I do not have a chronic illness, and I'm STILL not sure how I ended up on your channel from Sims content, but... like button punched, because there is someone out there that needs to hear this and will see it at random the way I did.
Awesome video. As a soon-to-be-doctor, this video has really driven home the point that patients are not just their diagnosis - they are so much more. Keep strong!
I have autoimmune disease and am on biologics. Your point about knowing your labs and being an advocate is so true. Last month some of my bloodwork came back more elevated than usual, at my specialist appt I questioned it because I knew the new biologic I was on could cause it. The nurse pract disagreed with me but I requested the bloodwork to be re-ran to double check. It came back way higher, it appears the new biologic is damaging my liver. Not good, but I really had to push for the labs to be redone. Had I not advocated for myself it could have turned out so much worse.
This is so timely for me. Thank you for making this video. It is so necessary to hear these things being discussed at length from both the patient and professional POV's. Invisible illnesses like Crohn's and IBD (and other Autoimmune disorders) need to be demystified. You are also great at delivering a very relaxing, informative presentation, which is so appreciated. So thank you again for being brave enough to put this out.
THANKS SO VERY MUCH MAGGIE FOR BEING SO OPEN!!!...I had ulcerative colitis for 14 years that turned to colon cancer...everything had to be removed & now I have an ileostomy...(the Barbie butt & proctocolectomy)...you have been so informative & it helps so much!!!...& that was 19 1/2 years ago now!!!...🙌🏻🙌🏻🙌🏻
You must be an awesome nurse because you actually know what it's like to have a disease. I can tell you have tons of compassion and your patients are blessed to have you.
I have celiac disease, ibs, several food allergies, raynaud's, and lupus. There is never a break. I have good days and bad days. Have had good and awful doctors, I've had doctors give me dirty looks for reading my own bloodwork. Doctors work for you, don't be afraid to ask questions and don't be afraid to fire a bad doctor.
I know this will seem shallow, but I have to say that you look fabulous and happy today😎 rocking your hair, make up and blouse, plus your beautiful smile and down to earth and honest personality is a breath of fresh air . Thank you!💐💕🙏🏼
So true that an illness doesn't just affect that one part, but can often impact the whole body and whole person as well. Have to say your makeup looks so pretty in this video!
You have no doubt helped many people World wide in what to expect their lives might be like with IBS, both now and in the future. Keep on doing your videos Maggie, so many people need your help. 💐 🐨 🦘
So true. I have MS and hypo.. I'm one of the analytical patients 100% 😅 I follow you since one search on youtube that listed one of your videos... even if the diseases are different.. we as autoinmune patients are one big group that "knows" how is to live with a crazy body that attacks itself and gives us a lot of different stuff (too many to count).. Thanks for the effort you put on the videos! Grettings from Costa Rica
I love your hair in this! You have just the right face shape for the style. I wish I could do that with mine and look that good! I'm so glad you have had such supportive and helpful doctors.
You are an inspiration! Thank you for sharing the human side of things. You are looking like you may have found a good balance with meds...you are glowing.
Love to you you sweetheart! You make me smile and feel that I can get through my illnesses if you can with such a great attitude, even though I’m well aware you have bad moments too...as we all do sadly....we gotta use every bit of strength to pick ourselves back up and continue on. You’ve taught me so much💜
I don't have this particular chronic condition, however I do have a couple. I can slightly relate to the isolation, analyzing, and asking questions. Also, I know what it is like to carry it as you do everyday difficult things like; work, go to school, maybe try to date. I'm sure your videos are reaching many. Thanks for making them.
This video brought me to tears. I don't have any of the health issues you discuss on your channel, but I can relate to having a chronic condition. I've got an undiagnosed chronic health issue that started when I was 10 years old... I'm turning 29 on valentines day. So I've dealt with this every second of every day for 19 years (almost 2/3 of my life) and I've never heard a video that I could relate so closely to. Thank you for spreading awareness about chronic conditions.
