Hi Nicky, interesting video. I never knew there were 4 stages! Let’s face it, getting a diagnosis usually takes years.I hated being brushed off by GPs. I don’t know about my stage, I’m not really at stage 4, and am maybe a 3. I find the IBS a nightmare, especially if I can’t get out the door, and need a loo 24/7. Xx
@@carolhydon7324 the diagnosis can take a while due to tests being done to rule out other illnesses and like you say making yourself heard too. Have you tried the low fodmap diet for IBS? I find it works great for me and most gastro drs recommend it. 😊❤️
Hi Nicola good to c u u r amazing this could be me u r talking about it is so much like my fibromyalgia story the stages r so hard to go through it’s so sad we go through all this every day and to think the is no cure for this I also have other health problems and it’s not good thank u for all your help u r so kind to us all take care c u soon from Jackie 🌈💪
Thanks for this, Nicola. It is funny; my 18yo was nearby when I was watching. At first he said, “Oh Mum! Isn’t it enough to live with it without listening to someone talk about it, too?” By the end he said, “Wow she is so knowledgable and positive, I get why you like her.” ❤ As far as the stages go: I wonder if we ever get to cruise in stage 4? Life keeps changing around us, as for everyone, and I find that at the moment I am going through it all over again. I have had fibro for 8+ years and lately it has been a lot worse. I think it is because my kids’ needs have changed again (they WILL keep growing.) I have been in denial about how it affects me, and I am now in stage 3 again. (Oh the depression is pretty horrible this time, too.) The good thing is, I know this is just awful, but I have been through stage 3 and into Stage 4 before, so hopefully it will happen again - until the next time. 🤷♀️
@@nashd8005 I think we can go between the stages much like the denial, grief and acceptance. I think we are all guilty at some points of denying the problem so we make it worse. I also believe stress and depression are massive factors in tje severity of Fibro and something I want to look more into depth on. ❤️
Wow! I have same med problems you do . I’m just wondering if you have checked for Crohns instead of IBS. I have it. You’re the best ! This was so informative for ME I’m not alone with all the other ailments we have. I know at least someone out there we is with me . 😮 I keep working with this situation because you and I are survivors! You have such a lovely family and I’m glad you do.
@@vivianpennington5330 ah, thank you! I have been checked for all bowel issues in the past. I have had severe IBS since I was 6 so know how to treat it but still get flare ups of it. I am glad you don't feel alone! 😘❤️
I was just recently diagnosed with fibromyalgia. We just thought it was just my other chronic illnesses ( lupus/ rheumatoid arthritis )that were pain issues and they did. However, Dr's finally figured out that I have fibromyalgia I am in stage 4😑
Thanks for this, i dont know what stage im at. I started feeling bad in 2016. I went to a pain doctor that told me i had Fibro but the next visit she decided i didnt so i just quit going to her. She never could make her mind up. My family doctor knows that i do and all my symptoms are a copy. I have a hard time here trying to find the right doctors for this.
@@lynnewoodby8227 that is so frustrating. Getting a good GP can be very hard. Maybe phone up a few surgeries and ask at reception if any drs specialise or are particularly good with chronic illness? I got lucky with mine, she is great as although she is like most who doesn't really know much about it, she listens to me and goes with what I want to do or try while giving her medical advice. I hope you find someone to help. Have you tried supplements as I find these very helpful?
This was interesting... I've not heard these before. I think i was in stage 4 but have slipped back to stage 3. I've been having a bad flare since June and am starting to doubt everything. Is it physological, is it because my iron is low... will I ever be better or will I be in constant flare or aleays pacing myself to the extent I do so little.
I have tried all of them nothing works for me as I have it so bad so I have given up and just try to live with it although it’s not easy I can only say I don’t know what I would do without my husband as he has to do so much for me take care, Rita
Hi Nicola please could you tell me how to get diagnosed with fibromyalgia as I am certain that I have it and have mentioned it to my doctor but he doesn’t seem to respond to what I am saying. He says there is no test for fibromyalgia so how do I find out. I have osteoarthritis and have had it for years. I would appreciate it if you could help me to find out.
