I’ve self diagnosed my PNES with the help of my sister who worked in the neurology department at Johns Hopkins. People told me I was faking it or that it’s not as severe as I made it out to be. But it’s the only thing that makes sense and validates me symptoms. I’m so glad there’s people out there like me and can help justify that I’m not just crazy.
I hope you have seen a specialist, self diagnosing yourself is a very bad idea, neurological diseases isn't just a headache where you can take a painkiller, and then it's gone. I've had servere epilepsi my whole life, I'm 45 next month, and it wasn't until about 10 years ago they got my seizures under control. Good luck with everything 🙏
Self diagnosing you’re self is bad …and offense to ppl who ACTUALLY been diagnosed such as myself go to a doctor and get diagnosed with PNES don’t self diagnose you’re self
@@mirrah3939 you don’t know anything about me and my diagnoses so I don’t understand why you’re calling me offensive when you only know what it’s like to have PNES. You’re not a doctor, you don’t know me, you don’t know my symptoms, you don’t know anything about me, so I don’t understand why you felt the need to leave a scummy offensive comment on my comment. Leave a stranger alone and don’t be a bitch k?🙃
I was diagnosed with PNES after seizing in IKEA and a week in several hospitals where I was told I was having "pseudoseizures" Several malpractice suits later, I was given a PNES diagnosis. DONT LET "PROFESSIONALS" TELL YOU DIFFERENT FROM WHAT YOU KNOW YOU'RE FEELING.
Pseudo doesn't simply mean "fake". Pseudo also has connotations such as "looks most similar to X but isn't X". For instance, amoebas move by pseudopods (things that are akin to feet). There's a disease called pseudorabies that affects pigs, and looks a lot like rabies, but is not rabies, and nobody is claiming that the pigs are faking it.
I've been having seizures for 2 years and my neurologist said that it was PNES. all through 12th grade I was told I was faking them. that I was just doing it for attention. so I didn't want to go back to school so I was homeschooled. then I went to a new school and they said I was faking them and just doing it for attention. after school I got a job and had 2 seizures and they told me that I couldn't come back. so my life I've been told that I was faking them and doing it all just to get attention. and I'm not faking them and doing it for attention. so you in their right mind would want to go and fake a seizure.
This information is vital for those dealing with PNES. Neurologists need to know it too! It is a terribly surprising thing to experience and try to figure out. The name isn't one that you would intuitively research. The remedy is cognitive behavioral therapy (CBT) with a trained trauma specialist. It may reveal a single trauma able to be worked through in a couple months. Or, it may be the onset of PTSD as amnesia clears, memories and flashbacks begin, and traumas that recurred over a long time are slowly recalled as if re-living them. EMDR works great to reduce the intensity of flashbacks. Grounding tools help us reduce our own stress and stay present. CBT rewires the brain to file those memories away where they are not so troublesome anymore but remain as ugly, but relatively small in time, parts of our life's history.
And yes,there are the occasional morons who TRY to fake a seizure now andthen....And THOSE despicable people make it so much worse for those of us who ACTUALLY DO have these horrible,painful,and EMBARRASSING seizures ourselves!
Daisy Bond my step-sister faked seizures (Munchausen’s) and then 15 years later I would up diagnosed with intractable epilepsy...only to find out 7 years after that it was PNES 🤦🏻♀️ They pretty much stopped after I got off the seizure meds, thankfully.
People just don’t understand how it feels to randomly going about your day and boom your head feels over heated you’re immediately woozy and you faint.
I have PNES had to go to the ER for an unrelated illness. While there, I had an episode and the NURSES, not 1 but 3, told me to knock it the hell off and that I was " scaring the staff". Educated yourselves people. That kind of treatment is NOT OK.
I’m so sorry this happened to you. One would expect a different response in a hospital, but seems the compassion level was low and ignorance high-at least with this shift, anyway.
have had it for 10yrs topamax worked for only the first dose after having to adjust the dosages just to have it continue to work until the renal stones from that med caused for emergency surgery to remove a 7mm stone.
