I have pots. I got diagnosed this year but the doctors believe it started when I was a kid since I’ve always fainted when getting overheated. It’s hard for cardiologists to know what to do for you since pots is a special condition where no one has the same thing that does/doesn’t work for a person.
Palpitations, tingles in the extremities, splotchy skin, numb extremities, drowsy (by this point I'm laying on the ground to prevent falling). Then comes the actual feint. Which despite looking really comfortable, is not. And yeah it's whenever my heart rate reaches a certain point or heat. So I keep cold packs hidden everywhere (work, home, friends places and the places I frequent know how to handle my attacks). Thanks for speaking up about this
You just helped me make a connection that I'd been missing for years. Heart rate. Thanks for sharing your experience. You are brave to share everything with us and I'm grateful for you, I've struggled with fainting spells and these symptoms for years and never put it together. Now I know what to ask the dr to look for.
Fainting is such a scary experience. It feels like the floor is suddenly caving and I'm falling through it. Waking up from it is also scary, because you can feel confused/disoriented and it feels like waking up from a really scary nightmare.
I have vasovagal syncope, which is basically fainting at the sight of blood or extreme emotional distress. Personally when I faint, my vision clouds and goes purple (so I can make out objects but can’t see much), I usually feel like throwing up, I shake badly, I go super pale and my knees give in. It’s not something I’d ever wish on someone to experience! Sometimes you convince yourself you’ll be ok, but when it actually happens you feel so helpless and you panic. It’s terrifying. Bless you for having to go through that so often. Know that you’re not alone and stay strong ❤
I have it aswell! When i’m going to faint i start to feel that my heart is like SO fast and i start to sweat, then i just start to shake and my vision get like glitchy and goodbye world. Sometimes i feel like i’m throwing up. It’s happening really often these days. The bad thing is that i say to my friends that i’m fine but then, eventually i pass out, so i scare them. At least, i think that if i could see their reactions it would be kinda funny (i hope so).
I was diagnosed with pre-syncope a few weeks ago and the way you explained it is perfect. It’s terrifying to feel and because it’s so recent for me, I have no clue what to do apart from lie down. Do you have any tips for preventing or tips for when this happens again?
I've never passed out, but sometimes that happens to me, the chills the panic, it occurs to me usually when i do shift work. Awful feeling, i turn on all the lights and start walking around. It's fuckked up mate.
I also have this same thing! Except what i feel is that i go extremely warm, then my vision starts to become either spotty or i have tunnel vision and then eventually i will pass out😅
I had a lot of experiences with fainting, and this is what happens to me: I feel kinda dizzy like my vision is tilted, and then I feel like I'm moving really fast and everything else slows down. Then I feel a sudden numbness and I lose all my strength and I blackout, but I'm still numb ( one time I fell down two flights of stairs and felt nothing when I woke up ). After I wake up from it my legs physically don't work and I can't walk for 10mins - 1hr, I'm also unable to process speech or make any kind of response (idk it's kinda like paralysis) and I just need to drink lots of water and can get up after that 😅👍
I have POTS as well. I get the hand tingling and my HR kinda kicks up. My weirdest symptom, though, is I can't talk. I usually feel like I'm dreaming. I disassociate REALLY hard. So when whoever I'm with asks, "Are you gonna pass out?" I just kinda stare. Then I'm out. 😭
I have exactly that (undiagnosed) but I never actually faint. I just get super dizzy, sweaty, tingly, I can see my hands getting more pale, my legs get heavy, everything gets heavy and I feel like I'm on a boat and it feels like for a milli second everything is black and my head is heavy thumping? But I never actually faint I think. Maybe I misunderstand what fainting is. But it seems too short for me to call it fainting. More like blinking. But all the other symptoms people describe when they faint are the same. And I feel like I dissociate or something. Because I never faint it makes it difficult for the doctor to diagnose me with pots. I do have issues with my heart rate. Some movements trigger these symptoms.. sometimes even after eating (but there's no specific food causing it) and I just wonder if this is what pots is like or is truly different for everybody
@@MirA12334 Not everybody faints. I get those little "blinks" too. When you feel like the world isn't real for a second and you think you're gonna fall out but don't. I know a lot of people who don't faint but still have all the other symptoms. Some doctors, unless they're POTS specialists (which are rare unfortunately) only know POTS by its most dangerous symptom: fainting. So when you don't faint, they're like "idk lolol" which really sucks. Keep vouching for yourself. Insist on things like a Tilt Table Test, which is like _the_ test for POTS. A holter monitor will show your doctor how high your heart rate gets. Also, a high HR after eating is VERY common with POTS. Try to avoid carbs, or at least try and eat smaller amounts. Snack throughout the day and make your meals smaller, and drink plenty of water. Load up on that salt. Liquid IV, Gatorlyte, and Biolyte are my go-to's for drinks with a lot of sodium, and they help tremendously.
omg im the exact same way with the staring/dreaming feeling. no one around me understands what i mean when i explain how its almost an out of body experience. and when they ask if im okay during an episode i try to explain what im feeling except literally nothing comes out. its soo weird
That sounds hard. Could you also just nod if they ask? I'm sorry if that's rude, I dont have any experience with POTS, so I have no idea. I am just curious, not meaning to be rude.
@@3mpireTheGreat I've tried, but people have said that it just looks like I'm bobbling. Even though it feels like I'm nodding. Thankfully, my friends and family know the signs for me at this point. It's, like, coworkers and whatnot that have only a slight idea of what's about to happen. And I have convulsive faints, too (not seizures, they just look like them) and so they think I'm seizing and call 911. I have on my medical lanyard NOT to call 911, because they can't really do anything. They don't do anything, actually 🤣
I can't get over how unbelievably gorgeous she is! The condition doesn't make who you are, it's just something else that makes you unique & anyone that thinks or treats it as negative is not worth your time & is a self centered asshat!
