Bladder Incontinence | My Urology Issues & Why I'm Talking About Them | Sacral Agenesis | Disability
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- เผยแพร่เมื่อ 4 มิ.ย. 2020
- Today's vlog is a huge deal to me. Today I am opening up and sharing something that impacts every second of my life but I never share or talk about it.
I want this vlog to reach people who may be experiencing similar issues or struggles so that they know it's ok. I also want people to understand a little better.
It was incredibly hard to share this with you so I hope it comes across how I wanted it too!
More information and resources about Sacral Agenesis can be found at www.isacra.org
#bladderincontinence
#sacralagenesis
#incontinence
well done, you dont know how much i needed this i have a grandaughter with the same disability aged 11 she is incontinent. to hear this has helped her immensly to know its not her fault and others are also going through this too thank you for sharing this please dont feel embarassed or ashamed because to bring it out in the open will help so many others take care and stay safe at this time
You are such a courageous soul, I could see how private this was to you and yet you rose to your own challenge in your unique Estelle way. Thank you for speaking out and sharing xxx
Cassie Terry thanks so much for watching Cass x
Good on you, Ella. I have been incontinent all my life, and am 53 years old. I totally get where you are coming from!!!!! If you would like to have a chat, get in touch. Jules 💜🙏
Thank you so much for watching. It has taken me a long time to be able to just embrace it and all I can hope for is that I can help someone else! Estelle x
I'm so proud of you for talking about this! I've only been catheterised once and that was when I had some issues that stopped me being able to self drain my bladder and I'd gone 22 hours without peeing. I think they drain 2 litres. I remember it being uncomfortable but the absolute relief of finally being able to pee was worth it.
It's not the same but I get incontinence during seizures sometimes and that can be really embarrassing. People don't understand and my way of dealing with it tends to be brushing it off with humour.
Thank you for sharing your story with us 💕 xx
Anna Marie thank you so much for watching. I like to use humour as well but sometimes people don’t get me 😂
That hair reminds me of my little pony hair, so lovely. Thanks for chatting about your life, makes the rest of us much wiser. I have a lot of respect for you for making this video, makes you more of a woman to be able to express yourself and talk about your life because this makes life meaningful for us all and helps us to be more informed and understanding.
Thank you so much for watching and for your kind words!
Thank you so much, i’ve been dealing with bladder and bowel issues from a neurological disease for the past ten years. you have helped me more than all the specialists I have seen, thanks again.. I talk to friends about most of the problems , but i too keep it quiet... as for stuff!!! yes when it gets delivered a d my husband says what’s that, my reply is “my stuff” 🙄. I think there are more of us than we realise . Best of luck with everything .
Thank you so much for watching! It took me so long to talk about these things and I’m glad I finally did! I still call it stuff though in front of my husband 😂😂
Thank you so much for sharing. It has made me feel like im not the only one. I am 29 and I have suffered with bedwetting my whole life. It is humiliating to still do it. I'm so glad you made this video. X
Andre Knight thank you so much for watching. I’m sorry you suffer. I’m glad I have helped you to feel a little more normal. Please don’t be humiliated by it - it’s something you cannot help XX
Thank you so much for talking about this. Be very proud ! You really make a difference . Thank you
Thank you so much for your kind words!
Thank you for sharing this. You've helped give me the courage to address my own urology issues, and I appreciate that massively. Amazing lady.
Kelly Taylor hello! I’m so glad! I hope you can get something sorted out! I’m here if you ever want to talk x
Wow. Thank you for sharing. You are so brave and so strong. You are incredible and I am a better person for knowing you.
Frog thank you!
Hello! Thank you for posting this! I also have sacral agenesis and it seems we had the same surgery or something very similar. My bladder is augmented from my bowel as well and I also have to self catheterize. I was actually thinking of doing a similar video so I decided to see if other people have posted one and that’s how I got here! It’s been obviously something I’ve dealt with my whole life and I have never met or seen someone else who has the same thing I do. So, thank you for making this video. It makes it all a little less lonely ❤️
Hello! Thank you so much for watching. You absolutely should do a video - I think it all helps to reduce the stigma and fear around it! Please let me know if you do make a video - I’d love to watch it x
What an incredibly brave thing to do xxx
Rachel DollyBakes Burns thank you! I just want to help someone else feel more normal I guess!
Estellosaurus well I’m sure you did. Hope you had the reaction this deserved. Bravo lady, and thank you xxx
Hun, don't worry if people thing you need a poo. We all need to pee and poo, and so what if they think you're hogging the loo? I'm American, so perhaps I care less? Us brash Americans. But I self cath. I also manually evacuate my bowels. Tomorrow I have a Urodynamics study, but I have already had 3 Botox procedures and diatentions. I too have PTSD from medical neglect and narcissism. It IS incredibly hard living with conditions like this. Hope you can give yourself the credit you are truly due. By the way, I call my bag in which I store my catheters, lube, gloves, etc etc my OSK, which my caregiver and I know means my "Oh Shit! Kit" (again, we can blame it on me being American I guess, but the humor helps me cope). I sometimes wonder what the women in neighboring stalls think. Lol. For example, my caregiver is facing me to help me with my wheelchair, cathing, and bowel evacuation... So I wonder what people think when they see her feet facing me sitting on the toilet. Lol. But, hey, it doesn't matter. They can ask and I'll gently and gladly teach them a little. They can also just wonder and continue wondering for eternity. Lol. I don't think less of you for knowing these things about you; in fact, I think more, brave lady. I wish my bladder and kidneys weren't destroying my life. Hugs. You did a good job. By the way, I bring Journey (my stuffed animal dog) with me when I'm really stressed and my bag for hospital and procedures has the same stuff in it (plus all my feeding tube and spinal cord stimulator and much etc) stuff in it. I look like I'm planning a trip to Mars when I go to the hospital. Good job.