ER that showed Mild perihilar interstitial opacities which could reflect pulmonary edema or infection. I'm about to have my first child after 15 years of trying and today I get this devastating news.
Hi did you find out what it was? I have same exact pattern of cytoplasmic which there is hardly any info on. I have been trying to get answers because I don't see the DR for 2 weeks. The only info I have found is that cytoplasmic pattern can be Lupus, Myositis, or auto immune liver disease. I do believe I read somewhere that the lung symptoms can be related to Myositis an inflammatory muscle disease.
I have same thing ! 1:80 cytoplasmic! Joint pain and feeling very tired all the time ! I was told cytoplasmic usually means it possibly came from a virus 🦠 ! I see the doctor in a few weeks!
No I'm still doing tests to figure it out. @nopressurenodiamonds5566
@johndiaz2853 please let us know what you find.
So enlightening . I love this doctor. ♥️👍♥️
Thank you for this video. I just got a positive speckled result and am currently waiting for my appointment with a rheumatologist.
Best of luck!
What was your result? X
@@rikkijhogan I don’t have one yet. They did about 14 more test. I find out the results on Wednesday.
@@reginaalear good luck keep me posted. I see my hematologist tues next week for some results and u/s, & booked to see a rheumatologist in june once done & finished with other testing. Do you have symptoms?
Hi - hope you are doing well- what were the results of your speckled ANA?
A few months ago I was diagnosed with Sjögren’s with a positive SSA but ANA was negative. But now have a positive ANA with speckled pattern. But my SSA isn’t showing. Not sure what that means. Will find out next month.
I am confused. Live in the UK. back in 2000 i went blind temporarily, and for six years i had so many weird things happen. Finally i was told i had a nerurolgogical disorder so went private in 2007 to a nuerologist. He actually listened about my family history. grandfather had R.A. and parkinsons, grand mother R.A., my father had Lupus etc. so one of the first tests he did was ANA. Now this came back POSITIVE FOR LUPUS. I was kind of relieved actually as it explained a lot. I still have the letter with this diagnosis. I was then told i had to REPEAT THE TEST in SIX WEEKS, and yes you guessed it came back NEGATIVE. So back to scatching the head. OH also i found out i have photosensitivy and can not expose my legs to the sun as they turn a purple colour.
my nuerologist stuck with me i had a ton of tests for MS, and finally in 2016 i was diagnosed with Primary Progressive MS. BUT HE DID SAY, one of the tests a lumbur puncture muddied the waters as something showed up which wasnt for MS or something i cant remember now, and thinks I did have Lupus or similar. Over the time I have had really weird things that dont match MS. I get terrible dry eyes, nose and mouth, occasionally i feel like i am flaring with a flu, my temp will raise from 36.4 to 37.4. Then suddenly go back to normal. I get pain in my feet so bad i could cry. over those years i have have had raised blood tests but no one takes any notice. My daughter has recently been diagnosed with Sorgrens. I am 71 now and been told through blood tests, i have ANEMIA THROUGH Cronchic disease (as folates etc are good), i have an issue with liver enzemys so being investigated, oh yes and in March i went into hospital with heart issues. I recently had a half body scan and they found granulomas in my lung. but told me it was nothing to worry about. So well i just have to get on with it. xx thank you for a good uncomplicated video.
Granulomas are indicative of sarcoidosis
Lok up dysautonomia, nerve system disorder which can affect your whole system but isn't an autoimmune disease. It's not familiar to most doctors though.
Thank you very much, you have taken a load of my my mind. You are the BEST. God Bless You. ❤❤❤
Please do a video about polmyositis. I was diagnosed a year ago and still can’t understand it and my rheumatologist doesn’t explain much. Thank you ❤
Was your ANA pattern cytoplasmic? Mine is and my Rhem mentioned this. Also how were you diagnosed? Hope you are feeling ok!