I remember I fainted one time, a few days after Halloween. So I was sitting in a chair, and my sisters and me were taking sweets from the bag, when suddenly one of my sisters pushed my arm back because “I already have lots of sweets”. I got a sick feeling, and pain in my arm, and just fainted. Woke in a short time after, laying on the floor. When I realized that I fainted, I was like “MOM, I FAINTED AGAIN” 😅. My sisters actually thought I was acting when I fell 😭-
I have pretty bad pots as well,im glad there are people out there who also have it (dont come for me for 'being selfish' i have rsd snd plently other mental disorders)
I have POTS as well! Mine is non fainting, I have pre-syncope instead of syncope (syncope being the term for fainting, so I have all of the symptoms of fainting without actually passing out!) I find that an increase of salt and water (liquid IV and gatorade are god sends) helps a ton. I also personally use a cane and compression socks! The socks help prevent blood from pooling in the legs and helps prevent (pre)syncope!
I have pots as well. I’ve had it for a couple years and it makes life very difficult. You have to make sure you have a well fluid intake. Along with eating plenty of salt. My ankles will swell, I get dizzy and hot, then boom I have to sit before I pass out. Recently my feet and hands have been going numb as well which is a sign my pots are getting no better. I am so sorry you have to deal with this. Compression socks are very uncomfortable but maybe you should give them a try! And make sure not to get over heated :)
Rebooting after passing out/ fainting is literally hell. Worst experience i can imagine. Im there. But it just all disorienting spinning times 1 million. and crazy anxiety of being stuck in this state forever. And then my vision comes back. And im back in the world again and the hell of waking back up is over.....anyone else have this?
i have pots. my biggest tip to u is that do when u do pass out/ shake, don’t get mad at yourself. when i was a kid that’s what i did, i made it much worse and gave myself so so so much anxiety. but once u learn to manage it it becomes much easier. ❤
I have similar feelings, but I only nearly pass out from the pain I get from periods, particularly if I'm dehydrated. You get all dizzy, light headed, everything goes cold, there's the ringing in the ears that deafens everything, you go limp and your vision begins to fade in and out. I do recall my heart rate from last time was really fast too and it was hard to steady my breathing. All throughout, the cramps were pretty painful. Unbearably, even. It used to be a lot more common as a kid and I'd have to kinda...just sleep it off. Eventually it settled down until the last couple ones.
oh dang pots is also just so hard to get diagnosed a family friend was diagnosed with it and my sister might have it but the amount of hospital visits and doctors offices you see just to get diagnosed is so draining
This is what happens to me: First, I get really weak and drop, still awake but so weak in the arm and legs and can't get up. Second, I start getting dizzy and feel numb. Third, I start seeing my veins in my wrists turn green. Fourth, everything changes colors and I go blind. Fifth/Last, I pass out
My sister has pots, when she ( for example ) stands up, her heart rate will go VERY high ( high as like you’re on a run ) and she usually faints too. Also, sometimes her legs / or other body parts turn purple and start shaking randomly.
Same 🙋🏻♀️ having a pots day is the worst. If I am woken up and I just stand up from a sleep, that an immediate pass out. It’ll feel like I’m enveloped by static and the world shrinks in on me, all I can hear is my heart thundering in my ears and I drop like a stone.
I feel my heartbeat go up then sweating, dry mouth and then I lose almost vision, can't hear sounds around me but never lost consciousness. It happens when on the way to school or my teachers house. It also happened in train,church,shop/store,my teacher house (worst one almost fainted couldn't hear and see anything except for my heartbeat). The strangest thing is that I don't even run when it happens I just walk.
I get fainting a lot idk why tho. I once fainted and my friend saved me from potentially cracking my head open by dropping everything on her and catching me. Thank you *****
When I passed out my vision got all spotty and it was really hard to keep my balance for even another second(this all happens within 2 seconds so I don’t even have time to react)
ty for this vid. my roommate is going threw something similar but hasn't fully fainted yet but has collapsed and nearly all the pre-symptoms you mentioned are what she is getting. now waiting for a consult.
It's actually quite similar to what happens to me when I have a big panic attack. But I don't loose consciousness, just feel very sleepy and can't move or stand (no power/muscle strength). I also get cold sweats which are awful and sometimes I vomit too, so I'll always try to get to a toilet when I feel an attack coming on. Loosing control over ones body really sucks! 😓❤
When blood starts to pool in your legs, you can try ankle circles to engage your calf muscles. It won't cure something as severe as pots, but it might buy you some time to get to a safe place.
i’ve never experienced a full faint or in any random experience. but i went on a plane a couple weeks ago. when we took off i almost fainted twice (it also happened on the way back). i could feel myself lose vision and i my head started to slump. i didn’t faint though at all. closest i’ve ever been though. i’ve joked about almost fainting before but now im realizing i was just dizzy. that was at a different level. i do not understand what it’s like on a daily basis though. crazy what you guys go through in a day
When I fainted once, I could see my mum but it was mostly black. And the way I fainted was falling back and sliding down the wall and my mum thought I was dead. Then once I woke up I couldn’t say anything at all I was just stuck there looking at her then cried.