This hit me hard, I felt every point you’ve made here. I am 9 & 1/2 years into my chronic kidney stone condition. Early on it was so devastating and left me lost yet somehow I’m still here. Now I’m down from 25+ stones per year to 4-5 stones per year is amazing. Thank you for making me not feel crazy for doing al these things lol it was a shock to be diagnosed with this at 16 years old.
Maggie ive learned more from you in a week than doctors have explained to me.. I had a kidney transplant in 2009 and the immunosuppressive medication caused chrons and many other side effects. My struggle started when i was 20, shortly after the birth of my daughter when I was diagnosed with a progressive kidney disease, i spent 6 years on dialysis... I was extremely sick during that time. In and out of ICU when my fistula became infected.. It was dialysis 3 x a week for 4 hours. There are so many things that went wrong that i would spend all night talking about it. It feels like my life has been taken over.. I vant use the meds for chrons because it's too toxic for my kidney Ps. Excuse the spelling my eyes are so bad. Thanks fot the encouragement keep well and please dont stop the much needed work you are doing Greetings Tanya
Being sick has been so hard on my mental health. I enjoy your practical advice and positive outlook. Thank you for spreading awareness and hope for the good days to come. Sending endless well wishes to everyone xo
OMG Maggie 😲 you did it 👏 😍 🙌 ❤. We need people like you, that is a patient with an IBD and other related diseases, that millions around the world have or might have, and don't have a freakin clue of what is happening to them. That is so sad. But I'm so glad that you will be there for us, and the best of all, you'll understand us and we'll understand you!!!! Love you gorgeous and a suggestion for one of your future vlogs, a chat with Zak as your husband and your best friend ❤. Blessings to you guys 👦 🙏.
I legit see your upcoming videos and titles and I’m like... Maggie... I need to know ... now!! Just found your channel recently and I think your amazing - your ability to be your authentic self is inspiring 💜
Hi. I'm 15y in the chronic back pain, lead to disability. And can relate point by point ❣ You're awesome, keep on doing what you do to the whole community of chronically is 💞
Omg yes. I have some illnessess that have no cure that I know of, and it hits me randomly and goes away randomly and the most I can do is keep myself as happy and comfy as possible.. But every time it hits I spend at least 4 days thinking 'was it that disagreement I had with someone? Maybe I just have a cold? Is my mental state doing it? Is it something, anything else?' and I bet it's slightly annoying to anyone who has to read those rambles time and time again but I guess I need the process to accept my state of being.. I love that you have seen both sides, as a patient and as a nurse, since yes some doctors are just so overworked and tired they have no capacity for empathy any more and I understand but as a patient it just breaks down courage. You're such a cool cat, I love your vids, thank you!
Yeah, Maggie, you are definitely right. I am an Italian 28 year old , former pizza chef but now studying to be a nurse, and i got diagnosed with Ulcerative Colitis roughly 3 years ago. Even after remission i am still afraid to go out in fear that i'll soil myself, lose blood or throw up/be sick. Same for sex and dating. It became almost a phobia. It gets better tough. So yes ma'am, even if its only a section of the body issue, it will affect the whole individual.
I get called a zebra and unicorn all the time and so many docs try to pass me off because I’m “too medically complex/compromised”. Having gastroparesis, short gut, and EoE I have spent so long trying to find ways to make one illness better without making the others worse. You can’t try and treat the GP without making my, extremely fast emptying faster, trying to slow down my intestines makes my stomach slower (which isn’t so much possible anymore it’s just done moving). I will never be able to go without my feeding tube again, and most likely the same will go for my central line. I have been septic 16 times just with central line infections, and countless infections and abscesses in my gut. My stomach failure has caused so many other medical complications like heart issues, hematological issues, kidney problems, and it gets so overwhelming. I’ve met some amazing people who fight like I do everyday, and it is inspiring.
