Understanding Mantle Cell Lymphoma with Jia Ruan, MD, Ph.D.

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  • เผยแพร่เมื่อ 26 ธ.ค. 2024

ความคิดเห็น • 8

  • @davidburns3807
    @davidburns3807 5 ปีที่แล้ว +7

    wow so good to finally hear someone who is a real expert in mantle cell - I have not received that so far

  • @macmad6959
    @macmad6959 9 หลายเดือนก่อน +2

    Wow what a great video, very informative, I was diagnosed with stage 4b MCL, unfortunately my cancer wasn’t detected and remained indolent until it finally became aggressive.
    Symptoms included extreme weight loss, cramping in legs and groin, increased itching all over body, veins also became more pronounced,
    I had a massively enlarged spleen measuring 28.8cm, and it was decided I would need intense chemotherapy and targeted steroid, R-Chop regimen would be the best treatment plan, along with an autologous stem cell transplant, it has been a challenging process, but I am nearly 1 year since my stem cell transplant, and I am managing to stay free of lymphoma, which is a credit to my medical team, London Bridge Hospital 👊🙏 you are the best, despite being given just months to live without immediate medical intervention.
    I am still recovering from the after effects of the chemotherapy, and suffer with joint pains.
    But I am still here and will continue to fight to be here, for the future ❤.

  • @dianapena9421
    @dianapena9421 4 ปีที่แล้ว +2

    Please tell me where can i go get more help on this illness Doctor is not doing much

  • @chawlahimanshu3548
    @chawlahimanshu3548 5 ปีที่แล้ว

    Mam RDHAP given in chemotherapy is it right

    • @stepside2839
      @stepside2839 5 ปีที่แล้ว

      Yes, it can & is often used in the treatment of MCL. It may be used with an alternate treatment of another chemotherapy depending on an individual's health statis.
      R = the monoclonal antibody
      D = dexamethasone - a steroid
      H, A = double dose of cytarabine
      P = cisplatin
      You will need to be well hydrated to protect your kidneys & bladder.

  • @davidburns3807
    @davidburns3807 5 ปีที่แล้ว +1

    for me I worry about finding some clinincal trial appropriate for me after I relapse and feel sick?

    • @LymphomaResearchFoundation
      @LymphomaResearchFoundation  5 ปีที่แล้ว

      Hi David - glad to hear you found the video informative. If you would like to know more about clinical trials and whether it may be a treatment option worth considering, please contact our LRF Helpline at (800) 500-9976 or at helpline@lymphoma.org. Our trained specialists are available to answer your questions and run a individualized clinical trial search to find trials appropriate for you.