An interesting thing about POTS is that it’s not exactly known how many people have it, as it’s often misdiagnosed or underdiagnosed, but it’s usually considered to be uncommon, but not extremely rare
Today i passed out in school for no absolute reason, i passed out for like 2 seconds then woke back up i thought i got heat exhaustion when in reality i just wasnt sleeping enough
So it might be different for everyone but for me when I remember is because it happened to me so many times throughout my life (My Whole Childhood) It's like that feeling you get when you've been underwater for way too long and your chest is convulsing for air, and then you get Very Dizzy you feel that fainting feeling on top of fatigue.
I have the exact same symptoms too. But it starts from my stomach like a weird feeling. It usually happens whwn i faint too long. I thought it was due to low sugar but was suggested to do an echocardio after a normal blood test. Turns out i am diagnosed with a large asd (at 28 yrs old) and vaseophagal syncope-standing in one position for too long/ which i thought was normal for everyone.
I have POTS now post covid. It can also present as high blood pressure and rapid heart rate. Just walking to the kitchen from the den, my pulse will jump to 130. Precovid my normal BP was like 100/70. Very average. Now its been up as high as 180/110. On meds, on CPAP, on oxygen, the BP is starting improve. Like in your case, they say a sign can be your friend is often leaning on a wall.
ok i really have to comment because i just realized i might have a condition or smth. Since i was a kid i've been falling asleep during classes, I always tried to explain to my patents and school that i really wasn't able to control it but nobody really cared that much. I would feel my vision doubling and my hands getting numb, and then my body getting cold. The only strange thing is that this happens only when i'm sitting at a desk.
I don’t have any like sickness or anything but I have fainted a couple times before and it’s honestly really scary. It kinda feels like what I go through when I get up to fast and fall to the floor but stay conscious and that is caused by my iron deficiency but fainting is like that but more scary at least that is what it’s like to me
i have POTS and take Midodrine 10mg 3x a day and IVIG infusions with 1L of Saline infusion every two weeks for treatment if my POTS. I’m going to start Corlanor 2.5mg 2x a day soon. It’s hard to stand upright for more that a free minutes without fainting if I have no medication on board and if I faint I get Nonepleptic seizures as well (FND). I also have Elher’s danlos syndrome and Chronic Fatigue Syndrome. Keep fighting abs advocating for yourself to get the help you need! It’s hard but makes like soo soo soo much easier to manage.
I have Tourette’s and I’ve just been binge watching your shorts. I also just noticed that I have the exact same Amethyst necklace as you! My boyfriend got it for me a couple weeks ago and I got super excited for some reason when I saw it was the same 😂💜
I have POTS and when I feel a spell coming on I have to sit down or lay down. I didn't always know to do that so I used to collapse every now and then, but nowdays I don't collapse that much since I know what helps me
Mines was realy wierd i looked up at the ceiling to take a deep breath no warning whatsoever last thing i remmeber a picture in my head of the ceiling then feeling the cold floor and looking up and seeing everything spining t felt so wierd i thought i was dreaming when i woke up!
I feel the same on a normal basis, but my vision doesn't go out and I don't pass out. I haven't passed out before but I feel the same way how you explained it.
I have the same thing! But sometimes it feels like I blink and I feel like I'm supposed to faint I get all heavy and drowzy like on a boat or its an earthquake.
I personally have pots and for a long time I thought I was the only one because I never met anyone else that has pots and one day you pop up on my fyp you have helped me so much and I no longer feel alone so I just wanted to say thank you Ik I’m I little late to this but it toke me a lot of courage to say this and I did it on this one bc not really many people would see this but you keep on going girl 🫶
Most of my mom’s side of the family also has pots. My aunt has it the worst out of every one but still not bad. She has past out a few times tho. My mom,brother,me,grandma, aunts all have pots and probably more
I pass out from blood sugar and blood pressure problems - my ears ring, my arms feel weird - like intense pins and needles or feel heavy, my eyesight goes either like granulated or blotchy yellow like you’ve stared at the sun and with the blood sugar one I also get really hot. Love your videos and awareness raising ☺️
I absolutely love the pop up when you go to make a comment!! That’s, like. Amazing! 🤩. Anyways sorry’lol I am not sure if you know or not, but. I recently got tics, and I was curious if verbal tics are like always apart of it or just like, another version of tics
I get a sting in my heart area usually after a stressful period. And although i stay calm there’s a slim possibility for a heart attack. I went to the bathroom to calmly pee but the heart area was hurting and so was my head. I picked my phone up and used it as a distraction before suddenly everything just disappeared and i was in this strange looking place that was just full of white and later turned black as things flashed before my eyes. This is from reflecting on it, i was unconscious at the time though so I didn’t realise what was happening when i woke up laying collapsed against the wall as i took a breath. With lots of white lines distorting my mind and vision. And then i felt absolutely relaxed without issues including stress so it was a good thing
For me it’s very painful stomach aches in my lower stomach, neck pain then dizzyness followed by getting WAY to warm, then passing out, I got it first when I was 9 and it sucked! Now I’m 11 and don’t have them as much
when i faint, i seem to forget what i’m doing and i go silent then i try to manage my breathing but that doesn’t work and the everything goes black and i wake up on the floor a few seconds later, and sometimes if i don’t sit on the floor for a few minutes i will pass out again.
A little story time for you bc I remembered this when watching, I was walking home with my two friends and one of my friends said they were really dizzy, but we didn't think anything of it and me and 1 friend came across this burned pizza box , idk why it was there, and we just looked at it for a second. BUT when we turned around my friend was passed out on the floor. The doctor said it was prob a heart condition. But idk.
