Pregabalin has ruined my life and I am still suffering from the withdrawals and akathisia 5 years after stopping taking it. It made the pain worse over time too and I wish Doctors were more open to opioids as they actually work when used correctly.
Holy cow! I have been on this medication for 3 years. In that time, I gained 65 lbs in 8 weeks and developed PCOS. My hair fell out, I began getting skin tags and growing odd facial hair. I developed brain fog and memory issues that significantly affected my life. I developed severe dry eye and began getting corneal abrasions from my eyes moving in my sleep. I complained about these issues to my docs and got plenty of advice to eat sensibly and exercise more, as well as prescriptions for more drugs. I tried to lose the weight but it just wouldn't come off, and no one believed me when I said I was dieting and exercises 2 hours per day. I also began to experience ADHD symptoms and intrusive thoughts (OCD). I am shocked that none of my docs pointed out these side effects are connected to my meds. I was convinced they were all "the new normal" of having an autoimmune disease. But all of the started when I was prescribed Lyrica.
As it turns out, going longer than 48 hours without it, for me, causes SEVERE withdrawal symptoms, that could very easily turn fatal. I found this out the hard way, after faithfully talking them for over 10 years. I'm in the process of weening off, now, as possible DEATH is not an acceptable side affect of ANY medication. I'm not really sure if I'll survive this, or how I'll feel off of it, as I have neuropathy after a leg crush injury. I'm starting out on CBD, and it seems to help.
I broke my sacrum in 5 pieces and I had terrible electrical discharges in my right leg. Lyrica saved my life. I ride 4 horses every day. Without it I couldn’t leave my house. It really saved my life. I have not one single side effect. Well, one: I feel very sharp and active. I’ve kept a steady dose for 20 years.
That is how Lyrica should work! If it always did I would have no problem with it. Congrats that it is working so well for you. I have found over the years that everyone has both different presentations of nerve pain and different effectiveness of treatments. I am glad you found a solution that works for you.
Wait till its time to stop. I don't wish bad on u but if ur on 600mg day or more u gonna rattle bad comin off it. I did it slowly n steady for while n still felt unable to look after my flat my son n myself. Intense anxiety insomnia hot n cold flashes nerve pain gi issues lack of appetite I checked in a&e twice while it was at its worst. I'm better now but this was in 2018 it took months of hell. Also nothin eases the withdrawal except pregabalin gabapentin or phenibut.
@@farmazooticalz I take 150 mg in the morning and 150 mg in the afternoon. I’ve been taking it for 20 years in that dosage. I will not stop using Lyrica until I die. It has really made my life possible. If not, I’d be in bed screaming.
@@JavierBonillaC i take 225mg in the morning and then at night along with one tramadol. Been on this routine for over 10 years. It allows me to be normal if that is a thing. Before i got on them, i was on hydro 10, oxy, amptrip, naproxen, gapentin, and fentanyl 25micons. Had a car accident back in 2007. They even convinced me to get a Spinal cord stimulator implant/pain pacemaker. It was so hard to get off the harder meds. But pregablin and tramadol has gave me back my sanity and allow me to function. With those two I dont get any high or major side effects. Though im very cautious and every other month i stop taking them to evaluate my TRUE pain. Which is just unbearable imho. I dont want to die early but what choice do i have. I have always followed my doctors instructions to the tee! And still see him every 3 to 4 months for a check up and refills. I just didnt know there were others who have been able to live with those meds like i have. It’s nice to see a few. But it’s sad to see those who have had really bad experiences.
Same here. It wasn't working to help with my neuropathy so the Dr reduced the dose with the goal of stopping it. With 25 mg twice a day I have nightmares, can't sleep through the night, neuropathy has intensified and I wake up around 3 am every night. It's hell!
Ty for explaining these medications to us Sir. My pharmacist just filled one I don' t want and made me feel terrible about asking ?s. He was very rude and I'm trying to be thankful for people that are helping and not focus on how intimidating he is each month. Grr
I was looking for a gabapentin that didn’t have starch in it because I have a gluten sensitivity. My pharmacist treated me like I was a crazy lady. I ended up having to get it compounded which is very expensive.
In order to safely get off of these medications you have to do the "water tapering" and only 10% to 5% drop each time. You will still have some withdrawals but they will be mild and livable. Then taking supplements to help with this as well. It's tough but you can do it, just be patient and do not go fast.
This is just one experience with someone who is also getting radiation therapy, which complicates the whole thing, but I agree for the most part they aren’t great individual fixes, and they don’t really fix anything. But as an adjunct to low-dose opioid It can potentiate the pain relieving qualities but without other positive lifestyle changes you are not going to see any improvement in there general well being. These medication’s are really supposed to help you get to the point where you can make lifestyle changes that could help your disease, or you have a chronic pain condition that isn’t treatable with lifestyle changes and it’s significantly improved their quality of life and they are willing to possibly be on it for the rest of there life
Ok, so what do you recommend? I am taking 150-300 mg. Lyrica every night. It lessens the pain enough for me to sleep. I have gained a lot of weight which I can I’ll afford. It’s all very well to tell us that Lyrica is bad fir us, but what are the options?