I had a positive abnormal ANA but also my vitamin D levels were low. My EEG also came back abnormal as well 🙄😩😭
It has taken me about 20 years waiting for appointment. I finally have on in another city almost 100 miles away. 😮
I have Sjogren's, fibromyalgia, osteoarthritis, and gout. My rheumatologist in AZ says I also have rheumatoid arthritis, the one in MN says I don't. It's frustrating..
I’m in AZ too … who your rheumatologist? I just started with a new one and not getting anywhere really
My little fingers showed r.a. On the x-ray. Serum negative though.
😮 wish my rheumatologist spent more than 5 minutes with me or explain like this. I have MCTD, sjdrogrens, sle lupus, had endometriosis, had hysterectomy, has hashimoto had a thyroidectomy. That's at the top of my head. We retired near the beach and it takes months to 18 months for specialists..covid was bad in NYC and moved to the Jersey shore. Not enough Dr's. Sad many don't except patients. Thank you 😊 ❤
I had a call from my doctor this week to tell me my ana was positive, along with other signs my hair is thinning and I have constant uti,s.she's referring me, not sure how long that takes here in the uk ,glad I've found your videos so I can find out more. Thank you.
What did you end up diagnosed with I have the exact problem
Nuclear speckled Ana here. My hair was falling out like a horror movie. I have been having over 25 symptoms that come and go over the past years. Ib have the worst nerve pain and I have my skin breaking. I just found out my never has MS. I have seen all my mri the were looking for herniated buldging disc. They don't tell me what the white matter is all over my brain the big clump in my chest the polyps in my nose the extreme nerve pain memory loss I can't even think straight. I am told I have a mixed connective tissue. I'm scared it's cancer. I am thinking about all the things I've been going through. It's ruining my whole life. I just want to know what's wrong with me. 🥺
Did you ever figure out your diagnostic?
Bless your heart for the practical perspective. 🌻
I've have fibromyalgia, CFS, depression, anxiety, ibs-c, chronic neck/back pain, migraine/headaches, tremors, insomnia, etc. Oh and my hair is starting to shed a lot again. Was dx in 2018. Current rx are Prozac, Linzess, omeprazole, & tramadol as needed.
Last wk I had lab work done-ordered by psychtraist & neurologist-- the past few weeks my pain and fatigue has been really kicking my butt. Yesterday my lab ANA ifa is positive and speckled 1:80. I emailed my psychtraist-also a PCP-- about these labs haven't got reply yet. Given my documented symptoms, would my results mean I need to follow-up with more testing with my rheuma Dr? I don't think it's lupus cause I've never had a butterfly rash.
You certainly have a lot on your plate and I can understand why your doctors were searching for a possible unifying diagnosis that may explain all the symptoms you have. An ANA of 1:80 is considered very low and the decision to move forward with more testing will really rely on the discussion you have with your doctors and/or a rheumatologist. Even without a butterfly rash, this may be an opportunity to get a fresh perspective on your symptoms from a rheumatology stand point. I can't tell you you should or shouldn't get a rheumatology consult, but in my experience, many doctors will prefer a rheumatologist weighs in on results such as yours, which I believe is reasonable. Good luck!
@@ConnectedRheumatology thank you. Yea, I was thinking I need to just follow up with my rheumatologist. My neuro dr was the one that ordered the tests. I haven't heard back from him yet, called ystrdy to see if he got my labs. But, those labs got mixed up with other labs my psychtraist ordered. So waiting for neuro to get a copy.
My ANA is negative but I have everything else pointing towards Lupus. Even the steroid treatment they tried has improved my joint pain. I have been able to walk this week normally. Bone scan is clear. Feeling a bit flustered.
I had a negative test a year ago and it recently came back positive. I only got a partial result, waiting another week for the rest, but i got tested again when My eczema suddenly got worse
So say I was in a bad car accident and I have a lot of pain and inflammation I also have costochondritis and I end up having an ANA positive test do I really have an autoimmune disease or is this positive test picking up my inflammation from my car accident??