I think you are so inspirational and beautiful. I love you so much and would love to meet you. Thank you for being so real with your content and sharing something that must be so difficult. ❤
Did your doctor order a portable heart monitor for you to wear? I would think you might eventually get a cardiac pacemaker that will detect of your heart suddenly too fast or too slow (both can cause your circulation to slow down). Then the pacemaker can set your heart to normal tempo.
I’m diagnosed with POTS and I’ve only fully fainted once and that was while doing the Valsalva maneuver during autonomic testing. I remember having to blow really hard into this tube a couple times and the first time I got really bad heart palpitations and a weird feeling in my chest, the second time I felt lightheaded for a moment and then suddenly I’m waking up from what seemed like deep sleep. My head felt like it was spinning and I struggled to open my eyes. The tech who was doing the testing said “are you okay?” And with my eyes still closed I automatically said “yeah” and then a few seconds later I said “I think I passed out”, and she told me I did lol. I’ve also gotten presyncope a lot of times and it’s different depending on the situation. Pretty much every time I stand up my vision gets washed out by a curtain of blackness and sometimes my hearing fizzles out too, about 5 seconds later everything fizzles back in. Other times when I’m standing for very long periods or during a flare up I get lightheaded/dizzy and get an overwhelming urge to collapse to the floor, like it feels like I’m gonna die if I don’t, which is usually quite distressing, though it doesn’t happen too often.
I’m just curious what triggers your tics or what makes them worse? I swear I won’t try to make them worse or trigger them Edit: if this comment offends you in anyway I’m sorry and I will delete it ❤ love you
Hey! I don’t have Tourette’s, but I know a little bit about it. First, tics are random and spontaneous. They could sometimes be triggered by stress, anxiety, tiredness, excitement, and happiness, but, like I said, they are mainly random. They can sometimes be made worse by the things that I listed above, and they can also be made worse by people talking about it. That’s not for everyone though. Everybody’s tics and Tourette’s are different. Tics are normally harmless, unless the person has a tic that makes them move uncomfortably. Tics normally include the person making noises or a movement/gesture, as her neck twitched and she said “Meow” and “Wow.” Tics are completely involuntary, meaning that she cannot control it nor prevent it. Hope this helps!
I'm in the process of getting a POTS diagnosis and for me it feels like my head gets really heavy, it gets harder to breathe and I get waves of hot and cold. If from these symptoms I have not already laid myself down I start to lose vision, I get tunnel vision, everything except for whatevers right in front of me turns into TV static, I hear static as well and then it all goes black. I've fainted from changes in laying down to standing, from heat stroke, I've fainted every time I get a vaccine or blood draw due to a needle phobia, from bee stings (same thing as the needle phobia) and from not eating.
Hey Zara. Im really sorry about the sick people in your comments, I hope you dont take them to heart because I know it's hard. love you (platonically!) ❤❤
When you’re saying meow, are you like tweaking or are you just doing it on purpose? I know this is a weird question but some people has a health thing and they tweak a lot
oh my goodness, mine comes when I get too hot, then blindness and i have to get close to the floor so I do not fall down. It doesnt happen much anymore, but twice this summer when its so hot.
I have pots, EDS, CVS, GP. I also have other diagnosis, but these are all of my cronic conditions. EDS is my root one that causes all or most of my other ones.
I nearly passed out because my finger got stuck in my car door for 5+ seconds. I put my head down and felt awful like I was gonna vomit. My vision was blurry and my hearing was weird. It’s hard to explain but if u came to me and asked about my experience it would be super easy to explain. Comment below me explains my experience. Ringing made my ears go out, I felt light headed, I was dizzy.
The cutoff meow at the end was perfect lmao
🐈
Fr
Y does she meow?
@@izzz3528 i think she has tourettes
@Thatonfairygirllll oh thanks
I have pots. I got diagnosed this year but the doctors believe it started when I was a kid since I’ve always fainted when getting overheated. It’s hard for cardiologists to know what to do for you since pots is a special condition where no one has the same thing that does/doesn’t work for a person.
I have it too it’s not easy to live with but u will get used to it ❤
My friend has that disease
My cousin has it
I haven't been diagnosed, I do have a heart issue but I used to pass out when I got to hot. I also have high heart rate and palpitations.
Palpitations, tingles in the extremities, splotchy skin, numb extremities, drowsy (by this point I'm laying on the ground to prevent falling). Then comes the actual feint. Which despite looking really comfortable, is not. And yeah it's whenever my heart rate reaches a certain point or heat. So I keep cold packs hidden everywhere (work, home, friends places and the places I frequent know how to handle my attacks). Thanks for speaking up about this
POTS is annoying! But at least it won’t kill you, however you will hit the ground a lot, and you’ll have lots and lots of bruises.
You just helped me make a connection that I'd been missing for years. Heart rate. Thanks for sharing your experience. You are brave to share everything with us and I'm grateful for you, I've struggled with fainting spells and these symptoms for years and never put it together. Now I know what to ask the dr to look for.
That last tiny meow was the cutest thing I’ve ever seen. 💕 stay beautiful
She has Tourette, don’t make fun of her
Its tics
Fainting is such a scary experience. It feels like the floor is suddenly caving and I'm falling through it. Waking up from it is also scary, because you can feel confused/disoriented and it feels like waking up from a really scary nightmare.
I fainted for the first time yesterday and yes it was scary as fuck
@@ItzTooBlue2010do you remember what it felt like?