I have IBS and went years before I actually got diagnosed. I had severe stomach pain and couldn't move for 45 mins. My doctor ran every test he could think of and nothing. Then I switched my doctor (for other reasons) he was able to diagnose me without test.
Boy do I know your pain, I'm 64 and can't tell you how many social events I've declined -as I was in the fetal position with severe stomach pain! After countless visits with doctors, whom many said it was stress, I too have been diagnosed with Ibs and diverticulosis. It's a challenge every day to find foods that I can digest, my diet is very limited, I do take metamucil 3 times a day and find it helps, but unfortunately many friends still dont understand why I have such a limited diet, I feel for anyone who has delt with stomach issues ,thankfully I know now it can be managed with a strict diet!
It took me literally over 25+ years to be diagnosed with Crohn’s. Nothing was showing up on colonoscopies except on the lab slides. Then I was diagnosed finally with ulcerative colitis even though CT scans showed I had terminal ileitis. I was being treated on a very low dose of Remicade and 6MP and after 6 years at the same time my Gastro doctor retired very suddenly, I was looking for a new doctor while having a painful bowel obstruction. When I first started with the new doctor he found the obstruction and on a CT scan found Ankylosing Spondylitis. I also have autoimmune ear disease although never formally diagnosed. I lost the hearing in my left ear and have chronic disequilibrium and vertigo. It’s been quite a ride. We’re planning on moving out of state in the next year and I’m concerned that I won’t be able to find good specialists in the Lancaster, PA area. Great video Maggie. I’m so happy I found you 🥰❤️
Fifteen-year-old Sionna ignored her illness for five years (I started showing symptoms when I was ten) until my PCP was like "girl, you got rickets and I can see your ribs." It took me a long time to get myself in a place to accept that I had my illness and need to cut out half the junk I consumed in my diet and to take the medications as appropriate. With that being said, twenty-nine-year-old Sionna does a pretty good job of coasting through things.
I’ve got no life experience with IBD but love your videos. This is subject matter that frankly just isn’t shared often, if ever with the general public. And that’s sad.
Hello Maggie and thank you for the video. I have a diagnosis of Ulcerative Colitis which is in remission thankfully. When I was young I wanted to be as active and as social as my friends so I would hide how tired and unwell I was feeling. The psychological impact of chronic illness should not be underrated.
I have many chronic diseases and though I've found a FB group for Syringomyelia I can't find anything on TH-cam and that's frustrating. It's a very rare disease. I wish I had the guts to start a channel of my own but I just don't. Thank you for advocating for yourself and others!!
Thank you for your videos. Yes Crohn’s disease does not have a cure. I have had it for over 30 years. I was fortunate that I have had awesome doctors. They taught me how to recognize flares and such. Take care
Wow this really was helpful! You look gorgeous! So true where when u get the diagnosis, and your like.." ok, so what pill do I take to make it go away, so I can be normal again? Not realizing it's life long...to me, that was a shocker. Love your content, keep smiling 😁
Can you do a video on Crohn’s colitis and the difference between UC and CD? I’ve tried to educate newly diagnosed patients that say they have both diseases because their doctor diagnosed them with Crohn’s colitis. I even asked my GI and he confirmed you can’t have both. Crohn’s colitis is Crohn’s disease only showing up in the colon. It’s just really frustrating when people don’t understand or they want to be ignorant or whatever the case may be. I feel we need to educate one another! I love your videos and you and your husband are amazing!!
Thanks for the great idea! I started to write exactly what you did about Crohn's colitis- so many think they have both diseases when in reality, UC and Crohn's have more difference than just location!
Also females need to make sure they get their pap tests. I just found out those with autoimmune diseases and biologics increase your chances of cervical cancer. Some doctors don't take this in to account when they tell you when to get your next pap done
After my cousin passed suddenly I developed hypochondria / health anxiety. I've seen a mental health nurse who helped a lot, as a patient and nurse, do you have any in sights?
