my journey to fitness with cystic fibrosis 💪🏼
ฝัง
- เผยแพร่เมื่อ 27 มิ.ย. 2024
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Timestamps:
00:00 Introduction
01:18 The Turning Point
02:58 My Fitness Journey
08:06 My Motivation
11:22 The Takeaway
I’ve watched you from the beginning.. and really glad you did this again to remind us all how far you’ve come.. and how much of a huge life change that new medication gave you and other cfers.you’re awesome! And so happy you’ve got a normal life now.
Same here, back when she was living in LA and posting with Victoria Rose - and I follow them both religiously, they are like the Yin and Yang of wonderfulness!
:=8)
Been watching for years and it’s been amazing witnessing your health and life improve exponentially. So happy for you. 💖🌻
Thank you so much for this video! So much exercise content is about losing weight or getting your body to look a certain way. It's a good reminder that it's a joy & privilege to be able to move your body.
Steph, you're an astonishing teacher. Encouraging without self-righteousness or pomposity, self-effacing while utterly engaged, personally revealing enough to show our common human frailty, but also relentlessly hopeful and doggedly determined to succeed - AND it's not all some theoretical, nonsensical sales talk: it's real, with real results for mere mortals.
I love your comment !!
“Dancing a lot. Terribly. Just because I can.” What a quote you rockstar!! You motivate me so much to love my day to day thank you so much for sharing everything with us
Many years ago I've lost two friends (who were siblings) because of cystic fibrosis. Whenever I watch your videos I can't help but think that they could still be alive if only Trikafta came out a decade earlier. Even though you point out that it doesn't work for everyone. But in the here and now, I am so glad that it works for you and that you finally get to enjoy living! Your hapiness and the fact that Trikafta is changing lives today is somehow giving me peace. I wish you all the best in life and that you get to do and enjoy everything you want to. Thank you so much for your videos.
I cried watching this. I suffer from severe chronic back pain and if I'm ever able to move properly again, I will be running as well. having physical autonomy is something I will never take for granted again. You look and sound so great Stephi. you're amazing! I'm so happy for you. You deserve so much health and happiness.
I just started watching your channel about six months ago. Each time I tune in, I see someone living their best life... ups and downs. I have been on my own healing journey for 9 years now and as someone who could barely move for about a six month period, I cherish each Zumba class, every weight lifted and every plant I tend to in my gardens. Keep on, keeping on sister! ✌🏼💜💫💃🏼🌻
I'm so glad you're still here :) I'm disabled with multiple chronic pain conditions and I'm so glad you mentioned mental health as well. Fitness can be any kind of movement, even if it's just dancing for 10 minutes, a short walk, or a quick stretch. It all counts and it's all so beneficial for mental health, especially for those of us in the chronic illness community! ❤
I needed to hear this so badly today. I am still grieving the loss of being able to use my body the way I used to. It’s the new little losses that get me. But finding what I still can do, motivates me to keep seeking out more. “Any movement is exercise” is my new mantra 🖤 thank you beautiful human!!
@@priscillapowers1014 I needed to hear this too. Doctors need to focus on emotional health as well as any other health issues. ( a prayer for all who suffer in one way or another ). PS: I lost 60% use of my left lung in 2019 (Never smoked and 69) , I force myself to walk and dance, even if a little bit. xo
Stephi, I really wish you would write a book. A journal type book with your art included, your journey, thoughts etc. I would 100% buy it and love it. 💕
I found your channel maybe 2 or 3 weeks before you started those lifechanging, lifesaving meds. And I always check back for updates to see how you’re doing. Your life before and after is so markedly different. Like two different people, but the same at the core of your being. Watching as you’ve transformed, watching you become the version of yourself you were always meant to be, it’s been absolutely amazing. I’m so so so happy for you ♥️
i'm so glad you're still alive
Stephi, you are very loved by your community. Wonderful video and always remember, we are on this journey with you!
Yeah moving the body is a blessing. Always makes me feel good, and so beneficial. Always good to see your vids, Stephi. I still see your old friend, Dakota every now and then.
This is the best thing I’ve seen in a long time and really lifted my spirits right now. I just lost an incredible friend who was such a light in this world to an autoimmune disorder at only 35 years old. With a broken heart, I remembered this channel and came over with the intention of hearing a story of hope. I’m blown away by your progress and it makes me so incredibly happy!! Even the way you talk now is full of breath and full of life. Thank god for this medication. I’m so happy for you. I’m on a fitness journey myself, with a chronic illness, and you’ve just inspired me even more to amp it up. Thank you for being such a huge source of inspiration to so many people!! ♥️
I've been watching your channel, and Morgan's when he was still posting, for years and seeing both of your lives change so significantly for the better because of TriKafta is incredible. 💜 I'm so happy for you, Stephi!
