Ask the Ataxia Expert with Dr. Susan Perlman | July 2023
ฝัง
- เผยแพร่เมื่อ 12 ก.ค. 2023
- NAF invited an expert to answer your questions about Ataxia. Dr. Susan Perlman of UCLA Medical Center in Los Angeles joined us on July 13, 2023 to answer questions. The National Ataxia Foundation is proud to present this next installment in our Ask the Expert series.
To learn from other sessions with Dr. Perlman, visit www.ataxia.org/AsktheExpert
Ataxia is a rare neurological disease that can have a wide array of genetic origins. For more information on Ataxia, please visit our website: www.ataxia.org
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About the Expert
Susan Perlman, MD is a graduate of Cornell University and the State University of New York at Stony Brook School of Medicine. She did an internship in medicine, her residency in neurology, and a two-year fellowship in Friedreich's Ataxia at UCLA Medical Center. Dr. Perlman is currently a Clinical Professor of Neurology and Director of the Ataxia Center at the UCLA Medical Center in Los Angeles, CA. She has been head of the Ataxia Center at UCLA since 1983. She has worked in Ataxia diagnosis for over 30 years and has networked with other “Ataxologists” across the country and around the world, trying to build better collaboration in the development to treatments and ultimately cures. She helped develop the National Ataxia Database for clinical research. She is participating in 2 natural history studies (for dominant Ataxia and Friedreich’s Ataxia) and has participated in 7 clinical drug trials. Dr. Perlman would like to expand the work being done in non-genetic Ataxia as well. Dr. Perlman authored Evaluation and Management of Ataxic Disorders: An Overview for Physicians which has become a valuable resource for NAF.
I am very grateful for a telehealth session with Dr Perlman this morning. 🙏
Thank you
That is what I am going through ❤️ I really need help to Walk and the pain is bad
What is dose range of riluzole? Any help with gi side effecys
Could you please talk Hsp7
MSC-,c is clinical diagnosis or ScA diagnosis
Does Lions Mane help?
That is true 💕 it gets worse when you Walk or work
They asked me if I am drunk 🎉 because I always tremble
Please subtitules in spanish thanks
I have ataxia 🎉 I can hardly walk and can't work 😢 I am having a hard time to provide for my basic needs 🎉 I just have a sister Jennifer died from it the 1of my June 2013 and most of my family died from it 🎉 I would like someone to help me ❤️ because I am very sick and I need help fast and anyone can help me please