I have had epileptic seizures(simple partial,complex partial,and grand mal) for over 20 years and about 5 years ago I started having psychogenic seizures.As soon my neurologist knew that's what they were(luckily I was in hospital for a 48 hour EEG & I had a psychogenic seizure) and shared it with me I left the hospital and never had another psychogenic seizure again!
A few months ago my father ended up in the ER after having a seizure, which we thought was the first one ever. Apparently he's been having them for over 10 years (his ex told us). He didn't stay in the hospital long enough to get a full diagnosis (left against doctor's orders), but I'm pretty sure his neurologist said it was likely to be PNES. They put him on meds that he took for a few days and decided to stop taking because he didn't like how it made him feel. Whether it's PNES or epileptic seizures, he's still just out there driving and pretending like he's fine. He told me that last seizure he had caused him to tear his rotator cuff in his shoulder. He has bit his tongue many times now. Jeez, you can lead a horse to water but you can't make it drink.
The term "Pseudoseizure" is just plain IGNORANCE!!! Psychogenic Non-epileptic seizures is the correct term! They are INVOLUNTARY and are NOT faked! The person has NO control and in my case....i have absolutely NO warning before one hits me! I can have as many as 30 in one day! And there are some VERY ignorant socalled medical professionals out there who need to EDUCATE themselves before judging someone with PNES!!!
Chana Bayla “pseudo” refers to the fact that they look like epilepsy, but aren’t, not that they’re “fake” seizures. They are still “seizures,” just not epileptic ones. This is the first time I’ve ever heard someone say they can be stopped as they start. I was told over and over that I had no control over them, and since my memory was impaired I don’t know how I could have consciously thought to “go to a calm place” lol. I was mis-diagnosed for 7 years with right side TLE because I have other complex neuro issues and some strange EEGs. They had me on 5 different epilepsy meds that put me in alpha wave 24/7, and thankfully when I got off of them there was no permanent damage.
Very lightly that they have to follow a diagnostic manual with terms that may be misleading or dated. The medical professionals don’t have to agree with the name but if that’s what the name is in the manual that’s what they have to follow. That’s why you still hear medical professionals refer to autism as a disorder rather than a condition.
It just means that it is not epileptic in nature. There is another type of event that mimics a seizure that I call an orthostatic seizure. That isn't the clinical name but it is the name I can remember. It is another pseudo seizure, but a legitimate event. Pseudo gets a bad name because there are a lot of people that come into the ER faking seizures. Then that is called a pseudo seizure as well, and so pt's with legitimate medical issues like PNES get tossed into the same waist bin.
After 23 years and this explains my seizures extremely well indeed now this easy to understand,why I've been placed in the too hard basket an form 174 and my specialist couldn't careless (head truma back in 1998), and no answers, I still have seizures, they the Australian nuerospecialist couldn't careless for head truma patients. I've get my seizures at or around 4-8am, been in 4 times to the neuroscience Ward to be monitored, but as soon as I'm discharged I'm back in again because of my seizures,many a time I'm taken into hospital because I have seizures during the day. I've given up careing about my condition, if I have a seizure or not no one cares.
I’ve been suffering from this for about 8 years now and it’s gotten worse over the years but I’ve learn to live with it and just accept it not question why I get them or what causes it it gets easier in time
i have been diagnosed with non epilepsy seizures, i live a very stressful life, have depression, and it would make sense, the only thing is that my seizures only have ever happened in my sleep, i end up biting down on my tongue so bad that i can't eat at all. i had an eeg test done last year but that was after my week of seizures and it was starting to calm down by then. i wish there was proper medication for NES.
