I suffer from sleep paralysis. I get the attacked anytime even during the day.damm that few minutes .its hard. What's worse is that I can hear and even see what's going on around me.just cannot wake up that time.wish someone can shake me
Right? I thought the same thing. The mere fact that she's not totally bonkers is amazing in itself. Especially because she was at such a prime age for growth and development in pretty much ALL areas too. She's really something else... but I guess that's the very reason she DID survive the way she did, ya know?
For real. I would have gone completely insane. You're basically left with nothing to do but to think for 4 years. I struggle with being left alone to think for 12 hours.
Keeping my thoughts about Lea Michele's work... Why should Lea Michele play Victoria Arlen when could play Victoria Arlen? Arlen's verified instagram has actress listed in her bio.
I am a survivor of “Locked in syndrome” as well. My episode lasted 3 months in 2016. I can’t imagine 4 years. I’m so happy you are still wigh us Victoria.
Whoa, locked in syndrome is super rare and people rarely ever recover, infact most die within four months! Did your family know you were conscious in there? How scary, you had someone watching over you for sure! Glad things worked out for you.
The best commentary No kidding! I can't even imagine laying there for 4 years, completely aware of everything around me and knowing what I want to say and do but physically can't. That's why I would "never pull the plug" on somebody on life support or anything. Because you just never know what's happening in their own mind. This is literally a miracle. It makes me wonder how many people have been taken off of life support and if they KNEW they were going to be taken off of life support and just couldn't do anything to communicate that they they didn't want to die. 😖
I heard everything that was said around me when I was in a coma for 4 months. I also remember hearing the doctor's telling my mom and my sister that I wasn't going to wake up and if I did I would never be able to take care of myself and would need to be placed. I woke up 2 days later on the morning they were going to turn off my machines. I heard everything ..
OMGOSH honey! I can't imagine being able to hear! I was in a coma for 3 &1/2 weeks due to a car accident in 2002 & woke up compared to a stroke victim. I couldn't talk & it was beyond frustration!!
The question is: Why isn't it yet? I mean, miracle stories like this also sell well, like all stories of hope, strength and survival. Unless of course Megyn Kelly feels that a movie is not the right thing to do, and at the end of the day it's her decision.
There was a movie in 2014 titled exactly that: Locked-in, it is about locked-in syndrome but the cause was a car accident… Ben Barnes, Sarah Roemer, and Eliza Dushku played in it…
Mao Lor read about the poor father in Ghost Boy. After the mom decided she couldn't bear to be around her son, the dad had no choice but to be the only caregiver for over a decade. It should be required reading for every caregiver and health professional.
I have a friend whose mother passed away last month from heart complications but she was in a coma for 20 years from a stroke. They weren’t sure if she could hear or understand anything. I met her in her coma and her eyes followed me around the room. I’m pretty sure she could hear and see.
Marquise M from my experience with a heart failure & coma at 16 yrs old, you can still hear things going on around you, except you can’t really process it. To me it kind of felt like lucid dreaming. In one “dream” I saw my aunt get shot & when I woke up from the coma I was asking everyone if she was alive. It was a crazy experience.. but the whole time, all I felt was peace, no pain at all. 😊
10 days?! I was in one for 6 weeks, they had to tube feed me through my stomach and my ears had dried blood so I didn’t really hear anything and I never talked till I woke up. Walking was a nono I had a bed pan and a sit down bucket. I was pretty much asleep. I can’t even remember if I woke up once in a while.
I saw an older nurse lady speaking of her same experience of being locked in. She could hear the doctors and nurses saying it was time to take her off of life support. She was petrified. But her husband said NO were not giving up. He ultimately was her biggest advocate and she lived to tell her story. The doctors were amazed for her to repeat word for word what some had said to her or about her during that time... She even encountered a few unfriendly and mean nurses during that time. All which thought she couldn't hear them, and that couldn't have been furthest from the truth. That's why in the medical field they ask u to treat everyone as if They're aware and can hear and understand regardless if they can talk back or in a vegetative state. U just never know
No wonder, Steve. Taking care of her baby girl for four years, non-stop, promising herself to stay sane and positive, day by day...for 1460 days, with no medical good prognosis... It had to be giving much distress. They both are superheroes. With the main Superhero, God Himself making miracles like that to remind us we're not alone in this world. Amen!
Everyone hating on the doctors like “They have no idea what they’re doing!” when you have no idea either! They’re trying to figure it out from a variety of different illnesses, and her situation was unique. They tried their best, and it isn’t their fault that a miracle occurred. The reason they don’t give hope to the patient is that, if they do and the patient dies, their loss will be that much more traumatic. Just wanted to say that for the doctors out there because their job is hard!
It's flat out cruel to say a person will die! A general statement such as, "We don't know but will do our best and hope for healing", is appropriate. Like she said, only God knows, doctors need to leave their egos at the door.
You're lucky. I can't meditate for even 30 seconds. My brain always starts thinking immediately about anything and everything. Specially crap I need to do.
Victoria and I grew up in the same town and she came to speak to my class when I was in middle school a decade ago. At the time, she was in a wheelchair and she said she would walk again. It was incredible to see this woman we could look up to do with such confidence and determination. She truly is as kind and wonderful as she seems and deserves everything 👏
Thanks for the advice and encouragement I was on several very many meds and it caused to many health issues and I'm still young I want to live not be a walking zombie I'm getting better day by day I have good people and friends that take care of me it's.only been since.marxh my dad died
And yet, imagine the torture of nót wanting to be alive for 4 years like that and your family keeping you alive. I mean..not being rude or anything, she's obviously a success-story, but if they knew what was wrong and knew there was no chance of getting better... And then imagine the sheer pain from all the procedures you have to go through, knowing you can't even defecate on your own and need people for that... Like come on. Look at it from both sides.
@@Widdekuu91 Locked in syndrome patients, like her, can communicate with her eyes. She started blinking to say what she wanted. You're saying "look at both sides". In the case of this woman she literally wanted to be survive. If not, she would've communicated that. So yes, it's valid to say "luckily this family didn't give in", because the daughter didn't want to die.
@@Romy--- That was after 4 years. Until then, she couldn't even control her eyes. That said, no one "knew" she would never get better. The doctors themselves admitted that they didn't understand what was happening. All I know is that everyone should fill out an Advance Directive to help clear up the ambiguity that Slayer and Widdekuu mentioned.