Yes, firstly I felt dizzy then i couldn’t feel my legs which made me lose balance, started losing my vision then I saw black, then BOOM passed out
@@ItzTooBlue2010happened to me lastnight, the scariest part to me is that my eyes were open during the sudden blackness... like how dat work
@@oofhi9191^^
I have vasovagal syncope, which is basically fainting at the sight of blood or extreme emotional distress. Personally when I faint, my vision clouds and goes purple (so I can make out objects but can’t see much), I usually feel like throwing up, I shake badly, I go super pale and my knees give in. It’s not something I’d ever wish on someone to experience! Sometimes you convince yourself you’ll be ok, but when it actually happens you feel so helpless and you panic. It’s terrifying. Bless you for having to go through that so often. Know that you’re not alone and stay strong ❤
I have it aswell! When i’m going to faint i start to feel that my heart is like SO fast and i start to sweat, then i just start to shake and my vision get like glitchy and goodbye world. Sometimes i feel like i’m throwing up. It’s happening really often these days. The bad thing is that i say to my friends that i’m fine but then, eventually i pass out, so i scare them. At least, i think that if i could see their reactions it would be kinda funny (i hope so).
I was diagnosed with pre-syncope a few weeks ago and the way you explained it is perfect. It’s terrifying to feel and because it’s so recent for me, I have no clue what to do apart from lie down. Do you have any tips for preventing or tips for when this happens again?
Same!
I've never passed out, but sometimes that happens to me, the chills the panic, it occurs to me usually when i do shift work. Awful feeling, i turn on all the lights and start walking around. It's fuckked up mate.
I also have this same thing! Except what i feel is that i go extremely warm, then my vision starts to become either spotty or i have tunnel vision and then eventually i will pass out😅
I had a lot of experiences with fainting, and this is what happens to me:
I feel kinda dizzy like my vision is tilted, and then I feel like I'm moving really fast and everything else slows down. Then I feel a sudden numbness and I lose all my strength and I blackout, but I'm still numb ( one time I fell down two flights of stairs and felt nothing when I woke up ).
After I wake up from it my legs physically don't work and I can't walk for 10mins - 1hr, I'm also unable to process speech or make any kind of response (idk it's kinda like paralysis) and I just need to drink lots of water and can get up after that 😅👍
That sounds exactly like POTS
I feel so bad for so bad for yall that have tics,faints, and dizziness 😮😢
@@iamloved334 Haha, thank you, I got used to the fainting so its alright now 😄
Feeling like dreaming is such a real thing, I've never been able to describe it before, but you're completely right!
As a person who has fainted several times, this is pretty accurate.
I have POTS as well. I get the hand tingling and my HR kinda kicks up. My weirdest symptom, though, is I can't talk. I usually feel like I'm dreaming. I disassociate REALLY hard. So when whoever I'm with asks, "Are you gonna pass out?" I just kinda stare. Then I'm out. 😭
I have exactly that (undiagnosed) but I never actually faint. I just get super dizzy, sweaty, tingly, I can see my hands getting more pale, my legs get heavy, everything gets heavy and I feel like I'm on a boat and it feels like for a milli second everything is black and my head is heavy thumping? But I never actually faint I think. Maybe I misunderstand what fainting is. But it seems too short for me to call it fainting. More like blinking. But all the other symptoms people describe when they faint are the same. And I feel like I dissociate or something.
Because I never faint it makes it difficult for the doctor to diagnose me with pots. I do have issues with my heart rate. Some movements trigger these symptoms.. sometimes even after eating (but there's no specific food causing it) and I just wonder if this is what pots is like or is truly different for everybody
@@MirA12334 Not everybody faints. I get those little "blinks" too. When you feel like the world isn't real for a second and you think you're gonna fall out but don't. I know a lot of people who don't faint but still have all the other symptoms. Some doctors, unless they're POTS specialists (which are rare unfortunately) only know POTS by its most dangerous symptom: fainting. So when you don't faint, they're like "idk lolol" which really sucks. Keep vouching for yourself. Insist on things like a Tilt Table Test, which is like _the_ test for POTS. A holter monitor will show your doctor how high your heart rate gets.
Also, a high HR after eating is VERY common with POTS. Try to avoid carbs, or at least try and eat smaller amounts. Snack throughout the day and make your meals smaller, and drink plenty of water. Load up on that salt. Liquid IV, Gatorlyte, and Biolyte are my go-to's for drinks with a lot of sodium, and they help tremendously.
omg im the exact same way with the staring/dreaming feeling. no one around me understands what i mean when i explain how its almost an out of body experience. and when they ask if im okay during an episode i try to explain what im feeling except literally nothing comes out. its soo weird
That sounds hard. Could you also just nod if they ask? I'm sorry if that's rude, I dont have any experience with POTS, so I have no idea. I am just curious, not meaning to be rude.
@@3mpireTheGreat I've tried, but people have said that it just looks like I'm bobbling. Even though it feels like I'm nodding. Thankfully, my friends and family know the signs for me at this point. It's, like, coworkers and whatnot that have only a slight idea of what's about to happen. And I have convulsive faints, too (not seizures, they just look like them) and so they think I'm seizing and call 911. I have on my medical lanyard NOT to call 911, because they can't really do anything. They don't do anything, actually 🤣
I can't get over how unbelievably gorgeous she is! The condition doesn't make who you are, it's just something else that makes you unique & anyone that thinks or treats it as negative is not worth your time & is a self centered asshat!
I remember I fainted one time, a few days after Halloween. So I was sitting in a chair, and my sisters and me were taking sweets from the bag, when suddenly one of my sisters pushed my arm back because “I already have lots of sweets”. I got a sick feeling, and pain in my arm, and just fainted. Woke in a short time after, laying on the floor. When I realized that I fainted, I was like “MOM, I FAINTED AGAIN” 😅. My sisters actually thought I was acting when I fell 😭-
I have pretty bad pots as well,im glad there are people out there who also have it (dont come for me for 'being selfish' i have rsd snd plently other mental disorders)
I have POTS as well! Mine is non fainting, I have pre-syncope instead of syncope (syncope being the term for fainting, so I have all of the symptoms of fainting without actually passing out!)