My sister was getting really bad with her CF a couple years ago but with clinical trials and pharmacal improvements she is now superseded the life expectancy of 2 to now 21 years old since they came out with the pill for her gene type and I love her so much, and so happy and thankful that she is able to live a better quality of life. She now doesn't take as much drugs as she used to, she no longer needs a G-Tube and a port, and she doesn't need to go for nowhere near as many appointments as she used to.
11:40 you chasing your dog: such a sweet simple thing. ❤ Nothing is granted.
Thanks for all that you share. You give hope and lift people up.
babe you're looking RADIANT lately. just beautiful. ily
I needed this so bad....I have been so scared to go to the gym. ❤ You are Amazing! ❤
We love you Stephi!!! So glad you are out there living it up
You've come a long way, so awesome to see! May things continue to get even better for ya
Awesome video Steph you have come so far don’t ever stop you are an inspiration.
This is wonderful! 😃 I'm so happy to see how much better you've become!
So proud of you Stephi! Keep up the great work😊
You are always an inspiration to me!
You go girl!!! You are an inspiration!!!
I've been a follower for years and I am incredibly happy for you!
I’ve been watching your videos for years, you’ve been such an inspiration to me and so many people, I’m just so happy for you ♡
Thank you Stephi for always being an inspiration 🌞🌻🌞
Thank you for the reminder...you are the gift that keeps on giving...thanks for bringing us along with you.
STEPH! THIS IS ONE OF THE BEST VIDEOS YOUVE EVER DONE!
So inspirational. Good on you Stephi. Bless you
You're a huge source of inspiration, Stephi. 🎉💜
It's been awesome watching Stephi just blossom.
Wow, I really needed this, thanks Stephi! Loved you since day 1❤
I must say I’ve been here from the beginning and it’s been such a pleasure to watch your videos and you journey!
Been here through it all! So proud of you ❤
You are such an inspiration I say this again and again on a lot of your videos. I’m 49 years old I live with Ehlers-Danlos so it’s very hard for me to move. But you give me the inspiration to move to the best of my ability. You’re so amazing and I know that you’re helping a lot of people. Peace.
Way to go and blessings to you... Glad you are feeling better Stephi!.🙂💕
Thank you for sharing your journey, and for the reminder of what a blessing it is to be alive and healthy. So much joy in seeing you thrive!
Im so happy for you Stephi, its incredible to see you living the life you've always deserved to have!!
I'm so happy for you! i remember the hospital videos and it didn't look very promising, but you did it and you deserve to be healthy and happy.
Aww! This is one of my favorite videos from you. I love seeing how healthy and strong you are today.
I'm SO happy for you !!!
Hope you can hear the clapping and cheering all the way from Italy 👏👏👏
Well done Stephi. Glad to see you are healthy and happy. You look great.
I've watched much of what you share and always felt you have a rare insight into life. I'm always pleased to see you living your best life and thriving. Keep doing your thing and having fun. Thanks for sharing cause your story is uplifting.
I've been watching your videos since the beginning and this is my favourite one :) so happy for you
Thank you for the inspiration, Stephi.
Thanks for sharing your story. I had no idea you've been through so much. Keep being you... you're an inspiration to so many. ❤
Looking great Stephi!!! 🔥 🔥 🔥
You’re a huge inspiration and it’s honestly so heartwarming to see how far you’ve come and see you enjoy your life 🙌😌
So great to see you so happy
Stephi, you are always so light and inspiring. Thank you for being a human and for talking about your human experience. I appreciate you so much.
You go girl!! So glad to see you living your very best life! I love seeing you be able to be healthy and enjoy this blip of time we have on this planet!!❤❤❤
I have loved watching you all this time!! Glad your well right now and do happy!!
What an amazing story. Thanks for sharing.
Breathing, what a concept, I love it... Made me tear up Stephi, you go girl, God bless you.
I wonderful to see how far you've come. ❤
So happy for you!! ❤
You're an inspiration, Stephi. It brings me (and thousands of others) such joy to see you revel in your newfound strength. This is a good time to be alive.
I’m so proud of you way to go, you look great.
Girl I’m so proud of you and happy for you! You have come so far! I’ve been following you for a long time and I’m really glad this is the turn that your life has taken. God bless 🥹
Truly inspiring ❤ so happy and proud of you
That is Awesome Stephi! I am so happy for you!! Look at you running marathons. That is fantastic! I'm so grateful the medicine they came out with is helping you. What a wonderful video! Your back yard is so pretty. Love your trampoline. I loved those as a kid.
