An untreated B12 deficiency: Jimmy's Story

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  • เผยแพร่เมื่อ 15 พ.ย. 2024

ความคิดเห็น • 191

  • @munkami
    @munkami 9 หลายเดือนก่อน +39

    Well done Jimmy for fighting for your cause and for many others

  • @coloradogirl9913
    @coloradogirl9913 6 หลายเดือนก่อน +11

    I'm so sorry for you! I am there with you. I feel like my life is being wasted. I'm glad you kept fighting for yourself. I hope you will continue to improve and get back your health.
    My God bless you!

  • @cbvsjs
    @cbvsjs 2 หลายเดือนก่อน +3

    apparently my vitamin B12 levels have been going down for the past 3 years they started me on tablets 50g then 1000g that weren't doing anything so 8 days ago they injected me with 3 months supply but I've still got symptoms & yesterday my leg started shaking & i collapsed

  • @anitastar5233
    @anitastar5233 9 หลายเดือนก่อน +10

    Thank you!

  • @allie9015
    @allie9015 2 หลายเดือนก่อน +2

    Absolutely unbelievable and unacceptable! I’m so sorry that you went through this horror

  • @thomassvensson1523
    @thomassvensson1523 9 หลายเดือนก่อน +13

    I suspect that I have pernicious anemia and I have been sick for over 15 years. Doctors here in Sweden does'nt know anything about this. Really frustrating..

    • @michellecheatley1214
      @michellecheatley1214 9 หลายเดือนก่อน

      There are support groups on Facebook from Sweden, some of the even sugest a ''good Dr's Guide''...

    • @marciemarwood4362
      @marciemarwood4362 9 หลายเดือนก่อน +5

      Listen to your gut. If you suspect PA, keep reading and researching. Ordering your own labs and supplies for treatment is possible.
      I am of Swedish decent. PA runs in my family. I went many years without treatment. I am one year into treating myself, every other day and am just starting to recover some cognitive function (late 50's). My Mom was treated with "tablets" and she died a very painful death. We did not know at the time. B12 deficiency is a slow killer.
      Please push forward with testing if you suspect deficiency.

    • @paulocurado7967
      @paulocurado7967 7 หลายเดือนก่อน +1

      same as me. had it all my life. im in the UK

    • @marciemarwood4362
      @marciemarwood4362 7 หลายเดือนก่อน +1

      Thomas, are you better? Did you find help?

    • @Lifeszu
      @Lifeszu 6 หลายเดือนก่อน

      just start taking methylcobalamin injection and see how do you feel after 2 weeks

  • @daniellejenkins111
    @daniellejenkins111 8 หลายเดือนก่อน +3

    I was lucky for a while I had a locum GP who followed nice guidelines (to an extent).
    I have X2 lots of 6 EOD injections and then she agreed to EOD injections for 6 weeks and I felt normal again. The locum left and my GP didn’t get back to me when I made contact. I now order my own injections and self inject at home.

  • @Rundogz
    @Rundogz 2 หลายเดือนก่อน +9

    Yep, totally relate. I used to be vegan, so I ended up with a B12 and vitamin D deficiency. I got the standard NHS test for B12 and it came back on the edge of "normal" at 210, so they insisted that this was fine. My symptoms were brain fog, palpitations, fibromyalgia, low digestive motility, with occasional inabilty of digest food at all. Chronic fatigue, urinary issues, vision issues, memory issues, blood pressure that would range from 70/40 to 220/160, and electric shock sensations that ran from the top of my head to my feet, every 5 seconds, all day long. I had it for four years, and almost every day I thought I was done for. I had lots of GP blood tests, but gave up on them when some idiot shoved a mental health questionaire in front of me and told me to fill it in. Despite being hugely in debt by then, I eventually paid for a US vitamin D test and read up about B12 deficiency symptoms, and it started to make sense. I had unfortunately read lots of vegan propaganda about how we don't really need much B12 and how fortified foods protect you, which of course, is a lie. It's hard to explain why the medical industry are so dire at diagnosing what is such a devastating and often lethal nutrient deficiency, but they are.

    • @thomasmeier0815
      @thomasmeier0815 21 วันที่ผ่านมา +1

      Yes, almost same story!

    • @marleanamarlianamont5939
      @marleanamarlianamont5939 21 วันที่ผ่านมา +1

      What did you guys do to get help? How did you get better? Thanks

    • @user-xv5gq7ne3e
      @user-xv5gq7ne3e 20 วันที่ผ่านมา

      @@marleanamarlianamont5939methylated B12 check out British Supplements

    • @sedoniadragotta8323
      @sedoniadragotta8323 16 วันที่ผ่านมา

      I'm vegan since birth I get all these symptoms also bad back dizziness head aches pins and needles tiredness digestive issues feel like I'm dying doctors say it's my thyroid

    • @thomasmeier0815
      @thomasmeier0815 14 วันที่ผ่านมา

      @@sedoniadragotta8323 It is very possible that you have thyroid problems because vitamin A is needed for T3 to work. As a vegan you only have beta carotene and this needs thyroid hormones to synthesize vitamin A from it. I lived vegan for 15 years and my hormone replacement didn't work anymore, it was a horror. All mucous membranes need vitamin A. So does your entire digestive tract. Yes, you have a vitamin B12 deficiency. Stop killing yourself!!!

  • @tinafirfield4673
    @tinafirfield4673 8 หลายเดือนก่อน +8

    Excellent video. My GP refused to follow the NICE guidelines so they give me a jab every 3 months 🤣 so I have to but the supplies & self inject EOD. I now have a life 👍

    • @MononokeDevil
      @MononokeDevil 8 หลายเดือนก่อน +1

      I self treat too!