I’m a hypochondriac, so i got tested on this… still waiting for my result InshAllah i will be okay :). Only 16…
please get to a trauma therapist so you do not ed up getting what you dm't want. I am not a hypo....would never want to be limited with these. Please work on the anxiety, possibly past abuse. Doctors should not be fueling this making you worse
I recently came back positive for ANA ( my labs read positive) it read 1:40 homogeneous. The rheumatologist told me I was negative because I wasn’t positive “enough” this doesn’t make sense to me. I always thought there is positive and negative. I realize that the minimum for lupus is 1:80 ( rheumatologist told me) but I felt when she told me this, she was basically dismissing me.I do have symptoms and many of them for many years and when I say symptoms i mean symptoms of any autoimmune disease. It’s frustrating. No lymes and no RA years ago. I have spent years hearing it’s in my head.
Same thing with me exactly but my symptoms are recent. I’m trying to get a second opinion. Any updates? How do you feel?
I have a positive ANA test 1/1280 granular type, but no symptoms (except for a bit a eyelid eczema) … I have seen a rheumatologist who says it could be a false positive or may have been caused by the COVID-19 vaccines. We will do more tests in 3 months and see what they reveal. In the meantime I normally would get another COVID-19 shot before Christmas….. should I or not? If I do have an autoimmune disease, it would be best to get One, but if my ANA is positive because of the vaccines I would think I should not….. both my family doctor and my rheumatologist are away from work and won’t be back until january. Your advise would be much appreciated
I had a positive ANA and when my NP tried to get me in to a rheumatologist, they were told the number from the ANA wasn’t high
enough 😩 No appointment! I’m living with it but I understood what you meant in the other video when you mentioned isolation. I have life changing fatigue and … skin rash raynauds and GA. Burning and discomfort in my knees. I’m living with
it because they all basing on labs rather than my symptoms too…😔 Would it help to get in with an internal medicine doctor?
I tested positive to ANA and alpha 1 antitrypsin defiency, have had abnormal LFT for over 20 years. Liver biopsy next week. Feeling very anxious. 😐
Thank you very much for your information, I feel much better now, after my dr told me that I may have that decease.
Over the years I have tested positive and other times I test negative for ANA ….why?
Thanks so much for making this video! I have something called Alpha gal-it's a tick borne disease that cause you to be allergic to all red meat and pork (all mammalian meat). I had blood work done by my dermatologist because my hair is thinning. My ANA came back positive. Not sure if there's any research on whether or not people with this allergy (it's actually a fairly new disease but allergists are thinking it's an autoimmune disease too) and having a positive ANA.
Interesting, I was wondering a while back if AlfaGal was an autoimmune disease. Hope they eventually put the correlation together.
Should you have a Yellow Fever vaccination when you have a positive ANA and all the symptoms of RA and Sjögren’s syndrome? I’m scared and need to know what a doctor has to say about this.
Hello just curious after losing a few eyebrows hair and then tested positive for ANA, is there any connection to a positive ANA and recurrent yeast infections I've had for years? Some reason I think they are related.
Just got the test .it's only 140. Dr said don't worry .to low. I do have hashimotus
Hello doctor,
I m frightened,
Positive
ANA pattern nucleolar
I know it can be very frightening to find out about an ANA. Just remember, it's just a test and first step to finding out how to get you feeling better. Hang in there!
What about a speckled result? What does that mean?
Omgggg dr🙏🙏🙏🙏 I barely saw your other video and commented hoping getting a point of view my primary doctor scares me to dead cause she told me how my life will change till I went to the rheumatologist and exactly what you just tell on your video that's what the rheumatologist said you said it not because you have an anna positive means you have lupus plus rheumatologist did a blood work and came negative I went for a follow up with my primary doctor for the rheumatologist test and she said mmm nope this are not the test they had to run for lupus all I remember it was with c3 c4 and something else everything negative and she ended it up telling me to go to another reumatologysist because once I have positive anna means I have lupus she said it like this once you positive on anna is positive 😭😭😭 so I'm sad I have my second opinion next comming week
Hello. I was just told by my neurologist that my ANA antibodies are positive with Homeogeneous Pattern 1:320. A lot of my protein levels are flagged as high with C3 serum flagged as high also. I have a lot of the symptoms like hair thinning/ loss, joint pain, muscle weakness in arms and legs, itching with no rash, electric shock down my neck when I move my neck, cog fog, cramps and spasms all over my body with tingling and twitching, tremors after I lift something, fatigue, body aches, burning sensations in my joints like they feel warm too the touch sometimes, and last month I had some difficulty walking and with balance issues. I told my neurologist that I believed my symptoms where related to Multiple Sclerosis but after my blood results she referred me to a Rheumatologist. I have an appointment with them on July 11 and I'm nervous because there is lupus in my family ( my aunt and my cousin on my mom's side have lupus). I don't know about my dad's side. I just can't wait for my appointment but thank you for making this video 😌
Any update?