I have had seizures for the last ten years, went to a different doctor they give me different medicines, but none of those medicines work I get a seizure once in two months and some once in three months. I am in Houston Texas, I want to see you, where I can meet you or if could find I a good doctor in Houston. I would appreciate it, Dr. Fisher. I hurt myself when getting seizures. Please help me see you or anotther good Dr you in Houston, Texas. Thanks My name shirkhan
I strongly believe I’ve been having them but my doctor won’t listen to me and said that she wouldn’t give me a neurologist referral because they didn’t sound like full on grand mal seizures (idk if that’s how you spell it)
Gabriela Kutzner I’m so sorry. What an ignorant doctor. Keep fighting. You have to advocate for you! It took me almost a year to finally get a referral to neurology, where they recognized that it may be PNES. I was referred to a 5 day sleep study. And officially diagnosed with PNES.
I've come out of a left template lobe surgery in February last year, I had 33-35 a day, after the epilepsy surgery I am still having them up to 9-12 a day, although some days I have none.. I take 4000 epilem, and 1000 lamotrogen per day. Puss some others, I really want to try to off them but not sure, some say different to others. I've had the whole kit and caboodle in this so nothing I haven't tried or done.. I'm 33 and can have no kids as these tablets cause higher risk to myself and child when born, I've been told what the child could get as not many are 100%
So why if it's PNES have I been on life support twice due to pulmonary arrest, 2 aspiration pneumonias and have broken 9 bones since '09 during seizures. I am incontinent of urine...I had 4 cerebral blood vessels embolized in '03 which didn't go well, septic shock, elevated CSF constantly.....very sick. 2009 had 1st seizure while calmly working?
Because these seizures are real but neurologists don't know or care to reveal the real cause...I'm leaning towards GMOs or plastics contaminating food and water supply. Or an unknown genetic abnormality.
How is catatonia in schizophrenia, and bipolar, and even severe depression not a neurological disease, psychiatrist are even prescribing anti epilepsy drugs, at moderate doses, which have shown great efficacy in the latter two given with anti psychosis. These conditions are also even treated with ECT, an electric induced seizure? We have even had decent research that shows hypernormal or slow waves in schizophrenia on EEG. Similar things have been seen in bipolar as well.the overlap demands to be investigated.
I'm in trama therapy and I have a psychiatrist she does prescribe diazepam but I also have PTSD and Bipolar 2. I was told the first time I had them that I was having psychological issues and man they were not kidding. I have about 3-10 a day. Good luck to all of us!!
I help cure girls completely of PNES by helping them testify against their abuser’s in court. PNES is a mental suppression problem and it’s similar to how grief can manifest itself physically. You need a great exposure therapy specialist. People don’t realize just how powerful our thoughts and feelings can effect us or heal us! If you have any questions please don’t hesitate to ask!
The dangerous part isn't damage to the brain, but rather how it effects someone's life. If you black out or anything else, it doesn't matter whether it's caused by "electricity" in the brain or whether the brain is misfiring in another way, if you're driving or working in a factory when jt happens, it's dangerous. PNES *IS* still caused by the brain messing up and it has the same results - it just doesn't happen through an epileptic process. Rather, they are "pseudo," meaning that while they're real, they look like epilepsy even though they need a different form of treatment because other brain activity causes them. I was told that psychogenic seizures ARE still seizures, except that they come about by a different path and epilepsy drugs don't work on them because those drugs are meant to specifically target the epilepsy process. Doctors are still learning about PNES and a lot of research still needs to be done, so for now there aren't as many treatment options for this seizure type as there would be for epilepsy.
I was diagnosed with PNES also. And like @Miranda Brue, my old therapist said I was faking. However, my psychiatrist diagnosed me, and I ended up with a better therapist. Now I have the diagnosis, and have a better understanding of what it is to have PNES, I’m going through treatment and I’m hoping to recover from this eventually.