@@volt8684 I agree. As one with PN in the feet that frequently hinder sleep I was looking for some strategies that did not include Lyrica and/or gabapentin. I don't want to take either after researching them. HELP
Glad you asked the question, I'm on 200mg a day, lyrica keeps pain away, but weight gain a worry for me. At 79, Neurosurgeon won't operate, medical insurance won't pay for pain block, which cost is so prohibited here in South Africa, so what, do we do there is no alternate medication 😢
I'm still feeling awful in my 5th week of Lyrica detox. Which I took for 16 years. No dr ever advised me how pregabalin is so extremely hard to stop. 😢
I have multiple sclerosis so the pregabalin has made my dizzy symptoms and my fatigue worse! I hate this stuff but my health care team WILL NOT REMOVE ME FROM IT! 🤬
Well done, I will still take it. It’s been able to let me sleep and walk and stand without having to sit down after 10 mins. It has saved my life. Maybe for other it will give bad side effects but I haven’t noticed any.
I have absolutely severe peripheral neuropathy in my left leg caused by problems with my back as far as I can see. I have severe total lumber stenosis, and in the past, I have fallen on that area and there is a large lump there and the result is severe peripheral neuropathy. I’m on Lyrica but only 25 mg I don’t intend to go any further than 25 mg if it stops working then I’m not taking it anymore, but would I have withdrawal symptoms with only 25 mg? That is the thing that bothers me. It’s so small but would it side effects? I do find that I’m sleeping a lot even with 25 mg but nothing I can’t manage.
I have two ruptured disks that are causing me nerve issues in my leg, theyve given these meds to me before and ive said i didnt get much pain relief and all lyrica did was absolutely mess with my emotions and left me with a whole Bunch of side effects that lasted for a while, years later still dealing with issues, new doctor is telling me i should try these drugs again because it might be different this time, but ive been down that road enough that i just refuse, they always say its gonna be different and it never is, hearing that you dont even prescribe them makes me think honestly. She wanted me to debate trying them again but after how intense the side effects were i dont have it in me
I developed some nerve damage 4 years ago because of my diabetic peripheral (sp) nueropy. (sp). It wasn't that bad....just noticable. My doc immediately responded with gabapentin. I have been taking it since that time. Now I am reading about side effects that I have had but which I never would have attributed to the gaba. Thank God for all of you who have taken the time to inform me about what I began taking when I really didn't need anything as strong as gabapentin. I am beginning to find other therapies that are proving to be much more helpful. I took in a beautiful stray terrier/bulldog on 6/11/23. Of course, this is a very active breed, so now I am walking BabyDoll four or five times daily. Before BabyDoll I was beginning to become used to using a cane. Now it leans against the wall. From what I can see thusfar, I do not anticipate most of the terrible side effects that so many of you have suffered from. I anticipate that my post gaba days will lack any substantial side effects. Instead of gaba I have substituted various other remedies that I have used for years when experiencing mild discomfort or pain. (I am 76 now.) I am currently taking a low dose of Ibuprofen every morning. That seems to help keep my back flexible enough to avoid most back spasms. I believe that my chiropractor has helped to prevent my back from getting tied up in knots. (Thanks Doug.) I also have arthritis (sp) in my hands, back and neck. Recently I purchased a leg compression device which covers my feet and calves. That helps push the blood up my legs. I have plenty of ice packs which I don't use and a nifty 'heat belt' which I do use. I get down on the floor every morning and do some stretches that I found on-line. In so doing, I have developed my own 'physical therapy'. All of these small additions to my daily routine have helped a lot. I certainly hope that you can find a gaba-free way to manage your pain. Best Wishes. John
I’m on gabapentin for spinal stenosis. The side effects outweigh any benefits. I am SLOWLY weaning off of it. I found that a lot of foods make my pain a lot worse. I went on Mikhaila Peterson’s Lion’s Diet (meat from ruminant animals (beef, lamb, deer), salt & water - for 1 month. -I never felt better in my adult life! Then add 1 food back at a time every 4 days. I found I was sensitive to all grains, dairy, eggs & pork; these foods made me achey all over to the point of being bedridden. I find I function the best on a carnivore diet (with only ruminant animals). Dr. Osborne has a lot of good information on gluten sensitivity. Dr. Ken Berry is a good place to start on the carnivore diet. This is a natural way to decrease pain. Our food supply is toxic with seed oils (vegetable oils), preservatives & additives (many of which are outlawed in Europe).
😢😢😢😢how do I get my life back? I had a total knee replacement surgery Oct 2021. I’m in so much pain but my orthopedic took me off norco and tried tramadol, gabapentin (caused sob) now he prescribed Lyrica but I don’t want to take it from my history of medication allergies. I’m in so much pain and feel like such a failure. I push myself to go to work and then I just come home. I don’t know what else to do. I can’t take NSAID’s. I take 2000mg of Tylenol a day, at one time and that helps for a bit but I don’t want to take it anymore in a day since I already took 2000mg’s. This is so frustrating. Thank you for your video.