What an amazing woman. No, what TWO amazing WOMEN. The Mother who said she'd be there for her child no matter how her child was, and the girl who had to learn that true happiness isn't material, and bore the strength to resist the loss of her body breaking her spiritz
Giuseppe Sarto You mean the mother who dismissed her daughter's symptoms as being "the misalignment of the stars"? She had the same duty of care as any mother. Nothing "amazing" about that. What's amazing is how this girl triumphed in spite of her mother's and her doctors' stupidity.
I remember seeing her on Dancing with the Stars and I was already impressed with her being able to walk. I had no idea that she went through four years of that. She is just so inspiring.
unfortunately, i get sleep paralysis quite often.. the feeling itself is very sickening and watching this makes me very grateful that i can wake up from those nightmares every time. i admire her courage and patience, if it was me.. i would have listened to those doctors and went on my life as a paralyzed person.. but wow. just amazing.
Hi. I think that I've had sleep paralysis a few times. But I noticed that it happened in the cases when I worked long hours and my body didn't have enough time to get recovered, and my nervous system was exhausted. Then I couldn't move my body in the sleep although my mind was awoke. After having good rest, I was okay. Maybe you should make some changes in your daily routine and in your diet as well? It might help you to reduce the cases of sleep paralysis.
Dalal personally I would be stubborn and try every day and keep doing it all the time for sure until I would walk. I don't like being told what I can and can't do
My family has been through this with me too. I was dead for 20 minutes. In ICU for 2.5 months. The doctors and chaplain told my parents they needed to "let me go." My family set up a chart for me to communicate with. If it wasn't for my family and our faith in God I would have never left that hospital alive. My critical care doctor (the only one really cheering me on) said I was the only patient he had with the time of death written in the chart. Do not let doctors tell you what your future is!
I have a seizure disorder that I was diagnosed with at age 8. I’ve only had 3 large seizures in my life. That was the most traumatic experience of my life. I cannot imagine having seizures 20 hours a day. What this girl has gone through is beyond anything anyone’s gone through. She’s such a pure, kind soul, and an inspiration to all.
I was in a coma for a week and when I finally woke up and began recovering, I felt the same way and could not actively communicate. I could see from my family's faces that they feared I was going to be in a vegetative state or disabled forever. I was just trapped inside and had many issues, including connecting thoughts and verbalizing them. I also had short term memory loss and was in a state of panic and anxiety trying to understand what was happening. The nurses sedated me more than once because I had panic attacks from the realizations that I could not do things that I used to (hold a pen, write, etc). In the first month of recovery, my mother tried explaining to my doctors/therapists that she felt I was not present or the same person, but I was there, it just took a lot of time for me to come out. It's such a strange & traumatizing experience, and I admire Victoria's strength and ability to explain and talk about it openly. I'm glad I'm not the only one, and that there are others out there who understand. I only had to deal with it for a couple of weeks, but a whole 4 years would have been more tormenting.
Proud of you made it thank God that you always was blessed God give his strongest warriors the hardest battles.. it's amazing that you even don't hear writing right now that is very very inspiring that you made it and you just back out here living life again
Doctors always say or imply hope for the best, and prepare for the worst because if the make a claim the other way around and things don't turn out well then they get even more grief for it. It doesn't make them bad doctors if they say there is a chance of death while in the meantime they're still searching for answers in hopes the patient can survive.
You're right in most cases, however, there are some doctors out there who think they are God and speak with absolute certainity. One thing we know today and with more examples of such cases like hers, nothing is for certain in this world. Yes, death is, but not necessarily when doctors say it.
It kind of irritates me when survivors claim doctors told me I could never do this or that. the doctors are only using their best judgement to let you know what to expect. the same judgement that saved your life
They still misinformed her family. Good doctors say "we dont think she will pull out of this." "Based on what we know, its unrealistic for her to pull out of this " when they give definitive answers it's their own fault.
GodlessGoddess 9:27 really irritates me! This is a miraculous story, no doubt. And I’m amazed by it and inspired by her. However, her case is an exceptional one. And her ultimate outcome even rarer. So to blatantly refute the knowledge of the very doctors who medically cared for her is outrageously ungrateful, in my opinion. This beautiful story shouldn’t be painted as patient vs. doctors. Her recovery was surely multi-factorial, but to discount Western medicine in this way is ludicrous!
Doctors are limited to what they can see at the moment. Old fashioned doctors used to say, "I have done all I can. Now it is in God's hands." But a doctor who gives hope beyond medicine is VERY rare. Doctors are useful, but don't let them dictate your future.
Incredible story. Being trapped inside my body like that is my absolute worst nightmare. What a stunningly beautiful woman, and so strong, physically and mentally. Aaaaaaand her name is pretty awesome ;)
I am sorry to hear about your father. I'm hoping for a miracle for him and your family as well. My mother had a multiple strokes after an abscess became necrotic and I lost her 4 years ago. It was devastating. I wouldn't wish that on anyone. Sending your father positive vibes (sorry, that's all I have to offer!) Best wishes darlin'
My best friend was in a car accident and was in a coma for a month and then in a vegetated state. She had to learn how to talk, walk, everything, and today she’s doing wonderful. She’s different but if someone met her for the first time, they would have no idea. God is good!
Yes, that would have been awful... I'm sure it's happened more often that we know to others. I need to research... can they actually pull the plug if the person is moving and awake? I know they can on patients with no activity.
So many doctors and health organizations have murdered people in vegetative states by pulling the plug just because of their ignorance and to save money. A few years ago a little boy’s heart rate was responding AND he was making very slight movements to his mother’s voice and tickles. His parents fought to keep him on life support and were trying to move him to their home and continue with it. BUT state of California didn’t care and had a court order and pulled the plug. It was so heartbreaking.
Nobody!! She wasn’t in a coma. She was awake but unresponsive. She had a wake/sleep cycle. The people they pull the plug on aren’t locked in. They do multiple tests multiple times to make sure. This includes whether and what kind of brain waves you have. Pupils response to light. Basic reflexes. The girl in the video would have had normal brain waves including being able to tell when she was dreaming in her sleep. She would have had reflexes and her pupils would certainly be responding to light. There’s other things too. So don’t worry.
That's probably about the most inspiring thing I've ever seen. This woman has a massive amount of inner strength. Definitely a role model to consider of the next time you think you can't do something. Whatever that thing is, it probably pales in comparison to what she had to overcome.
