8 Minutes of Your Time

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  • เผยแพร่เมื่อ 20 ธ.ค. 2011
  • A Part of my life and How I came out with Wegener's Disease.. Just hoping to open up someone's eyes.
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ความคิดเห็น • 12

  • @Lac1eBlu
    @Lac1eBlu 12 ปีที่แล้ว

    I was diagnosed in nov 2010. I had to have an emergency tracheostomy in Jan 2011. I am still fighting this disease. I know how hard it is and how it seems like it comes out of no where to mess up your life but your right, Smiling helps. I also try to take 5 min at the least to visualize myself well and whole. I also live with Chron's disease, another auto-immune disease. Hang in there. It's nice to see others like me. Thank you.

  • @postalpercy
    @postalpercy 12 ปีที่แล้ว

    the world is richer with you in it. You have such a great smile. Would be proud to have you as my son.

  • @BlvckVnkhor
    @BlvckVnkhor 12 ปีที่แล้ว

    You're gonna make it bro. Don't worry about it. Be blessed. Praying 4 you man.

  • @tejai5582
    @tejai5582 10 ปีที่แล้ว

    Hey - loved your video, thanks for posting it. I have been living with WG for 19 years. Been through a lot, but I always keep positive and have hope. Love and peace to you, my friend.

  • @Jhaven504
    @Jhaven504  12 ปีที่แล้ว

    @P1nache Thanks. I really hope things go well for you. Like i said I know I'm not alone. It just seems that our condition is not as common so there isn't much talk about it like cancer and others. I wish or our story to be heard. I pray for you and all of us, as well as everybody. Stay blessed.

  • @chrisnshoe
    @chrisnshoe 9 ปีที่แล้ว

    I was diagnosed with wegners back in November of 2010. Your video really got to me because there was a moment I asked my self "why me?" Thanks for the video. It does give hope. Stay up homie.

  • @Yemi4yemi
    @Yemi4yemi 12 ปีที่แล้ว

    love this

  • @Minaj53
    @Minaj53 12 ปีที่แล้ว

    This makes me sad i really wish you all the best...God is a good God and i am smiling just for you :)

  • @Jhaven504
    @Jhaven504  12 ปีที่แล้ว

    @C101Yorkie Yeah, I understand. The more publicity we have on our condition, maybe the more they would look into it for a cure.. The government can spend millions on commercials and armed forces but rarely funds the country itself.. Just my point of view..

  • @davemack9077
    @davemack9077 9 ปีที่แล้ว

    I was just diagnosed with Wg in dec became very ill as we'll and doctors couldn't figure out what was wrong. Took 3 months. Hope you are doing well

  • @C101Yorkie
    @C101Yorkie 12 ปีที่แล้ว

    @Jhaven504 I have Wegener's also. Diagnosed at 15, now 19. I know what you mean about how it's not mentioned like cancer is. And I don't want to say cancer isn't important, it is, but so is Wegener's, you know?

  • @Jhaven504
    @Jhaven504  12 ปีที่แล้ว

    @3thuylinh3 wait who is this? how u kno my name?