Surgery can aggravate peripheral neuropathy. In this type of situation I would do two things: 1) See if there is another reason for your pain (is the knee replacement working or causing the pain?). That would be the easiest to treat. 2) Work on the peripheral neuropathy if that is the cause. The key here is to find what is aggravating the chronic inflammation (foods, nutrient deficiency, etc) that can be treated. You should be able to get your life back!
My response is obviously. If your body/brain is satisfied with less pain signals and more feel good neurons in the form of endorphins and dopamine then of course it will react with a sudden decrease in this. Sort of like a sugar high that gets you going quickly at first then crashes suddenly once depleted. Next is it's safe to assume a big pharmaceutical company will make their drugs addictive to increase the likelihood of it being used more if anything to quell withdrawal symptoms. Drug manufacturers spend millions of dollars selling medications that should, as advertised work on their own without any advocating. If it works so well then they will ultimately sell themselves and don't need the conflict of interest by spending millions to sell their medications to doctors who peddle them to patients sometimes without any need. Hence why we have become so over medicated as a society and not for the better. Unfortunately when you have so much vested interest in doing the wrong thing by being self justified for doing the right thing, you have the conclusion we have ✌🏽♥️
I'm having pretty bad memory loss, had brain cancer; two surgeries and proton therapy, have a friend tell me they were on Lyrica and tell me they had terrible memory loss, I have memory loss as it is but mine is terrible
Memory loss is one of the possible side effects of many of these nerve modifying medications. Increasing your GHK-Cu may help your memory. One option I have found: th-cam.com/video/6bt52NYE06A/w-d-xo.html
I had bad side effects from certain manufacturers of gabapentin and lyrica, also had similar things happen with ritalin, other brands work wonders.. my herniated disc is stuck to my nerve, failed laminectomy, severe sciatica, currently on opioid pain management and it works well, some times the pain is completely gone, however I can kind of feel myself becoming used to the opioids and fear they won’t work as well in due time.. I like cannabis, I think it definitely helped my sciatica, I think it definitely has a soaring effect on prescription medicine use, however illegal in my state. So idk what to do.
I found I was sensitive to the starch in medications ( gluten sensitivity; see Dr. Osborne’s channel) which made my pain a lot worse; eggs & dairy too. I found this out by going on Mikhaila Peterson’s Lion’s diet and then adding one food back at a time. I have to decrease my opioids for about a week and then they work again. Cannabis slowly destroys the brain too. But if that’s the only pain relief you get, I guess you have no choice.
It gets to the point, you realize every single drug has negatives, or does nothing. I’m trying it due to terrible nerve pain impacting my life so bad. Duoxetine is the only other option approved, and I’m seeing more side effects. No pain meds work.
Just how do you manage the pain ? Thank you I have been suffering it it gor a long time . I have had chemotherapy and radiation and it left me with press bone neuropathy in my feet legs and ants
Just because a medication causes bad withdrawals doesn’t mean it’s a bad drug. I’ve come off more classes of medicines than I can count and gabapentenoids are difficult to come off of cold turkey but if tapered it’s hardly noticeable. Also there are plenty of examples of medicines that are very efficient and effective that technically don’t fix the problem. If they provide a marked increase In benefits and the negatives are obviously outweighed then the medicine is indeed causing an effect that treats the pain. If it treats the pain and that’s why it’s being taken then mission success. If you’ve ever been in chronic pain any relief what so ever is a god send. This is the problem with pain clinics now day. They won’t just open up their script pad and write a simple prescription because the patient might get addicted. Instead of using physical therapy and procedures combined with medicine they want to rip the meds away.
Ok, so what next, doctors won't do operations unless they find it absolutely necessary and they think it will help least here in Australia anyway. A lot of other natural options like physio, or the like just don't work. So what else is there to do?
Neuropathy treatment should be done in 4 Steps: 1) Understand Peripheral Neuropathy, 2) Manage The Symptoms, 3) Control Nerve Damage, 4) Thrive With Neuropathy. This may seem like an over-simplification (it is), but if treatments don't include learning about your unique neuropathy and controlling (and improving) the nerve damage or injury then nothing is going to work.
I’ve never seen any reports or literatures of rupture of tendons and ligaments due to muscle wasting induced by Lyrica, but I tore many tendons and ligaments. I took Lyrica for a month only.
@@et6073 I’m mostly bedridden for a long time. I tore many tendons and ligaments from head to toe, but doctors have no clue to treat my physical injuries.