@@ED-he7ts Hello! So my Rheumatologist basically suspects I have Fibromyalgia. I've been tested for everything else all normal/ negative. But I recently tested very high with my inflammation markers (CRP and ESR) but I don't see her until November for my follow-up. Idk what the inflammation is from or if it means I most likey have Fibromyalgia. I'll ask her when I see her in November. She prescribed be a med too I'm taking but isn't helping so I stopped taking it. At least I have a name to a condition to work with now. Thanks for asking 😌
I have so many lupus symptoms and I was convinced I my ANA would be positive & it actually came back negative. I’m confused and quiet frustrated that I’m now at square 1 trying to figure out what is wrong.
What if your ANA is homogenous, rash on face and elevated liver function extreme fatigue? And you mentioned rheumatoid arthritis, but what if you were told you have psoriatic arthritis 6 year before?
I have a speckled pattern of 1:80 and c3 of 168.
I went in because I have a myriad of symptoms that come and go and are extremely severe when they come. When I was tested, I told the doctor I was currently feeling really good, yet my doctor, nay, one of his nurses called and pretty much told me there is nothing wrong. My body is SCREAMING at me, yet noone will listen even when there are markers and a strong family history of autoimmune diseases, such as lupus, RA, and more. The markers may be low, but they are still there. I have other autoimmune issues (vitiligo, granuloma annulare, and hashimotos), but my hypothyroidism is under control, yet symptoms persists in a flare form. I am so upset and feel like just giving up. I feel like my body is telling me something is up, and I don't care about treatment or anything like that, I just want to know what is going on so I can do best by my body. At this point, 30 years old, 2 little ones and hoping for more, I now know I will likely never find someone to listen and I will just have to take care of my self and realize it is what it is when I flare. I will always long to know what is happening to me, but I need to let go and give up on trying. I do appreciate your videos though! Thanks for sharing your knowledge.
You’re not alone. My result was the same 3 yrs ago and now I have skin lesions. My dr seems incapable of giving me a diagnosis.
@@nursebev2249 I am so sorry to hear this! I hope you find a doctor that can help you soon!
Exact same position. 180 Ana speckled, 30 years old and feeling like an old woman!
Did u ever get a diagnosis??
I feel also very frustrated.
Extreme fatigue, terrible psoriasis, stiff sore joints (now affecting my toes leaving me u able to walk), swollen painful lymph nodes for 6 years, cystic acne, dizziness. The list goes on.
I’ve found I’ve really connected with likeminded people through YT, so I apologise if I’ve spilled too much, it’s just nice to relate and hear the stories of others which sometimes gives me hope.
@@homegirl4155 oh, no worries at all! I can totally relate to this and am so sorry you are experiencing these symptoms! I cloth diaper and just came back down from spraying out diapers and every time I do it I am in excruciating pain, but I am determined to not let whatever this is stop me from doing things I enjoy, or things I believe benefit my children. It has effected every single part of my body- head to toe. From thin hair to headaches, every single joint and bone ache, my stomach, right down to the toe pain, and I also get pain throughout that seems to correlate with lymphnode areas as well (which I didn't realize until my husband pointed it out one day). I don't talk about things to do with my health to others often at all, but just want you to understand you definitely aren't alone. At 30 and 31, we definitely should not be feeling this way. I still have no answers and seem to be losing feeling in my hands and experiencing joint pain more and more frequently. I have give up on figuring it all out sadly, but I just can't find anyone that will listen or hear me out. Often when I am trying to explain my symptoms, I just get cut off anyway.... hopefully you are able to find some answers someday! I know what a frustrating journey this is, but just keep hope and don't give up on the things you love despite the pain! I have definitely made it my mission to move past the pain (at a slower pace than previously of course) to make sure I am still doing those things that bring me joy. For me it is art/crafting and playing outside with my boys/hiking. Don't give up- you got this! Remember to find your joy and peace and realize that this make really suck, but it doesn't define you and you are more than your illness/pains!