My life become miserable now A days Bcz from the age of 13 to till I m having this seizures A lot of medication lot of doctor gave me!! Now A a days it’s out of control it’s coming so frequently after two days later later and at the same time I m doing my job too!!! Doctor told me I have A pnes And living in New York not getting A proper treatment The best thing when it comes from when I m totally in stresss And I have no family and financial support
I spent xmas and xmas eve in the hospital with amnesia and confusion from 3 tonic-clonic seizures in a row and this isnt the first time we don't know the cause tho
The difference between epileptic and non epileptic seizures is that non epileptic seizures do not show during an EEG also I found out that it can happen to infants
Thanks for the clarifications! I have had multiple EEGs and no seizures ever showed but my oxygen saturation plummeted during them. When my doctor had told me about them I came to this video to help explain what they were and how I needed to proceed to rule it out or not and now I’m diagnosed with PNES and neurological dysfunction. It’s been a hard road but I’m glad I know more than I did and found a partner that helps me through them every day :)
My greetings to all my friends, friends few days ago I accidentally ate some rotten or bad walnuts, about three hours after eating I fainted, I fainted in about forty to fifty minutes, my mouth kept foaming and my tongue was also injured. hai when i regained consciousness a bit i will start vomiting violently is it due to bad walnuts or is it a symptom of epilepsy waiting for an answer
I have found that Drs arent much help with this. Except that one neurologist told me to take 400 mg of magnesium a day. That was the best advice I got. Other than that I've found medical cannibis to be my best friend.
I have this diagnosis still i do not fit the bill nor for epilepsy. no treatment exists that is proven to work . the only bill that fits is the one the proffesionals get on their bank account .
It did not help me. In fact it made me depressed and hurting myself without realizing what I was doing. I quit when I did realize it and turned to medical cannibis. That has helped more than anything else has.
Psychogenic non-epileptic seizures are a recognised symptom of Vitamin B12 deficiency. Check out b12d.org 'protocol for diagnosing and treating vitamin B12 deficiency, apendix C' lists it as a symptom of deficiency. I recommend careful scrutiny of the website as it explains why many doctors are missing this important information. You might think of the seizures as an early warning symptom that needs addressing (i.e.) with Vitamin B12 supplements not medical drugs, because other more severe symptom arise if a deficiency is not properly addressed. If recognised and treated in good time the symptoms can be reversed. If there are trauma issues EMDR can be helpful. Introducing more brain nutrients like vitamin D3 and Omega 3's is also a good move to help facilitate the necessary neurological repair work. I Hope thats helpful. My apologies for the delay in replying. Good luck Everybody!
I’ve self diagnosed my PNES with the help of my sister who worked in the neurology department at Johns Hopkins. People told me I was faking it or that it’s not as severe as I made it out to be. But it’s the only thing that makes sense and validates me symptoms. I’m so glad there’s people out there like me and can help justify that I’m not just crazy.
I hope you have seen a specialist, self diagnosing yourself is a very bad idea, neurological diseases isn't just a headache where you can take a painkiller, and then it's gone. I've had servere epilepsi my whole life, I'm 45 next month, and it wasn't until about 10 years ago they got my seizures under control. Good luck with everything 🙏
Self diagnosing you’re self is bad …and offense to ppl who ACTUALLY been diagnosed such as myself go to a doctor and get diagnosed with PNES don’t self diagnose you’re self
@@mirrah3939 you don’t know anything about me and my diagnoses so I don’t understand why you’re calling me offensive when you only know what it’s like to have PNES. You’re not a doctor, you don’t know me, you don’t know my symptoms, you don’t know anything about me, so I don’t understand why you felt the need to leave a scummy offensive comment on my comment. Leave a stranger alone and don’t be a bitch k?🙃
I just started having them after I had Covid really bad. I started having horrific anxiety and these seizures started
There is a neurological link between COVID and seizures. COVID is an arterial disease. It affects the arteries.
My cousin was recently diagnosed with PNES and this video was helpful to give me a bit of understanding.
Yes, I totally agree with you!Thanks for sharing 🙂
I was diagnosed with PNES after seizing in IKEA and a week in several hospitals where I was told I was having "pseudoseizures" Several malpractice suits later, I was given a PNES diagnosis. DONT LET "PROFESSIONALS" TELL YOU DIFFERENT FROM WHAT YOU KNOW YOU'RE FEELING.
Pseudo doesn't simply mean "fake". Pseudo also has connotations such as "looks most similar to X but isn't X". For instance, amoebas move by pseudopods (things that are akin to feet). There's a disease called pseudorabies that affects pigs, and looks a lot like rabies, but is not rabies, and nobody is claiming that the pigs are faking it.