I find that an increase of salt and water (liquid IV and gatorade are god sends) helps a ton.
I also personally use a cane and compression socks! The socks help prevent blood from pooling in the legs and helps prevent (pre)syncope!
I have pots as well. I’ve had it for a couple years and it makes life very difficult. You have to make sure you have a well fluid intake. Along with eating plenty of salt. My ankles will swell, I get dizzy and hot, then boom I have to sit before I pass out. Recently my feet and hands have been going numb as well which is a sign my pots are getting no better. I am so sorry you have to deal with this. Compression socks are very uncomfortable but maybe you should give them a try! And make sure not to get over heated :)
Rebooting after passing out/ fainting is literally hell. Worst experience i can imagine. Im there. But it just all disorienting spinning times 1 million. and crazy anxiety of being stuck in this state forever. And then my vision comes back. And im back in the world again and the hell of waking back up is over.....anyone else have this?
Yes, the fear when you don’t know how long until the feeling passes… 😥
You are absolutely gorgeous, seriously, anyone who ever tells u otherwise is lying or certainly doesn't understand who u really are!
i have pots. my biggest tip to u is that do when u do pass out/ shake, don’t get mad at yourself. when i was a kid that’s what i did, i made it much worse and gave myself so so so much anxiety. but once u learn to manage it it becomes much easier. ❤
I have similar feelings, but I only nearly pass out from the pain I get from periods, particularly if I'm dehydrated. You get all dizzy, light headed, everything goes cold, there's the ringing in the ears that deafens everything, you go limp and your vision begins to fade in and out. I do recall my heart rate from last time was really fast too and it was hard to steady my breathing. All throughout, the cramps were pretty painful. Unbearably, even. It used to be a lot more common as a kid and I'd have to kinda...just sleep it off. Eventually it settled down until the last couple ones.
oh dang pots is also just so hard to get diagnosed a family friend was diagnosed with it and my sister might have it but the amount of hospital visits and doctors offices you see just to get diagnosed is so draining
This is what happens to me: First, I get really weak and drop, still awake but so weak in the arm and legs and can't get up. Second, I start getting dizzy and feel numb. Third, I start seeing my veins in my wrists turn green. Fourth, everything changes colors and I go blind. Fifth/Last, I pass out
My sister has pots, when she ( for example ) stands up, her heart rate will go VERY high ( high as like you’re on a run ) and she usually faints too. Also, sometimes her legs / or other body parts turn purple and start shaking randomly.
Idk why but that "meow wow" brough back random memories from my childhood and ive been rewatching that one part to figure out why
That's exactly what happens with me too. I have had the fainting spells since I was about 13/14 years old
Same 🙋🏻♀️ having a pots day is the worst.
If I am woken up and I just stand up from a sleep, that an immediate pass out. It’ll feel like I’m enveloped by static and the world shrinks in on me, all I can hear is my heart thundering in my ears and I drop like a stone.
Usually I had angels come to help me up during or after. Oh my heck, I sound so weird, I never told anyone.
I have POTS and FND too that’s wild. And ya I’m the same way for the most part but it varies
I feel my heartbeat go up then sweating, dry mouth and then I lose almost vision, can't hear sounds around me but never lost consciousness. It happens when on the way to school or my teachers house. It also happened in train,church,shop/store,my teacher house (worst one almost fainted couldn't hear and see anything except for my heartbeat). The strangest thing is that I don't even run when it happens I just walk.
Sameeee
I get fainting a lot idk why tho. I once fainted and my friend saved me from potentially cracking my head open by dropping everything on her and catching me. Thank you *****
It’s so similar to an epileptic aura.
My sibling may have pots and has bad circulation, but we found out that compression socks and clothing work really well!
Wait I thought these type of scenarios were normal. Now im starting to question myself
Stay strong gal , these may seem funny but are actually very much painful to cope.
If anyone is wondering why she's meowing, she has tourettes. Which means at random times she says or does something she can't control.
When I passed out my vision got all spotty and it was really hard to keep my balance for even another second(this all happens within 2 seconds so I don’t even have time to react)
Oh my God lady, what haven't you got. You are a miracle just being alive! Please be safe and know you are loved! ❤❤❤
ty for this vid. my roommate is going threw something similar but hasn't fully fainted yet but has collapsed and nearly all the pre-symptoms you mentioned are what she is getting. now waiting for a consult.
It's actually quite similar to what happens to me when I have a big panic attack. But I don't loose consciousness, just feel very sleepy and can't move or stand (no power/muscle strength). I also get cold sweats which are awful and sometimes I vomit too, so I'll always try to get to a toilet when I feel an attack coming on.
Loosing control over ones body really sucks! 😓❤
When blood starts to pool in your legs, you can try ankle circles to engage your calf muscles. It won't cure something as severe as pots, but it might buy you some time to get to a safe place.
The "Meow" caught me off guard😂😂
i’ve never experienced a full faint or in any random experience. but i went on a plane a couple weeks ago. when we took off i almost fainted twice (it also happened on the way back). i could feel myself lose vision and i my head started to slump. i didn’t faint though at all. closest i’ve ever been though. i’ve joked about almost fainting before but now im realizing i was just dizzy. that was at a different level. i do not understand what it’s like on a daily basis though. crazy what you guys go through in a day
When I fainted once, I could see my mum but it was mostly black. And the way I fainted was falling back and sliding down the wall and my mum thought I was dead. Then once I woke up I couldn’t say anything at all I was just stuck there looking at her then cried.