MsQuetta read Ghost Boy. He was locked in for over a decade and still needs a computer to communicate. There are some videos about him. Horrifying yet amazing.
My father was on life support and in a coma for a week. We were told he would not make it. Almost a year later he is still here, walking and talking. The human spirit is amazing
Wow! I was locked in for 16 days, it’s absolutely horrific, I can’t believe she is not insane! Thank God she was able to come out of it! Great strength and attitude! You go beautiful girl! I think you have a wonderful happy future!
John Rodney show evidence that God/s doesn't exist There is none Those who believe show evidence that God/s exist There is none If God/s exist how do we know that we believe in the right one or just an imagine one or the devil? in life it shouldn't matter if god/s exist or not What should matter is what you do with your own life
When she said "Mommy, I'm gonna get back to you, I promise." That really broke my heart. 🥺💔 Thank God she is still alive and here with us today. God bless her! What a super hero!!! 🦸🏻♀️
It would've been nice to know what these two autoimmune diseases were, but wow, what an amazing, miraculous story!! God bless her! Wowza! I don't know why some people gotta be so miserable inside, that they feel the need to randomly dislike videos. Really pathetic.
If anytime you read or watch anything and want additional information don't forget you can Google it! Victoria Arlen has transverse myelitis and acute disseminated encephalomyelitis.
Amazing she got through it without any residual symptoms: muscle, bones, vital organs are all developing at a high growth rate during the preteen years, yet after four years there's no residual muscle contractures, unusual bone or muscle development, etc... absolutely amazing. She's a miracle. God bless her and the Jockey Corporation for this amazing and miraculous story.
I was in Coma 17 days with 40 broken bones!!! I was never suppose to walk again mainly because my right leg was broken in 5 places!!! Thank You GOD and JESUS for saving my life and allowing me to show all those professional doctors how much they really didn't know because my life is better than perfect now!!! And to my son Collin you have to know how much your father LOVE'S you son!!!
Nobody knows everything. Doctors speak off of training and experience, but there will always be exceptions to the rule. I hope people don't look at examples like this as a reason to distrust their medical providers.
"You're not God, you can't tell me what I can and can't do!" (Yes!!!!! Best words ever!!!!!!) YOU GO GIRL. Positive Attitude goals for me! Wow! Luvin all the likes! GODS THE ONLY WAY!!!🙏
She is the definition of a fighter her spirit is just so strong and motivating and once she got back moving she hasn't stopped made my day watching this
Matthew Price Didn't reply to my reply because u know you're illogical and can't defend your delusional beliefs even though your book commands you too. I bet you haven't even read it.
I don't blame the doctor, If I ever had a condition like this I would definitely want my family to pull the plug because that must be a miserable existence. The mom is an amazing woman though.
My brain can't grasp how the person speaking can seem so vibrant, compared to what my mind would imagine a 4 year coma patient, 20hour a day siezier patient would look like. Must be God.
I’ve been diagnosed with HYPOKALEMIC PERIODIC PARALYSIS which closely resembles Locked In Syndrome. Thankfully, it doesn’t last as long as Locked In, but it is still a horrible disease to have. Not being able to speak or move all while being conscious is torment. God bless her for her spirit and strength. She has blessed me today‼️ THIS is what I needed to see. ❤️
It’s kind of important for them to tell us the rare forms of autoimmune disorders to help other people to know about it too. I wish they would’ve talked about that more too
This is one of my biggest fears. The idea of being trapped like that seems like the most unimaginable thing and god bless anybody currently in a situation like that.
And to go through this at such a young age! It would be terrifying as an adult but as a tween/teen! Unbelievable! Her strength and determination is next level!
She is blessed to have overcome something like this! She’s is a strong and intelligent woman. Judging by how loving, loyal and determined her mother is, i can tell the apple didn’t fall to far from the tree… Her mother is a amazing phenomenalI and woman!
Can't imagine what it must have been like to be trapped in your own body for 4 years, not being able to do anything. How can your mind survive on a daily basis? Are you bored, does your brain shut down in any way, do you fall in a semi-sleep state just to get by?
Thomas Favre maybe it's so dull it's the opposite. in your head you're making up stories, imagining things, play acting, even just mentally reciting math facts, something.
that's what I was wondering. I had never heard anything like this before, and such a situation has been a nightmare of mine (because unfortunately, my brain likes to create improbable situations to worry me).
this is the part of it I absolutely cannot wrap my head around. Like it sounds like she was very conscious while she was awake... so i couldn't even imagine going through every single day just being there but not able to do anything, speak to anyone, nothing. For 4 whole years. I couldn't even handle that for a couple days!
Potentially i could be fairly entertaining to my own self for a while. I would attempt to write a book in my head. I would also write a letter to my younger self. I would design my dream house. I could even attempt to grapple at some things about the meaning of life, such as.. What is the point of this life if it is only a transition toward eternity?
I have sleep paralysis I could not imagine mine only last mere minutes but I do not think i could mentally hang on that's my worst fear of being stuck in my paralysis
Hi. I think that I've had sleep paralysis a few times. But I noticed that it happened in the cases when I worked long hours and my body didn't have enough time to get recovered, and my nervous system was exhausted. Then I couldn't move my body in the sleep although my mind was awoke. After having good rest, I was okay. Maybe you should make some changes in your daily routine and in your diet as well? It might help you to reduce the cases of sleep paralysis.
God's Girl amen I was just about to say this! My mother used to have severe sleep paralysis until she became a believer in Christ. Everytime it started she would think(because when that happened she couldnt talk) ‘Jesus’, ‘Jesus’. And it would leave as soon as she thought the name of Jesus
Beautiful story, as a mother of a daughter I can relate to this mother, and just watching the videoclips of this little girl, I could see myself that she was "there". I could see it in her eyes. So happy about this story, and it takes a mother to know, doesn't it?
So few know what this is like, I struggled with this. We knew something was wrong from childhood but it wasn't until adulthood I was in the locked in state for a year, it took a long time to recover. I'm so glad others people understand too. Thank you for sharing this story.
Suzy Evans I knew there had to be a reason it felt seemed like they filmed the entire movie in a couple hours , the pacing made no sense to me but knowing it was a book , now I understand
D C yes, she recovers some in the end but as anyone knows who has had such an illness, the medication continues and life is never the same- but a really brave woman
What a beautiful spirited woman and loving mother that stood by her. I'm so glad she fully recovered it would have been such a shame for the world to miss out on her. It also shows that sometimes the dr's are dead wrong and to never give up.