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน

      ❤me too

  • @StarWarsFans98
    @StarWarsFans98 7 หลายเดือนก่อน +4

    I'm in a similar boat. I have to wait until June before a follow-up with the neurologists assistant. I'm hoping I can get her to understand that my body isn't absorbing the B12 and I need the injections. I have narcolepsy coupled with the deficiency, so I spend most of my time in bed. It's awful.

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน

      you can buy yr own b12 and self inject, order from apotal pharmacy in germany
      No not dodgy, only stupid uk you cant buy over the counter

    • @amainezuko1488
      @amainezuko1488 5 หลายเดือนก่อน +1

      There are many places where you can get a b12 shot without a prescription. Here in Houston there's a place called anylabtests they do it. Just make sure it's methylcobalmin not cyanocobalamin

    • @akkuverma2328
      @akkuverma2328 17 ชั่วโมงที่ผ่านมา

      Hi,do u also face tingling in hands and feets

  • @Cimba71
    @Cimba71 6 หลายเดือนก่อน +4

    Thank you to jimmy, I have suffered for years with similar situation.. Finally a move to another GP’s surgery almost instantly 2 just below the levels blood tests and I start treatment in May this year 2024.. But thank you for letting me know I’m not mad and not dying either!!

  • @SarahSmith-hd8kd
    @SarahSmith-hd8kd 8 หลายเดือนก่อน +10

    I have the extreme fatigue and brain fog.
    I am wondering though is muscle mass and loss of strength one of the symptoms?
    My arms and body just feels extremely tired and heavy after even a small physical exertion and muscle contractions or use of strength.
    I also wake up feeling NO energy as well.
    I can't say I had all the same symptoms but depression, anxiety the pins and needles thing.
    The worst however, was an initially large weight loss ( mainly muscle ) with loss of strength obviously and very heavy exausted arms and upper body with little to no physical exertion at all sometimes.
    This has been going on for 3 plus months with doctors saying all your bloodwork is normal... but none have tested or even mention vitamin D or B12 or even magnesium at all much less testing them.
    I am starting to go a bit nutty here... as my job and my family are at stake.
    If you have any insight I appreciate anything at all.
    Thsnk you!

    • @Jean-ti2mj
      @Jean-ti2mj 8 หลายเดือนก่อน

      U may have low vit d3 u need to take vit d3 with mk7 K2 with animal fat and magnesium glycinate

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน

      buy yr own b12 and si

    • @revelamarinelli883
      @revelamarinelli883 3 หลายเดือนก่อน

      get some injectible B12 and self inject as soon as you can. God Bless.

    • @JashanDhillon-l2y
      @JashanDhillon-l2y หลายเดือนก่อน

      I was doing great until 2 months ago . I have the same symptoms u having, lost all my muscles , weight ..

    • @user-xv5gq7ne3e
      @user-xv5gq7ne3e 20 วันที่ผ่านมา

      Look into Pure encapsulations B-complex. You could get your Folate checked as well as B12.

  • @KMx108
    @KMx108 8 หลายเดือนก่อน +4

    I wish I could find an attorney like this in the USA.

    • @videos4doctors
      @videos4doctors 6 หลายเดือนก่อน +1

      Dont you think its odd that you cant find an attorney for this in the US? I do. I have the same problem.

    • @KMx108
      @KMx108 6 หลายเดือนก่อน

      @@videos4doctors I have tried. They only want to deal with easy/obvious cases...like "the surgeon cut off the wrong leg" sort of cases.

  • @jennet388
    @jennet388 5 หลายเดือนก่อน +9

    If you dare to question a gp, healthcare worker in NHS, or have the audacity to research, then confront or query....Trust me, you'll suffer the consequences and not get what you need. This is what I did and I basically now just speak with my local pain clinic and the consultant Pharmacist attached to my crap gp practice.
    I'm so sorry you've had to go through this. The wickedness is palpable, especially to dobit to a young person. 😤😡🤬🤬

    • @TraceyGrainger
      @TraceyGrainger 4 หลายเดือนก่อน +1

      I'm having this with a certain Nurse with a PhD at our Surgery...because I dared to question him during covid I'm getting dismissed and its disgusting

    • @Paragon62
      @Paragon62 2 หลายเดือนก่อน +1

      Change your doctor?

    • @EllaBella-76
      @EllaBella-76 หลายเดือนก่อน

      @@Paragon62•YEP 100%

  • @cathyholcombe4674
    @cathyholcombe4674 4 หลายเดือนก่อน +12

    I live in the USA. My neuro diagnosed my B12 deficiency. Before I was able to begin the injections, she ordered a test to find out if there were autoimmune antibodies present....and they were. This meant that my Intrinsic Factor had been destroyed leading to a final diagnosis of Pernicious Anemia. Intrinsic Factor is an enzyme found in the Duodenum that absorbs the B12 from the foods you eat and transports it throughout the body. The only way to get the B12 your body needs to function properly is with a B12 injection. It doesn't matter how much B12 rich foods or supplements you take in, without I.F. your body will become B12 deficient. Two symptoms I didn't hear mentioned was problems with balance and memory. These symptoms mimic Multiple Sclerosis and Dementia. I wonder how many people have been misdiagnosed with these two diseases when in all actuality it was a B12 deficiency. I am so sorry that those of you who live in the UK have such a difficult time getting treatment for B12 deficiency. Even here in the USA, our primary care doctors (you call them GPs) do not order a B12 blood test with routine bloodwork...we have to ask to have it included but the problem is most patients do not know to ask for it.

    • @jnkrm1
      @jnkrm1 4 หลายเดือนก่อน +1

      Could you please elaborate about your symptoms? Is IF level something that can recover to a normal level naturally?