Hi your GP should refer you to Rheumatology who will test you for other conditions and if they rule them out they will consider fibromyalgia. They normally do a pressure point test where they apply light pressure to areas of your body . There are 18 points and you have to have pain in at least 11 that is on both sides of your body that has lasted for three or more months. If your go isn’t listening I would ask to see someone else
@@gailbourne4506 ok, so Fibromyalgia is diagnosed after tests are done to rule out other illness you might have that could be causing the symptoms. It is usually diagnosed after 3 months of unexplained chronic pain but some drs want longer than that. Your GP is your first port of call then they might refer you to a rheumatologist or pain clinic. I was diagnosed by the pain clinic. It can take a while for the diagnosis. Hope that helps! 😊❤️
@@Julie-sk8mc it depends how many hours you are working. You can only work a certain amount to be able to claim it. Best phone citizens advice and ask.
@@helenjackman7530 I found it, it's in their sale! £10.50! I have screenshotted it but can't attach on here. Do you follow me on FB or insta as you can DM me so I can send you the picture?
Oh! I was also thinking about another aid that I find brilliant. I have an electric pressure cooker. (It is like the American Instant Pot, but a different brand.) Some of the ways it helps me: *days when I know I will fade before it is time to make dinner; *days when maybe I could have used a slow cooker but I fibro fogged getting the meat out of the freezer in time; days when pain has stopped me getting up early enough to use a slow cooker for dinner. I also think it is easier clean up than a pot on the stove. I love it so much I am always changing up recipes to cook in it instead. 😊
Hi Nicky, interesting video. I never knew there were 4 stages! Let’s face it, getting a diagnosis usually takes years.I hated being brushed off by GPs. I don’t know about my stage, I’m not really at stage 4, and am maybe a 3. I find the IBS a nightmare, especially if I can’t get out the door, and need a loo 24/7. Xx
@@carolhydon7324 the diagnosis can take a while due to tests being done to rule out other illnesses and like you say making yourself heard too. Have you tried the low fodmap diet for IBS? I find it works great for me and most gastro drs recommend it. 😊❤️
Oh my gosh I had no idea of the stages it now totally makes sense to me. thank you so much for takeing your time to help others.
@@peterbatha9942 no problem! 😊
Thank you for the info Nicola, it's good to recap ❤ x
@@maltesecross2056 you're welcome! 😊
Hi Nicola good to c u u r amazing this could be me u r talking about it is so much like my fibromyalgia story the stages r so hard to go through it’s so sad we go through all this every day and to think the is no cure for this I also have other health problems and it’s not good thank u for all your help u r so kind to us all take care c u soon from Jackie 🌈💪
@@jackieedwards2023 bless you, thank you Jackie, I do my best! 😊❤️
Thanks for this, Nicola.
It is funny; my 18yo was nearby when I was watching. At first he said, “Oh Mum! Isn’t it enough to live with it without listening to someone talk about it, too?” By the end he said, “Wow she is so knowledgable and positive, I get why you like her.” ❤
As far as the stages go: I wonder if we ever get to cruise in stage 4? Life keeps changing around us, as for everyone, and I find that at the moment I am going through it all over again. I have had fibro for 8+ years and lately it has been a lot worse. I think it is because my kids’ needs have changed again (they WILL keep growing.) I have been in denial about how it affects me, and I am now in stage 3 again. (Oh the depression is pretty horrible this time, too.) The good thing is, I know this is just awful, but I have been through stage 3 and into Stage 4 before, so hopefully it will happen again - until the next time. 🤷♀️
@@nashd8005 I think we can go between the stages much like the denial, grief and acceptance. I think we are all guilty at some points of denying the problem so we make it worse. I also believe stress and depression are massive factors in tje severity of Fibro and something I want to look more into depth on. ❤️
Wow! I have same med problems you do . I’m just wondering if you have checked for Crohns instead of IBS. I have it. You’re the best ! This was so informative for ME I’m not alone with all the other ailments we have. I know at least someone out there we is with me . 😮 I keep working with this situation because you and I are survivors! You have such a lovely family and I’m glad you do.
@@vivianpennington5330 ah, thank you! I have been checked for all bowel issues in the past. I have had severe IBS since I was 6 so know how to treat it but still get flare ups of it. I am glad you don't feel alone! 😘❤️
Fantastic tips Nicola
@@ScottRamsay1066 thank you! 😊
I'm a stage 4 ❤❤❤❤
@@kimemerson5486 me too! 😊❤️
I was just recently diagnosed with fibromyalgia. We just thought it was just my other chronic illnesses ( lupus/ rheumatoid arthritis )that were pain issues and they did. However, Dr's finally figured out that I have fibromyalgia
I am in stage 4😑
Took 10 years for me to get dignoise as the doctors just kept leaving me. I finally got dignoise 10 years later by a doctor that from another surgery.