I got scared when I was in sleep paralysis for two minutes I can’t even imagine how she survived those 4 years.
The dude from South Africa locked in for 13 years , imagine that
Same here and 2 minutes feels like a week.
Same here and 2 minutes feels like a week.
I suffer from sleep paralysis. I get the attacked anytime even during the day.damm that few minutes .its hard. What's worse is that I can hear and even see what's going on around me.just cannot wake up that time.wish someone can shake me
@@bongihussain9648 I hear you. I get sleep paralysis almost every other day. It's been over 6 yrs and I am getting used to it day by day.
It's amazing she didn't go insane in that nightmare situation.
Right? I thought the same thing. The mere fact that she's not totally bonkers is amazing in itself. Especially because she was at such a prime age for growth and development in pretty much ALL areas too. She's really something else... but I guess that's the very reason she DID survive the way she did, ya know?
For real. I would have gone completely insane. You're basically left with nothing to do but to think for 4 years. I struggle with being left alone to think for 12 hours.
Keeping my thoughts about Lea Michele's work... Why should Lea Michele play Victoria Arlen when could play Victoria Arlen? Arlen's verified instagram has actress listed in her bio.
The doctor motivated her to keep on living with his negative comment..she had a will to survive and she did!! she's awesome
Right
I am a survivor of “Locked in syndrome” as well. My episode lasted 3 months in 2016. I can’t imagine 4 years. I’m so happy you are still wigh us Victoria.
Sounds really horrible! I am glad you came out of it. I hope you made a full recovery? I wish you all the best.
Did you get a vaccine a few months previously??
And you, too!
Whoa, locked in syndrome is super rare and people rarely ever recover, infact most die within four months! Did your family know you were conscious in there? How scary, you had someone watching over you for sure! Glad things worked out for you.
@@urflofit2010 Just out of curiosity, why do you ask? Was there a faulty vaccine in 2016?
I went to high school with this girl. I had absolutely no idea that this was what she went through.. this is amazing
lol
So she was in a wheelchair right? Since 15 til 25 in a wheelchair..... Praise God for what he pulled her through!
The best commentary No kidding! I can't even imagine laying there for 4 years, completely aware of everything around me and knowing what I want to say and do but physically can't. That's why I would "never pull the plug" on somebody on life support or anything. Because you just never know what's happening in their own mind. This is literally a miracle. It makes me wonder how many people have been taken off of life support and if they KNEW they were going to be taken off of life support and just couldn't do anything to communicate that they they didn't want to die. 😖
I know. What a survivor. I would just give up. What a blessing she is
The best commentary
No, she’s only 23 years old.
This just proves how important your state of mind is!
As we say in the Army, everything is mind over matter. If you don't mind, it don't matter. (pain mantra)
I heard everything that was said around me when I was in a coma for 4 months. I also remember hearing the doctor's telling my mom and my sister that I wasn't going to wake up and if I did I would never be able to take care of myself and would need to be placed. I woke up 2 days later on the morning they were going to turn off my machines. I heard everything ..
It’s amazing you’re here with us today 🙏🏼
Oh that must have been awful to hear. I’m so sorry you went through this
OMGOSH honey! I can't imagine being able to hear! I was in a coma for 3 &1/2 weeks due to a car accident in 2002 & woke up compared to a stroke victim. I couldn't talk & it was beyond frustration!!
Glad that you woke up at the right time.
Thank Allah you made through it
This should be a movie called Locked In
Yesssss
The question is: Why isn't it yet?
I mean, miracle stories like this also sell well, like all stories of hope, strength and survival. Unless of course Megyn Kelly feels that a movie is not the right thing to do, and at the end of the day it's her decision.
OMG YAS!!!!!!!
There was a movie in 2014 titled exactly that: Locked-in, it is about locked-in syndrome but the cause was a car accident… Ben Barnes, Sarah Roemer, and Eliza Dushku played in it…
I wonder if u have seen the movie ‘Brain on fire’
That’s a true mother! What a great example of what it means to not give up on your children
Mao Lor read about the poor father in Ghost Boy. After the mom decided she couldn't bear to be around her son, the dad had no choice but to be the only caregiver for over a decade. It should be required reading for every caregiver and health professional.
Mike Rhodes Thank you for that excellent recommendation.
You better know it
Mao Lor Seriously. If I were ever in the daughter's position, I would rather be allowed to die than to endure those 4 years of torture.
@@JLDReactions agreed. I never want to be locked in. No life support machines for me.
I have a friend whose mother passed away last month from heart complications but she was in a coma for 20 years from a stroke. They weren’t sure if she could hear or understand anything. I met her in her coma and her eyes followed me around the room. I’m pretty sure she could hear and see.
20 years!!!!
20 years💔
My Lord
I was in a coma for 10 days and had to re-learn everything (moving, swallowing, walking, talking) so I cannot fathom 4 years.
KKR did u see anything or did it feel like u was sleep for 1 second
Marquise M from my experience with a heart failure & coma at 16 yrs old, you can still hear things going on around you, except you can’t really process it. To me it kind of felt like lucid dreaming. In one “dream” I saw my aunt get shot & when I woke up from the coma I was asking everyone if she was alive. It was a crazy experience.. but the whole time, all I felt was peace, no pain at all. 😊
WOW! I can't even imagine. I hope you're fully recovered and healthy! Good health is a true lottery win(now that I'm older/wiser.)
KKR I’ve known people who were in comas for ages and doctors told them they would never wake up. One mom didn’t give up and he woke up
10 days?! I was in one for 6 weeks, they had to tube feed me through my stomach and my ears had dried blood so I didn’t really hear anything and I never talked till I woke up. Walking was a nono I had a bed pan and a sit down bucket. I was pretty much asleep. I can’t even remember if I woke up once in a while.
This may actually be worse than solitary confinement.
Juanita Dudley it’s the real solitary confinement
Agreed 110%.
at least when you're in the hole you know there is a chance to get out. She at the time had no idea what was going on.
Don't give them ideas 🤫
"may"? 😂
I saw an older nurse lady speaking of her same experience of being locked in. She could hear the doctors and nurses saying it was time to take her off of life support. She was petrified. But her husband said NO were not giving up.