@@justjahneah2462 hey Jahneah- thanks so much for your encouraging words and empathy.
I’m so happy to hear you are trying not to let it get in the way of your life, whilst I understand it is physical and can be so damn difficult and depressing.
It isn’t normal, and like you, my concerns are falling on deaf ears. From the snooks you described it sounds very generalised and concerning. Have they ran a myriad of blood tests? Also, not to be nosey, are you from the UK? I’ve noticed British doctors are very reluctant to do referrals of any kind these days.
At my most recent meeting with my dr I was very calm and outlined that I’m concerned that my lymph nodes especially have been swollen for a number of years. Causing great pain. My MRI confirmed reactive nodes, yet I. His notes he said I was erratic and has recommended psychiatric support for me. I’m not one to beat the gender drum, but I couldn’t help but feel because I was a woman he was quick to dismiss it and put it down to psychosis for me. Would u agree this is the case for you?
I’ve also taken to paying privately for blood tests though they are so damn expensive!
Again, thank u for your kind words. Some days are harder than others and I’ve been reading so many comments on YT about people suffering general symptoms without any conclusive answers. Mentally it’s so hard and the idea of the rest of my life being mired in pain... absolutely bleak.
Thanks again!
The hair loss has me so sad because I was trying to grow my hair out again n every time I try I have a flare up and my hair falls out so I’m going to get some help
check thyroid cascade (not just TSH), Iodine level. Also parasites...lyme, mold, EBV, cvd shot?....
Positive ana, joint pain such as painful DIP joints (feels like OA), painful tendons throughout the body, knees, had multiple trigger fingers, a bit of morning stiffness, every other test negative (examples: anti ccp, crp, rf etc). I am 18 yrs old, docs have no idea. Not able to do MRI. Nsaids help a bit, but paracetamol does too. Every joint has an insane amount of crepitus. Hyperextension in some joints. I did overtrain a year ago and thats when it started. What do you think this sounds like? PsA? RA? Something else?
Look into carnivore
Hey, sorry you didn't get an answer. I was recently diagnosed with rheumatoid arthritis, then my diagnosis got changed to fibromyalgia as rheumatoid arthritis doesn't have the soft tissue and widespread body pain im experiencing associated with it. Thats what the rheumatologist told me....and also, i dont have joint swelling even though ive seen that not all RA sufferers have swelling..
Anyhow, I also told the rheumatologist that I also have a tremendous amount of crunching going on, which is technically crepitus as you so correctly mentioned, especially in my upper body, and I moved my shoulders and my chest around so she could hear it, and she told me it was nothing to worry about, that it's normal.. I didn't press her on this issue because we were short on time by that point, but this noise is a new manifestation for me and it has only been going on since my first symptoms of this rheumatoid arthritis or fibromyalgia, (whatever the heck it really is), started which was about five months ago and was most likely triggered by my second covid exposure.
I'm only telling you this because I was told it's normal, but I don't feel that it is, so if someone tells you that it's normal, especially if it manifested all of a sudden on you like it did me, you might want to press the doctor a little bit further, unlike me.. I am going to bring it up at my next appointment with her which is in 2 months unfortunately, because I am taking expensive joint supplements for the situation that I don't want to have to pay for any more if they're not doing any good so I need to ask about that also, about whether these supplements are really helping my joints or not. Good luck to you and I hope you get the answers that you need and that you are well!