PNES is pseudo seizures. But they’re just as a disabling as the ones that stem from brain activity. Although they don’t result in brain damage.
God only knows what your comment means, it’s so convoluted.
I've been having seizures for 2 years and my neurologist said that it was PNES. all through 12th grade I was told I was faking them. that I was just doing it for attention. so I didn't want to go back to school so I was homeschooled. then I went to a new school and they said I was faking them and just doing it for attention. after school I got a job and had 2 seizures and they told me that I couldn't come back. so my life I've been told that I was faking them and doing it all just to get attention. and I'm not faking them and doing it for attention. so you in their right mind would want to go and fake a seizure.
I have had seizures since 2014 it's horrible inus found out I have type 2 DIABETES 😥😭
May God Help you..Can you please let me know that when your seizures usually come? when u r stressed or it also comes when u r are relaxed..?.
@@sabajaved9515 Mine.. I have seizure when I'm stressed out.
does such seizure cause you having anxiety or increase heart rate ?
Hey can we talk I believe that's what's happening to me. My anxiety and stress is horrible. Just started having seizures last year
This information is vital for those dealing with PNES. Neurologists need to know it too! It is a terribly surprising thing to experience and try to figure out. The name isn't one that you would intuitively research. The remedy is cognitive behavioral therapy (CBT) with a trained trauma specialist. It may reveal a single trauma able to be worked through in a couple months. Or, it may be the onset of PTSD as amnesia clears, memories and flashbacks begin, and traumas that recurred over a long time are slowly recalled as if re-living them. EMDR works great to reduce the intensity of flashbacks. Grounding tools help us reduce our own stress and stay present. CBT rewires the brain to file those memories away where they are not so troublesome anymore but remain as ugly, but relatively small in time, parts of our life's history.
And yes,there are the occasional morons who TRY to fake a seizure now andthen....And THOSE despicable people make it so much worse for those of us who ACTUALLY DO have these horrible,painful,and EMBARRASSING seizures ourselves!
Daisy Bond my step-sister faked seizures (Munchausen’s) and then 15 years later I would up diagnosed with intractable epilepsy...only to find out 7 years after that it was PNES 🤦🏻♀️ They pretty much stopped after I got off the seizure meds, thankfully.
People just don’t understand how it feels to randomly going about your day and boom your head feels over heated you’re immediately woozy and you faint.
I have PNES had to go to the ER for an unrelated illness. While there, I had an episode and the NURSES, not 1 but 3, told me to knock it the hell off and that I was " scaring the staff". Educated yourselves people. That kind of treatment is NOT OK.
:(
I’m so sorry this happened to you. One would expect a different response in a hospital, but seems the compassion level was low and ignorance high-at least with this shift, anyway.
I have psychogenic non-epileptic seizures due to military service with PTSD anxiety disorder and migraines.
have had it for 10yrs topamax worked for only the first dose after having to adjust the dosages just to have it continue to work until the renal stones from that med caused for emergency surgery to remove a 7mm stone.
How you overcome it
Same
I have ptsd, anxiety
I have had epileptic seizures(simple partial,complex partial,and grand mal) for over 20 years and about 5 years ago I started having psychogenic seizures.As soon my neurologist knew that's what they were(luckily I was in hospital for a 48 hour EEG & I had a psychogenic seizure) and shared it with me I left the hospital and never had another psychogenic seizure again!
A few months ago my father ended up in the ER after having a seizure, which we thought was the first one ever. Apparently he's been having them for over 10 years (his ex told us). He didn't stay in the hospital long enough to get a full diagnosis (left against doctor's orders), but I'm pretty sure his neurologist said it was likely to be PNES. They put him on meds that he took for a few days and decided to stop taking because he didn't like how it made him feel. Whether it's PNES or epileptic seizures, he's still just out there driving and pretending like he's fine. He told me that last seizure he had caused him to tear his rotator cuff in his shoulder. He has bit his tongue many times now. Jeez, you can lead a horse to water but you can't make it drink.