He ultimately was her biggest advocate and she lived to tell her story. The doctors were amazed for her to repeat word for word what some had said to her or about her during that time... She even encountered a few unfriendly and mean nurses during that time. All which thought she couldn't hear them, and that couldn't have been furthest from the truth.
That's why in the medical field they ask u to treat everyone as if They're aware and can hear and understand regardless if they can talk back or in a vegetative state. U just never know
Fc
Mom looks like she's still a nervous wreck over it.
No wonder, Steve. Taking care of her baby girl for four years, non-stop, promising herself to stay sane and positive, day by day...for 1460 days, with no medical good prognosis... It had to be giving much distress. They both are superheroes. With the main Superhero, God Himself making miracles like that to remind us we're not alone in this world. Amen!
Steve jones I would be too
She just got the medical bill in the mail! $$$$$$$$$
I'm sure she is. How scary It would be
chance will happen to her or hir child...in future.. but she gave hope...
Everyone hating on the doctors like “They have no idea what they’re doing!” when you have no idea either! They’re trying to figure it out from a variety of different illnesses, and her situation was unique. They tried their best, and it isn’t their fault that a miracle occurred. The reason they don’t give hope to the patient is that, if they do and the patient dies, their loss will be that much more traumatic. Just wanted to say that for the doctors out there because their job is hard!
True
Right they watch "HOUSE" and think its just a 30 min diagnosis.
It's flat out cruel to say a person will die! A general statement such as, "We don't know but will do our best and hope for healing", is appropriate. Like she said, only God knows, doctors need to leave their egos at the door.
When my cousin was in the hospital and the doctor guy said "i think she is going to die"
That is true Kindred.
She is fierce, witty and extremely positive and seemingly completely stable, and also so beautiful! Amazing.
It makes me panic just listening to this story! Wow. How strong is this girl?
Janet White same here
You have no choice to be strong. What can you do?
I can't even meditate for 30 minutes with my eyes closed. 4 Years? I'll be insane
And peaceful about it lol i know it s not funny
You're lucky. I can't meditate for even 30 seconds. My brain always starts thinking immediately about anything and everything. Specially crap I need to do.
Mediating on Gods word is the only meditation we should do
I'd commit suicide in my brain
The Kitty Bean basically when you learn something new about what the Lord has to teach; you focus or “meditate” on said teaching
Victoria and I grew up in the same town and she came to speak to my class when I was in middle school a decade ago. At the time, she was in a wheelchair and she said she would walk again. It was incredible to see this woman we could look up to do with such confidence and determination. She truly is as kind and wonderful as she seems and deserves everything 👏
wow this must be very impacting on your life!!
Praise God for your healing! I was healed from Epilepsy at the age of 14. I’ve been seizure free for 20 years
Jamie Jenkins I have also epilepsy and I been seizure free not really good
Jamie Jenkins praise Jesus thats amazing
How did you do it get free of it I mean that you and everybody is aweso m stay well
@@lisafisher320 depends you can grow out of it or medication can stop it
Thanks for the advice and encouragement I was on several very many meds and it caused to many health issues and I'm still young I want to live not be a walking zombie I'm getting better day by day I have good people and friends that take care of me it's.only been since.marxh my dad died
Good on her for "going to survival mode" but she is lucky that her family didn't give in.
And yet, imagine the torture of nót wanting to be alive for 4 years like that and your family keeping you alive.
I mean..not being rude or anything, she's obviously a success-story, but if they knew what was wrong and knew there was no chance of getting better...
And then imagine the sheer pain from all the procedures you have to go through, knowing you can't even defecate on your own and need people for that...
Like come on. Look at it from both sides.
@@Widdekuu91 Locked in syndrome patients, like her, can communicate with her eyes. She started blinking to say what she wanted. You're saying "look at both sides". In the case of this woman she literally wanted to be survive. If not, she would've communicated that. So yes, it's valid to say "luckily this family didn't give in", because the daughter didn't want to die.
@@Romy---
Alright, but not all people can do that. It's very common for those people to be stuck and nót be able to move your eyes.
@@Romy--- That was after 4 years. Until then, she couldn't even control her eyes. That said, no one "knew" she would never get better. The doctors themselves admitted that they didn't understand what was happening. All I know is that everyone should fill out an Advance Directive to help clear up the ambiguity that Slayer and Widdekuu mentioned.
What an amazing woman. No, what TWO amazing WOMEN. The Mother who said she'd be there for her child no matter how her child was, and the girl who had to learn that true happiness isn't material, and bore the strength to resist the loss of her body breaking her spiritz
Giuseppe Sarto You mean the mother who dismissed her daughter's symptoms as being "the misalignment of the stars"? She had the same duty of care as any mother. Nothing "amazing" about that. What's amazing is how this girl triumphed in spite of her mother's and her doctors' stupidity.
QQ
@@frankieg9387 q
That's the attitude about life I need to start having😍😍😍🙌🏾🙌🏾🙌🏾👏🏾👏🏾👏🏾👏🏾What an inspiration.
She inspired me too 💕💕
Me too
I agree!
I remember seeing her on Dancing with the Stars and I was already impressed with her being able to walk. I had no idea that she went through four years of that. She is just so inspiring.
She has such a vivacious personality! What an amazing woman
unfortunately, i get sleep paralysis quite often.. the feeling itself is very sickening and watching this makes me very grateful that i can wake up from those nightmares every time. i admire her courage and patience, if it was me.. i would have listened to those doctors and went on my life as a paralyzed person.. but wow. just amazing.
Same here and I hate it. People say I need to learn to embrace it but being awake but can’t move a muscle is terrifying.
Hi. I think that I've had sleep paralysis a few times. But I noticed that it happened in the cases when I worked long hours and my body didn't have enough time to get recovered, and my nervous system was exhausted. Then I couldn't move my body in the sleep although my mind was awoke. After having good rest, I was okay. Maybe you should make some changes in your daily routine and in your diet as well? It might help you to reduce the cases of sleep paralysis.
Dalal personally I would be stubborn and try every day and keep doing it all the time for sure until I would walk. I don't like being told what I can and can't do
I get sleep paralysis too. It's terrifying.
Dalal me too 😫
My family has been through this with me too. I was dead for 20 minutes. In ICU for 2.5 months. The doctors and chaplain told my parents they needed to "let me go." My family set up a chart for me to communicate with. If it wasn't for my family and our faith in God I would have never left that hospital alive.
My critical care doctor (the only one really cheering me on) said I was the only patient he had with the time of death written in the chart.