    • @jnkrm1
      @jnkrm1 4 หลายเดือนก่อน

      @cathyholcombe4674

    • @sylviadominguez8327
      @sylviadominguez8327 3 หลายเดือนก่อน

      So when you got the injection did you feel better right away

    • @Austyyy_
      @Austyyy_ 3 หลายเดือนก่อน +1

      I had a blood test the first time I went to a new primary care provider. They tested for b12 because then the next appointment I had to get an injection of it and then they ordered prescribed supplements. Doing research I didn’t realize how serious a deficiency was in some cases. I was having pins and needles in my hands and feet. Having it right now as I type this. I overlooked all that stuff until I was put on another medication. That medication seemed to have exacerbated my issues because everything just felt different. It’s crazy they just gave me the sample of it they have in the office the first appointment. Without consideration of the blood work.

    • @milenamilena7858
      @milenamilena7858 3 หลายเดือนก่อน +1

      Wow. Me identifico contigo. Me enterè de todo lo que me pasaba con una endoscopia que
      Me hice de casualidad

  • @helenevice6920
    @helenevice6920 6 หลายเดือนก่อน +5

    My GP dismisses my symptoms and tells me I will recover. My right hand turned very dark and after 4 months it still remains the same, my GP tells me it's sun burn even after telling him that I don't sit in the sun. His explanation was that one can get sun burn whilst inside the house. I rest my case. I have dizzy spells, tingling in my hands and legs, pimples in my mouth, tiredness etcetra. I have given up with doctors and at my wits end.

    • @marrop2760
      @marrop2760 4 หลายเดือนก่อน +3

      go see a Naturopath or Alternative Dr.

  • @Butterfly83016
    @Butterfly83016 หลายเดือนก่อน +1

    I thought I was dying. My hemoglobin was 5.2 and i felt like I was shutting down, sleeping sleeping sleeping brain fog, balance issues, vision issue. Ive had 2 transfusions in 1 month. Found out Im B12 deficient measuring at 93. I'm getting my intrinsic factor checked and having an colonoscopy and endoscopy done as well. I'll be getting B 12 injections every week to see if that helps and of not checking for bone marrow failure.

  • @144851102
    @144851102 4 หลายเดือนก่อน +2

    Hope you get better jimmy,,I am going through the same....

  • @elenamanoli5728
    @elenamanoli5728 9 หลายเดือนก่อน +12

    in my country i buy the b12 injection without the recept and it is so cheap. i buy them wen i feel like.

    • @talhaouiadnan5384
      @talhaouiadnan5384 9 หลายเดือนก่อน +1

      FROM WICH COUNTRY YOU ARE

    • @elenamanoli5728
      @elenamanoli5728 9 หลายเดือนก่อน

      @@talhaouiadnan5384 Republica Moldova, but now i live in Germany and hier i buy also without recipe. i buy it for my mom, she has Parinsons and this injections brings her to live. i‘m doctor myself, thats why i dot wait for lab nor treatment.

    • @Jean-ti2mj
      @Jean-ti2mj 9 หลายเดือนก่อน

      ​@@talhaouiadnan5384 I think u can buy like this in Germany

    • @binathere2574
      @binathere2574 9 หลายเดือนก่อน +1

      Same in Australia.

    • @zfvr
      @zfvr 9 หลายเดือนก่อน

      Vitamin b12 home injection kits are on sale on Etsy

  • @alisonbamford6723
    @alisonbamford6723 4 หลายเดือนก่อน +9

    And the problem is that most doctors rely solely on potentially misleading serum blood tests & know diddly squat about the clinical symptoms.
    Why are serum tests potentially misleading? Because they do not show cellular status, nor do they determine how much of the B12 is active or inactive. If most is inactive & has failed at some point in the conversion process, it cannot get into the cells & the test result may be meaningless.
    There is no ‘gold standard’ test for B12 deficiency. Homocysteine & MMA tests ‘may’ help, but are not always accurate either. If someone has a low B12 level, then absorption may be the issue, however if the problem lies within the several step conversion process, you test result may be ‘normal’ or even high - and a high level may even be a ‘red flag’ that it’s not being utilised very well at cellular level.
    Sadly, because of this, way too many people are falling through the gaping cracks in the system. My own husband’s B12 deficiency was dismissed at a level of 360, but because I am very familiar with the many symptoms, most of which he had, generous amounts of ‘Active’ (Methylcobalamin & Adenosylcobalamin) sublingual liquid B12 got him back on his feet within days.
    Bear in mind that other B vitamin deficiencies may be a factor too, especially B1/Thiamine - and one of its many roles is in energy (ATP) production. It too can masquerade as many other diseases & ailments. Modern Beriberi is very much alive & kicking………

    • @theOlLineRebel
      @theOlLineRebel 3 หลายเดือนก่อน

      I have so much of this. But I’ve been trying B12 sublingual for years not sure that’s it (doctors didn’t really care either). Whatever it is still undiagnosed. That is my big problem….whatever I have, the tests come back and they blow me off. And might be depressed or attention-seeking, needing psychiatry. This is the biggest problem….they do basic tests, and shrug when they don’t see anything, instead of sticking with me and trying to find out what is wrong. I’ve had troubles for 25 years, increasingly. Weird stuff as well as “vague” symptoms like fatigue. I just want someone to keep helping me find out eventually. This is in the US BTW, so not generally socialized med. but the truth is all doctors are human, and most just go thru the basics and don’t make serious effort unless it’s common.

    • @sarahpersonalexcellenceguide
      @sarahpersonalexcellenceguide 3 หลายเดือนก่อน +1

      Hear hear!! Agreed with everything!
      In addition, Lithium (part of that B12 process) is being filtered out of our water!
      It's part of why people are anxious, moody, depressed, and generally unwell.