I agree. It's really hard to deal with. I have PNES myself.
Contact this doctor directly on his WhatsApp number for your total cure. +2347030936239
Thank you so so much Robert fisher you and your team are the best 🥲
Awesome vid
The term "Pseudoseizure" is just plain IGNORANCE!!! Psychogenic Non-epileptic seizures is the correct term! They are INVOLUNTARY and are NOT faked! The person has NO control and in my case....i have absolutely NO warning before one hits me! I can have as many as 30 in one day! And there are some VERY ignorant socalled medical professionals out there who need to EDUCATE themselves before judging someone with PNES!!!
Hi Can you help me . Have you overcome this issue...my wife is going through the hell
@@bhargavtechverse7170 I am also suffering same how u manage it please tell me
Chana Bayla “pseudo” refers to the fact that they look like epilepsy, but aren’t, not that they’re “fake” seizures. They are still “seizures,” just not epileptic ones. This is the first time I’ve ever heard someone say they can be stopped as they start. I was told over and over that I had no control over them, and since my memory was impaired I don’t know how I could have consciously thought to “go to a calm place” lol.
I was mis-diagnosed for 7 years with right side TLE because I have other complex neuro issues and some strange EEGs. They had me on 5 different epilepsy meds that put me in alpha wave 24/7, and thankfully when I got off of them there was no permanent damage.
Very lightly that they have to follow a diagnostic manual with terms that may be misleading or dated. The medical professionals don’t have to agree with the name but if that’s what the name is in the manual that’s what they have to follow. That’s why you still hear medical professionals refer to autism as a disorder rather than a condition.
It just means that it is not epileptic in nature. There is another type of event that mimics a seizure that I call an orthostatic seizure. That isn't the clinical name but it is the name I can remember. It is another pseudo seizure, but a legitimate event. Pseudo gets a bad name because there are a lot of people that come into the ER faking seizures. Then that is called a pseudo seizure as well, and so pt's with legitimate medical issues like PNES get tossed into the same waist bin.
After 23 years and this explains my seizures extremely well indeed now this easy to understand,why I've been placed in the too hard basket an form 174 and my specialist couldn't careless (head truma back in 1998), and no answers, I still have seizures, they the Australian nuerospecialist couldn't careless for head truma patients.
I've get my seizures at or around 4-8am, been in 4 times to the neuroscience Ward to be monitored, but as soon as I'm discharged I'm back in again because of my seizures,many a time I'm taken into hospital because I have seizures during the day.
I've given up careing about my condition, if I have a seizure or not no one cares.
My seizures become also at 3-8 a.m. i guess this is a good point ,clue for doctors
I have anxiety induced non-epileptic seizures. Are people with that generally safe to drive or do they have to be 6 month event free?
Contact this doctor directly on his WhatsApp number for your Total Cure then. +2347030936239
I’ve been suffering from this for about 8 years now and it’s gotten worse over the years but I’ve learn to live with it and just accept it not question why I get them or what causes it it gets easier in time
Thanks
That’s my uncle Bob!
PNES is a mental suppression problem and exposure therapy is the best answer and cure!
its not in my head my mri scan shows damage too my spine at the neck
I recently started having these, and it's been hell. I was diagnosed with these by a neurologist.
i have been diagnosed with non epilepsy seizures, i live a very stressful life, have depression, and it would make sense, the only thing is that my seizures only have ever happened in my sleep, i end up biting down on my tongue so bad that i can't eat at all. i had an eeg test done last year but that was after my week of seizures and it was starting to calm down by then. i wish there was proper medication for NES.
I have pned aswell
Does anyone know of any universities or facilities conducting clinical trials that are looking into the causes of Pnes that they can recommend?
I recently read an article that non epileptic seizures can also happen to children or infants.. do you know anything about that?