I have had a positive ana for years and have severe fatigued, aches different issues migraines- and have a positive dsdna but low level ? 12
I’m just frustrated because it’s flagged as positive even if low - there’s a reason of charts.I have
Issues going on and been told fibromyalgia.
Thoughts ?
Level 1:80
Could you please answer my question?
Can ANA test (IFA, 1/80, IgG) show a response of the body to a metal implant (titanium screws on the jaw)?
Is an autoimmune/autoinflammatory response can be induced by metal adjuvants and may they cause a positive ANA test result?
Or, could we say a negative ANA test means there is no response of the body to the metal (titanium) implants?
Interesting. I have 4 screws on each side . . . and positive ANA.
@@jodybogdanovich4333 It seems there is a correlation between titanium dental implants (allergy or metal toxicity) and autoimmune disease start and aggravation.
Titanium alloys toxins are closely associated with the neuroendocrine and lymphatic system, or itching or urticaria problems. There are so many high-ranking academic articles on this topic.
When have your titanium implants been implemented? are they new?
I hope you are getting well.
@@ank6043 Thank you. I had jaw surgery in 1995 to correct an overbite due to a congenital jaw deformity. I have a total of 8 permanent screws. So not the same as dental implants per se.
@@jodybogdanovich4333 Thanks for your reply, the point is metal adjuvants (the location or source is not important, they may be implants or clips or screws), and the body may see them as antibodies to react.
Please search "Diagnosis and Management of a Hypersensitivity Reaction to Titanium-Containing Surgical Clips: A Case Report".
I hope you are getting well.
@@ank6043 I will look that up. Thx. My autoimmune psoriatic arthritis was diagnosed 3 years ago, after 3 frustrating years of failing health. Cosentyx is helping pain and stiffness but fatigue, low-grade fevers, and other symptoms are worse. I had one positive ANA IFA with speckled pattern recently so my rheumy is retesting but sending it to a medical school lab (University of Washington) because of higher sensitivity. I also am having a repeat lung scan in May to follow up on a nodule. Always something, it seems. I do have a great team of doctors, though. Hope all is well for you.
Is that picked up on CBC with diff & PLT? I have inflamed arm, shoulder & feet bone marrow for > 10 months.
I had flares initially i thought it ws just eczema. Defaulted my derm appointment because they just cant solve my prob. Currently had so bad flares and actually had bunch of connecting dots of autoimmune disease symptom specifically SLE. But i just dont know how to tell the dr. To refer me to rheumatologist. :(
How about if you have symptoms as hair loss and then get positive Ana test. … what could it b?
Hi I'm p anca positive mpo negative have copd emphysema & heat disease I have a hole in my nose septum was in hospital for a week with blood in my lung & nose bleed for 3 day I exhausted all the time my whole body hurts 1 doctor said I have GPA now..... Now I don't have it not seen enyone about it please help
Today I was told that I am positive for Anti-Ro/SSA but don’t really understand it and can’t find much information. Is it part of ANA? As when I am searching for it ANA is coming up like your video? Would appreciate answer. I am not sure what specialist would be the best to talk to
profile ana la/ss-b 1,5 ku/l positive..should be
Hey Doctor. Got a question.. But first of all Ty for the info Video. I'm from Germany after years of different symptoms.. Like face rush, psoriasis, joint pains, bad fatigue, high phototoxic reactions and more.. SO, my doctor ordered an ANA-TEST and it came back POSITIVE. Titer 1:400, humogen.
The labor recommended to do the ELISA.
And ENA was negative..!?
Years later I still have symptoms and working on finding out what's wrong with my body. But is it common that ANA is positive by 1:400 and ENA negative?
Hopefully you can answer this question. If you were on mycophenolate (Myfortic, immunosuppressive med) for over 5 years for an unrelated reason can can mycophenolate affect your ANA postive speckled 1:160 Reflex test?
Also, Type-1 Diabetic, Diabetic Neuropathy, fibromyalgia, osteoarthritis, and KPTX on immunosuppressive meds for 15+ years and 1 additional KTX.
Curious of the correlation between positive ANA and high RDW? I have both.