    • @alisonbamford6723
      @alisonbamford6723 3 หลายเดือนก่อน

      @@theOlLineRebel is it liquid sublngual B12 with both active forms, Methylcobalamin & Adenosylcobalamin? The type can make a big difference.
      B1 (Thiamine) deficiency can also be a factor, and there is also rampant Vitamin D deficiency these days, too. May people cannot absorb it at cellular level very well even if they seem to get plenty of sun or it in their food.
      So many health issues can be addressed with optimal D. You might find Dr. Judson Somerville’s book ‘The Optimal Dose’ of interest too.
      Dr. Brooke Goldner has also been helping thousands successfully regain their health on her ‘hypernourishing’ protocol (lots of free videos & webinars on here).

    • @theOlLineRebel
      @theOlLineRebel 3 หลายเดือนก่อน

      @@sarahpersonalexcellenceguide Lithium is not generally good for you. See soda drinks history, this past century alone.

    • @theOlLineRebel
      @theOlLineRebel 3 หลายเดือนก่อน

      @@alisonbamford6723 Been on 2000IU daily D3 for more than a decade. Using sublingual solid methyl, trying with adeno soon. No one really cared about the B12 levels, but I pushed on it and oncologist (hemotologist) agreed to just 1000mg/day, but I've been doing 2000, and she stated just sublingual, no shots needed. I have PPI risk factor and possibly the ileum risk factor, so much use "direct to system", not just chewing. I think most of this is wishful thinking/snake-oil salesmen. I'm afraid to give up on it but same time don't feel I've gotten anything from it.

  • @DianneEnnis-cz3lo
    @DianneEnnis-cz3lo 5 วันที่ผ่านมา

    What a horrific journey you have been on. It is no wonder that people don't have any trust in Drs. Hope you are improving each and every day!

  • @suhasn5763
    @suhasn5763 3 วันที่ผ่านมา

    its been nearly a month i've been on b12 injections 5(alternate days) 5(for 5 weeks ) 5(for 5 months)this is what my doc put me on ,i was deficient for a long time but wasn't diagnosed but ,thank god finally figured it out and after blood work i had lvl's of 184. so i was just wondering how long is it gonna take for me to recover if anyone have been through this (i have fatigue, headache, palpitations, burning sensations ,irritability, and mainly cant concentrate).

  • @laalaakay
    @laalaakay 8 หลายเดือนก่อน +3

    Can I ask what your levels were? My levels 232 with symptoms: pins and needles, aches all over, painful feet, extremely tired. According to NICE I should have further testing but GP says I’m not deficient!

    • @DS-vd3bv
      @DS-vd3bv 8 หลายเดือนก่อน +1

      Same in my case. My B12 levels are in normal range but I have all these symptoms that you mentioned along with numbness, pain and tingling in my toes of feet.

    • @Moon52171
      @Moon52171 7 หลายเดือนก่อน

      I have these symptoms and not, I have fibromyalgia and M.E. my b12 levels are really high and I don't suppliment. No one knows why.. im so confused

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน

      😢cos yr idiot gp and all uk drs only do 4hrs training in vitamins, minerals and nutrition, and that isnt even mandatory
      So theyre totally clueless
      Both yr b12 levels are extremely low
      buy yr own b12 and si

    • @TG-dz2cx
      @TG-dz2cx 6 หลายเดือนก่อน +1

      @@Moon52171 Look into paradoxical b12 deficiency. Apparently high b12 levels can de due to a fuctional b2 deficiency which leads to a b12 deficiency. It presents as high in the blood though.

    • @akkuverma2328
      @akkuverma2328 2 ชั่วโมงที่ผ่านมา

      Hi,how are u managing now? Is ur tingling and body pain still there?

  • @jc2557
    @jc2557 6 หลายเดือนก่อน +10

    Dr's are so ignorant to the body's need for vitamins and give dangerous or non helpful advice, I have cured many conditions that my "real" Dr had no idea how to heal me. They wonder why we are going to youtube for our health advice, we have to get help somewhere. Sue them if you can, they need to know this is unacceptable.

  • @jayendrapatel1217
    @jayendrapatel1217 9 หลายเดือนก่อน +6

    Hello doc , Saw your informative video on B12 deficiency and I found have been suffering from most of the problems of b12 deficiency .
    Can you please help me if these symptoms of mine are due to B12 deficiency .
    1) low appetite , feeling cold in feet and hands after eating and vomiting after eating hai
    2) fatigue and spinal cord pain
    3) constipation and bloating
    4) weakness and low bmi of (16.5)
    5) forgetfulness , I doesn't remember my studies and feels demotivated due to poor academic performance despite hardwork.
    6) anxiety and sleeplessness at times
    7) hair loss
    Sir , I am currently pursuing my graduation and is unable to focus on my studies due to frequent illness and fatigue . Please provide guidance it will be really helpful for me
    Pls do reply doctor 🙏 waiting for response

    • @binathere2574
      @binathere2574 9 หลายเดือนก่อน

      I am in B12 recovery and yes these symptoms.

    • @jayendrapatel1217
      @jayendrapatel1217 9 หลายเดือนก่อน

      @@binathere2574 which supplements are you using?

    • @faceniff4278
      @faceniff4278 9 หลายเดือนก่อน

      ​@@jayendrapatel1217although you mentioned 90% of b12 deficiency symptoms i would like to tell u to get vitamin b12 drops under the tongue specially vit b12 (methylcobalamin)

    • @rebeccagarner2576
      @rebeccagarner2576 7 หลายเดือนก่อน

      I reversed those symptoms in myself in a month with b12 bioactive under tongue drops !!