I have Trigeminal Neuralgia on the right side of my face. I was on the verge of unaliving and Lyrica was the only thing that has helped. BUT!!! It has caused my teeth to fall out. I just had yet another oral surgery this morning to remove 6 more teeth. I am SO incredibly torn over this medication because it's awful. But what can I do? They tried everything else. I am highly allergic to Tegretol and Neurontin. Others made me sick or just didn't work. I hate beautiful teeth that I spent thousands and thousands on. I'm just sick over the whole situation
Of course everyone is different. Im on 1800mg day of gabapentin for pudendal nerve entrapment, without it I wouldn't be able to sit at all. However, in the beginning i could have been treated with steroids or with a nerve block with local anaesthetics. None of this was offered to me so basically, although my meds are helping me, I've been given a band aid for my symptoms.
But there is no cure for my l4&5 nerve pain. What then? Not even neuro-stim helps. To many cysts and tumors in my spinal cord + arachnoid-itis has bundled my spinal nerves. No more surgical options after 7. So I'm just sol?
Yeah but exercise, stretching, cupping, massage and hot pool therapy are not really treatments because they never treat chronic pain for more than a few hours. It never ends. Exercise with different natural therapy is great and I jog 5 days a week and everybody should do it but I know many people doing these weekly treatments that really don’t improve pain. They just put my wife on Lyrica and she is at least starting to finally get some sleep at night. I’m not sure if this is the direction he was going but my gut tells me he’s one of these anti medication doctors.
when you're experiencing severe electric shocks occurring sporadically with variable intensity, and traditional pain meds are ineffective - you're willing and desperate enough to try anything (like purchasing injectable lidocaine from Indian dentist on ebay and watching youtube tutorials on perfoming nerve blocks, and local anaesthesia level desperate)
No other option for nerve pain ? It’s in my feet so bad I just want to die. Been on Gabapentin for about 5 years but want to transition to the other Satan drug Pregabalin because you take less with more of an effect on pain. I would prefer to not be on either drug.
Pregabalin is a better drug but both have significant side effects. The secret to nerve pain is not just treating the symptoms but looking for ways to heal the nerves and stop the nerve injury.
Thank you so much for responding. I was never given any option other than medication. Immediately put on medication over 5 years ago. It’s probably too late to see about any other option since I’ve been on Gabapentin for years.
Pregabalin has saved me , I have a coccyx tailbone stuck behind my anus , prolapsed disc l5, burning stiff legs , pilonidal sinus disease , sacral coccygeal, pilonidal fistula in ano, nuropathic itching in tendons and buttock muscles and my legs, so bad I've broke chairs pressing on the edges with my butt and legs to stop the itching .
Some individuals get amazing results for peripheral neuropathy form pregabalin (Lyrica). The ideal, however, is to improve the nerve function and eliminate the pain (instead of just treat it). Often this is possible through appropriate treatments. For this reason we are offering a FREE Challenge - The Neuropathy Secrets Masterclass this coming week (www.NeuropathySecrets.net/masterclass)
There is not a great pain alternative without side effects. Some individuals are turning to CBD oils, some are using a machine called Rebuilder (th-cam.com/users/liveF10WATzxLhE) and some are looking for alternative methods like the new methods of stimulating your adult stem cells (this has taken away pain in many patients - th-cam.com/video/6bt52NYE06A/w-d-xo.html)
You do not use lyrica for cancer induced pain. Also, most people can easily wean off them. Of course, it only masks system. How are you supposed to fix acute nerve damage from physical trauma?
there are just a couple of medications that actually cure over the past 100 yrs. Medication suppresses it doesn't cure is this guy even a qualified doctor ???
Lyrica works amazing for me @45yo… night and day for pain. W/o it I can’t walk.. with it I can walk all day.. maybe there will be a cure soon, we know it’s like an Advil… Even as a supposed Dr you don’t know how this feels with neuropathy on or off Lyrica. Your mom was probably 80yo, in pain regardless … don’t tell people not to take medication that didn’t work for one 80yo…
I love that Lyrica is working for you!! I have treated hundreds of patients with bad side effects of peripheral neuropathy medications including Lyrica. My goal is to not just repress the symptoms with these medications but improve the nerve function (also resolving the pain). PS My mother was under 70 years-old and I have peripheral neuropathy myself.
thank you for your honesty doc a real doctor looking for the best long term interest for your patients
Pregabalin has ruined my life and I am still suffering from the withdrawals and akathisia 5 years after stopping taking it. It made the pain worse over time too and I wish Doctors were more open to opioids as they actually work when used correctly.
Holy cow! I have been on this medication for 3 years. In that time, I gained 65 lbs in 8 weeks and developed PCOS. My hair fell out, I began getting skin tags and growing odd facial hair. I developed brain fog and memory issues that significantly affected my life. I developed severe dry eye and began getting corneal abrasions from my eyes moving in my sleep. I complained about these issues to my docs and got plenty of advice to eat sensibly and exercise more, as well as prescriptions for more drugs. I tried to lose the weight but it just wouldn't come off, and no one believed me when I said I was dieting and exercises 2 hours per day. I also began to experience ADHD symptoms and intrusive thoughts (OCD). I am shocked that none of my docs pointed out these side effects are connected to my meds. I was convinced they were all "the new normal" of having an autoimmune disease. But all of the started when I was prescribed Lyrica.