I have had seizures for the last ten years, went to a different doctor they give me different medicines, but none of those medicines work I get a seizure once in two months and some once in three months. I am in Houston Texas, I want to see you, where I can meet you or if could find I a good doctor in Houston. I would appreciate it, Dr. Fisher. I hurt myself when getting seizures. Please help me see you or anotther good Dr you in Houston, Texas.
Thanks
My name shirkhan
I just got diagnosed with non epileptic seizures and am fighting to get medicine to treat the source.
Is that the same as a conversion disorder too.
Yes
I strongly believe I’ve been having them but my doctor won’t listen to me and said that she wouldn’t give me a neurologist referral because they didn’t sound like full on grand mal seizures (idk if that’s how you spell it)
Gabriela Kutzner I’m so sorry. What an ignorant doctor. Keep fighting. You have to advocate for you! It took me almost a year to finally get a referral to neurology, where they recognized that it may be PNES. I was referred to a 5 day sleep study. And officially diagnosed with PNES.
I've come out of a left template lobe surgery in February last year, I had 33-35 a day, after the epilepsy surgery I am still having them up to 9-12 a day, although some days I have none..
I take 4000 epilem, and 1000 lamotrogen per day. Puss some others, I really want to try to off them but not sure, some say different to others. I've had the whole kit and caboodle in this so nothing I haven't tried or done..
I'm 33 and can have no kids as these tablets cause higher risk to myself and child when born, I've been told what the child could get as not many are 100%
So why if it's PNES have I been on life support twice due to pulmonary arrest, 2 aspiration pneumonias and have broken 9 bones since '09 during seizures. I am incontinent of urine...I had 4 cerebral blood vessels embolized in '03 which didn't go well, septic shock, elevated CSF constantly.....very sick. 2009 had 1st seizure while calmly working?
Because these seizures are real but neurologists don't know or care to reveal the real cause...I'm leaning towards GMOs or plastics contaminating food and water supply. Or an unknown genetic abnormality.
I have PNES. 🙏
How is catatonia in schizophrenia, and bipolar, and even severe depression not a neurological disease, psychiatrist are even prescribing anti epilepsy drugs, at moderate doses, which have shown great efficacy in the latter two given with anti psychosis. These conditions are also even treated with ECT, an electric induced seizure? We have even had decent research that shows hypernormal or slow waves in schizophrenia on EEG. Similar things have been seen in bipolar as well.the overlap demands to be investigated.
I'm in trama therapy and I have a psychiatrist she does prescribe diazepam but I also have PTSD and Bipolar 2. I was told the first time I had them that I was having psychological issues and man they were not kidding. I have about 3-10 a day. Good luck to all of us!!
I help cure girls completely of PNES by helping them testify against their abuser’s in court. PNES is a mental suppression problem and it’s similar to how grief can manifest itself physically. You need a great exposure therapy specialist. People don’t realize just how powerful our thoughts and feelings can effect us or heal us! If you have any questions please don’t hesitate to ask!
Exposure therapy is the best medicine and I promise you this with all my heart!
There are two types of non-epileptic seizures: psychogenic and physiological.
Thank you
What is physiologial?
Are they dangerous, and can they increase the risk of future real seizures? or are they 100% harmless to the body and brain?
The dangerous part isn't damage to the brain, but rather how it effects someone's life. If you black out or anything else, it doesn't matter whether it's caused by "electricity" in the brain or whether the brain is misfiring in another way, if you're driving or working in a factory when jt happens, it's dangerous.
PNES *IS* still caused by the brain messing up and it has the same results - it just doesn't happen through an epileptic process. Rather, they are "pseudo," meaning that while they're real, they look like epilepsy even though they need a different form of treatment because other brain activity causes them.
I was told that psychogenic seizures ARE still seizures, except that they come about by a different path and epilepsy drugs don't work on them because those drugs are meant to specifically target the epilepsy process. Doctors are still learning about PNES and a lot of research still needs to be done, so for now there aren't as many treatment options for this seizure type as there would be for epilepsy.