    • @sheilajones4491
      @sheilajones4491 4 หลายเดือนก่อน +1

      @@rebeccagarner2576oral supplements wont work if you cant absorb

  • @jonc67uk
    @jonc67uk หลายเดือนก่อน +1

    They do the inadequate dosage thing to quite a few people apparently. Methylation can cause issues & sublingual methycobalamin can help with that despite their protestations to the contrary. Also methylated b vitamins generally can be involved.

    • @user-xv5gq7ne3e
      @user-xv5gq7ne3e 20 วันที่ผ่านมา

      Been taking methylated Bs for a month and additional L-Methylfolate and wow. I can’t believe the difference in feeling capable, have my oomph back and get through a day without a nap.

  • @facelessvaper
    @facelessvaper 2 หลายเดือนก่อน

    Shit✌They put mine down to alcoholism and my T1D, two years symptoms. started with Hyponatremia after Covid Vax, lately, misdiagnosed UTI with possible hernia. Only today they said B12 after I rang about Planta fisica, combined with a recent Autoimmune/CBC.

  • @shaneandnieceychandler7968
    @shaneandnieceychandler7968 5 หลายเดือนก่อน +2

    Wow, i just got told i have no b12 in my body and that my liver and spleen are enlarged, for 4 weeks on Tuesday i get a b12 shot then sublingual tablets . Hopefully i get some change cause i feel this story and looking into things to help myself .

  • @maxharvey6253
    @maxharvey6253 7 หลายเดือนก่อน +20

    Its not possible to overdose on B12. Physically - not possible. So many General Practitioners really know a lot less than the general population whom are self educated - about issues such as vitamin B12 deficiency.

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน +4

      yes totally clueless

    • @vondinkinsvon8919
      @vondinkinsvon8919 3 หลายเดือนก่อน +1

      I read to much cause es cancer

    • @mem1701movies
      @mem1701movies 2 หลายเดือนก่อน

      Yes you can. Super high doses can damage kidneys

    • @wildthings01
      @wildthings01 2 หลายเดือนก่อน

      @@mem1701movies Possibly if taken orally- but I would doubt that intramuscular injections could harm the kidneys

  • @flanners26
    @flanners26 6 หลายเดือนก่อน

    Jimmy, what dose was you on in the end? Weekly, daily? And which form of b12 shots? Hydroxo, methyl, cyno????

  • @Indiekiwi
    @Indiekiwi 2 หลายเดือนก่อน +1

    I was low in B12 but I thought it was part of menopause. I was given a B12 injection as soon as my doctor got the results but I live in NZ. It can be very serious if left, resulting in permanent issues.

  • @caelidhg6261
    @caelidhg6261 หลายเดือนก่อน

    This is my story... Too.....
    I had a primary say they didnt give b12 because i got it all in my diet....
    At one point i could barely walk too. I didnt know if i was going to make it to my car and i almost got into 2 car accidents on the way home from work which was like 15 minutes away

  • @planetguantanamo
    @planetguantanamo 4 หลายเดือนก่อน +3

    Ya gotta love pernicious anemia which is B12 death and daily methylB12 injections take SO LONG to work 🤬This is no fun neuropathy,dizziness,breathing problems,etc.etc. So daily self- injections for a year is all I can do

    • @Butterfly83016
      @Butterfly83016 หลายเดือนก่อน

      You had to stop working

  • @johnedwards4176
    @johnedwards4176 16 วันที่ผ่านมา +1

    GPs are failing to do their job .

  • @toni4729
    @toni4729 3 หลายเดือนก่อน

    God almighty Jemmy, you shouldn't have to fight for your life. My doctor phoned me and I got six shots. I didn't even know I was deficient. She tested my blood without my knowledge.

  • @Bonzo563
    @Bonzo563 7 วันที่ผ่านมา

    I'm at the end of my Tether and I get into bed hoping for my life to end .
    The NHS has helped me none!

  • @caelidhg6261
    @caelidhg6261 หลายเดือนก่อน

    I had found a great b co. Plex that had intrinsic factor i felt great. Then a few years ago they took it off the market and i have been sinking back into fatigue 😭

  • @mjonline09
    @mjonline09 6 วันที่ผ่านมา

    went through same got treated in three with months.

  • @AbdulaahiAliahmed67
    @AbdulaahiAliahmed67 6 หลายเดือนก่อน

    I became sick in 2004 they told me I have pibolar desorder typ 1 they give me olanzapine 5mg and depaken 500mg finally I became dead inside I stoped and I take vitimin b12 every day one tablet 1mg and I feel much better now

  • @jamiececilielange5249
    @jamiececilielange5249 หลายเดือนก่อน

    I understand that they don't want to overdose him, but there is a huge difference between 3-4 times a week and once every 8 weeks. I see a lot of space for a compromise, they could've given him an injection once every week or every other week at least.

    • @jimmy93538
      @jimmy93538 หลายเดือนก่อน +1

      There is no space for compromise. The guidelines say every other day, that’s not negotiable. Overdose is also not possible, if it was, the guidelines wouldn’t recommend that frequency

  • @Sunshine-vz2on
    @Sunshine-vz2on 4 หลายเดือนก่อน

    What was your blood level please? Mine was 300 thank you

  • @anitastar5233
    @anitastar5233 9 หลายเดือนก่อน +1

    Please point me towards this B12 deficiency support group that Jimmy mentions

    • @Jean-ti2mj
      @Jean-ti2mj 9 หลายเดือนก่อน

      Pernicious anemia society uk also read about Dr choundry the gp who is a hero to he's patients giving 700 of he's patients B12 injection shots only for nhs nearly sacking him he had to get he's patients to speak up for him on how he got them well he is a hero Dr choundry

    • @Jean-ti2mj
      @Jean-ti2mj 9 หลายเดือนก่อน +1

      Pernicious anemia society uk

    • @anitastar5233
      @anitastar5233 9 หลายเดือนก่อน

      @@Jean-ti2mj Thank you. i am assuming this support group is for those with PA rather than simply deficiency?