I also suffer from terrible health anxiety that was largely triggered by family illnesses. It’s a horrible disorder and I’m sorry you are also dealing with it.
Great video as always. I have a question. Recently I have developed a rash around my ostomy flange And it has been very itchy And red. Do You think that I could be developing some sort of allergic reaction? I also have to use tape to help the flange stick the paste isn't Enough anymore.
Live in the moment and enjoy every small joy that’s being given to you. Having a lot of lows gives you the chance to see many more highs in life than most other people and become a happier person because of it.
*Φ um, just so you know, that term is offensive now - it is **_"the, named for the one that isnt the 'maiden' or 'mother', but not for any elder prejudices reasons, disease/gift"_* . jk im just playing. the doctors not having all the answers point is gr8. & you are the only one who will pour over you numbers; they could even be related (but youd also have to trust the labs, and hope they were taken in time and the sample was ok: still) the ppl not being able to understand; or just (sometimes unconsciously too) wanting no more to do w the stress of it all: that goes with all illness. gr8 vid as always. always happy when i click on one of yours
Honestly this première feature is annoying. Having a video in my subscription list when it won’t be released for two days is really useless :( otherwise I really love your videos, they are very interesting:)
I appreciate the premiere notification Maggie.. It’s good to be given the heads up so i try to be available at that time and it gives something to look forward to as I enjoy all your videos very much 😊 So very informative and inspirational too..Honestly, almost everything I learned about Ostomies and how to care for my own I learned from you and a couple of other ostomates. I wish I had a nurse like you after my surgeries.. I was given very little information on care, diet, etc.. thanks so very much for your help!!! ♥️
I love the heads up, enjoy the pre-chats when I can join in. Honestly I think there are a lot worse things in the world 😉 annoying because it’s in the list 🤔 ok.....
I do not have a chronic illness, and I'm STILL not sure how I ended up on your channel from Sims content, but... like button punched, because there is someone out there that needs to hear this and will see it at random the way I did.
Awesome video. As a soon-to-be-doctor, this video has really driven home the point that patients are not just their diagnosis - they are so much more. Keep strong!
Have you ever had to clean up a SOAP note?
@@pongohuston8666 definitely😂😂
Thank you! Don’t ever become jaded! I see that a lot😉 congrats on your soon to be MD!
I have autoimmune disease and am on biologics. Your point about knowing your labs and being an advocate is so true. Last month some of my bloodwork came back more elevated than usual, at my specialist appt I questioned it because I knew the new biologic I was on could cause it. The nurse pract disagreed with me but I requested the bloodwork to be re-ran to double check. It came back way higher, it appears the new biologic is damaging my liver. Not good, but I really had to push for the labs to be redone. Had I not advocated for myself it could have turned out so much worse.
Maggie your hair and makeup and outfit look so beautiful! Best wishes to you and thank you for posting.
This is so timely for me. Thank you for making this video. It is so necessary to hear these things being discussed at length from both the patient and professional POV's. Invisible illnesses like Crohn's and IBD (and other Autoimmune disorders) need to be demystified. You are also great at delivering a very relaxing, informative presentation, which is so appreciated. So thank you again for being brave enough to put this out.
THANKS SO VERY MUCH MAGGIE FOR BEING SO OPEN!!!...I had ulcerative colitis for 14 years that turned to colon cancer...everything had to be removed & now I have an ileostomy...(the Barbie butt & proctocolectomy)...you have been so informative & it helps so much!!!...& that was 19 1/2 years ago now!!!...🙌🏻🙌🏻🙌🏻
You must be an awesome nurse because you actually know what it's like to have a disease. I can tell you have tons of compassion and your patients are blessed to have you.
I have celiac disease, ibs, several food allergies, raynaud's, and lupus. There is never a break. I have good days and bad days. Have had good and awful doctors, I've had doctors give me dirty looks for reading my own bloodwork. Doctors work for you, don't be afraid to ask questions and don't be afraid to fire a bad doctor.