An interesting thing about POTS is that it’s not exactly known how many people have it, as it’s often misdiagnosed or underdiagnosed, but it’s usually considered to be uncommon, but not extremely rare
Today i passed out in school for no absolute reason, i passed out for like 2 seconds then woke back up i thought i got heat exhaustion when in reality i just wasnt sleeping enough
So it might be different for everyone but for me when I remember is because it happened to me so many times throughout my life
(My Whole Childhood)
It's like that feeling you get when you've been underwater for way too long and your chest is convulsing for air, and then you get Very Dizzy you feel that fainting feeling on top of fatigue.
I have the exact same symptoms too. But it starts from my stomach like a weird feeling. It usually happens whwn i faint too long. I thought it was due to low sugar but was suggested to do an echocardio after a normal blood test.
Turns out i am diagnosed with a large asd (at 28 yrs old) and vaseophagal syncope-standing in one position for too long/ which i thought was normal for everyone.
Your hair is beautiful!!
I have pots. You are right on all of those.
The meow at the end ❤❤❤
she has tourettes
I have POTS now post covid. It can also present as high blood pressure and rapid heart rate. Just walking to the kitchen from the den, my pulse will jump to 130. Precovid my normal BP was like 100/70. Very average. Now its been up as high as 180/110. On meds, on CPAP, on oxygen, the BP is starting improve.
Like in your case, they say a sign can be your friend is often leaning on a wall.
“My vision goes and then I pass out” *aggressively meows* that was perfectly timed lol❤❤😂😂
ok i really have to comment because i just realized i might have a condition or smth. Since i was a kid i've been falling asleep during classes, I always tried to explain to my patents and school that i really wasn't able to control it but nobody really cared that much. I would feel my vision doubling and my hands getting numb, and then my body getting cold. The only strange thing is that this happens only when i'm sitting at a desk.
I don’t have any like sickness or anything but I have fainted a couple times before and it’s honestly really scary. It kinda feels like what I go through when I get up to fast and fall to the floor but stay conscious and that is caused by my iron deficiency but fainting is like that but more scary at least that is what it’s like to me
i have POTS and take Midodrine 10mg 3x a day and IVIG infusions with 1L of Saline infusion every two weeks for treatment if my POTS. I’m going to start Corlanor 2.5mg 2x a day soon. It’s hard to stand upright for more that a free minutes without fainting if I have no medication on board and if I faint I get Nonepleptic seizures as well (FND). I also have Elher’s danlos syndrome and Chronic Fatigue Syndrome. Keep fighting abs advocating for yourself to get the help you need! It’s hard but makes like soo soo soo much easier to manage.
Your meows are so adorable
I faint a lot. This is what happens. I start to feel dizzy and I will turn super pale. The weirdest thing is everything turns purple and that’s it
But apart from that, you're alright!
Bless you young lady.
Have you tried regularly exercising and drinking beet and blueberry juice? I have heart issues and it helps me
I am so proud of you zara
I have Tourette’s and I’ve just been binge watching your shorts. I also just noticed that I have the exact same Amethyst necklace as you! My boyfriend got it for me a couple weeks ago and I got super excited for some reason when I saw it was the same 😂💜
Her tics are the cutest ive ever seen i swear, especially as a cat lover :sob:
I have POTS and when I feel a spell coming on I have to sit down or lay down. I didn't always know to do that so I used to collapse every now and then, but nowdays I don't collapse that much since I know what helps me
Mines was realy wierd i looked up at the ceiling to take a deep breath no warning whatsoever last thing i remmeber a picture in my head of the ceiling then feeling the cold floor and looking up and seeing everything spining t felt so wierd i thought i was dreaming when i woke up!
I feel the same on a normal basis, but my vision doesn't go out and I don't pass out. I haven't passed out before but I feel the same way how you explained it.
I have the same thing! But sometimes it feels like I blink and I feel like I'm supposed to faint I get all heavy and drowzy like on a boat or its an earthquake.
thats so intruging! I passed out recently and first my ears clogged up then black dots coverd everythings until i completely black out
Thank you for your videos. I learn a lot. Best wishes! 🥰
I personally have pots and for a long time I thought I was the only one because I never met anyone else that has pots and one day you pop up on my fyp you have helped me so much and I no longer feel alone so I just wanted to say thank you Ik I’m I little late to this but it toke me a lot of courage to say this and I did it on this one bc not really many people would see this but you keep on going girl 🫶
I love your channel ❤
omg thank you now i know that i almost pass out because my hands and feet get tingaly and numb too and i get very dizzy
Most of my mom’s side of the family also has pots. My aunt has it the worst out of every one but still not bad. She has past out a few times tho. My mom,brother,me,grandma, aunts all have pots and probably more
I will never know you but I will always love you anyone that has to try this hard just to live I will always love that person x
Just the loud cat noise at the end 😂
I pass out from blood sugar and blood pressure problems - my ears ring, my arms feel weird - like intense pins and needles or feel heavy, my eyesight goes either like granulated or blotchy yellow like you’ve stared at the sun and with the blood sugar one I also get really hot. Love your videos and awareness raising ☺️
Her meows are so cute
For me I literally just get dizzy and my heart starts beating faster then I just doze off and pass out.
