„Hope is the absence of dispair“, wow, so simple and so true! It saved my life once to find a tiny bit of hope in a sea of dispair, making it vanish into something else, giving me the strength to survive. Thanks for this reminder!
Meditation, being gentle with myself, trying to grow a mindset of not allowing my health challenges to define me. And yes going with it, not fighting it. Pacing and even daily small efforts I find difficult to keep up with Fibromyalgia
I think maybe a reason why patients share with themselves, is there is no one telling them to stop being a victim. There's power and connection in conscious complaining, rather than having to stuff that down. If your reality is consistently being denied by all around, finding community is naturally going to promote those views. Holding space and being curious about that, would surely be more helpful?
Thank you both of you, brilliant podcast! I honestly believe my attitude is why I'm still standing adter being told 40yrs ago fhat I'd be in a wheelchair within 2yrs
@@GiolaPressacco i used a company called 10xhealthsystems or you can ask your GP but 90% of GP are ignorant these days lol... TMG betains, there so many products on amazon cheap. im currently using double wood.
Be humbled and grateful that you are so loved and supported! Acknowledge the feelings of guilt and choose to reframe. Question self as to whether feeling guilty is a good use of energy. Choose kindness and love that husband of yours!
Don't feel guilty. You would do the same for him. Be thankful he Wants to help, because he cares and loves you ❤ Tell him every day you appreciate him, with a smile 💗
You shouldnt feel guilty its never anybodyys fault that they get sick but sadly it doesnt only affect you as a patient but also everyone that cares about you ! ❤😢😊
So what's your advice for people who when they try to get fitter get worse, their activity ceiling is lowered on exercise? Diagnosed SLE and fibromyalgia along with others.
I think we need to reframe the term 'pity party' for those that are at that legitimate stage in their healing, not to have additional shame heaped on whilst they are partying 🎉
I spent a lot of years on ME/CFS forums in the years when we patients thought that the magic bullet was just around the corner. It is now many years later and no one has found that magic bullet yet, and because of this, the mood on the forums continues to sink. When new members come in with stories of how much they have improved using methods similar to what CFS Health is presenting, they are not only not believed but often are treated like pariahs. Very tragically, forums are also filled with the stories of those who have committed suicide--sometimes because they are in extreme pain and can't get relief, or they are out of money and may become homeless, but often because it is just too hard and they have lost hope and the will to live. I decided years ago that forums were not a place for patients to thrive and no longer read them.
I've diagnosed myself after 42 yrs of seeing sooo many drs and ruling out many things. What I don't understand is why did none of these drs mention M.E?
How do you find a doctor that cares like you. It’s few and far between. My daughter suffers terrible with fatigue and it weighs on her mentally. She has IST and other things and we can’t find a dr that will find the root cause and find real solutions that are going to work.
I don't think her disagreement with Toby on that one point was really a disagreement but a different way to say the same thing. Anyway some good points in the interview Toby, thanks for all your work. I'm trying not to give up hope after actually getting worse over the years and trying to implement your teachings since doing the Foundations Course last year. I've had a lot of anxiety with menopause so that's not helped. Working on mindset and baseline still.
I did the DNA testing which came back to show what I'm susceptible to. What is the main purpose of these tests? As you said we are not bound by what they say but what we are susceptible to genetically is obviously also something that is out of our control
„Hope is the absence of dispair“, wow, so simple and so true!
It saved my life once to find a tiny bit of hope in a sea of dispair, making it vanish into something else, giving me the strength to survive. Thanks for this reminder!
Meditation, being gentle with myself, trying to grow a mindset of not allowing my health challenges to define me. And yes going with it, not fighting it. Pacing and even daily small efforts I find difficult to keep up with Fibromyalgia
"You never lose your power" just made me cry! So helpful when feeling all your power is gone ❤
My life, I have none. Severe arthritis and fibromyalgia among other things. I didn't hear anything that would help me.
Mental, emotional and physical aspects so important in regard to Fibromyalgia. It affects every area of one's life.