Hi doc, i got ana test recently which is 1:160 speckled dfs70, my issue started with right elbow, since that time my pcp thought it’s golfer elbow as it lasted over 2 months, but then I developed a symptoms in both arms, felt join pain in my knees. Now the pain is really moderate but whole my body is crunching and feels kinda weird, overall feeling okay! Waiting for rheumatologist appointment but it can take months in my area;( I’m kinda scared of lupus or arthritis! Praying for healing!
The wait to get an evaluation by a rheumatologist can be maddening, hang in there! As I'm sure you researched, the DFS70 pattern on ANA testing has NOT been associated with lupus and in considered a way of telling if the ANA means anything or not. While you are waiting to see the rheumatologist, try to see if your joint pain is associated with any daily habits, sleep, diet, certain exercises. Also, be mindful if the pain is more IN the joint or AROUND the joint, as the presence of tendonitis can clue in the rheumatologist to other conditions. The wait to see the rheumatologist can be frustrating, but it does give you time to hone in on what your symptoms are, what triggers them, what helps them, etc. All this information will help the rheum get to a diagnosis faster. Hope this helps!
Did you ever go? What was the issue? I feel like I have the same thing. I have a positive Ana nuclear dense fine speckled. Should I even see a rheumatologist?
Thank you Doctor for the valuable information 🙏
Hello so they think I have lupus both grandparents on both sides have it . I have hashimotos and celiac and Anemia along with many more and I had positive ANAs before when diagnosing my other disorders but now they are looking for lupus it’s saying negative but my doctor is positive I have it too he said it might be because I’m not having a flare right now .. I’ve also had pneumonia for 9 months and severe asthma so I’m on a shot called fasenera for e asthma and he said that shot can be messing with my test results?!
I replied under "Why you can't get a diagnosis"
So an ana test came back and listed several patterns. What do we go by? What does this mean?
Can the ANA be negative and still have an illness?
My dfs70 was 78 u/mL, my ana titre IIF 640, everything else was negative. Not sure what to do with this? Does it mean I have dermatomyositis? I have redness on cheeks which the derm said i have rosacea this was 4 yesrs ago. I did my ana tests a few days ago.
My ANA is 1.80 n drs said its not high enough to be anything..i have awful symptoms though
Thank you Dr. Ortiz for this information.👍
I had a positive ANA and SCL70. I have some GI issues but none of the other systemic sclerosis symptoms. What are the chances of the highly specific SCL70 not giving me a systemic sclerosis diagnosis?
i have been having bad anxiety, brain fog and lightheadedness for a year. I recently did a very comprehensive blood test the only things that came back not optimal was my cholesterol and i tested positive for autoimmine my Titir was 1:320 and pattern was nuclear dense fine speckled- i read that pattern means i do not have a autoimmune but just have some type of inflammation going on.. i am so confused on whats causing these symptoms. My family says its my anxiety causing this but if anyone can help let me know
What about if youngot told it was ok but it came back that it needs to be monitored in case something comesnuo in thw future. Inwas told this!!???
I have a borderline dsdna result what does that mean. My ANA was 1:640 and I have SLE and sjogrens
Hello Dr. Ortiz,
I have a high positive ANA titer 1:1280 Speckled and Negative DsDNA. the reason for that test was because of the severe sun allergy started out of the blue from last year on my hands and neck. So my Doctor decided to do these screening tests. My other markers for everything were good and I don't have any other symptoms except the sun rashes which at the moment doesn't happen because here in Australia is winter and during winter no rashes happening. After that I saw two dermatologists and one rheumatologist and none of them couldn't figure out what is the real issue or why my ANA was so high. Would you please help me to understand the possibilities. I can provide my test results if you need them.
Thanks
Ali
That sounds like Lupus! It can cause a butterfly rash on the face or bumps and people who have lupus are more sensitive to the sun! That’s one of the more common symptoms
Hi Samantha, thank you for your reply. I don’t have any butterfly rashes or any other typical lupus rashes so, what are the other possibilities? Thanks Ali
Hi Dr. Ortiz, my ANA result is
I've got my ANA and DsDNA positive... I'm so scared and cried the whloe night 😭
My recent Ana test from my rheumatologist came back as 13.1 value.However i was referred to a rheumatologist by my primary care doctor because i had a positive Ana test with my Pcp.