    • @Jean-ti2mj
      @Jean-ti2mj 9 หลายเดือนก่อน +1

      @@anitastar5233 it's for p.a get a intrinsic factor antibody blood test to see if u need B12 injections

    • @Jean-ti2mj
      @Jean-ti2mj 9 หลายเดือนก่อน

      @@anitastar5233 there's videos on pernicious anemia society uk to watch.

  • @caelidhg6261
    @caelidhg6261 หลายเดือนก่อน

    Anither symptoms is a thick tongue. I alway have been biting my tongue on the sides. That just came up in the last few years

  • @L.J.Designs
    @L.J.Designs 9 หลายเดือนก่อน +4

    I don't feel like saying more than When you feel the GP , and specialists referred by your GP, are not taking you seriously. Get the files, and read what the doctors write about you.

  • @MsSilver41
    @MsSilver41 14 วันที่ผ่านมา

    If his mum had this then it’s likely it was pernicious anaemia and not just b12 deficiency

  • @JosieHouck-l6h
    @JosieHouck-l6h 8 หลายเดือนก่อน +2

    Mine was a 83

  • @PMaillet
    @PMaillet 5 หลายเดือนก่อน

    Very interesting, thanks for sharing. It would be so much better without that awful background music.

  • @warrior4enddays665
    @warrior4enddays665 หลายเดือนก่อน

    Please, I have all of these symptoms for years, all dismissed as well. I take sublingual B-12, but I don't think I'm absorbing it in my gut. CAN ANYONE give me info whether B-12 can stay in the bloodstream and show up normal or high on tests, but it's NOT being absorbed in the GUT? Can that happen? Can't get that question answered, it's been years, and getting worse.

    • @LaraClahane
      @LaraClahane หลายเดือนก่อน +2

      You need an active B12 test. A test for homocysteine and methylmalonic acid.
      So yes you can take B12 have a serum blood test to say it's there, but it's not working at a cellular level. You can phone the Pernicious Anemia Society and get more details.
      Unfortunately the NHS are way behind on all this, and slow, which is dangerous.

    • @warrior4enddays665
      @warrior4enddays665 หลายเดือนก่อน +2

      @@LaraClahane Thank you! I guess no doc here wanted to answer that question.I'm in the United States. Doctors here make a lot of money writing DRUG prescriptions. B-12 can't be patented, is a nutrient, so they avoid that, Big Pharma can't make billions on it and won't give doctors their free vacations and gifts for writing B-12 prescriptions as they do most drugs.
      My symptoms have been ongoing for DECADES. No one investigates or prescribes B-12 injections, even if they're safe, but they'll write ten prescriptions for harmful drugs that can kill people. So backwards.
      My red blood cells are fewer and larger, indicating B-12 deficiency. But my labs show high B-12 from sublingual supplements I take, so docs decline my request. I guess I have to endanger myself and deplete all of my B-12... NOT take any supplement for weeks, and test when I'm totally numb, hair falling out and lethargic? I'll ask for the tests you mentioned above. Thank you so much for responding. It's not taken as seriously as it should be. I'll keep you posted! God bless!

    • @vdittycc
      @vdittycc 20 วันที่ผ่านมา

      th-cam.com/video/QqjyAeOLyKM/w-d-xo.htmlsi=yNG1GXOjJABYOjMJ

  • @enteranon3342
    @enteranon3342 4 หลายเดือนก่อน +1

    Englisch
    B12 tablets with 50ug are nothing and if you already have low values ​​you always have problems with absorption in the intestines, 50ug is nothing at all. I have tablets with 5000ug that was the only thing that helped quickly after the injections, taking them in phase white

  • @revelamarinelli883
    @revelamarinelli883 3 หลายเดือนก่อน

    Jimmy, how are you doing now? Have all your symptoms dissappeared? Do you take B12 now? How often? Thanks for sharing your story. I almost died for lack of B12. Had to change doctors to get the right diagnosis.

    • @jimmy93538
      @jimmy93538 หลายเดือนก่อน +1

      Sadly no I still have problems and still only every 8 weeks, even that is an argument from time to time

  • @Paragon62
    @Paragon62 2 หลายเดือนก่อน

    Why didn’t you change your doctor,go private?

    • @jimmy93538
      @jimmy93538 หลายเดือนก่อน +1

      I saw several doctors and yes I could go private but why should I? The guidelines are crystal clear and the NHS should be following them. Not just for me but for everyone!

  • @liamburns8554
    @liamburns8554 2 หลายเดือนก่อน

    I don’t get why ppl have so much trust or reliance on the NHS. Take action yourself. Buy B12 online and inject

  • @czechmyfpv9854
    @czechmyfpv9854 5 หลายเดือนก่อน +5

    Yea been there too. Mine were at 92. I had even more symptoms. I started taking 1000-2000mcg daily and in 6 weeks everything was good

    • @juliehowe3
      @juliehowe3 4 หลายเดือนก่อน

      May I ask in what form? Are they just standard supplements (brand?) or sublingual? Are they prescribed or did you choose them yourself based on your own research?

    • @czechmyfpv9854
      @czechmyfpv9854 4 หลายเดือนก่อน +2

      @@juliehowe3 garden of life raw B12. It’s the good form Methyl. I take them with B complex together.

    • @israelmendez2259
      @israelmendez2259 2 หลายเดือนก่อน

      @@czechmyfpv9854how are you feeling?