Amen Sista! 😄
I know this will seem shallow, but I have to say that you look fabulous and happy today😎 rocking your hair, make up and blouse, plus your beautiful smile and down to earth and honest personality is a breath of fresh air . Thank you!💐💕🙏🏼
She looks very pretty!
I don’t have IBD but I find your videos very insightful and you could relate then in other conditions. You explain things very well.
So true that an illness doesn't just affect that one part, but can often impact the whole body and whole person as well. Have to say your makeup looks so pretty in this video!
You have no doubt helped many people World wide in what to expect their lives might be like with IBS, both now and in the future. Keep on doing your videos Maggie, so many people need your help. 💐 🐨 🦘
The amount of strength you have is jaw dropping inspiring and so motivating ❤❤❤🙏 sending lots of love xoxox
So true. I have MS and hypo..
I'm one of the analytical patients 100% 😅
I follow you since one search on youtube that listed one of your videos... even if the diseases are different.. we as autoinmune patients are one big group that "knows" how is to live with a crazy body that attacks itself and gives us a lot of different stuff (too many to count)..
Thanks for the effort you put on the videos! Grettings from Costa Rica
Maggie your skin is glowing. Whatever youre doing, keep it up. You look gorgeous. 🐨
Great video Maggie and by the way, you look fabulous ! ❤
I love your hair in this! You have just the right face shape for the style. I wish I could do that with mine and look that good! I'm so glad you have had such supportive and helpful doctors.
You look so much healthier, your cheeks are filling out, yeaaa on weight gain for you💓
what a fantastic video for anyone with a chronic condition.
You are an inspiration! Thank you for sharing the human side of things. You are looking like you may have found a good balance with meds...you are glowing.
Love to you you sweetheart! You make me smile and feel that I can get through my illnesses if you can with such a great attitude, even though I’m well aware you have bad moments too...as we all do sadly....we gotta use every bit of strength to pick ourselves back up and continue on. You’ve taught me so much💜
I don't have this particular chronic condition, however I do have a couple. I can slightly relate to the isolation, analyzing, and asking questions. Also, I know what it is like to carry it as you do everyday difficult things like; work, go to school, maybe try to date. I'm sure your videos are reaching many. Thanks for making them.
You are such a tremendous power of example. You show us how we can and do get through everything.
One day at a time!!!
Thank you for all you do Maggie ! You truly are a God send. 💜
Great video! There are so many layers to chronic illness, you nailed it in this video. Thank you!
This video brought me to tears. I don't have any of the health issues you discuss on your channel, but I can relate to having a chronic condition. I've got an undiagnosed chronic health issue that started when I was 10 years old... I'm turning 29 on valentines day. So I've dealt with this every second of every day for 19 years (almost 2/3 of my life) and I've never heard a video that I could relate so closely to. Thank you for spreading awareness about chronic conditions.
You are so strong and its so amazing how honest you are about things. I really enjoy your videos!
This hit me hard, I felt every point you’ve made here. I am 9 & 1/2 years into my chronic kidney stone condition. Early on it was so devastating and left me lost yet somehow I’m still here. Now I’m down from 25+ stones per year to 4-5 stones per year is amazing. Thank you for making me not feel crazy for doing al these things lol it was a shock to be diagnosed with this at 16 years old.
Maggie, you are beautiful! Wishing you the best!
Maggie thank you for all that you do !
You are so gorgeous! Your hair and skin is flawlewss!
Maggie ive learned more from you in a week than doctors have explained to me.. I had a kidney transplant in 2009 and the immunosuppressive medication caused chrons and many other side effects. My struggle started when i was 20, shortly after the birth of my daughter when I was diagnosed with a progressive kidney disease, i spent 6 years on dialysis... I was extremely sick during that time. In and out of ICU when my fistula became infected.. It was dialysis 3 x a week for 4 hours. There are so many things that went wrong that i would spend all night talking about it. It feels like my life has been taken over.. I vant use the meds for chrons because it's too toxic for my kidney
Ps. Excuse the spelling my eyes are so bad.