So sorry to hear this. I would look into options for sure.
This is heartbreaking. I am so sick of Big Pharma 😡😡😡
As it turns out, going longer than 48 hours without it, for me, causes SEVERE withdrawal symptoms, that could very easily turn fatal. I found this out the hard way, after faithfully talking them for over 10 years. I'm in the process of weening off, now, as possible DEATH is not an acceptable side affect of ANY medication. I'm not really sure if I'll survive this, or how I'll feel off of it, as I have neuropathy after a leg crush injury. I'm starting out on CBD, and it seems to help.
Well done doc. You are an exception to the rule. I complained of adverse reaction to all of those drugs and not one report was made.
If side effects are a problem then try lower doses before stopping the Lyrica
I broke my sacrum in 5 pieces and I had terrible electrical discharges in my right leg. Lyrica saved my life. I ride 4 horses every day. Without it I couldn’t leave my house. It really saved my life. I have not one single side effect. Well, one: I feel very sharp and active. I’ve kept a steady dose for 20 years.
That is how Lyrica should work! If it always did I would have no problem with it. Congrats that it is working so well for you. I have found over the years that everyone has both different presentations of nerve pain and different effectiveness of treatments. I am glad you found a solution that works for you.
Wait till its time to stop. I don't wish bad on u but if ur on 600mg day or more u gonna rattle bad comin off it. I did it slowly n steady for while n still felt unable to look after my flat my son n myself. Intense anxiety insomnia hot n cold flashes nerve pain gi issues lack of appetite I checked in a&e twice while it was at its worst. I'm better now but this was in 2018 it took months of hell. Also nothin eases the withdrawal except pregabalin gabapentin or phenibut.
Lirica... and other pregabalin... Never! 😱 You will be dying, when You want say "good bye" for them! 😢 Never! ❣️
@@farmazooticalz I take 150 mg in the morning and 150 mg in the afternoon. I’ve been taking it for 20 years in that dosage. I will not stop using Lyrica until I die. It has really made my life possible. If not, I’d be in bed screaming.
@@JavierBonillaC i take 225mg in the morning and then at night along with one tramadol. Been on this routine for over 10 years. It allows me to be normal if that is a thing. Before i got on them, i was on hydro 10, oxy, amptrip, naproxen, gapentin, and fentanyl 25micons. Had a car accident back in 2007. They even convinced me to get a Spinal cord stimulator implant/pain pacemaker. It was so hard to get off the harder meds. But pregablin and tramadol has gave me back my sanity and allow me to function. With those two I dont get any high or major side effects. Though im very cautious and every other month i stop taking them to evaluate my TRUE pain. Which is just unbearable imho. I dont want to die early but what choice do i have. I have always followed my doctors instructions to the tee! And still see him every 3 to 4 months for a check up and refills. I just didnt know there were others who have been able to live with those meds like i have. It’s nice to see a few. But it’s sad to see those who have had really bad experiences.
Your goals for patient care are admirable and more doctors should have the same purpose.
Been on pregabalin four months, now I am reducing it is making my neuropathy 100%worse, I am going through hell ,I support what the doctor is saying.
Same here. It wasn't working to help with my neuropathy so the Dr reduced the dose with the goal of stopping it. With 25 mg twice a day I have nightmares, can't sleep through the night, neuropathy has intensified and I wake up around 3 am every night. It's hell!
I wish drs had to live with the server pain so many people have
Ty for explaining these medications to us Sir. My pharmacist just filled one I don' t want and made me feel terrible about asking ?s. He was very rude and I'm trying to be thankful for people that are helping and not focus on how intimidating he is each month. Grr
I was looking for a gabapentin that didn’t have starch in it because I have a gluten sensitivity. My pharmacist treated me like I was a crazy lady. I ended up having to get it compounded which is very expensive.
In order to safely get off of these medications you have to do the "water tapering" and only 10% to 5% drop each time. You will still have some withdrawals but they will be mild and livable. Then taking supplements to help with this as well. It's tough but you can do it, just be patient and do not go fast.
What do you recommend to recover then?
This is just one experience with someone who is also getting radiation therapy, which complicates the whole thing, but I agree for the most part they aren’t great individual fixes, and they don’t really fix anything. But as an adjunct to low-dose opioid It can potentiate the pain relieving qualities but without other positive lifestyle changes you are not going to see any improvement in there general well being. These medication’s are really supposed to help you get to the point where you can make lifestyle changes that could help your disease, or you have a chronic pain condition that isn’t treatable with lifestyle changes and it’s significantly improved their quality of life and they are willing to possibly be on it for the rest of there life
Ok, so what do you recommend? I am taking 150-300 mg. Lyrica every night. It lessens the pain enough for me to sleep. I have gained a lot of weight which I can I’ll afford. It’s all very well to tell us that Lyrica is bad fir us, but what are the options?