    • @edgarperez4635
      @edgarperez4635 2 หลายเดือนก่อน

      Glad to hear You overcome this situation. Cold was one of your symptoms too?

  • @ashleighcharakupa745
    @ashleighcharakupa745 6 หลายเดือนก่อน +1

    Hello Everyone. Thanks to Jimmy, Charlotte & the Team @ Slater & Gordon for shedding light on this deficiency.
    I am all the way in Africa and have been to two GP’s with a b12 level of 203 pmol/L. They say 133-674 pmol/L is normal range, but I feel horrendous, daily. I have been on 1mg of Cyanocobalamin since mid January this year. The effects wear off in a short period and I am back to feeling terrible by 10am, lol. Please share with me what are acceptable normal ranges in your respective countries? Thanx in advance.

    • @mimibecca2883
      @mimibecca2883 4 หลายเดือนก่อน

      My local hospital system is 180 - 914 pg/mL.

    • @jnkrm1
      @jnkrm1 4 หลายเดือนก่อน

      Check the above comments and see if you need an active B12 test ( different from serum B12)

  • @LaneCodeRedCarnivore
    @LaneCodeRedCarnivore 4 หลายเดือนก่อน +2

    I did research about b12 and found out that ascorbic acid makes b12 unavailable to your body. Ascorbic acid is an additive in foods to protect the freshness. If you are have problems with fatigue check your food or supplements. This info came from the Mayo Clinic !

    • @anniemorning669
      @anniemorning669 16 ชั่วโมงที่ผ่านมา

      Isn't ascorbic acid the proper name for vitamin c

  • @michaelvarney.
    @michaelvarney. 3 หลายเดือนก่อน

    I don’t get it… you go online, get veterinary grade b12 and some syringes and self dose. Done. If you feel like you are going to die, then it is easy to research what to do and go out and fix it.

    • @mem1701movies
      @mem1701movies 2 หลายเดือนก่อน +1

      No it isn’t

    • @michaelvarney.
      @michaelvarney. 2 หลายเดือนก่อน

      @@mem1701movies it isn’t for idiots I suppose.

  • @naziastanikzai5997
    @naziastanikzai5997 5 หลายเดือนก่อน

    I am b 12 deficient . My level was 80 😂
    And
    I got joint pain
    Pains and needle
    Coldness
    One night my both legs were totally numb.
    My gp gave me 1 mg b 12 ever day for three months

    • @edgarperez4635
      @edgarperez4635 2 หลายเดือนก่อน

      Same for me with the coldness and tired legs and arms. Did You use supplements or injections of B12? My sérum B12 was 120

    • @livetomanifest2272
      @livetomanifest2272 หลายเดือนก่อน

      180 here. Have felt the a wierd cold sensation in the brain mostly. It’s like brain freeze kinda. Very strange

  • @lynkinealy2926
    @lynkinealy2926 หลายเดือนก่อน +2

    Are you wearing a helmet

  • @charlieabel1533
    @charlieabel1533 9 หลายเดือนก่อน +1

    why didn't you just go to another doctor?

    • @jimmy93538
      @jimmy93538 8 หลายเดือนก่อน +6

      I tried 4 doctors in the end before giving up and going down this route

    • @SarahSmith-hd8kd
      @SarahSmith-hd8kd 8 หลายเดือนก่อน

      ​@@jimmy93538
      I have the extreme fatigue and brain fog.
      I am wondering though is muscle mass and loss of strength one of the symptoms?
      My arms and body just feels extremely tired and heavy after even a small physical exertion and muscle contractions or use of strength.
      I also wake up feeling NO energy as well.
      I can't say I had all the same symptoms but depression, anxiety the pins and needles thing.
      The worst however, was an initially large weight loss ( mainly muscle ) with loss of strength obviously and very heavy exausted arms and upper body with little to no physical exertion at all sometimes.
      This has been going on for 3 plus months with doctors saying all your bloodwork is normal... but none have tested or even mention vitamin D or B12 or even magnesium at all much less testing them.
      I am starting to go a bit nutty here... as my job and my family are at stake.
      If you have any insight I appreciate anything at all.
      Thsnk you!

    • @NickBarrett-cd3sb
      @NickBarrett-cd3sb 7 หลายเดือนก่อน +3

      I've just had to change doctors because my several of them at my last surgery refused to believe I have a b12 issue. My serum level was normal but I have textbook symptoms (crushing fatigue, nausea, dizziness, palpitations, random pains, headaches, vision problems, ridged fingernails, muscle twitches and pins and needles in my hands and feet) so I paid for an active b12 test and it came back very low. I sent them this and said i need injections and they wouldn't even call me back, just text saying it's not a deficiency and my serum is normal. I immediately went and registered with another doctor who has put me on injections every other day for 2 weeks with a follow up at the month. I've probably just fell lucky finding a good gp but I can confirm a lot of them have no idea about this and will just fob you off which is horrific when you have symptoms like this.

    • @Ania-qb3ot
      @Ania-qb3ot 7 หลายเดือนก่อน +1

      ​@@jimmy93538because they are all the same zero trained so clueless
      Uk only gives 2 to 4 shots a yr anyway, its insane

    • @HollyJordan15
      @HollyJordan15 3 หลายเดือนก่อน +1

      It’s not as easy as that. GPs work in a system & normally all follow the same reasoning.

  • @ragnarkisten
    @ragnarkisten 23 วันที่ผ่านมา

    Austin Powers?

  • @theresageiger584
    @theresageiger584 7 หลายเดือนก่อน

    Omg I wish I had known better

  • @sanataj
    @sanataj 26 วันที่ผ่านมา

    Have you come across nurse Sally Pacholok? A US hospital nurse who noticed B12 deficiency in many patients. There's a film on TH-cam and she co-wrote a book called Could It Be B12?