Thanks fot the encouragement keep well and please dont stop the much needed work you are doing
Greetings
Tanya
Being sick has been so hard on my mental health. I enjoy your practical advice and positive outlook. Thank you for spreading awareness and hope for the good days to come. Sending endless well wishes to everyone xo
Very informative with humor. Just love you sweetie.
Thank you.
You are the cutest thing! So mature and informed! Love you energy!
Look forward to seeing you Maggie! Thx so much for your response to my question about prep for ileoscopy prep. 😊
Yes... no day off is definitely the worst part... but you gotta keep going to feel your best. 👍🏻😊
Nice vlog Maggie 🥰 I agree with the “it’s not just the GI tract” it affects the whole body 😜
OMG Maggie 😲 you did it 👏 😍 🙌 ❤. We need people like you, that is a patient with an IBD and other related diseases, that millions around the world have or might have, and don't have a freakin clue of what is happening to them. That is so sad. But I'm so glad that you will be there for us, and the best of all, you'll understand us and we'll understand you!!!! Love you gorgeous and a suggestion for one of your future vlogs, a chat with Zak as your husband and your best friend ❤. Blessings to you guys 👦 🙏.
I legit see your upcoming videos and titles and I’m like... Maggie... I need to know ... now!! Just found your channel recently and I think your amazing - your ability to be your authentic self is inspiring 💜
Hi Maggie!
Thank you for sharing your information and experiences. Your hair is looking really healthy!
Hi. I'm 15y in the chronic back pain, lead to disability. And can relate point by point ❣
You're awesome, keep on doing what you do to the whole community of chronically is 💞
Omg yes. I have some illnessess that have no cure that I know of, and it hits me randomly and goes away randomly and the most I can do is keep myself as happy and comfy as possible..
But every time it hits I spend at least 4 days thinking 'was it that disagreement I had with someone? Maybe I just have a cold? Is my mental state doing it? Is it something, anything else?' and I bet it's slightly annoying to anyone who has to read those rambles time and time again but I guess I need the process to accept my state of being..
I love that you have seen both sides, as a patient and as a nurse, since yes some doctors are just so overworked and tired they have no capacity for empathy any more and I understand but as a patient it just breaks down courage.
You're such a cool cat, I love your vids, thank you!
Wonderful video. Boy oh boy can I relate!!!
Yeah, Maggie, you are definitely right. I am an Italian 28 year old , former pizza chef but now studying to be a nurse, and i got diagnosed with Ulcerative Colitis roughly 3 years ago. Even after remission i am still afraid to go out in fear that i'll soil myself, lose blood or throw up/be sick. Same for sex and dating. It became almost a phobia. It gets better tough.
So yes ma'am, even if its only a section of the body issue, it will affect the whole individual.
I get called a zebra and unicorn all the time and so many docs try to pass me off because I’m “too medically complex/compromised”. Having gastroparesis, short gut, and EoE I have spent so long trying to find ways to make one illness better without making the others worse. You can’t try and treat the GP without making my, extremely fast emptying faster, trying to slow down my intestines makes my stomach slower (which isn’t so much possible anymore it’s just done moving). I will never be able to go without my feeding tube again, and most likely the same will go for my central line. I have been septic 16 times just with central line infections, and countless infections and abscesses in my gut. My stomach failure has caused so many other medical complications like heart issues, hematological issues, kidney problems, and it gets so overwhelming. I’ve met some amazing people who fight like I do everyday, and it is inspiring.
I have IBS and went years before I actually got diagnosed. I had severe stomach pain and couldn't move for 45 mins. My doctor ran every test he could think of and nothing. Then I switched my doctor (for other reasons) he was able to diagnose me without test.
I feel you, my first doctor sent me to see a psychologist.