I think maybe a reason why patients share with themselves, is there is no one telling them to stop being a victim. There's power and connection in conscious complaining, rather than having to stuff that down. If your reality is consistently being denied by all around, finding community is naturally going to promote those views. Holding space and being curious about that, would surely be more helpful?
I love Dr Olivia! I would listen to booth of you all day long ☺🥰 Thank you Toby 😘💙
You're welcome!
Keeping the hope alive. That's the best but not always easy.
So many gems in this conversation. ❤
Thank you both of you, brilliant podcast! I honestly believe my attitude is why I'm still standing adter being told 40yrs ago fhat I'd be in a wheelchair within 2yrs
Please check your methylation, i solved my CFS and fully recovered from taking TMG Betaine and methyl-folate :)
Hi Charles, how did you ck your methylation, blood work thru your GP?
What brands did you use of TMG Betaine and methyl-foliate?
@@GiolaPressacco i used a company called 10xhealthsystems or you can ask your GP but 90% of GP are ignorant these days lol... TMG betains, there so many products on amazon cheap. im currently using double wood.
Thanks for sharing what worked for you. What dosage worked for you, and how long did it take to recover? :-)
how do you stop feeling guilty? watching my husband do all the work, when he has just worked a 60 hour week
Your body is working hard too but in a different way. Be grateful to your husband and express it instead of feeling guilt.
Be humbled and grateful that you are so loved and supported! Acknowledge the feelings of guilt and choose to reframe. Question self as to whether feeling guilty is a good use of energy. Choose kindness and love that husband of yours!
Don't feel guilty. You would do the same for him.
Be thankful he Wants to help, because he cares and loves you ❤ Tell him every day you appreciate him, with a smile 💗
You shouldnt feel guilty its never anybodyys fault that they get sick but sadly it doesnt only affect you as a patient but also everyone that cares about you ! ❤😢😊
Makes total sense, BUT You’re still probably just as much if not more exhausted than he gets and hopefully he understands what you’re going through.
So what's your advice for people who when they try to get fitter get worse, their activity ceiling is lowered on exercise?
Diagnosed SLE and fibromyalgia along with others.
Thank you.
Listening.
I think we need to reframe the term 'pity party' for those that are at that legitimate stage in their healing, not to have additional shame heaped on whilst they are partying 🎉
I spent a lot of years on ME/CFS forums in the years when we patients thought that the magic bullet was just around the corner. It is now many years later and no one has found that magic bullet yet, and because of this, the mood on the forums continues to sink. When new members come in with stories of how much they have improved using methods similar to what CFS Health is presenting, they are not only not believed but often are treated like pariahs. Very tragically, forums are also filled with the stories of those who have committed suicide--sometimes because they are in extreme pain and can't get relief, or they are out of money and may become homeless, but often because it is just too hard and they have lost hope and the will to live. I decided years ago that forums were not a place for patients to thrive and no longer read them.
I totally hear what you're saying about groups/firums etc, I've left so many because they've been so negative and I was looking for the opposite
I've diagnosed myself after 42 yrs of seeing sooo many drs and ruling out many things. What I don't understand is why did none of these drs mention M.E?
How do you find a doctor that cares like you. It’s few and far between. My daughter suffers terrible with fatigue and it weighs on her mentally. She has IST and other things and we can’t find a dr that will find the root cause and find real solutions that are going to work.
I don't think her disagreement with Toby on that one point was really a disagreement but a different way to say the same thing. Anyway some good points in the interview Toby, thanks for all your work. I'm trying not to give up hope after actually getting worse over the years and trying to implement your teachings since doing the Foundations Course last year. I've had a lot of anxiety with menopause so that's not helped. Working on mindset and baseline still.
I jad and survived a serious hemoraghing stroke some years ago got my fatigue syndrom and epilepsy after that ! 😢😅
I did the DNA testing which came back to show what I'm susceptible to. What is the main purpose of these tests? As you said we are not bound by what they say but what we are susceptible to genetically is obviously also something that is out of our control
The world of epigenetics
I also have fibromyalgia and I getting worse. I didn't get any help from this video. Thanks for nothing.