I had my first reumatologist brush it off with the homegnous pattern.
Then I lost my right foot, wasn't feeling well and my primary care Dr said there is something autoimmune going on. Now I still have the homegnous pattern and centromere pattern (which is the new one)
I was told I have sjogrens
Gi Dr said it's the reason I struggle with food??
My Ana was positive, the only other thing that was wrong in my bloods was tsh of 16...my Dr just said in the future I might develop an autoimmune issue... I'm 48 and disappointed that's all he said... Can the Ana be because of the tsh or should I push for more tests for other things
My test is not positive but Dr still treat me for RA.
Hello doctor! My dads doctor accidentally checked ANA blood test on his routine blood test and surprisingly he had a positive ANA. But he says he feels absolutely fine. And they also tested him “FANA Staining Patterns-Speckled Pattern” his results were 1:80. What does that mean can you please give us more information ? Thank you
Does he need any additional blood test done?? Because his doctor was like oh you are fine if you don’t have any symptoms
An ANA test of 1:80 is considered very low and given that he feels fine, I would agree with your dad’s doctor that it’s most likely OK. The likelihood of having a “false positive” ANA test as we get older goes up, so finding a +ANA in an older individual without any symptoms is more common than you would think. I would recommend he keep his follow-up appointments with his doctor and let him know if he starts developing any different or new symptoms.
@@ConnectedRheumatology is there only like specific numbers for titer? 1:40 , 1:80 etc ? I mean can a “ANA negative” person have a titer 1:80?? Does everyone have a specific titer in them? Or it’s just people with ANA POSITIVE ? I hope you know what I mean? Thank you again
The ANA is usually only reported as titers or numbers but a result less than 1:40 is considered "negative." Usually a lab will only report results of 1:40 or higher. If a result is 1:80, technically it is considered "positive" as it is higher than 1:40 but whethr or not is is important is still up for interpretation by the doctor based on other labs and how the patient is doing.
Hope this helps!
@@ConnectedRheumatology I’m sorry last question. Since my dad does not have any symptoms can it be a “false positive” ? If he tests for ANA after some time, if everything is normal with him , do u think it might come back negative again? By the way he has high TSH levels could that cause ANA positive? And he has low Vitamin D level, & high cholesterol. Thank you so much for answering
After getting chemotherapy I developed this disease somehow. I was never sick in my life. Did I get his from my blood donor?
Can you please let me know if Anti cardiolupin is negative, Anti nuclear antibody is negative, can a person still have lupus anticoagulant as positive??
Is it typical for a patient with a positive ANA, lupus, sjogren’s and raynaud’s to later have the ANA become negative and stay negative?
Phenomenal video, very helpful!!!
Hi Dr my ANA is positive pattern-NUCLEOLAR & CYTOPLASMIC
SPECKLED is 1:320 & RA & ESR is negative & i have pain in elbow, knee, back, ankle,swollen fingers in morning & my mom is having arthritis but still i didn’t got proper answer from dr as do i have arthritis or not ? Can you please help me out with this ?
Can ANA come and go with active cancer and cancer that is in remission? Or will it always be positive?
Iam have ANA (if) trite 1:640 and pattern of staining is homogenous SLE....im trying for pregnancy...can i get chance for pregnancy
My RA is concerned cuz in a month my inflammation sky rocket do you know the reason also i get a lot of bruises my RA says it's not lupus relax but i think it is i also have sjogrengs and fibromyalgia
what if they are speckled ? i have an elavated blood platelet level as well
My ANA was positive for lupus buy I don’t have any symptoms of lupus and my Dr is going to do the ANA test again I don’t know I’m so confused thank you Dr for the explanation!❤️
The ANA test is so confusing and can produce so much anxiety! Hang in there and just keep in mind that it's just a blood test.