Yeah no options listed just stop the drugs
@@volt8684 I agree. As one with PN in the feet that frequently hinder sleep I was looking for some strategies that did not include Lyrica and/or gabapentin. I don't want to take either after researching them. HELP
Glad you asked the question, I'm on 200mg a day, lyrica keeps pain away, but weight gain a worry for me. At 79, Neurosurgeon won't operate, medical insurance won't pay for pain block, which cost is so prohibited here in South Africa, so what, do we do there is no alternate medication 😢
I'm still feeling awful in my 5th week of Lyrica detox. Which I took for 16 years. No dr ever advised me how pregabalin is so extremely hard to stop. 😢
I have multiple sclerosis so the pregabalin has made my dizzy symptoms and my fatigue worse! I hate this stuff but my health care team WILL NOT REMOVE ME FROM IT! 🤬
Well done, I will still take it. It’s been able to let me sleep and walk and stand without having to sit down after 10 mins. It has saved my life. Maybe for other it will give bad side effects but I haven’t noticed any.
I have absolutely severe peripheral neuropathy in my left leg caused by problems with my back as far as I can see. I have severe total lumber stenosis, and in the past, I have fallen on that area and there is a large lump there and the result is severe peripheral neuropathy. I’m on Lyrica but only 25 mg I don’t intend to go any further than 25 mg if it stops working then I’m not taking it anymore, but would I have withdrawal symptoms with only 25 mg? That is the thing that bothers me. It’s so small but would it side effects? I do find that I’m sleeping a lot even with 25 mg but nothing I can’t manage.
I have two ruptured disks that are causing me nerve issues in my leg, theyve given these meds to me before and ive said i didnt get much pain relief and all lyrica did was absolutely mess with my emotions and left me with a whole Bunch of side effects that lasted for a while, years later still dealing with issues, new doctor is telling me i should try these drugs again because it might be different this time, but ive been down that road enough that i just refuse, they always say its gonna be different and it never is, hearing that you dont even prescribe them makes me think honestly. She wanted me to debate trying them again but after how intense the side effects were i dont have it in me
I would look for other options, including many natural options.
@@NeuropathyDoctor yeah thats what ive been working on, have a couple options that help a bit without adverse affects
I developed some nerve damage 4 years ago because of my diabetic peripheral (sp) nueropy. (sp). It wasn't that bad....just noticable. My doc immediately responded with gabapentin. I have been taking it since that time. Now I am reading about side effects that I have had but which I never would have attributed to the gaba. Thank God for all of you who have taken the time to inform me about what I began taking when I really didn't need anything as strong as gabapentin.
I am beginning to find other therapies that are proving to be much more helpful. I took in a beautiful stray terrier/bulldog on 6/11/23. Of course, this is a very active breed, so now I am walking BabyDoll four or five times daily. Before BabyDoll I was beginning to become used to using a cane. Now it leans against the wall. From what I can see thusfar, I do not anticipate most of the terrible side effects that so many of you have suffered from. I anticipate that my post gaba days will lack any substantial side effects.
Instead of gaba I have substituted various other remedies that I have used for years when experiencing mild discomfort or pain. (I am 76 now.) I am currently taking a low dose of Ibuprofen every morning. That seems to help keep my back flexible enough to avoid most back spasms. I believe that my chiropractor has helped to prevent my back from getting tied up in knots. (Thanks Doug.) I also have arthritis (sp) in my hands, back and neck. Recently I purchased a leg compression device which covers my feet and calves. That helps push the blood up my legs. I have plenty of ice packs which I don't use and a nifty 'heat belt' which I do use. I get down on the floor every morning and do some stretches that I found on-line. In so doing, I have developed my own 'physical therapy'. All of these small additions to my daily routine have helped a lot. I certainly hope that you can find a gaba-free way to manage your pain. Best Wishes. John
I’m on gabapentin for spinal stenosis. The side effects outweigh any benefits. I am SLOWLY weaning off of it.
I found that a lot of foods make my pain a lot worse. I went on Mikhaila Peterson’s Lion’s Diet (meat from ruminant animals (beef, lamb, deer), salt & water - for 1 month. -I never felt better in my adult life! Then add 1 food back at a time every 4 days. I found I was sensitive to all grains, dairy, eggs & pork; these foods made me achey all over to the point of being bedridden. I find I function the best on a carnivore diet (with only ruminant animals). Dr. Osborne has a lot of good information on gluten sensitivity. Dr. Ken Berry is a good place to start on the carnivore diet. This is a natural way to decrease pain. Our food supply is toxic with seed oils (vegetable oils), preservatives & additives (many of which are outlawed in Europe).
😢😢😢😢how do I get my life back? I had a total knee replacement surgery Oct 2021. I’m in so much pain but my orthopedic took me off norco and tried tramadol, gabapentin (caused sob) now he prescribed Lyrica but I don’t want to take it from my history of medication allergies. I’m in so much pain and feel like such a failure. I push myself to go to work and then I just come home. I don’t know what else to do. I can’t take NSAID’s. I take 2000mg of Tylenol a day, at one time and that helps for a bit but I don’t want to take it anymore in a day since I already took 2000mg’s. This is so frustrating. Thank you for your video.