Do not let doctors tell you what your future is!
"You dont give up on your child " ❤
4 years in a bed unresponsive to re-awakened to 10 yrs in a wheel chair to Full health. Amazing.
I have a seizure disorder that I was diagnosed with at age 8. I’ve only had 3 large seizures in my life. That was the most traumatic experience of my life. I cannot imagine having seizures 20 hours a day. What this girl has gone through is beyond anything anyone’s gone through. She’s such a pure, kind soul, and an inspiration to all.
You go girl. I’ve been a quadriplegic twice from Recurrent Transverse Myelitis...and by the grace of God I walk normally now.
So transverse myelitis is reversible
"recurrent" meaning she relapses
@@geometricart7851 and she can walk again. So, the disability is temporary
@@anast9301
It was the work of the universe...
Sarah u go girl!!
I love how humble her mom is..she actually takes a step back to let her daughter have her moment.."super mum"..
I was in a coma for a week and when I finally woke up and began recovering, I felt the same way and could not actively communicate. I could see from my family's faces that they feared I was going to be in a vegetative state or disabled forever. I was just trapped inside and had many issues, including connecting thoughts and verbalizing them. I also had short term memory loss and was in a state of panic and anxiety trying to understand what was happening. The nurses sedated me more than once because I had panic attacks from the realizations that I could not do things that I used to (hold a pen, write, etc). In the first month of recovery, my mother tried explaining to my doctors/therapists that she felt I was not present or the same person, but I was there, it just took a lot of time for me to come out. It's such a strange & traumatizing experience, and I admire Victoria's strength and ability to explain and talk about it openly. I'm glad I'm not the only one, and that there are others out there who understand. I only had to deal with it for a couple of weeks, but a whole 4 years would have been more tormenting.
Proud of you made it thank God that you always was blessed God give his strongest warriors the hardest battles.. it's amazing that you even don't hear writing right now that is very very inspiring that you made it and you just back out here living life again
TERRIFYING! Its like being buried Alive! A Miracle shes back!
Im in tears... She smiled when when her mother would rub her head. What amazing inspiring beautiful woman.
As anyone who has suffered a medical trauma knows, the power of mindset has just as much to do with healing as anything, this young woman is proof
Doctors always say or imply hope for the best, and prepare for the worst because if the make a claim the other way around and things don't turn out well then they get even more grief for it. It doesn't make them bad doctors if they say there is a chance of death while in the meantime they're still searching for answers in hopes the patient can survive.
You're right in most cases, however, there are some doctors out there who think they are God and speak with absolute certainity. One thing we know today and with more examples of such cases like hers, nothing is for certain in this world. Yes, death is, but not necessarily when doctors say it.
Paul Donald I love this comment ! So true !!!
Surftouka what you & Paul ^ just commented is sooooo true !!! I couldn’t agree more with you both of you!
i'd rather trust a doctor than believe a magical unicorn in the sky is responsible for my survival
medication and hard work saved this woman... not God.
It kind of irritates me when survivors claim doctors told me I could never do this or that. the doctors are only using their best judgement to let you know what to expect. the same judgement that saved your life
They still misinformed her family. Good doctors say "we dont think she will pull out of this." "Based on what we know, its unrealistic for her to pull out of this " when they give definitive answers it's their own fault.
@@mrs.boz1141 there's a good chance that's what the doctors did say..but people want to think they're proving them wrong
GodlessGoddess 9:27 really irritates me! This is a miraculous story, no doubt. And I’m amazed by it and inspired by her. However, her case is an exceptional one. And her ultimate outcome even rarer. So to blatantly refute the knowledge of the very doctors who medically cared for her is outrageously ungrateful, in my opinion. This beautiful story shouldn’t be painted as patient vs. doctors. Her recovery was surely multi-factorial, but to discount Western medicine in this way is ludicrous!
@@MoreCoffeePlease. exactly!
GodlessGoddess His judgement didn’t save her, it could’ve killed her. God and her faith and strength saved her,
The mother’s so educated. Her words were so calm and mature, but I have a sense that they won’t trust any doctor anymore.
Doctors practice
Doctors are limited to what they can see at the moment. Old fashioned doctors used to say, "I have done all I can. Now it is in God's hands." But a doctor who gives hope beyond medicine is VERY rare.
Doctors are useful, but don't let them dictate your future.
Incredible story. Being trapped inside my body like that is my absolute worst nightmare. What a stunningly beautiful woman, and so strong, physically and mentally. Aaaaaaand her name is pretty awesome ;)
Philippians 4:13 ❤️
My dad is in this same state from a stroke he had in 2015. I am waiting for a miracle!
I am sorry to hear about your father. I'm hoping for a miracle for him and your family as well. My mother had a multiple strokes after an abscess became necrotic and I lost her 4 years ago. It was devastating. I wouldn't wish that on anyone. Sending your father positive vibes (sorry, that's all I have to offer!) Best wishes darlin'
Victoria Comeau sorry for your loss. It is a terrible thing.
Thanks.
Who else noticed the lady at 7:28 ?
Janifa oh my god my fave
😂😂😂😂😂
Hahahahahahahaha
Seen it
Janifa ..lol..i did
When she said your not GOD you can’t tell me what I can and can’t do I felt that🙌🏾🙌🏾🥰
My best friend was in a car accident and was in a coma for a month and then in a vegetated state. She had to learn how to talk, walk, everything, and today she’s doing wonderful. She’s different but if someone met her for the first time, they would have no idea. God is good!
This is horrible. Do you know how many people might have pulled the plug when people are in there watching 😞
Yes, that would have been awful... I'm sure it's happened more often that we know to others. I need to research... can they actually pull the plug if the person is moving and awake? I know they can on patients with no activity.
So many doctors and health organizations have murdered people in vegetative states by pulling the plug just because of their ignorance and to save money. A few years ago a little boy’s heart rate was responding AND he was making very slight movements to his mother’s voice and tickles. His parents fought to keep him on life support and were trying to move him to their home and continue with it. BUT state of California didn’t care and had a court order and pulled the plug. It was so heartbreaking.
@@Missallow source?
@@Missallow Where was this?
Nobody!! She wasn’t in a coma. She was awake but unresponsive. She had a wake/sleep cycle. The people they pull the plug on aren’t locked in. They do multiple tests multiple times to make sure. This includes whether and what kind of brain waves you have. Pupils response to light. Basic reflexes. The girl in the video would have had normal brain waves including being able to tell when she was dreaming in her sleep. She would have had reflexes and her pupils would certainly be responding to light. There’s other things too. So don’t worry.