I have them and have fractured my skull from a seizure. It's bad
I was diagnosed with PNES also. And like @Miranda Brue, my old therapist said I was faking. However, my psychiatrist diagnosed me, and I ended up with a better therapist. Now I have the diagnosis, and have a better understanding of what it is to have PNES, I’m going through treatment and I’m hoping to recover from this eventually.
My life become miserable now A days
Bcz from the age of 13 to till I m having this seizures A lot of medication lot of doctor gave me!!
Now A a days it’s out of control it’s coming so frequently after two days later later and at the same time I m doing my job too!!!
Doctor told me I have A pnes
And living in New York not getting A proper treatment
The best thing when it comes from when I m totally in stresss
And I have no family and financial support
I have non epliptic seizures in my sleep, they told me i have an overactive brain i take lamotrogine 25 mg once a night
I spent xmas and xmas eve in the hospital with amnesia and confusion from 3 tonic-clonic seizures in a row and this isnt the first time we don't know the cause tho
@jimmy E how long does these symptoms of confusion last?
I my self seen a fake seizures in a person at psychological seizures her eyes closed to 2mins.
I’m really confused. Do they show up in an EEG or brain scan? Or is it just by description, experience, or live and/or video evidence?
All of them to be sure !
No, PNES comes up in none of those scans and that is how we know they are non-epileptic as epileptic seizures come up on scan.
The difference between epileptic and non epileptic seizures is that non epileptic seizures do not show during an EEG also I found out that it can happen to infants
Nope. I had MRI, EEG and video EEG too. It doesn't show in any of them
Thanks for the clarifications! I have had multiple EEGs and no seizures ever showed but my oxygen saturation plummeted during them. When my doctor had told me about them I came to this video to help explain what they were and how I needed to proceed to rule it out or not and now I’m diagnosed with PNES and neurological dysfunction. It’s been a hard road but I’m glad I know more than I did and found a partner that helps me through them every day :)
My greetings to all my friends, friends few days ago I accidentally ate some rotten or bad walnuts, about three hours after eating I fainted, I fainted in about forty to fifty minutes, my mouth kept foaming and my tongue was also injured. hai when i regained consciousness a bit i will start vomiting violently is it due to bad walnuts or is it a symptom of epilepsy waiting for an answer
Where’s your doctor?
can you have an Aura before a non-epileptic AKA pseudoseizure?
Yes i have lots before
I have the diagnosis but no one to treat me. I need help. Where can I look?
I have found that Drs arent much help with this. Except that one neurologist told me to take 400 mg of magnesium a day. That was the best advice I got. Other than that I've found medical cannibis to be my best friend.
How and who can tell the difference???
You can know by the EEG test. The lines are wider and bigger in epileptic seizures. You can see his other videos for reference.
The body movements are different in a psychological seizure from that of an epileptic seizure.
I have epilepsy and non epileptic seizures
I have this diagnosis still i do not fit the bill nor for epilepsy. no treatment exists that is proven to work .
the only bill that fits is the one the proffesionals get on their bank account .
Is clorazapam a seizure med
Yes it is.
It did not help me. In fact it made me depressed and hurting myself without realizing what I was doing. I quit when I did realize it and turned to medical cannibis. That has helped more than anything else has.
I have pnes and anxiety brings it out clonzapam helped me alot also ativan
Check out VItamin B12 deficiency symptoms
What about it??
Psychogenic non-epileptic seizures are a recognised symptom of Vitamin B12 deficiency. Check out b12d.org 'protocol for diagnosing and treating vitamin B12 deficiency, apendix C' lists it as a symptom of deficiency. I recommend careful scrutiny of the website as it explains why many doctors are missing this important information. You might think of the seizures as an early warning symptom that needs addressing (i.e.) with Vitamin B12 supplements not medical drugs, because other more severe symptom arise if a deficiency is not properly addressed. If recognised and treated in good time the symptoms can be reversed. If there are trauma issues EMDR can be helpful. Introducing more brain nutrients like vitamin D3 and Omega 3's is also a good move to help facilitate the necessary neurological repair work. I Hope thats helpful. My apologies for the delay in replying. Good luck Everybody!