Boy do I know your pain, I'm 64 and can't tell you how many social events I've declined -as I was in the fetal position with severe stomach pain!
After countless visits with doctors, whom many said it was stress, I too have been diagnosed with Ibs and diverticulosis.
It's a challenge every day to find foods that I can digest, my diet is very limited, I do take metamucil 3 times a day and find it helps, but unfortunately many friends still dont understand why I have such a limited diet, I feel for anyone who has delt with stomach issues ,thankfully I know now it can be managed with a strict diet!
Maggie you're videos are inspirational
I'm loving the new editing, the black and white bit, it's a great change.
It took me literally over 25+ years to be diagnosed with Crohn’s. Nothing was showing up on colonoscopies except on the lab slides. Then I was diagnosed finally with ulcerative colitis even though CT scans showed I had terminal ileitis. I was being treated on a very low dose of Remicade and 6MP and after 6 years at the same time my Gastro doctor retired very suddenly, I was looking for a new doctor while having a painful bowel obstruction. When I first started with the new doctor he found the obstruction and on a CT scan found Ankylosing Spondylitis. I also have autoimmune ear disease although never formally diagnosed. I lost the hearing in my left ear and have chronic disequilibrium and vertigo. It’s been quite a ride. We’re planning on moving out of state in the next year and I’m concerned that I won’t be able to find good specialists in the Lancaster, PA area. Great video Maggie. I’m so happy I found you 🥰❤️
Fifteen-year-old Sionna ignored her illness for five years (I started showing symptoms when I was ten) until my PCP was like "girl, you got rickets and I can see your ribs." It took me a long time to get myself in a place to accept that I had my illness and need to cut out half the junk I consumed in my diet and to take the medications as appropriate. With that being said, twenty-nine-year-old Sionna does a pretty good job of coasting through things.
My daughter learned from you. You told It like it is.
I "like" the videos before I watch them. 🤩 Your content is always very informative, fun and real.
P.S. your hair looks amazing Maggie!!!!
Who disliked this video!! Wao people are terrible at times! Love your content Maggie! Keep the videos coming! 😜
Right who would dislike her.. she's the best
Look at that hair! Just gorgeous! 💕
I’ve got no life experience with IBD but love your videos. This is subject matter that frankly just isn’t shared often, if ever with the general public. And that’s sad.
Hello Maggie and thank you for the video. I have a diagnosis of Ulcerative Colitis which is in remission thankfully. When I was young I wanted to be as active and as social as my friends so I would hide how tired and unwell I was feeling. The psychological impact of chronic illness should not be underrated.
You look stunning. Great video!
Hello Maggie
Your videos are great...I love watching you guys!!!
I have many chronic diseases and though I've found a FB group for Syringomyelia I can't find anything on TH-cam and that's frustrating. It's a very rare disease. I wish I had the guts to start a channel of my own but I just don't. Thank you for advocating for yourself and others!!
If there isn't info out there already there is definitely a need! Hoping you'll make a channel to help others with that!
@@LetsTalkIBD, thanks for the vote of confidence! I sincerely appreciate it!!
I totally relate to all of this.
Thank you Maggie. Xoxoxoxo
I love you Maggie 😍 💗
You look beautiful today!!!
Hi Maggie, thank you for sharing! And the funny bit 😂 Could you maybe make a video about how to do medical research for yourself?
Great video every thing you said is so true.😍
Loving the makeup, Maggie!! ♥️
Hi Maggie❤ you look so beautiful and love watching you talk
Hello...I like your shirt!!!
Thank you for this video- I have a sigmoidoscopy due in a few days to find out what’s going on with my gut. Trying to stay open minded 😊
Beautiful young lady! Beautiful hair!
Too funny! Got an ad talking about the fat burning power of the large intestine.