That's probably about the most inspiring thing I've ever seen. This woman has a massive amount of inner strength. Definitely a role model to consider of the next time you think you can't do something. Whatever that thing is, it probably pales in comparison to what she had to overcome.
Amen! She should write a book
MsQuetta read Ghost Boy. He was locked in for over a decade and still needs a computer to communicate. There are some videos about him. Horrifying yet amazing.
I hope she did!!
She did. It's called Locked In: The Will to Survive and the Resolve to Live.
MsQuetta Ramen is more useful...
MsQuetta why exactly
Finding something to be grateful for every day - in that situation - wow! What an amazing young girl! Such a powerful spirit!
why is no one talking bout her lovely personality , i love it !
I hate it
"I'll be damned if that's how my story ends" that was deep. Glad everything worked out. Good on ya Victoria and moms
Can I just say that Victoria looks stunning.
Her mum is an amazing person. Victoria and her mum her such an inspiration to everyone.
My father was on life support and in a coma for a week. We were told he would not make it. Almost a year later he is still here, walking and talking. The human spirit is amazing
@@jla4christHe put him in a coma? Why would god do that.
I’m crying because her mother didn’t give up
7:28 Anyone catch the woman in the audience 😂😂
_
Lmfao!! 🤣🤣
Life Of Fajr I did
I sure did😂💀
uauauauahhaaha thanks
That sounds terrifying. Victoria is absolutely amazing for surviving this and coming out sane. Her family too. Incredible.
I absolutely love this girl, quirkiness, smile, great personality. She's awsome
What a great story! She is one brave woman! Very strong too!
Wow! I was locked in for 16 days, it’s absolutely horrific, I can’t believe she is not insane! Thank God she was able to come out of it! Great strength and attitude! You go beautiful girl! I think you have a wonderful happy future!
Thank God for your recovery! How did you recover, if I may ask? Do you know what caused it? Did the doctors know? It just seems petrifying.
And she praises God with gratitude, that's why she's here because of the angel she is.
Wrong, she's here because her parents had sexual intercourse. Gods are products of the human imagination...
iamlight1 exactly! The lord is amazing! 👑💞
jim smith why are you such a hate? Leave.
jim smith Finally someone make sense with what they're saying
John Rodney show evidence that God/s doesn't exist
There is none
Those who believe show evidence that God/s exist
There is none
If God/s exist how do we know that we believe in the right one or just an imagine one or the devil?
in life it shouldn't matter if god/s exist or not
What should matter is what you do with your own life
She is hilarious. I love her.
Heather Erickson it's unbelievable story
I can't imagine it will happen in real life
Also her mother is a good example of all mothers
When she said "Mommy, I'm gonna get back to you, I promise." That really broke my heart. 🥺💔 Thank God she is still alive and here with us today. God bless her! What a super hero!!! 🦸🏻♀️
"You're not God, you can't tell me what I can or can't do..." God works in mysterious ways.
It would've been nice to know what these two autoimmune diseases were, but wow, what an amazing, miraculous story!! God bless her! Wowza! I don't know why some people gotta be so miserable inside, that they feel the need to randomly dislike videos. Really pathetic.
Dana East "Arlen, at the age of eleven, developed two rare conditions known as transverse myelitisand acute disseminated encephalomyelitis."
Guilen barre syndrome
If anytime you read or watch anything and want additional information don't forget you can Google it! Victoria Arlen has transverse myelitis and acute disseminated encephalomyelitis.
I agree !
Amazing she got through it without any residual symptoms: muscle, bones, vital organs are all developing at a high growth rate during the preteen years, yet after four years there's no residual muscle contractures, unusual bone or muscle development, etc... absolutely amazing. She's a miracle. God bless her and the Jockey Corporation for this amazing and miraculous story.
I was in Coma 17 days with 40 broken bones!!! I was never suppose to walk again mainly because my right leg was broken in 5 places!!! Thank You GOD and JESUS for saving my life and allowing me to show all those professional doctors how much they really didn't know because my life is better than perfect now!!! And to my son Collin you have to know how much your father LOVE'S you son!!!
Nobody knows everything. Doctors speak off of training and experience, but there will always be exceptions to the rule. I hope people don't look at examples like this as a reason to distrust their medical providers.
@@JustaRandom09837 they don’t trust medicine because religion literally banks on it and makes sure of it.
"You're not God, you can't tell me what I can and can't do!" (Yes!!!!! Best words ever!!!!!!) YOU GO GIRL. Positive Attitude goals for me! Wow!
Luvin all the likes! GODS THE ONLY WAY!!!🙏
YESSSSSS
😇🙏Amen🙏
It‘s not like „god“ could tell her what to do
@@caleidozkopie8344 "GOD"
yes, He Does guide us all.
Amen
This is definitely a miracle. Victoria bless you with Good Health always. God bless your family for being there for you.
She is the definition of a fighter her spirit is just so strong and motivating and once she got back moving she hasn't stopped made my day watching this
Understand but also wasn't her time this is her destiny not to say that other mom give up on their children
Amazing story!!! Determination of a soul who overcame the worst thing imaginable to fulfill her purpose on Earth! Beautiful!
No mention of the actual diagnosis and barely any word on her swimming medals. You guys miss so much in your interviews.
Melody Harding agreed.
Melody Harding you need to listen again, they mentioned the two conditions
Jenny Musa autoimmune conditions are not names
Is that seriously the only thing you notice. How about you take the time to notice the incredible story they did touch on?!
"Arlen, at the age of eleven, developed two rare conditions known as transverse myelitisand acute disseminated encephalomyelitis."
Lea Michele could play her in a movie
LuvLykeHunii omg for sure !!!! 💯 %
She's much prettier than Jenny Slate. I think Lea Michele would be perfect.
They should make a movie
She dont look anything like any of those women lol not even close
I hate Lea Michele. This woman is far too genuine and kind to be played by her.
OMG this story brought me to tears! May many blessings continue to come to this lady and her family.
One of the most beautiful stories I've ever heard.
I absolutely adore her sweet spirit !! You're amazing Victoria.