Thanks for this, i dont know what stage im at. I started feeling bad in 2016. I went to a pain doctor that told me i had Fibro but the next visit she decided i didnt so i just quit going to her. She never could make her mind up. My family doctor knows that i do and all my symptoms are a copy. I have a hard time here trying to find the right doctors for this.
@@lynnewoodby8227 that is so frustrating. Getting a good GP can be very hard. Maybe phone up a few surgeries and ask at reception if any drs specialise or are particularly good with chronic illness? I got lucky with mine, she is great as although she is like most who doesn't really know much about it, she listens to me and goes with what I want to do or try while giving her medical advice. I hope you find someone to help. Have you tried supplements as I find these very helpful?
Morning Nicola 😊
@@julie_uk_ morning! 😊❤️
This was interesting... I've not heard these before. I think i was in stage 4 but have slipped back to stage 3. I've been having a bad flare since June and am starting to doubt everything. Is it physological, is it because my iron is low... will I ever be better or will I be in constant flare or aleays pacing myself to the extent I do so little.
I have tried all of them nothing works for me as I have it so bad so I have given up and just try to live with it although it’s not easy I can only say I don’t know what I would do without my husband as he has to do so much for me take care, Rita
@@58mary999 I am glad you have a good husband to help you.
Hi Nicky I was aware of only three fibromyalgia stages not 4 I hope your well ❤❤
@@catpotter9503 yes, same as me which was why I was intrigued to find out more. 😊❤️
@@LordandLordettes brilliant idea Nicky I have learned so much 🩷❤️🩷
@@catpotter9503 I am glad you have! Thanks for watching! 😘
Hi Nicola please could you tell me how to get diagnosed with fibromyalgia as I am certain that I have it and have mentioned it to my doctor but he doesn’t seem to respond to what I am saying. He says there is no test for fibromyalgia so how do I find out. I have osteoarthritis and have had it for years. I would appreciate it if you could help me to find out.
Hi your GP should refer you to Rheumatology who will test you for other conditions and if they rule them out they will consider fibromyalgia. They normally do a pressure point test where they apply light pressure to areas of your body . There are 18 points and you have to have pain in at least 11 that is on both sides of your body that has lasted for three or more months. If your go isn’t listening I would ask to see someone else
@@gailbourne4506 ok, so Fibromyalgia is diagnosed after tests are done to rule out other illness you might have that could be causing the symptoms. It is usually diagnosed after 3 months of unexplained chronic pain but some drs want longer than that. Your GP is your first port of call then they might refer you to a rheumatologist or pain clinic. I was diagnosed by the pain clinic. It can take a while for the diagnosis. Hope that helps! 😊❤️
Hi Nicky when you are going through assessment stage, can you still work during that time,
@@Julie-sk8mc are you talking about pip assessment? If so then yes you can still work and apply for pip.
@@LordandLordettes no esa
Thank you for replying
@@Julie-sk8mc it depends how many hours you are working. You can only work a certain amount to be able to claim it. Best phone citizens advice and ask.
@@LordandLordettes just 6hrs
Hi Nicola,where did your pretty top come from? Thanks Helen x
@@helenjackman7530 it was from Next a couple of months ago. 😊
Thanks Nicola xx
Searched on line but couldn’t find it☹️
@@helenjackman7530 I found it, it's in their sale! £10.50! I have screenshotted it but can't attach on here. Do you follow me on FB or insta as you can DM me so I can send you the picture?
Have no support and no family member to support
@@suzieh3744 do you have any friends you can talk to? If not, see if there are any groups you can join online or locally.
Oh! I was also thinking about another aid that I find brilliant. I have an electric pressure cooker. (It is like the American Instant Pot, but a different brand.) Some of the ways it helps me: *days when I know I will fade before it is time to make dinner; *days when maybe I could have used a slow cooker but I fibro fogged getting the meat out of the freezer in time; days when pain has stopped me getting up early enough to use a slow cooker for dinner. I also think it is easier clean up than a pot on the stove. I love it so much I am always changing up recipes to cook in it instead. 😊
@@nashd8005 good tip! 😊