Medical Stories - XLMTM: The Brave Front

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  • เผยแพร่เมื่อ 2 ต.ค. 2024
  • X-linked myotubular myopathy (XLMTM or MTM) is a rare muscle disorder that affects just 1 in 50,000 newborn males, according to the National Organization for Rare Disorders.
    Medical Stories focuses on two families with children affected by XLMTM: Erin and Mark and their son, Will; and Marie and her two sons, Reid and Paley. United by their love for their children, Erin and Marie also explain how they built a community to support other families affected by the disorder.
    Featuring renowned expert:
    Michael Lawlor, CEO of Diverge Translational Science Laboratory and professor at the Medical College of Wisconsin.
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ความคิดเห็น • 5

  • @ar1535
    @ar1535 3 หลายเดือนก่อน +1

    Made me cry.. so beautiful kids. May God comfort and encourage us continually. Truly blessed kids.

  • @karenfisher4170
    @karenfisher4170 3 หลายเดือนก่อน

    Thank you for sharing your stories.🙏🏼

  • @beverlylumley4150
    @beverlylumley4150 3 หลายเดือนก่อน +3

    Our thoughts and prayers are with you.

  • @TheBranisha
    @TheBranisha 3 หลายเดือนก่อน +2

    This was an absolutely beautiful story. Thank you for sharing your Reid & Will with the world. May God continue to bless the Wood and Ward family ❤

  • @96mandy1
    @96mandy1 2 วันที่ผ่านมา

    Both my brothers and I have this disease. My mother is showing similar symptoms onset now, as an adult.