I would lose my mind. Omg. I lose my mind on a daily basis I can’t imagine doing it and not being able to move or the ability to act on my feelings
She just renewed my faith in miracles.
the miracle of being trapped for 4 years?
jim smith a shame you’re so lost that you don’t even know it, but obvious from the vile you spit out.
Matthew Price Prove it.
Matthew Price Didn't reply to my reply because u know you're illogical and can't defend your delusional beliefs even though your book commands you too. I bet you haven't even read it.
jim smith Satan tempted Jesus with the same remarks.... no thanks. I know where I’m headed. 🙌
By the grace of God. Amen!! 😍😭 this was such an amazing story.
I don't blame the doctor, If I ever had a condition like this I would definitely want my family to pull the plug because that must be a miserable existence. The mom is an amazing woman though.
What a strong and glowing woman!
My brain can't grasp how the person speaking can seem so vibrant, compared to what my mind would imagine a 4 year coma patient, 20hour a day siezier patient would look like.
Must be God.
I’ve been diagnosed with HYPOKALEMIC PERIODIC PARALYSIS which closely resembles Locked In Syndrome. Thankfully, it doesn’t last as long as Locked In, but it is still a horrible disease to have. Not being able to speak or move all while being conscious is torment.
God bless her for her spirit and strength. She has blessed me today‼️ THIS is what I needed to see. ❤️
It’s kind of important for them to tell us the rare forms of autoimmune disorders to help other people to know about it too. I wish they would’ve talked about that more too
wearesupernovas • per wiki she had transverse myelitis and acute disseminated encephalomyelitis.
Jeez how many people are going to say this when they did specifically mention both conditions! Go back and LISTEN this time.
everyone keeps saying they said what it was but all I heard was myoclonic seizures.
This is one of my biggest fears. The idea of being trapped like that seems like the most unimaginable thing and god bless anybody currently in a situation like that.
And to go through this at such a young age! It would be terrifying as an adult but as a tween/teen! Unbelievable! Her strength and determination is next level!
Could they tell us what was the diagnosis? Rather than a rare condition.
"Arlen, at the age of eleven, developed two rare conditions known as transverse myelitisand acute disseminated encephalomyelitis."
Age 11 vaccines
I was in a coma for 3 weeks and had to work very hard at walking and writing, even speaking properly! What an inspiring story! You go girl!
Ashley Fisher-Jones I hope you have a full recovery and great life. Did you ever die at any point?
She is blessed to have overcome something like this! She’s is a strong and intelligent woman. Judging by how loving, loyal and determined her mother is, i can tell the apple didn’t fall to far from the tree… Her mother is a amazing phenomenalI and woman!
This is so inspiring for families to still have hope and never give up on their childs...
She is so brave
Can't imagine what it must have been like to be trapped in your own body for 4 years, not being able to do anything. How can your mind survive on a daily basis? Are you bored, does your brain shut down in any way, do you fall in a semi-sleep state just to get by?
Thomas Favre maybe it's so dull it's the opposite. in your head you're making up stories, imagining things, play acting, even just mentally reciting math facts, something.
Seriously though I would think you would lose your mind! I would think you would sleep a lot, but how much sleep can you get?!
that's what I was wondering. I had never heard anything like this before, and such a situation has been a nightmare of mine (because unfortunately, my brain likes to create improbable situations to worry me).
this is the part of it I absolutely cannot wrap my head around. Like it sounds like she was very conscious while she was awake... so i couldn't even imagine going through every single day just being there but not able to do anything, speak to anyone, nothing. For 4 whole years. I couldn't even handle that for a couple days!
Potentially i could be fairly entertaining to my own self for a while.
I would attempt to write a book in my head. I would also write a letter to my younger self. I would design my dream house. I could even attempt to grapple at some things about the meaning of life, such as.. What is the point of this life if it is only a transition toward eternity?
Biggest takeaway: doctors need to give more attention to autoimmune diseases. There simply isn’t enough.
I have sleep paralysis I could not imagine mine only last mere minutes but I do not think i could mentally hang on that's my worst fear of being stuck in my paralysis
Hi. I think that I've had sleep paralysis a few times. But I noticed that it happened in the cases when I worked long hours and my body didn't have enough time to get recovered, and my nervous system was exhausted. Then I couldn't move my body in the sleep although my mind was awoke. After having good rest, I was okay. Maybe you should make some changes in your daily routine and in your diet as well? It might help you to reduce the cases of sleep paralysis.
You would have no choice. You'd have to find a way to "hang on" whether you wanted to or not. Not like you had the motor control to go off yourself.
Call on the Lord Jesus's name for them to leave you next time the sleep paralysis happens
God's Girl amen I was just about to say this! My mother used to have severe sleep paralysis until she became a believer in Christ. Everytime it started she would think(because when that happened she couldnt talk) ‘Jesus’, ‘Jesus’. And it would leave as soon as she thought the name of Jesus
Truly amazing
Beautiful story, as a mother of a daughter I can relate to this mother, and just watching the videoclips of this little girl, I could see myself that she was "there".
I could see it in her eyes. So happy about this story, and it takes a mother to know, doesn't it?
7:28 that lady blinking in the audience lol 👀
Lmaooooo
Lmao
I laughed so hard at that
That is amazing! This story had me in tears. Her family is such a blessing for not just giving up on her.
So few know what this is like, I struggled with this. We knew something was wrong from childhood but it wasn't until adulthood I was in the locked in state for a year, it took a long time to recover. I'm so glad others people understand too. Thank you for sharing this story.
Great story. She's absolutely beautiful ♡
Watch the movie “ Brain on Fire” it’s a movie of this exact diagnoses
It’s on Netflix
Natasha Chillaxing Melts, Candles & Body Products that movie kinda sucked though and much different
Haven’t seen the movie but the book is great, just fyi.
The book is better- the Netflix is a Disney version of her story
Suzy Evans I knew there had to be a reason it felt seemed like they filmed the entire movie in a couple hours , the pacing made no sense to me but knowing it was a book , now I understand
D C yes, she recovers some in the end but as anyone knows who has had such an illness, the medication continues and life is never the same- but a really brave woman
Oh wow! An incredible story, and I love her upbeat attitude.
Amazing story!! And her personality is killer, she was definitely made to be on TV.
She is soo beautiful !
Her positivity and light after all this is just astounding and so inspiring
What a beautiful spirited woman and loving mother that stood by her. I'm so glad she fully recovered it would have been such a shame for the world to miss out on her. It also shows that sometimes the dr's are dead wrong and to never give up.