I really feel badly for you. I have nerve pain so bad in my feet I want to just die in my sleep.
@@lilybond6485 Same. 😣
Surgery can aggravate peripheral neuropathy. In this type of situation I would do two things: 1) See if there is another reason for your pain (is the knee replacement working or causing the pain?). That would be the easiest to treat. 2) Work on the peripheral neuropathy if that is the cause. The key here is to find what is aggravating the chronic inflammation (foods, nutrient deficiency, etc) that can be treated. You should be able to get your life back!
I took it for five years and hair started growing on my earlobes.
My response is obviously. If your body/brain is satisfied with less pain signals and more feel good neurons in the form of endorphins and dopamine then of course it will react with a sudden decrease in this. Sort of like a sugar high that gets you going quickly at first then crashes suddenly once depleted. Next is it's safe to assume a big pharmaceutical company will make their drugs addictive to increase the likelihood of it being used more if anything to quell withdrawal symptoms. Drug manufacturers spend millions of dollars selling medications that should, as advertised work on their own without any advocating. If it works so well then they will ultimately sell themselves and don't need the conflict of interest by spending millions to sell their medications to doctors who peddle them to patients sometimes without any need. Hence why we have become so over medicated as a society and not for the better. Unfortunately when you have so much vested interest in doing the wrong thing by being self justified for doing the right thing, you have the conclusion we have ✌🏽♥️
I'm having pretty bad memory loss, had brain cancer; two surgeries and proton therapy, have a friend tell me they were on Lyrica and tell me they had terrible memory loss, I have memory loss as it is but mine is terrible
Memory loss is one of the possible side effects of many of these nerve modifying medications. Increasing your GHK-Cu may help your memory. One option I have found: th-cam.com/video/6bt52NYE06A/w-d-xo.html
I had bad side effects from certain manufacturers of gabapentin and lyrica, also had similar things happen with ritalin, other brands work wonders.. my herniated disc is stuck to my nerve, failed laminectomy, severe sciatica, currently on opioid pain management and it works well, some times the pain is completely gone, however I can kind of feel myself becoming used to the opioids and fear they won’t work as well in due time.. I like cannabis, I think it definitely helped my sciatica, I think it definitely has a soaring effect on prescription medicine use, however illegal in my state. So idk what to do.
I found I was sensitive to the starch in medications ( gluten sensitivity; see Dr. Osborne’s channel) which made my pain a lot worse; eggs & dairy too. I found this out by going on Mikhaila Peterson’s Lion’s diet and then adding one food back at a time.
I have to decrease my opioids for about a week and then they work again. Cannabis slowly destroys the brain too. But if that’s the only pain relief you get, I guess you have no choice.
It gets to the point, you realize every single drug has negatives, or does nothing. I’m trying it due to terrible nerve pain impacting my life so bad. Duoxetine is the only other option approved, and I’m seeing more side effects. No pain meds work.
Just how do you manage the pain ?
Thank you
I have been suffering it it gor a long time
. I have had chemotherapy and radiation and it left me with press bone neuropathy in my feet legs and ants
Just because a medication causes bad withdrawals doesn’t mean it’s a bad drug. I’ve come off more classes of medicines than I can count and gabapentenoids are difficult to come off of cold turkey but if tapered it’s hardly noticeable. Also there are plenty of examples of medicines that are very efficient and effective that technically don’t fix the problem. If they provide a marked increase In benefits and the negatives are obviously outweighed then the medicine is indeed causing an effect that treats the pain. If it treats the pain and that’s why it’s being taken then mission success. If you’ve ever been in chronic pain any relief what so ever is a god send. This is the problem with pain clinics now day. They won’t just open up their script pad and write a simple prescription because the patient might get addicted. Instead of using physical therapy and procedures combined with medicine they want to rip the meds away.
Ok, so what next, doctors won't do operations unless they find it absolutely necessary and they think it will help least here in Australia anyway. A lot of other natural options like physio, or the like just don't work. So what else is there to do?
Neuropathy treatment should be done in 4 Steps: 1) Understand Peripheral Neuropathy, 2) Manage The Symptoms, 3) Control Nerve Damage, 4) Thrive With Neuropathy. This may seem like an over-simplification (it is), but if treatments don't include learning about your unique neuropathy and controlling (and improving) the nerve damage or injury then nothing is going to work.
Lyrica caused muscle wasting to me. I tore many ligaments and tendons due to muscle wasting.
Sadly this is a common side effect.
OMG muscle wasting ? WTH is THAT that I don’t want to look forward to ?
@@lilybond6485 Yes Lyrica could cause severe muscle wasting. Muscle wasting could cause rupture of muscles,ligaments and tendons.
I’ve never seen any reports or literatures of rupture of tendons and ligaments due to muscle wasting induced by Lyrica, but I tore many tendons and ligaments. I took Lyrica for a month only.
@@et6073 I’m mostly bedridden for a long time. I tore many tendons and ligaments from head to toe, but doctors have no clue to treat my physical injuries.