Your story is so motivational! Thank you for sharing❤
I've been a subscriber for a long time but for some reason haven't seen a video in a few years, I don't really watch much youtube these days but it popped up on my homepage earlier and I clicked and I'm honestly very happy to see the progress she's made in her health. A massive congratulations because I remember the videos of the tough times.
Stephi I've followed you for years and your story is one I will always be so grateful for. What a cool human you are. I'm so glad you're here. ❤🔥
I remember way back sending you some photos of my dog (a maltese) when you were in the hospital. So happy to see how far you've come!! 😊
I have tears in my eyes, I'm so happy to hear that your health has improved so much! Congratulations Stephi! You're beautiful inside and out and you deserve this!!
I'm so proud of you and how far you have come and how much you have accomplished you are such an amazing human and I love watching your videos ❤❤❤❤
Thanks for being awesome Stephie and sharing your perspective, life really is a gift and should be appreciated more often my many . ❤ stay happy & healthy. Til next til friend!
As a new fan i appreciate you sharing your past experiences! I look forward to being here as your journey continues.
Love seeing you like this. The dancing was so cute. I’ve been here since before you got better so it’s been great to see you get better!
My son and I just joined a gym this week and holy moly, this video is extra motivational right now!
So proud of you and happy for you!!
Stephi you are inspiring & have an inner strength because of the challenges you have faced, a totally awesome human! 💜🌻🤗
I have been watching you since you were so very sick. It certainly made me sad. Such an amazing life you have had to live. Thank you for this new video. Thank you.
Wow talk about motivation. You’ve accomplished so much and in the process have encouraged this grandma to get moving ❤ thank you!
I love your story. It’s so incredible how perfect the timing was for you. It makes me so happy that you get to still be here and live your amazing life. Thank you for sharing! I think of you and your miracle life often!
Great video. Very proud you are doing so well
Knowing you through your videos has made a big difference in my life Stephi-you truly inspire me to try new things and remember not to take things for granted. I’ve been watching you since the beginning and I will anyways be here 😃
I Love you Sthephi , for all the reasons , and I admire you for being one of the most authentic humans ever. Thank you for sharing these bits of your life. You have my heart.
Stephi…… your just Amazing, you should be so proud of yourself & encouraging others is so important,
Thank you for sharing your experience! 💛🧡
Loved watching your journey!
I absolutely loved this video and message!! You are so beautiful and independent! I admire that so much ❤️
I think you are incredibly amazing ❤ I’ve followed you for quite a while now and you always touch my heart. I simply adore you and look forward to each new video. Sending love and gratitude to you! ❤
Been watching sense your video on trichotillomania . What a journey it has been!🎉
From sick 2 Superstar!!! Well done Stephi Lee!!!I enjoy watching you're videos.... Very Educational!! Superstar!!!!!
Never stop dancing, Beautiful Soul. Much love, Stephi.
Wow! I needed this. Thanks so very much!!
I love that you get sponsored, hope you get more so we can see you more often.🥰
You have come an insanely long way! I think the first time I saw your videos was when I saw one on your van life, and when you went to Asia with Jason. We're all seriously happy for you, Stephi!
New to you, so inspiring and happy that you are doing so well. Stay true and blessed and have fun with your new home❤
Thank you for sharing your story love ❤️ you are truly an incredible inspiration, brilliantly beautiful both inside and out!
I’ve had a double lung transplant, so I relate a lot to lung issues, and you have been an inspiration for years showing and confirming to me how amazing our bodies our and as long as we believe in ourselves, we can overcome so much 💪
i been following you for years! since you started your channel and im so happy you are doing well! your video made me cry
Awesome story and good for you and others in the same situation. Actually made me start to cry. 👍🏼❤️
Thank you for sharing! Motivated me to get moving again & do simple workouts without needing the gym. Your so strong & your mindset is amazing, thank you for your perspective. Reminding me to be thankful for my body & to connect more with myself!!
omg this is so amazing. i've been watching you for yearssssss and i remember when Tricafta came out and i was so happy for you. i was so happy to watch what you do with all this new time you have to be alive. love you
Hi Stephi
You are one amazing young lady, it takes strength and bravery to do what you have done and I hope you continue to have both so you can have many many years of being healthy and happy.
I really think you've always been a tuff little cookie steph ❤ keep at it and remember you have more people that care about you than you think ❤❤❤
Hope to see you again real soon.
Lee from Australia 🇦🇺 x
you are such a breath of fresh air