  • @ArthurLockwood-e8c
    @ArthurLockwood-e8c 6 หลายเดือนก่อน

    Is this true. Don't take the. P__ please 🇬🇧🥺

  • @thomasmeier0815
    @thomasmeier0815 21 วันที่ผ่านมา

    I was on vegan diet..... starvation diet! 15 years and I was slooowly dying.

    • @nadia-xy3qj
      @nadia-xy3qj 18 วันที่ผ่านมา

      what did you typically eat daily n what were the symptoms that made u stop if u don't mind me asking? im vegan 7 years atm and having weird symptoms.

    • @thomasmeier0815
      @thomasmeier0815 17 วันที่ผ่านมา

      @@nadia-xy3qj I cooked fresh food twice a day. Mostly vegetables fried briefly with shiitake mushrooms or fermented soy products (not too often because of phytoestrogens) and rice or potatoes or other cereals with lots of spices and olive oil. Legumes mainly lentils and some seeds and nuts. Spirulina, mushrooms and fermented soy and sauerkraut for vitamin B12 and other vitamin B. For fatty acids, flaxseed oil, sea buckthorn oil, etc. Zero alcohol, zero sweets. Various herbal teas, water, black coffee and water kefir and kombucha. Fresh drinking coconuts and fruit, including more dark berries than highly sugary fruit such as grapes or bannanas.
      It's been 9 years now, so I don't remember all the symptoms, and I was missing more than vitamin b12. Vitamin A, K, D and all b vitamins, proteins and trace elements. Symptoms: too weak to walk(!!), diarrhea for years, 1 very strong migraine attack, skin changes yellowish, with spots without pigmentation, and brown at pressure points, wandering pain in muscles, bones, tendons, brain fog, irritable, depressed, tired and prone to stress, dental problems. Since the vegan diet consists mainly of carbohydrates (glucose and fructose), I developed non-alcoholic fatty liver disease and insulin resistance. The stomach gets used to food that does not require a low pH value, as is the case for meat, and this has serious consequences for the entire digestive tract!
      To cut a long tale of woe short, I bought a dog and wanted to feed it well, so I examined each food individually for its nutritional value and found that only animal foods have all the nutrients a living creature needs to live healthily. I fell for lies! At the same time, I read the bible and realized that my diet was called FASTING. How long can a person fast? Not 15 years. The bible also says what is digestible for humans. No algae, no mushrooms, no crustaceans... They can all have heavy metal levels that are far too high. No pork for a reason! Note that it is often claimed that spirulina contains vitamin B12, but this is false. It has pseudovitamin B12, which has not been shown to be effective in humans. Spirulina is a type of blue-green algae.
      I wanted to LIVE so I stopped being vegan.

    • @thomasmeier0815
      @thomasmeier0815 17 วันที่ผ่านมา

      @@nadia-xy3qj
      @thomasmeier0815
      vor 55 Minuten (bearbeitet)
      @nadia-xy3qj I cooked fresh food twice a day. Mostly vegetables fried briefly with shiitake mushrooms or fermented soy products (not too often because of phytoestrogens) and rice or potatoes or other cereals with lots of spices and olive oil. Legumes mainly lentils and some seeds and nuts. Spirulina, mushrooms and fermented soy and sauerkraut for vitamin B12 and other vitamin B. For fatty acids, flaxseed oil, sea buckthorn oil, etc. Zero alcohol, zero sweets. Various herbal teas, water, black coffee and water kefir and kombucha. Fresh drinking coconuts and fruit, including more dark berries than highly sugary fruit such as grapes or bannanas.
      It's been 9 years now, so I don't remember all the symptoms, and I was missing more than vitamin b12. Vitamin A, K, D and all b vitamins, proteins and trace elements. Symptoms: too weak to walk(!!), diarrhea for years, 1 very strong migraine attack, skin changes yellowish, with spots without pigmentation, and brown at pressure points, wandering pain in muscles, bones, tendons, brain fog, irritable, depressed, tired and prone to stress, dental problems. Since the vegan diet consists mainly of carbohydrates (glucose and fructose), I developed non-alcoholic fatty liver disease and insulin resistance. The stomach gets used to food that does not require a low pH value, as is the case for meat, and this has serious consequences for the entire digestive tract!
      To cut a long tale of woe short, I bought a dog and wanted to feed it well, so I examined each food individually for its nutritional value and found that only animal foods have all the nutrients a living creature needs to live healthily. I fell for lies! At the same time, I read the bible and realized that my diet was called FASTING. How long can a person fast? Not 15 years. The bible also says what is digestible for humans. No algae, no mushrooms, no crustaceans... They can all have heavy metal levels that are far too high. No pork for a reason! Note that it is often claimed that spirulina contains vitamin B12, but this is false. It has pseudovitamin B12, which has not been shown to be effective in humans. Spirulina is a type of blue-green algae.
      I wanted to LIVE so I stopped being vegan.

    • @thomasmeier0815
      @thomasmeier0815 14 วันที่ผ่านมา

      @@nadia-xy3qj I have tried to answer you 3 times!! My answer has not appeared. That is why I will answer in sections. I am a 48 year old woman, thomas meier is my husband.

    • @thomasmeier0815
      @thomasmeier0815 14 วันที่ผ่านมา

      @@nadia-xy3qj As a vegan, you are not only deficient in vitamin B12. Also A and K2 (MK-4)!!! Protein deficiency is also a matter of course.

  • @joelcowley3695
    @joelcowley3695 3 หลายเดือนก่อน +2

    Eat organ meat people!!