Thank you for your videos. Yes Crohn’s disease does not have a cure. I have had it for over 30 years. I was fortunate that I have had awesome doctors. They taught me how to recognize flares and such. Take care
Wow this really was helpful! You look gorgeous! So true where when u get the diagnosis, and your like.." ok, so what pill do I take to make it go away, so I can be normal again?
Not realizing it's life long...to me, that was a shocker. Love your content, keep smiling 😁
Can you do a video on Crohn’s colitis and the difference between UC and CD? I’ve tried to educate newly diagnosed patients that say they have both diseases because their doctor diagnosed them with Crohn’s colitis. I even asked my GI and he confirmed you can’t have both. Crohn’s colitis is Crohn’s disease only showing up in the colon. It’s just really frustrating when people don’t understand or they want to be ignorant or whatever the case may be. I feel we need to educate one another! I love your videos and you and your husband are amazing!!
Thanks for the great idea! I started to write exactly what you did about Crohn's colitis- so many think they have both diseases when in reality, UC and Crohn's have more difference than just location!
You almost made me cry about the test result thing .. I’ve driven myself crazy over mine 😭😭
Such a cute couple!
Also females need to make sure they get their pap tests. I just found out those with autoimmune diseases and biologics increase your chances of cervical cancer. Some doctors don't take this in to account when they tell you when to get your next pap done
🤝
Good video
After my cousin passed suddenly I developed hypochondria / health anxiety. I've seen a mental health nurse who helped a lot, as a patient and nurse, do you have any in sights?
I also suffer from terrible health anxiety that was largely triggered by family illnesses. It’s a horrible disorder and I’m sorry you are also dealing with it.
@@mamareader2874 Hugs.
Great video as always. I have a question. Recently I have developed a rash around my ostomy flange And it has been very itchy And red. Do You think that I could be developing some sort of allergic reaction? I also have to use tape to help the flange stick the paste isn't Enough anymore.
It might be a fungal infection if its spotty! Allergic rashes appear exactly where your flange lies
I have been diagnosed with SIBO, IBS, Colitis and on a low fodmap diet, yuck. Any suggestions on how to live somewhat normal life?
Learn how to cook... be firm on setting boundaries, and realize that you won't have a "normal" life.
Live in the moment and enjoy every small joy that’s being given to you. Having a lot of lows gives you the chance to see many more highs in life than most other people and become a happier person because of it.
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What type of dr diagnosed your autoimmune issues ... I dant eat with terrible pain I seen four allergy Drs with no help.
*Φ um, just so you know, that term is offensive now - it is **_"the, named for the one that isnt the 'maiden' or 'mother', but not for any elder prejudices reasons, disease/gift"_* . jk im just playing. the doctors not having all the answers point is gr8. & you are the only one who will pour over you numbers; they could even be related (but youd also have to trust the labs, and hope they were taken in time and the sample was ok: still)
the ppl not being able to understand; or just (sometimes unconsciously too) wanting no more to do w the stress of it all: that goes with all illness. gr8 vid as always. always happy when i click on one of yours
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Im from Sweden and havet crohns sins i was 9 and now 54 and know what you talking about
Hiiiiiii
Honestly this première feature is annoying. Having a video in my subscription list when it won’t be released for two days is really useless :( otherwise I really love your videos, they are very interesting:)
It allows for people to plan ahead to join the live chat when it does premiere :)
@@LetsTalkIBD yes I like it for that purpose exactly. Ty for taking the time to do them for us Maggie 🥰
I appreciate the premiere notification Maggie.. It’s good to be given the heads up so i try to be available at that time and it gives something to look forward to as I enjoy all your videos very much 😊 So very informative and inspirational too..Honestly, almost everything I learned about Ostomies and how to care for my own I learned from you and a couple of other ostomates. I wish I had a nurse like you after my surgeries.. I was given very little information on care, diet, etc.. thanks so very much for your help!!! ♥️
I love the heads up, enjoy the pre-chats when I can join in. Honestly I think there are a lot worse things in the world 😉 annoying because it’s in the list 🤔 ok.....
agree
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