Ep. 20 Parkinson’s and Anxiety
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- เผยแพร่เมื่อ 2 ก.ค. 2024
- Parkinson’s disease can make us all a jittery mess. In this video, I explain the daily struggles we can deal with in the hopes of bringing a little bit of understanding to the situation.
/ jeremymac76 - เพลง
When I’m around some people and I notice mild shaking something takes over and things escalate. When I’m around friends that don’t judge or would say something to break the tension I’m find. My Rock Steady Boxing group is good that way. We call out to someone having a great day for them and help everyone that’s not. Like the channel, keep it up.
I’m happy that Rock Steady Boxing is working for you. I am too dyskinetic to box without falling over, unfortunately. Thx, for watching!
Went back and watched this anxiety video. My last year of work was filled with anxiety. It was an awful experience.
Anxiety is the worst!
I've been lucky enough that I need only take *very* small amounts of medication for my Parkinson's. I've developed other strategies for dealing with all the symptoms, including anxiety. I was offered anti-anxiety medication but have opted to "train" myself to avoid the high levels of anxiety I used to experience. So far so good but I know I'm simply delaying the inevitable... but every day is still a good day.
It’s cool that you’ve found a way to deal with anxiety. Awesome!
You are helping others to cope. I know, because you have opened up some ideas I never thought of before and I am grateful for that. Thanks for the videos.
That’s awesome, Ed! Thank you for the feedback!😎
You are GREAT!
Awww! Thank you so much!
Well explained,
Thank you, Dee!
Hi Jeremy, I've been going through your videos and really enjoying them and this one on anxiety in particular really hit home. Hope you keep them coming. Thanks.
I’m glad something I said was helpful! Thx!
Always appreciate your point of view. I can relate. Take care.
Thank you so much! I’m just glad someone else can relate!
I always look forward to your videos. I don't really have issues with anxiety (YET); however, in the past few years I've become self conscious about my expression. People would ask what's wrong or tell me to smile cause it's not that bad. I thought, man I must really have a bad RBF. It got to the point where I'd start rolling my lips in so my expression wouldn't look like I was upset. It helps to know that the masked face is a symptom, so at least I have an understanding of why people see me that way. BTW, I love all the cool stuff you have in the background of your videos. Looking forward to your next topic!
I used to get so sick of people telling me things like "Stop making your tough guy face!". I didn't even realize I was making a face! I started chewing gum about 3-4 years before my diagnosis just to keep my face moving.
Oh, and thx for noticing all the little details!
@@JeremyMcdonald My wife would always ask me "why are you scowling " before I was diagnosed .
@@1983mojo1 Same here!
Hey buddy, you are 100% correct. I can relate to everything you mentioned. See you on the next one 👍🏼❤️👊🏽
Right on, bro!
This is useful stuff. Thanks very much.
I'm glad it helps!
Excellent Information
Glad it was helpful!
Hot Rod Lincoln!! 🎶🎶🎶
Her name is Helen! 😃
Hi Jeremy, thanks for another great video. I really appreciate your candor in explaining all the ways that Parkinson's affects your life. I am still awaiting my appointment with the neurologist and my greatest concern is how these medications that are supposed to make your symptoms manageable seem to last only a very short time and often reek havoc on your mind and body. Are the benefits great enough to overcome the side effects? Is it absolutely necklace to take
There is a relay ìn the trunk that shuts the fuel pump in case you get rear ended, make sure it's not loose and is level. My dad had this issue.
It’s fixed now. Thx, Joe!
Gracias Amigo!!
De nada!
Hi Jeremy. I need to plan an escape route if I go to somebody’s house and make sure I have somewhere safe and dark and quiet to go lay down if the anxiety gets bad
Ah, yes! The PD escape plan. I know it well!
Thanks for the informative video. The anxiety is real and mine comes on when my meds aren't working and I get over stimulated and get tired. Then a nap is in order (sometimes that works). And yes, you even have to watch what you eat and when. Everything has become so complicated and much harder to deal with now with PD. Has anything gotten easier? Thanks for your insight - please keep it coming - it's appreciated.
Thx for the kind words, Ann! Things get easier when you set limits and accept them. Stress makes everything much worse. Pick your moments and don't force yourself to live up to pre-PD you.
@@JeremyMcdonald Thank you for your insight. I am having trouble letting the pre-PD me go and it does cause me stress. I know she'll never be back. It is difficult to know that part of you is dead and gone.. I am struggling to find new things to be interested in. And it also doesn't help if your spouse misses the "old" you, too. It's like grieving for someone who has passed. I will try to set limits and accept them--good advice. Thanks.
My thoughts exactly!! Thanks for sharing this. Most days I feel like it’s all too much trouble. I’d like to just give up and crawl into a dark cave!
I can completely relate! Sometimes it’s just too much.😬
0:07 .😅😅😂❤□■ .21
Yes, Jeremy the anxiety is real. That’s why I need one of my kids always with me when I go out. Also, feel like all eyes are on me, which is all in my head.
It can be overwhelming! I usually go out with my wife, too.
I have problems with anxiety that I can't really explain. I've always been tightly wound a Type A personality. I don't mind so much if people see my tremors but I don't want people to focus on them so if possible I sit on my hand. I use to be able to handle parties with people I didn't know now I put on a face and act like I want to be there . Don't know if it's the disease or the pramipexole that does this.
Sometimes I use the sitting on my hands thing, too. Before PD, I didn’t worry about any of this!
Jeremy, I'm sorry for sending my comment before I was finishedI-it's been a long day! I just wanted to ask if it is absolute necessary to take these prescription medicines, like Levodopa and Carbodopa. How soon after your diagnosis do the doctors start you on them? What happens if you choose not to take them? Are there any natural/holistic practices that you are familiar with? Boy, does this topic make me feel anxious!! Thanks for your patience and understanding with me!
I can tell you what my experience has been. Every medication comes with side effects, they are listed on that paper that comes with the prescription. For every side effect there is---there is another drug to help with that side effect. And if that one should have a side effect that is bothersome they have a drug for that. I never met a doctor yet (I have had 4 neurologists) that has taken me OFF a drug -- only given me more to take. And then when you have maxed out of the drugs--they will then talk about DBS surgery. Sorry to be so negative but I hate taking PILLS,
I have to take Sinemet or the stiffness becomes almost unbearable. As far as alternatives, I haven't found much that works for me but yoga and exercise. I started on Sinemet immediately because I had such a great response at first. However, everyone is different. Hang in there, Jeannine!
@@annsheehan1266 Thank you so much for your response!! This is exactly what worries me--an endless stream of medications that do increasingly less to help and require other meds to offset their side effects.
@@JeremyMcdonald Thank you for your kind reply, Jeremy. I have watched some of your other videos and maybe I've misunderstood but it seems like you are able to walk more fluidly before the meds kick in. And their duration seems to last for shorter periods of time, too. I'm so sorry that you are going through this experience but so grateful that you are so gracious and willing to share all that you've learned. And thank you for taking the time to answer my questions and have this conversation with me. You are truly a blessing!
@@jeanninehill6009 I am humbled by your compliments! And yes, it is not uncommon for my to walk 2 miles at a time while “off”. But once I take my L-dopa, I can barely walk a couple of steps at a time.
My meds make me nauseated if I take on an empty stomach.
I usually take it with crackers. That seems to work.
@@JeremyMcdonald my problem is I forget a lot of the times then I feel like I gonna puke if I m not at home and cant get to a snack. Your channel is great ,keep up the good work..
@@1983mojo1 Thanks so much for watching! I’m glad people are digging it!