I absolutely love the pop up when you go to make a comment!! That’s, like. Amazing! 🤩. Anyways sorry’lol
I am not sure if you know or not, but. I recently got tics, and I was curious if verbal tics are like always apart of it or just like, another version of tics
I get a sting in my heart area usually after a stressful period. And although i stay calm there’s a slim possibility for a heart attack. I went to the bathroom to calmly pee but the heart area was hurting and so was my head. I picked my phone up and used it as a distraction before suddenly everything just disappeared and i was in this strange looking place that was just full of white and later turned black as things flashed before my eyes. This is from reflecting on it, i was unconscious at the time though so I didn’t realise what was happening when i woke up laying collapsed against the wall as i took a breath. With lots of white lines distorting my mind and vision. And then i felt absolutely relaxed without issues including stress so it was a good thing
You are so beautiful ❤️
For me it’s very painful stomach aches in my lower stomach, neck pain then dizzyness followed by getting WAY to warm, then passing out, I got it first when I was 9 and it sucked! Now I’m 11 and don’t have them as much
when i faint, i seem to forget what i’m doing and i go silent then i try to manage my breathing but that doesn’t work and the everything goes black and i wake up on the floor a few seconds later, and sometimes if i don’t sit on the floor for a few minutes i will pass out again.
whenever i stand up for too long, i start to feel faint and dizzy… is there something wrong with me that i don’t know about…?
A little story time for you bc I remembered this when watching,
I was walking home with my two friends and one of my friends said they were really dizzy, but we didn't think anything of it and me and 1 friend came across this burned pizza box , idk why it was there, and we just looked at it for a second. BUT when we turned around my friend was passed out on the floor. The doctor said it was prob a heart condition. But idk.
I think you are so inspirational and beautiful. I love you so much and would love to meet you. Thank you for being so real with your content and sharing something that must be so difficult. ❤
I love your hair!
Did your doctor order a portable heart monitor for you to wear? I would think you might eventually get a cardiac pacemaker that will detect of your heart suddenly too fast or too slow (both can cause your circulation to slow down). Then the pacemaker can set your heart to normal tempo.
I’m diagnosed with POTS and I’ve only fully fainted once and that was while doing the Valsalva maneuver during autonomic testing. I remember having to blow really hard into this tube a couple times and the first time I got really bad heart palpitations and a weird feeling in my chest, the second time I felt lightheaded for a moment and then suddenly I’m waking up from what seemed like deep sleep. My head felt like it was spinning and I struggled to open my eyes. The tech who was doing the testing said “are you okay?” And with my eyes still closed I automatically said “yeah” and then a few seconds later I said “I think I passed out”, and she told me I did lol. I’ve also gotten presyncope a lot of times and it’s different depending on the situation. Pretty much every time I stand up my vision gets washed out by a curtain of blackness and sometimes my hearing fizzles out too, about 5 seconds later everything fizzles back in. Other times when I’m standing for very long periods or during a flare up I get lightheaded/dizzy and get an overwhelming urge to collapse to the floor, like it feels like I’m gonna die if I don’t, which is usually quite distressing, though it doesn’t happen too often.
I have POTS. Usually for me, I feel dizzy and hot/clammy, then my vision and muscle control start to fade, and then I pass out.
I’m just curious what triggers your tics or what makes them worse? I swear I won’t try to make them worse or trigger them
Edit: if this comment offends you in anyway I’m sorry and I will delete it ❤ love you
Hey! I don’t have Tourette’s, but I know a little bit about it. First, tics are random and spontaneous. They could sometimes be triggered by stress, anxiety, tiredness, excitement, and happiness, but, like I said, they are mainly random. They can sometimes be made worse by the things that I listed above, and they can also be made worse by people talking about it. That’s not for everyone though. Everybody’s tics and Tourette’s are different. Tics are normally harmless, unless the person has a tic that makes them move uncomfortably. Tics normally include the person making noises or a movement/gesture, as her neck twitched and she said “Meow” and “Wow.” Tics are completely involuntary, meaning that she cannot control it nor prevent it. Hope this helps!
Do you know when your going to tic before you do? Do you tic while you sleep?
I'm in the process of getting a POTS diagnosis and for me it feels like my head gets really heavy, it gets harder to breathe and I get waves of hot and cold. If from these symptoms I have not already laid myself down I start to lose vision, I get tunnel vision, everything except for whatevers right in front of me turns into TV static, I hear static as well and then it all goes black.
I've fainted from changes in laying down to standing, from heat stroke, I've fainted every time I get a vaccine or blood draw due to a needle phobia, from bee stings (same thing as the needle phobia) and from not eating.
Hey Zara.
Im really sorry about the sick people in your comments, I hope you dont take them to heart because I know it's hard.
love you (platonically!) ❤❤
I love the meow❤ it's so cute😊
When you’re saying meow, are you like tweaking or are you just doing it on purpose? I know this is a weird question but some people has a health thing and they tweak a lot
That tick at the end 😂
oh my goodness, mine comes when I get too hot, then blindness and i have to get close to the floor so I do not fall down. It doesnt happen much anymore, but twice this summer when its so hot.
I have pots, EDS, CVS, GP. I also have other diagnosis, but these are all of my cronic conditions. EDS is my root one that causes all or most of my other ones.
Same here heart flutters sometimes shortness of breath you get lightheaded eyes blur up and then bam you wake up this all happens in a few seconds
You also have the most beautiful eyes.🍀
I love how you meowed at the end lol
I nearly passed out because my finger got stuck in my car door for 5+ seconds. I put my head down and felt awful like I was gonna vomit. My vision was blurry and my hearing was weird. It’s hard to explain but if u came to me and asked about my experience it would be super easy to explain. Comment below me explains my experience. Ringing made my ears go out, I felt light headed, I was dizzy.