I have Trigeminal Neuralgia on the right side of my face. I was on the verge of unaliving and Lyrica was the only thing that has helped. BUT!!! It has caused my teeth to fall out. I just had yet another oral surgery this morning to remove 6 more teeth. I am SO incredibly torn over this medication because it's awful. But what can I do? They tried everything else. I am highly allergic to Tegretol and Neurontin. Others made me sick or just didn't work. I hate beautiful teeth that I spent thousands and thousands on. I'm just sick over the whole situation
I have trigeminal neuralgia as well. Very rare both sides of my jaw. Did you go to a special dentist?
I'm so sorry 😞
Of course everyone is different. Im on 1800mg day of gabapentin for pudendal nerve entrapment, without it I wouldn't be able to sit at all. However, in the beginning i could have been treated with steroids or with a nerve block with local anaesthetics. None of this was offered to me so basically, although my meds are helping me, I've been given a band aid for my symptoms.
Lyrica gave me back my life.
Yeah and take it for life why not if it works
I have mine in my arms, legs and back from levofloxacin.
But there is no cure for my l4&5 nerve pain. What then? Not even neuro-stim helps. To many cysts and tumors in my spinal cord + arachnoid-itis has bundled my spinal nerves. No more surgical options after 7. So I'm just sol?
I’ve been Lyrica for a year and it does nothing for my neuropathy in my feet.
Yeah but exercise, stretching, cupping, massage and hot pool therapy are not really treatments because they never treat chronic pain for more than a few hours. It never ends. Exercise with different natural therapy is great and I jog 5 days a week and everybody should do it but I know many people doing these weekly treatments that really don’t improve pain. They just put my wife on Lyrica and she is at least starting to finally get some sleep at night. I’m not sure if this is the direction he was going but my gut tells me he’s one of these anti medication doctors.
when you're experiencing severe electric shocks occurring sporadically with variable intensity, and traditional pain meds are ineffective - you're willing and desperate enough to try anything (like purchasing injectable lidocaine from Indian dentist on ebay and watching youtube tutorials on perfoming nerve blocks, and local anaesthesia level desperate)
No other option for nerve pain ? It’s in my feet so bad I just want to die. Been on Gabapentin for about 5 years but want to transition to the other Satan drug Pregabalin because you take less with more of an effect on pain. I would prefer to not be on either drug.
Pregabalin is a better drug but both have significant side effects. The secret to nerve pain is not just treating the symptoms but looking for ways to heal the nerves and stop the nerve injury.
Thank you so much for responding. I was never given any option other than medication. Immediately put on medication over 5 years ago. It’s probably too late to see about any other option since I’ve been on Gabapentin for years.
What does he give to help then?
Pregabalin has saved me , I have a coccyx tailbone stuck behind my anus , prolapsed disc l5, burning stiff legs , pilonidal sinus disease , sacral coccygeal, pilonidal fistula in ano, nuropathic itching in tendons and buttock muscles and my legs, so bad I've broke chairs pressing on the edges with my butt and legs to stop the itching .
Some individuals get amazing results for peripheral neuropathy form pregabalin (Lyrica). The ideal, however, is to improve the nerve function and eliminate the pain (instead of just treat it). Often this is possible through appropriate treatments. For this reason we are offering a FREE Challenge - The Neuropathy Secrets Masterclass this coming week (www.NeuropathySecrets.net/masterclass)
Is there a national pain alternative?
There is not a great pain alternative without side effects. Some individuals are turning to CBD oils, some are using a machine called Rebuilder (th-cam.com/users/liveF10WATzxLhE) and some are looking for alternative methods like the new methods of stimulating your adult stem cells (this has taken away pain in many patients - th-cam.com/video/6bt52NYE06A/w-d-xo.html)
So moma is the norm
I am lyrica
You do not use lyrica for cancer induced pain. Also, most people can easily wean off them. Of course, it only masks system. How are you supposed to fix acute nerve damage from physical trauma?
there are just a couple of medications that actually cure over the past 100 yrs. Medication suppresses it doesn't cure
is this guy even a qualified doctor ???
Lyrica works amazing for me @45yo… night and day for pain. W/o it I can’t walk.. with it I can walk all day.. maybe there will be a cure soon, we know it’s like an Advil… Even as a supposed Dr you don’t know how this feels with neuropathy on or off Lyrica. Your mom was probably 80yo, in pain regardless … don’t tell people not to take medication that didn’t work for one 80yo…
I love that Lyrica is working for you!! I have treated hundreds of patients with bad side effects of peripheral neuropathy medications including Lyrica. My goal is to not just repress the symptoms with these medications but improve the nerve function (also resolving the pain).
PS My mother was under 70 years-old and I have peripheral neuropathy myself.
Without talking about an alternative solution, it’s a worthless video.
Lyrica is horrible.
This is an awful drug. It helps me sleep, the problem is I don't want to get out of bed the next morning. It is going down the toilet today.